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10/19/2018

Disclosures Realignment Surgery Below the Belt Surgical Options:  Married to Hologic

 I speak really fast HEIDI WITTENBERG, MD FPMRS  I have way too many slides FEMALE PELVIC MEDICINE & RECONSTRUCTIVE SURGERY/ UROGYNECOLOGY/ GENDER REALIGNMENT SURGERY

MOZAIC CARE INC

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MoZaic Care Inc San Francisco

Mang Chen Heidi Wittenberg

55 Francisco St, Suite 300 San Francisco California 94133 415-395-9895 Phone/ 415-395-9897 Fax Mozaiccare.com

Journey Background Negative Experience in Healthcare Had to teach their provider about 24%  1.4million Transgender = 0.6% of US population people  41% have been diagnosed with clinical depression Asked unnecessary or invasive questions about 15% transgender status  HIV- 15% white transwomen, 24% black transwomen

 29% substance abuse. 3x> US population Refused transition related care 8%

 40% ever attempted suicide/ 10% attempted suicide <1yr Verbally harassed in healthcare setting 6%

 >80% have thought about suicide or attempted suicide if Refused non-transition relatedcare 3% parents were not supportive BUT< 4% if their parents were Provider physically rough or abusive 2% supportive Physically attacked by someone during visit 1%  Concordant ID documents prevent 230 suicides/1000TG Sexually assaulted in a health care setting 1%  Access HRT decreases SI 48% One or more experiences listed 33%

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Unmet Need for Gender Affirming Services Insurance Denials for -78% respondents wanted hormones one day Transition-related Care but only 49% had ever received them -Surgery USTS 2015  25% denied coverage for hormone therapy Transgender Men Have Had Surgery Want it Some Day  55% denied gender affirmation surgeries.- USTS 2015 Top Surgery 36% 61% Denials for Transgender-related Surgeries Metoidoplasty 2% 25% 56%

54% Phalloplasty 3% 19% 52%

Transgender Have Had Surgery Want it Some Day 50% Women 48% Breast 11% 40% Augmentation 46% 44% Vaginoplasty 12% 54% Overall Medicaic Medicare Private Other Multiple Only Only Insurance Insurance Insurance Facial Surgery 6% 39% Only Only

Status of Transgender Care Components of an individual's in this Underserved Population identity/experience  Evolving of Standards of Care

 WPATH ( World Professional Association of Transgender Health)  Assigned refers to the classification of individuals at  USPATH (US Professional Association of Transgender Health) birth as male or female.

 UCSF Transgender Health transhealth.ucsf.edu  is one's internal sense or feeling of  Fenway Institute Transgender Health fenwayhealth.org being a woman, a man, or another gender. This is not visible to others.  is a person's external manifestation  DSM Category- Transgenderism is categorized as a mental health dx of femininity and/or masculinity.  refers to an individual's enduring  Paucity of Research physical, romantic attraction to another person.  Emotional orientation and/or emotional/spiritual  Insurance Coverage Obstacles attraction to another person.

 Need for Transgender Health Professionals.

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Surgery Journey

MtF Surgical Options Genital Reconstruction: Vaginoplasty

THE INS AND OUTS

2 therapist referral letters (+ 1 from hormone-prescriber)

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Mental Health Professional Multidisciplinary Care

 Psychiatrist/Psychologist 1. Assess and diagnose  Social Worker 2. Provide information for treatment  Endocrinologist 3. Assess co-existing mental health concerns  Primary Care Physician  Lawyer 4. Referral for hormone therapy  Ancillary Specialists 5. Referral for surgery

 Gynecologist  Urologist  Plastics Surgeon

 Initial Visit Social Support

 History and Physical  Medical History

 Surgical History  Establish Safe Housing  Medications  Smoking   BMI Emergency Contact  Support System ******  Fertility Discussion ***  Accompanied by friends/family  Hair Removal ***

 Insurance coverage

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Ideal Vagina  Natural

 Minimal “upkeep”  Sexual intercourse  Erogenous  Lubrication  Convincing

pexel Whitney.org Georgia O’Keefe

Vagina Procedures

 Penile Inversion Technique

 Colon

 Peritoneal Pull Through

Courtesy of Pexel homeandskincandeez.blogspot.com

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Pre-Operative Instructions

 Hair removal

 No smoking

 Hold off on certain medications  Hormone adjustment/dc  Blood thinners  NSAIDs  Herbal remedies

