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AGING AND HIV THOUGHTS ON PrEP FROM the FIRST PERSON CURED of HIV ARE YOU AT RISK FOR ANAL CANCER? POSITIVELY AWARE THE HIV TREATMENT JOURNAL OF TEST POSITIVE AWARE NETWORK JANUARY+FEBRUARY 2015 LEONG-T RM suRVIVORS ARE Not JUST LIVING loNGER, they’RE KICKING TEZ ANDERSON AND MATT SHARP take on AIDS ASS SURVIVOR SYNDROME This page intentionally left blank. ➤ POSITIVELY AWARE [email protected] CORRE CTING A disease and remind us not to focus exclu- know that all the hard work that goes into CONTRADICTION sively on T-cells and antiretrovirals. compiling such a class A magazine is not IN TERMS —CARL STEIN, MHS, PAC, AAHIVS overlooked. May you be blessed. PHYSiciAN ASSISTANT —C HERYL VITELLO R egarding “Can Hepatitis C Be Sexually OWEN MEDICAL GROUP GATESVILLE, TX Transmitted?” in the November+December SAN FRANCISCO, CA StiGMA 2014 issue: On page 28 Andrew Reynolds responds: I am currently incarcerated at Collins the author writes, Correctional Facility in Collins, New York. “We know that Dear Carl and other readers, I want to tell how I was a target of HIV stigma HCV is present in Thank you for the careful (“Have you ever been the target of HIV stigma blood, but there reading and feedback on the or discrimination?” poll, September+October is no evidence article “Can Hepatitis C Be 2014). It started right in my own neighbor- that it is found Sexually Transmitted?” You are hood after I disclosed to someone who I in semen....” On absolutely correct in my contra- thought was a friend. He eventually told some page 29 the author diction on pages 28 and 29. I of the other people in the neighborhood, writes, “Some stud- should have written that “HCV whose cars and homes I would work on, and ies have found HCV has been found infrequently in they started to discriminate. They would no in semen, while semen and vaginal fluids” or longer shake my hand and wouldn’t even others have not.” The that it is “intermittently found allow me in their homes anymore. It angered author contradicts in sexual fluids.” I’m honestly me because it was clear that my community himself within two not sure how that got past lacked education on HIV and how it’s trans- pages. There may be me, so I am grateful for the mitted or even how it’s prevented. no conclusive or indis- putable evidence that catch. We will fix this in the online version. —AUSTIN BELLINGER HCV is found in semen, but if “some studies As to the box on page 30, my intention have found HCV in semen” then it is false to was to include activities in conjunction with write that “there is no evidence that [HCV] is condomless anal sex that increase a person’s found in semen.” risk for sexual transmission of HCV. I will L ET’S CONNECT. On page 30, conspicuously absent from work with the editors at POS ITIVELY AWARE the box “What activities increase the risk of to make sure the online version clarifies that sexually transmitted HCV?” is anal sex with- to avoid confusion. out a condom. On page 31 in the box “How —N A DREW REYNOLDS to reduce your risk for hepatitis C,” point 3 PROJECT INFORM is “wear a condom for anal sex.” Clearly, the author indicates in the box on page 31 that SRUPPO T @posAwAre he knows that use of a condom during anal sex can reduce risk for sexual transmission of I am so grateful that you have this program A ll communications (letters, email, hepatitis C. He should have included in the to send magazines to positive people who online posts, etc.) are treated as letters box on page 30 anal sex without a condom can’t afford a subscription. I’ve been incar- to the editor unless otherwise instructed. as an activity that increases risk for sexual cerated for a year and I’m so out of the loop We reserve the right to edit for length, transmission of hepatitis C. on info, the new treatments and discoveries. style, or clarity. Let us if know you prefer we not use your name and city. You can Additionally, thank you for the photo- Also, the connection with the positive com- also write: POSITIVELY AWARE, 5050 graphs and stories included in “A Day with munity represented by your magazine was N. Broadway St., Suite 300, Chicago, IL HIV.” They are valuable as they ask us to such an inspiration and source of strength 60640-3016. remember the many people affected by this and belonging. I miss that so much. Please © 2015. POSITivELY AWARE (ISSN: 1523-2883) is published bi-monthly by Test Although POSITIVELY AWARE takes great care to ensure the accuracy of all the information Positive Aware Network (TPAN), 5050 N. Broadway St., Suite 300, Chicago, IL 60640. it