Annual Report 2009/10

Making a connection Making a difference Our vision Our Cancer defeated Our vision will be realised when lives are not cut short nor the quality of life role and diminished by cancer. purpose Our mission To defeat cancer through engaging the community We are an independent Cancer Council NSW connects people and organisations to the cancer and forward-thinking cause. Together we can build insights into the significance of cancer in community of people, our lives and contribute our talents towards the vision of cancer defeated. where ideas and charity We work across all cancers. come together to make The impact from our work together will be visible in changing: a difference in the fight • The lives of cancer patients and carers against all cancers. • Scientific knowledge • Community understanding and behaviour • Society, policy and practice to advance cancer control. Increasingly, people will work in organisations and live in families and social settings which advance the control of cancer and where resources (people/volunteers/pro bono) are developed globally and locally to meet the challenges of cancer.

Annual Report contents Message from the Chair 2 Our management 28 Message from the CEO 3 Thank you 32 Financial summary 4 Summarised financial report 36 Strategic Priorities 6 Our governance 44 Our people 16 Our structure 46 Our organisation 20 Publications 52 Our Board 24 Submissions 55 1

The incidence of cancer in our community The good news is that the rate of survival is extensive. The most recent figures from cancer has increased substantially Who available show that more than 36,000 over the past 25 years and NSW is now new cases of cancer are expected to be among the best in the world. In each diagnosed in NSW each year. Cancer has decade since our inception, Cancer we are the largest disease burden in this state Council NSW has been a key agent for and is the greatest source of premature critical shifts in cancer control which have At Cancer Council NSW, death. Tragically, there are 13,227 cancer contributed to this fall in cancer death we believe that the deaths in NSW annually, representing rates. However, there remain a significant 29 percent of all deaths in the state. number of high-mortality cancers – such enormous capability as brain, liver, oesophageal and residing in communities The impact of cancer as a very personal pancreatic – and we are strongly can be unlocked to beat concern is reinforced every day within our committed to researching and fighting organisation. Witnessing the human cost these cancers through major cancer. The greatest of cancer unites our staff, volunteers, investments and key partnerships. impact can be achieved donors and communities all over NSW. by treating cancer as a We are constantly reminded that every person diagnosed with cancer is a social issue rather than loved one, friend, parent, child, sibling, purely as a health issue. colleague and valued part of a community.

1 To drive major advances in research, ensuring no cancer is ignored 2 Our To eensurenssure the NSWNSW To expand the community acts to prevent opportunities available Strategic cancer and/or detect it at 5 for people to contribute a curable stage to our work by giving money or fundraising Priorities

3 To givegive the NSWNSW To ensure no one faces a communitymmunity a voice on 4 cancer diagnosis alone issues and entitlements around cancer

Cancer Council NSW Annual Report 2009/10 Message from the Chair

2

It has been a significant Throughout this annual report, you will see the outcomes of the work undertaken Making a year for Cancer in 2009/10. You will see our statement of Council NSW. values, our organisational attributes and the Strategic Priorities that will drive us for connection Our 2005–2009 strategic plan has the next five years. been reviewed and as a result we set Our structure and Board the organisation’s strategy for the next five years. Cancer Council NSW is a member of Cancer Council Australia along with the Reviewing Cancer Council’s achievements other state and territory Cancer Councils. since 2005 showed intense growth in the Fellow Cancer Council NSW Director, organisation, including new programs, Stephen Roberts, and I are also members innovative research and engagement of the Board of Cancer Council Australia, strategies. We have recognised the where we contribute to its strategic constant need to adapt so that we could decision- and policy-making activities. meet the needs of the community and Through Cancer Council Australia we the changes in the cancer landscape. are able to engage in and drive national We implemented changes in technology policies and initiatives that benefit the and we embraced new ways of whole community. engaging communities, fundraising and researching. Our Board is made up of 10 non- executive members, and we work to You can read a summary report of our five- ensure the organisation acts in the best year achievements on our Cancer Council interests of the people of NSW with due NSW website at www.cancercouncil. diligence and sound governance. All com.au/annualreport2010. I am sure Directors are unpaid, and are passionate you will be impressed by the list, which supporters of Cancer Council NSW. You is by no means exhaustive, but certainly can read more about our backgrounds, reflects the many initiatives taken by the roles and reporting in this annual report. organisation in this five-year period. Our common direction Looking ahead I feel enormously proud to lead a Board Developing the strategy for the next five which is strongly dedicated to Cancer years started with research, analysis, Council NSW, and to be involved in an debate and planning, to ensure we organisation so deeply committed to would understand and meet the needs alleviating the burden of cancer now of the NSW people, drive innovation, and and in the future. We are energised by advance our mission to defeat cancer the staff, volunteers and communities through engaging the community. who work tirelessly to make possible the We have developed our organisation’s achievements and developments shown brand – who we are and what sets us in this annual report. Cancer Council apart as an organisation. We hold a NSW is a place of energy and innovation distinctive position that supports our in cancer control, where we work with aspiration to beat cancer in all its forms. allies and partners, and where together Working across all cancers is one of our we can make cancer history. key points of difference as an organisation. The Board, Executive team and key stakeholders were all heavily involved in developing the new Strategic Directions 2010–2014, which can be read online at www.cancercouncil.com.au/ strategicdirections. This involvement Bruce Hodgkinson SC was critical to ensure the strategy united Chair us with one vision, shared goals and a common direction. Message from the CEO

