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Jacqueline M. McGinley, PhD, LMSW

Department of Social Work, College of Community and Public Affairs PO Box 6000 Binghamton, NY 13902-6000 [email protected] • 607/777-9188

EDUCATION

2018 PhD University at , School of Social Work Dissertation: A retrospective study of the last year of life for people with intellectual disabilities in community residences (Deborah P. Waldrop, Chair)

2007 MSW Rutgers, the State University of New Jersey Concentration: Mental Health & Aging

2005 BA Major: & Anthropology

PROFESSIONAL CERTIFICATIONS

2018-2019 Fellow Leadership Education in Neurodevelopmental Disabilities (LEND)

2008-Present Licensed Master Social Worker New Jersey (License Number 44SL05479400) State (License Number 087198-1)

2005-2007 Certificate Program in Developmental Disabilities The Boggs Center on Developmental Disabilities Rutgers, the State University of New Jersey

EMPLOYMENT

2019-Present Assistant Department of Social Work, Binghamton University, Binghamton, NY

2018-2019 Lecturer Social Work Department, , Buffalo, NY McGinley, CV 2

2018-2019 Research Associate Buffalo Center for Social Research, , Buffalo, NY

2018-2019 Adjunct Instructor Department of Social Work, Roberts Wesleyan College, Rochester, NY

2018-2019 Adjunct Instructor Social Work Program, Keuka College, Keuka Park, NY

2016-2019 Adjunct Instructor School of Social Work, University at Buffalo, Buffalo, NY

RESEARCH INTERESTS

• Intellectual and Developmental Disabilities • Aging Populations and their Families • End-of-life Care and Bereavement

PUBLICATIONS

Peer-reviewed Meeker, M. A., McGinley, J. M., & Jezewski, M. A. (2019). Metasynthesis: Dying adults’ transition process from cure-focused to comfort-focused care. Journal of Advanced Nursing, 75(10), 2059-71. doi: 10.111/jan.13970

Waldrop, D. P., McGinley, J. M., Dailey, M. W. & Clemency, B. (2019). Decision-making in the moments before death: Challenges in prehospital care. Prehospital Emergency Care, 23(3), 356-63. doi: 10.1080/10903127.2018.1518504

McGinley, J. M. & Knoke, V. (2018). Conceptualizing person-centered care for older adults with intellectual disabilities: A multifaceted theoretical approach. Ethics and Social Welfare, 12(3), 244-258. doi: 10.1080/17496535.2018.1505929

Waldrop, D. P. & McGinley, J. M. (2018). Magic happens here: Environmental serenity in residential hospice care. Journal of Housing for the Elderly, 32(3-4), 462-78. doi: 10.1080/02763893.2018.1505455

Waldrop, D. P., McGinley, J. M., & Clemency, B. (2018). Mediating systems of care: Emergency calls to long-term care facilities at life’s end. Journal of Palliative Medicine, 21(7), 987-91. doi: 10.1089/jpm.2017.0332

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Waldrop, D. P., McGinley, J. M., & Clemency, B. (2018). The nexus between the documentation of end-of-life wishes and awareness of dying: A model for research, education and care. Journal of Pain and Symptom Management, 55(2), 522-529. doi: 10.1016/j.jpainsymman.2017.09.010

McGinley, J. M., Waldrop, D. P., & Clemency, B. (2017). Emergency medical services providers’ perspectives of end-of-life decision-making for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 30(6), 1057-64. doi: 10.1111/jar.12363

McGinley, J. M. (2016). From nonissue to healthcare crisis: A historical review of aging and dying with an intellectual and developmental disability. Intellectual and Developmental Disabilities, 54(2), 151-156. doi: 10.1352/1934-9556-54.2.151

Under Review McGinley, J. M. & Hull, E. S. (under review). Inclusion at the end-of-life: A comparative case study of hospice and hospital-based care for aging adults with intellectual and developmental disabilities. Inclusion.

