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Tourette World Congress Preliminary Material 2015.Indd 1st World Congress on ToureƩ e Syndrome and Tic Disorders June 24-26, 2015 London, UK ISBN: 978-2-88919-669-2 doi: 10.3389/978-2-88919-669-2 The text of the abstracts is reproduced as submiƩ ed. The opinions and views expressed are those of the authors and have not been verifi ed by the meeƟ ng Organisers, who accept no responsibility for the statements made or the accuracy of the data presented. ToureƩ e World Congress 1 Thank You To Our Sponsors And Supporters Gold Sponsor Bronze Sponsors Media Sponsor Supporters ToureƩ e World Congress 3 1st World Congress on ToureƩ e Syndrome and Tic Disorders This volume holds abstracts from the 1st World Congress on Tourette Syndrome and Tic Disorders which took place on June 24-26, 2015, in London UK, hosted by the Tourette Association of America (TAA), the European Society for the Study of Tourette Syndrome (ESSTS), Tourettes Action-UK (TA) and other global partners. This event was the fi rst-ever global summit for Tourette Syndrome, bringing together world experts with the common goals of 1) sharing state of the art knowledge, 2) advancing our understanding of the pathophysiology of Tourette Syndrome, 3) working towards improved management of Tourette Syndrome, and 4) strategizing on increasing advocacy for and on behalf of people living with Tourette Syndrome and related disorders. Tourette Syndrome (TS) is a common, albeit often misdiagnosed disorder, with a reported prevalence of 0.4-1%. It is part of a spectrum of childhood-onset neurodevelopmental conditions referred to as Tic Disorders. The core features of these conditions, which affect both children and adults, are motor and vocal tics: sudden, uncontrollable repetitive movements and/or sounds (e.g. head bobbing, arm jerking, shoulder shrugging and grunting). Related features, such as Obsessive Compulsive Disorder (OCD), Attention Defi cit Hyperactivity Disorder (ADHD) and learning diffi culties, are very common in individuals with TS and Tic Disorders and often cause more impairment than the do the tics themselves. Symptoms in Tic Disorders can range from mild to severe and, in some cases can be debilitating, markedly reducing quality of life. The etiology of the disorder remains elusive and is clearly complex, with multiple genes interacting with environmental factors to lead to the onset of symptoms. At the same time, while some treatments are available for people with TS and other Tic Disorders, approaches to care are inconsistent around the world, medications are often ineffective and there is no cure. Over the past few years, we have witnessed exciting developments not just in the understanding of the neurobiology and treatment of TS, but also in international collaborations for TS research and advocacy, such as the international DBS registry and the European Multicentre Tics in Children Study (EMTICS). Vibrant multi-national research networks for TS have been established and national patient groups have started joining forces to support the mission of outreach and education for TS around the world. These collaborative efforts inspired the 1st World Congress on Tourette Syndrome and Tic Disorders. More than 430 research scientists, physicians, neurosurgeons, psychologists, social workers and other experts from 38 countries and six continents gathered in London and discussed on all facets of TS research, including drug development, genetics, comorbid conditions, surgical therapies and behavioral treatments for children and adults. This unprecedented global assembly marked the fi rst time a collective forum of such size and signifi cance has ever been convened to explore means of improving the lives of people affected by these neurodevelopmental conditions. Leading experts in the fi eld laid the foundation for a new global workforce focused on TS and Tic Disorders research, presenting 185 scientifi c abstracts and 161 posters with important discoveries and developments that have the potential to change our understanding and ability to treat these conditions. We are grateful to the TS global community of researchers for their enthusiastic response and we are certain that this was the fi rst of many such gatherings. We share with you the aim of improving the lives of families and individuals affected by TS through research, clinical care, and advocacy. The co-chairs of the Scientifi c Program Committee Carol A. Mathews, University of Florida, USA Jeremy Stern, St George’s Hospital, UK Peristera Paschou, Democritus University of Thrace, Greece CommiƩ ees Organizing Committee Scientifi c Program Committee Davide Martino, M.D., Ph.D. (UK) Kevin McNaught, Ph.D.* Carol A. Mathews, M.D. (USA)* Kevin McNaught, Ph.D. (USA) Suzanne Dobson* Peristera Paschou, Ph.D. (Greece)* Jonathan Mink, M.D., Ph.D. (USA) Renata Rizzo M.D., Ph.D.