Te Hā Ora: The Asthma and Respiratory Foundation New Zealand
Better breathing, better living
It’s such a scary experience for anyone, let alone a child
ANNUAL REPORT 2016 Te Hā Ora: The Asthma and Respiratory Foundation New Zealand ANNUAL REPORT 2016
Contents
4 Why our work is so important
5 How we made a difference in 2016
6 Message from the President
8 Message from the Chief Executive
10 Regina and Davis: a recipe for life
12 Education and training 14 Research 16 Raising the profile of respiratory health 17 Areiawa’s story
18 Thanks to our supporters 19 Financials
35 Directory TIHEI MAURI ORA!
We are focused on improving the lives of those with a respiratory condition in New Zealand. We are putting respiratory illness on the national health agenda. We intend to be a major force for change. We need your help to make that happen.
Asthma and Respiratory Foundation NZ Annual Report – 2016 3 Why our work is so important Over 700,000 New Zealanders (1 in 6) live with a respiratory condition.
Asthma and Respiratory Foundation NZ Annual Report – 2016 4 How we made a difference in 2016
Education and training • Over 15,000 children in low-decile schools reached through the Sailor Puffer Fish show, an interactive and visual resource on asthma management. • 200 health professionals provided with the latest findings and best practice information at our annual respiratory conference, attended by both national and international experts in the field of respiratory medicine. • The Regional Partner Day enabled us to share vital information and new tools with societies, trusts and aligned respiratory educators. • Over 44,000 resources delivered nationwide to health professionals and individuals with respiratory conditions including pamphlets, posters and booklets. • Over 8,000 adult and child action plans provided to help better management. • 55,000 people reached via healthy living stands at home shows. • Easier access to health management advice, personal stories, and resources for families, caregivers, health professionals and those with respiratory conditions via our refreshed website. • Over 100 products approved to carry the Sensitive Choice® blue butterfly logo. • Two bimonthly e-newsletters dedicated to health professionals and individuals with respiratory conditions, containing respiratory health information, new findings and more. • Support to 15 regional societies and trusts who provide specialised support to respiratory patients.
Research • Establishment of a respiratory research portal. • Funding for a Health Research Council Clinical Research Training Fellowship. • Completion of the Adult Asthma Guidelines. • Over $2 million of research funded in the last 10 years.
Raising the profile of • Following the Te Hā Ora: National Respiratory Strategy launched last year, the Foundation has respiratory health broadened its focus from Asthma and COPD to all conditions outlined in the Strategy. • Advocated for the Government and Ministry of Health to treat respiratory disease as a national health priority. • Alerted the media about the increasing hospitalisations and deaths of bronchiectasis over the past decade, which resulted in significant national media coverage during February. • Asthma Awareness Week and Balloon Day held again to maintain awareness. • Schools targeted with Dance4Asthma and Hard2Breathe campaigns. • Ambassador programme continued. Supporters this year included Lorde, Breakers, Brook Ruscoe and official ambassadors: Erin Simpson and Issac Luke. • Active participation in other national and international awareness days including World Smokefree Day, World COPD Day, Bronchiectasis Day, World Allergy Week and World Asthma Day. • First ever NZ Respiratory Awards staged to celebrate the success of New Zealanders with respiratory conditions and to recognise leading journalism in the area. • Publication of Keeping in Touch magazine with latest news, events and updates for health professionals, health organisations, community groups and individuals around New Zealand.
Asthma and Respiratory Foundation NZ Annual Report – 2016 5 Message from the President The Foundation has had a very strong year, with many milestones passed in its strategic plan. We have completed the first stage in what is a substantial transformation of our organisation and how it operates to deliver better health outcomes.
