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Precision Medicine Initiative: Building a Large US Research Cohort

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Precision Medicine Initiative: Building a Large US Research Cohort Precision Medicine Initiative: Building a Large U.S. Research Cohort February 11-12, 2015 PARTICIPANT LIST Goncalo Abecasis, D. Phil. Philip Bourne, Ph.D. Professor of Biostatistics Associate Director for Data Science University of Michigan, Ann Arbor Office of the Director National Institutes of Health Christopher Austin, M.D. Director Murray Brilliant, Ph.D. National Center for Advancing Translational Sciences Director National Institutes of Health Center for Human Genetics Marshfield Clinic Research Foundation Vikram Bajaj, Ph.D. Chief Scientist Greg Burke, M.D., M.Sc. Google Life Sciences Professor and Director Wake Forest School of Medicine Dixie Baker, Ph.D. Wake Forest University Senior Partner Martin, Blanck and Associates Antonia Calafat, Ph.D. Chief Dana Boyd Barr, Ph.D. Organic Analytical Toxicology Branch Professor, Exposure Science and Environmental Health Centers for Disease Control and Prevention Rollins School of Public Health Emory University Robert Califf, M.D. Vice Chancellor for Clinical and Translational Research Jonathan Bingham, M.B.A. Duke University Medical Center Product Manager, Genomics Google, Inc. Rex Chisholm, Ph.D. Adam and Richard T. Lind Professor of Medical Eric Boerwinkle, Ph.D. Genetics Professor and Chair Vice Dean for Scientific Affairs and Graduate Studies Human Genetics Center Associate Vice President for Research University of Texas Health Science Center Northwestern University Associate Director Human Genome Sequencing Center Rick Cnossen, M.S. Baylor College of Medicine Director Global Healthcare Solutions Erwin Bottinger, M.D. HIMSS Board of Directors Professor PCHA/Continua Health Alliance Board of Directors The Charles Bronfman Institute for Personalized Intel Corporation Medicine Icahn School of Medicine at Mount Sinai - 1 - Francis Collins, M.D., Ph.D. Mark Gardner, M.B.A. Director General Manager, Next Generation Sequencing National Institutes of Health Thermo Fisher Scientific Rory Collins, F.MedSci. J. Michael Gaziano, M.D., M.P.H. Professor Scientific Director, MAVERIC CTSU VA Boston Healthcare System Nuffield Department of Population Health University of Oxford Gary Gibbons, M.D. Director Gwen Collman, Ph.D. National Heart, Lung and Blood Institute Director National Institutes of Health Division of Extramural Research and Training National Institute of Environmental Health Sciences Geoffrey Ginsburg, M.D., Ph.D. National Institutes of Health Director Duke Center for Applied Genomics and Precision Joshua Denny, M.D. Medicine Associate Professor Duke University School of Computing Vanderbilt University Maria Giovanni, Ph.D. Director Stephanie Devaney, Ph.D. Office of Genomics and Advanced Technologies Science Policy Analyst National Institute of Allergy and Infectious Diseases Office of the Director National Institutes of Health National Institutes of Health David Goldstein, Ph.D. James Doroshow, M.D. Director Deputy Director for Clinical and Translational Research Institute for Genomic Medicine National Cancer Institute Columbia University Medical Center National Institutes of Health Eric Green, M.D., Ph.D. Andrea Downing Director Patient Advocate National Human Genome Research Institute Brave Bosom National Institutes of Health Karen Emmons, Ph.D. Alan Guttmacher, M.D. Vice President, Director Director Kaiser Foundation Research Institute Eunice Kennedy Shriver National Institute of Child Health and Human Development Cartier Esham, Ph.D. National Institutes of Health Executive Vice President Emerging Companies Section Richard Hodes, M.D. Biotechnology Industry Organization Director National Institute on Aging Douglas Fridsma, M.D., Ph.D. National Institutes of Health President and Chief Executive Officer American Medical Informatics Association Kathy Hudson, Ph.D. Deputy Director for Science, Outreach, and Policy Office of the Director National Institutes of Health - 2 - Thomas Insel, M.D. David Ledbetter, Ph.D. Director Executive Vice President and Chief Scientific Officer National Institute of Mental Health Geisinger Health System National Institutes of Health Richard Lifton, M.D.. Ph.D. Cashell Jaquish, Ph.D. Chairman and Sterling Professor Program Director Department of Genetics National Heart, Lung and Blood Institute Yale School of Medicine/Howard Hughes Medical National Institutes of Health Institute Sekar Kathiresan, M.D. Alexander MacGillivray, J.D. Director, Preventive Cardiology U.S. Deputy Chief Technology Officer Broad Institute Office of Science and Technology Policy Massachusetts General Hospital The White House Dave Kaufman, Ph.D. Allison Mandich, M.S. Program Director Special Assistant to the Director National Human Genome Research Institute National Human Genome Research Institute National Institutes of Health National Institutes of Health Sachin Kheterpal, M.D., M.B.A. Teri Manolio, M.D., Ph.D. Principal Investigator Director Multicenter Perioperative Outcomes Group Division