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DOCUMENT RESUME ED 429 404 EC 307 144 TITLE TASH Newsletter, 1998. INSTITUTION TASH, Baltimore, MD. PUB DATE 1998-00-00 NOTE 331p.; For 1997 issues, see EC 307143. TASH was formerly The Association for Persons with Severe Handicaps. AVAILABLE FROM TASH, 29 West Susquehanna Ave., Suite 210, Baltimore, MD 21204; Tel (voice) :410-828-8274; Tel (TDD) :410-828-1306; Fax: 410-828-6706. PUB TYPE Collected Works Serials (022) Reports Descriptive (141) JOURNAL CIT TASH Newsletter; v23-24 n1-12 Dec 1997-1998 EDRS PRICE MF01/PC14 Plus Postage. DESCRIPTORS Civil Liberties; Correctional Rehabilitation; Criminology; Cultural Differences; Deinstitutionalization (of Disabled); *Disabilities; Elementary Secondary Education; Federal Legislation; Foreign Countries; Inclusive Schools; Independent Living; Individualized Programs; Labeling (of Persons); Leisure Education; Long Range Planning; Recreation; *Severe Disabilities ABSTRACT The ten 1998 issues of the newsletter of TASH comprise this document. An issue typically contains news items, a column by the organization's executive director, reports from special interest groups, legislative testimony, conference information, and several major articles, such as the following: "A Q&A on IDEA 97 with Tom Gilhool"; "Positive Behavior Supports and IDEA"; "Highlights of the Discipline Provisions of the Individuals with Disabilities Education Act Amendments of 1997"; "1997 TASH Conference Keynote Address" (Reed Martin); "Institution Closures Continue at an Average of More than 12 per Year" (K.Charlie Lakin and others); "Fighting To Keep 'Em In" (Josie Byzek); "The Deinstitutionalization of America"(James W. Conroy); "Power Sharing between People with SubstantialDisabilities and Their Assistants" (John O'Brien and Connie Lyle O'Brien); "Teaching Students To Play" (Linda A. Heyne); "Inclusive Recreation: A Parents' Guide to Quality" (Stuart J. Schleien and John E. Rynders); "It's Summer Time! Let's Go to Camp" (Cynthia Burkhour) ;"Recreation-Human Services Partnerships: The Rural Recreation Integration Project" (Lynn Anderson and others) ;"Future Planning for Your Child Takes More than a Will"; "Current Trends in Providing Support for Families of Adults with Mental Retardation" (Tamar Heller); "Securing Self-Determination: Building the Agenda in Canada" (Michael Bach); "Wanted: People with Disabilities Involved in International Development" (Susan Sygall); "Girls and Women with Disabilities: A Global Overview" (Nora Groce); "Native American Communities--A More Inclusive Society?" (Ladonia Fowler); "My Experiences with the Criminal Justice System" (Perry Whittico wity Bonnie Shoultz); "Individuals with Significant Disabilities Who Are Victims of Crime" (James K. McAfee); "Should the Death Penalty Apply to Persons with Cognitive Disabilities: The States Must Decide" (Barbara E. Ransom and Dawn Sutton) ;"Unleash the Power" (Joyce Lipman) ;"Internet Resources Concerning People with Developmental Disabilities" (RachaelZubal and Steve Drake); "Escaping from the Label Trap" (Michael W. Smull); "Changing the News about Disability: Why We Need To and How To Do It"(Mary +++++ ED429404 Has Multi-page SFR---Level=1 +++++ Johnson); "Radical Heart, Moderate Mind: A Perspective on Inclusion" (Peter V. Paul); and "What's Wrong with the Feds?" (Mark A. Mlawer).(DB) ******************************************************************************** * Reproductions supplied by EDRS are the best that can be made * * from the original document. * ******************************************************************************** TASH NEWSLETTER Volume 23/24 Issue Number 12/1 Dec 1997/Jan 1998 (One Issue) and Volume 24 Issues Numbers 2-12 1998 (9 Issues) PERMISSION TO REPRODUCE AND U.S. DEPARTMENT OF EDUCATION DISSEMINATE THIS MATERIAL HAS Office of Educational Research and Improvement BEEN GRANTED BY EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) Vfhis document has been reproduced as received from the person or organization originating it. Newton 0 Minor changes have been made to improve reproduction quality. TO THE EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) Points of view or opinions stated in this document do not necessarily represent official OERI position or policy. 