 Bowel prep day before

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What The E?  http://annals.org/aim/article-abstract/2687653/cross-sex- hormones-acute-cardiovascular-events-transgender- persons-cohort-study During the Operation

 Cross-sex Hormones- Acute Cardiovascular Events  General Anesthesia Transgender Persons Cohort Study, Getahun MD et al,  One-Stage Procedure: Penile Inversion Annals of Internal Medicine, Aug 21, 2018 Vaginoplasty

VTE  Orchiectomy

Transfeminine pts had a 2 & 8 yr inc risk of 1.5 and 3.2x higher  Penectomy

than men  Construction of Vagina 1.7 to 2.5x higher ompared to Cis gender women  Up to 4-5 hours Ischemic Stroke 10x higher than cismen and 4x higher than ciswomen

In the beginning, Before & After

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Before & After Post Op 1 Week

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Post Op Week 2 Post Op Week 3

Day of Surgery Post Op 1 week, 6 months 3 months 1 year

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6 months 6 months

1 year 1 Year

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Series 1 year Series

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After the Operation Dilators

 Hospital 3 days  Walking  Nutrition  Pain control

 7-10 days  Packing and bladder catheter out  Re-start hormones  Start dilation  Start douching

 Return to clinic every week x3 weeks

Recovery Taking care of your new vagina

 3 months post op: return to work

 3 months post op: return to vigorous physical activity  Wound care  3 months post op: engage in penetrating sexual intercourse  Keep area dry  Lots of maxipads  9 months to 1 year post op: final results

 Showers

 Douching

 Dilating

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Complications Hematoma

 Wound breakdown - . Hypersensitivity common . Loss of Sensation  Bleeding/Hematoma . Anorgasmia  Urinary retention . Excessive erectile tissue  UTI . Loss of skin graft/necrosis

 Granulation tissue . Prolapse . Inadequate depth  Need for revision/re- operation . Rectal or urethral injury . Urethral stenosis  Fistula . Mental health issues  Infection . Unresolved gender dysphoria  Scarring  Stenosis

Common Post Op Issues Series

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Granulation Tissue

Labioplasty Revisions Complicated Vaginoplasty Revision

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Non-Binary Options Gender NonConforming

Peritoneal Pull Through Variation

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After the Operation Persistent Pain

www.pexels.com  Medication

 Physical Therapy

 Pain Specialist

 Surgery

Hypnocdstore.com

Post Operative Considerations

UTI Bleeding Scarring Granulation Tissue Strictures Discharge Douching Dilation Long term Hair Prostate Breast

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And Now FTM Bottom Surgery Hysterectomy & Oophorectomy

 Hormone status

 Egg Retrieval & Egg Freezing

 BRCA status/Family History

 Laparoscopic Options

Metoidioplasty Metoidioplasty DOS

 = toward more organs

 multiple options

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Metoidioplasty Metoidioplasty tailoring

 Surgical goals:

 Avoid donor site morbidity  With or without urethral lengthening  Stand to urinate  Penetrative sex not a priority  With or without scrotoplasty  Accept small phallus  With or without vaginectomy

Metoidioplasty Metoidioplasty

 Surgery technique in brief:  Complications  Vaginectomy  NYU 2016* (7 study review)  Phallus release Urethral complication rate: 27%  Urethral lengthening Overall complication rate: 43%  Phallus skin reconstruction  Urethral: fistula, stricture, diverticulum  Scrotoplasty  Aesthetics/function: anatomy dependent

*Frey et al (Hazen): A systematic review of metoidioplasty and RF phalloplasty. Plast Reconstr Surg Glob Dec 2016

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Metoidioplasty Metoidioplasty

Ideal anatomy: Non-ideal anatomy:

Metoidioplasty Option: with Vagina

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Phalloplasty

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Phalloplasty Indications for free flap phalloplasty

 Disorders of sexual differentation  Bladder extrophy/epispadius  Micropenis  Severe hypospadius  Penile agenesis  Traumatic amputation  Cancer extirpation  Female to male sex reassignment

Phalloplasty Phalloplasty

 Surgical Goals:  Surgery technique in brief:

