Know Yourself—The Key to a Better Life
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The Life and Times Of'asperger's Syndrome': a Bakhtinian Analysis Of
The life and times of ‘Asperger’s Syndrome’: A Bakhtinian analysis of discourses and identities in sociocultural context Kim Davies Bachelor of Education (Honours 1st Class) (UQ) Graduate Diploma of Teaching (Primary) (QUT) Bachelor of Social Work (UQ) A thesis submitted for the degree of Doctor of Philosophy at The University of Queensland in 2015 The School of Education 1 Abstract This thesis is an examination of the sociocultural history of ‘Asperger’s Syndrome’ in a Global North context. I use Bakhtin’s theories (1919-21; 1922-24/1977-78; 1929a; 1929b; 1935; 1936-38; 1961; 1968; 1970; 1973), specifically of language and subjectivity, to analyse several different but interconnected cultural artefacts that relate to ‘Asperger’s Syndrome’ and exemplify its discursive construction at significant points in its history, dealt with chronologically. These sociocultural artefacts are various but include the transcript of a diagnostic interview which resulted in the diagnosis of a young boy with ‘Asperger’s Syndrome’; discussion board posts to an Asperger’s Syndrome community website; the carnivalistic treatment of ‘neurotypicality’ at the parodic website The Institute for the Study of the Neurologically Typical as well as media statements from the American Psychiatric Association in 2013 announcing the removal of Asperger’s Syndrome from the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, DSM-5 (APA, 2013). One advantage of a Bakhtinian framework is that it ties the personal and the sociocultural together, as inextricable and necessarily co-constitutive. In this way, the various cultural artefacts are examined to shed light on ‘Asperger’s Syndrome’ at both personal and sociocultural levels, simultaneously. -
Beyond Diversity and Inclusion: Understanding and Addressing Ableism, Heterosexism, and Transmisia in the Legal Profession: Comm
American Journal of Law & Medicine, 47 (2021): 76-87 © 2021 The Author(s) DOI: 10.1017/amj.2021.3 Beyond Diversity and Inclusion: Understanding and Addressing Ableism, Heterosexism, and Transmisia in the Legal Profession: Comment on Blanck, Hyseni, and Altunkol Wise’s National Study of the Legal Profession Shain A. M. Neumeier† and Lydia X. Z. Brown†† I. INTRODUCTION Far too many—if not most—of us in the legal profession who belong to both the disability and LGBTQþ communities have known informally, through our own experi- ences and those of others like us, that workplace bias and discrimination on the basis of disability, sexuality, and gender identity is still widespread. The new study by Blanck et al. on diversity and inclusion in the U.S. legal profession provides empirical proof of this phenomenon, which might otherwise be dismissed as being based on anecdotal evidence.1 Its findings lend credibility to our position that the legal profession must make systemic changes to address workplace ableism, heterosexism, and transmisia.2 They also suggest †Committee for Public Counsel Services, Mental Health Litigation Division. (The contents of this article are published in the author’s personal capacity.) ††Georgetown University, Disability Studies Program, [email protected]. With thanks to Sara M. Acevedo Espinal, Jennifer Scuro, and Jess L. Cowing for support. 1Peter Blanck, Fitore Hyseni & Fatma Artunkol Wise, Diversity and Inclusion in the American Legal Profession: Discrimination and Bias Reported by Lawyers with Disabilities and Lawyers Who Identify as LGBTQþ,47Am. J.L. & Med. 9, 9 (2021) [hereinafter Blanck, et al., Discrimination and Bias]. -
Sprawozdanie Z Działalności Fundacji Ditero Za Rok 2017
FUNDACJA DITERO WOLIMIERZ 18 59-814 POBIEDNA [email protected] Wolimierz, 30.06.2018 Sprawozdanie z działalności Fundacji Ditero za rok 2017 Wprowadzenie Fundacja została powołana aktem notarialnym w dniu 3 lutego 2016 r. W Krajowym Rejestrze Sądowym została zarejestrowana w dniu 12 maja 2016 r. W lipcu 2016 została uruchomiona pracownia terapeutyczna, działająca w ramach podstawowej działalności Fundacji. W roku 2017 działania Fundacji rozwinęły się na nowe obszary związane z pozaszkolnymi formami edukacji oraz kulturą i sportem. Władze Zarząd: Agnieszka Surmacz (Prezes) Rada Fundacji: Danuta Łopuch, Wiktoria Wiktorczyk Rada Nadzorcza: Kaja Pachulska, Aneta Mykietyszyn Cele statutowe organizacji Cele Fundacji zostały szczegółowo opisane w rozdziale II statutu Fundacji. Najważniejsze cele realizowane w 2017 r to: 1. Wspieranie osób niepełnosprawnych i ich rodzin poprzez świadczenie usług diagnostycznych i terapeutycznych, 2. Upowszechnianie i ochrona praw dziecka, praca z osobami mającymi kontakt z dziećmi z niepełnosprawnościami i dysfunkcjami rozwojowymi, 3. Działalność charytatywna, promocja i organizacja wolontariatu na rzecz rodzin z dziećmi z niepełnosprawnościami. 4. Działalności na rzecz organizacji pozarządowych oraz innych podmiotów aktywnych w sferze publicznej, mających cele zbieżne celami Fundacji. 5. Realizacja zadań z zakresu kultury, edukacji sportowej dzieci i młodzieży; Sposób realizacji celów statutowych organizacji Fundacja realizowała swoje cele przede wszystkim poprzez: • realizację usług terapeutycznych (prowadzenie -
