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Interfaces Between Bioethics and the Empirical Social Sciences
Interfaces between bioethics and the empirical social sciences Publication Series – 2002 Regional Program on Bioethics Division of Health and Human Development Pan American Health Organization World Health Organization Third Meeting of the International Advisory Board on Bioethics Pan American Health Organization World Health Organization October 2nd – 3th, 2001 Buenos Aires, Argentina INTERFACES BETWEEN BIOETHICS AND THE EMPIRICAL SOCIAL SCIENCES Fernando Lolas S. Lorenzo Agar C. Editors 3 Regional Program on Bioethics OPS/OMS Publication Series - 2002 The present edition belongs to Publication Series - 2002 of Regional Program on Bioethics. Under the title: Interfaces of Bioethics and the Social Science. It contains the documents elaborated by the members of the International Bioethics Advisory Committee of PAHO, that was established in the first official meeting held on October 2-3, 2001 in Buenos Aires, Argentina. N° de Inscripción 127-372 ISBN 956-7938-02-4 This publication of 1.000 copies was printed at august of 2002 PRINTED IN CHILE 4 Interfaces between bioethics and the empirical social sciences CONTENTS • Foreword 9 George A. O. Alleyne • Empirical Social Science Studies and Bioethics. An Interface for the Regional 11 Program on Bioethics Fernando Lolas Stepke • What is Bioethics? A history 15 James F. Drane • Equity, Quality, and Patients Rigths: Can They Be Reconciled? 33 Daniel Callahan • Why Justice is Good for our Health 37 Norman Daniels • Pharmacogen-ethics 53 Diego Gracia Guillén • Unresolved Issues in Social Science Research 67 Ruth Macklin • Placebo Controls in Clinical Trials when there are Known Effective Treatments 79 Robert J. Levine • Polls and Focus Groups in Bioethics: The Case of Resource Allocation 91 Daniel Wikler • The Relevance of Empirical Research for Bioethics 99 Ezekiel J. -
International Arbitrage of Controversial Medical Technologies: an Introduction Hiram E
Case Western Reserve Journal of International Law Volume 35 | Issue 3 2003 International Arbitrage of Controversial Medical Technologies: An Introduction Hiram E. Chodosh Follow this and additional works at: https://scholarlycommons.law.case.edu/jil Part of the International Law Commons Recommended Citation Hiram E. Chodosh, International Arbitrage of Controversial Medical Technologies: An Introduction, 35 Case W. Res. J. Int'l L. 363 (2003) Available at: https://scholarlycommons.law.case.edu/jil/vol35/iss3/3 This Foreword is brought to you for free and open access by the Student Journals at Case Western Reserve University School of Law Scholarly Commons. It has been accepted for inclusion in Case Western Reserve Journal of International Law by an authorized administrator of Case Western Reserve University School of Law Scholarly Commons. INTERNATIONAL ARBITRAGE OF CONTROVERSIAL MEDICAL TECHNOLOGIES: AN INTRODUCTION Hiram E. Chodosht James R. Lisher IPt During the 2002-2003 academic year, the Case Western Reserve University Journal of International Law (the "Journal") and the Frederick K. Cox International Law Center (the "Cox Center") invited a series of experts to explore the difficulties in global regulation of new bio-medical technologies. We entitled the symposium International Arbitrage of Controversial Medical Technologies in order to capture the intersection of two significant developments. First, we endeavored to investigate the rapid proliferation of bio- medical technologies that create deep moral and ethical dilemmas for lawmakers, e.g., genetic engineering, germ line gene therapy, somatic cell gene therapy, untested, risky pharmaceuticals for terrible illnesses, and even biological weapons, and the diverse national approaches to regulating such activity. -
2017 Annual Report
