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Interfaces Between Bioethics and the Empirical Social Sciences
Interfaces between bioethics and the empirical social sciences Publication Series – 2002 Regional Program on Bioethics Division of Health and Human Development Pan American Health Organization World Health Organization Third Meeting of the International Advisory Board on Bioethics Pan American Health Organization World Health Organization October 2nd – 3th, 2001 Buenos Aires, Argentina INTERFACES BETWEEN BIOETHICS AND THE EMPIRICAL SOCIAL SCIENCES Fernando Lolas S. Lorenzo Agar C. Editors 3 Regional Program on Bioethics OPS/OMS Publication Series - 2002 The present edition belongs to Publication Series - 2002 of Regional Program on Bioethics. Under the title: Interfaces of Bioethics and the Social Science. It contains the documents elaborated by the members of the International Bioethics Advisory Committee of PAHO, that was established in the first official meeting held on October 2-3, 2001 in Buenos Aires, Argentina. N° de Inscripción 127-372 ISBN 956-7938-02-4 This publication of 1.000 copies was printed at august of 2002 PRINTED IN CHILE 4 Interfaces between bioethics and the empirical social sciences CONTENTS • Foreword 9 George A. O. Alleyne • Empirical Social Science Studies and Bioethics. An Interface for the Regional 11 Program on Bioethics Fernando Lolas Stepke • What is Bioethics? A history 15 James F. Drane • Equity, Quality, and Patients Rigths: Can They Be Reconciled? 33 Daniel Callahan • Why Justice is Good for our Health 37 Norman Daniels • Pharmacogen-ethics 53 Diego Gracia Guillén • Unresolved Issues in Social Science Research 67 Ruth Macklin • Placebo Controls in Clinical Trials when there are Known Effective Treatments 79 Robert J. Levine • Polls and Focus Groups in Bioethics: The Case of Resource Allocation 91 Daniel Wikler • The Relevance of Empirical Research for Bioethics 99 Ezekiel J. -
Curriculum Vitae
DANIEL CALLAHAN January 2008 Director International Program The Hastings Center Garrison, N.Y. 10524-5555 (914) 424-4040 BIOGRAPHICAL Born July 19, 1930, Washington, D.C. Married to Sidney deShazo Callahan, Ph.D. (a social psychologist); six children: Mark, Stephen, John, Peter, Sarah and David. Address: Box 260, Hudson House, Ardsley-on- Hudson, New York 10503. Sgt., U.S. Army, 1952-55 (Counterintelligence Corps). EDUCATION B.A. Yale University (1952), English and Psychology major M.A. Georgetown University (1957), Philosophy Ph.D. Harvard University (1965), Philosophy ADMINISTRATIVE, RESEARCH AND EDITORIAL POSITIONS Director, International Programs, The Hastings Center, 1997- Fellow, Institution for Social and Policy Studies, Yale University, 2004- Senior Research Fellow, Department of Philosophy, Yale University, 2004- Senior Lecturer, Harvard Medical School, 1998- Visiting Fellow, Harvard Center for Population and Development Studies, 1996 President and Co-Founder, The Hastings Center, 1969-1996 Staff Associate, The Population Council, 1969-1970 Executive Editor, Commonweal, 1961-1968 PROFESSIONAL ACTIVITIES Special Consultant, Presidential Commission on Population Growth and the American Future (1970-71) Consultant, Ad Hoc Committee on S-hemoglobinopathies, National Academy of Sciences - National Research Council (1972) Selection Committee, Ford-Rockefeller Program in Population Policy (1972-75) Selection Committee, National Book Awards (1975) Council Member, New York Council for the Humanities (1975-79) Member, New York Health Advisory -
2017 Annual Report
extincti De- on natal Scree Pre ning Sequen Gene cing R I T O R Y E R T D cial Intelligen E rtifi ce T A R A H C N Gene Editing U mous V tono ehicl Au es GUIDGUIDANCEANCE Data Privacy The Hastings Center ANNUAL REPORT 2017 P opulation Aging TABLE OF CONTENTS 1 From the President 2 Guiding the Future of the Human Species • Public Engagement around the World 6 Guiding the Fate of the Earth 8 Guiding the Way to More Just and Compassionate Health Care 10 2017 Projects and Scholars 11 2017 Visiting Scholars 12 2017 Board of Directors 13 2017 Hastings Center Events and Meetings 14 Hastings Center Advisory Council 16 Donors 20 Statement of Financial Position inside back cover Current Staff FROM THE PRESIDENT Dear