F A L L N E W S L E T T E R 2 0 0 9
Conference a Success ello to all of you I met this past August at the on what was best for Sheena. We attended a WS CAWS conference and Hello to those of you I conference in the US about a year after receiving the Hhaven’t met yet but hope to meet over time. diagnosis which put us on the journey that we have As the incoming President for CAWS I would like been on ever since that conference. It was important share a bit about myself and my family. I have been to have expectations of not just Sheena but of the married to Fraser for 35 years and we have 4 wonder- supports that we wrapped around her. We became very ful grown up children and 5 grandchildren. proactive and worked hard at ensuring Sheena had an This past June I was elected as inclusive education as well as an inclusive community the CAWS President and what an honor to hold this life. position at this time when so much work has been Sheena attended school and was done to heighten the awareness of Williams Syndrome included from Kindergarten to Grade 12 inclusive. She in Canada. The “National CAWS Awareness Week” graduated from school with a diploma and followed will go a long way to create awareness across Canada. through on her dream to own a candy store. Sheena We owe a debt of gratitude to MP Bill Siksay for opened “Sheena’s Sweets and Such” for business in furthering our request and managing to have it tabled September of the same year (4 years ago now). She in Parliament. We now need to fi nd a champion get it lives on her own with some supports and enjoys the debated in the House to have it declared. So still some chance to live independently – however we are only a work to do! phone call away. We have 3 sons and a daughter. Blake As the incoming President for (Kari), Wade (Crystal) and Matthew (Lara) are the CAWS it is my goal to continue to work for and with brothers and sisters-in-laws to Sheena our daughter each and every one of you to ensure the best life for who was diagnosed with Williams syndrome when she our sons or daughters/brothers or sisters. The CAWS was 3 and a half. Family conference this past summer gave us plenty of It was a relief to us once we had the information around inclusion at work, school and play diagnosis as we could start making plans and decisions and medical facts that hopefully provided answers to
3 CAWS Contacts 4 Across the Country 5 Music sponsorship 8 Conference report Inside 9 CAWS Awareness Week 11 Conference moments this Issue... 14 Music Survey 15 CAWS Dream Maker 19 Bulletin Board 20 Donation Form Fall newsletter November some of the family’s questions. On that topic, I want With a little bit of effort, we were to share that my platform during my tenure as Presi- able to raise support for CAWS and bring awareness dent is to look at ways to support or possibly initiate to those who knew about Sheena’s diagnosis but didn’t more research around Williams syndrome in Canada. have a lot of detail on WS. Sharing with our family One of the presenters, Dr. Bamforth, is willing to meet and asking for their support raised awareness with and discuss research options. I will keep you updated, sixty more people across Alberta and Saskatchewan. as we meet and discuss the possibilities. Yeah! Swayze Family! And for those that are curious, This SMALL family has been very yes we are related to Patrick or at least Sheena’s busy upon our return from the CAWS Family confer- connection is 7th cousin twice removed. ence around raising awareness for CAWS in our com- With the enthusiasm of our youth munity but also with our extended family. To begin, at the conferenence, I am just waiting for one of our Sheena hung the CAWS banner in her candy store youth to come forward and volunteer as CAWS Youth window and sold the CAWS hearts Toonies for Time Correspondent. Your voice