of Genomic Medicine Associate Professor of Anesthesiology National Human Genome Research Institute University of Michigan Medical School National Institutes of Health Harlan Krumholz, M.D., S.M. Elizabeth Mansfield, Ph.D. Professor of Medicine Deputy Office Director for Personalized Medicine YNHH/Center for Outcomes Research and Evaluation Office of In Vitro Diagnostics and Radiological Health Yale University Center for Devices and Radiological Health U.S. Food and Drug Administration Santosh Kumar, Ph.D. Director Elliott Margulies, Ph.D. Center of Excellence for Mobile Sensor Data-to- Director, Scientific Research Knowledge (MD2K) Illumina Associate Professor of Computer Science Department of Computer Science Daniel Masys, M.D. University of Memphis Affiliate Professor, Biomedical and Health Informatics University of Washington, Seattle Eric Lander, Ph.D. Director Matthew Might, Ph.D. Broad Institute NGLY1.org Michael Lauer, M.D. Sumitra Muralidhar, Ph.D. Director Senior Scientific Program Manager, Genomic Medicine Division of Cardio Vascular Sciences Million Veteran Program National Heart, Lung, and Blood Institute U.S. Department of Veterans Affairs National Institutes of Health - 3 - David Murray, Ph.D. Bray Patrick-Lake, M.F.S. Associate Director for Prevention and Director Director of Stakeholder Engagement Office of Disease Prevention Clinical Trials Transformation Initiative National Institutes of Health Duke Translational Medicine Institute Wendy Nilsen, Ph.D. Roderic Pettigrew, Ph.D., M.D. Health Scientist Administrator Director Office of Behavioral and Social Sciences National Institute of Biomedical Imaging and National Institutes of Health Bioengineering National Institutes of Health Lucila Ohno-Machado, M.D., Ph.D. Professor and Chief Russell Pinard, O.D. University of California, San Diego Science and Technology Division Chief Research, Development and Acquisition Directorate Timothy O’Leary, M.D., Ph.D. Defense Health Agency Chief Research and Development Officer, Veterans Health Affairs Ronald Przygodzki, M.D. U.S. Department of Veterans Affairs Acting Director, Biomedical Labs Research and Development Sally Okun, R.N, MMHS Associate Director Vice President Advocacy, Policy and Patient Safety Genomic Medicine Program PatientsLikeMe U.S. Department of Veterans Affairs Michael O’Reilly, M.D. William Riley, Ph.D. Vice President, Medical Technologies Acting Director Apple Computer and Clinical Professor, Anesthesiology Office of Behavioral and Social Sciences Research Apple Computer/Stanford University Office of the Director National Institutes of Health P. Pearl O'Rourke, M.D. Director, Human Research Affairs Neil Risch, Ph.D. Partners HealthCare Systems Director Institute for Human Genetics James Ostell, Ph.D. University of California, San Francisco NIH Distinguished Investigator Chief Dan Roden, M.D. Information Engineering Branch Assistant Vice-Chancellor for Personalized Medicine National Center for Biotechnology Information School of Medicine National Library of Medicine Vanderbilt University National Institutes of Health Laura Lyman Rodriguez, Ph.D. DJ Patil, Ph.D. Director Office of the Director Division of Policy, Communications, and Education National Institutes of Health National Human Genome Research Institute National Institutes of Health Kevin Patrick, M.D., M.S. Professor and Director Tania Simoncelli, M.S. Center for Wireless and Population Health Systems Assistant Director for Forensic Science and Biomedical The Qualcomm Institute/Calit2 Innovation University of California, San Diego Office of Science and Technology Policy The White House - 4 - Jack Smith, M.D., MMM Anne Wojcicki Director, Clinical and Program Policy Integration Chief Executive Officer and Co-Founder Office of the Assistant Secretary of Defense (Health 23andme Affairs) U.S. Department of Defense Brian Wolf, M.D., Ph.D. Chair Louis Staudt, M.D., Ph.D. Department of Biomedical and Health Informatics Director Chief Information Officer Center for Cancer Genomics The Children's Hospital of Philadelphia National Cancer Institute National Institutes of Health Carrie Wolinetz, Ph.D. Associate Director for Science Policy Sharon Terry, M.A. National Institutes of Health President and Chief Executive Officer Genetic Alliance George D. Yancopoulos, M.D., Ph.D. President Peter Tippett, M.D., Ph.D. Research Laboratories and CSO Vice President and Chief Medical Officer Regeneron Pharmaceuticals, Inc. Verizon Kevin Volpp, M.D., Ph.D. Director Center for Health Incentives and Behavioral Economics Leonard Davis Institute University of Pennsylvania Richard M. Weinshilboum, M.D. Professor of Pharmacology and Medicine Mayo Clinic-Mayo Medical School Mayo Clinic Paul Jonathan White, M.D. Office of the National Coordinator for Health IT Agency for Healthcare Research and Quality John Wilbanks Chief Commons Officer Sage Bionetworks FasterCures Marc Williams, M.D. Director Genomic Medicine Institute Geisinger Health System Claudia Williams, M.S. Senior Advisor, Health Innovation and Technology Office of Science and Technology Policy The White House - 5 - .
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