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People Who Stutter Can Overcome Social Fear Vrbal [email protected] https://www.yukafukuoka.com/ PEOPLE WHO STUTTER CAN OVERCOME SOCIAL FEAR VRBAL Yuka Fukuoka DSI, 2018 Thesis INTRO TO PROBLEM SUMMARY OF PROJECT INITIAL RESEARCH FIRST RESEARCH SECOND RESEARCH THIRD RESEARCH CONTENT FOURTH RESEARCH IDEATION YUKA FUKUOKA Yuka Fukuoka is from Japan, and studied Information and Service Design PROTOTYPE at Tama Art University, Japan. After graduating she worked at Yahoo! Japan as a designer and then attended the University of Tokyo’s ITERATION Interfaculty Initiative in Information Studies as a research student. She is interested in changing the general publics perspective on people with disabilities. IMPLEMENTATION FIRST INTERVENTION FINAL INTERVENTION LEARNING NEXT STEP CONCLUSION INTRO TO PROBLEM PROBLEM CONTEXT Stuttering is a communication disorder in which the flow of speech is broken by repetitions (li-li-like this), prolongations (lllllike this), or abnormal stoppages (no sound) of sounds. There may also be unusual facial and bodily movements associated with the effort to speak. So what problems does stuttering actually cause, outside of making it hard to talk? First, you are not able to talk like the people around you. Your parents and teachers notice and friends tease you, so your repeated experiences instill you with a sense of failure. You blame yourself for being unable to do what everyone else can do. You conclude that you’re inferior, and your self-confidence falls. Finally, you lose confidence in com- munication, stop approaching people, and miss out on opportunities in life. Through this process, people who stutter easily become people with social anxiety disorder. I definied that this is the core problem. PASSION When I was nine, I started stuttering, and I grew into a 24-year-old woman without ever being cured. Even now, I still battle with this issue each day whenever I try to speak to other people. At these times, this stuttering symptom is a prominent concern, and so I feel it has great influence on my life. I wanted to change people’s perceptions around communication disorder. I had traumatic social experiences during my childhood due to my stuttering disability. My hypothesis is that if I could start with a handful of people who change their views towards their own disabili- INTRO TO PROBLEM ties, they could have rippling impacts on others and eventually create a universal norm to protect and empower the disadvantaged. SUMMARY THE CHALLENGE PERSONAL GOAL 1% of the total population suffer from stuttering. Stuttering is The problem I wish to focus on in my thesis project involves speech disorder in which the ability to utter speech sounds is employment and the job hunting problems of people who stutter. disrupted, preventing fluent vocalizing. People who suffer from I asked adults who stutter which phase most felt the barriers of these symptoms experience difficulty in communicating smooth- stuttering to identify the pain point in their lives. As a result, ly with others and feel it is difficult to live a normal life. So what there was no problem even if there was much psychological and problems does stuttering actually cause? People who stutter mental stress as students because friends and teachers cared about can’t talk like the people around them. So they blame themselves them. However, I realized that when they graduate from college for being unable to do what everyone else can do. They may and are looking for a job, they will face big obstacles because conclude that they are inferior, and their self-confidence falls. of judgments by prospective employers. Then, many stutterers Through this process, people who stutter easily become people decide to go for private therapy because they feel they really need with social anxiety. help at that time. SUMMARY INITIAL RESEARCH INITIAL RESEARCH DOCUMENTARY FILM WEARABLE DEVICE STACHA In order to understand the issue of stuttering, This documentary covers a stutterer who is Through the documentary described above, I first decided focus my research on Japanese troubled all by herself. Her life gradually I postulated that the essence of the problem people. My first step was to make a docu- became more lively after she found someone was the extremely low level of awareness mentary featuring someone who stutters. with whom she can share her troubles with. of stuttering. Because of this, in order to Her name is Koyanagi, and she is a woman The protagonist, Nozomi Koyanagi, had improve awareness of the invisible disability with a desire to use her own difficulties to been troubled by her stuttering since she was of stuttering, I developed a wearable device. help society while facing her complex of young. She became anorexic because she felt stuttering. By making a documentary featur- isolated by her troubles that she could not ing her, I became