should be heard in our and raised $136.00 from the community of High River. newsletter! The conference was a great opportunity We hosted the Swayze Family Reunion during the Sep- for all the CAWS Contacts to meet in person as well as tember long weekend. It was important to us to raise fi nding new volunteers. Welcome to Kelly Fraser, our the awareness for CAWS with my family. To help with Saskatchewan Contact. our goal, we held a silent auction on a picture of the In this issue you will fi nd a short main street where the Swayze family lived in Carnduff, music survey that asks you questions about your Saskatchewan. Sheena’s Grandpa Swayze, my father, music life. All feedback will be compiled into a designed and built a one-of-a-kind frame for the pic- document that will share the value music plays in your ture with secret compartments which held information life. Please complete the survey by December 15 and about the buildings in the picture. The auction raised send to send to JB Music. $525.00 for CAWS. Other family members organized I would like to invite you to get in a football pool for the game between the Riders and touch with me anytime. My contact information is in the Bombers. The pool raised another $82.50 which the newsletter. I look forward to hearing from you! was donated to CAWS. Another family member made Have a blessed Christmas and all my best wishes for a a donation to CAWS of $50.00. Our weekend total of happy and prosperous New Year. Until the next time! $793.50 was raised for CAWS. Thank you to our fam- ily members for being so supportive. Orvella Small CAWS President
The Small/Swayze families
Fall newsletter November A S S O C I A T I O N C O N T A C T S
PRESIDENT MUSIC CAMP COORDINATOR Nova Scotia Orvella Small Basia Morawski-Bergeron Anne Louise Desrosiers Box 5025 102 MacDonald St. 1675 Cambridge St. High River, AB T1V 1M3 Kirkland, QC Halifax, NS B3H 4A5 (403) 649-5604 H9J 3Z7 (902) 422-0270 (403) 652-0716 (514) 697-0178 [email protected] [email protected] [email protected] New Brunswick PAST PRESIDENT Alberta Marianne Mepham Diane Reid Jaimie Tinling 44 Calais Crescent 209 Inverness Park SE 32 Cascade Place Lower Coverdale, NB E1J 2K9 Calgary, AB T2Z 3K6 Cochrane, AB T4C 1G6 H: (506)384-9426 (403) 257-3581 (403)855-1115 (403)837-7408 W: (506)860-2374 (403) 660-2155 [email protected] Marianne.Mepham-Newton [email protected] @horizonnb.ca British Columbia [email protected] TREASURER Cindy Sanford David Olson Box 26206 Newfoundland 248B East 21st. Street Richmond, BC April Williams North Vancouver, BC V6Y 3V3 1680 A Torbay Rd V7L 3B6 (604) 214-0132 Torbay, NL A1K 1H2 (604) 990-7718 [email protected] (709)437-7596 [email protected] [email protected] Manitoba EDITOR/SECRETARY LaRae Langford Ontario Gloria Mahussier 216 - 43 Weatherstone Place Monique & John Plessas 19 Pereverzoff Place Winnipeg, MB F2J 2S9 344 Aylesworth Avenue Prince Albert, SK. S6X 1A8 (204) 285-8707 Scarborough, ON (306) 922-3230 [email protected] (416) 269-7030 (306) 922-3457 (fax) [email protected] [email protected] MB Convenor for Family Events Lucille Beaudin Quebec MEMBERSHIP Box 30 Postion Vacant Mike Mahussier St. Eustache, MB R0H 1H0 Volunteer required 19 Pereverzoff Place (204) 353-2551 Prince Albert, SK. S6X 1A8 [email protected] Saskatchewan (306) 922-3230 Kelly Fraser (306) 922-3457 (fax) Youth Correspondent 3434 Eagle Crescent [email protected] Position Vacant Prince Albert, SK S6V 7N5 Volunteer Required (306) 922-3783 VIDEO LIBRARIAN [email protected] Barbara Morawski-Bergeron (514) 697-0178 Visit our website Nunavut/N.W.T. [email protected] www.CAWS-CAN.org Position Vacant Volunteer required
If you would like to fi nd out more about the role of a Provincial Contact contact Orvella Small, CAWS President If you would like to volunteer in your province, call your Provincial contact person.