Layersquality of Life and Autism
Exploring Diagnosis: Autism and Neurodiversity Steven Kapp Rhianna White 1 Preview of lecture Introduction to disability, neurodiversity movements Stimming study Labelling study Book on autistic community, neurodiversity movement 2 Sociology of (Jutel & Nettleton, diagnosis 2011) Diagnosis Diagnosis Stimming Neurodiversity as as Process study book Category Consequences of Diagnosis Labelling study 3 Disability rights movement Social contribution to/construction of disability Civil rights model – not medical model Self-advocacy: “Nothing About Us Without Us” Focus on self-determination and quality of life: building independence, inclusion, productivity through rights and support For respect, against personal tragedy narrative 4 Neurodiversity movement Autism: complex, pervasive; part of personality Often identity-first, non-medicalized language Autism: natural, on spectrum of human diversity Focus on rights, access, opportunities -> quality of life For acceptance; against prevention and normalization 5 Utility of autism, neurodiversity Little knowledge about what “works” for whom and why Common knowledge that no intervention works for all Little known for whom, how autism diagnoses tend to help Parental acceptance of child’s autism helps relationship (Kapp et al., 2018) Awareness of neurodiversity movement associated with views aligned with it (Kapp et al., 2013) Support for normalization associated with more stigma toward autistic people (Gillespie-Lynch et al., 2017) 6 Stimming (Jutel & Nettleton, study 2011) Diagnosis -
L Brown Presentation
Health Equity Learning Series Beyond Service Provision and Disparate Outcomes: Disability Justice Informing Communities of Practice HEALTH EQUITY LEARNING SERIES 2016-17 GRANTEES • Aurora Mental Health Center • Northwest Colorado Health • Bright Futures • Poudre Valley Health System • Central Colorado Area Health Education Foundation (Vida Sana) Center • Pueblo Triple Aim Corporation • Colorado Cross-Disability Coalition • Rural Communities Resource Center • Colorado Latino Leadership, Advocacy • Southeast Mental Health Services and Research Organization • The Civic Canopy • Cultivando • The Gay, Lesbian, Bisexual, and • Eagle County Health and Human Transgender Community Center of Services Colorado • El Centro AMISTAD • Tri-County Health Network • El Paso County Public Health • Warm Cookies of the Revolution • Hispanic Affairs Project • Western Colorado Area Health Education Center HEALTH EQUITY LEARNING SERIES Lydia X. Z. Brown (they/them) • Activist, writer and speaker • Past President, TASH New England • Chairperson, Massachusetts Developmental Disabilities Council • Board member, Autism Women’s Network ACCESS NOTE Please use this space as you need or prefer. Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, step in and out of the room. CONTENT/TW I will talk about trauma, abuse, violence, and murder of disabled people, as well as forced treatment and institutions, and other acts of violence, including sexual violence. Please feel free to step out of the room at any time if you need to. BEYOND SERVICE -
Research Participation and Employment for Autistic Individuals in Library and Information Science: a Review of the Literature Nancy Everhart & Amelia M
Research Participation and Employment for Autistic Individuals in Library and Information Science: A Review of the Literature Nancy Everhart & Amelia M. Anderson Abstract Autism prevalence is growing, and autistic people themselves are important in the library and information science field, both as library patrons and employees. Including them in all stages of research about the neurodivergent experience is valuable, and their input and participation is increasingly used in technology research, particularly usability studies. Neurodivergent persons also have unique abilities that align with a wide array of information professions and accommodations can be made that allow them to thrive in the workplace. It is critical that meaningful involvement of autistic individuals is a component of making policy at all levels. Introduction The population of individuals diagnosed with autism spectrum disorder (ASD) has grown, but current literature regarding autistic adults lacks first-person accounts, particularly in the information environment. Adult voices have been drowned out by the overwhelming emphasis, both in the general public and the scholarly literature, on early identification and intervention for young children with autism (Cox et al. 2017). Much research on college students with ASD also focuses on the perspective of the professor or instructor, not the students themselves (Barnhill 2014). Achieving a representative sample is vital to the validity of social research findings, particularly when findings are used as evidence to inform social policies and programs. Likewise, autistic individuals often seek employment in information settings such as libraries and computer technology. This paper discusses the involvement of persons with ASD in library and information research and employment more broadly, and also specifically within the context of several recent studies. -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008)