McGinley, J. M. & Waldrop, D. P. (under review). Navigating the transition from advanced illness to bereavement: How provider communication informs family-related roles and needs. Journal of Social Work in End-of-life & Palliative Care.

Waldrop, D. P. & McGinley, J. M. (revise & resubmit). “I want to go home”: How location at death influences caregiver well-being in bereavement. Palliative & Supportive Care.

In Progress McGinley, J. M., Marsack, C., Church, H., & Knoke, V. (in progress). Advance care planning for people with lifelong disabilities: A content analysis of state-level person-centered service plans. Intellectual and Developmental Disabilities.

Waldrop, D. P., Waldrop, M. R., McGinley, J. M., Crowley, C. R., & Clemency, B. (in progress). Managing death in the field: Prehospital end-of-life care. Journal of Palliative Medicine.

McGinley, J.M. (in progress). Falling off a cliff: A retrospective study of illness trajectories and end-of-life experiences of people with intellectual and developmental disabilities in community residences. American Journal on Intellectual and Developmental Disabilities.

Book Chapters McGinley, J.M. & Waldrop, D. P. (in progress). Advance care planning with and for people who have intellectual and developmental disabilities. In McCallion, P., Stancliffe, R. J., Wiese, M., & McCarron, M. (Eds.), End of life and people with intellectual and developmental disabilities: Contemporary issues, challenges, experiences, and practice. London: Palgrave MacMillan.

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McGinley, J. M. & Waldrop, D. P. (2019). The interrelationship between aging, trauma, and end of life. In Butler, L. D., Critelli, F., & Carello, J. (Eds.), Trauma and human rights: Integrating approaches to address human suffering. London: Palgrave MacMillan.

Other McGinley, J. M. & Waldrop, D. P. (2019). Beyond Zumba and karaoke: Advance care planning comes to the senior center near you. Aging Today.

McGinley, J. M. (2018). Hot release research corner. American Association on Intellectual and Developmental Disabilities Student and Early Career Professionals Blog. https://tinyurl.com/AAIDDSECP

McGinley, J. M. & Waldrop, D. P. (2017). Film review: Mimi and Dona by Sophie Sartain. Journal of Gerontological Social Work. Online first. doi: 10.1080/01634372.2017.1336507

PRESENTATIONS

Peer-reviewed Waldrop, D. P., McGinley, J. M., & Clemency, B. (2019, November). Managing death in the field: How emergency medical services teams provide end-of-life care. Poster presentation at the Gerontological Society of America Annual Scientific Meeting, Austin, TX.

Waldrop, D. P. & McGinley, J. M. (2019, November). Place matters: How location at death influences caregiver well-being in bereavement. Poster presentation at the Gerontological Society of America Annual Scientific Meeting, Austin, TX.

Church, H., McGinley, J. M., Marsack, C., & Knoke, V. (2019, August). Advance care planning as a component of person-centered planning. Poster presentation at the World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow.

McGinley, J. M. (2019, May). Like falling off a cliff: A retrospective study of illness trajectories and end-of-life experiences of people with intellectual & developmental disabilities in community residences. Poster presentation at the American Academy of Developmental Medicine and Dentistry, Rochester, NY.

Leopold, B. & McGinley, J. M. (2019, April). Widowed older adults & the resulting psychological issues. Poster presentation at the Buffalo State College Student Research & Creativity Conference, Buffalo, NY.

McGinley, J. M., Marsack, C., Church, H., & Knoke, V. (2018, November). Advance care planning for people with intellectual disabilities: A state-by-state content analysis. E-poster at the CSWE Annual Program Meeting, Orlando, FL.

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Knoke, V., McGinley, J. M., Marsack, C., & Church, H. (2018, November). Advance care planning for people with lifelong disabilities: A content analysis of state- level person-centered service plans. Symposia at the Gerontological Society of America Annual Scientific Meeting, Boston, MA.

Knoke, V., McGinley, J. M., Marsack, C., & Church, H. (2018, June). Advance care planning for people with intellectual and developmental disabilities: A state-by- state content analysis of person-centered service plans. Poster symposia at American Association on Intellectual and Developmental Disabilities Annual Meeting, St. Louis, MO.

