The Prostate Cancer Charity Makingconnections

Annual Review 2010/11 1 in 5 MPs We met the supported the needs of 95% of We launched We supported We saw an Charity’s Day of Action callers who spoke our new website, over 100,000 ‘Mo increase in campaign during to the Specialist increasing web Bros’ and ‘Mo Sistas’ media coverage Prostate Cancer Nurses on our traffic by 35% to raise £11.4 million of prostate cancer Awareness Month Helpline for The Movember by 50% Foundation

Our Specialist We funded Nurses spoke 14 new research to over 5,000 grants to a total people on value of We achieved our Helpline £1.8 million membership of the Over 60% National Cancer of MSPs signed Research Institute – the Pledge for the first men’s health Prostate Cancer charity to be in Scotland Our trained accepted What our connections achieved in 2010/11 volunteers reached out to over 11,000 people

1 2 Leading the connections

In this Annual Review, you’ll find a lot of facts and figures that demonstrate just how much the Charity has been able to achieve, in the last year.

I am extremely proud that my official connection with The Prostate Cancer Charity began in March 2011 – It is hugely encouraging to be able to show you how much we have done, on every level, to improve and very excited to have the opportunity to lead such an important charity as Chief Executive. One of the the future for men with prostate cancer. But numbers alone can never tell you about the countless things that has struck me most is the dedication and enthusiasm of all our people working to make life people and organisations – like the Movember Foundation and the support of over 100,000 ‘Mo Bros’ better for men affected by this disease. 2010/11 has been the most successful in the Charity’s history. and ‘Mo Sistas’ – that have helped make all this happen. We are incredibly grateful, for each and every So, it is great to have the opportunity to build upon solid strengths in order to reach out and help contribution they have made. thousands more men and their families; both today and into the future. While the successes are clear, I do need to highlight the challenges that remain and how much more A critical aspect of our success is ensuring that each area of our work links with the rest. We provide needs to be done. High on the list is the important need to find a better, more effective diagnostic specialist support services, invest in essential research and campaign tirelessly to push the issues test for prostate cancer. We still need more resources to increase the funding of our other medical surrounding the disease higher on the national healthcare agenda. We also collaborate with ever increasing research, especially into advanced disease. And at a time when all parts of the NHS are under numbers of medical and charitable organisations to maximise the collective impact. Our continued extreme pressure, we need to step up our campaigning work to reduce the inequalities in the partnership with the Movember Foundation has been a huge factor in what has already been achieved to standards of care across the nation. date and will be a big part of the significant difference that we are determined to make in the future. And last but not least, we need to find the resources and the ways to reach men and their partners in There is still a very long way to go. One of the most important connections I have made in my new role is higher ‘at risk’ groups, who currently neither know the facts about prostate cancer nor are currently with some of the 250,000 men and their families, who have been impacted by this disease. It is clear that aware of the help we can provide. variations in men’s experiences of care still exist – and need to be tackled firmly. I am determined to lead the charge in bringing about the improvements in men’s experience of prostate cancer we absolutely need to Thanks to John Neate, who retired as Chief Executive this year, our Charity has become a truly see – striving ever harder to connect more and more men to better outcomes, wherever they live. authoritative, highly respected organisation. Now with Owen at the helm, we are determined to reach out further to achieve the challenging goals that face us if men with prostate cancer are to receive the Thank you to everyone who has supported us so far, from donors to researchers and politicians and information, treatment and support that they deserve. journalists. I hope you will join me in creating a better future for those affected by prostate cancer.