Fall newsletter November A C R O S S O U R C O U N T R Y
Alberta Saskatchewan Summit a Success Saskatchewan Assured Income On the evening of Friday, October 16th, family members were given the opportunity for Disabilities (S.A.I.D.) to mix and mingle with local allies. Over 60 family On May 13th, 2009 the Government of members, professionals and other community Saskatchewan announced that a new income support members had the pleasure of hearing an original system for people with disabilities will be launched remake of Petula Clark’s “A Sign of the Times”, with this fall. This announcement means that many people lyrics adapted to the matters that families in our area living with disabilities will no longer depend on social are facing. Everyone also enjoyed a assistance for their basic living expenses. wonderful presentation by Jodi Reid For many years, disability advocates about her experiences as a young have lobbied the provincial government to create an woman with a disability, living on income system separate from welfare (a system that her own, going to University, and was designed for short-term needs) that adequately having a job. met the life-long needs of people with disabilities. The On Saturday, October voice of Saskatchewan citizens with disabilities was 17th, family members from Calgary acknowledged and in May 2009, Minister Harpauer and the surrounding areas gathered announced that the Government of Saskatchewan for a full day to learn about the would create a separate, dignifi ed program for ‘Signs of the Times’. Again, our individuals with disabilities that would provide a rendition of Petula Clark’s “A socially acceptable level of income. Sign of the Times” was preformed, The program which is expected to following which everyone joined in for a sing-a-long initially benefi t over 3,000 people will roll out October of the heartfelt lyrics. 1st, 2009. Enrollment in the program is expected The Family Summit was happy to to reach between 8,000 to 10,000 people once the have guest speaker, Bruce Uditsky, CEO AACL, to program is fully running. present on this topic in relation to the ‘signs’ that The primary focus of the new families are facing these days. Short skits using a Big program, which is separate from the existing Bad Wolf and Little Red Riding Hood as metaphors for Saskatchewan Assistance Program, is: some of the challenges families are faced with, were *To assure a socially acceptable income for used to further elaborate Bruce’s presentation. people with disabilities - recognizing the range of As well, everyone had a great additional costs associated with disability; and opportunity to hear stories from local families about *To encourage and empower people with how they are staying true to their commitment to disabilities to participate as fully as possible in ensure their sons or daughters with disabilities community life. are staying safe and secure in their communities More details can be found at the through full inclusion, fi nding and maintaining Ministry’s website or through the following link natural relationships and truly belonging through full http://www.socialservices.gov.sk.ca/Introducing-SAID.pdf citizenship. If you are interested in becoming involved in next year’s Family Summit, or to learn more about Family Voices, Calgary, please call 403.717.0361 or email [email protected] Visit our website CCAWS-CAN.orgAWS-CAN.org
Fall newsletter November M U S I C C A M P CAWS Sponsorship Summer Music Camp
My trip to the State of Michigan
I really liked the trip to the camp in Michigan. I had a lot of fun making music. I walked along the beach at Grand Haven. I made many friends. I took part in many rock & roll concerts. I celebrated my 18th birthday while I was at camp and, on August 17, I went on Craig’s cruisers with my friends. I spoke a lot in English (I am a francophone, I live in the province of Quebec). All in all, I loved my experience at camp and hope to go back again soon and see all the friends I made.
It was wonderful and magic.
Louis-Charles Royer Breakeyville, Quebec
Mon voyage aux Michigan
J’aimé beaucoup le voyage au camp au Michigan. Je me suis bien amusé à faire de la musique. Je me suis promené sur la plage à Grand Haven . Je rencontré beaucoup d’amis. J’ai fait beaucoup de spectacle de rock and roll. J’ai fêté mes 18 ans et le 17 août je suis allé aux craig’s cruisers avec mes amis. J’ai parlé beaucoup en anglais. J’ai aimé mon camp et j’espère y retourner pour revoir mes amis.
It was wonderful and magic.