National Respiratory for addressing the inequities in many parts The National Respiratory Strategy Strategy unveiled of the country. incorporated not just asthma, but also other diseases such as COPD, bronchiectasis and It began with the National Respiratory Embedding our childhood bronchiolitis – all areas the Strategy launched in November at our commitment Foundation has been working on for many annual national respiratory conference. This years. Since we were undergoing a The Foundation has signed off a new was a top level, research based blueprint for transformation in 2016, we have taken the constitution, moving us from an improving the respiratory health of New opportunity to re-brand ourselves as Te Hā incorporated society with limited Zealanders. It particularly laid bare the Ora: the Asthma and Respiratory Foundation membership, to a trust structure, open to dreadful burden of disease for Māori and New Zealand. Pacific communities: new partners such as Turuki. This is much more than a cosmetic change. It gives • “There are extreme and worsening Strong focus on health concrete effect to our commitment to inequities in respiratory health between addressing unequal health outcomes. outcomes Māori, Pacific and low-income groups and the rest of the New Zealand We hope our new partnership with Turuki The constitution provides for four population. Healthcare will be an enduring one. Our aim permanent Māori members of the Board, • More than half of the people admitted to is to ensure better health for the people of and one Pacific member, from a Board that hospital with a poverty-related condition Mangere, Manurewa, Otara and Papatoetoe has a maximum of nine members and a are there because of a respiratory who suffer from respiratory diseases, problem such as asthma, bronchiolitis, minimum of seven. The Board Chair position especially their children. Both partners are acute infection or pneumonia. is also to be a joint one: one Māori, one aiming for real outcomes: in lower hospital • People living in the most deprived other. admissions, in lower school absenteeism and households are admitted to hospital for respiratory illness over three times more Apart from myself, the new Board now increased ability for people to manage their often than people from the wealthiest comprises: own conditions. Turuki has already shown areas they can achieve results with rheumatic • Across all age groups, hospitalisation • Janice Kuka, Ngāti Ranginui, fever and other conditions, and they know Ngāi Te Rangi rates are much higher for Pacific peoples their community: it’s no accident that they (2.6 times higher) and Māori (2.1 times • Ruth Gardener have staff who speak Te Reo Māori, Tongan, higher) than for other ethnic groups.” • Louise te Hinepouri Jurlina Burmese, Samoan, Niuean, French and These sobering conclusions gave fresh • Cheryl Davies Cantonese. impetus in 2016 to our Māori engagement • Matt Allen and strategy. Phase three of that strategy led us • Philip Aldridge The two parties are to give effect to their to form a new partnership with Turuki with Kaumātua Peter and June Jackson. partnership with a Memorandum of Healthcare in south Auckland. The Chief Understanding. That MOU sets out our The new Board members bring with them Executive will report more fully on the joint shared values, and commits us to a strong mixture of skills and capability, work programme we have initiated with this recognising the principles of the Treaty of including both clinical and service provider innovative organisation, but all going well, Waitangi and implementation of the Pou Ora experience. This will position us very strongly we see this partnership as a potential model framework, with its pillars of Hauora, Toiora, as we continue to evolve in the future. Whanau Ora and Mauri Ora.
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Asthma and Respiratory Foundation NZ Annual Report – 2016 6 Message from the President Continued
Scientific Advisory Board plans are being developed to broaden our established income base further in the future. These successes are helping us to be more Again, on the back of the National proactive in developing partnerships with Respiratory Strategy, the Foundation has other organisations who share our goals. created a Scientific Advisory Board to advise and support the Board on all clinical and I would like to thank our donors and research matters. They include many supporters for their generosity in the past national and international leaders in their 12 months, and in particular Pub Charity. fields of expertise: We do not receive any income from the Government, so without their support we • Professor Innes Asher could not contemplate the important • Professor Richard Beasley strategic changes we are making. • Associate Professor Bob Hancox • Dr Matire Harwood On behalf of the Board I would also like to • Professor Richard Edwards record our thanks to our Chief Executive • Dr Tristram Ingham John Wills, who over the past year has been Professor Sir Mason Durie • John Kristiansen instrumental in driving us forward with both passion and pragmatism. • Betty Poot “It is clear that respiratory diseases not only
• Teresa Demetriou reflect the health status of individuals but are also a comment on the environments within We are indeed privileged that they have which we live, work, and play. It is also clear agreed to fulfil this important role, and look that the complexities surrounding respiratory forward to working with them. diseases are such that no single profession, sector or agency can effectively reverse the Strategic plan progress current trend that is accounting for escalating John Knight The Foundation reviewed and re-shaped its levels of disability, suffering, and death … strategic plan in March 2016. It has three key President components: financial stability, financial The National Respiratory Strategy proposes growth and, most importantly, delivery opportunities for earlier and more effective (prevention, treatment and cure). treatments as well as for closer attention to the amelioration of environmental risks. The In terms of financial stability, we achieved Strategy is timely and has the potential to a surplus in 2016. Our financial situation greatly improve the health and wellbeing of has been greatly enhanced by the Chief thousands of New Zealanders. It deserves Executive who has secured an additional wide support and prompt implementation.” $360,000 in revenue this financial year, and Extract from the introduction to the National Respiratory Strategy by Professor Sir Mason Durie, KNZM, Emeritus Professor, Massey University.
