Font Used: Variable Regular Color Blue: Hex: #038087 CMYK: 93, 23, 4, 0 PMS 7461 / Black This special feature was funded by OCTOBER 2020 SPECIAL FEATURE Pyruvate Kinase Deficiency Through the Decade – 2010 to 2020 © 2020 The Lynx Group, LLC Pyruvate Kinase President/CEO Brian Tyburski Executive Vice President Deficiency Through Nicholas Englezos
[email protected] Executive Vice President John W. Hennessy the Decade –
[email protected] Executive Vice President Russell Hennessy 2010 to 2020
[email protected] Executive Vice President Philip Pawelko
[email protected] Executive Vice President Shannon Sweeney
[email protected] Senior Vice President, Finance Andrea Kelly Senior Director, Human Resources table of contents Mara Castellano Senior Medical Director John Welz AONN+ Program Director Sharon S. Gentry, MSN, RN, HON-ONN-CG, AOCN, CBCN Senior Director, Education and Program Development 3 Part 1: Review of Pyruvate Kinase Deficiency & Co-Director, Certification Emily Gentry, BSN, RN, HON-ONN-CG, OCN Director, Patient Navigation Program Development & Co-Director, Certification 12 Part 2: Patient Perspectives on Living with Monica Dean, HON-OPN-CG PK Deficiency Custom Publishing Editorial Director Todd Kunkler Senior Director, Quality Control Barbara Marino Senior Director, Production & Manufacturing 15 Part 3: Summaries of PK Deficiency Literature Alaina Pede (2010-2020) Senior Director, Creative & Design Robyn Jacobs Senior Director, Digital Marketing Samantha Weissman 19 Glossary Director, Association Project Management Rachael Baranoski Managing Director John Vassiliou Vice President, Account Group Supervisor Alexandra Charles Deanna Martinez Account Group Supervisors Debora Burke Pamela Intile Published by The Lynx Group, LLC, 1249 South River Rd, Suite 202A, Cranbury, NJ 08512. Copyright © 2020 by The Lynx Group, LLC.