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One Voice nternational I Issue 17 - May 2004 Stuttering Incorporating The Voice of ELSA, the newsletter of Association the European League of Stuttering Associations Special edition from the seventh world congress for people who stutter Perth, Australia,February 15-20, 2004 pleasure to organise the group of overseas attendees who with Reach out and get together scholarships from the world congress organisers and ISA were participating at the meeting. For most of them it was their first Stefan Hoffmann such event and I believe it strengthened their commitment to ISA Outreach Working Group Chair work with and for the ISA family. Here above, you can see the photo taken at the congres venue. 15 countries are represented The long awaited 7th world congress for people who stutter is from all continents. now already history. But I believe that for quite a few people, I invite you to read on the next pages about how the meeting the memory will be meaningful for long time to come. I had the was seen by them. continued on page 3 ‘A world that understands stuttering’ 2 – One Voice 17 May 2004 ISA is making a real difference to people who stutter Report of board chair to ISA meeting, The ISA has continued to produce its newsletter One February 14th 2004 Voice. I thank Andrew Harding of the British Stammering Association who has edited and produced the last four issues and before him Warren Brown of the New Zealand Mark Irwin Speak Easy Association. Both men are journalists and have Australia been extremely diligent and creative in their efforts. We at the ISA owe them a large debt of thanks for their Slowly but surely the word is spreading. I believe the ISA willingness to give so much of their time for this effort. can feel strongly that over the last three years it has taken Also I would also like to thank Martine deVloed from significant steps towards fulfilling its goal of a world that Belgium who has served as One Voice coordinator. It is understands stuttering. We must remember that half the with regret we must accept Martine’s resignation from world’s population live on less than $2 per day and even the Board. Her efforts on behalf of the ISA also included in the developed world access to professional therapy serving as vice chair, and convenor of the last ISA services is often limited. Given these problems with access conference. to affordable treatment, the ISA’s work of providing Our efforts at outreach and international communication information on stuttering and helping to promote national in general have been helped significantly by the and local self help groups, is as vital as ever. development of the internet. Benny Ravid from Israel has served our association wonderfully well as an extremely Specific steps taken by the ISA over the last three years competent and committed web master. I thank him for include: his efforts. Benny has also serves as a board member and 1. admission of six new member associations deserves our thanks in this regard as well. 2. continued outreach efforts in China and Africa On an administrative level there is also concern that many 3. holding of a world congress for PWS (in Australia for of our member associations have not payed their affiliation the first time!) fees. Despite of this we have been able to meet all our 4. completion of a CD ROM containing stuttering financial commitments as well as raise money for travel information scholarships for people from disadvantaged countries to Some of the new member associations are from Burkina attend our congress. Again I thank Stefan Hoffman for Faso, Cameroon, Nepal and Spain. his fine work in coordinating this activity. In addition we welcome two new international groups: I also thank Stefan for his support as vice chair of the Passing Twice, for gay, lesbian and transgender individuals ISA for the last three years. He has always conducted who stutter, and TTM-L, an internet self help group for himself professionally and I have very much appreciated Hispanic speaking people throughout the world. his timely replies and reminders. He has been extremely Stefan Hoffman is to be thanked and congratulated for effective in his role and made my job much easier. I am his outstanding commitment to outreach on behalf of sure the entire ISA is sorry to hear of his decision to the ISA. Stefan developed a plan for his activities and I resign from the board but we are heartened to hear he believe he has worked through it with great success. will continue to lead our outreach efforts. We understand The upcoming world congress is sure to be memorable his retirement from the board is a temporary situation with more people than the Ghent conference three years and we look forward to his involvement at board level in ago. I am sure this is due to wonderful promotional work the future. by the congress convenor Peter Dhu. I have been delighted Mary Wood from Canada and Beatriz Touzet from to serve as programme committee chair and know how Argentina are also retiring board members. Both have been hard Peter has worked in every aspect of the congress extremely enthusiastic ISA supporters and their presence arrangements. will be missed at our congresses where their laughter and A CD ROM with stuttering information suitable for energy were infectious. I thank them for their efforts as I distribution in schools was an initiative developed at the do our other board members not already mentioned; Ghent conference three years ago. I am pleased to say the namely Annie Bradberry and Judith Eckhart from the USA CD is now complete and is available to member and Gert Reunes from Belgium. In addition to their associations for distribution throughout their countries. I general involvement in discussions and decision making, would like to acknowledge the following people for their Annie has served as board secretary and with Stefan helped involvement. Judith Eckardt (USA), Claudia Groesman coordinate the new ISA logo while Judith has helped with (Spain), Erik Lamens (Belgium), Marilyn Langevin the CD ROM project. We thank Gert for accepting the (Canada), Michael Sugarman (USA) and Melissa Urquhart (Australia). continured on page 4 One Voice 17 May 2004 – 3 Delegates from Germany had something big to celebrate (left and below) continued from front cover For me personnally, I had huge pleasure to experience the multinational atmosphere the world congress for people who stutter generated. Especially, the evening dinners were amazing. To go out with 10 or more people from as many countries can be very funny, as long as you can agree on a type of food that everyone is happy with!! The scholarship included accomodation in a backpackers hostel. Some may think that this is not the most desirable developed to begin this work. Small steps can already make place to go, but actually I heard from many that they so a difference. A beautiful example on pages 6-7 is much enjoyed to stay there. They had time to get to know described by Jane from Rwanda and Dan from Canada, fellow stutterers from different places, take time to discuss who met last autumn in Rwanda. Please read for yourself their experiences, get new ideas how to enhance awareness how this nice example of ISA networking came into place. about stuttering back home and just have a good time. Again, I want to invite all who read this issue of One Of course ISA would have liked to have even more people Voice to get involved with ISA outreach working group. attending the conference. But we are already very happy It is a very rewarding task to bring people together from that our three member associations from Africa were various parts of the world. The opportunities to actually represented and could make an important contribution meet each other face to face are always highlights, and if to the congress. However, more steps are necessary to I had to choose between fluency and attending such help the many stutterers there. In Perth a few ideas were international meetings, I would choose the latter! 4 – One Voice 17 May 2004 continured from page 2 difficult position of liaison officer to the World Health My stutter can’t Organisation. Unfortunately it seems professional Pablo Ibáñez commitments as well as his forthcoming marriage have reduced Gert’s ability to accomplish as much as he would Spain have liked. Gert and his new wife Petra were very hospitable to all ISA delegates during our Ghent On December 2003 I received an e-mail relating this conference. subject: “Scholarship confirmation Perth 2004”. Seeing I would like to acknowledge the fine work of ISA advisory this e-mail today, in March 2004, I realise I could never board member Michael Sugarman who has coordinated give enough thanks to ISA for offering me this great the ISA’s international year of the child who stutters. This opportunity. event will gather momentum with the distribution of the The congress is now over, I am back in Spain. Western ISA’s CD ROM and the accent given during the Australia is on the opposite side of my world, somewhere international online conference in October. down, down under, but I keep a place in my mind (and in Now to the future. I feel extremely optimistic about our my heart) for that wild country, for so many caring friends, future for three reasons. First, with the new technology for those proud stutterers I met from all over the world.
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