Friends and Colleagues, The year 2017 at The Hastings Center was one of expanding reach and impact. Our scholars traveled the globe, speaking to audiences across and beyond the United States, from Boston to Denver, from Serbia to New Zealand. We published our analyses and recommendations in top-flight scientific and medical journals, but made sure our ideas went far beyond the academy. We advised journalists, scientists, policymakers, health care practitioners, and individuals facing hard choices in their own lives. We convened meetings that brought together experts from diverse disciplines who are rarely in the same room, as well as stakeholders with vastly different perspectives. As this report’s cover design illustrates, through these events and con- Mildred Z. Solomon venings, The Hastings Center serves as a compass. -
EMERGING Technologies the Wise Use Of
2015 Annual Report THE WISE USE OF EMERGING TECHNOLOGIES The Hastings Center is an independent, Director of Communications and nonpartisan, and nonprofit bioethics research Development: Bill Jeffway institute founded in 1969. Hastings’ mission Writer: Susan Gilbert is to address fundamental ethical issues in Art Director: Nora Porter the areas of health, health care, life sciences Hastings Photography: Siofra Vizzi research, and the environment as they affect individuals, communities, and societies. ©2016 The Hastings Center To obtain a copy of The Hastings Center’s complete financial statement for 2015, please write to the Development Department, The Hastings Center, 21 Malcolm Gordon Road, Garrison, NY 10524. The Hastings Center 21 Malcolm Gordon Road Garrison, NY 10524 Tel 845-424-4040 Fax 845-424-4545 [email protected] www.thehastingscenter.org @hastingscenter facebook.com/hastingscenter 2015 HASTINGS CENTER ANNUAL REPORT TABLE OF CONTENTS 2 From the President 3 The Wise Use of Emerging Technologies l New Genetics Technologies l Artificial Intelligence l Big Data l Brain Science l Prenatal Testing 14 Significant Scholarship on Other Topics 18 Our Scholars and Projects at a Glance 19 Hastings Center Fellows Retreat 20 Donors 24 Statement of Financial Position inside back cover Hastings Center Board of Directors and Staff FROM THE PRESIDENT Shaping the future ~ wisely Dear Friends and Colleagues, We live in an age of transformative scientific powers, capable of changing the very nature of the human species and radically remaking the planet itself. These new powers hold great promise for enhancing health and well-being. However, no technology is neutral. As Stephen Hawking recently put it, “Our future is a race between the growing power of technology and the wisdom with which to use it.” The Hastings Center’s goal is to help forge that wisdom. -
1 DAN W. BROCK E-Mail
CURRICULUM VITAE DAN W. BROCK e-mail: [email protected] CURRENT POSITION Senior Scientist (2002 -- ) Head, Section on Public Health (2002 -- ) Warren Magnuson Clinical Center National Institutes of Health, Bethesda, Maryland, U.S.A. EDUCATION Ph.D. (Philosophy) - 1970 Columbia University Dissertation: "Authority, Morality and the Possibilities of Unanimity in Political Decision- making," directed by Robert Paul Wolff New York University Graduate School of Business, 1961-1963; no degree B.A. (Economics) - 1960 Cornell University OTHER AND PREVIOUS ACADEMIC POSITIONS COLUMBIA UNIVERSITY Preceptor, September 1966 - January 1969. BROWN UNIVERSITY: Assistant Professor of Philosophy, July 1969 - June 1975. Associate Professor of Philosophy, July 1975 - June 1981. Chair, Department of Philosophy, 1980-86. Professor of Philosophy, July 1981 - 1991 Professor of Human Values in Medicine, July 1986 – 1991 1 Professor of Philosophy and Biomedical Ethics, 1991 – 2002 Director, Center for Biomedical Ethics, 1991 – 2002 University Professor, 1994 – 1997 Charles C. Tillinghast, Jr. University Professor 1997 – 2002 Principal Department Service--Brown University Colloquium Director, 1970-71. Member, Placement Committee, 1971-72, 1973-74 through 1975-76. Undergraduate Concentration Advisor, Ethics and Political Philosophy Concentration, 1971-72 through 1975-76; 1988-1991 Director of Graduate Studies, 1973-74 through 1975-76. Executive Officer, 1976-1980; 1986-89 Chair, Curriculum Committee 1976-1986. Member, Committee on Teaching Evaluation, 1977-78. Acting Department Chair, Spring 1978; Spring 1989. Department Chair, 1980-86. Freshman Advisor, several years. Also service on numerous search, evaluation, screening, graduate admission, promotion and other committees. Principal University Service-- Brown University Secretary, 1971-72. Concentration Committee on Public Policymaking, 1971-72 through 1973-74. -
