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Ta 0014 Ce00100130 Base Pl-35220 46..47 C 46 E/46 PL Dziennik Urzędowy Unii Europejskiej 24.2.2010 Wtorek, 13 stycznia 2009 r. Fibromialgia P6_TA(2009)0014 Oświadczenie pisemne Parlamentu Europejskiego w sprawie fibromialgii (2010/C 46 E/07) Parlament Europejski, — uwzględniając art. 116 Regulaminu, A. mając na uwadze, że blisko 14 milionów osób w Unii Europejskiej i od 1% do 3% populacji światowej cierpi na fibromialgię - obciążające schorzenie skutkujące chronicznym, rozległym bólem, B. mając na uwadze, że w roku 1992 Światowa Organizacja Zdrowia uznała fibromialgię za chorobę, lecz jak dotąd nie dokonano jeszcze odnośnego wpisu do oficjalnego wspólnotowego wykazu kodów, co skutkuje wyłączeniem pacjentów spod zakresu oficjalnych diagnoz, C. mając na uwadze, że pacjenci cierpiący na fibromialgię charakteryzują się większą częstotliwością wizyt u lekarzy ogólnych i większą liczbą konsultacji specjalistycznych, a także częstszymi zwolnieniami lekar­ skimi i korzystaniem z szerszej gamy usług, co powoduje w Europie znaczne obiążenie finansowe, D. mając na uwadze, że przy braku dostępu do właściwego leczenia i wsparcia, osoby cierpiące na fibro­ mialgię zmuszone są do zmagania się z wieloma przeciwnościami w celu prowadzenia godnego i nieza­ leżnego życia; 1. wzywa Komisję i Radę do: — wypracowania wspólnotowej strategii z zakresu fibromialgii w celu uznania tego schorzenia za chorobę; — wsparcia działań na rzecz zwiększania poziomu świadomości społecznej i ułatwienia dostępu personelu medycznego i pacjentów do właściwych informacji poprzez wspieranie odnośnych kampanii europej­ skich i krajowych; — zachęcenia państw członkowskich do usprawnienia dostępu do diagnostyki i lecznictwa; — ułatwienia prowadzenia badań z zakresu fibromialgii poprzez programy robocze 7. programu ramo­ wego, a także przyszłe programy badawcze; — wsparcia rozwoju programów z zakresu gromadzenia danych dotyczących fibromialgii. 2. zobowiązuje swojego przewodniczącego do przekazania niniejszego oświadczenia, wraz z nazwiskami sygnatariuszy, Radzie, Komisji oraz parlamentom państw członkowskich. Lista sygnatariuszy Adamos Adamou, Vincenzo Aita, Jim Allister, Alexander Alvaro, Roberta Alma Anastase, Georgs Andrejevs, Laima Liucija Andrikienė, Emmanouil Angelakas, Stavros Arnaoutakis, Richard James Ashworth, Robert Atkins, Elspeth Attwooll, Margrete Auken, Liam Aylward, Pilar Ayuso, Maria Badia i Cutchet, Paolo Bartolozzi, Katerina Batzeli, Jean Marie Beaupuy, Christopher Beazley, Zsolt László Becsey, Angelika Beer, Bastiaan Belder, Ivo Belet, Irena Belohorská, Thijs Berman, Slavi Binev, Šarūnas Birutis, Johannes Blokland, Sebastian Valentin Bodu, Herbert Bösch, Victor Boștinaru, Costas Botopoulos, Catherine Boursier, John Bowis, Sharon Bowles, Emine Bozkurt, Mihael Brejc, Frieda Brepoels, Hiltrud Breyer, Jan Březina, Danutė Budreikaitė, Kathalijne Maria Buitenweg, Nicodim Bulzesc, Ieke van den Burg, Colm Burke, Philip Bushill-Matthews, Niels Busk, Cristian Silviu Bușoi, Philippe Busquin, Simon Busuttil, Jerzy Buzek, Maddalena Calia, Martin Callanan, Mogens Camre, Marie-Arlette Carlotti, David Casa, Paulo Casaca, Michael Cashman, Pilar del Castillo Vera, Jorgo Chatzimarkakis, Zdzisław Kazimierz Chmielewski, Ole Christensen, Sylwester