Autism Through Many Lenses ISSUE 8

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Autism Through Many Lenses ISSUE 8 autism through many lenses ISSUE 8 AUTISM AND EATING DISORDERS LEARNING TO Prompt, NOT Push Sensory–Friendly 5 Summer Must Haves “Bridging” THE AUTISM GAP & CREATING “WrongPlanet” IN A VERY RIGHT WAY ZOOM Autism through Many Lenses 1 ISSUE 8 TO W O FOUNDERS Sharon Cummings Sharon Fuentes Jodi Murphy H PUBLISHERS Sharon Cummings Sharon Fuentes EDITORIAL DIRECTOR Sharon Fuentes EXECUTIVE DIRECTOR Sharon Cummings Cover photo and other pictures of Alex Plank shared with his permis- ART DIRECTOR sion. Several photos throughout the Suzanne Chanesman magazine courtesy of Pixabay and Morguefile. CopY EDITOR Jennifer Gaidos For submission/writing guidelines, please review the information on WEBSITE DESIGNER & WEBMASTER our website. For our Media Kit, Elizabeth Roy advertising information, questions or comments, email us at ADMINISTRATIVE AIDE [email protected]. Roger Fuentes Zoom Autism Magazine LLC, its PROJECT CooRDINATOR/STAFF PHOTOGRAPHER founders, directors, editors and Conner Cummings contributors are not responsible in any way for the actions or results FEATURED CoLUMNIST taken by any person, organization or party on the basis of reading David Finch Maripat Robison 3 WAYS TO READ ZOOM MAGAZINE! YOU CHOOSE! information, stories or contributions Ed Zetlin & Mark Friese in this publication, website or related products. This publication is not REGULAR CoNTRIBUTORS & ADVISORS intended to give specific advice Anita Lesko Haley Moss to your specific situation. This Barb Rentenbach Jacob Fuentes publication should be viewed as entertainment only, and you are CarolAnn Edscorn Jennifer O’Toole encouraged to consult a professional Conner Cummings Lydia Wayman for specific advice. Cynthia Kim Steve Andrews No part of this publication may be copied in any form or by any means READ ONLINE READ ON IPAD DOWNLOAD PDF without written permission from WITH FREE JOOMAG APP Zoom Autism Magazine LLC. 2 ZOOM Autism through Many Lenses ZOOM Autism through Many Lenses 3 IN THIS ISSUE... COLUMNS RETOUCH by David Finch . 28 The Wisdom of Obstacles David tells how, despite his aversion to chal- lenges, in some ways he is a fan of obstacles. LEGISLATION LENS by Ed Zetlin and Mark Friese . 38 Learn what your rights are as a passenger with a disability or as someone traveling with a fam- ily member with a disability before you hit the COVER STORY road this summer. “Bridging” the Autism Gap and Creating “WRONGPLANET” in a REGULARS Very Right Way Balance . 36 Maripat Robison interviews autistic advocate, international speaker, filmmak- er, consultant and wrongplanet.net (an online community for individuals with Close Up . 44 autism) owner Alex Plank in this exclusive ZOOM interview . 20 Cummings & Goings . 46 Photo by Jonathan Timmes. Letter from the Editor . 06 FEATURES Q&A . 48 School’s Out for Prompting, Not 5 Summer Sensory- Autism and Eating Disorders: The Warmer Days: Shifting Pushing . 32 Friendly Must-Have Fight that Has Nothing to Do with Spotlight on Success . 52 Gears and Adjusting to Products under $20. 18 Food . 08 Christina MacNeal shares how Summer . 40 Zoom In . 14 the Rapid Prompting Method Along with sunshine, picnics, Jennifer Cook O’Toole didn’t feel the hurt. She Haley Moss offers tips on how can be more effective than romping on the beach and sip- didn’t feel anything except … trapped by her to make the transition from pushing. ping lemonade, summertime own rules, afraid of dinner dates or parties or school to summer back to can bring sensory challenges. anything outside of her rigid routine. school again a little easier. These 5 products – all under $20 In the Next Issue: Back to School and Beyond. – may be able to help! 4 ZOOM Autism through Many Lenses ZOOM Autism through Many Lenses 5 LETTER FROM THE EDITOR in sight, my husband had enough. He snapped at me, “Sharon, noticed the mountains before? Huge mounds why can’t you see the glass as half full? I’m sorry you lost your of dirt rising from the earth are kind of hard to can see mountains job. But you hated it, remember? You now have the opportunity to miss you would think! help you have a more positive life. We show you from my home of- do something different. So get up and do it.” I knew he was right, how you can help your loved ones by not push- I fice window! I know but I was just too depressed to figure out what to do next, to see Was it just me who had never noticed? When my ing, but instead, prompting them into the direc- that may not seem any possibilities, to even get up. children