Asthma and Respiratory Foundation NZ Annual Report – 2016 7 Message from the Chief Executive
2016 has been a ground-breaking year. We are moving into a position of real leadership on respiratory health through advocacy, information and education; we have ushered in revolutionary constitutional change; and we have started the kind of partnership we hope will be a model for the future delivery of respiratory health services to those most in need...
National Health Strategy caregivers, schools and teachers as well as New Scientific Advisory recognition the wider community. At the end of 6 Board months there will be extensive evaluation, To get traction on the implementation of and then a period of up to two years to As the President has mentioned, the the National Respiratory Strategy we perfect the programme. We will be looking establishment of our new Scientific Advisory initiated a number of meetings with Ministry at particular markers of success, such as Board is an important step forward. There is of Health earlier this year. We appreciated reduced school absenteeism and reductions a plethora of research into respiratory the enthusiasm and commitment of the in acute hospital admissions. illnesses, but until now no-one has been Minister to ensure we got traction on this systematically evaluating it or advising work. A multi-disciplinary taskforce was set The programme has been created by service providers on what practices should up to address the issues which I was pleased weaving together a number of strands, be changed as a result, or implications for to represent the foundation on. including Turuki’s successful delivery of a education and information dissemination. rheumatic fever prevention, a child The work of the Taskforce saw a paper mentoring strategy that has worked well in Making sure all the material on our website presented to the Minister in October, Aboriginal and Torres Strait Island is evidence-based will be another vital role recommending embedding key elements of communities, and our successful Sailor the of the Scientific Advisory Board. They are the respiratory strategy into the wider Puffer Fish school education programme. also about to begin work on selecting National Health Strategy. This is a material for our respiratory research portal. substantive achievement. Respiratory health The pilot will take a holistic approach: it will We want this to be one of the ‘go-to’ centres has until now languished in our mainstream also aim to improve awareness of the globally for respiratory health research. health programmes compared to other importance of nutrition, diet, avoiding areas, and this development will make it second-hand smoke and addressing poor New Adult Asthma easier to partner with like-minded housing conditions wherever possible – all Guidelines organisations. of which affect respiratory health. After nearly 15 years, the updated Adult The key now is to attach clear targets against From the Foundations’ point of view, we Asthma Guidelines will be launched in which progress can be measured. want to facilitate new or improved service November this year. I would like to say delivery to priority communities, not do it a special thank you to Professor Richard Joint pilot project with ourselves. We have already learned so much Beasley and his team for their work on this. Turuki Healthcare from the people at Turuki Healthcare about Thanks also to Professor Innes Asher, who the issues around respiratory health for revised the Child and Adolescent Asthma The partnership with Turuki Healthcare is not Māori: I’m not exaggerating when I say that Guidelines that will be available in 2017. just about a working relationship. It is also for me, it is the greatest change I have Updated COPD guidelines are already on about action. We have co-developed a pilot experienced and the greatest partnership I the Foundation’s website. programme which the Foundation will fund. have ever entered into. While we bring It involves working with a cluster of schools expertise to the table, we need to partner in south Auckland to deliver on-going with people who understand their training, education, resources and services communities better than we will ever do. around respiratory health. It will involve working with the children, their parents or Continued on next page
Asthma and Respiratory Foundation NZ Annual Report – 2016 8 Message from the Chief Executive Continued
Digital strategy Our annual Asthma Awareness Week A word of thanks broadened into ‘Breathe Better September’ One of the most pivotal projects we I would like to finish by thanking all our – a whole month, and our messages focused undertook in 2016 was a complete overhaul Partners and Donors around New Zealand much more tightly on prevention, following of our website, incorporating our new for the huge commitment they have again the direction set by the National Respiratory branding (asthmaandrespiratory.org.nz). This made in 2016 to improve the lives of many Strategy. was a very extensive and time-consuming thousands of New Zealanders, to our staff in exercise, but one that was vital for our plans the National Office in Wellington for their going forward. It now contains a wealth of Funding hard work during the year and to the Board information, in a new easy to navigate Putting the Foundation on a growing and for their support and direction. 