DOCSLIB.ORG

Access New England

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Access New England Fall 2008: Vol. 12, No. 2 Access New England A publication of DBTAC—New England ADA Center A project of the Institute for Human Centered Design, www.HumanCenteredDesign.org This Issue Highlights: ADA Best Practices CONTENTS | Project Director’s Report (page 1) | Feature Stories (pages 2-4) | EEOC Updates (page 3) | News: From The Center (pages 5, & 8-9) | Updates in State Building Codes (pages 6-7) | News: From Around The Region (pages 10-13) | Events and Announcements (page 14) For more information 800-949-4232 voice/tty Staff of the New England ADA Center. From left to right: Dennis Begany, Karen Murray, Ana [email protected] Julian, Oce Harrison, Kathy Gips and Ali (Karen’s service dog). www.NewEnglandADA.org DBTAC – New England ADA Center Staff Valerie Fletcher Access New England is published three times a year Principal Investigator by DBTAC – New England ADA Center, A project of the [email protected] Institute for Human Centered Design Oce Harrison, Ed.D. The center is one of ten Regional Disability and Business Technical Assistance Project Director Centers funded by the National Institute on Disability and Rehabilitation Research [email protected] (NIDRR) to provide information, materials and technical assistance to individuals Kathy Gips and entities that are covered by the Americans with Disabilities Act (ADA). Director of Training However, please be aware that NIDRR is not responsible for enforcement of [email protected] the ADA. The information, materials and/or technical assistance are intended solely as informational guidance and are neither a determination of your legal Karen Murray responsibilities under the Act, nor binding on any agency with enforcement ADA Information Specialist responsibility under the ADA. [email protected] Ana Julian Regional Advisory Board ADA Information Specialist [email protected] The Regional Advisory Board meets twice a year. The members’ input and commitment greatly assists the DBTAC – New England ADA Center in its mission. Gabriela Bonome-Sims Director of Administration Connecticut [email protected] Lisa Caron, ADA Coalition of Connecticut Michael Kurs, Pullman & Comley, LLC Mike DiLorenzo Candace Low, ADA Coalition of Connecticut Information Technology Administrator [email protected] Maine Dennis Begany Denis Pratt, AIA Architect, Access Design Specialist, Alpha One Project Assistant [email protected] Massachusetts Myra Berloff, Massachusetts Office on Disability Lisa Spitz Cathy Taylor, Cape Organization for Rights of the Disabled (CORD) Designer Thomas Mercier, Assistive Technology Center [email protected] New Hampshire Carol Nadeau, New Hampshire Governor’s Commission on Disability Rhode Island Access New England is Bob Cooper, Rhode Island Governor’s Commission on Disabilities available in large print, Vermont Braille, audiocassette, Deborah Lisi-Baker, Vermont Center for Independent Living computer disk, and email upon request and online at: www.NewEnglandADA.org Karen Murray, Editor PROJECT DIRECTOR’S REPORT How Will New Changes in the Americans with Disabilities Act (ADA) Impact our Lives? New changes to the ADA will impact Among other provisions, our work, recreation and civic life. The the proposed ADA amend- first major change begins with the recent passage of the Americans with ments address: Disabilities Act Amendments Act of • Miniature golf courses, 2008 (ADAAA) (S.3406). The ADAAA • Boating facilities restores the original definition of disability found in the 1990 passage • Captioning of emergency of the ADA. What does this mean? announcements in large stadiums Highlights of the most significant • Identification of accessible hotel changes can be found on page 2. room features, and require Call us at 800-949-4232 voice/tty for guaranteed reservations of such a further explanation of the changes. rooms to the same extent as the Oce Harrison, Project Director for the DBTAC— New England ADA Center. entity guarantees reservations for Another major change to the ADA others is the proposed amendments to The New England ADA Center offers regulations issued under Title II (State • Availability of accessible seating accurate guidance and training on and Local Government) and Title in public venues, such as theaters the newly passed ADAAA and the III (Public Accommodation) of the and sports stadiums, and ticket proposed amendments to