Louis-Charles Royer Breakeyville, Quebec
Fall newsletter November M U S I C C A M P
sessions on alternate days. Group music classes will include CAWS Sponsorship chorus and ensemble. Other classes include computers and Summer Music Camp music appreciation. Fitness and recreational activities will feature working out in the exercise center, movement class, Is it that time of the year again? Yes, it is nature exploration and outdoor games. Evenings and break time to start thinking about making plans for summer music times will offer talent shows, dances guest performers and camp. As most of you know, CAWS offers each year a fi eld trips to nearby attractions. scholarship for a Canadian youth to attend a music camp for So, fi ll out an application today! If you individuals with WS in the United States. did not receive a scholarship in a previous year or wish to There are two (2) camps to choose from: try again, do not hesitate, write to me soon. the Williams Syndrome Music and Enrichment Whispering Trails camp in Grand Rapids, Michigan, or the Berkshire Barbara (Basia) Morawski-Bergeron Hills Music Academy summer program. To apply for a scholarship, the application consists of completing a sheet with pertinent information CAWS Bourse pour un Camp about the applicant wanting to attend as well as sending a recording (on tape or CD) of the person performing. All d’été en Musique applicants for the CAWS scholarship must be 15 years or older. Applications must be sent to me by February 28, C’est le temps de penser aux vacances 2010. Chances of winning the scholarship are very high. I d’été pour l’année prochaine. Pourquoi pas un camp de hope to hear from you soon! musique aux Etats-Unis, dédié à nos jeunes atteints du If you would like to see campers in action Syndrome de Williams. Comme par le passé, l’Association at Whispering Trails, please call 248-244-2229 or e-mail: canadienne pour le Syndrome de Williams offre à chaque [email protected] to request a copy of a recent année une bourse à un individu atteint par le syndrome pour camp video. If you are interested in this year’s summer pro- participer à un tel camp d’été. gram at Berkshire Hills, call Mike Hudgik at 413-540-9720 Vous avez le choix de deux camps : le x202 or e-mail him at [email protected] Williams Syndrome Music and Enrichment Whispering Trails Camp à Grand Rapids, au Michigan, ou le pro- Below are brief descriptions of the camps: gramme estival de la Berkshire Hills Music Academy au Connecticut. Whispering Trails Camp Pour appliquer, il suffi t de me faire parve- Our scholarship is ONLY for the camper nir une lettre contenant toutes informations pertinentes sur interested in the music activities track at the camp. A tradi- la personne qui veut aller au camp, la raison pour son intérêt tional camp session lasts one (1) week. dans un tel camp ainsi qu’un enregistrement (sur cassette, Activities include daily ‘individual’ music CD ou vidéo) de la personne jouant son instrument de mu- lessons and group music activities such as theatre and/or sique ou s’exécutant. Le/la candidat(e) doit avoir au moins chorus and band. Additionally, campers will be able to elect 15 ans. Les demandes d’application pour la bourse doivent activities from a menu of choices including, swimming, parvenir au plus tard le 28 février 2010. Les chances de basketball, dance, archery, arts & crafts. recevoir une bourse sont énormes. J’espère avoir de vos Campers who are 18 or older also have the nouvelles bientôt! option to enroll for a 10-day camp session which includes Si vous désirez avoir un aperçu du camp special activities and off-site excursions (coffee house Whispering Trails, adressez-vous au 248-244-2229 ou evening with live entertainment provided by the staff, an envoyez un courriel à: [email protected] et evening of bowling and an afternoon of miniature golf, go demandez une copie d’un vidéo récent d’un camp d’été. Si karts, laser tag, video games) vous êtes intéressé par le programme offert par la Berkshire Hills, contactez Mike Hudgik au 413-540-9720 x202 ou Berkshire Hills Academy passez lui un courriel à [email protected] This program is intended for young adults, Pour une brève desciption des deux (2) ages 16-25, who have a high musical aptitude with mature camps, n’hésitez par à communiquer avec moi. group behaviour skills. The summer program is an extension of Barbara (Basia) Morawski-Bergeron the Academy’s school-year program. Following a musical (514) 697-0178 evaluation, participants will have private voice, keyboard or instrument lessons every other day, with coached practice
Fall newsletter November S U P P O R T C A W S River of Dreams CAWS Conference T-Shirts
rts $5 each or 3 for $10 Shipping $2.50 per order
T-shirts T-shirts T-shi Orders over $30 free shipping! ow y N Bu We have many T-shirts in the following sizes:
Adult Small CAWS
Conference Children X-Small Family Conference Children Small T-Shirts caws-can.org Children Medium Children Large Ottawa 2009
Great Christmas gifts! Interested in selling Email Diane Reid at [email protected] Toonies for Time hearts Toonies for Time ... the impossible takes a little longer for the dream to help support CAWS?