2017 format, and we’ve added internal resources sustainable funding path is axiomatic if we promises to build even more strongly on the to ensure it is updated regularly. It is part of want to achieve our long term strategic solid new foundations we have collectively an integrated digital strategy for the objectives. It is therefore crucial that we laid down over the past twelve months. Foundation, linking with social media diversify and deepen our financial base. platforms. Thanks to an excellent working John Wills In 2016 we put considerable effort into relationship with Asthma Australia, for Chief Executive building on our bequest programme, and example, from 2017 we will have free use of we were able to treble income from that an asthma management plan app they have source. We have also been actively developed. increasing our donor base (assisted with a We want the website to become a one-stop new donations policy, posted on our shop for information and mutual support for website), and worked on a new membership families dealing with respiratory illnesses, to model, corporate support and sponsorship find useful resources, to make contact with strategies. We now have a marketing team of others facing the same issues and to tap into three, and hope to engage further expertise The Asthma and Respiratory Foundation expert advice. A new suite of education and to help lead our bequest and membership NZ’s new partner, Turuki Health Care, was training packages are also under programme into the future. established in 1995 by a group of forward- development for service providers and the thinking Māori midwives. These hard-work- health workforce to complement the face to Partnerships ing and dedicated women offered highly needed services to at-risk pregnant women face services they deliver. Over the past year we have created new and their babies in South Auckland. From partnerships with Allergy New Zealand and Broadening awareness of the range of these humble beginnings, Turuki is now one Medicines New Zealand. We also deepened respiratory diseases also saw us rebrand our of the largest kaupapa Māori providers in our relationships with Asthma Australia awards to the “New Zealand Respiratory Auckland, offering a comprehensive range and the Lung Foundation of Australia in Awards,” and for the first time we recognised of primary health care and social services to 2016 and are working with a number of the work of the media with four journalism around 26,500 people every year. Everything Asian organisations active in the respiratory awards: print and online; radio, television they do is ultimately focused on achieving health field. and health sector media. Wahine Oranga, Whānau Oranga. For more information, go to: turukihealthcare.org.nz.
Asthma and Respiratory Foundation NZ Annual Report – 2016 9 Take:
Buckets of courage Several jugs of determination Plenty of humour A good sprinkling of medical support A generous pinch of medication, and Umpteen cups of love
Mix well every morning and put in a large pot to cook; moderate heat.
build-up of mucus, which, if not dealt with and has had to deal with every single one Davis and Regina: quickly, will shut the lungs down completely. since. She found last mother’s day especially hard when Davis was ventilated for the first His nurse, Steph Parker, explains: A recipe for life time, having been flown from Tauranga to “We have to take him very seriously, right Starship Hospital in Auckland. “He tries to do That seems to be the successful from when he walks in the door (to A&E). He everything everyone else is doing knowing recipe that mother and son Regina normally seems no different from anyone that he can’t do most of the things other kids and Davis Herniman have used else with asthma. But then he starts to work can do.” extremely hard with his breathing. So he to cope with 12-year old Davis’ There is a chance Davis could grow out of his needs intervention as soon as he comes in. brittle asthma. In recognition of asthma. Many children do. In the meantime There’s a special plan for Davis in A&E the struggles they have overcome, they get through the challenges together, because he’s so brittle,” she says. in 2016 they received the Cody and keep cooking up that recipe. Forbes Award for Courage at “It’s such a scary experience (ICU) Says Regina of her son: “You hear him before the New Zealand Respiratory for anyone, let alone a child, but you see him. He’s very loud and cheeky.” Awards function. he’s just amazing (how he deals She loves him to bits, as he does her. Davis was diagnosed at three, and was first with it).” admitted to intensive care (ICU) at his local To help deal with his asthma, Davis has to Thanks to NZ Woman’s Weekly for source hospital at seven. Fast forward to 2015, and take 6-8 pills each and every day, as well as material. he was admitted seven times to the ICU unit monthly injections. As you can imagine, that one year alone, and had to go onto a that’s not always easy for a boy his age to get ventilator twice. Each of these events has into the habit of. In New Zealand: been very scary, and he missed out on • over 460,000 people take medication for several months of school as a result. “We spend a lot of time helping him asthma − one in nine adults and one in understand what’s going on when he gets seven children Asthma is the cause of one in eight hospital asthma, what his different medications do • large numbers of children (3,730 or 430.9 stays, a third of which are children. While not and how to take them correctly,” says Steph. per 100,000 in 2013) are still being common, brittle asthma is a particularly admitted to hospital with asthma, and severe form of the disease. It’s dangerous, She notes that his mother Regina has “made some of these will have had a potentially even life threatening. It’s difficult to deal with a huge effort to understand his condition.” life-threatening attack because it’s unstable and very hard to predict • by far the highest number of people – for Davis, even the slightest change in “I’m a nag, constantly at him about taking his being admitted to hospital with asthma are Māori, Pacific people and people temperature and weather can set it off. medication, about keeping on top of it. I living in the most deprived areas: Māori have to pull out the mum card – and every are 2.9 times and Pacific people 3.7 times Inside the lungs of a sufferer, the small other card – to help him remember,” says more likely to be hospitalised than airway passages suddenly become restricted Regina herself. Europeans or other New Zealanders, and by the muscles tightening around them, people living in the most deprived areas making it difficult to breathe. So they reach As she says, it is really important: “He looks are 3.2 times more likely to be for their reliever inhaler which works to relax really good but he picks things up quickly. hospitalised than those in the least the muscles, but the medication is only ever People underestimate just how bad asthma deprived areas short acting. So the tightening returns, can get, and how fast it can happen.” • the cost of asthma to the nation is over $800 million per year causing swelling and the release of fluid into It’ been tough on Regina. She saved Davis’s the air passages. In turn this causes a life when he had his very first asthma attack,