Title II and ADA. The US Department of Justice purchase by people with disabilities III of the ADA. If you have questions (DOJ) plans to finalize the proposed • The availability of auxiliary aids, about these changes, call us for changes by the end of this year. such as video interpreting services, answers. ensuring that people who are deaf When finalized and adopted, these or have limited hearing can receive Viva la Change! new regulations will establish specific and convey vital information in Oce requirements for ensuring access to medical and other settings. public facilities such as courtrooms, The proposed amended regulations We are phasing out our paper newsletter. recreation facilities, playgrounds, also emphasize the ADA Please call 800-949-4232 with your email swimming pools, amusement parks requirements for all public agencies address to receive the newsletter by email. and golf courses. and private businesses to allow the use of service animals by people with disabilities, as long as the service animal is a dog or other common domestic animal trained to perform specific tasks to assist its disabled owner. DBTAC – New England ADA Center 8 00-9 49-4232 voice/ tty | 1 FEATURE STORY ADA Amendments Act Becomes Law Court decisions that have eroded the protections for people with disabilities under the ADA, restoring original Congressional intent. Source: www.house.gov/ed_workforce/issues/ adaaa.shtml Details of the Act includes the following: Advocates and legislator rally together in The ADA Amendments Act impacts all Titles 1. Mitigating measures - such as support of the ADA Amendments Act of the ADA, effective as of January 1, 2009 medication, prosthetics, and other aids used to ameliorate the On Thursday morning, September dystrophy, cancer, diabetes, and effects of impairment - may not 25, 2008, President George W. Bush cerebral palsy have been determined be considered when determining signed into law: S. 3406, the “ADA to not meet the definition of disability whether a person has a disability. Amendments Act of 2008,” which under the ADA. The result: In 2004, This supersedes the Supreme clarifies and broadens the definition of plaintiffs lost 97% of ADA employment Court decisions that mitigating disability and expands the population discrimination claims that went to measures should be considered eligible for protections under the trial, often due to the interpretation when determining whether a Americans with Disabilities Act of of definition of disability. People who person’s impairment substantially 1990. In attendance for the signing are not hired or are fired because limits a major life activity. ceremony was President George H. an employer mistakenly believes 2. Ordinary glasses and contact W. Bush who signed the Americans they cannot perform the job – or lenses may be considered in with Disabilities Act in an historic because the employer does not want determining whether a person has signing ceremony in 1990 “people like that” in the workplace a disability. Employers may use a – have been denied protection from test or qualification standard based The Americans with Disabilities Act of employment discrimination due to on a job applicant’s uncorrected 1990 was intended to “provide a clear these court decisions. This was not vision only when it’s “job-related and comprehensive national mandate the intent of the ADA. and consistent with business for the elimination of discrimination necessity.” against individuals with disabilities.” The ADA Amendments Act (ADAAA) Just as other civil rights laws prohibit of 2008 is supported by a broad 3. Major life activities include, but entities from basing decisions on coalition of civil rights groups, are not limited to, caring for characteristics like race or sex, disability advocates, and employer oneself, performing manual tasks, Congress wanted the ADA to stop trade organizations. The Act rejects seeing, hearing, eating, sleeping, employers from making decisions a strict interpretation of the definition walking, standing, lifting, bending, based on disability. Unfortunately, four of disability, and makes it clear that speaking, breathing, learning, U.S. Supreme Court decisions have the ADA is intended to provide broad reading, concentrating, thinking, narrowed the definition of disability coverage to protect anyone who communicating, and working. so much that people with serious faces discrimination on the basis of 4. Major life activities also include conditions such as epilepsy, muscular disability. It overturns the Supreme the operation of a major bodily 2 | Access New England Fall 2008 EEOC UPDATES The U.S. Equal Employment Opportunity Commission function, including but not limited Employment and the ADA disability if it would substantially limit to, functions of the immune system, Amendments Act of 2008 a major life activity when active; normal cell growth, digestive, • Provides that an individual bowel, bladder, neurological, brain, The ADA Amendments Act of 2008 subjected to an action prohibited respiratory, circulatory, endocrine, makes important