Professor Paul Forster, Chairman Owen Sharp, Chief Executive

Our strategic goals Our vision Goal 1: Significantly more men will survive prostate cancer Goal 4: Inequalities in access to high quality prostate cancer services will be reduced A world where lives are no longer limited by prostate cancer Goal 2: Society will understand the key facts about Our mission prostate cancer and will act on that knowledge Goal 5: People affected by prostate cancer will have their information and support needs addressed effectively Fighting prostate cancer on every front – through research, Goal 3: African Caribbean men and women will know more support, information and campaigning about prostate cancer and will act on that knowledge 3 4 Linking laboratory to life Research Impact Report In 2010 the Charity commissioned its first Impact Report, to assess the long term results that our research investment has had to date. This report examined our achievements and looked at the wider impact on knowledge production, development of high calibre research scientists, and the impact for diagnosed Most people think of research as something that The Charity set aside some of its research budget, “This year we’ve done more men. The report covers investment in research projects between 2000 and 2007, happens quietly, behind closed laboratory doors. then put the word out to the research community, totalling approximately £4.6 million. than ever before – in terms For The Prostate Cancer Charity, nothing could be and beyond. The result is a pioneering research further from the truth. initiative looking into how best we can support men Key investment highlights: of the number of grants, the with the long-term effects of hormone treatment. As amount of funding and the Across the organisation, our aim is to involve people part of this specific call, we’ve now linked up with a • Set up a centre of excellence at Hammersmith Hospital nurturing some affected by prostate cancer more closely in shaping range of new potential researchers, who may help us of the most prominent and talented researchers in prostate cancer. our work, so that we can meet their needs more areas we’ve reached.” carry our work forward in the future. • Developed crucial treatment for early-stage prostate cancer, called effectively. This year, in response to what those interstitial brachytherapy. This quick, effective treatment has now been Dr Helen Rippon people had told us, we did something we had never Another important initiative this year was our Clinical adopted as the national standard, paving the way for further innovative done before: put out a research brief to encourage Research Training Fellowship scheme. Run jointly with research projects. As Head of Research Management for the Charity, proposals for a specific area – survivorship. the Medical Research Council, the scheme creates an Helen aims to foster new ideas and new talent, opportunity to bridge the gap between ‘bench’ and • Invested in African Caribbean research using the findings to inform our to lead the way in research that covers every part A workshop brought together people who are living ‘bedside’, by offering medical doctors the chance to information services for this community. The research fed into a larger of the prostate cancer journey. The ultimate gauge with and beyond prostate cancer and professionals get research training. Doctors can step out of and programme of work, the PROCESS study, which showed that of success is positive results for men with who work with men every day, to develop a list of back into their medical careers smoothly; prostate African Caribbean men living in are three times more likely to prostate cancer. priority research topics. Two areas topped their list as cancer research gains fresh interest and talent; and get prostate cancer than white men, a statistic which is now commonly needing urgent attention: how can men be helped to the research findings can more readily be transformed referred to by many researchers and other medical charities. make better decisions about treatment, and how can into results for patients. they be supported to deal with the side-effects.

£1.8 million invested £261,000 invested 10 research projects Three new research projects in 14 new research projects – into survivorship research to investigating new ways to treat looking at ways to improve the three in Scotland, one in Northern help men cope with the side prostate cancer or ways to diagnosis of prostate cancer Ireland and nine in England effects of hormone therapy improve current treatments

5 6 Connecting people with information and support “I was really impressed at how much time and care they took, just listening. It’s just what you need.” “It is an intimate experience Being diagnosed with prostate cancer can be a for many more people than we would be able to reach confusing and uncertain time for men. Getting on our own. We hope that in the future we continue to Ross Fenton talking on the phone, and can accurate information and ongoing support can make a develop successful support groups across the UK. big difference – to anyone affected by prostate cancer. When Ross Fenton found out he had be challenging. There is a real The Charity’s new website has made it easier than ever prostate cancer, he didn’t even know what sense of making a difference This year The Prostate Cancer Charity’s Specialist to connect people to our online support and information to ask. Calling the Helpline gave him the Nurses spoke to over 5,000 people on our confidential no matter where they are. After investigation into what information, and the time, he needed. Now to people.” Helpline, giving them support, information and all the people want from digital support, we turned our site into Ross volunteers for the Charity and has made time they needed. Our nurses answered over 300 a clear gateway for information on prostate cancer. Now John Robertson links with his local MP to help us to improve emails too – a growing way in which people are getting we have more visitors spending more time on the site, prostate cancer care and services. support from us. This year, we did a full evaluation of downloading more information, and finding our website John Robertson was a nurse for over 30 years. He lost our flagship service, which found that 95% of those a quick and easy way to get the help they need. both his brother and his father to cancer. Today he is a who contacted the Helpline felt their needs were Support and Information Specialist Nurse working on understood and met, by nurses who were welcoming, We provided a huge range of information this year, the Helpline, and goes out to give awareness raising attentive and professional. Our peer support volunteers with over 300,000 of our resources distributed across talks to groups, organisations, and businesses. offered help by providing a listening ear from someone the UK. Our information resources are certified by the who has been there, to 139 people in 2010/11. Information Standard and have been highly commended by the British Medical Association Patient Information Our trained volunteers have also created a network Awards. People affected by prostate cancer and health of seven support groups in Scotland which are run by professionals feed into the development and evaluation and for men who have prostate cancer, their families of all of our resources, so we can be sure that we are and friends. This enables more face-to-face support consistently addressing the needs of our audiences.