3

Holding up and believing engagement enable people from all backgrounds to come together and Making a in a vision of cancer collaborate to beat cancer. defeated takes courage Our Regional Advisory Committees difference and determination. and Community Cancer Networks are examples of this in action. There are With the support of our donors, staff and now 10 Regional Advisory Committees volunteers, we work towards this goal across NSW, and each provides each and every day because we know the regional context to our strategic it can happen. I would like to thank direction. Members come from diverse our community for your faith in our backgrounds, but all are leaders in their work and your willingness to contribute fields and help guide us to a new level to our mission. of insight and contribution. They are supported by 30 Community Cancer For us to defeat cancer, the community Networks in localities and towns all over must be engaged in our mission. NSW. Members of the networks know To this end, we work with health and their communities and the people in them research organisations, all levels of and, within our brief, choose the most government, businesses, communities important issues for local focus. and committed individuals who have the same passion and drive as we do. The contribution of our volunteers Community contribution and The contribution of volunteers to engagement our mission in 2009/10 remained Not everyone’s contribution to our cause outstanding. We had over 32,000 will be the same, and this year has volunteers contributing to our work seen growth in the variety and scale of last year, all providing diverse skills, community contribution. This includes knowledge and commitment. They people making financial contributions or support 320 employees (excluding giving their time, skills and energy; and casuals) in delivering and extending our organisations contributing their resources mission. We have also seen a significant and facilities or becoming partners in growth in volunteers who contribute their our programs. professional skills, and you’ll see such examples in this annual report. The community’s broad support is critical Thank you for your contribution in guaranteeing our independence. Because we are not tied to government There is scarcely a person, an funding, we are able to focus on organisation, a profession or a community priorities that best serve our mission and sector that does not have the capacity community need. or opportunity to contribute directly to cancer control. I thank every person and This year has been strong from a organisation that has played a role in the financial perspective, achieving an past year. No matter what you have given income of $67.5 million (excluding or done, you have made a difference. capital gains in investments). Clearly our staff, volunteers and supporters You will find additional annual rallied together, and we outperformed report resources on our website our original budget projections by at www.cancercouncil.com.au/ 14 percent. The generosity of key annualreport2010 to amplify the donors and individuals supported picture, including interviews with our this achievement. We have also seen Divisional Directors and expanded more examples of in-kind support from financial statements. Utilising technology philanthropic organisations. Whatever in this way reflects our commitment to the type or size of contribution, it business transparency and environmental enables Cancer Council NSW to be a awareness. force for change. Actively engaging communities People who believe in the cause have the opportunity to work with us to make a real difference. Our organisational Dr Andrew Penman AM structure and focus on active community Chief Executive Officer

Cancer Council NSW Annual Report 2009/10 Financial Summary

4

80 Where the 70 money 60 50

40 comes from $M 30

20

10

0 2006 2007 2008 2009 2010 $M $M $M $M $M % Fundraising 41.5 42.2 51.0 48.3 53.8 80% Retail 7.3 8.3 8.0 8.0 7.5 11% Investments 4.3 5.0 3.8 2.2 2.3 3% Grants 0.9 1.2 1.6 1.8 2.8 4% Other income 0.4 1.1 1.4 1.1 1.1 2%

Total income* 54.4 57.8 65.8 61.4 67.5 *excludes capital gains in investments

70

Where the 60 money goes 50 40

$M 30

20

10

0 2006 2007 2008 2009 2010

$M % $M % $M % $M % $M % Research 9.3 10.7 12.8 14.4 14.3 24% Regional program delivery 2.9 3.5 4.5 5.1 5.0 9% Health advocacy and prevention 1.9 2.1 3.6 4.1 3.7 6% Information and support 3.8 5.2 5.6 6.8 6.7 12%

Total program delivery 17.9 41% 21.5 44% 26.5 48% 30.4 50% 29.7 51%

Fundraising 14.3 13.7 14.8 15.9 15.4 26% Retail 6.1 6.9 6.7 6.6 6.1 10% Infrastructure & investment 4.1 5.3 5.6 5.2 5.2 9% Media, communication & marketing 1.1 1.2 1.9 2.9 2.3 4%