Load more

Recommended publications
  • Arts and Special Education Exemplary Programs and Approaches Introduction
    2013 VSA Intersections: Arts and Special Education A Jean Kennedy Smith Arts and Disability Program Exemplary Programs and Approaches Acknowledgments and Credits The John F. Kennedy Center Authors for the Performing Arts Sally Bailey, MFA David M. Rubenstein Chairman Jean B. Crockett, PhD Michael M. Kaiser Rhonda Vieth Fuelberth, PhD President Kim Gavin, MA Darrell M. Ayers Beverly Levett Gerber, EdD Vice President, Education and Jazz Donalyn Heise, EdD Betty R. Siegel Director, VSA and Accessibility Veronica Hicks, MA Lynne Horoschak, MA Editor Sophie Lucido Johnson Sharon M. Malley, EdD Karen T. Keifer-Boyd, PhD Editorial reviewers L. Michelle Kraft, PhD Beverly Levett Gerber, EdD Linda Krakaur, MSt Karen T. Keifer-Boyd, PhD Lynda Ewell Laird, MM Laurie MacGillivray, PhD Alice Hammel, PhD Tim McCarty, MA Barbara Pape, EdM Mark Tomasic, MFA You are welcome to copy and distribute this publication with the following credit: Produced by The John F. Kennedy Center for the Performing Arts, © 2014. The content of this publication, developed under a grant from the U.S. Department of Education, does not necessarily represent the policy of the U.S. Department of Education. You should not as- sume endorsement by the federal government. Contents Introduction 5 Sharon M. Malley, Editor Next Steps: New Research and Teaching Journals 10 at the Intersection of the Arts and Special Education Beverly Levett Gerber, Karen T. Keifer-Boyd, and Jean B. Crockett Exemplary Theatre Practices: Creating Barrier-Free Theatre 25 Sally Bailey Visual Theatre: Building
    [Show full text]
  • Make Your Marketing More Accessible June 20, 2019 Cuyahoga Falls, Ohio
    Make Your Marketing More Accessible June 20, 2019 Cuyahoga Falls, Ohio 6/20/2019 VSA Ohio Welcome & Thanks • You • ArtsNow • City of Cuyahoga Falls • Ohio Arts Council 6/20/2019 VSA Ohio Agenda • Tip #1 – get to know your audience • Tip #2 – write an access statement • Tip #3 – audit your outlets • Tip #4 – use images • Tip #5 – adapt your designs • Tip #6 – the digital age • Tip #7 – spread the word • Your Marketing Materials *Ask Questions Any Time 6/20/2019 VSA Ohio Tip #1 Get to Know your Audience 6/20/2019 VSA Ohio Common Disabilities • Vision Loss • Hearing Loss • Mobility disability • Intellectual disability • Developmental disability • Learning disability • Speech / Language disability • Psychological / Emotional • Chronic health issues • Multiple disabilities 6/20/2019 VSA Ohio Vision 6/20/2019 VSA Ohio Mobility 6/20/2019 VSA Ohio Hidden 6/20/2019 VSA Ohio Market Power • Disposable income for working‐age people with disabilities is about $490 Billion. • Discretionary income for working‐age people with disabilities is about $21 Billion. ‐ African Americans ($3 billion); Hispanics ($16 billion) • 66% of consumers will purchase good and services from a business that features people with disability in their advertising. • 78% of consumers will purchase goods and services from a business that takes steps to ensure easy access for people with disabilities. • The market potential is even larger when one considers the friends, family members, caregivers, colleagues, and others who are connected to consumers with disabilities. American Institutes for Research (April 2018) 6/20/2019 VSA Ohio Examples Microsoft – new game control Swiffer – everyday cleaning 6/20/2019 VSA Ohio Partners + People • Involve people with disabilities! • Word of Mouth is Very important • Service Organizations / Providers • Advocacy Groups • County Boards of Disabilities • Get to know your regional partners 6/20/2019 VSA Ohio Tip #2 Write an Access Statement 6/20/2019 VSA Ohio Access Statement • Tell your audiences what / who you stand for.