95% of callers Over 5,000 people 300,000 information resources felt they were understood and had were supported by one of the sent out across the UK their needs met on our Helpline Charity’s Specialist Nurses

7 8 Partnering politicians with the cause

“In Scotland, responsibility for health is 100% devolved to the Scottish Parliament – a very different context compared to With a new government in Westminster, the Charity England. The Charity has made seized opportunities to create change for men with the disease. We called for better information significant progress in getting to help men make decisions about testing – and our messages across including it is working. The new English cancer strategy recommends that all health professionals should widespread support for the receive further education about the information on the political spectrum. And the Charity’s ‘blue man’ Pledge for Prostate Cancer PSA testing they need to pass on to men, and that badge was welcomed more warmly than ever into the different options for making this information more parliamentary chambers, adorning lapels, in Holyrood which commits MSPs to take accessible to men should be explored. and Westminster, winning important recognition and publicity during Prostate Cancer Awareness Month. action to reduce inequalities We backed a pilot prostate health clinic in , which was well received by professionals and Our key campaign for the year was Testing Choices, and improve prostate cancer service users alike. Could this be a future option for which focused on ensuring men get the information services in Scotland.” passing on information? We’re talking to decision- they need to decide about having the PSA test. makers about testing this and other approaches A major campaign launch, inviting MPs to meet Alistair Haw across the country over the next two years. our supporters and questions raised during Prime Minister’s Questions put the issue in the spotlight – As Campaigns and Media Manager, Alistair leads In Scotland, MSPs and key politicians were contacted and the pressing need for better information has the vital media and campaigning work undertaken and informed, gaining 120 new signatories for the now been recognised by the Department of Health in Scotland, and works to ensure MSPs are fully five-point Pledge for Prostate Cancer, from across in England. engaged with the cause.

10 volunteers trained 1 in 5 MPs took part 120 new signatories to become expert campaigners to in our Day of Action during for the Charity’s Pledge for make links with their MPs Prostate Cancer Awareness Month Prostate Cancer in Scotland

9 10 Connecting with communities Prostate Cancer Awareness Month

March saw huge public support for the Charity’s Prostate Cancer Awareness Month, generating record levels of media coverage – across all national newspapers, alongside significant coverage in broadcast and online media throughout the UK. Raising awareness in different areas of the UK, and “I really enjoyed running the Our campaign website saw a 44% uplift in visitors compared to the previous year and our presence within different communities is a big challenge, and on social media sites helped us to spread rumours of a ‘Blue Army’ descending on central London, as something we are committed to. workshop on prostate cancer part of a carefully orchestrated publicity stunt, which certainly got people talking. In the UK, African Caribbean men are three times during Ethnic Minority Cancer Footballing heroes Jamie Redknapp and Les Ferdinand MBE, television presenters Adrian Chiles and more likely to get prostate cancer than white men of Awareness Week. It is vital Ben Shepherd, and sporting legends Jason Leonard OBE and Jimmy White MBE all put their stamp the same age, so they are a crucial target group for on a pair of pants sold in Marks & Spencer’s stores throughout the month. us. Key to our achievements were connecting with that there is a continual effort “A reception in the Scottish the men themselves and their family and friends, Key highlights: community members and health professionals. to raise awareness amongst Parliament marked the formal • 735 pieces of media coverage, a 60% uplift from the previous year – the most the Charity has ever We trained 26 African Caribbean ‘Community ethnic minority groups. generated from a single campaign. merger of The Prostate Cancer Champions’, who’ve used their skills, networks and I gained so much – sharing • More participation from our valued supporters resulting in 27% more money raised. Charity with a network of presence to spread awareness locally about prostate cancer. And in our first ever shared learning event, information and meeting other • Television coverage from ITV’s Daybreak, This Morning and LK Today. prostate cancer support groups health professionals, researchers, and community cancer survivors. It was very • Keyline Builders Merchants, BlackRock and Betfair ramped up their support with innovative fundraising in Scotland. This strengthens workers came together to discuss how best to get the and awareness activities including a Betfair promotional film featuring Sir Alex Ferguson CBE. message across to a group that needs them most. empowering.” our presence in communities Our Community Champions are part of our 100-strong Anika Wilson across Scotland and ensures team of trained volunteers who have their own that we have direct contact connection to prostate cancer. They raise awareness Anika started supporting the Charity after her father and talk about their personal experiences at events, was diagnosed with prostate cancer, she is now one with people affected by this year reaching out to over 11,000 people. of our Community Champions. prostate cancer.” Ann MacEwan