Total expenditure* 43.5 48.6 55.5 61.0 58.7 *excludes capital losses on investments

5

Highlights for the year

The Sun Sound IncomeIncome from received regular givinggiving

20 15 10 Recruitment ini

3 $M 5 population research international 0 4 5 6 7 8 9 0 studies reached awards 2004200 2002005 2006200 2007200 2008200 2009200 2010201 300,000

Retail InvestmentInvestment net profit returns – 5yrs 30%

20% 2 1.5 10%

1 0% $M 0.5 $750K -10% 0 5 7 8 9 0 invested in patient -20% 2005200 2006 2007200 2002008 2002009 2012010 accommodation centres -30% RetaRetailil net profit 2006 2007 2008 2009 2010

(Lismore + Orange) CCNSW % ASX200 %

Over 250,000 RelayRelay income hours of volunteer time 7 97,500 contributed, with an 6 estimated value 5 children in childcare 4 benefit from all 5 forms of

of more than $M 3 2 sun protection thanks to 1 the SunSmart Early 0 Childhood Program $6.5M 2006 2007 2008 2009 2010

Grant income exceeded 431,000 targets by unique page views of our online Understanding 70% reaching Cancer publications $2.8M (see annual financial statements 34% for full list of grants received) increase in Local Governments with smoke-free outdoor areas

Cancer Council NSW Annual Report 2009/10 Strategic Priorities

6

Financial commitments to research We achieved a significant milestone in our Cancer Lifestyle and Evaluation Investment in cancer research represents Strategic of Risk (CLEAR) study, enrolling 4,000 our largest expenditure of donor funds. participants into the study, and are well In 2009/10, we worked hard to meet on the way to our target of 10,000, to Priority 1 our existing financial commitments to gain the most comprehensive information research, despite the challenges of ever gathered on the lifestyle and genetic the economic downturn. Our research To drive major advances factors that influence cancer in the budget for 2010/11 has increased to NSW community. in research, ensuring $17 million, a strong indication of the critical role it plays in our mission. no cancer is ignored Aboriginal people are three times more likely to die from some types of cancer Our research goal is to generate new In 2009/10, our external research and 60 percent more likely to die from knowledge and insights into how portfolio consisted of over 70 grants all cancer types combined than non- cancer is prevented, diagnosed and awarded to leading Australian cancer Aboriginal people. Hence the launch treated. We achieve our goal using a researchers, at a cost of $9 million. of our study on Patterns of Cancer range of strategies involving our own This allows us to support some of the Care for Aboriginal People in NSW epidemiological and behavioural research best and brightest cancer researchers (APOCC), conducted in collaboration departments, and by funding external working in Australia. Our six Strategic with the University of Sydney and the research with partners and recipients Research Partnership (STREP) grants University of NSW, to investigate why throughout Australia. We place great ($250,000 per annum investment for this gap exists in cancer death rates and value on collaborations with universities five years) fund research into colorectal, to provide insights on how to close it. and institutes across the globe, pancreatic, brain, liver, oesophageal The project is funded by the NHMRC. It recognising that great minds can unite in and hereditary cancers, many of which has had strong support from Aboriginal thehe broader goal to make cancer history.hi have high mortality and were traditionally communities so far and we expect to underfunded in the research arena. further increase recruitment in 2010/11. We also apply for peer-reviewed grants Researchers in our Centre for Health from the National Health and Medical Research and Psycho-oncology (CHeRP) Research Council (NHMRC), the Cancer made significant progress in the Partners Institute NSW and other foundations, and Caregivers Study, an ongoing which are awarded on a competitive investigation involving 547 partners basis, rewarding excellence and scientific and caregivers of cancer survivors. It is merit. In 2009/10, we applied for and providing valuable insights into issues were awarded grants to the total of $2.8 such as level of anxiety, unmet needs and million, a 70 percent increase on last year. the impact of care on work and financial Our success rate in securing this form of Growing our footprint in NSW situations. Interestingly, at six months funding is strong. Given that grants have post diagnosis, partners and caregivers With one-quarter of our seven million long lead times between application and have higher levels of distress than the residents having been born overseas, approval, we look forward to successful person diagnosed with cancer. and with one-third of Australia’s achievement of grants submitted for Aboriginal people living in our state, 2010/11. NSW’s large and culturally diverse population – each with a distinct cancer Key insights in 2009/10 profile – represents a microcosm of the Research spend ($M) world. This allows us to research the In 2009, our modelling group (part of underlying causes of various cancers and Modellers Sans Frontières) completed 2006 understand how best to prevent them. two assessments of new cervical screening technology options for the 2007 By June 2010, we had recruited almost Medical Services Advisory Committee 33,000 people into our studies, and of the Australian Department of Health 2008 and Ageing. This group contributed to received nearly 16,000 blood samples for 2009 ultra-cold storage in our biobank. When key policy decisions on the optimisation combined with the 266,000 subjects in of cervical screening in Australia, and 2010 the 45 and Up Study, and the many guided cervical screening and human 0 5 10 15 20 thousands participating in our external papillomavirus (HPV) vaccination collaborators’ projects, we have a wealth approaches taken in the UK, New Zealand of local and international data to provide and China. This is just one example of insights into the causes of cancer in the how our research is informing decisions on Refer to the Cancer Council NSW population of NSW. cancer control locally and internationally. Research Activity Report 2009 for more information on our research programs. 7