McGinley, J. M., Waldrop, D. P., & Clemency, B. (2017, July). End of life decisions for people with intellectual disabilities: Prehospital providers’ perspective. Poster presentation at the IAGG World Congress of Gerontology and Geriatrics, San Francisco, CA.

Waldrop, D. P. & McGinley, J. M. (2017, July). Indelible memories: The impact of end-of-life decisions on bereaved caregivers. Poster presentation at the IAGG World Congress of Gerontology and Geriatrics, San Francisco, CA.

Waldrop, D. P. & McGinley, J. M. (2017, July).). How advance care planning influences the end-of-life experience: Bereaved caregivers’ perspective. Paper presentation at the IAGG World Congress of Gerontology and Geriatrics, San Francisco, CA.

Waldrop, D. P. & McGinley, J. M. (2017, July).). Emergency calls to nursing homes at life’s end: Providers’ perspectives. Paper presentation at the IAGG World Congress of Gerontology and Geriatrics, San Francisco, CA.

McGinley, J. M. & Nam, Y. (2016, June). Evaluating the influence of federal policy on IDD professionals: Has DOJ enforcement of Olmstead changed ICF-IIDs? Poster presentation at American Association on Intellectual and Developmental Disabilities Annual Meeting, Atlanta, GA.

McGinley, J. M. & Waldrop, D. P. (2016, November). Knowledge and beliefs about healthcare decision-making: Are older adults’ attitude changing? Poster presentation at the Gerontological Society of America Annual Scientific Meeting, New Orleans, LA.

Waldrop, D. P. & McGinley, J. M. (2016, November). Emergency end-of-life calls in long-term care: Through the lens of prehospital providers. Poster presentation at the Gerontological Society of America Annual Scientific Meeting, New Orleans, LA.

Waldrop, D. P. & McGinley, J. M. (2016, March). “I had no idea he was dying”: Barriers to meaningful communication life-limiting illness. Poster presentation at the American Academy of Hospice and Palliative Medicine Annual Assembly, Chicago, IL. McGinley, CV 6

Waldrop, D. P. & McGinley, J. M. (2015, November). Loss and the aging process: How advance care planning influences bereaved caregivers’ well-being. Poster presentation at the Gerontological Society of America, Orlando, FL.

Other Bakk, L. & McGinley, J. M. (2018, September). Racial & ethnic differences in cost- related nonadherence & Medicare Part D: A longitudinal comparison. Invited interviewer for inSocialWork Podcast Series.

McGinley, J. M. (2018, May). Care, quality, & respect: Best practices in aging and end- of-life care for people with developmental disabilities, Invited presentation at the Everas Community Services, Inc. Annual Retreat, Somerset, NJ.

McGinley, J. M. (2017, September). Palliative care and end stage renal disease. Invited presentation at the Upstate and Council of Nephrology Social Workers Conference, Buffalo, NY.

Waldrop, D. P. & McGinley, J. M. (2017, May). Lethality: Assessing & responding to suicide risk in hospice care and bereavement. Invited presentation at Hospice Buffalo Social Work Staff Development Meeting, Cheektowaga, NY.

Waldrop, D. P. & McGinley, J. M. (2017, March). Trauma, aging, and end-0f-life care (online module). Invited lecture for the Institute for Trauma and Trauma Informed Care, Buffalo, NY.

Waldrop, D. P. & McGinley, J. M. (2017, February). Emergency medical services calls in the moments before death: The clash of two cultures. Paper presentation at the Buffalo Center for Social Research Grand Rounds, Buffalo, NY.

Kusmaul, N., Kendall, L., & McGinley, J. M. (2017, January). Impacts of trauma in later life. Invited interviewer for inSocialWork Podcast Series.

McGinley, J. M. (2016, September). Billing, workflow, and the use of interdisciplinary teams to facilitate advance care planning in practice. Invited presentation at the P2 Collaborative Engaging Patients in End-of-life Decisions Conference, Buffalo, NY.