    [Show full text]
  • Press Release for RELEASE: August 5, 2019
    Press Release FOR RELEASE: August 5, 2019 The John F. Kennedy Center for the Performing Arts announces the Leadership Exchange in Arts and Disability (LEAD®) Awards Presented during the 19th Annual Kennedy Center Leadership Exchange in Arts and Disability Conference August 3–7, 2019 in Denver, Colorado Six Emerging Leaders, Four Community Asset Award Recipients, and Two Awards for Excellence in Accessibility Leadership in the Field of Arts and Disability to be Recognized at Awards Ceremony during Conference (WASHINGTON)— The John F. Kennedy Center for the Performing Arts today announced its Leadership Exchange in Arts and Disability (LEAD®) Awards during the 19th annual Kennedy Center LEAD® Conference, August 3-7, 2019, at the History Colorado Center in Denver, Colorado. The LEAD® Awards, presented during the conference, recognize outstanding arts administrators and cultural arts organizations whose leadership and work furthers the field of accessibility. The LEAD® Award for Emerging Leaders was created in 2008 to acknowledge arts administrators who are motivated by the LEAD® conference to become an advocate for accessibility within their own organizations and communities. These individuals have successfully applied what they learned at previous LEAD® conferences to shape opportunities that are inclusive of people with disabilities and older adults in the cultural arts. The 2019 awardees include: Sara Birkofer, Manager of Accessibility and Gallery Programs, Cincinnati Art Museum in Cincinnati, Ohio Kayle Rieger Patton, Education & Accessibility
    [Show full text]
  • Press Release Visual Art Exhibition Featuring 15 Emerging Artists With
    Press Release FOR RELEASE: October 10, 2019 Images Located here. presents Visual Art Exhibition featuring 15 Emerging Artists with Disabilities to Tour Nationally, November 2019–September 2020 (WASHINGTON)—VSA, the Kennedy Center’s international organization on arts and disability, will present artwork by 15 emerging young artists with disabilities in a traveling exhibition. Titled Connected, this year-long national tour kicks off in Washington, D.C. at the Rayburn House Office Building on October 22, 2019, and is presented through generous support from Volkswagen Group of America. The 2019 VSA Emerging Young Artists Competition, a Jean Kennedy Smith Arts and Disability Program of the Kennedy Center, drew submissions from talented young artists with disabilities, ages 16-25, from around the U.S. This year’s theme, around which the artists were challenged to create work, asks artists to connect, to span new distances, and to see unexpected relationships. The winners, selected from a pool of hundreds of applicants, were chosen based on the quality of their work, artistic proficiency, and enlightening or compelling interpretations of the theme. “What was the last connection, or disconnection, you made? Was it via a story, idea, or commonality? The ties we experience, whether positive or negative, spark a greater understanding of our connected lives. It can overwhelm or it can create important new discoveries.” said Betty Siegel, Director of VSA and Accessibility of the Kennedy Center. “These young artists have delved into connections in their lives that resonate deeply with their work. It also makes visible what is often overlooked and challenges us to see the world from a different point of view, and through their personal lens.