Gaining critical insights into pancreatic cancer Cancer of the pancreas is the fourth Professor leading cause of cancer death in Australia. The current survival figures Andrew Biankin remain below 10 percent and have not changed significantly in 50 years. Little progress has been made in our understanding of the disease, how to diagnose it at earlier stages or in developing more effective treatments.

For these reasons, Cancer Council NSW sought to prioritise this lethal disease by making a significant commitment to pancreatic cancer research, and we are providing financial support of $2.5 million over five years to the International Cancer Genome Consortium (ICGC). The insights gained through this ambitious project are expected to enable the broad consortium to map the pancreatic cancer genome. It will allow the development of better ways of diagnosing this cancer earlier, providing individualised treatment and, hopefully, insights into how to prevent this cancer in the future.

The project is already providing interesting insights, according to co-leader of the Australian team, Professor Andrew Biankin. “We are identifying new mutations in the pancreatic cancers we are sequencing. Locating and defining these mutations is the first step. We can then focus on unravelling their role in cancer, and the possibility of designing drugs to target them for treatment. We might be lucky and find mutations that already have drugs that target them in other cancers, such as BRAF mutations in melanoma. This could potentially bring very rapid benefits,” he said.

The ICGC investment is in addition to the STREP grant awarded to Professor Biankin and his team at the Garvan Institute of Medical Research (worth $250,000 per annum for five years). The aim of the project is to improve the diagnosis, assessment and management of pancreatic cancer patients in NSW through a coordinated multidisciplinary approach. The insights gained will improve care for this previously underfunded yet lethal cancer.

Cancer Council NSW Annual Report 2009/10 Strategic Priorities

8

The issue of youth sun protection has As part of the program’s Community challenged public health professionals Initiatives Scheme in 2009/10, we have Strategic for many years. In 2009/10, we distributed 10 grants of up to $30,000 piloted a cutting-edge youth sun- to community service organisations Priority 2 protection initiative, the Sun Sound, to encourage the development and in the Sutherland and Gosford Local implementation of their own initiatives to Government Areas. Produced by address tobacco use and support people To ensure the NSW musician, Ben Lee, the Sun Sound is to quit smoking. Over the last four years, community acts to prevent a short, catchy jingle played at regular a total of 20 grants have been distributed. intervals on loudspeakers at beaches and cancer and/or detect it at other outdoor venues, prompting young Outcomes of the Tackling Tobacco a curable stage people to protect their skin from the sun. Program are currently being evaluated and will be reported in 2010/11. Evaluation of the trial was positive, with Cancer Council NSW leads social and strong understanding among young Nutrition developments behavioural change to reduce the risk people of the Sun Sound message and impact of cancer, and therefore The Eat It To Beat It pilot program in (84 percent), high levels of recall and improve the health and wellbeing of the Hunter Region is aimed at raising recognition (80 percent) and outstanding people, families and communities in the awareness among parents of primary- community support for playing the state. To understand why we focus on school-aged children of the importance Sun Sound in outdoor areas as a the areas we do, look no further than of increasing fruit and vegetable intake sun protection reminder (88 percent). the preventing cancer box below. to help prevent cancer. The program Behavioural impact was strong, with was partially funded by a grant from 24 percent (in Gosford) and 41 percent We are committed to three key areas the Department of Health and Ageing. (in Sutherland) taking positive sun- of cancer prevention: tobacco control, Achievements in 2009/10 include training protection action when hearing the nutrition/healthy weight and skin cancer 35 facilitators (with 122 trained to date) Sun Sound. Taking into account overall prevention. We focus on issues of high and holding 83 sessions within the positive results of the trial, the initiative population impact; we gather evidence community about how to boost a will be expanded further across NSW in of where an intervention is likely to be family’s fruit and vegetable consumption select Local Government Areas in the effective; we work in partnerships and on a budget. summer of 2010/11. coalitions; we engage the communities of NSW to support our programs; we We were also a partner in Fruit ‘n’ Veg In 2010, the Sun Sound received look past just the individual solution Week in primary schools, including international recognition in the advertising to focus on more community-wide developing and distributing resources and media industry for creative innovation solutions; and we provide clear and to 233 schools in the Hunter Region. and excellence, receiving a Gold CLIO measurable outcomes. Extensive media coverage was obtained award at the prestigious CLIO creative and school feedback in post-campaign awards in New York, and two Silver Lion In 2009/10, there were a number of evaluation was very positive. awards at the Cannes Advertising Festival achievements in our three key focus in France in 2010. areas, and some highlights are shown below. Tackling tobacco use in disadvantaged communities Achievements in skin cancer Preventing cancer prevention Smoking is the leading cause of preventable death and disease amongst Exposure to sun in the first 15 years The evidence and impact disadvantaged groups in NSW. Rather of life is a critical risk factor in the than ignoring this troubling issue, in 2005 Approximately half of all cases of development of skin cancer as an adult, we launched the Tackling Tobacco cancer may be preventable by: which is why we support childhood Program, a five-year commitment to centres, family day care centres and • Not smoking address the unacceptably high rates of primary schools to adopt ‘best practice’ • Maintaining a healthy body weight smoking in disadvantaged populations. sun protection policies and practices. • Being physically active By the end of the 2009/10 financial year, Recognising the connections many 65 percent of all licensed childcare • Eating a healthy diet leading organisations have in the welfare services and 15 percent of primary sector, we partner with non-government • Limiting alcohol consumption schools throughout NSW were full community social services to make participants in the SunSmart Program, • Protecting ourselves against tobacco-cessation support a part of their which is well on target for this influential ultraviolet (UV) radiation. work. An $800,000 NSW Health grant initiative. We have significant assistance was recently received and adds to Cancer from many local volunteers who support Council’s own significant investment. and promote the program in their regional communities across NSW. 9