LESSONS for the FUTURE? PROPHECY and POLICY in SPECULATIVE BIOETHICS by Ari Schick a DISSERTATION Submitted to Michigan State Un
LESSONS FOR THE FUTURE? PROPHECY AND POLICY IN SPECULATIVE BIOETHICS By Ari Schick A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the degree of Philosophy – Doctor of Philosophy 2014 ABSTRACT LESSONS FOR THE FUTURE? PROPHECY AND POLICY IN SPECULATIVE BIOETHICS By Ari Schick For more than a decade, the field of bioethics has increasingly turned its attention to wide-ranging discussions of possible future biotechnologies, such as those that might be used to determine the genetic endowments of future offspring or to enhance existing people. Yet while the literature on human biomedical enhancement has become a focal point of bioethical debate, few of the technologies that stimulate this discourse have reached the point where they actually generate the ethical questions that the literature addresses. This study offers a comprehensive analysis and critique of speculative bioethics that builds on existing conceptualizations of two parallel modes of bioethical discourse (prophetic and regulatory), and draws from literature outside of bioethics that examines the social function of expectations regarding future technologies. I begin by tracing various developments in bioethics that have given rise to the enhancement discourse in its present form and survey some of the existing criticism that it has drawn. I demonstrate the ways in which speculative bioethics goes wrong when exploring potential future technologies and scenarios, and evaluate the utility of anticipatory bioethics research that attempts to get ahead of expected future technological developments. In the course of developing a robust theory of the nature and function of the prophetic and regulatory aspects of bioethics, I establish that speculative explorations belong within the domain of the prophetic, not regulatory, mode of bioethics. -
Honoring Arthur L. Caplan
Journal of Contemporary Health Law & Policy (1985-2015) Volume 16 Issue 1 Article 3 1999 Honoring Arthur L. Caplan Renee C. Fox Follow this and additional works at: https://scholarship.law.edu/jchlp Recommended Citation Renee C. Fox, Honoring Arthur L. Caplan, 16 J. Contemp. Health L. & Pol'y (2000). Available at: https://scholarship.law.edu/jchlp/vol16/iss1/3 This Dedication is brought to you for free and open access by CUA Law Scholarship Repository. It has been accepted for inclusion in Journal of Contemporary Health Law & Policy (1985-2015) by an authorized editor of CUA Law Scholarship Repository. For more information, please contact [email protected]. Honoring Arthur L. Caplan Erratum ix This dedication is available in Journal of Contemporary Health Law & Policy (1985-2015): https://scholarship.law.edu/jchlp/vol16/iss1/3 DEDICATORY ESSAY HONORING ARTHUR L. CAPLAN Renge C. Fox* Contemplating the writing of an introductory piece about Arthur L. Caplan - philosopher of science, bioethicist, public intellectual, and the person to whom this issue of THE JOURNAL OF CONTEMPORARY HEALTH LAW AND POLICY is dedicated - summoned up several per- sonal images of him which have more than a personal meaning: A few years ago, while I was flying across the country on a professional trip, engrossed in reading a good novel and happily elevated 35,000 feet above my usual ground-level activities, I glanced up from my book and saw Arthur Caplan's face before me on a television screen. Via electronic media, he was journeying with my fellow passengers and me, exuberantly discussing bioethical questions about organ transplantation with us, as we sped through the sky. -
Working for Human Values in Policy and Practice CONTENTS
