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Aras Attracta Swinford Review Group What Matters Most.Pdf Colouring my choice I ask to choose to have the choice to paint with colours of my own voice, the turquoise sun I have selected, What matters most striped stars and spotted plants respected. The speed I paint – do not demand but with encouraged growth let my palette expand. Given the power to hold the brush so I may paint my own potential, my passion never told to hush, my picture exponential. Unique by design, equal in each degree, I ask you not to talk about, but to talk instead with me. Dignity deserved, preserve my independence and advocate that I may have the right to choose the colours with which I paint. Brigid O’Dea Report of the Áras Attracta Swinford Review Group July 2016 __ Following the broadcast of the Prime Time programme ‘Inside Bungalow 3’ by RTE, the Áras Attracta Swinford Review Group was established by the Health Service Executive to undertake an independent review of the quality of care being provided in Áras Attracta. The findings of the Review Group are presented over a series of three reports. What matters most sets out the findings of the Review Group in relation to Áras Attracta itself. It includes recommendations relating to Áras Attracta management, actions for the HSE at a national level, and a ‘road map’ to guide all managers of congregated settings as they move towards decongregation. Time for action deals with the wider system of service provision for people with a disability, and proposes a range of actions including 55 priority actions that emerged from a national process of consultation with stakeholders involved in disability services and the wider public. Start listening to us is a documented record of the lived experiences of people with intellectual disability and how they perceive the support they receive. What matters most Report of the Áras Attracta Swinford Review Group July 2016 i Published by: Áras Attracta Swinford Review Group © July 2016 Commissioned by: National Director, Social Care Division Feidhmeannacht na Seirbhíse Sláinte / Health Service Executive Dr Steevens’ Hospital Dublin 8 Phone: +353 (0)1 635 2000 Editorial and design consultants: Rédacteurs Limited, www.redact.ie. Printed in Ireland ii Foreword ‘Inside Bungalow 3’, an RTE Investigations Unit programme shown on Prime Time on 9 December 2014 will leave a lasting and indelible impression on anyone who viewed it. The programme focused on a situation where some of the most vulnerable people in our society, seven women with intellectual and physical disabilities living in a congregated residential setting, Áras Attracta, run by the Health Service Executive (HSE), were subjected to abuse. The footage shown had been taken by an undercover reporter working for RTE who had posed as a student care worker, and who had placed a hidden camera in Bungalow 3 for a number of months. Quite rightly public outcry ensued. Everyone with an intellectual disability has the right to the same opportunities as anyone else to live a satisfying and valued life, and to be treated with dignity and respect. They should be able to live in a place they call home, be able to develop and maintain relationships, and get the support they need to live healthy, safe and rewarding lives. As a society we are quite a long way from making that reality happen and for some years to come we may still be reliant on large institutional provision for care and support. Therefore, while making the simple vision outlined above a reality, we will need to ensure that all residents are treated with respect, dignity and compassion by staff who have the values, knowledge, skills and time to care for and support them. One of the initiatives taken by the HSE following the showing of the programme was to establish this Review Group to undertake an independent review of the quality of care being provided in Áras Attracta. Our approach to the task has been to put residents and their relatives at the centre of all of our activities. In this way we have brought a different perspective to assessing what matters most in respect of the quality of care and support that is being provided and what needs to be done to make things different and better for residents. The report we have produced highlights the findings of the Review Group in relation to Áras Attracta itself. It identifies a number of key initiatives for the HSE to take in the wider intellectual disability sector in the coming twelve months. It also includes an action plan directed to managers of all congregated settings, identifying the steps needed to support a rights- based social model of service delivery, in compliance with national policy. These initiatives could enhance the lives of people with intellectual disabilities living in congregated settings in Ireland. They should also help to prevent situations such as those that took place in Áras Attracta occurring in