Creating connections to save lives Laurie Bassett Mental Health,

Mission Australia is one of the key Mission Australia organisations involved in our Tackling Tobacco Program. Laurie Bassett, from Mission Australia’s mental health division, works with people who live in our community with significant mental illness. He and his colleagues aim to help these people rebuild their lives and find a place and purpose in their community.

“We realised that if we were to tackle the subject of smoking more effectively, we would be able to resolve many issues for our clients and significantly improve their quality of life. Look no further than the figures to understand why: up to 12 out of 30 clients in our project will die from a smoking-related illness, with cancer the key culprit.

“We are very proud of the connection we have developed with Cancer Council’s Tackling Tobacco team over the past three years. We have run two highly successful projects that have helped clients reduce and quit smoking. Given that up to 80 percent of our clients smoke, it was a massive opportunity for our organisations to connect and make a difference in clients’ lives.

“Take for example John, who has smoked all of his adult life. Over a six-month period, with nicotine replacement therapy funded by Cancer Council NSW, John was able to reduce his smoking by 90 percent. He found there were some real benefits of not smoking: more money, better food, and feeling healthier and more confident. Through this, John has been able to become more connected in his community, and is finding meaningful activity and purpose.

“Cancer Council NSW can take a great deal of credit for this outcome. They had the foresight to be a significant initiator in helping us address this often impossible issue. By partnering with Mission Australia, Cancer Council connects with our clients, and together we can help them reconnect back with their communities.

“When we connect as a sector, good things happen and we can improve our community’s quality of life. When we’re talking about chronic tobacco dependence, it can be a lifesaver.”