Asthma and Respiratory Foundation NZ Annual Report – 2016 10 Education and training
This is a critical part of Asthma and Respiratory Foundation NZ to educate New Zealand Respiratory and Respiratory Foundation NZ’s children in the community on asthma. Conference work. We focus on providing It is important that not only do children with education and training to health asthma know what to do in an emergency, professionals with over 200 but that their peers and teachers do as well. trained this year. We also focus on With at least one person a week dying from providing education and support asthma in this country and 7,364 asthma to 15 regional societies and trusts hospitalisations each year (over half of which The New Zealand Respiratory Conference are children), it is essential we educate to assist them to continue the was held in November 2015, which brought children about asthma triggers, how to great work they do in the together local and international experts in recognise an asthma attack and what to do community. The Foundation’s the respiratory field to present on best in an emergency. education service also extends to practice and latest research updates. The individuals with respiratory Sailor the Puffer Fish is definitely making a conference provided a valuable professional conditions as well as their family difference, as experienced by a school in the development opportunity for respiratory and caregivers. Waikato, where two people had asthma health professionals around the country. attacks a week after Sailor visited. Thanks to The New Zealand Respiratory Conference, Sailor the Pufferfish Sailor, they knew what to do before the Stepping Stones to Improvement, was ambulance arrived! themed around the National Respiratory We continue to receive positive feedback Strategy and presented cutting-edge from teachers about the effectiveness of this research. The two day conference was an programme. opportunity for respiratory health professionals to network and update their “I teach the new entrants and I’ve knowledge on best practice. never seen them so engaged at a The feedback was very positive: performance in the hall.” “There were some excellent speakers and – Kathryn Pierre, Ngāti Toa School having input from Australian experts was impressive.” Sailor the Puffer Fish Show is a bright, Performer Chris Lam Sam was busy all of term 2, delivering 50 Sailor shows to interactive and visual resource. Founded by “It was a great conference. One of the best I low-decile schools in the lower North Island Asthma Waikato, this great resource was have attended in over 35 years!” rolled out to selected regions by the Asthma region, and 27 shows in Auckland reaching over 15,000 children this year.
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Asthma and Respiratory Foundation NZ Annual Report – 2016 11 Education and Training Continued
New website in hospital and developed pneumonia Over 44,000 resources were distributed during winter. nationwide to health professionals and individuals with respiratory conditions. These Malachi now has an asthma action plan included pamphlets, posters and booklets. which he and his family follow. He only had one hospital visit in 2015, which is a big Healthy living stands at improvement from recent years. home shows In April we launched the Asthma and For people with asthma like Malachi, having Respiratory Foundation NZ’s revamped an asthma action plan to follow is incredibly website, where users can find the latest important. It means families and caregivers research, useful resources, personal stories will know what to do in the event of an and health management advice in a asthma emergency, how to recognise mobile-friendly format for families, asthma signs and what action to take. By caregivers, health professionals and those following the steps on the plan, families like with respiratory conditions. Malachi’s can take preventative measures to The Foundation organises a range of healthy avoid being rushed to hospital. asthmaandrespiratory.org.nz. living stands at local home shows. This year This year we have distributed over 8,000 we were at home shows both in Auckland Asthma Action Plans adult and child action plans to help manage and Wellington talking to those with asthma Malachi Douds Nanapoy is a six-year-old boy the condition effectively. and other respiratory conditions as well as from New Plymouth who has serious their families and caregivers. asthma. In the past he frequently ended up Resources With over 55,000 individuals attending these shows, it was a great opportunity to answer their questions and provide information on lifestyle choices to help manage asthma and allergies. A range of healthy living pamphlets and checklists were distributed during the shows.
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Asthma and Respiratory Foundation NZ Annual Report – 2016 12 Research Respiratory diseases are common in New Zealand and are our third leading cause of death. Much of the burden of these diseases is preventable. It is vital to ensure methods to better manage these conditions are available to support adults and children battling with them every day.