 Stand to urinate  Vaginectomy, Urethral lengthening

 Penetrative intercourse  Native phallus release, Nerve dissection

 Proportional phallus  Scrotoplasty

 Donor Sites:  Phalloplasty

 Radial Forearm  Urethral anastomosis, Nerve anastomosis

 Anterolateral thigh  Vessel anastomosis  Wound closures

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Phalloplasty Possible donor sites for

 Complications: microvascular phallic reconstruction

 NYU 2016* 11 Study review

 Urethral complication rate 51%  Overall complication rate 88%  Radial forearm  High volume centers: Monstrey (287 patients), Garaffa (115)  Anterior lateral thigh  Urethral complications: 35-41%  Latissimus dorsi  Overall complication rate: 70-75%

*Frey et al (Hazen): A systematic review of metoidioplasty and RF phalloplasty. Plast Reconstr Surg Glob Dec 2016

Metodioplasty & Metodioplasty & Phalloplasty Phalloplasty

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Metodioplasty & Metodioplasty & Phalloplasty Phalloplasty

Metodioplasty & Metodioplasty & Phalloplasty Phalloplasty

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Metodioplasty & Metodioplasty & Phalloplasty Phalloplasty

Metodioplasty & Metodioplasty & Phalloplasty Phalloplasty

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Phalloplasty Phalloplasty

Phalloplasty Phalloplasty

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Phalloplasty Phalloplasty - Plastics

X X X X

Phalloplasty - Plastics Phalloplasty - Plastics

X

XX XX

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Phalloplasty - Plastics Phalloplasty - Plastics

X x

Phalloplasty - Urology Phalloplasty - Plastics

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Phalloplasty Phalloplasty

Anterior Lateral Thigh Flap

 Good for thin patients

 May require multiple stages

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Musculocutaneo us Latissimus Dorsi Phalloplasty

Phalloplasty Delayed Glansplasty

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Implants Implants

After the Operation Post-Operative Recovery

 2-3 Overnight Stay for Vaginoplasty  Same day surgery for Metoidioplasty www.pexels.com  5-7 Days for Phalloplasty  Follow-up visits  Compressive Dressings  Drains  Swelling and Bruising!  Medications  Wound Care

 2 weeks: Back to work for Metas. 12wks Vag. 8-12 wks Phallo  3 months: 80% of results Metas & Vaginoplasties  9 months -1 year: full results

Hypnocdstore.com davidhalperin.net

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Post Operative Status of Transgender Care Considerations in this Underserved

UTI Population Bleeding  Paucity of Standards of Care Scarring  WPATH ( World Professional Association of Transgender Granulation Tissue Health) Strictures  USPATH (US Professional Association of Transgender Discharge Health) Douching  DSM Category-Transgenderism Pexels.com Dilation is categorized as a mental health dx Long term  Paucity of Research Hair  Insurance Coverage Obstacles Prostate Breast  Paucity of Transgender Health Professionals.  YOU can help make a difference.

Transgender 101 What can we do?

 Identify Patients  Open your door. Be willing to see them. While you feel you may not be equipped, most of these patients realize  Ask there are not many specialists and they are knowledgeable themselves to help you  Front desk, back office, and you.  Understand the components of an individual’s identity/experience  Registration Forms  One of the largest barriers for our patients and the easiest for providers to address and change is how we address our patients in person, on the phone, in our registration  Name you prefer to be called forms, and EMR.  Pronouns you prefer  Become familiar with the World Professional Association for Transgender Health (WPATH) Standards of Care for  Sex assigned at birth Health of , Transgender, and Gender  Gender you identify Nonconforming People.

 Partner – sex & gender  Research: there is a paucity of research and knowledge for transgender individuals.

Pexels.com

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Resources Thank You All!

 World Professional Association Transgender Health

 Wpath.org

 Fenway Institute

 Fenwayhealth.org

 UCSF

 http://www.transhealth.ucsf.edu

www.pexels.com

It’s been a pleasure!

Heidi Wittenberg MD MS FPMRS

Co-Director MoZaic Care

55 Francisco St, Suite 300 San Francisco, CA 94133 415-395-9895 phone 415-395-9897 fax

www.mozaiccare.com

[email protected]

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