The Connie Belin & Jacqueline N. Blank International Center for Gifted Education and Talent Development The University of Iowa College of Education The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008) Susan G. Assouline Megan Foley Nicpon Nicholas Colangelo Matthew O’Brien The Paradox of Giftedness and Autism The University of Iowa Belin-Blank Center The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008) This Packet of Information (PIP) was originally developed in 2007 for the Student Program Faculty and Professional Staff of the Belin-Blank Center for Gifted Education and Talent Development (B-BC). It has been revised and expanded to incorporate multiple forms of special gifted programs including academic year Saturday programs, which can be both enrichment or accelerative; non-residential summer programs; and residential summer programs. Susan G. Assouline, Megan Foley Nicpon, Nicholas Colangelo, Matthew O’Brien We acknowledge the Messengers of Healing Winds Foundation for its support in the creation of this information packet. We acknowledge the students and families who participated in the Belin-Blank Center’s Assessment and Counseling Clinic. Their patience with the B-BC staff and their dedication to the project was critical to the development of the recommendations that comprise this Packet of Information for Professionals. © 2008, The University of Iowa Belin-Blank Center. All rights reserved. This publication, or parts thereof, may not be reproduced in any form without written permission of the authors. The Paradox of Giftedness and Autism Purpose Structure of PIP This Packet of Information for Professionals (PIP) Section I of PIP introduces general information related to both giftedness was developed for professionals who work with and autism spectrum disorders. -
Disability in an Age of Environmental Risk by Sarah Gibbons a Thesis
Disablement, Diversity, Deviation: Disability in an Age of Environmental Risk by Sarah Gibbons A thesis presented to the University of Waterloo in fulfillment of the thesis requirement for the degree of Doctor of Philosophy in English Waterloo, Ontario, Canada, 2016 © Sarah Gibbons 2016 I hereby declare that I am the sole author of this thesis. This is a true copy of the thesis, including any required final revisions, as accepted by my examiners. I understand that my thesis may be made electronically available to the public. ii Abstract This dissertation brings disability studies and postcolonial studies into dialogue with discourse surrounding risk in the environmental humanities. The central question that it investigates is how critics can reframe and reinterpret existing threat registers to accept and celebrate disability and embodied difference without passively accepting the social policies that produce disabling conditions. It examines the literary and rhetorical strategies of contemporary cultural works that one, promote a disability politics that aims for greater recognition of how our environmental surroundings affect human health and ability, but also two, put forward a disability politics that objects to devaluing disabled bodies by stigmatizing them as unnatural. Some of the major works under discussion in this dissertation include Marie Clements’s Burning Vision (2003), Indra Sinha’s Animal’s People (2007), Gerardine Wurzburg’s Wretches & Jabberers (2010) and Corinne Duyvis’s On the Edge of Gone (2016). The first section of this dissertation focuses on disability, illness, industry, and environmental health to consider how critics can discuss disability and environmental health in conjunction without returning to a medical model in which the term ‘disability’ often designates how closely bodies visibly conform or deviate from definitions of the normal body. -
Book Project Chapters 1, 2, 3, 4, 5, 6, 7, 8 Pages Format