extincti De- on natal Scree Pre ning Sequen Gene cing R I T O R Y E R T D cial Intelligen E rtifi ce T A R A H C N Gene Editing U mous V tono ehicl Au es GUIDGUIDANCEANCE Data Privacy The Hastings Center ANNUAL REPORT 2017 P opulation Aging TABLE OF CONTENTS 1 From the President 2 Guiding the Future of the Human Species • Public Engagement around the World 6 Guiding the Fate of the Earth 8 Guiding the Way to More Just and Compassionate Health Care 10 2017 Projects and Scholars 11 2017 Visiting Scholars 12 2017 Board of Directors 13 2017 Hastings Center Events and Meetings 14 Hastings Center Advisory Council 16 Donors 20 Statement of Financial Position inside back cover Current Staff FROM THE PRESIDENT Dear Friends and Colleagues, The year 2017 at The Hastings Center was one of expanding reach and impact. Our scholars traveled the globe, speaking to audiences across and beyond the United States, from Boston to Denver, from Serbia to New Zealand. We published our analyses and recommendations in top-flight scientific and medical journals, but made sure our ideas went far beyond the academy. We advised journalists, scientists, policymakers, health care practitioners, and individuals facing hard choices in their own lives. We convened meetings that brought together experts from diverse disciplines who are rarely in the same room, as well as stakeholders with vastly different perspectives. As this report’s cover design illustrates, through these events and con- Mildred Z. Solomon venings, The Hastings Center serves as a compass. -
EMERGING Technologies the Wise Use Of
2015 Annual Report THE WISE USE OF EMERGING TECHNOLOGIES The Hastings Center is an independent, Director of Communications and nonpartisan, and nonprofit bioethics research Development: Bill Jeffway institute founded in 1969. Hastings’ mission Writer: Susan Gilbert is to address fundamental ethical issues in Art Director: Nora Porter the areas of health, health care, life sciences Hastings Photography: Siofra Vizzi research, and the environment as they affect individuals, communities, and societies. ©2016 The Hastings Center To obtain a copy of The Hastings Center’s complete financial statement for 2015, please write to the Development Department, The Hastings Center, 21 Malcolm Gordon Road, Garrison, NY 10524. The Hastings Center 21 Malcolm Gordon Road Garrison, NY 10524 Tel 845-424-4040 Fax 845-424-4545 [email protected] www.thehastingscenter.org @hastingscenter facebook.com/hastingscenter 2015 HASTINGS CENTER ANNUAL REPORT TABLE OF CONTENTS 2 From the President 3 The Wise Use of Emerging Technologies l New Genetics Technologies l Artificial Intelligence l Big Data l Brain Science l Prenatal Testing 14 Significant Scholarship on Other Topics 18 Our Scholars and Projects at a Glance 19 Hastings Center Fellows Retreat 20 Donors 24 Statement of Financial Position inside back cover Hastings Center Board of Directors and Staff FROM THE PRESIDENT Shaping the future ~ wisely Dear Friends and Colleagues, We live in an age of transformative scientific powers, capable of changing the very nature of the human species and radically remaking the planet itself. These new powers hold great promise for enhancing health and well-being. However, no technology is neutral. As Stephen Hawking recently put it, “Our future is a race between the growing power of technology and the wisdom with which to use it.” The Hastings Center’s goal is to help forge that wisdom. -
MASSACHUSETTS CATHOLIC CONFERENCE WEST END PLACE 150 Staniford Street, Boston, MA 02114-2511 Phone (617) 367-6060 FAX (617) 367-2767 LEGISLATIVE TESTIMONY
MASSACHUSETTS CATHOLIC CONFERENCE WEST END PLACE 150 Staniford Street, Boston, MA 02114-2511 Phone (617) 367-6060 FAX (617) 367-2767 LEGISLATIVE TESTIMONY To: Members of the Joint Committee on Public Health From: Daniel Avila., Esq., Associate Director for Policy & Research Re: House 611, “An Act Relative to Reprogrammed Human Skin Cells for Embryonic Stem Cell Research” Date: May 10, 2011 The Massachusetts Catholic Conference (“Conference”) respectfully submits this testimony in support of House Bill 611, “An Act Relative to Reprogrammed Human Skin Cells for Embryonic Stem Cell Research.” HB 611 would amend Massachusetts law governing scientific and medical research involving the use of human stem cells by: 1. prohibiting the creation, experimental use, and destruction of human embryos for research purposes; 2. authorizing research involving the use of adult stem cells obtained from reprogrammed skin cells in a manner that does not harm human life; 3. removing current statutory authorization to individuals to donate their gametes to embryonic stem cell researchers; and 4. preventing the transfer of “abandoned” embryos created through in vitro fertilization for embryonic stem cell research. Since the passage of the Act Enhancing Regenerative Medicine in the Commonwealth (2005 Mass. Acts 27), endorsing research involving the destruction of human embryonic life, remarkable scientific advances have occurred using adult stem cells, such as what the bill refers to as reprogrammed skin cells, that can be obtained without harming human embryos. This past February, the Harvard Crimson newspaper carried a story on the remarkable progress in adult stem cell research that began with this sentence: “Two new studies by Harvard stem cell labs have shown that human induced pluripotent stem cells (iPSCs) are the equivalent of human embryonic stem cells for the purpose of reconstructing certain key types of cells, including neurons.” Shane R. -