aware of one problem. Is share with anybody, not even with her own the core problem of stuttering a low level mother. Even when she worked as a coun- of awareness? Outsiders assume that it is selor, she experienced difficulties from her a lack of effort rather than a disability, and stuttering that people could not comprehend. chide children for stuttering. In addition, as She did not try to face this obstacle prop- As a result of developing and exhibiting the device at SXSW, I haved gained extremely helpful insights about the American stutterers themselves aren’t aware that it is a erly, and continued to carry her troubles by context. This was that in the United States, awareness of stuttering is by no means low. However, on examination, I found that disability, they continue to hide it and blame herself. Then, she attended the self-support there were people suffering from stuttering in the United States too. For that reason, I next carried out an investigation to grasp the themselves for their mistakes. I formed the stutterer group “Hirose Counseling Class.” essence of the problem in accordance with the context of American culture. hypothesis that because of this, they may She was able to gradually accept herself steadily lose their self-esteem and self- as someone with stuttering by sharing her An extremely informative discovery I made was that in the United States, stutterers have attended therapy with a Speech Language confidence, and stop trying to communicate troubles with other stutterers who carry the Pathologist from the time they were young. Due to the fact that therapy services were extremely progressive within schools, aware- actively with people. same troubles. ness of speech disabilities was extremely high among teachers, parents, and society as a whole. Awareness of stuttering was also extremely high. So then, what is the essence of the problem? It’s finding employment. Children who stutter, who have received strong support in schools, face extreme pressure after they graduate from university. They are unable to adapt well to the change of environment which places them in the position of being judged by society. Then I decided proceeding the research to identify the difference between Japan and US. THE PROBLEM OF STUTTERING IN THE UNITED STATES An extremely informative discovery I made was that in the United States, stutterers have attended therapy with a Speech Language Pathologist from the time they were young. Due to the fact that therapy services were extremely progressive within schools, aware- ness of speech disabilities was extremely high among teachers, parents, and society as a whole. Awareness of stuttering was also extremely high. So then, what is the essence of the problem? It’s finding employment. Children who stutter, who have received strong support in schools, face extreme pressure after they graduate from university. They are unable to adapt well to the change of environment which places them in the position of being judged by society. Then I decided proceeding the research to identify the difference between Japan and US. https://vimeo.com/247587864 FIRST RESEARCH ASSUMPTION In terms of stuttering, I used to think that the main problem was the symptoms themselves. Now I believe the real problem lies in trying to hide the stuttering symptoms after they appear. I found that avoiding conversations in order to hide the symptoms creates intense pressure in daily life and feelings of solitude. Therefore, my initial target audience is Covert Stutterers. “I first noticed the stuttering after my friends made fun of me. For a long time I considered stuttering to be embarrassing and a sickness that must be cured. I couldn’t get a job so I wanted to do something about it, so when I was 21 years old I went to stutter therapy for the first time. There, I learned about the National Stuttering Association. After that, I was able to become open about stuttering than before but even now I can only talk about my own stuttering with close friends. Someday, I’d like to be open about it at work too. When I hide my stuttering it’s a constant anxiety and it’s painful to be isolated.” I met with the leader of a self-help group in NSA in San Jose, California. At first glance you wouldn’t know he suffered from stuttering His symptoms had first appeared when he was 8 years old, and he has been worried about it ever since. Many covert stutterers, he had found a community by taking part in NSA conferences. There, he has found a place to belong and feel freer to open up and discuss his own disability. However, just as there are people who continue to hide their stuttering until adulthood like Steven, there are many other stutterers who are un- able to take part in therapy or self help groups. FIRST RESEARCH INSIGHTS Covert stutterers do not recognize other stutterers because they hide their stuttering.
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