Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:10 Page 2

A lifetime of specialist care

D 0 P 0 E m 0 e A 0 PatientThe newsletter for patientsFocus and our foundation trust members | Autumn 2014

g 0 0 e w

Harefield Hospital – an

0 0 Welcome to a 0 exciting future a h 2015 is Hospital’s Improvements include: the latest issue 0 centenary and we want to make it a ¼ An increased number of critical It is an eventful time for the Trust – 2015 will be d year to remember! 0 care and inpatient beds a year to remember with the celebration of

i It is an opportunity to celebrate the ¼ Enhanced diagnostic imaging and Harefield Hospital’s centenary. Plans also continue apace for Royal Brompton’s w care and recovery of thousands of scanning capability 0 redevelopment. More information on this can be patients, the dedication of staff and n ¼ A reconfigured operating theatre found on pages 6 and 7. the ground-breaking clinical and We are pleased to welcome two new governors scientific achievements that have ¼ A state-of-the-art endoscopy suite 0 to the Trust and we look forward to the valuable been taking place since the hospital By 2020, rebuilt wards and a brand 0 a contributions they will make to our work. You opened in 1915. k w new graduated care unit will can read more about them on page 4. increase the number of hospital We have started making plans and The members’ event programme is proving to @ beds to well over 200 (from the are hoping as many Trust members be a great success and details of our most current 176), enabling more get involved as possible. recent events are on page 3. If you would like patients to benefit from our U written information about events for 2015,

There will be a number of specialist care. please send your details to me at [email protected] or alternatively you can 0 celebratory events organised As well as an expansion of services, h find details at: www.rbht.nhs.uk/members. l throughout the year – some by the such as transplantation and primary h Thank you to Mr J D Milaric for kindly w Trust and some by Royal Brompton angioplasty, the investment will contributing an original poem about heart & Harefield Hospitals Charity, which enable the continued growth of disease (page 5). If you have anything you’d like 2 @ will raise funds for the hospital. respiratory services, including to contribute for future 0 treatment for difficult asthma and o We will keep you updated about the editions, please contact me: F severe emphysema. It also presents h plans on: www.rbht.nhs.uk, [email protected] 0 an opportunity to develop a new c www.rbhcharity.org and in Patient Finally, I hope you enjoy allergy service, providing food and w Focus. reading Patient Focus. drug challenges, immunotherapy and desensitisation therapy. Another important part of this B 0 legacy will be the multi-million Bob Bell, chief executive, 0 0 pound expansion and commented: “This is an exciting c redevelopment of Harefield time for Harefield, particularly as it w Hospital. Improvements will be approaches its centenary year in Philippa implemented in three stages over 2015. The new and improved Allibone, 1 the next five years (subject to facilities at the hospital will help us membership 0 K planning permission) with phase meet the increasing demand for the manager 0 k one due for completion during the world-class services provided by centenary year. our clinical teams.”

Report from the annual Redevelopment update Diary dates members’ meeting Pages 6-7 Page 11 Page 2 Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:10 Page 3

page 2 – Patient Focus Autumn 2014

Report: annual members’ meeting and general meeting of council of governors 2014 5Dr Will Man, consultant chest physician, presenting at the AGM