Acknowledgments
ACKNOWLEDGMENTS HE CONSTRUCTION of this account of medical narrative has been enriched by my family and friends and colleagues. Those Twho know something of the history of attention to patients in American medicine and the investigation of the psychosocial issues that complicate their illnesses and their medical care will recognize the influ- ence of the University of Rochester. While I was still at Morehouse, David Satcher lent me The Clinical Approach to the Patient, an influential guide to the patient-physician encounter by Rochesterians William L. Morgan, Jr., and George L. Engel. Once there, I incurred debts that are numerous and great. Throughout the years of my research, my colleagues were un- failingly helpful, subjecting me to little more than a bracing modicum of skepticism about literature's place in understanding medicine. I owe my clinical education especially to Robert L. Berg, Lynn Bickley, Cecile A. Carson, Jules Cohen, Christopher Desch, William R. Drucker, David Goldblatt, William A. Greene, Robert J. Joynt, Rudolph J. Napodano, William L. Morgan, Jr., John Morton, Jr., W. Scott Richardson, John Romano, the late Ernest W. Saward, Olle Jane Sahler, Barbara L. Schuster, Seymour I. Schwartz, and T. Franklin Williams. Craig Hohm, then a third-year resident, was my Aeneas during the first year of clinical observation. Lewis White Beck and Jane Greenlaw were dear and unfail- ing sources of advice and criticism and encouragement. At other institutions Howard Brody, Eric J. Cassell, Rita Charon, Julia E. Connelly, Daniel M. Fox, William Frucht, Robert Kellogg, Loretta Kopelman, Joseph Margolis, John Stone, Carolyn Warner, and William Beatty Warner variously argued about ideas, read chapters, or took me on rounds. -
Bioethics Consultants: Corporate Reliance on a New Field of Consultation
Health Matrix: The Journal of Law- Medicine Volume 15 Issue 2 Article 9 2005 Bioethics Consultants: Corporate Reliance on a New Field of Consultation Kevin Schadick Follow this and additional works at: https://scholarlycommons.law.case.edu/healthmatrix Part of the Health Law and Policy Commons Recommended Citation Kevin Schadick, Bioethics Consultants: Corporate Reliance on a New Field of Consultation, 15 Health Matrix 433 (2005) Available at: https://scholarlycommons.law.case.edu/healthmatrix/vol15/iss2/9 This Note is brought to you for free and open access by the Student Journals at Case Western Reserve University School of Law Scholarly Commons. It has been accepted for inclusion in Health Matrix: The Journal of Law- Medicine by an authorized administrator of Case Western Reserve University School of Law Scholarly Commons. NOTE BIOETHICS CONSULTANTS: CORPORATE RELIANCE ON A NEW FIELD OF CONSULTATION Kevin Schadickt I. INTRODUCTION The technological advances made within the last several decades have given rise to myriad pharmaceutical and biotechnology compa- nies competing for a stake in the market. The quest for knowledge and market forces driving the advancement of scientific research to develop cures, tests, and therapies for disease creates an inherent problem. Government regulation cannot keep up with the advance- ment of science.1 The result is the potential for a decrease in both the safety of subjects participating in clinical trials and in the availability of federal oversight of ethical research endeavors. Many of the institutional guidelines and regulations governing oversight of scientific research exist under the auspices of the Na- tional Institutes of Health (NIH), 2 the Department of Health and Hu- man Services (DHHS), and the Food and Drug Administration I Kevin Schadick, J.D., Case Western Reserve University School of Law (2005). -
Bioethics Consultation in the Private Sector
