Extensions of Remarks E1042 HON. LEE TERRY HON. EMANUEL

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Extensions of Remarks E1042 HON. LEE TERRY HON. EMANUEL E1042 CONGRESSIONAL RECORD — Extensions of Remarks May 14, 2007 Board of Directors, Children’s Theater of Dal- PERSONAL EXPLANATION good friend, LEE TERRY of Nebraska. We are las; Deacon, Royal Lane Baptist Church; and proud to have the support of over 80 other bi- the St. Marks Boy Scouts. Through these or- HON. EMANUEL CLEAVER partisan members of Congress today as origi- ganizations, Sue touched the lives of count- OF MISSOURI nal co-sponsors of this important legislation. less individuals. IN THE HOUSE OF REPRESENTATIVES Amyotrophic Lateral Sclerosis (ALS) is a fatal, progressive neurodegenerative disease Monday, May 14, 2007 A devoted mother of three, Sue also con- that affects motor nerve cells in the brain and sistently showed her love for God and others. Mr. CLEAVER. Madam Speaker, I was un- spinal cord. While the great baseball player, She delicately balanced the rigors of profes- avoidably detained for Rollcall votes 337 Lou Gehrig, put a national face on ALS over sional life with the demands of caring for their through 341 held on Thursday, May 10, 2007, 65 years ago, my own family was personally family; yet, she still made time for friends. beginning with Rollcall 337. affected when my grandmother, Dora Engel, Madam Speaker, it is a great honor for me Madam Speaker, had I been present, I was diagnosed with the fatal disease and would have cast the following votes on H.R. to rise today to pay tribute to a lady who faith- passed away when she was only in her 50s. 2082: to authorize appropriations for fiscal fully served her community with dedication Unfortunately, families across the Nation face year 2008 for intelligence and intelligence-re- the challenges and experience the suffering and integrity. Sue Sarilyn Washington will be lated activities of the United States Govern- associated with ALS every single day. 5,600 sorely missed in North Texas. ment, the Community Management Account, people in the U.S. are diagnosed with ALS and the Central Intelligence Agency Retire- each year, and it is estimated that as many as f ment and Disability System, and for other pur- 30,000 Americans have the disease at any poses. On passage Passed by recorded vote: given time. The average life expectancy for a INTRODUCTION OF THE ALS 225–197 (rollcall No. 341). I would have voted person with ALS is two to five years from the REGISTRY ACT OF 2007 ‘‘yes.’’ time of diagnosis. The causes of ALS are not Madam Speaker, had I been present for the well understood and there is no known cure. motion to recommit with instructions, rollcall We must provide hope to change this tragedy HON. LEE TERRY No. 340, I would have voted ‘‘no.’’ today. OF NEBRASKA Madam Speaker, had I been present for the Surprisingly, a single national patient reg- Schiff amendment rollcall No. 339, I would istry which collects and stores information on IN THE HOUSE OF REPRESENTATIVES have voted ‘‘yes.’’ the prevalence and incidence of ALS does not Monday, May 14, 2007 Madam Speaker, had I been present for the currently exist in the United States today. The Rogers (MI) amendment rollcall No. 338, I legislation I am re-introducing with Congress- Mr. TERRY. Madam Speaker, I rise today to would have voted ‘‘yes.’’ man TERRY, would build on a fiscal year 2006 acknowledge the introduction of The ALS Reg- Madam Speaker, had I been present for the Congressional appropriation which directed istry Act of 2007 by my colleague ELIOT ENGEL Hoekstra amendment rollcall No. 337, I would the Centers for Disease Control to evaluate of New York and myself. A similar bill intro- have voted ‘‘no.’’ the science to guide the creation of a national duced in the 109th Congress, H.R. 4033, gar- f ALS Registry. The Engel/Terry legislation will nered the support of 215 of our colleagues, create an ALS registry at the Centers for Dis- PAYING TRIBUTE TO JOYCE ease Control and Prevention and will aid in nearly 50 percent of the members of the HOLLAND the search for a cure to this devastating dis- House of Representatives. Today, we are ease. The registry will collect data concerning: joined by 80 additional original cosponsors in HON. JON C. PORTER the incidence and prevalence of ALS in the this effort. OF NEVADA United States; the environmental and occupa- Amyotrophic Lateral Sclerosis (ALS) is a IN THE HOUSE OF REPRESENTATIVES tional factors that may contribute to the dis- fatal, progressive, neurodegenerative disease Monday, May 14, 2007 ease; the age, race or ethnicity, gender and family history of individuals diagnosed; and affecting motor nerve cells in the brain and Mr. PORTER. Madam Speaker, I rise today spinal cord. Approximately 