On 21 July 2014, the Trust held its fifth the end of the year, for her “wonderful ¼ Annual report (Richard Connett, annual members’ meeting, which was career” at the Trust. director of performance and Trust combined with the council of governors’ Bob Bell, chief executive, then updated secretary) annual general meeting for the second attendees on strategic issues, including time. Around 80 Trust members, ¼ Accounts (Rod Morgan, chief our consistently high patient and staff including staff, patients and governors accountant, in the absence of Richard satisfaction scores, the proposed attended the meeting, which was held in Paterson, associate chief executive – the Concert Hall at Harefield Hospital. redevelopment at both hospitals and our finance) joint ventures and collaborations with Sir Robert Finch, Trust chairman, other systems of care. The meeting ended with a presentation welcomed members and spoke of his by Dr Will Man, consultant chest “immense pride in the Trust’s There were reports from: physician at Harefield, on pulmonary achievements in the last year”. He ¼ Nomination and remuneration rehabilitation and working in the acknowledged John McCafferty, who has committee (Ray Puddifoot, lead community, which was very well received stepped down as public governor for the governor) by attendees. South of England, and thanked him for his contributions. John is the world’s ¼ Membership steering committee Feedback on the day was very positive, longest surviving heart transplant (Edward Waite, patient governor) with one member commenting that the patient. Sir Robert also paid tribute to Dr event was “well worth attending” and Caroline Shuldham, director of nursing ¼ Audit and quality report (Deloitte – another describing Dr Man’s presentation and clinical governance, who is retiring at auditors) as “very interesting and informative”. Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:10 Page 4

Patient Focus Autumn 2014 – page 3

Member events Tour of Royal Brompton Hospital’s cardiac catheter laboratories On 16 September, 26 trust members attended a tour of the cardiac catheterisation laboratories (cath labs) at Royal Brompton Hospital. Dr Simon Davies, consultant 5A demonstration during the tour of Royal Brompton’s cath labs interventional cardiologist, started the tour with a talk about the history of cardiac catheterisation (angios). He explained that cardiac catheterisation to cath lab 2, which is used for children’s Members were also taken into the control was not a new procedure; it was first procedures. In the cBRU laboratory, room and shown moving images of a done in 1929 by Dr Werner Forssman – members were shown a whole angiogram number of different cardiac procedures on himself! Dr Davies then described the procedure: how the patient is prepared that are routinely carried out in the cath different types of heart conditions (draped) to provide a sterile labs and were given the opportunity to treated in the cath labs. Examples of environment, the drugs used and how “drive” the X-ray equipment. angiograms were shown with blockages the X-ray equipment is moved by the in the coronary arteries being opened by radiographers. Members were given the The groups then swapped locations so coronary balloons and stents. opportunity to handle the different types that all members saw both of these and sizes of catheters, stents and plugs. specialised areas. Karen Shevlin, cath lab manager, and her staff divided members into two groups. The tour of cath lab 2 demonstrated One member commented: “What an The first group was taken to the pictures on the X-ray screens with informative experience! Calmly cardiovascular biomedical research unit examples of congenital heart conditions explained, I would now have these (cBRU) laboratory and the second group both before and after closing the defects. procedures done with no fear.”

Easy ways to help women (and men!) be healthy and live longer

On 19 May 2014, over 20 Trust members day. The half hour can be done in single muscle death within 15 minutes so the attended a talk entitled “Easy ways to sessions or broken into three 10-minute sooner the clot is opened the better the help women (and men!) be healthy and sessions. Exercise helps to maintain result will be. live longer” by Professor Peter Collins, energy levels, lower total cholesterol, Professor Collins said that the top three consultant cardiologist at Royal manage body weight, control the risk factors for developing cardiovascular Brompton Hospital. metabolic syndrome (a combination of diabetes, high blood pressure and disease are hypertension (high blood Heart disease is the leading cause of obesity) and relieve stress. pressure), diabetes and cigarette smoking. death in women: 10 times more deaths Throughout the meeting, members asked occur from heart disease and stroke than Professor Collins told the audience heart pertinent questions about heart disease, from breast cancer. However, a lot of heart disease occurring in women is very and following the talk, the membership disease can be treated with lifestyle preventable and can be delayed. One of the problems is that heart disease starts team received some excellent feedback. changes, medication and exercise. when women are young and it gradually Comments included: “the talk was Professor Collins explained that whilst worsens over the years, sometimes interactive, practical and not too medicine can help you live longer, you can developing into a heart attack. A heart technical” and “the presentation was also help yourself by taking exercise, attack (where a blood clot blocks an extremely informative and well simply by walking for half an hour each artery in the heart) can cause heart presented”. Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:10 Page 5

page 4 – Patient Focus Autumn 2014

Welcome to our new Trust governors

Two Trust governors, Mr John McCafferty and Mr Philip Dodd, stepped down in summer 2014, leaving vacancies in two areas in the public constituency. Subsequently, Mr Anthony Connerty and Mr George Doughty began their terms on 1 September 2014. They explain their reasons for becoming involved with the work of the Trust:

Anthony Connerty – public governor, South of England

Anthony Connerty, from East Sussex, is hospitals. Those hospitals have rightly the new public governor representing achieved global recognition for their the South of England. He is a barrister work in their specialist fields.” and practices in . Anthony said: “Previously, I served for a number of years as a patient / carer governor for the Trust. I stood for “I wished to continue election again because I wished to continue making some contribution in making some return for the excellent care I received at contribution in return Harefield. for the excellent care I Attending meetings of the Council of Governors has shown me the received at Harefield” extraordinary work and dedication of the medical and other staff at the two

George Doughty – public governor, North West London

George Doughty lives in Fulham and is patients and their families to become the new public governor for the North members of the Trust and, by so doing, West London constituency. He has over play their part in supporting its future.” 25 years’ experience working in the City as a Lloyd’s Underwriter and over 15 years’ experience working in a diverse range of voluntary roles. He said: “My youngest son was born with a congenital heart defect and, since “I would like to undergoing successful open heart surgery at the age of six months, he has encourage all patients been a patient at Royal Brompton Hospital. Our family is indebted to the and their families to dedicated staff for their continuing professional care and support of our son. become members of I look forward to making a positive the Trust and by so contribution to help secure the vision and future direction of the UK’s leading doing, play their part in specialist foundation trust for the treatment of both adult and paediatric supporting its future” heart and lung disease. I would also like to take this opportunity to encourage all

Member get member We are always keen to recruit new members to our Trust – patients, carers, and members of the public are all welcome. And don’t be afraid to encourage your friends and family to become members too! Becoming a member is easy and free. For information and to complete a registration form go to: www.rbht.nhs.uk/members or email: [email protected] Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:10 Page 6

Patient Focus Autumn 2014 – page 5

Take it to heart – a poem

We are most grateful to Mr J D Milaric for sending us his original poem about heart disease.

These words are for everyBODY with a heart Who wants to be really smart But consider it easier said than done To make lifestyle changes and so become Less prone to heart disease

Having been an angina sufferer for decades now I am keen to share with you how To combat the onset of cardiovascular disease Which can develop with surprising ease By being aware of the warning signs And eradicating this scourge of our times

YOUR DIET – choose wisely what to eat and drink So much more important than you perhaps think “You are what you eat” is so apposite So provide a wholesome response to your appetite

Cut down on the salt intake Together with sugar in snacks like biscuits and cake Consume instead more fruit and vegetables Reduce your consumption of processed foods STRESS is an established part of our existence The best way to quench a thirst But left unchecked can produce a dire consequence Is to drink water first As your mind and body suffers constant attrition Alcohol is fine in appropriate measures Unknowingly you develop a heart condition As one of life’s enduring pleasures Stress levels need to be duly managed To avoid a potentially damaged EXERCISE regularly as part of your health regime Heart occurring This need not be as daunting as it may seem For the best results, make a plan Calming down and using a relaxation technique Avoid this being a “flash in the pan” Will improve your mood and propensity to seek Losing weight and feeling better A means of living in a more relaxing manner Will be the upshot of your endeavour In turn, preventing stress from becoming a spanner In the workings of your heart Aerobic activity is the best kind With positive side effects for your mind HEARTS require rhythmic maintenance Choose a suitable form of physical activity To deliver optimum performance That when performed at moderate to high-intensity Lifestyle risk factors should be addressed Enables your heart to beat faster In order that you can be blessed Your lungs to work harder With a cardiovascular system Maximising the blood’s intake of oxygen That functions without a problem And the efficiency of your cardiovascular system Organisations like the British Heart Foundation YOUR HABITS – many people have a tendency Together with people right across the medical profession Towards smoking to any degree Not least your family and friends – all have the intention Or maybe just passively To see that you will be hale and hearty And drinking alcohol excessively Using drugs unless prescribed professionally Cardiovascular disease continues to affect and kill Any of these may impair your heart permanently Countless people in the UK and likely will Continue doing so until Give up before the heart gives up on you Everybody plays their part Subsequently you will never rue In having a BODY with a good heart The day that this decision was made Helping you to much better evade J D Milaric Succumbing to heart disease 07.03.2014 Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 7