Adult Asthma Guidelines So much has changed in the treatment of • initial treatment choices asthma in recent years, so it’s vital that • stepwise approach to asthma treatment The Asthma and Respiratory Foundation NZ health professionals are aware of the best (pharmacological and non- Adult Asthma Guidelines give simple, treatments for people with asthma. pharmacological) practical and evidence-based information • self-management for health professionals to diagnose and Peer reviewed • treatable traits (overlapping disorders, assess asthma in adults. co-morbidities, environmental, The draft guidelines were peer-reviewed by behavioural) Latest research a wide range of respiratory health experts • asthma in Māori and leading professional organisations, The Adult Asthma Guidelines were last • asthma in Pacific peoples including the New Zealand Nurses updated in 2002. Significant research that • asthma in pregnancy Organisation Te Rūnanga o Aotearoa and has been undertaken over the past years is • management of acute severe asthma Respiratory sections, the Pasifika GP now incorporated into the new guidelines. (including criteria for referral to hospital Network, PHARMAC, the Royal New Zealand They include specific information for the and/or admission) College of General Practitioners, the Thoracic New Zealand context, including available • writing an asthma action plan Society of Australia and New Zealand and medications and relevant content for The guidelines will be summarised into a the Internal Medicine Society of Australia treating Māori and Pacific adults with concise Adult Asthma Guide Summary for and New Zealand. asthma. busy health professionals. The content will Key areas covered by the guidelines include: also be used for asthma action plans for Many of the recommendations are based on patients, as well as training courses and tools breakthrough research done in New • clinical assessment for health professionals. Zealand, which has led to improvements in • diagnosis the management of asthma worldwide, • assessing asthma severity, control and according to the guidelines’ lead researcher future risk Professor Richard Beasley. • identifying management goals with the patient and their whānau
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Asthma and Respiratory Foundation NZ Annual Report – 2016 13 Research Continued
How the new guidelines health experts under the leadership of The fellowship will be used to undertake her will help adults with Professor Richard Beasley and the Medical PhD research over the next three years, Research Institute of New Zealand, the based in Auckland City Hospital. Her focus asthma guidelines are completed and due to be will be on a model of care for Māori with The guidelines mean every adult with published in The New Zealand Medical chronic airways disease. It is designed to fill a asthma can receive the very best asthma Journal in November 2016. Child and significant gap in the evidence base and advice and treatment, GP and Deputy Dean Adolescent Asthma Guidelines are being improve Māori health outcomes and equity at Dunedin School of Medicine Jim Reid says. developed and will be released in 2017. of health.
“Implementing the guidelines nationwide New research portal “We aim to examine whether a novel model will mean all asthma patients receive the of care, tailored to Māori and people with A respiratory research portal is now available same level of care and up-to-date chronic airways disease, is more effective on the Foundation website. information.” than usual care in reducing exacerbation rates, health-related quality of life and The new guidelines consider the medicines This is a knowledge centre for healthcare exercise capacity,” she says. available in New Zealand, and are also workers. Pulling together research from all around the world, it’ll be the go-to place for specifically tailored for Kiwis. For example, We plan to use results from our interviews, anyone wanting to know more information there is special advice for treating asthma in focus group sessions and discussions with about respiratory health. Māori and Pacific adults, and also for Māori community leaders along with current pregnant women with asthma. The best Research is presented in various forms evidence to design the model of care then asthma treatment is not just about treating including frameworks, compilations and examine its effectiveness with a prospective, asthma attacks – it’s also about preventing individual studies relating to respiratory randomised controlled trial.” the symptoms in the first place. Because of health in New Zealand, and learnings we can this, another key recommendation in the Dr Hotu is currently working on her literature take from other parts of the world. guidelines for people with asthma to have review, methodology planning and and use action plans to manage their asthmaandrespiratory.org.nz/research consulting with stakeholders. condition. Associate Professor Reid says if health professionals follow the guidelines for Funded research diagnosis and treatment of asthma, it will The Asthma and Respiratory Foundation NZ mean optimum outcomes for patients. part-funded a Health Research Council Commissioned by the Asthma and Clinical Research Training Fellowship Respiratory Foundation NZ and developed awarded to Dr Sandra Hotu. Dr Hotu by a multidisciplinary group of respiratory is a Māori respiratory physician of Ngāti Maniapoto descent at Auckland City Hospital.