5,600 people in the other information essential to the study of to honor Ms. Joyce Holland, a registered ALS. The information gained from the ALS U.S. are diagnosed with ALS, also known as nurse, who is a distinguished and devoted Lou Gehrig’s Disease, each year. It is esti- registry will also strengthen a disease clear- professional in her field. inghouse’s ability to put patients in contact mated that as many as 30,000 Americans In 1992, Joyce earned her associates de- with scientists conducting clinical trials and have the disease. The average life expectancy gree in Nursing. She later joined the nursing scientists studying the environmental and ge- for a person with ALS is 2 to 5 years from the staff of Boulder City Hospital as a registered netic causes of ALS. time of diagnosis. There is no known cure for nurse/medical decision support coordinator in We need to provide our Nation’s research- ALS. 2000. Joyce served as RN/MDS Coordinator ers and clinicians with the tools and informa- There is currently no single national patient for 6 years before retiring in 2006. After a brief tion they need to make progress in the fight registry which collects and stores information retirement, Joyce returned to Boulder City against ALS. The data made available by a on the prevalence and incidence of ALS in ex- Hospital in 2007 as the long term care direc- national registry will potentially allow scientists istence in the United States. The establish- tor, the position she holds today. Throughout to identify causes of the disease, and maybe her career at Boulder City Hospital, Joyce’s ment of a national registry will help identify the even lead to the discovery of new treatment, high degree of professionalism and enduring occurrence and frequency of ALS and other a cure for ALS, or even a way to prevent the compassion have earned her the respect of motor neuron disorders and collect data which disease in the first place. This is good public her colleagues and have made her invaluable is badly needed for ALS research, disease policy. to her patients. The establishment of a registry will bring management and the development of stand- Madam Speaker, I am proud to honor Joyce new hope to thousands of patients and their ards of care in order to significantly enhance Holland. Her passion and her love of nursing families that ALS will no longer be a death the nation’s efforts to find a treatment and have improved the lives of countless patients sentence. I strongly urge the swift consider- cure for ALS. in Las Vegas. I thank her for her dedication ation and passage of the ALS Registry Act of All diseases bring hardships on those af- and commitment to the community and wish 2007. flicted, but ALS is particularly cruel in the her the best in her future endeavors. f quickness of the onset, the severity of the f RECOGNIZING JEREMY ALLEN symptoms and the fatal nature of the condi- INTRODUCTION OF THE ALS PATANIA FOR ACHIEVING THE tion. The provisions in our bill creating a na- REGISTRY ACT OF 2007 RANK OF EAGLE SCOUT tionwide registry for persons afflicted with ALS are important steps forward in strengthening the efforts to understand, treat and one day HON. ELIOT L. ENGEL HON. SAM GRAVES OF NEW YORK eradicate this terrible disease. I urge my col- OF MISSOURI IN THE HOUSE OF REPRESENTATIVES IN THE HOUSE OF REPRESENTATIVES leagues to support and cosponsor the ALS Registry Act and I am proud to join my friend Monday, May 14, 2007 Monday, May 14, 2007 Mr. ENGEL in bringing forward this important Mr. ENGEL. Madam Speaker, I rise to re-in- Mr. GRAVES. Madam Speaker, I proudly legislation. troduce the ALS Registry Act of 2007 with my pause to recognize Jeremy Allen Patania, a VerDate Aug 31 2005 05:20 May 15, 2007 Jkt 059060 PO 00000 Frm 00010 Fmt 0626 Sfmt 9920 E:\CR\FM\A14MY8.035 E14MYPT1 mstockstill on PROD1PC66 with REMARKS May 14, 2007 CONGRESSIONAL RECORD — Extensions of Remarks E1043 very special young man who has exemplified IN RECOGNITION OF JOSEPH A. PAYING TRIBUTE TO SUZANNE the finest qualities of citizenship and leader- DART, PRESIDENT OF MASSA- LICHNER ship by taking an active part in the Boy Scouts CHUSETTS BUILDING TRADES of America, Troop 857, and in earning the COUNCIL, AFL–CIO most prestigious award of Eagle Scout. HON. JON C. PORTER Jeremy has been very active with his troop, OF NEVADA participating in many scout activities. Over the HON. STEPHEN F. LYNCH IN THE HOUSE OF REPRESENTATIVES years Jeremy has been involved with scouting, OF MASSACHUSETTS he has not only earned numerous merit Monday, May 14, 2007 IN THE HOUSE OF REPRESENTATIVES badges, but also the respect of his family, Mr. PORTER. Madam Speaker, I rise today peers, and community. Monday, May 14, 2007 to honor Ms.
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