Cancer Council NSW Annual Report 2009/10 Strategic Priorities

10

governments with policies on smoke-free Strength in connections outdoor areas increased by 34 percent, and partnerships Strategic which means that half of all councils have We recognise that to create the greatest adopted such a policy. There was also impact on social change and community significant growth in the number of local engagement, we need to harness the Priority 3 governments which include smoke-free skills and reach of committed people alfresco dining policies (up from 9 to 22). To give the NSW and partner organisations. For those reasons, in 2009/10 we have continued community a voice on Cancer Councils nationally launched our connections with leading community issues and entitlements the Get Behind Bowel Screening groups such as Cancer Voices NSW, the campaign in June 2009, and it has been Coalition on Food Advertising to Children around cancer strongly supported by our advocates and The Parents Jury. Each of these Despite the critical importance of medical and supporters since that time. As a partnerships provides critical insight, and scientific solutions in cancer, as a web-based campaign, it provided the resources and additional strength to society we need political will for better opportunity for almost 3,500 people make the changes required in laws, policy and funding. We have in NSW to contact their Members of cancer control. a strong commitment to harnessing Parliament to seek commitment for full implementation of the National Bowel the community’s drive to advocate The strength of Cancer Council Cancer Screening Program, which could for change, and the courage and advocates has helped us achieve many save 30 lives per week. The campaign independence to make it happen. of the outcomes listed on these pages. also provided an opportunity to connect Our advocates are tireless campaigners into 15 Relay For Life events, to raise Key achievements in 2009/10 at a local and state level, living out awareness of bowel cancer and the the values of Cancer Council NSW In giving the community a voice, we significant gaps in the current through their courage, collaboration, have created connections and networks screening program. independence and forward thinking. We around NSW, with 2,133 advocates know that social change is a critical step and five Regional Cancer Advocacy In 2010, we launched a powerful in achieving our mission, and our many Networks made up of local community campaign called Saving life: why hundreds of advocates and partners members working together to address wouldn’t you? in the lead-up to the provide the grassroots action and cancer. Our advocates are passionate NSW state election in March 2011. support required for that to occur. supporters of our campaigns, and also We investigated many of the key identify and lobby on local issues. issues related to cancer control and prioritised five issues for future State Key achievements In 2009/10, we witnessed the outcome Government action: of a number of advocacy campaigns run over preceding years, reinforcing the • More radiotherapy services impact Cancer Council NSW can have • Established MP Liaisons across NSW (new volunteer roles) in 10 in advocating for changes in policy NSW electorates and practice. • Burden-free transport and accommodation for cancer patients • Trained 72 new advocates The spotlight on radiotherapy • The best possible cancer care for all – (up 15 percent on last year) in partnership with Cancer continued in 2009/10 through ongoing regardless of where you’re treated Voices NSW advocacy and the launch of our Roadblocks to Radiotherapy report, • Smoke-free dining and drinking at • Increased total pool of advocacy detailing the impact on patients and all venues supporters (including trained families and common experiences in • Stronger safeguards on the sale advocates) by 20 percent accessing radiotherapy. We celebrated of tobacco. • Developed tailored advocacy the announcement of Commonwealth training for Aboriginal people funding for new regional centres, The campaign involves grassroots action in partnership with the including Shoalhaven, Tamworth and at local levels, including innovative tactics Aboriginal Health and Medical Central Coast, due in part to the impact such as Community Conversations and Research Council. of our efforts. opportunities to contact MPs on mass and individual levels, and significant Community support for smoke-free impact is already apparent in the months outdoor areas has increased over post launch. the past few years, and we have been working closely with our advocates and local governments to ensure these social norms are being applied to policies across NSW. We are now seeing the outcomes of this work: in 2009/10, local 11

“After 18 months of hard work, we Making an impact celebrated Parramatta Council’s decision in July this year to introduce smoke-free for the Parramatta outdoor dining in January 2011. The community decision will have far-reaching benefits for the people of Parramatta, and we were enormously proud to have had an impact Smoke-free outdoor areas are a significant on this change.” public health issue in NSW, and a key platform in our cancer control agenda. Through her advocacy work with WSCAN and experience in public health, Wendy The Western Sydney Cancer Advocacy has now secured a paid full-time position Network (WSCAN) is made up of in our nutrition team. 15 committed locals who support Cancer Council NSW and advocate on important issues in Sydney’s western suburbs. In early 2009, the network had a planning meeting to decide its campaigns for focus in the year ahead. Smoke-free outdoor areas topped the list, including Wendy Watsontson the challenging topic of smoke-free alfresco dining. WSCAN memembermber

One of the WSCAN members, Wendy Watson, describes how the network made a significant impact in Parramatta.

“I had just completed Cancer Council’s advocacy training, and we were keen to put the learnings to good use by lobbying for a ban on smoking in outdoor areas in the Parramatta Local Government Area. It was a very topical issue, and we knew that thorough research, community engagement and media coverage were going to help put it on the local agenda. Through this initial work, Parramatta Council moved in July 2009 to implement smoke-free children’s playgrounds and sporting fields. It was a great start, but we wanted more.

“When the issue of smoke-free outdoor dining was originally discussed with councillors, it was met with quite significant cynicism and hostility. But one supporter on council and public encouragement gave us strength. For example, we received more than 1,000 signatures on our petition and significant media coverage.

“We faced many difficulties, but our group had great courage. We knew the public supported us, and there is no evidence to show that implementing smoke-free outdoor dining results in any economic disadvantage for local business. We collaborated strongly with the team at Cancer Council, and with supporting organisations such as the Heart Foundation and Action on Smoking and Health (ASH). Cancer Council NSW Annual Report 2009/10 Strategic Priorities

12

match cases to more than 100 lawyers Aboriginal communities and provides an from some 30 firms that provide their opportunity to dispel myths about cancer, Strategic services pro bono. We support financially treatment and survival. disadvantaged patients mainly in areas Priority 4 such as wills, power of attorney, early We received exceptional support access to superannuation, mortgage throughout development of the hardship and employment. From March resources, including the involvement of To ensure no one faces a to June 2010, over 90 people have been around 100 people through the focus cancer diagnosis alone helped with their legal issues, and we groups, interviews and an extensive expect this figure to grow significantly, review process. The publications have Cancer is well recognised as one of the given that the program has recently been universally welcomed and, since greatest challenges a person and their expanded from its pilot phase. the launch in June, have proved popular. loved ones will face in their lives. That’s We are proud to provide relevant and why we are committed to ensuring A similar model is applied in our culturally appropriate cancer information readily available information and practical Financial Planning Services, where to Aboriginal people. support for all cancer patients and carers we enable cancer patients to access during and after a cancer diagnosis. We professionals who help with rearranging exist to make a genuine impact on the finances after a cancer diagnosis. This course of cancer and the lives of those vital program is offered thanks to AMP affected: ensuring ‘no one faces a cancer financial planners who provide their diagnosis alone’ takes courage and services free of charge to patients, and determination, but we work to achieve who give considerable support to people that goal each and every day. at a time when they need it.