Asthma and Respiratory Foundation NZ Annual Report – 2016 14 Raising the profile of respiratory health Many people think asthma is a mild disease, although over 67 deaths are caused by asthma each year. Other conditions on the rise, such as bronchiectasis, are less widely known. Few New Zealanders appreciate the number of people affected by respiratory conditions, the massive economic and personal costs, or that the trends are heading in a worrying direction. We put considerable effort into awareness raising activities. Most are national or local, but some are co-ordinated internationally.
Asthma Awareness Week, Best of all, we ended the campaign touring top people in the healthcare community Balloon Day schools in South Auckland with TV to raise awareness of respiratory disease personality Erin Simpson and basketballers in New Zealand. Brook Ruscoe and Mika Vukona. National Bronchiectasis We reached more than 800 children and encouraged them to talk more openly about Day asthma. The fun included asking students The first National Bronchiectasis Day was with asthma to take part in a balloon held this year. The Bronchiectasis Foundation blowing competition to demonstrate the was founded by the previous Respiratory The Spring season was a great opportunity difficulty of exhaling with restricted airways. Achievers Award winner, Esther-Jordan to hold Asthma Awareness Week and raise Muriwai, who sadly passed away from the much needed awareness about the 1 in 7 New Zealand Respiratory disease in June 2014. children and 1 in 9 adults dealing with Awards 2016 asthma. Many societies, trusts, health World Asthma Day professionals, community organisations, It is now estimated that as many as 300 Sensitive Choice® Partners and individuals million people of all ages and ethnic with asthma all got involved to raise backgrounds suffer from asthma globally. awareness. Balloon Day was held during the The burden of this disease on governments, week for societies and trusts to fundraise in health care systems, families and patients is their communities. Activities around the increasing worldwide. This year there were a country included balloon blowing number of community events and the competitions, mufti days, bake sales, Foundation focused heavily on raising The inaugural NZ Respiratory Awards Exercise-athon and more. awareness through media releases that combined the Respiratory Achievers Awards generated great coverage nationally. #Hard2Breathe that take place every two years and introduced Media Awards for the first time. The event was held in Wellington at Te Papa Dance4Asthma in April 2016. It celebrated the success of Dance4Asthma takes place each year to raise New Zealanders who have achieved great the profile of asthma in schools through things in spite of their respiratory condition dancing. The campaign encouraged schools and recognised the important role the to put together a dance video to the media plays in respiratory education. The assigned 2016 song and post it on YouTube. More than 40 schools got involved. These The Hard2Breathe campaign in February was event highlighted the importance of schools received free Dance4Asthma packs primarily a social media focused campaign to working together to fight respiratory disease with educational resources. Kiwi singer raise awareness of respiratory illnesses. The in New Zealand. Lorde donated her song Team to the posts and ads in the campaign received tens We are proud to have been able to bring campaign. A $1000 cash prize to spend on of thousands of views, retweets, likes, shares together inspiring everyday Kiwis, technology and educational materials were and comments. We also had some really outstanding journalists and some of the given to each winning school. creative video entries from people of all ages.
Asthma and Respiratory Foundation NZ Annual Report – 2016 15 Areiawa’s Story: The Importance of Diagnosing Asthma in Children
Renarda Hooper talks about her It can be harder to diagnose asthma in a Our lovely little girl has taught us many journey with her daughter, young child because of their smaller airways. invaluable lessons throughout this painful Areiawa, and the challenges of In our baby’s situation, the visual sign of experience. Arei’s Ray of Hope has given her diagnosing and treating asthma in eczema and a family history of asthma were baby siblings a better chance to breathe babies and young children. also ruled out. Arei had never been easier. We hope that by helping to raise diagnosed with asthma, leaving us unaware awareness of asthma, it will become a “Arei had never been diagnosed with of potential triggers and signs of a highlighted topic in New Zealand. Asthma, leaving us unaware of potential developing asthma attack. To my sweet Areiawa. Not a day goes by triggers and signs of a developing asthma The guilt of not being able to save our little when you are not on my mind. I look at your attack” girl will always haunt us but we are baby sister and brother, and see you. I hope My name is Renarda Hooper and I am the determined to help raise awareness of the you know how very proud I am to be your proud mom to three beautiful children, importance of diagnosing this silent killer mummy. I hope you know how much I love Areiawa, Milan and Enzo. In the early hours illness. It really has been such a struggle and miss you beyond belief. Your infectious of June 3rd 2013, at Waikato Hospital, our knowing we could have received so much smile, will forever light up our hearts. You will whole world came crashing down. Our support if we had the chance. always be ‘my sunshine, my only sunshine’. I beautiful baby, Areiawa, was just two and a miss you! Love you always, Mummy. We encourage parents to be vigilant of their half years old when she took her last breath child’s behaviour, especially if diagnosis is In Love & Light, and collapsed in my arms - her precious life uncertain. If you have been given a spacer/ suddenly snatched by an acute asthma Areiawa & Whānau. inhaler medication by your child’s GP as attack, leaving our hearts forever broken. precaution, make sure you also learn the Now, we can only share her legacy and signs and symptoms of asthma. Talk with hope that the importance of diagnosing your child’s GP so they are aware of your child asthma is taken seriously and concerns, especially if your child has a respiratory illness becomes a health reoccurring cough, that isn’t necessarily due priority in New Zealand. to a cold virus.