Ann is the Charity’s Support Group Development Officer, with responsibility for support groups 239 awareness events Connected with 20,000 people 26 African Caribbean across the UK reached over 11,000 people through our campaign website – Community Champions trained in the UK up 44% from 2010

11 12 “I wish my dad could have seen me take a leap for mankind.” Finding funds for Claire Spencer Claire is one of thousands of women who found their own way to support the Charity, for the sake of the men in their life. Since her dad passed away last year, Claire has worked tirelessly as an Ambassador for the Charity, the cause raising funds and awareness.

In June 2010, the Charity was devastated by the death In Scotland, the Rangers Charity Foundation hosted of Andy Ripley, rugby legend and keen supporter of events, provided coverage in match-day programmes, our cause. The whole rugby world came together to raised over £25,000 and got our message out to men commemorate Andy’s life, and to take up the mantle of all ages and backgrounds. We are delighted the for prostate cancer awareness. Foundation has agreed to keep on supporting us for another season. In fact, sport, in all its shapes and sizes, continued to offer us opportunities for spreading the word about Following a behind the scenes tour of Lord’s Over the past 12 months, as the beneficiary partner of prostate cancer, and getting funds to fight it. Perhaps Cricket Ground, key supporters joined The Rt Hon Movember, we have been able to make huge strides our biggest sports connection is with thanks Sir John Major KG CH, President of the Charity’s On every front, from sporting fields to special events, in our activities – and reaching men – thanks to funds to our partnership with The . As the Research Action Fund, and researchers funded women supported the men they care about – sons raised by ‘Mo Bros’ and ‘Mo Sistas’ across the UK. UK’s leading pro cycling event, the Tour is watched by by the Charity for dinner. Attendees were invited and fathers, partners and friends – by finding their own The money raised by every last ‘Hulk Hogan’ or over 1 million viewers. And 4,500 enthusiasts followed to become Research Action Fund Patrons by ways to raise funds for our work. Among countless ‘Tom Selleck’ goes to providing support where it is in the tyre tracks of the professionals by riding The committing to funding a single research project special individual contributions, Baroness Royall of needed most, funding critical research, and putting Prostate Cancer Charity Tour Ride in Stoke, Devon or and have already raised over £300,000, dedicated Blaisdon hosted a successful breakfast at the House the cause on the agenda for those with influence. London raising over half a million pounds of invaluable to a new three-year research project conducted of Lords in memory of her husband, Stuart Hercock, support for the work of the Charity. by Dr Charlotte Bevan. who sadly died from prostate cancer in May 2010.