Contact Orvella at Help support CAWS awareness 403.649.5604 or [email protected]
Now is the time to start thinking about becoming a CAWS Dream Maker
Your gifts are what keeps us active and operating
You just won’t believe how easy it is to order
Please consider supporting CAWS. on CAWS website ! Please give generously. Please consider supporting CAWS. Subscribe or renew your magazine subscriptions on our website: www.CAWS-CAN.org Enter group #17436
Fall newsletter November F R O M T H E C O N F E R E N C E C H A I R
Toonies for Time….and that is exactly The networking that went on at this family what it took to host our biggest ever CAWS Family conference was so overwhelming as we: Conference in Ottawa. It did take a lot of time and •learned from our professional speakers, extra cash to host this wonderful three-day event for medical and family experiences over 243 conference delegates and in the end it was all •brainstormed together well worth it. •walked to parliament hill with our CAWS I would just like to say thank you to banners to launch a National Awareness week for Orvella Small our new President, Gloria our terrifi c Williams Syndrome so each year we can help to raise editor and secretary for all their help in helping me awareness of Williams Syndrome from August 1-7 pull this together. I also have to say thank you to •CAWS Canadian Idol determined to be my husband Jim who kept me grounded throughout Vanessa Chidley of Red Deer, Alberta the planning and hosting of this conference. This •Listened to our own two “Elvis Presley” and conference made me realize that this is a event that “Roy Orbison” impersonators has to keep happening for our families in Canada and •Witnessed that our youth WS individuals abroad. Yes it can be every 4 years but everyone told deserve their own conference me that it has be happen sooner than 2013. We would We will have another Family love to have ideas on how we can achieve this so send Conference in 2013 and I will coordinate the event but them to me anytime of the day or night. I need you all to send me your thoughts and ideas for I have to thank Dr. Lucy Osborne our next family gathering. who helped with the lineup of medical speakers and it was unbelieveable how each presenter contributed Diane Reid such valuable information to our families. We had Past Chair/Conference Chair parents, grand parents, family members who couldn’t say enough about the information that was shared from our speakers knowledge. We have also made valuable contacts that will assist with our research and be possible future speakers. Our youth program went on without a hitch and they told us how valuable it was for them to have their own program. Since then, Jennifer Toonies for Time Buchanan has met with Orvella and myself to plan for ... the impossible takes a little longer for the dream the future of our young adolescents. We have learned many things that will help us to make the conference better from our evaluation sheets which have all been taken Help support CAWS awareness into consideration as we plan for our next family conference. We hope we have inspired our eastern families to become involved so we can have representation in all provinces and maybe even more than one rep from each province. If you would like to become involved please call Orvella Small as we would love to help you get started.
River of dreams ... where the dreams continue
Fall newsletter November C A W S A W A R E N E S S W E E K
SIKSAY CALLS FOR WILLIAMS SYNDROME AWARENESS WEEK 5 Oct 09
OTTAWA – Today, Bill Siksay (Burnaby Douglas) introduced a private member’s bill which would designate the week of August 1 to 7 every year as “Williams Syndrome Awareness Week.”
Williams Syndrome is a rare genetic disorder that is caused by an abnormality in chromosomes. It can affect brain development and can cause various physical problems such as cardiovascular disease. Individuals with this disorder become highly verbal and social.
“Designating this week would raise awareness of Williams Syndrome, and hopefully advance education and research into the condition,” said Siksay. “I think a heightened awareness of this condition will facilitate the integration of those with Williams Syndrome into society.”
“By establishing this Awareness Week for Williams Syndrome we are creating world knowledge for many parents, professionals and the public of a syndrome that often goes undiagnosed or misdiagnosed,” said Diane Reid, Chair of the Canadian Association for Williams Syndrome. “Our kids throw educational theories out the window since their tested IQ levels are a series of peaks and valleys that aren’t supposed to exist.”
“This bill will go a long way towards ensuring individuals with Williams Syndrome will be included in their communities so they may make their unique contributions to Canadian society,” concluded Siksay.