Asthma and Respiratory Foundation NZ Annual Report – 2016 16 Thanks to our supporters Asthma and Respiratory Foundation NZ would like to thank the following sponsors:
A special thank you to our Sensitive Choice® Partners family of donors Avery Robinson (Dyson NZ) BEAM New Zealand As we go about our daily lives, breathing is BSH Home Appliances (Bosch NZ) Pub Charity something many of us don’t think twice Clean Planet Franchise Airflow products about. There are, however, good people in Cristal Air International (HRV) Anna Wilson our community who are making a difference CSH Building Products (Bradford Insulation, Astra Zeneca to those who aren’t so fortunate, and the Edmond ventilation parts) Auckland Airport Foundation is the grateful recipient of a Daiken New Zealand (Customwood MDF) Blue Illusion Palmerston North number of individual donations. Their Earthwise Group Boehringer Ingelheim reasons for giving are many: a family Filta General New Zealand Community Post member affected by asthma or a respiratory New Zealand Steel (Axxis Steel) Des and Olive Walker Charitable Trust condition, or perhaps a parent, a child, a Novadown (Ellis Fibre) Downia work colleague or a loved one who has been Resene Paints Egmont Seed Company lost to a respiratory disease. To the many Rinnai New Zealand Four Winds individuals and organisations that make up Valspar Paint NZ (Wattyl NZ) GlaxoSmithKline our donor family, your ongoing commitment Verto New Zealand (Made4Baby, Made4Kids) Konica Minolta and interest in our work is vital, and on Lion Foundation behalf of those who struggle to breathe Lottery Grants Board freely, please accept our thanks. Without you Novartis we simply couldn’t do it. If you are interested Pelorus Trust in donating, please visit our website: PHARMAC www. asthmaandrespiratory.org.nz Rex Medical Roche Rotary Club of Eastern Hutt Streamline Mail Solutions TJ Macarthy Trust William Downie Stewart Charitable Trust WN Pharazyn Trust
Asthma and Respiratory Foundation NZ Annual Report – 2016 17 FINANCIALS
Asthma and Respiratory Foundation NZ Annual Report – 2016 18
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" '- '- Directory As at 1 November 2016 Patron Scientific Advisory Board Life Members Her Excellency Professor Innes Asher Dr Graham Milne The Rt Hon Dame Patsy Reddy Professor Richard Beasley Justice Anthony J Ryan Associate Professor Bob Hancox Angela Scott QSM Ambassadors Dr Matire Harwood Mary Taylor QSM Erin Simpson Professor Richard Edwards Alison Wilkie Issac Luke Dr Tristram Ingham John Kristiansen Solicitors Board Betty Poot Tuia Group John Knight, President Teresa Demetriou Janice Kuka, Ngāti Ranginui, Accountants Ngaiterangi Staff Deloitte Ruth Gardener Chief Executive: Louise Te Hinepouri Jurlina John Wills Auditors Cheryl Davies Moore Stephens Markhams National Manager, Operations and Projects: Matt Allen Chloe Bodley Philip Aldridge Level 3, Ranchhod Tower, 39 The Terrace GM - Education and Research: PO Box 1459, Wellington Kaumātua Teresa Demetriou 04 499 4592 Peter and June Jackson asthmaandrespiratory.org.nz Donor Database Coordinator: facebook.com/asthmaandrespiratoryfoundation Strategic Adviser - Māori Judy McLuskie Twitter.com/asthmafndation Dr Tristram Ingham GM - Marketing and Fundraising: Taniya Scott Marketing and Communications Coordinator: Vanessa Searing Office Coordinator: Siobhan Hayward Asthma and Respiratory Foundation NZ Annual Report – 2016 34 Better breathing, better living Level 3, Ranchhod Tower, 39 The Terrace, Wellington 6011 PO Box 1459, Wellington 6140 04 499 4592 04 499 4594 [email protected] asthmaandrespiratory.org.nz Registered Charity CC53035