page 6 – Patient Focus Autumn 2014

Royal Brompton redevelopment update – show your support

In November 2013, the Trust announced demand, treat more patients and save a major redevelopment of Royal more lives. Brompton Hospital, which will enable ¼ Create a better environment for our expert clinicians to continue “Advances in modern patients providing world-class healthcare from medicine and surgery, With up to 30 per cent more hospital new state-of-the-art facilities. particularly in critical care, space, there will be more single, en- The plan is to consolidate all services suite rooms reducing the risk of onto a single site in Sydney Street. mean that the amount of infection, and providing greater privacy Currently, services are provided in four space we need around the for seriously ill patients and their buildings, which is not the right visitors. environment to deliver 21st century bedside for life support ¼ patient care. Remove obstacles to better patient equipment has increased care We are now entering the next stage of dramatically. Working in Patients will no longer be transported this process and are gathering support our current facilities makes between buildings by ambulance from patients, residents, Trust members because all our services will be and other key stakeholders. this a real challenge.” together on a single Sydney Street site. Why do we need a new Specialist equipment, such as scanners, Cliff Morgan will be next to clinical services rather hospital? than split across multiple sites in Clinical director, critical care Chelsea. ¼ Increasing demand and anaesthesia Over the last five years, the Trust has ¼ Maximise innovation, research and seen a growth of 23 per cent in education inpatient admissions and 24 per cent in Royal Brompton has a world-leading outpatient attendances. reputation for innovation, research and ¼ Better environment for all education. Modern facilities will ensure Many of our buildings are no longer we keep up with advances in seriously ill patients. One of our suitable for modern hospital services technology, treatments and care, and scanners is in a mobile unit in the and healthcare and they cannot guarantee we can recruit, develop and hospital car park. support new technological advances in retain the best medical professionals. patient care. Additionally, they are A new and improved Professor Timothy Evans, Trust medical becoming prohibitively expensive to hospital will enable us to: director, explains: “We cannot carry on as run and maintain. ¼ Treat more patients and save more we are. We owe it to patients to ensure ¼ Multiple sites lives they receive the best possible care now, Currently, services are split across There will be additional inpatient beds, and in the future. I hope you will support multiple Chelsea sites causing and almost double the number of us in seeking to improve patient care for discomfort and inconvenience for operating theatres, so that we can meet generations to come.”

Cramped wards mean little privacy Modern, single room with en-suite Our Now vision Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 8

Patient Focus Autumn 2014 – page 7

Accommodating modern bedside technology is challenging State-of-the-art critical care environment Our Now vision

One of our scanners is in a mobile unit in the car park State-of-the-art scanners next to clinical services Our Now vision

“As a parent of a child with a life-threatening respiratory illness, I support Royal Brompton’s proposals. A better environment overall will benefit so many families like mine who need round-the-clock care and support. These plans will create a state-of- the-art hospital and that will mean better care for my child.”

Caroline Cartellieri Parent of patient Our future, your care

Building a better Royal Brompton for heart and lung patients

Support us Tel: 0800 881 5442 (Freephone) Support us to deliver a new and improved hospital Email: [email protected] for patients and for future generations. Website: www.ourfutureyourcare.org Contact us to: Follow us on Twitter: @RBandH ¼ Register your support There will be a public consultation event later in the year. ¼ Receive more information Please visit our website for further information – www.rbht.nhs.uk or www.ourfutureyourcare.org ¼ Volunteer to help Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 9

page 8 – Patient Focus Autumn 2014

Trust surgeon appointed president of Royal Society of Medicine

Mr Babulal Sethia, consultant congenital He added: “I am hoping the RSM can heart surgeon, was officially appointed lead the way in moving medicine beyond president of The Royal Society of the traditional ‘silos’ where each Medicine (RSM) at an inauguration specialty area focuses on its own ceremony in London on 15 July. interests.”