For more information: Offi ce of Bill Siksay, M.P. Burnaby-Douglas Ottawa, Ontario 613-996-5597 (phone) 613-992-5501 (fax) www.billsiksay.ca
Fall newsletter November 2 0 0 9 F A M I L Y C O N F E R E N C E
Fall newsletter November C O N F E R E N C E M O M E N T S
Fall newsletter November M O R E M O M E N T S
Fall newsletter November The Caws Family conference was awesome, lots of great info on many topics and there was lots of people. I had a great time there and ya the people learned a lot about WS and there was lots of info about WS. Ottawa was a great place to have a WS conference all the presentations were great, I liked sharing my story at the conference. I came home and put the banner in my Toonies for Time store and sold 68 hearts so $136.00 to go to CAWS. ... the impossible takes a little longer for the dream
Great time “Rock On”!
Sheena Small Help support CAWS awareness
If you are interested in supporting CAWS by selling Toonies for Time hearts, contact Orvella at 403-649-5604.
2009 Conference Sessions included:
Opening Plenary “Living the Dream” Inclusive Education
Dr. B. Klein-Tasman, Medical Research: Anxiety Dr. C. Mervis, Medical Research: Clinical Research Dr. S. Bamforth, Medical Research: Dental Dr. B. Prober, Medical Research: Cardiovascular Dr. C. Morris, Medical Research: Genetic Inversion Dr. L. Osborne, Medical Research: Less Common WS Phenotypes
Watch for conference reports on the above sessions in our next newsletter.
Visit our website CCAWS-CAN.orgAWS-CAN.org
Fall newsletter November M U S I C S U R V E Y
CAWS is committed to learning about and supporting its community. Today, we would like to get to know more about your music. Below is a short survey that asks questions about your music life. Your feedback will be com- piled into an article for CAWS members and to share with the greater community about the value music plays in our life. Please complete this survey by December 15 to: Jennifer Buchanan @ JB Music Therapy 148 Silvergrove Place NW Calgary, Alberta T3B 4T4 or fax to 403.288.2241 Thank you so much for helping us get to know you better. Orvella Small, CAWS President
The Canadian Association for Williams Syndrome in collaboration with JB Music Therapy would like to know how you feel about the benefi ts of music for persons with Williams Syndrome. Completion of this survey is your consent to use this information to identify the role music plays in the lives of persons with Williams syndrome. All responses will be kept confi dential and anonymous. Data will be grouped and no individual identifi ers will be used. Thank you for your participation.
Male ______Female ______Do you have Williams Syndrome? ______Your Age ______
Do you listen to music on a regular basis?
Lots Sometimes Never
Do you go to concerts or live performances?
Lots Sometimes Never
How important is music in your life? Very Important Not Important
What kind of music do you listen to the most? (check as many as you listen to)
Rock and Roll Jazz Classical Pop Folk Opera Blues Rap Country Other: ______
Music Helps Me (just check two):
Feel happier Feel more relaxed Get excited Gets rid of the boredom Work harder
Would you like to have more music in your life? Yes ______No ______
If you play an instrument, what instrument (s) do you play?
Would you like to play an instrument and if so which one?
If you could afford music lessons or music therapy would you want to participate?
Additional Comments:
Fall newsletter November C A W S D R E A M M A K E R
My boy is 16! I simply cannot believe how quickly time has gone by. From the moment he was born he captured my heart and it has been a fun-fi lled, loving, educational experience ever since! Fun-fi lled whenever I saw the joy in his beautiful “starburst” eyes, Loving - when he wraps his arms around me still to this day when I walk in the door from work; Educational - learning all aspects of William’s syndrome that in turn helped our family to understand how to best nurture, teach, and guide Drew in life to achieve his personal best in everything he does. Not to mention all the wonderful people and fellow William’s families we met in Ottawa at the WS Conference this past summer - you all inspired us so much. Today, his Extra-Dad (as he fondly refers to him), David, sister Lexi and myself (Mom/ Marianne) are honouring him on his 16th birthday by becoming a Caws Dream Maker and celebrating what he has taught us - how to love unconditionally, how exciting and “big” the smallest achievements in life can be - like walking across the room at 20 months, tying his shoes for the fi rst time at 12 years old (!) or reading a road sign with perfection and so much more! We look forward to so many more memories, achievements and celebrations ahead! We love you Drewbie! Happy Sweet 16th!