Greif, G., Woolley, M., & McGinley, J. M. (2016, April). Adult sibling relationships. Invited interviewer for inSocialWork Podcast Series.

Waldrop, D. P. & McGinley, J. M. (2015, September). Care and communication in late-stage illness: Exploring well-being in bereavement. Invited presentation to the Hospice Buffalo Research Team Meeting, Buffalo, NY.

McGinley, J. M. (2015, February). My three loves: A state-of-the-state on end-of-life care for people with intellectual and developmental disabilities. Pecha Kucha presentation at the University at Buffalo School of Social Work, Buffalo, NY. McGinley, CV 7

GRANTS & AWARDS

2019 Emerging Leader Association of University Centers on Disabilities

2018 Winner, Mary O’Donnell Memorial Scholarship Award University at Buffalo, School of Social Work

2017-2018 Dissertation Grant ($2380) Mark Diamond Research Fund, University at Buffalo

2017 Nominee, Student Award for Leadership and Service Group for the Advancement of Doctoral Education (GADE) in Social Work

2017 Senior Care Scholarship ($1000) A Place for Mom

2017 Nochajski Essay Award ($1000) University at Buffalo, School of Social Work

2016 Pass with Distinction, Comprehensive Examination University at Buffalo, School of Social Work

2015 Gerontological Social Work Pre-dissertation Initiative Fellow ($1500) Association for Gerontology Education in Social Work (AGE-SW)

2014-2018 Arthur A. Schomburg Fellow ($10,000 annual stipend x 4 years) University at Buffalo

2007 Honors Graduate, 4.0 GPA Rutgers, the State University of New Jersey

2005 Summa Cum Laude Graduate Elmira College

2004 Rhodes Scholar Nominee Elmira College

2001-2005 Valedictorian Scholarship (full tuition x 4 years) Elmira College

2001 Student Proposal Grant ($1000) Geraldine R. Dodge Foundation

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RESEARCH EXPERIENCE

2017-Present Principal Investigator Co-Investigators: Christina Marsack, PhD, LMSW (Eastern Michigan University); Heather Church, MA, RP, BCBA (Western University); Victoria Knoke, MSW (University of Wisconsin-Madison) Advance care planning for people with lifelong disabilities: A content analysis of state-level person-centered service plans. Responsibilities: Project coordination and oversight; instrument development; content analysis; presentation & publication preparation

2016-2018 Research Assistant PI: Mary Ann Meeker, DNS, RN (University at Buffalo, School of Nursing) Metasynthesis: Transitioning from cure-focused to comfort-focused healthcare Responsibilities: Metasynthesis (Atlas.ti); publication preparation

2015-2016 Research Intern Co-PI: Yunju Nam, PhD (University at Buffalo, School of Social Work) Evaluating the influence of federal policy on IDD professionals: Has DOJ enforcement of Olmstead changed ICF-IIDs? Responsibilities: Quantitative analysis of large-scale dataset (STATA); presentation preparation

2014-2018 Research Associate Supervisor: Deborah Waldrop, PhD, MSW (University at Buffalo, School of Social Work) Responsibilities: Grant writing; participant recruitment; semi-structured interviews; data entry; transcription; mixed-methods data analysis (SPSS & Atlas.ti); publication preparation & presentations

2005-2007 Research Assistant PI: Philip M. Brown, PhD , Center for Character Education Responsibilities: Data entry; grant writing; report preparation

TEACHING INTERESTS

• Gerontological Social Work • Disability Policy and Practice • Organizational & Community Social Work

TEACHING EXPERIENCE

Courses Taught Binghamton University (graduate) • SW 515: Social Welfare Policy & Programs (Fall 2019) McGinley, CV 9

Buffalo State College (undergraduate) • SWK 220: Introduction to Social Work (Fall 2018) • SWK 308: Human Behavior in the Social Environment II (Fall 2018) • SWK 317: Research Methods in Social Work (Spring 2019) • SWK 320: Social Service Organizations (Spring 2019)