Chruszcz, Philip Claeys, Luigi Cocilovo, Carlos Coelho, Richard Corbett, Dorette Corbey, Giovanna Corda, Jean Louis Cottigny, Jan Cremers, Gabriela Crețu, Brian Crowley, Magor Imre Csibi, Marek Aleksander Czarnecki, Ryszard Czarnecki, Daniel Dăianu, Joseph Daul, Dragoș Florin David, Chris Davies, Antonio De Blasio, Bairbre de Brún, Arūnas Degutis, Jean-Luc Dehaene, Véronique De Keyser, Panayiotis Demetriou, Gérard Deprez, Proinsias De Rossa, Marielle De Sarnez, Marie-Hélène Descamps, Albert Deß, Mia De Vits, Jolanta Dičkutė, Gintaras Didžiokas, Koenraad Dillen, Giorgos Dimitrakopoulos, Alexandra Dobolyi, Bert 24.2.2010 PL Dziennik Urzędowy Unii Europejskiej C 46 E/47 Wtorek, 13 stycznia 2009 r. Doorn, Avril Doyle, Mojca Drčar Murko, Andrew Duff, Árpád Duka-Zólyomi, Constantin Dumitriu, Lena Ek, Saïd El Khadraoui, James Elles, Edite Estrela, Harald Ettl, Jill Evans, Jonathan Evans, Fernando Fernández Martín, Francesco Ferrari, Anne Ferreira, Elisa Ferreira, Ilda Figueiredo, Petru Filip, Roberto Fiore, Alessandro Foglietta, Hanna Foltyn-Kubicka, Glyn Ford, Carmen Fraga Estévez, Juan Fraile Cantón, Armando França, Monica Frassoni, Duarte Freitas, Urszula Gacek, Michael Gahler, Kinga Gál, Milan Gaľa, Vicente Miguel Garcés Ramón, José Manuel García-Margallo y Marfil, Elisabetta Gardini, Jean-Paul Gauzès, Evelyne Gebhardt, Eugenijus Gentvilas, Georgios Georgiou, Lidia Joanna Geringer de Oedenberg, Claire Gibault, Neena Gill, Lutz Goepel, Bruno Gollnisch, Ana Maria Gomes, Hélène Goudin, Genowefa Grabowska, Dariusz Maciej Grabowski, Ingeborg Gräßle, Martí Grau i Segú, Nathalie Griesbeck, Lissy Gröner, Elly de Groen-Kouwenhoven, Françoise Grossetête, Ignasi Guardans Cambó, Ambroise Guellec, Pedro Guerreiro, Cristina Gutiérrez-Cortines, Fiona Hall, David Hammerstein, Małgorzata Handzlik, Malcolm Harbour, Marian Harkin, Rebecca Harms, Erna Hennicot-Schoepges, Jeanine Hennis-Plasschaert, Edit Herczog, Jim Higgins, Richard Howitt, Ján Hudacký, Ian Hudghton, Stephen Hughes, Alain Hutchinson, Filiz Hakaeva Hyusmenova, Monica Maria Iacob-Ridzi, Sophia in 't Veld, Mikel Irujo Amezaga, Marie Anne Isler Béguin, Caroline Jackson, Lily Jacobs, Mieczysław Edmund Janowski, Lívia Járóka, Elisabeth Jeggle, Jelko Kacin, Filip Kaczmarek, Gisela Kallenbach, Othmar Karas, Sajjad Karim, Ioannis Kasoulides, Sylvia-Yvonne Kaufmann, Metin Kazak, Tunne Kelam, Glenys Kinnock, Timothy Kirkhope, Dieter-Lebrecht Koch, Jaromír Kohlíček, Christoph Konrad, Maria Eleni Koppa, Eija-Riitta Korhola, Rodi Kratsa-Tsagaropoulou, Wolfgang Kreissl-Dörfler, Ģirts Valdis Kristovskis, Sepp Kusstatscher, Joost Lagendijk, André Laignel, Jean Lambert, Alexander Graf Lambsdorff, Vytautas Landsbergis, Esther De Lange, Raymond Langendries, Romano Maria La Russa, Henrik Lax, Johannes Lebech, Roselyne Lefrançois, Klaus-Heiner Lehne, Jo Leinen, Jean-Marie Le Pen, Marcin Libicki, Peter Liese, Kartika Tamara Liotard, Alain Lipietz, Pia Elda Locatelli, Eleonora Lo Curto, Andrea Losco, Patrick Louis, Caroline Lucas, Sarah Ludford, Astrid Lulling, Elizabeth Lynne, Marusya Ivanova Lyubcheva, Jules Maaten, Linda McAvan, Arlene McCarthy, Mary Lou McDonald, Mairead McGuinness, Edward McMillan-Scott, Jamila Madeira, Eugenijus Maldeikis, Ramona Nicole Mănescu, Thomas Mann, Marian-Jean Marinescu, Catiuscia Marini, Helmuth