Mom, David and Lexi xoxoxoxoxoxoxoxoxox
Well it is rather apropos that I write this today, as it is actually Drew’s birthday, September 2nd!
ers Dream Mak
Our family- Drew, David, Marianne & Lexi on Parliament Hill to launch the 1st CAWS Awareness Week
New-found fast, friends for life: Drew Blight, Patrick Alderton and Drew and Mom at ACDC concert in August Nate Cheater at CAWS Conference (his early birthday present)
Fall newsletter November Dream Makers
Sharon McColl Edmonton, AB Silver sponsor Marianne & David Mepham Lower Coverdale, NB Bronze sponsor Jim & Diane Reid Calgary, AB Platinum sponsor
We would like to help make dreams come true by committing to a CAWS
Dream Maker Level of ______for a total of $______
__ in celebration of or __ in memory of (please submit your story separately with photos if possible and elaboration of the occasion )
______DATE NAME PHONE #
Address: ______
Email: ______
Fall newsletter November Family Dream Maker
Level Dollar Amount Family Rewards
Platinum $2000 & Up $1000 a year for 2 years
Recognition on CAWS website
Your story in newsletter (CAWS will help you to write your story)
Hotel room for 2013 Family Conference 3 nights (Conference room rate)
Gold $2500 $500 a year for 5 years
Recognition on CAWS website
Hotel room for 2013 Family Conference 1 night (Conference room rate)
Sponsor on Conference T-shirt
Silver $1000 $200 a year for 5 years
Your story in newsletter (we will help)
Recognition on CAWS website
Award Trophy for CAWS Canadian Idol (CAWS to provide trophy)
Bronze $500 $100 a year for 5 years
Your story in newsletter (we will help)
Recognition on CAWS website
Fall newsletter November Your gifts are what keeps us active and operating. CAWS would like to gratefully thank individuals for their recent contributions. Thank you.
A tribute to Vincent Lajoie * from: George, Rose Marie, Robert, Christina, David, Michel & Pierre Lajoie & their spouses & families of Grand Forks, BC & St Paul, AB * from William & Kathryn Howden of Sherwood Park AB (We Love You) * with love from Joyce Flanagan of Holland Landing, ON * from Geoffrey & Wendy Moore of Calgary, ON * from Christopher & Diane Ward of Calgary, ON * from Tony & Wendy Mellace of Osoyoos, BC * from Kevin & Lilian Button of Edmonton, AB (on occasion of Vincent’s 6th Birthday) * from Duncan & Delores MacDonald of Red Deer, AB * from Pat & Jean Hagel of Vernon, BC
As a Memorial to Rita Mooney In memory of Rita Mooney of Whitehorse, Yukon who passed away on June 22, 2009. Life time friend of Gail Sutherland * from Dianne & Henry Sutherland of Red Deer, AB
A tribute to Robyn Clair Seger * from Helen Deckert of Kitchener, Ontario
A tribute to Madeline Potier * from Stanley & Dorothy Lawrence of Oshawa, ON
In support of the 2009 Conference * from William & Kathryn Howden of Sherwood Park, AB * from Christopher & Diane Ward of Calgary, AB
A tribute to Alysia Roy on the occasion of her birthday * from Barbara & Gordon Kuzuik of Clandeboye, MB
A tribute to All those dealing with Williams syndrome * from Tim & Michelle Craplewe of Edmonton, AB
Other Personal Donations Personal Donations via United Way of Calgary Mark Slater of Toronto, ON via Canada Helps.org Personal Donations via Ontario Power Employee’s & Pensioners Charity Trust Personal Donations via United Way of Lethbridge Personal Donations via United Way of Toronto & Greater Toronto Regina St. Croix via United Way of Newfoundland and Labrador BC Hydro Employee’s Community Service Fund from a BC Hydro employee or retiree of Vancouver BC Personal Donation from the MacPhail Memorial Fund via Strategic Charitable Giving Foundation Tim From via United Way of the Alberta Capital Region
Corporate Donation Corporate Donation via C&C Landscaping & Construction Ltd. of Pickering, ON
Fall newsletter November B U L L E T I N B O A R D
ADDRESS CHANGES COLUMN CONTRIBUTIONS
Please send your address changes Please send your contributions for future newsletter and corrections to: features to : Mike Mahussier Gloria Mahussier 19 Pereverzoff Place 19 Pereverzoff Place Prince Albert, SK. S6X 1A8 Prince Albert, SK S6X 1A8 Phone: (306)922-3230 phone: 306-922-3230 Fax: (306)922-3457 fax: 306-922-3457 E-mail: [email protected] [email protected] Across the Country: A column to share with families events across the country and encourage parents to write about accomplishments their child or sibling has made in regards to the individual with WS. Happenings Achievements, no matter how great or small, can be enthusiastically shared!