University at Buffalo (graduate) • SW 706: Aging Populations and their Families (seated; Fall 2016) • SW 706: Aging Populations and their Families (online; 3 Semesters)

Roberts Wesleyan College (graduate) • SWK 701: Aging – Individual and Social Perspectives (Spring 2019)

Keuka College (graduate) • SWK 620: Advanced Ethics in Social Work Practice (Summer 2018) • SWK 635: Social Work Practice with Families (Summer 2018)

Teaching SW 706: Aging Populations and Their Families Assistantship (Instructor: Dr. Deborah Waldrop; 2 Semesters)

Other MSW Field Liaison (Binghamton University; 2019-Present)

University at Buffalo, School of Social Work (CEU Training: Grief and Loss for people with intellectual and developmental disabilities: Best practices across the lifecourse; July 2018)

SW 710: Loss and Grief Across the Life Course (Invited Lecture: Loss in Young Adulthood; Spring 2018)

University at Buffalo, School of Social Work (CEU Training: Getting it right for people with intellectual and developmental disabilities: Best practices in aging services and end-of-life care; February 2018)

SW 542: Perspectives on Trauma and Human Rights (Invited Lecture: Trauma, aging, & end-of-life care; online 2017-2018)

QbD: Strategies for Effective Teaching & Quality Course Design (State University of New York Learning Commons; delivered Fall 2016)

SW 710: Loss and Grief Across the Life Course (Invited Lecture: Loss in childhood; Fall 2015)

Strategies & Tools for Enhancing Student Learning Workshop (University at Buffalo; delivered Summer 2015)

MSW Field Agency Supervisor (Fordham University & Rutgers University; 2010-2011) McGinley, CV 10

PRACTICE EXPERIENCE

2007-2013 Assistant Executive Director; Program Director; Social Worker; Consultant Everas Community Services, Somerset, NJ

2009-2010 Social Worker/Behaviorist Community Access Unlimited, Elizabeth, NJ

2006-2007 Family Intervention Specialist Montclair University Project COPE, Montclair, NJ

2005-2006 Case Manager Intern NJ Department of Health & Senior Services, Trenton, NJ

2004 Social Work Intern Chemung ARC, Elmira, NY

PROFESSIONAL ENGAGEMENT

National Service Member, Publications Sub-committee (Alliance for Disability Health Care Education; 2019-Present)

Member, Gerontology Professional Interest Group (American Association on Intellectual and Developmental Disabilities; 2018- Present)

Member, Social Work Professional Interest Group (American Association on Intellectual and Developmental Disabilities; 2015- Present)

Chair, Student and Early Career Professionals Scholarship Committee (American Association on Intellectual and Developmental Disabilities; 2012- 2018)

University Service Member, The Rural and Underserved Service Track (TRUST) Advisory Board (Binghamton University; 2019-Present)

Member, Interprofessional Education Working Group (Binghamton University; 2019-Present)

Member, Field Advisory Council (Binghamton University, Department of Social Work; 2019-Present)

Member, Self-study Committee (SUNY Buffalo State, Department of Social Work; 2018-2019)

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Member, Professional Academic Performance Standards Committee (SUNY Buffalo State, Department of Social Work; 2018-2019)

Member, PhD Program Committee (University at Buffalo, School of Social Work; 2015-2016 & 2017-2018)

Member, Committee on Students (University at Buffalo, School of Social Work; 2016-2017)

Chair, Navigation (PhD Student Organization) (University at Buffalo, School of Social Work; 2015-2016)

Member, End-of-life Interdisciplinary Research Team (University at Buffalo, School of Nursing; 2014-2018)

Community Member, Behavior Management Committee Service (Everas Community Services, Somerset, NJ; 2008-2016)

Ad Hoc Reviewer Patient Education and Counseling Journal of Applied Research in Intellectual Disabilities

Professional American Association on Intellectual and Developmental Disabilities Memberships Council of Social Work Education Gerontological Society of America Society for Social Work and Research