Commenting on his prestigious Mr Sethia, who has been at Royal appointment, Mr Sethia said: “I’m Brompton since 1999, is widely extremely privileged to be named published as an international expert on president of such an important congenital heart disease in children and institution, which is at the forefront of adults, and regularly lectures to postgraduate medical education in the clinicians all over the world. UK. I hope that my experience will serve For the past 15 years, Mr Sethia has also the organisation well in the coming been passionate about volunteering his years.” time and expertise abroad, including During his three-year presidency, Mr with the charity, Chain of Hope, founded Sethia aims to build on the RSM’s cross- by former Trust colleague and Harefield disciplinary work and focus on transplant surgeon, Professor Sir Magdi developing partnerships with other Yacoub. Professor Yacoub was also healthcare and educational honoured at the ceremony, receiving an organisations. RSM fellowship. School students showcase heart genetics findings

In September 2014, two pupils from gene, which plays an important role in Kingsdale Foundation School in South heart muscle structure and function, and London spent a week as public what we understand so far of its engagement assistants in our National relevance in DCM patients. They also met Institute for Health Research (NIHR) genetics researchers and had a go at cardiovascular biomedical research unit some of the interactive activities on (cBRU). Saskia Cole and Annie Hines, offer, including having a heart painted on both aged 15, worked alongside Julia their hands and taking part in the Coffey, cBRU public engagement co- magnetic chromosome challenge. ordinator, to gain experience in bringing Julia Coffey was very impressed with the science and clinical research to public work Saskia and Annie put into their audiences. placement: “They asked the researchers Their job for the week was to find out some really excellent questions and they about our research into the genetics of should be really proud of what they dilated cardiomyopathy (DCM), a heart achieved on their work experience in condition that affects the heart muscle such a short time. We wish them all the causing it to weaken and pump less best in their future careers.” efficiently. They interviewed some of the Saskia said: “We had lots of fun and researchers and clinicians involved and, learnt a lot – we had a great sense of at the end of the week, Saskia and Annie achievement putting on the display at helped put on a display for patients, the end of the week.” public and staff in Royal Brompton’s Annie said: “I enjoyed the interviews and reception area, showcasing their finding out about Titin, seeing the findings. scanner and touring round the lab where The exhibit proved very popular. Visitors DNA samples from patients can now be to the display found out about the sequenced for over 100 genes in two importance of mutations in the Titin weeks – amazing!” Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 10

Patient Focus Autumn 2014 – page 9

First patient and public day at Harefield Hospital primary angioplasty conference

The eighth annual primary angioplasty A live case on the big screen during the conference conference took place at Harefield Hospital for three days in September and, for the first time, the final day of the conference was dedicated to patients and the public. Over 100 people attended – some local residents and some who had previously experienced care at Harefield. Attendees observed a filmed live angioplasty procedure (the treatment for a heart attack), carried out by Dr Rob Smith, consultant interventional cardiologist and course co-director. Dr Smith and Dr Miles Dalby, clinical lead and course director explained the procedure in detail. In addition, a range of speakers explained what a heart attack is and why it occurs, the day “fascinating”. Mr Hope said: time, a whole day was set aside for the the vital importance of fast treatment and “Harefield is a fantastic hospital and I most important person in all of this – the how this is provided, new clinical research had great care here. The day has been patient. There was standing room only involving patients and treatments before incredibly informative.” so it has proved extremely popular. This and after a heart attack. reflects the importance of actively Dr Dalby commented: “This live course During the lunch break, attendees were engaging patients in the care we aims to follow the entire 'patient given advice and practised CPR deliver.” journey' for heart attack patients. As in techniques on a dummy. previous years, the course focuses on There are plans to repeat the patient and Sid Hope, a former patient at Harefield the ambulance services and hospital public day at next year’s primary and his wife, Lorraine, said they found teams. However, this year, for the first angioplasty conference.