December 15, 2009 Deadline for Music Survey Helpful Resources: Resources such as video tapes, computer software, games, books, etc., that parents or the family’s interagencies have found to be helpful in assisting our children meet developmental milestones February 28, 2010 Deadline for CAWS music and achieve specifi c learning concepts. camp sponsorships Medical/Educational information: Articles concerning research and information pertaining to What is happening in your province? ongoing projects on medical and education issues. Give your Provincial Contact a call! Youth Voice: A page to place and share works by individuals with WS, be it an art sample, a photo, an essay, poem, stories, etc.
Website Bulletin Board: Ask a question or share information. Please forward your bulletin board contribution to [email protected] with the words, “Bulletin Board” in the subject line of your email. Please allow one week for your posting to appear on the bulletin board. All questions to be posted will be edited and reviewed before posting.
CAWS newsletter is published quarterly. Due to limited Have you ordered yet? space, we may not be able to print every item received. We report items of interest relating to WS and will DID YOU KNOW? provide a forum for other items of interest. CAWS does not promote or recommend any therapy, treatment, When you order through the QSP magazine program, professional system, etc. We reserve the right to edit all over one-third of the subscription price “stays at material. home” to support CAWS programs. Visit our website www.CAWS-CAN.org
Visit CAWS-CAN.org and enter our Group # 17436 to NEXT SUBMISSION DEADLINE place your order. January 15, 2010 Please support our national fundraiser.
Fall newsletter November T H A N K Y O U from the editor: Thank you to Weyerhaeseur Canada, Prince Albert Division for the paper for this printing of the newsletter and to those that sent in contributions. Merry Christmas everyone. The deadline for next issue is January 15, 2010. Gloria Mahussier
Your gifts are what keeps us active and operating. CAWS would like to gratefully thank individuals for their recent contributions. Thank you.
Company Matching Program from AstraZeneca Canada Inc. of Mississauga, ON in support of their employee Olivier Semonis matching his donation. A donation was made by Olivier Semonis and his company supports their employees efforts to give back to the community by matching their donation....way to go Olivier.
Toonies for Time * Debra Stubel of St. George, Ontario
Tribute to Vincent Lajoie * Douglas & Corilee Watters of Victoria, BC
Tribute to Jeremy Forster * Gordon Forster of Pointe-Claire, PQ
Tribute to Travis Mahussier * Mary and Rene Malo of Pine Falls, MB
In Memory of Wanda Shibley who passed away July 6th, 2009 in Calgary AB * Teunisje Harrison of Calgary, AB; Gil & Jeanette Spielman of Calgary, AB; Christopher & Marie Smith of Calgary, AB
Corporate Donation * Dr. Derek Human Inc. of North Vancouver, BC
D O N A T I O N F O R M Attached is my cheque payable to CAWS in the amount of:
As a memorial to ______
A tribute to ______
On the occasion of ______(Birthdays, Anniversary, Graduation, etc.)
Donations to the Canadian Association for Williams Syndrome are tax deductible. Canada Customs & Revenue Agency #879205516 RR001. All donations may be forwarded to: CAWS National Offi ce, P.O. Box 2115, Vancouver, B.C. V6B 3T5 Thanks for your support!
Fall newsletter November