Annual Report 2018 Working for Human Values in Policy and Practice CONTENTS 1 From the President 2 Wise Use of Emerging Technologies 6 Compassionate and Just Health Care 10 Public Engagement 15 2018 Projects and Scholars 16 2018 Visiting Scholars 17 2018 Board of Directors / New Fellows 18 Hastings Center Advisory Council 20 Donors 24 Statement of Financial Position inside back cover Current Staff FROM THE PRESIDENT Dear Friends and Colleagues, In 2018, we reached a turning point. Anticipating the 50th anniversary of our founding in 1969, we began planning several major events to celebrate this milestone. We also looked ahead and made ambitious plans for the future. The Hastings Center is the world’s pioneering bioethics research center. We ensure that important values, like trustworthiness, compassion, and fairness, are designed into policy and practice in health, science, and biomedical technology. Throughout our history, we have been committed to producing original scholarship and to applying ideas from that scholarship to inform policymakers, health care practitioners, journalists, and the general public. In other words, public and policy engagement have always been core to our mission. Toward the end of 2018, anticipating our 50th anniversary, we challenged ourselves to do even more to advance engagement. We set our sights on building The Hastings Center’s Fund for Impact on Policy and Practice. The Impact Fund will enable us to develop new strategies to ensure the uptake of our ideas into health and science policy and practice, reaching public officials, opinion leaders, and the broader public on the most pressing ethi- Mildred Z. -
Building... Cover Lego® Sculpture: Emma and Thomas Richmond Cover Photography: Charles Porter
T h e h a s T i n g s C e n T e r a n n u a l r e p o r T 2 0 1 0 Building... Cover Lego® Sculpture: Emma and Thomas Richmond Cover Photography: Charles Porter Development Director: Lyn Traverse Art Director: Nora Porter Writer/Editor: Susan Gilbert The Hastings Center 21 Malcolm Gordon Road Garrison, NY 10524 Tel 845-424-4040 Fax 845-424-4545 [email protected] www.thehastingscenter.org The Hastings Center is an independent, nonpartisan, and nonprofit bioethics research institute founded in 1969. The Center’s mission is to address fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies. ©2011 The Hastings Center To obtain a copy of The Hastings Center’s complete financial statement for 2010, please write to the Development Department, The Hastings Center, 21 Malcolm Gordon Rd., Garrison, NY 10524. The Hastings Center Annual Report 2010 Building... 2 What Do We Build? 3 Who Are the Builders? 4 Scholar Profile: Michael Gusmano 6 Scholar Profile: Gregory Kaebnick 8 Scholar Profile: Erik Parens and Josephine Johnston 10 Scholar Profile: Nancy Berlinger 12 Scholar Profile: Daniel Callahan 14 Scholar Profile: Karen Maschke 16 Scholar Profile: Thomas Murray 18 2010 Hastings Center Board of Directors 19 New Board Members & Fellows 20 2010 Hastings Center Staff Building an Audience 21 Hastings Center Report, IRB: Ethics & Human Research, Bioethics Forum, Health Care Cost Monitor, Public Affairs, New Media Building Bridges 22 West Point Annual Meeting, Hastings -
Equality Trust AUTHENTICITY Diversity FAIRNESS Beneficencefair Responsibilityautonomy Accountability S Integrity Courage O Balance C Respect Truth I SINCERITY
Annual Report 2019 Celebrating 50 Years of Bioethics, Shaping the Next 50 global stewardship compassion respect for persons dignityequality trust AUTHENTICITY diversity FAIRNESS beneficenceFAIR responsibilityAUTONOMY accountability s Integrity courage o balance c respect Truth i SINCERITY DIVERSITY a real empathyWISE l TRUST JUSTICE r e sp on honesty sib GOOD i l i t y integrity trust truth FAIR real WISE GOOD TRUTH fairness ACCOUNTABILITY • GENEROSITY • EQUALITY • INTEGRITY • BENEFICENCE • WISDOM CONTENTS 1 From the President 2 The World Pays Tribute to Dan Callahan 4 From Aspen to Dubrovnic: Hastings Center Events 8 Wise Use of Genetic Technologies 10 Reimagining Population Aging 12 2019 Scholars and Projects 13 2019 Visitors 14 2019 Board of Directors 15 Hastings Center Advisory Council 16 Donors 20 Statement of Financial Position inside back cover Current Staff Dear Friends and Colleagues, In 2019, The Hastings Center celebrated its 50th anniversary. We looked back at what we had accomplished since our co-founders, philosopher