Trust gene therapy trial for left ventricular assist devices

In August, a gene therapy trial for left Dr Banner carried out the first infusion in therapy might be possible, even in ventricular assist device (LVAD) patients the trial. He explained: “The rationale for patients with advanced heart failure.” at Harefield, led by consultant this study is to investigate the The new trial, led by Imperial College cardiologists, Dr Nick Banner and Dr effectiveness of a new form of therapy, London and funded by the British Heart Alexander Lyon, began. An LVAD is a which might, in the future, be a viable Foundation and Celladon Corporation, is mechanical pump that is used to support alternative to transplantation. This study the first study of gene therapy in this the function and blood flow of a failing will help us better understand whether patient group. heart. the concept of repairing a heart with gene The research team plans to evaluate how this therapy works in patients with advanced heart failure who are fitted with LVADs. The 24 patients, recruited from Harefield and Papworth hospitals, will either be treated with the gene therapy or with a placebo. This trial complements the ongoing CUPID2 gene therapy trial, involving less advanced heart failure patients from Royal Brompton, which began last year. Dr Lyon is the UK principal investigator for CUPID2.

The LVAD team with Dr Nick Banner (far left) and the first patient to receive an infusion, Lee Adams, in grey Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 11

page 10 – Patient Focus Autumn 2014 Charity opens new fundraising hub

Royal Brompton & Harefield Hospitals ¼ Would like to buy some Charity Charity opens its new fundraising hub in merchandise including Brompton mid November. Bears, t-shirts, wristbands and The hub is situated opposite the café in Christmas cards. the Sydney Street wing of Royal The Royal Brompton & Harefield Brompton Hospital. Hospitals Charity operates Please pop along to the hub and have a independently of the foundation trust to chat with our Royal Brompton community raise money to support carefully and events fundraiser, Alice Eastwood, if: selected projects that are not eligible for NHS funding. These projects broadly ¼ You are interested in holding a This will combine complex imaging include medical research, medical fundraising event equipment in an environment where equipment, and patient and staff different surgical procedures can take ¼ Are thinking about taking on a amenities. place at the same time, so that a number challenge in aid of the Charity Currently, the Charity is raising money of procedures that would normally take ¼ Could spare some time to volunteer to build a state-of-the-art hybrid numerous appointments can be done on with the community fundraising team operating theatre at Royal Brompton. the same day. Charity events for your diary: Santa dash Date and time: Christmas carol Date and time: Sunday 7 December, 11am Thursday 11 December, The perfect way to get into concert 6.30pm-8.30pm the Christmas spirit and a fun Venue: With a mix of well-known event for all the family to Lido, carols, celebrity readings and Venue: enjoy! St Paul’s Church, Onslow Price: songs from the Holy Trinity Square, South Kensington Sponsorship for this event is £20 adults / £10 children Brompton and “Singing for not essential, but any (5-14 years of age) – includes Breathing” choirs, this Price: donations over and above the a free Santa suit! evening event is not to be £20 adults / £10 children entrance fee will be greatly missed. Afterwards, we’ll be appreciated. All money raised gathering for mulled wine, will contribute to the mince pies and a chat. All Harefield Heart and Lung proceeds will go towards the Appeal. Royal Brompton Hybrid Theatre Appeal. If you would like to enter, please contact Desiree For tickets, please contact Zimmerman: Alice Eastwood: [email protected] [email protected] or or telephone 01895 828 820. 020 7352 8121, ext 2210. New patient and public parking available at Harefield Hospital