Fixing the fixable In 2009/10, our Emergency Financial Assistance Program has also helped Information and connection Whilst the emotional issues associated through Helpline more than 2,000 people (10 percent with a cancer diagnosis are well known, increase on 2008/09) with much-needed its practical costs are sometimes hidden Cancer Council Helpline is staffed grants for utility bills and vouchers for and can be crippling. Access Economics by oncology-experienced health food and taxis. For many, these grants has estimated that the average lifetime professionals, who provide an exceptional are the only way to get to treatment or financial cost of cancer to a household level of cancer information and psycho- put food on the table. We connect with is $47,200 per person. For people of social support to the people of NSW, and rely on the assistance of 300 health working age, the impact is worse – including cancer patients and carers. professionals throughout NSW – social $51,500 for females and $137,400 for workers and care coordinators – to males, and as much as $300,000 for The number of calls from cancer assess patients for benefits and eligibility. males with brain cancer. patients and carers remained constant in 2009/10, although there were An Australian first for 16 percent fewer calls overall to the Aboriginal people Helpline in the year. However, we noted In Indigenous populations in Australia, a rise in people accessing online and limited understanding about cancer, its web-based information and support causes, treatments and outcomes is services, such as Cancer Connections. common. To help address this problem, In addition, an increasing number of Cancer Council NSW and the Aboriginal people contacted regional offices and Health and Medical Research Council Cancer Council Information Centres (AHMRC) of NSW were awarded a to obtain information. In 2009/10, we launched significant Cancer Australia grant to produce an developments in our well-established Australian first – easy-to-read information Helpline’s capabilities have been practical and financial support programs, for Aboriginal people affected by cancer. expanded to create broader support for so that now we connect financially cancer patients’ and carers’ needs – for disadvantaged cancer patients with legal In 2009/10, we launched the Aboriginal example, connecting them to counselling, advice and financial planning. Cancer Journeys: Our stories of peer support, financial planning and kinship, hope and survival book and legal service providers. Trends show that Our own research shows that nearly supporting resources. The publications Helpline calls are now longer and more 8 out of 10 hospital social workers have were developed after focus groups and complicated as a result of this approach, patients who are plagued by legal issues interviews were held around NSW, giving and also because of the important role while coping with the stress of treatment, Aboriginal people a voice to share their our consultants play in deciphering the and at a time when many are unable to stories of cancer for the benefit of their complex information cancer patients and work. Through our new Legal Referral communities. The storytelling format carers access and receive. Service, we coordinate referrals and reflects the importance of oral tradition in 13

“In the past year, I’ve been able to assist “Travelling great distances and being away Impact when 56 clients with a grant for electricity bills from home for cancer treatment has so or vouchers for food or petrol to get to many implications for patients – emotional, and where treatment. Whilst the assistance has physical and financial. Through the it’s needed a significant impact on people when it support Cancer Council provides, we can really matters, it also provides me with lessen a little of their financial burdens. an opportunity to connect in other ways I know how grateful clients are when we “Being diagnosed with cancer has a life- at a critical time. I can address their can help them with grants, and what an changing impact, but when people live in psychosocial needs, refer them on for impact it has on them at a time an isolated rural area like Moree, travel to further help, or direct them to Cancer of real need.” treatment and the disruption to work and Council for support and so on. Providing family life can quickly bring matters to a someone with practical help in a crisis Jann Tuart crisis point. is hugely important,important, but so too is the Oncology Social Worker ongoing connection it enables me to Moree Community Health Centre “My connection with Cancer Council havehave with thethe clients.clients. AndAnd oftenoften it’sit’s NSW is through its Emergency becauseuse of Cancer Council that this Financial Assistance grants, which canan happen.happen qualified social workers can recommend be paid to people who are suffering acute hardship.

“When local people are diagnosed with cancer, they must travel at least three-and-a-half hours to Tamworth, or further afield to Coffs Harbour, Brisbane, Newcastle, Toowoomba or Sydney. Cancer treatment doesn’t take just one trip – there’s travel for initial diagnosis, and then for surgery, chemo or radiotherapy. I have clients who have been travelling regularly for 18 months and that level of disruption can’t help but have an impact on work, family and income.