Markov, Sérgio Marques, Maria Martens, David Martin, Miguel Angel Martínez Martínez, Antonio Masip Hidalgo, Véronique Mathieu, Marios Matsakis, Maria Matsouka, Manolis Mavrommatis, Erik Meijer, Emilio Menéndez del Valle, Rosa Miguélez Ramos, Miroslav Mikolášik, Gay Mitchell, Eluned Morgan, Luisa Morgantini, Philippe Morillon, Jan Mulder, Cristiana Muscardini, Juan Andrés Naranjo Escobar, Michael Henry Nattrass, Cătălin-Ioan Nechifor, Bill Newton Dunn, James Nicholson, null Nicholson of Winterbourne, Rareș-Lucian Niculescu, Angelika Niebler, Lambert van Nistelrooij, Péter Olajos, Jan Olbrycht, Seán Ó Neachtain, Gérard Onesta, Ria Oomen-Ruijten, Dumitru Oprea, Josu Ortuondo Larrea, Miroslav Ouzký, Siiri Oviir, Reino Paasilinna, Maria Grazia Pagano, Justas Vincas Paleckis, Marie Panayotopoulos-Cassiotou, Vladko Todorov Panayotov, Pier Antonio Panzeri, Dimitrios Papadimoulis, Georgios Papastamkos, Neil Parish, Ioan Mircea Pașcu, Aldo Patriciello, Alojz Peterle, Maria Petre, Tobias Pflüger, João de Deus Pinheiro, Hubert Pirker, Francisca Pleguezuelos Aguilar, Zita Pleštinská, Rovana Plumb, Guido Podestà, José Javier Pomés Ruiz, Mihaela Popa, Nicolae Vlad Popa, Miguel Portas, Horst Posdorf, Bernd Posselt, Christa Prets, Vittorio Prodi, John Purvis, Poul Nyrup Rasmussen, Vladimír Remek, Karin Resetarits, José Ribeiro e Castro, Teresa Riera Madurell, Frédérique Ries, Karin Riis-Jørgensen, Marco Rizzo, Bogusław Rogalski, Zuzana Roithová, Luca Romagnoli, Raül Romeva i Rueda, Dagmar Roth-Behrendt, Libor Rouček, Paul Rübig, Heide Rühle, Flaviu Călin Rus, Leopold Józef Rutowicz, Eoin Ryan, Aloyzas Sakalas, José Ignacio Salafranca Sánchez-Neyra, María Isabel Salinas García, Antolín Sánchez Presedo, Daciana Octavia Sârbu, Toomas Savi, Christel Schaldemose, Agnes Schierhuber, Carl Schlyter, Olle Schmidt, Pál Schmitt, György Schöpflin, Jürgen Schröder, Martin Schulz, Adrian Severin, Brian Simpson, Kathy Sinnott, Peter Skinner, Alyn Smith, Csaba Sógor, Renate Sommer, Søren Bo Søndergaard, María Sornosa Martínez, Jean Spautz, Bart Staes, Grażyna Staniszewska, Petya Stavreva, Dirk Sterckx, Struan Stevenson, Catherine Stihler, Theodor Dumitru Stolojan, Dimitar Stoyanov, Daniel Strož, Robert Sturdy, Margie Sudre, David Sumberg, László Surján, Gianluca Susta, Eva-Britt Svensson, József Szájer, István Szent-Iványi, Hannu Takkula, Charles Tannock, Michel Teychenné, Britta Thomsen, Marianne Thyssen, Silvia-Adriana Țicău, Gary Titley, Patrizia Toia, László Tőkés, Ewa Tomaszewska, Witold Tomczak, Jacques Toubon, Antonios Trakatellis, Catherine Trautmann, Kyriacos Triantaphyllides, Evangelia Tzampazi, Thomas Ulmer, Adina-Ioana Vălean, Johan Van Hecke, Anne Van Lancker, Geoffrey Van Orden, Daniel Varela Suanzes-Carpegna, Ioannis Varvitsiotis, Donato Tommaso Veraldi, Bernadette Vergnaud, Marcello Vernola, Cornelis Visser, Sahra Wagenknecht, Diana Wallis, Graham Watson, Henri Weber, Manfred Weber, Renate Weber, Anja Weisgerber, Jan Marinus Wiersma, Anders Wijkman, Glenis Willmott, Iuliu Winkler, Janusz Wojciechowski, Corien Wortmann-Kool, Anna Záborská, Zbigniew Zaleski, Mauro Zani, Andrzej Tomasz Zapałowski, Stefano Zappalà, Tatjana Ždanoka, Vladimír Železný, Roberts Zīle, Marian Zlotea, Jaroslav Zvěřina, Tadeusz Zwiefka .
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