Research Action Fund Patrons Over £1 million raised Supported over 100,000 Keyline Builders Merchants Punch Taverns BlackRock Dynamo’s raised over £300,000 to fund a by M&S through our five-year ‘Mo Bros’ and ‘Mo Sistas’ to raise raised over £75,000 on their raised £55,000 during the male asset managers were the top three-year research project partnership £11.4 million ‘Monte Carlo or bust!’ charity rally 2010 Football World Cup fundraising team during Movember

13 14 Money matters Income

Other

Legacies

Corporate donors We have had yet another successful year with income Movember £11,408,000 We were able to further expand our charitable work Information services £661,000 rising by £7.4 million or 65%, to £18.8 million. The 2010 funded by income growth. Charitable spending Community £2,494,000 Charitable trusts Community engagement £714,000 Movember campaign raised a spectacular £11.4 million, Direct Marketing grew by £2.5 million or 45% on last year, including or 61% of this total. Other income sources raised Direct Marketing £1,687,000 an additional £1.3 million investment in research, Policy and campaigns £734,000 Community £7.4 million, up 32% on last year with community Corporate donors £1,197,000 £0.4 million in awareness, £0.3 million in policy and Helpline £749,000 fundraising growing by over £0.8 million, and trusts and Charitable trusts £795,000 campaigns and around £0.2 million in both information Research £2,994,000 corporate partners each by over £0.3 million. services and the Helpline. Policy and campaigns Legacies £644,000 Awareness £2,164,000 The Charity remains entirely dependant on the extreme Other £593,000 Fundraising costs were up by £1.6 million against generosity of all the individuals, trusts and corporate 2009/10 and the Charity’s return on investment (ratio of partners and we do not underestimate the impact on income to fundraising costs) rose from 3.5:1 to 3.9:1. our supporters in these times of economic uncertainty. Not all the extra funds raised in 2010/11 were spent, as the Charity ended with a surplus of £5.7 million for the year. This is primarily because the majority of Research the Charity’s income occurs in the last months of the financial year, particularly Movember, and it would not be prudent to make spending commitments before Awareness This financial summary is taken from our audited Annual Report and Accounts for the year we are certain of this income. However, the Charity will st ended 31 March 2011. These are available from our website (www.prostate-cancer.org.uk) Movember use these funds to finance further, significant growth in and from our Head Office. spending on its charitable activities in 2011/12.