    [Show full text]
  • The Kennedy Center
    California State University, San Bernardino CSUSB ScholarWorks Art Education Case Studies Art 11-2016 The Kennedy Center Sylvia Quast Follow this and additional works at: https://scholarworks.lib.csusb.edu/art-edu-study Recommended Citation Quast, Sylvia, "The Kennedy Center" (2016). Art Education Case Studies. 2. https://scholarworks.lib.csusb.edu/art-edu-study/2 This Presentation is brought to you for free and open access by the Art at CSUSB ScholarWorks. It has been accepted for inclusion in Art Education Case Studies by an authorized administrator of CSUSB ScholarWorks. For more information, please contact [email protected]. THE KENNEDY CENTER THE INTERNATIONAL ORGANIZATION ON ARTS AND DISABILITY Sylvia Quast https://www.youtube.com/watch?v=fcuh2MH7Jew WHAT IS THE VSA? • VSA- Very Special Arts, an affiliate of the Kennedy Center • The VSA is an international organization with the goal of providing art accessibility to children and adults with disabilities • Founded in 1974, more then 7 million people participate in the program every year • Today there are 36 affiliates in the United States, and 52 international affiliates that provide art education JEAN KENNEDY SMITH “Art is not a luxury, art is central to what makes us fully human” • Founder of VSA • Sister of President F. Kennedy and former U.S. Ambassador to Ireland • Has first-hand knowledge of difficulties that people with disabilities face as her older sister, Rosemary, had an intellectual disability • Believes that every person has the right to artistic pursuit and that
    [Show full text]
  • Early Childhood Building Blocks – Universal Design for Learning
    Early Childhood Building Blocks Universal Design for Learning in Early Childhood Inclusive Classrooms Julie Bertling, Merrie Darrah, Diana Lyon, and Sarah Jackson InTroDUCTIon Picture This: Universal Design for Learning in an Inclusive Preschool Today Teresa Parker is planning to talk with the children in her class about different types of vehicles and their uses as a way to introduce new vocabulary and help the children make observations about and comparisons between objects. It is circle time, and the preschool children in Ms. Teresa’s classroom are excited. Children begin to gather on the rug, pull out a pillow to sit on, or sit on their chairs to sing familiar songs together. During “Wheels on the Bus,” they use their homemade plastic egg shakers. They shake down low, up high, side to side, and around in a circle, responding to Ms. Teresa’s instructions and following her cues (moving her shaker in a circle and saying “wheels go round and round” before the verse begins). They read the story Away We Go! by Rebecca Kai Dotlich about different kinds of transportation vehicles. 2 3 4 7 What’s Inside Rationale oRigin of udl UDL Basics challenges udl elements Two children—Jason and Mylee—are seated on inflatable also work in the writing area and the art area to write disc cushions. They use these cushions to help with stories and make pictures of their cars and trucks. They stabilization, muscle control, and balance. The extra can use markers, finger paints, glitter glue, or a computer support helps them participate successfully in the group program to make their picture.
    [Show full text]
  • Fair Housing and Land Use Planning & Regulation in Chittenden County
    Fair Housing and Land Use Planning & Regulation in Chittenden County, Vermont A summary of municipal fair housing responsibilities. A review of municipal plans & land-use ordinances and the 2006 Chittenden County Regional Plan. A set of fair housing checklists for municipal officials to use when revising plans & bylaws and when considering taking other actions. December 2008 Developed for: CVOEO Fair Housing Project with a grant from HUD Developed by: Chittenden County Regional Planning Commission (CCRPC) Staff Fair Housing and Land Use Planning & Regulation in Chittenden County, Vermont December 2008 Developed for: CVOEO Fair Housing Project with a grant from HUD Developed by: Chittenden County Regional Planning Commission (CCRPC) Staff A summary of municipal fair housing responsibilities. A review of municipal plans & land-use ordinances and the 2006 Chittenden County Regional Plan. A set of fair housing checklists for municipal officials to use when revising plans & bylaws and when considering taking other actions. The Concept of Fair Housing Fair housing laws are intended to ensure that people have equal access to housing that meets their needs. These laws prevent housing discrimination and enable the people who experience it to seek redress for the wrong done to them. Fair housing laws also protect all property owners and residents from being victimized by destructive discriminatory practices (such as steering potential residents to certain neighborhoods) that all-too-often diminish property values and destroy communities. The federal Fair Housing Act 1 prohibits discrimination based upon race, color, religion, gender, familial status, national origin, or disability in the sale, rental, appraisal, financing, or advertising of housing.