In response to the growing number of made; the parking area behind the parking spaces for staff and visitors have concerns raised over patient parking Friends’ refreshment pavilion will revert been made available elsewhere in the availability, new arrangements have been to patient-only parking. Additional grounds. Patient Focus Autumn 2014.qxd:Layout 1 06/11/2014 16:11 Page 12

Patient Focus Autumn 2014 – page 11 Diary dates

TRUST EVENTS Contact: Karen, Annabelle or Jenni in ¼ 29 April 2015 the arts team before your first Breatheasy support groups Time: 10.00am-12.00pm session for more information, and to These groups provide opportunities make sure the class is running as Venue: Royal Brompton Hospital, for local residents and their carers usual – or to buy the Singing for Board Room living with chronic lung conditions to Breathing CD. join informal, friendly discussions. ¼ 20 May 2015 Email: [email protected] Presentations are made by members Time: 10.30am-1.00pm of Royal Brompton Hospital’s chronic Tel: 020 7351 4087 obstructive pulmonary disease Web: www.rbht.nhs.uk/arts Venue: Harefield Hospital, (COPD) team with guest speakers Concert Hall from both inside and outside ¼ 29 July 2015 the Trust. Date and time: Time: 2.00pm-4.00pm Held on the first Tuesday of MEMBERSHIP EVENTS Venue: Royal Brompton Hospital, every month at 2.00pm. Annual members’ meeting Board Room Venue: Date: ¼ 30 September 2015 Education Centre, Respiratory Wednesday 22 July 2015 Clinical Research Facility, 1st floor, Time: 10.30am-1.00pm Fulham wing, Royal Brompton. Venue and time: To be confirmed Venue: Harefield Hospital, Contact: Rebecca Tanner, clinical Concert Hall research physiotherapist If you would like to attend a member ¼ 28 October 2015 Email: [email protected] event or want more information, Tel: 020 7351 8029 please contact: Time: 2.00pm-4.00pm Philippa Allibone, membership Venue: Royal Brompton Hospital, manager Board Room Email: [email protected] ¼ 25 November 2015 Time: 10.30am-1.00pm Singing for Breathing Member events are advertised on the The sessions are aimed at those with Trust website: Venue: Harefield Hospital, respiratory conditions, or www.rbht.nhs.uk/members and on Concert Hall breathlessness associated with Twitter: @RBandH cardiac conditions, and are relaxed, informative and fun. They aim to teach basic singing techniques, which can help with breath- management and release stress. COUNCIL OF TRUST BOARD MEETINGS GOVERNORS’ MEETINGS ROYAL BROMPTON HOSPITAL: Members of the public are welcome Open workshop for all patients to attend. ¼ 24 February 2015 (except those attending Foulis Ward) ¼ 26 November 2014 Time: 11.00am-1.30pm Date and time: Time: 10.30am-1.00pm Every Monday, 2.00pm-3.00pm Venue: Royal Brompton Hospital, Board Room Venue: Venue: Harefield Hospital, Concert Hall The Quiet Room, Victoria Ward, 2nd ¼ 1 June 2015 floor, Fulham Wing, Royal Brompton ¼ 28 January 2015 Time: Hospital 11.00am-1.30pm HAREFIELD HOSPITAL: Time: 2.00pm-4.00pm Venue: Harefield Hospital, Concert Hall Open workshop for all patients Venue: Royal Brompton Hospital, Date and time: Board Room ¼ 22 July 2015 Every Tuesday, 3.30pm-4.30pm ¼ 1 April 2015 Combined council of governors’ AGM Venue: Time: 10.30am-1.00pm and members’ annual meeting Rehabilitation & therapies seminar room, 2nd floor, Venue: Harefield Hospital, Time: TBC Harefield Hospital Concert Hall Venue: TBC Patient FocusAutumn2014.qxd:Layout106/11/201416:10Page