Information services

Expenditure Community engagement Helpline

15 16 Our supporters have given their time, energy and commitment to our work and we are Individual supporters Trustees Ambassadors Thank you immensely grateful. A special mention in particular must go to the following: John Ankur Iain McLaren Professor Jonathan Waxman (President) David Allen Peter Axson Raymond Mearns Professor Paul Forster (Chairman) Robbie Burns John Beattie Kevin and Susan Megson Ms Su Sayer OBE (Vice Chair) Max Clifford Max Beesley Brian Moore Mr Hugh Richardson (Treasurer) Steve Coxshall Maxton Beesley Tim Munton Mr John Anderson Grant Duncan Chris Bell Roger Muray Mr Ian Chate Neil Fox Stephen Bottomley Willem Plantagie Mr Andrew Blessley Peter Jacobs Kyran Bracken MBE Dave Prowse Mr Ray Kelly Michael Kayser Julia Bradbury Jamie Redknapp Professor Hing Leung Ken Keir OBE Organisations Mark Bright Sheila Reid Mr M Price Victoria Lambert Mark Burgin Casper Rock Mr William Russell Ron Leagas A E H Salvesen’s Charitable Trust Health and Social Care Research Prologis The Coates Charitable Settlement Adrian Chiles Baroness Jan Royall Mr A Sealey OBE Kevin Megson AES Kilroot & Development Division of the Prostate Cancer Support Scotland The George John & Sheilah Livanos Max Clifford David Schneider Dr Timothy Walker CB Paul Molyneux Alan Potter Memorial Golf Day Public Health Agency Provincial Grand Lodge of Charitable Trust Alistair Cope Ben Shephard Mr J Wotherspoon Hugh Porter MBE Alfred Dunhill Ltd Heineken UK Ross and Cromarty The Go-Ahead Group plc Craig Cursiter Gladstone Small Barrie Rutter Alliance Healthcare Management Herbert and Peter Blagrave Purley Downs Golf Club The Gosling Foundation Limited Kathy Darley Jon Snow Patrons Iain Sanderson Services Ltd Charitable Trust Rangers Charity Foundation The Hargrave Foundation Olivia Deighton Sharleen Spiteri Gladstone Small Andor Charitable Trust Iceland Foods Ltd Rapha Condor Sharp The Headley Trust Les Ferdinand MBE The Rt Hon the Lord Steel of The Rt Hon Tony Blair Claire Spencer AstraZeneca UK Ltd Just For Men Robert Luff Foundation Limited The Henry Smith Charity Neil Fox Aikwood KT KBE DL Rabbi Lionel Blue OBE Mike Tye Barclays plc Keyline Builders Merchants Rockmount Golf Club The Mercers’ Charitable Foundation Mark Goodier David Turner The Rt Hon Gordon Brown MP Barclays Corporate Birmingham Lochinver House School Rotary Club of Bedford Castle The Milly Apthorp Charitable Trust Alex Hardwicke Rudolph Walker OBE The Rt Hon Sir Menzies Campbell, CBE, QC Bath Male Choir Logica Rotary Club of Bedford Park The Professional Cricketers’ Association Barry Hawgood Tommy Walsh The Rt Hon Nick Clegg MP Betfair London Borough of Newham Rotary Club of St Albans Priory The Rugby Players’ Association Clive Hussell Bip Wetherell The Rt Hon Iain Duncan Smith MP BGC Brokers L.P. Lowestoft Town Football Club Rugby Rocks The Samuel Sebba Charitable Trust Alison Ingram Jimmy White MBE Mr Mike Gooley CBE BlackRock Man Group plc Sanofi-Aventis The Simon Gibson Charitable Trust Liviana Inzani Christian Wibberley The Rt Hon William Hague MP CB Richard Ellis Marks & Spencer plc SCA Hygiene Products UK Ltd The Souter Charitable Trust Dr Hilary Jones Nigel Wray The Rt Hon Michael Howard QC MP Constance Travis Charitable Trust Millbrook Golf Club Sharp Electronics (UK) Ltd The Sovereign Health Care Charitable Trust Eric Knowles Benjamin Zephaniah Mr Geoffrey Hughes Credit Suisse Movember Foundation UK Spirit Pub Company The Sydney and Phyllis Goldberg Nidhi Kohli Blue Man Runners The Rt Hon Charles Kennedy MP Donald Forrester Trust NCC Group Swaps Ball Committee Memorial Charitable Trust Jason Leonard OBE Family and friends of the late Andy Ripley The Rt Hon Sir John Major KG CH EBM Charitable Trust NFU Mutual Takeda UK Ltd The Thompson Family Charitable Trust John Lewis Family and friends of the late Eminence Cardinal Cormac Murphy-O’Connor Experian plc Olton Golf Club The Adint Charitable Trust The Tideway Scullers Martyn Lewis Winston Churchill The Rt Hon Baroness Pitkeathley OBE Fidelity International Peacock Charitable Trust The Alan Sugar Foundation The Tour of Britain The Rt Hon Sir John Major KG CH Moments to Remember Tribute Funds The Chief Rabbi Sir Jonathan Sacks Goodrich Actuation Systems Pentel Stationery Ltd The Catherine Cookson Charitable Trust Zochonis Charitable Trust Richard Manning Patrons of the Research Action Fund The Rt Hon the Lord Soley Greenwoods Menswear Ltd Pirtek UK The Childwick Trust Zurich Community Trust UK Ltd Jane Mayor Research Action Fund Members The Most Reverend Archbishop Desmond Tutu

We would like to thank our Trustees, Patrons, Ambassadors and supporters who have given their energy, commitment and support. Special thanks also go to our Awareness and Support Volunteers, The Health Professional Advisory Group and Clinical Expert Reviewers.

17 18 The Prostate Cancer Charity London Cambridge House 100 Cambridge Grove London W6 0LE Email: [email protected] Telephone: 020 8222 7622

Glasgow Unit F22-24 Festival Business Centre 150 Brand Street Glasgow G51 1DH Email: [email protected] Telephone: 0141 314 0050

Confidential Helpline 0800 074 8383* Mon - Fri 10am - 4pm, Wed 7pm - 9pm

* Calls are occasionally recorded for training purposes only. Confidentiality is maintained between callers and The Prostate Cancer Charity.

#901 The Prostate Cancer Charity is a charity registered in England and Wales (1005541) and Scotland (SC039332). Registered company 2653887.