2 BEST COPY AVAILABLE rn 01/01MIN1111111114 11111111111 - INK 11-10' 1\1110 lot illo '14 %lb 1 TAM, CHAPTERS essz9,0 NEWS FROM Other activities of Colorado TASH COLORADO: include lending support to other organiza- Colorado TASH currently is tions' efforts, underwriting pilot pmjects, focusing on two major issues: providing mini-grants, and recruiting and inclusive education and community supporting its members through connections. To that end, Colorado information and referral. TASH will be co-sponsoring with Connie Christoff is Colorado PEAK Parent Center the Colorado TASH's president; Colorado Inclusion Conference Robert B. Ruggow, is the trea- February 19-21, 1998. surer; and Elizabeth Soper Hepp is For more information on the the Membership Chairperson. Other Colorado Inclusion Conference, board members of Colorado TASH are contact Peak Parent Center at Michael Hoover, Rick Keeton, and Joan (719) 531-9400. Rademacher. TEXAS TASH Announces its upcoming state meetingon February 6-7, 1998 in August Hallat Sam Houston State University in Huntsville, Texas. Registration is scheduled for 4 to 5 PM on Friday, February 6, followed by the welcome and plenary session by Dr. Mike Brady, former President of the Texas Chapter of TASH. A reception will follow at the home of Sharon Lynch, current President of Texas TASHall are cordially invited to attend. Saturday, February 7 will include a keynote address by Mike Bradyon "The Stereotypic Behavior of Special Educators." Roundtable discussions on these topics will follow:Legal Issues; Involving Families in the Assessment Process; Non-aversive Behavioral Interventions;Improving Transition Planning; and Teacher-Paraeducator Partnerships. For more information on the meeting, contact Mary Fitzgeraldat 281-583-2285 or Sharon Lynch at 409-294-1122, or send an e-mail to: [email protected] COMING SOON: Texas TASH Webpage!! Watch for details! 4 PAGE 2 TAM Newsletter, Dee. 1997/Jan. 1998 BEST COPYAVAINEgic UPFRONT BY MARCIE ROTH There was consensus from around the TABLE OF CONTENTS country that political reality could be UPFRONT PAGE 3 Despite permanent authorization of defined by the grassroots if the insiders IDEA Q&A WITH Tom GILHooL PAGE 5 the Individuals with Disabilities Educa- would allow the voices outside the POSITIVE BEHAVIOR SUPPORTS tion Act of 1975 (IDEA), the 105th Beltway to be heard over the din of AND IDEA PAGE 8 Congress took it upon itself to rewrite Beltway politics. TIMELINE FOR IMPLEMENTATION PAGE 11 PART C: INFANTS AND TODDLERS WITH the law that ensures a free and appropri- Despite the best efforts of many, the DISABILITIES PAGE 13 ate public education for all children. As new law was passed and on June 4th, STATE ADVISORY PANELS PAGE 15 Congress moved toward passage of their 1997 the Individuals with Disabilities DISCRETIONARY PROGRAMS new law, many families and advocates Education Act of 1997 (IDEA '97) was OF IDEA '97 PAGE 16 from across the country stood together signed into law. IDEA '97 INFORMATIONAL and, in a unified voice, said "IDEA is a RESOURCES PAGES 18, 23 This edition of the TASH Newsletter IDEA '97 AND EVALUATIONS, ELIGIBILITY, good law. Leave IDEA alone! Adequately focuses on various aspects of the IEPs AND PLACEMENTS PAGE 19 fund it and then monitor and enforce it. Individuals with Disabilities Education HIGHLIGHTS OF IDEA '97's DISCIPLINE Don't change it, make it work!" Act of 1997 (IDEA '97). Unlike most PROVISIONS PAGE 24 The battle was waged on a number editions of the Newsletter, this one came DISCIPLINARY GUIDANCE MEMORANDUM FROM U.S. DEPT. OF EDUCATION PAGE 28 of fronts. Despite opposition from together very slowly, over a period of six RESPONSE TO U.S. DEPT OF EDUCATION numerous grassroots advocacy and months. It was not intended to be DISCIPLINARY GUIDANCE parent organizations, many others among the first pieces off the presses, MEMORANDUM PAGE 30 indicated willingness to compromise in but a careful and responsible compila- the shadow of what was described by tion of some of the most useful informa- some to be "political reality". Parents tion available. There is already quite a TASH (formerly The Association for Per- and other stakeholders from across the bit of information in print, and plenty sons with Severe Handicaps) is an inter- country called on insiders to step aside of misinterpretation as well. This is not national advocacy association of people and allow them to speak for themselves. continued on page 4 with disabilities, their family members, other advocates and people who work in the disability field. TASH actively pro- motes the full inclusion and participation of Iffft. of persons with disabilities in all aspects of life. To receive an information packet, contact: TASH, 29 W. Susquehanna Av- enue, Ste. 210, Baltimore, MD 21204 flu---iv WHOM DO I CONTACT??4.111.1: or phone (410) 828-8274, ext. 105 or For issues of policy, chapter or committee support, or general e-mail: [email protected]. concerns and suggestions, call: Nancy Weiss, Executive Director, at (410) 828-TASH, Ext. 101, e-mail:[email protected] MISSION STATEMENT For information on the conference, regional workshops, or technical assistance, call: Denise Marshall, Director of Training and Technical Assis- tance, at (410) 828-TASH, Ext. 103, e-mail:[email protected] OTASH For questions about conference registration