Useful contacts for Trust members ae1 PatientFocus Autumn2014 page– 12 í í TrustFoundation oa rmtnHsia,Sde tet odnS36P Tel:+44(0)2073528121 www.rbht.nhs.uk Harefield Hospital, Hill EndRoad,HarefieldUB96JH Royal BromptonHospital, Sydney Street, LondonSW3 6NP í í contacts useful Other í í Healthwatch í í í í Charity Hospitals Harefield & BromptonRoyal Email: 7571 8868 020 Tel: Crisp Ken Chairman: group support patient cardiology Harefield Website: Email: Tel: Unwin Brian Chairman: Club Transplant Harefield Website: Email: Tel: 1LH UB8 Pavilions, The Square,Market 26 Address: Email: 6771 / 7049 8968 020 Tel: Centre,Shaftesbury 25, Unit Address: Email: Tel: assistant Executive Email: Tel: manager communications and Marketing Email: Tel: fundraiser,HospitalCommunity Harefield Email: Tel: fundraiser,Hospital Community Brompton Royal Email: Tel: Lumley Anthony Contact: Email: Tel: Allibone Philippa Contact: Website: Corporate Secretariat Membership Office Re-Beat Harefield Hamsters Hillingdon Healthwatch – Kensington andChelsea Healthwatch – Karen Higgs Nick Fry Desiree Zimmerman Alice Eastwood 01494 472 470 472 01494 272997 01895 4269 ext 8121 7352 020 4267 ext 8121 7352 020 820 828 01895 2210 ext 8121 7352 020 8264 7351 020 2811 ext 8121 7352 020 [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] www.harefieldhamsters.org healthwatchcwl.co.uk/kensington-chelsea healthwatchhillingdon.org.uk/ 85 Barlby Road, London W10 6BN W10 London Road,Barlby 85 Follow usonTwitter @RBandH Tel: +44(0)18958237 í í í í í í í í í í intensive care unit and paediatric ward fund specific items specific fund ward paediatric and unit care intensive Website: Email: Tel: disease heart prenatal on information of source A Email: Email: 759 854 0800 Helpline: Tel: 2BN IP4 Ipswich Green,Margaret's St 25 Address: disease heart congenital with patients For Website: Email: 1000 373 0300 Helpline: Tel: Bromley,1BYRoad, BR1 KentLondon 11 Address: Email: Tel: Henderson Elizabeth Contact: Tel: Chapman Don Contact: Website: [email protected]: 9172494 0800 or 776 872 01270 Tel: Address: Website: Email: Helpline: Tel: York1DP 78 W1H Address: London Street, Website: Email: Tel: (chairman) Copeland Fiona Contact: Twitter: Facebook: Web: Email: 3TB SW6 London Road, Coniger 39 Address: LyndaContact: Mackie paediatric the help specificallyto is Appeal Octavia The Twitter: Facebook: Web: Email: Tel: EC2V7JN London Lane, Love 1 Address: Supportingfamilies ofchildren with heart and lung conditions The Brompton Fountain Tiny Tickers The SomervilleFoundation Cystic Fibrosis Trust Friends ofRoyal Brompton (volunteers) Friends ofHarefield Hospital(volunteers) Raynaud's & Scleroderma Association Duchenne Family SupportGroup Primary CiliaryDyskinesia(PCD)Group Friends ofRoyal Brompton The Octavia Appeal– 020 3286 1250 3286 020 007 252 01473 7211 8464 020 8272 7351 020 678 828 01895 0870 241 1857 241 0870 (helpline) 0122 111 0300 9000 7776 020 www.octaviaappeal.org www. [email protected] [email protected] [email protected] [email protected] [email protected] [email protected]

112Crewe Road, Alsager, Cheshire ST7 2JA www.tinytickers.org www.cftrust.org.uk www.raynauds.org.uk www.dfsg.org.uk www.pcdsupport.org.uk 0800 121 4518 121 0800 / /thebromptonfountain @OctaviaAppeal [email protected] @BromptonSupport #hereforyou [email protected] [email protected] OctaviaAppeal thebromptonfountain.org.uk (ansaphone only at weekends)at only (ansaphone

07.11.14