56 Exceptional Children Web Sites Internet Sites for Specific Syndromes/Disorders Autism Autism Research Institute http://www.autism.com/ari (ARI) Autism Society of America http://www.autism-society.org (ASA) Global Autism Collaboration http://www.autism.org Oops!...Wrong Planet http://www.planetautism.com Syndrome Autism Research Institute http://www.autism.com/ari (ARI) Deaf/Hearing Impairment Alexander Graham Bell Association for the Deaf and http://nc.agbell.org/netcommunity Hard of Hearing Division for Communicative http://www.deafed.net Disabilities and Deafness Hard of Hearing and Deaf Students: A Resources http://www.bced.gov.bc.ca/specialed/hearimpair/toc.htm Guide to Support Classroom Teachers Mental Retardation/Intellectual Disabilities The Arc of the United States http://www.thearc.org/ The Georgia Arc Network http://www.thearcofgeorgia.org/index.html Down Syndrome http://atlantadsaa.org/ Association of Atlanta National Down Syndrome http://www.ndss.org Association National Fragile X http://www.nfxf.org/html/home.shtml Foundation Orthopedic Impairment Information about Mobility http://library.thinkquest.org/11799/data/mobility.html Impairments Muscular Dystrophy http://www.mdausa.org Association Strategies for Teaching Children with Motor/ http://www.as.wvu.edu/~scidis/motor.html Orthopedic Impairments United Cerebral Palsy http://www.ucp.org/ Association Band-Aides and Blackboards: When Chronic http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/ Illness or sickness.html Some Other Medical Problem Goes to School Children -
Support Systems for Students with Autism Spectrum Disorder During
Support Systems for Students with Autism Spectrum Disorder during their Transition to Higher Education: A Qualitative Analysis of Online Discussions Amelia Anderson, Bradley Cox, Jeffrey Edelstein, and Abigail Wolz Abstract This study explored how college students with autism identify and use support systems during the transition to higher education. This study explored how these students described their experiences within an online environment among their peers. The study used unobtrusive qualitative methods to collect and analyze data from online forum discussion posts from Wrong Planet, an online forum for people with autism. Students found their support systems in various ways. Many report using services provided by their Office of Disability Services, but students must be aware that these services exist first, and often must have a diagnosis to receive such supports. This study makes suggestions for higher education institutions to identify and promote their support services, both those that are accessible through Offices of Disability Services, and those that are available without diagnosis or disclosure. Research Questions Discussion The students clearly believe that the burden is on them to seek help. How do students with ASD describe their experiences with support systems during their Whether by registering with the disability services office, or searching the transition to college? school’s website, or by otherwise exploring what the college or university has - Who or what are the support systems that college students with ASD describe? to offer, these students describe it as being up to them to discover their own - How do college students with ASD find these support systems? support systems. -
Diary of a Mom Jess Wilson and Family Facing Life’S Challenges with Grace ZOOM Autism Through Many Lenses 1 ISSUE 12 to W O
autism through many lenses ISSUE 12 Guardianship Is it the right choice? INCLUSION from an Autistic Standpoint Companies who are doing 7 Inclusion Right! DIARY OF A MOM JESS WILSON AND FAMILY FACING LIFe’s CHALLENGES WITH GRACE ZOOM Autism through Many Lenses 1 ISSUE 12 TO W O FOUNDERS Sharon Cummings Sharon Fuentes Jodi Murphy H PUBLISHERS Sharon Cummings Sharon Fuentes EDITORIAL DIRECTOR Sharon Fuentes EXECUTIVE DIRECTOR Sharon Cummings Cover photo provided and shared with permission by Jess Wilson. Sev- ART DIRECTOR eral photos throughout the magazine Suzanne Chanesman courtesy of Pixabay and Morguefile. CopY EDITOR For submission/writing guidelines, Jennifer Gaidos please review the information on our website. For our Media Kit, WEBSITE DESIGNER & WEBMASTER advertising information, questions Elizabeth Roy or comments, email us at [email protected]. PROJECT CooRDINATOR/STAFF PHOTOGRAPHER Zoom Autism Magazine LLC, its Conner Cummings founders, directors, editors and contributors are not responsible ADVISORY BOARD MEMBERS in any way for the actions or results Alex Plank Dena Gassner taken by any person, organization Barb Rentenbach Michael Buckholtz or party on the basis of reading Carol Greenburg Stephen Shore information, stories or contributions in this publication, website or related 3 WAYS TO READ ZOOM MAGAZINE! YOU CHOOSE! products. This publication is not intended to give specific advice SPECIAL THANKS to your specific situation. This autism through many lenses ISSUE 12 Guardianship publication should be viewed as Is it the right choice? INCLUSION from an Autistic entertainment only, and you are Maripat Robison, Dr. William Harrison, Standpoint Companies who are doing encouraged to consult a professional Ron and Owen Suskind, David Finch, 7 Inclusion Right! for specific advice.