    [Show full text]
  • A National Juried Exhibition of 15 Emerging Young Artists
    A NATIONAL JURIED EXHIBITION OF 15 EMERGING YOUNG ARTISTS WITH DISABILITIES COVER IMAGE: Monica Chulewicz I’m Not Here For You To Taunt, 2016 Cyanotype prints on vintage dress (90 in x 35 in) Contents About VSA Emerging Young Arts Program .. 4 Nicholas Fagan ................... 18 Introduction ...................... 5 Benjamin Gibbs .................. 21 Harrison Halker Heinks ............. 22 Artist Biographies Zàira Lee ....................... 25 Monica Chulewicz .................. 6 Jeremie Austin Miller .............. 26 Victoria Dugger .................... 9 Abigail Nash ..................... 29 Kate Pincus-Whitney ............... 10 Alexandra Novess ................. 30 Mara Clawson ................... 13 Alice Shockey ................... 33 Courtney Wynn Cooper ............. 14 Darryl Terrell .................... 34 Christine Driscoll ................. 17 Jury Panel ...................... 36 About VSA Emerging Young Arts Program Since 2002, the Kennedy Center and Volkswagen Group of America have teamed up for the VSA Emerging Young Artists Program, a Jean Kennedy Smith Arts and Disability Program, to recognize and showcase the work of emerging young artists living with disabilities, ages 16-25, who are currently residing in the United States. This collaboration creates opportunities for these artists at a critical time when many are making the life-defining choice to pursue arts-based careers. VSA and Volkswagen are committed to investing in the future of young artists living with disabilities. Every year, hundreds of emerging young artists living with disabilities compete to be included in a curated exhibition, formed around a unique theme. After a rigorous adjudication process, 15 artists are selected to showcase their work and receive: 1) a $20,000 grand prize, a $10,000 first prize award, a $6,000 second prize award, and 12 $2,000 awards of excellence; 2) 3 days of all-expenses paid professional development workshops in Washington, D.C.; and 3) the opportunity to have their work displayed in an exhibition that opens in Washington, D.C.
    [Show full text]
  • Semg-Based Natural Control Interface for a Variable Stiffness Transradial Hand Prosthesis Elif Hocaoglu, Member, IEEE and Volkan Patoglu, Member, IEEE
    IEEE/ASME TRANSACTIONS ON MECHATRONICS, VOL. XX, NO. X, OCTOBER 2019 1 sEMG-Based Natural Control Interface for a Variable Stiffness Transradial Hand Prosthesis Elif Hocaoglu, Member, IEEE and Volkan Patoglu, Member, IEEE Abstract—We propose, implement and evaluate a natural unnatural use, and discomfort [5]. Myoelectrically controlled human-machine control interface for a variable stiffness trans- powered prostheses provide some advantages over the body- radial hand prosthesis that achieves tele-impedance control powered ones in terms of providing higher grip strength through surface electromyography (sEMG) signals. This inter- face, together with variable stiffness actuation (VSA), enables with less fatigue, more functionality, and less harnessing. an amputee to modulate the impedance of the prosthetic limb Notwithstanding such benefits, the consensus is that they give to properly match the requirements of a task, while performing rise to pain, have high cost, are heavy and inconvenient due to activities of daily living. Both the desired position and stiffness the need to regularly charge the battery and provide periodic references are estimated through sEMG signals and used to maintenance [5], [6]. All these factors negatively influence control the VSA hand prosthesis. In particular, regulation of hand impedance is managed through the impedance measurements of their acceptance. the intact upper arm; this control takes place naturally and Many research groups have investigated means to close automatically as the amputee interacts with the environment, the acceptance gap by orienting their studies to increase the while position of the hand prosthesis is regulated intentionally by dexterity and functionality of prosthetic hand devices. In both the amputee through the estimated position of the shoulder.