University of Pennsylvania ScholarlyCommons Center for Bioethics Papers Center for Bioethics June 2002 Bioethics Consultation in the Private Sector Baruch Brody Nancy Dubbler Jeff Blustein Arthur L. Caplan University of Pennsylvania, [email protected] Jeffrey P. Kahn See next page for additional authors Follow this and additional works at: https://repository.upenn.edu/bioethics_papers Recommended Citation Brody, B., Dubbler, N., Blustein, J., Caplan, A. L., Kahn, J. P., Kass, N., Lo, B., Moreno, J., Sugarman, J., & Zoloth, L. (2002). Bioethics Consultation in the Private Sector. Retrieved from https://repository.upenn.edu/bioethics_papers/25 © The Hastings Center. Reprinted by permission. This article originally appeared in the Hastings Center Report, Volume 32, Issue 3, June 2002, pages 14-20. http://www.thehastingscenter.org/publications/hcr/hcr.asp NOTE: At the time of publication, author Jonathan D. Moreno was affiliated with the University of Virginia. Currently March 2007, he is a faculty member in the Department of Bioengineering at the University of Pennsylvania. This paper is posted at ScholarlyCommons. https://repository.upenn.edu/bioethics_papers/25 For more information, please contact [email protected]. Bioethics Consultation in the Private Sector Abstract The members of a task force on bioethics consultation report their conclusions. The task force was convened by the American Society for Bioethics and Humanities and the American Society of Law, Medicine, and Ethics, although these groups do not endorse the group's conclusions. Two commentaries follow, and an essay by science reporter Nell Boyce sets the scene. Comments © The Hastings Center. Reprinted by permission. This article originally appeared in the Hastings Center Report, Volume 32, Issue 3, June 2002, pages 14-20. -
1 DAN W. BROCK E-Mail
CURRICULUM VITAE DAN W. BROCK e-mail: [email protected] CURRENT POSITION Senior Scientist (2002 -- ) Head, Section on Public Health (2002 -- ) Warren Magnuson Clinical Center National Institutes of Health, Bethesda, Maryland, U.S.A. EDUCATION Ph.D. (Philosophy) - 1970 Columbia University Dissertation: "Authority, Morality and the Possibilities of Unanimity in Political Decision- making," directed by Robert Paul Wolff New York University Graduate School of Business, 1961-1963; no degree B.A. (Economics) - 1960 Cornell University OTHER AND PREVIOUS ACADEMIC POSITIONS COLUMBIA UNIVERSITY Preceptor, September 1966 - January 1969. BROWN UNIVERSITY: Assistant Professor of Philosophy, July 1969 - June 1975. Associate Professor of Philosophy, July 1975 - June 1981. Chair, Department of Philosophy, 1980-86. Professor of Philosophy, July 1981 - 1991 Professor of Human Values in Medicine, July 1986 – 1991 1 Professor of Philosophy and Biomedical Ethics, 1991 – 2002 Director, Center for Biomedical Ethics, 1991 – 2002 University Professor, 1994 – 1997 Charles C. Tillinghast, Jr. University Professor 1997 – 2002 Principal Department Service--Brown University Colloquium Director, 1970-71. Member, Placement Committee, 1971-72, 1973-74 through 1975-76. Undergraduate Concentration Advisor, Ethics and Political Philosophy Concentration, 1971-72 through 1975-76; 1988-1991 Director of Graduate Studies, 1973-74 through 1975-76. Executive Officer, 1976-1980; 1986-89 Chair, Curriculum Committee 1976-1986. Member, Committee on Teaching Evaluation, 1977-78. Acting Department Chair, Spring 1978; Spring 1989. Department Chair, 1980-86. Freshman Advisor, several years. Also service on numerous search, evaluation, screening, graduate admission, promotion and other committees. Principal University Service-- Brown University Secretary, 1971-72. Concentration Committee on Public Policymaking, 1971-72 through 1973-74. -
8Th Annual International Estate Planning Institute
FACULTY BIOGRAPHIES 663 664 Arthur Caplan, PhD Arthur Leonard Caplan, PhD, is the Drs. William F and Virginia Connolly Mitty Professor and the founding director of the Division of Medical Ethics in NYU Langone Medical Center’s Department of Population Health. Prior to coming to NYU Langone, Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Dr. Caplan also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University. He was the Associate Director of the Hastings Center from 1984-1987. Dr. Caplan has served on a number of national and international committees including: the Chair, National Cancer Institute Biobanking Ethics Working Group; the Chair of the Advisory Committee to the United Nations on Human Cloning; the