presents, POSITIVELY AWARE staff and volunteers, TPAN, or the institutions and TPAN is an Illinois not-for-profit corporation, providing information and support to anyone personnel who provide us with information cannot be held responsible for any damages, concerned with HIV and AIDS issues. POSITIVELY AWARE is a registered trademark of direct or consequential, that arise from use of this material or due to errors contained TPAN. All rights reserved. Circulation: 100,000. For reprint permission, send email to herein. Opinions expressed in POSITIVELY AWARE are not necessarily those of staff or [email protected]. Six issues mailed bulk rate for $30 donation; mailed free to those living TPAN, its supporters and sponsors, or distributing agencies. Information, resources, and with HIV or those unable to contribute. advertising in POSITIVELY AWARE do not constitute endorsement or recommendation of any medical treatment or product. TPAN recommends that all medical treatments or We accept submission of articles covering medical or personal aspects of HIV/AIDS, and products be discussed thoroughly and frankly with a licensed and fully HIV-informed reserve the right to edit or decline submitted articles. When published, the articles become medical practitioner, preferably a personal physician. the property of TPAN, POSITIVELY AWARE, and its assigns. You may use your actual name or a pseudonym for publication, but please include your name, email address, and phone A model, photographer, or author’s HIV status should not be assumed based on their PHOTO: number with your story. appearance in POSITIVELY AWARE, association with TPAN, or contributions to this journal. JANUARY+FEBRUARY 2015 POSITIVELY AWARE 5 WO H SAID that? QUO TES FROM STORIES APPEARING IN THIS ISSUE POSITIVELY AWARE O n one hand, it’s a definite privilege J OURNALISM. INTEGRITY. HOPE. that we get to worry about aging ‘There are so many lessons with HIV, given where we were even 15 years ago. That doesn’t allay our JEFF BERRY to be learned from long-term EDT I OR-IN-CHIEF simultaneous concerns, however, about @P Aeditor survivors, and we hope to the special challenges we’ll confront “I love highlighting the teach as well as learn.’ as adults living with HIV enter their efforts of others who are doing groundbreaking MATT SHARP, CO-FOUNDER OF LET’S KicK ASS. ‘golden years.’ work. I feel this issue really KICKinG Ass, BEGINNING ON PAGE 16 accomplishes that.” Ric K LoFTUS, MD, IN AGING GRACIE-FULLY, BEGINNING ON PAGE 34 ENID VÁZQUEZ ASSOCIATE EDITOR @enidvazquezpa “Troubles and concerns are seen as weaknesses, so it’s sometimes difficult Both currently and soon-to-be-available HCV for survivors to talk about DAAs offer much hope for people living with their fears.” HIV and HCV. Cure rates look to be very ‘It’s something easily RICK GUASCO similar to those of mono-infected persons, CREA TIVE DIREctOR and the regimens appear to be safe to take transmissible. You @rickguasco with HIV medications and do not impact “It wasn’t until reading don’t need to have this issue’s stories about CD4 counts. anal sex to have long-term survivors that I realized this is what I’ve An DREW REYNOLDS, WRITER AND PROJECT INFORM EDUCATOR. anal cancer.’ AASLD CONFERENCE UpDATE, BEGINNING ON PAGE 46. been experiencing myself.” JUN STI E ALMADA, CO-FOUNDER OF THE HPV AND ANAL CANCER JASON LAncASTER FOUNDATION. AnAL CANCER: ARE P ROOFREADER YOU AT RisK?, BEGINNING ON PAGE 20. CONTRibUTING WRitERS L NAURA JO ES CARLOS A. PEREZ JIM PICKETT ‘I don’t care about what people think ANDREW REYNOLDS MATT SHARP about me living with HIV, my life is meaningful, and [just] because ‘There are so many chances P HOTOGRAPHERS of [my] circumstances, you cannot when I am vulnerable DAU NE CRAMER John GRESS judge me. I can do anything I want to HIV. I have to protect CHRIS KniGHT to do. I can be anything I want to be, myself with those things. and I’m powerful—and that’s what people feel when I speak.’ PrEP makes me feel like ADR VE TISING I am in control. It makes LoRAN R I E HAYES MAR IA DAVIS, HIV ACTIVIST AND SPEAKER. MARIA L [email protected] DAVIS SPEAKS OUT, BEGINNING ON PAGE 25. me feel empowered.’ DiB STRI UtiON AND BATIE HAB L , A ZIMBABWEAN SEX WORKER, SUBSCRIPTION SERVICES IN THE HIVR4P conFERENCE UPDATE, BEGINNING ON PAGE 31. [email protected] SINCE 1989. PUBLISHED BY ‘People wonder, “Why have I tried this hard if my future doesn’t look that great?” ’ This article will explain why my mindset toward PrEP for NEL SON VERGEL, IN ThE cosT SUITE 300 OF LONG-TERM SURVIVAL. sexually active individuals and 5050 N. BROADWAY St.