    [Show full text]
  • Planning for Transition 11 October 2017 St Mary’S Church Centre, Inverurie
    Going Forward—Preparing parents for transition Planning for transition 11 October 2017 St Mary’s Church Centre, Inverurie Information for parents, carers and families Things you need to know Education/training All universities and most colleges now have Disability Officers. Contact them before deciding where to apply, as how well they meet a young person’s needs can make a big difference to completing a course successfully. There are many options for community based learning as an adult, including open learning, skills based learning and certificated programmes. These are helpful if young people leave school without formal qualifications or with qualifications that do not reflect their abilities. LEAD Scotland can advise on options and funding for disabled learners. See list for details. Education Maintenance Allowance is a means-tested grant for young people with a Learning Agreement through their school to stay on in 5th and 6th year. Disabled Student’s Allowance is not income assessed: funds can be used towards for example equipment, personal help or special dietary needs. Work Skills Development Scotland offers career planning support alongside information about courses, community learning, work experience and volunteering opportunities. See list for details. Many disability organisations can also help with broader based person centred life planning. Money and benefits Check you are receiving all your entitlements. Contact your local Citizens’ Advice Bureau (see list) or call Contact’s helpline on 0808 808 3555. Child benefit ends at 16 but may continue to 19 if someone is in full time education– check if this applies to you. Other options, e.g.
    [Show full text]
  • A Celebration of Arts and Disability Part 7
    Artists PERFORMING ARTISTS Papa Henry Butler and the VISUAL ARTISTS Derrick, Louisiana Steamin’ Syncopators, Louisiana Colby, Maine Comedy Azariah Tan Peng Chay, Arte Postale Exhibition * Anthony, Maryland Josh Blue, Colorado Singapore at the U.S. Department Marcellus, Massachusetts Kathy Buckley, California Guywood Dela Cruz, Hawaii of Education Kelsey, Michigan Brett Leake, Virginia Martin Deschamps, Canada Angel, Argentina Phoenix, Minnesota Briana Duensing, Florida Jose, California Vallye, Mississippi Dance Forró no Escuro, Brazil Sydney, Connecticut Victoria, Missouri Artes Muy Especiales Youth Quamon Fowler Quartet, Texas Jonathan, Andrea, Yadira, and Christopher, Montana Dance Company, Guatemala Melody Gardot, Pennsylvania Carlos, Ecuador** Nefertiti, Nebraska AXIS Dance, California Dame Evelyn Glennie, Heba Sayed, Egypt Yuri, Nevada Blue Eyed Soul Dance Company, United Kingdom Shaymaa, Egypt Donaman, New Hampshire United Kingdom Ju Hyeon Han, New Zealand Julie, France Alex, New Jersey China Disabled People’s Narimichi Kawabata, Japan Matthieu, France Yonathan, New Mexico Performing Art Troupe, Salif Keita, Mali Ansley, Georgia Maurice, New York People’s Republic of China Patti LaBelle Larry, Illinois Alexis, North Carolina CIM–Integrated Multidisciplinary Lake Rise Place, Tennessee Kyle, Indiana Michael, North Dakota Company, Portugal Prudence Mabhena, Zimbabwe Mohammad, Jordan Adrian, Ohio Dagipoli Dance Company, Greece Raul Midón, Maryland Nzula, Kenya Amanda, Oklahoma The Dancing Wheels Company, Dotan Nitzberg, Israel Peter,
    [Show full text]
  • National Financial Resources List
    When a family or individual is faced with a progressive condition such as DM1 or DM2 they are often presented with additional financial expenses as well as loss of a steady income. This section attempts to gather financial resources that are available on a federal/national level for persons living in the United States. By no means is this section complete; we invite you to share with us any resources you’ve identified. This is an on-going project. We will add more resources as we gather them; please send us resources you know of that are not currently listed. Please be advised that each organization has its own eligibility and application requirements. None of these organizations are affiliated with the Myotonic Dystrophy Foundation. We hope you will share your experiences with us – let us know if you are successful in finding a good resource to help your family. Andre Sobel Grants: The Andre Sobel River of Life Foundation (ASRL) helps with urgent expenses to allow single parents to stay at their child's bedside during catastrophic illness. The Andre Sobel River of Life Foundation works through a network of five pediatric hospitals that help families access ASRL assistance funds, typically within 24 hours. If your child is being treated at one of these centers, please contact your child’s social worker directly for more information on how to obtain aid from the foundation’s program, or e-mail ASRL at [email protected]. http://andreriveroflife.org/forfamilies-and-social-workers/partners Easter Seals Disability Services: Easter Seals is a national organization with offices throughout the country.
    [Show full text]