* Jeremy Stern, F.R.C.P. (UK)* Kirsten Mueller-Vahl, M.D. (Germany) Michelle Gutmann Alan Apter, M.D. (Israel) Tanya Murphy, M.D. (USA) Marc Scullin, M.A. Kevin Black, M.D. (USA) Michael Okun, M.D. (USA) * Co-chairs Nicole Calakos, M.D., Ph.D. (USA) Renata Rizzo, M.D., Ph.D. (Italy) Stanley Fahn, M.D. (USA) Paul Sandor, M.D. (Canada) Tamara Hershey, Ph.D. (USA) Jeremiah Scharf, M.D., Ph.D. (USA) Pieter Hoekstra, M.D., Ph.D. (The Zsanett Tarnok, Ph.D. (Hungary) Netherlands) Douglas Woods, Ph.D. (USA) Joseph Jankovic, M.D. (USA) 4 ToureƩ e World Congress Award Recipients The following awards were presented at the 1st World Congress on Tourette Syndrome and Tic Disorders: Dr. Oliver Sacks Award for Excellence in Tourette Syndrome, presented by the Tourette Association of America: • Jonathan W. Mink, University of Rochester, USA Jonathan W. Mink, MD PhD is the Frederick A. Horner M.D. Endowed Professor of Pediatric Neurology and Professor of Neurology, Neurobiology & Anatomy, Brain & Cognitive Sciences, and Pediatrics at the University of Rochester School of Medicine and Dentistry. He has an active basic research program that focuses on understanding the function of the basal ganglia in the control of movement and mechanisms of movement disorders due to basal ganglia disease. In addition to his basic work on basal ganglia physiology, he is engaged in clinical research on dystonia in children, Tourette syndrome, and Batten disease. Clinically, he specializes in pediatric movement disorders with special interests in dystonia and Tourette Syndrome. Dr. Mink has received teaching awards at both Washington University and the University of Rochester, and from the American Academy of Neurology. In 2002, Dr. Mink received the Derek Denny-Brown award from the American Neurological Association. Dr. Mink is Associate Editor of Neurology. Dr. Mink is co-chair of the scientifi c advisory board of the Tourette Association of America and serves on a number of medical and scientifi c advisory boards including the Batten Disease Support and Research Association and the Pediatric Neurotransmitter Disease Association. 2015 Professor Mary Robertson Award for Research Contribution, presented by the European Society for the Study of Tourette Syndrome: • Christos Ganos, University College London, UK for paper on “Beliefs and facts about tic inhibition in Gilles de la Tourette syndrome” Award for Best Oral Presentation by an Early Stage Researcher, presented by the European Society for the Study of Tourette Syndrome: • Caitlin Gauvin, Massachusetts General Hospital, USA for presentation on “Refi ning the Population Prevalence of Tourette Syndrome and Exploring Sources of Heterogeneity: The Clinical Importance of an Accurate Prevalence Estimate” • Juan Carlos Baldermann, Uniklinik Köln, Germany for presentation on “Effects of Deep Brain Stimulation in treatment-refractory Tourette Syndrome: A Meta-analysis” Award for Best Poster Presentation by an Early Stage Researcher, presented by the European Society for the Study of Tourette Syndrome: • John Alexander, Democritus University of Thrace for presentation on “Network analysis on Tourette Syndrome associated genes using genome wide data” • Jessica B. Lennington, Yale University School of Medicine for presentation on “Transcriptome Analysis of the Human Striatum in Tourette Syndrome” ToureƩ e World Congress 5 ScienƟ fi c Programme ScienƟ fi c Programme Wednesday, June 24Th Pre-Congress 7:15 - 9:00am Refreshments 8:00am - 5:30pm RegistraƟ on 9:00am - 5:30pm InternaƟ onal Deep Brain SƟ mulaƟ on MeeƟ ng Chair: Michael Okun, M.D. Global Advocacy Summit Co-Chairs: Suzanne Dobson, Jen Davis, Andrea Bonzini, Dr. Huei-Shyong Wang 9:00am - 3:00pm ESSTS & TS-EUROTRAIN Training Workshop: NeurotransmiƩ ers in TS Co-Chairs: Kirsten Mueller-Vahl, M.D. & Andrea Ludolph, M.D. 10:00am - 5:30pm Behavior Therapy Workshop Co-Chairs: Douglas Woods, Ph.D. & Cara Verdellen, Ph.D. 12:00 - 1:00pm Lunch 6:30 - 9:00pm Welcome RecepƟ on CONGRESS SESSIONS Thursday, June 25Th Session 1: EƟ ology GeneƟ cs, Environment & Epidemiology Co-Chairs: Pieter Hoekstra, M.D., Ph.D. & Jay Tischfi eld, Ph.D. 8:00 - 8:30am Plenary: Peristera Paschou, Ph.D. 8:30 - 9:00am Plenary: Jeremiah Scharf, M.D., Ph.D. 9:00 - 9:30am Plenary: Ma hew State, M.D. 9:30 - 9:50am Thomas Fernandez, M.D. 9:50 - 10:10am Caitlin Gauvin, BS 10:10 - 10:30am Break Session 2: Pathophysiology Neurophysiology, Imaging & Immunology Co-Chairs: Tamara Hershey, Ph.D. & Kirsten Mueller-Vahl, M.D. 10:30 - 11:00am Plenary: Bradley Schlaggar, M.D., Ph.D. 11:10 - 11:30am Susan Swedo, M.D. 11:30 - 11:50am Jessica Church, Ph.D. 11:50am - 12:10pm Marc Lavoie, Ph.D. 12:10 - 12:30pm Deanna Greene, Ph.D. 12:30 - 1:30pm Lunch & Poster Session 1 1:30 – 2:00pm Professor Mary Robertson Awardee Talk Speaker: Chris Ganos, M.D. 6 Toure Ʃ e World Congress ScienƟ fi c Programme 2:00 - 2:40pm Debate Session 1: Marijuana and TS Co-Chair: Joseph Jankovic, M.D. PRO: Kirsten Mueller-Vahl, M.D. CON: Paul Sandor, M.D. 2:40 - 3:10pm Break Session 3: Animal Studies Animal Models & Cellular Physiology Co-Chairs: Nicole Calakos, M.D., Ph.D.
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