got home from school, I quickly ush- tion that they decide to take. like a sentence worthy of an ered them upstairs to the office to show them my exclamation mark, but it is. Eventually I realized I needed professional help and got it. My discovery and to find out if I was the only clue- We understand just how hard this journey you In order to fully understand therapist suggested that rather then turning to food, I write in my less one. are on may be. It is not easy to travel along just how astonishing this journal … so that I could write about how crappy things were, I highways filled with confusing signs, unex- revelation is, and what it guessed. I gave it try. My daughter Bella, who was only 8 at the time, pected turns and pot holes. But we at ZOOM has to do with this issue of sat down next to me, looked at me, then outside, believe that if you can find the strength to face ZOOM, let me share with One day as I sat down to write, I noticed it was raining, so I de- and then at me again and said, “Yup … those your struggles, learn how to look for happiness you a very personal story. cided to open up the drapes to look out. And that was when I saw are mountains alright” and skipped off. My then in even the darkest times and surround yourself them. From my home office window, I could actually see moun- 10-year-old son Jacob had a different response. with supportive people who will remind you to It was February 2011, and I tains. How could I have lived in that house for so long and never “MOM, of course I’ve seen them. All you have to look up so that you can see the mountains, you was having the worst week do is look up!” Out of the mouths of babes. can get to wherever it is you choose to go. ever! I lost my nice paying PR job, my dryer broke, the I realized something that day that changed my lights in my kitchen blew, I entire perspective and course of my life: there Passionately yours, found a mouse in my house will always be obstacles in life, but happiness is and I got a ticket for speed- all around us too, and with it, opportunities. But, ing while on my way to you are never going to be able to see them if you Home Depot to get a trap. don’t take the time, get the help you may need Sure, it all seems rather and most importantly, make the effort to look comical now, but at the time up! I was an emotional wreck and had what I guess could And that is what this issue of ZOOM is all about Sharon Fuentes be considered a break down. – how we can turn obstacles into opportunities. Editorial Director/ We highlight people like David Finch and Alex Co-Publisher & Founder After a week or so of me sit- Plank, actual autistics, who understand that the [email protected] ting around in my pajamas challenges and problems we face in our lives are all day, crying at every little part of the roadmap to greatness. We bring you thing and eating everything articles on how having a positive attitude can The view from my office window. See, MOUNTAINS! 6 ZOOM Autism through Many Lenses ZOOM Autism through Many Lenses 7 (The following article contains excerpts from ever said those weren’t “girl subjects”?!) So, the Jennifer’s book, Sisterhood of the Spectrum: An trouble couldn’t be a matter of intelligence or Asperger Chick’s Guide to Life) classroom success. The only difference between the boys and girls was how they reacted to dif- ome years ago, psychologist Carol Dweck ficulty, to the possibility of not having the ready took a good, hard look at a bunch of very answer, of pleasing everyone, of shining bright- S bright fifth-grade boys and girls. Specifi- ly. When the going got tough, the girls got going. cally, she observed what happened when these As in out the door. Gone. These clever young kids were presented with new concepts — con- girls turned on themselves as if they’d been wait- fusing information meant to cause them a bit of ing for proof of being not-good-enough. In mere frustration. How, Dr. Dweck wondered, would minutes, they’d lost all confidence … and walked AUTISM AND they handle the stress? away in shame. Among the girls in the study, the higher the IQ, Now, I’m being honest. The single best motiva- the more likely they were to give up when asked tor for me has always been when I’m told that I EATING DISORDERS to learn something can’t do something. that was particularly “Oh, really?” I think. foreign or complex. “Just watch me — That’s right: the and watch me do it most intelligent girls better than you ever THE FIGHT didn’t stick around could!” So, I would THAT HAS NOTHING and keep thinking.
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