the future. iii The fallout from the screening of the RTE programme has been extensive for the people who live in Áras Attracta, their relatives, the staff and management, the HSE as nominated provider, and other agencies that have an involvement with the centre. Events have combined to create a situation of ongoing flux, change, fear and uncertainty for residents, their families, and staff alike. This report is one of a series of reports produced by the Review Group. As part of our work we undertook a consultation exercise and have produced a report Time for action which sets out the responses to the questions and issues posed in the consultation. We also produced an ‘easy read’ version of the consultation paper and engaged Inclusion Ireland to organise and facilitate focus groups of self-advocates throughout the country. The outcome of these groups is contained in the report Start listening to us. It is the hope of the Review Group that the impact of the events themselves, the work of the group and initiatives taken by the HSE will result in an improvement in the quality of life not only for the people living in Áras Attracta, but for others who live in congregated settings elsewhere. There can be no doubt about the changes that are necessary. Dr Kevin McCoy Aras Attracta Swinford Review Group Members Dr Kevin McCoy, Child Care and Social Care Consultant, Chair Deirdre Carroll, Independent Disability Policy Analyst Ann Judge, Management and Organisation Development Consultant Dr Bob McCormack, Service Quality Consultant iv Acknowledgements The Review Group offers its sincere gratitude to those who participated in the review especially the residents and their relatives who contributed directly to this review and to them we are extremely grateful. We would like to thank the management and staff of Áras Attracta who gave readily of their time to assist the work of the group members and its specialist consultants. Thanks are also due to the general practitioners attached to the centre and the representatives of the following trade unions who met with the Review Group – IMPACT, SIPTU, PNA and TEEU. We could not have completed our task without the assistance of the people listed below. Specialist Liz Chaloner * Consultants Bernard McDonald Paul White Mr Stephen Biesty, HSE Senior Manager for the Review Group. Ms Marian Cavanagh, HSE Support Officer for the Review Group. Inclusion Ireland for organising the focus group, the output of which is included in Chapter 2. The Team of POMS Margaret Farrell, who coordinated the Survey Assessors Suzanne Bennett, Sunbeam House Services, Bray Nora Brosnan, Kerry Services, St. John of God Hospitaller Services John Farrelly, Dunshane Camphill Community Geraldyn Jackman, Cheshire Services, Tullow Michael Tiernan, Malta Services, Drogheda Sarah Walshe, Cheeverstown House Services, Dublin The Advocates Clare O’Neill, Senior Advocate from the National Elaine Morris, Advocate Advocacy Services who undertook Josephine Keaveney, Advocacy Service Manager, the ‘Day in the Life Western Region, National Advocacy Service for People Exercise’ with Disabilities. Ms Ciara O’Halloran, MCO Thanks are also due to Kaytlin Chaloner, Dr Lorna Day and Brigid O’Dea for their administrative assistance. * Liz Chaloner deserves special mention for her work in shaping up our approach to many important aspects of the review and for her skill and dedication in preparing our report for publication. v NOTE In carrying out this review in accordance with the Terms of Reference, the Review Group considered the operation of the bungalows and units at Áras Attracta at the latter end of 2015. The Review Group wanted to learn directly from the residents, their relatives and staff at Áras Attracta about their experiences of living and working in Áras Attracta. To do this, the Review Group undertook a number of internationally recognised exercises designed to ascertain the views of residents, relatives and staff about the quality of care being provided in Áras Attracta. These included meetings with groups of residents, relatives and staff which were followed up with questionnaires issued to relatives and staff (completed anonymously). In addition, the Review Group commissioned advocates to look at ‘A Day in the Life’ of three residents. The Review Group also commissioned an examination of the Quality of Life of a sample of 21 residents drawn from the total cohort of residents. This report reflects the comments and observations made by those residents, relatives and staff in relation to their own experiences and therefore such comments and observations do not and cannot apply to all staff. vi Contents A. INTRODUCTORY 1. Background to the Áras Attracta review 1 B. PERSPECTIVES: RESIDENTS 2. What Áras Attracta residents told us 17 3. A day in the life of three residents of Áras Attracta 25 4. Measuring the quality of life at Áras Attracta 39 C.
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