Chair of the Advisory Committee to the Department of Health and Human Services on Blood Safety and Availability; a member of the Presidential Advisory Committee on Gulf War Illnesses; the special advisory committee to the International Olympic Committee on genetics and gene therapy; the ethics committee of the American Society of Gene Therapy; the special advisory panel to the National Institutes of Mental Health on human experimentation on vulnerable subjects and the Wellcome Trust on research in humanitarian crises. He is a member of the board of directors of The Franklin Institute, the Board of Visitors of the Columbia University School of Nursing and the Board of Directors of the American Association of University Professors Foundation. -
Bioethical and Legal Issues in the Time of Covid-19
11th Annual Pegalis Law Group Health Law Colloquium THE VACCINE: BIOETHICAL AND LEGAL ISSUES IN THE TIME OF COVID-19 DATE Opening remarks will be made by Anthony W. Crowell, Thursday Dean and President; Professor of Law, New York Law School. November 19, 2020 CO-MODERATORS Adam Herbst, Adjunct Professor, NYLS; Co-Director, NYLS TIME Health Law and Patient Safety Project; Lecturer at Columbia 6:00 p.m.–7:30 p.m. EST University’s Mailman School of Public Health Steven E. Pegalis, Adjunct Professor, NYLS; Co-Director, COST NYLS Health Law and Patient Safety Project; Member, Free NYLS Board of Trustees CLE PANELISTS 1.5 credits in Ethics Alison Bateman-House, Assistant Professor, Division of Medical Ethics, Department of Population Health at and Professionalism Grossman School of Medicine, NYU Langone Health (NY transitional and Arthur Caplan, the Drs. William F. and Virginia Connolly nontransitional) Mitty Professor and Founding Head, Division of Medical Ethics at Grossman School of Medicine, NYU Langone New York Law School is Health certified by the New York State Continuing Legal Education Hon. Richard N. Gottfried, New York State Assembly Board as an Accredited Provider (District 75); Chair of the Assembly’s Committee on Health of Continuing Legal Education Alicia Ouellette, President and Dean; Professor of Law, in the State of New York. Albany Law School RSVP: www.nyls.edu/VaccineCLE Zoom link will be sent with written materials 24 hours in advance of the program. WE ARE NEW YORK’S LAW SCHOOL 1 Since 1891 AGENDA 6:00-6:05pm – Opening Remarks – Anthony W. Crowell, Dean and President, New York Law School 6:05-6:10pm – Welcome – Professor Steven E. -
LESSONS for the FUTURE? PROPHECY and POLICY in SPECULATIVE BIOETHICS by Ari Schick a DISSERTATION Submitted to Michigan State Un
LESSONS FOR THE FUTURE? PROPHECY AND POLICY IN SPECULATIVE BIOETHICS By Ari Schick A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the degree of Philosophy – Doctor of Philosophy 2014 ABSTRACT LESSONS FOR THE FUTURE? PROPHECY AND POLICY IN SPECULATIVE BIOETHICS By Ari Schick For more than a decade, the field of bioethics has increasingly turned its attention to wide-ranging discussions of possible future biotechnologies, such as those that might be used to determine the genetic endowments of future offspring or to enhance existing people. Yet while the literature on human biomedical enhancement has become a focal point of bioethical debate, few of the technologies that stimulate this discourse have reached the point where they actually generate the ethical questions that the literature addresses. This study offers a comprehensive analysis and critique of speculative bioethics that builds on existing conceptualizations of two parallel modes of bioethical discourse (prophetic and regulatory), and draws from literature outside of bioethics that examines the social function of expectations regarding future technologies. I begin by tracing various developments in bioethics that have given rise to the enhancement discourse in its present form and survey some of the existing criticism that it has drawn. I demonstrate the ways in which speculative bioethics goes wrong when exploring potential future technologies and scenarios, and evaluate the utility of anticipatory bioethics research that attempts to get ahead of expected future technological developments. In the course of developing a robust theory of the nature and function of the prophetic and regulatory aspects of bioethics, I establish that speculative explorations belong within the domain of the prophetic, not regulatory, mode of bioethics.