Daniel Callahan and psychiatrist Willard Gaylin, envisioned an institute dedicated to examining how best FROM THE PRESIDENT to deploy advances in the life sciences and health care for the betterment of humanity. And, we looked ahead, asking ourselves how best to build on the formidable founda- tion that had been created. Our year of reflection was embodied in a large number of public events, scholarly symposia, internal discussions amongst staff and Hastings fellows, all in addition to our already large portfolio of research projects. Through this process, we recommitted The Hastings Center to its two core priorities: ensuring the wise use of emerging biotech- nologies and securing justice and compassion in care across the lifespan. -
Where Civic Republicanism and Deliberative Democracy Meet Author(S): Ezekiel J
Where Civic Republicanism and Deliberative Democracy Meet Author(s): Ezekiel J. Emanuel Source: The Hastings Center Report, Vol. 26, No. 6, In Search of the Good Society: The Work of Daniel Callahan (Nov. - Dec., 1996), pp. 12-14 Published by: The Hastings Center Stable URL: http://www.jstor.org/stable/3528746 Accessed: 20/07/2009 13:30 Your use of the JSTOR archive indicates your acceptance of JSTOR's Terms and Conditions of Use, available at http://www.jstor.org/page/info/about/policies/terms.jsp. JSTOR's Terms and Conditions of Use provides, in part, that unless you have obtained prior permission, you may not download an entire issue of a journal or multiple copies of articles, and you may use content in the JSTOR archive only for your personal, non-commercial use. Please contact the publisher regarding any further use of this work. Publisher contact information may be obtained at http://www.jstor.org/action/showPublisher?publisherCode=hastings. Each copy of any part of a JSTOR transmission must contain the same copyright notice that appears on the screen or printed page of such transmission. JSTOR is a not-for-profit organization founded in 1995 to build trusted digital archives for scholarship. We work with the scholarly community to preserve their work and the materials they rely upon, and to build a common research platform that promotes the discovery and use of these resources. For more information about JSTOR, please contact [email protected]. The Hastings Center is collaborating with JSTOR to digitize, preserve and extend access to The Hastings Center Report. -
Encyclopedia of Bioethics
ENCYCLOPEDIA OF BIOETHICS Prospectus Center for Bioethics KENNEDY INSTITUTE Georgetown University Washington, D.C. 20007 The Encyclopedia of Bioethics project is being sup ported by the National Endowment for the Humanities, the Joseph P. Kennedy, Jr. Foundation, and the Raskob Foundation. It is being sponsored by the Center for Bioethics, a division of the Joseph and Rose Kennedy Institute for the Study of Human Reproduction and Bioethics at Georgetown University in Washington, D.C. ENCYCLOPEDIA OF BIOETHICS Editor-in-Chief WARREN T. REICH Associate Editors K. DANNER CLOUSER ALBERT R. JONSEN Department of the Humanities Health Policy Program College of Medicine School of Medicine Pennsylvania State University University of California, Hershey, Pennsylvania San Francisco ROBERT NEVILLE H. TRISTRAM ENGELHARDT, JR. Division of Humanities Institute for the Medical Humanities College at Purchase University of Texas Medical Branch State University of New York Galveston, Texas ROBERT M. VEATCH JOHN C. FLETCHER Institute of Society, Ethics Interfaith Metropolitan and the Life Sciences Theological Education Hastings-on-Hudson, New York Washington, D.C. LeROY WALTERS STANLEY HAUERWAS Center for Bioethics Department of Theology Kennedy Institute Notre Dame University Georgetown University Notre Dame, Indiana Washington, D.C. Consulting Editor PHILIP P. WIENER Department of Philosophy Temple University Philadelphia, Pennsylvania Managing Editor SANDRA M. HASS Editorial Offices Center for Bioethics ■ Kennedy Institute Georgetown University Washington, D.C. 20007 Tel. 202/625 2371 3 Editorial Advisory Board HENRY K. BEECHER PAUL B. CORNELY Department o f Anesthesia Department o f Preventive Harvard University Medicine Boston Howard University Washington, D.C. JEAN BERNARD Hematology Research Institute CHARLES E.