“We also have a strong Aboriginal community in Moree, and I have been able to help many people when a cancer diagnosis brings on other crises. Many Aboriginal people have very strong extended families, and we’ve had a number of cases where this causes immense upheaval, often because one of the family members is a carer for others, or is relied on by many for income and support. The dislocation from family members during treatment is also particularly strong for Aboriginal people because of these close ties.

CancerCancer CouncilCouncil NSWNSW Annual ReReportport 2009/102009/10 Strategic Priorities

14

continue to be a focus, given they this year for the first time in our Relay provide people with the opportunity to history. Gross income was up 22 percent Strategic leave a legacy beyond their lifetime. on 2008/09, thanks to the tenacity and drive of our Relay committees, teams Priority 5 Our Breakthrough program allows and staff. people to choose to donate a regular amount each month. Originally To expand the introduced in 2003, in 2009/10 the opportunities available program reached $13.7 million income (up $1.1 million) from 45,000 regular for people to contribute to givers, who provide the backbone of our our work by giving money ability to fund research breakthroughs or fundraising and support services.

Without the generous support of the people of NSW, we would not be able Call To Arms, our men’s event launched to remain an independent organisation. in 2008, continued to grow substantially. Charitable giving is of critical significance More than 4,000 teams participated in changing the cancer landscape, so it in the event (almost double last year’s is important to us that people have participants) and raised $178,000 a range of ways to become actively (far exceeding the $99,000 raised involved in our mission through giving in 2008/09). We also ensured that moneymoney or ffundraising.undraising. important cancer prevention messages were promoted through the event, Our retail outlets provide high-quality meaning that Call To Arms is both a sun-protection products to the people fundraiser and an awareness-raising of NSW. Retail sales were $7.5 million, opportunity about cancer in men. up 8 percent on budget, which was a solid result given that one store was Our Do Your Thing fundraising program closed in this period. In the last five years, enabled individuals and organisations to our retail operations have contributed take their own initiative when fundraising, more than $7.3 million in net profit. with great results – more than 1,000 In 2009/10,2009/ over 108,000 people events were held, raising $1.9 million We acknowledge our major donors for organised fundraising events, pledged (43 percent up on 2008/09). In another their continued and generous support. their support, responded to an appeal achievement, the Fundraising Institute Just one example is the Tim Cahill or made a bequest to us. Hundreds of of Australia bestowed its Fundraising Cancer Fund for Children, which raised thousands more supported their friends, Marketing Award on the Do Your $200,000 through Tim’s support. In colleagues or communities by joining in, Thing website. 2009/10, we also increased our focus donating money, visiting one of our retail on applying for grants from trusts and stores or buying a daffodil. foundations, and on developing corporate relationships. A strong performing year Overall, 2009/10 was a strong-performing Highlights throughout our events year, and most income streams Our events portfolio (including outperformed original budget targets, Australia’s Biggest Morning Tea, Daffodil thanks to our supporters, staff and Day, Relay For Life, Call To Arms, Girls volunteers, who pulled together during Night In, Pink Ribbon Day, POSH and continuing economic uncertainty. Our Do Your Thing) had some highlights total revenue of $67.5 million was and faced challenges in 2009/10. Most 14 percent higher than budget, due of our key events are mature and face largely to our donations, major gifts and increasing competition, yet this makes bequest income. POSH, our gala ball, raised $1 million our highlights and the commitment from this year for the first time. The ongoing our supporters even more valued. Key highlights in fundraising support of the POSH committee, corporate partners, sponsors and our Total funds raised through our direct Relay For Life events were held in 67 guests has enabled us to raise $7 million marketing programs grew to local communities, with over 49,000 over the past 11 years of this event. $17 million (4 percent increase on participants across NSW (9,000 more 2008/09) and bequest funds reached participants than in 2008/09). These $12.4 million (up $2.4 million). Bequests communities raised more than $6 million 15

raised more than $560,000, against an seven years, and I’m very proud of what Contribution original budget of $450,000, and we’ve I’ve been able to achieve. From my own raised $1.7 million since the Sutherland experience, when we can make a positive counts Relay began,” Rod said. contribution with whatever resources we have – time, skills, thoughts, passion or “No matter what your skills or background, money – it’s hard to find a greater sense Rod Coy – Co-Chair of the Sutherland there is definitely a way you can make of contentment.” Shire Relay For Life – first began as a a contribution to Cancer Council. It’s volunteer with Cancer Council NSW in been a huge part of my life for the past 2002, after successful cancer treatment. “I heard about Relay For Life and thought, ‘This is a way for me to really make a contribution to the cancer cause’,” he said. Rod Coy “My passion in this world is Relay. It’s Julie Callaghan Co-Chair, given me an opportunity to live by my Sutherland Shire favourite saying: ‘Quantum potes tantum Regional Manager, aude’ (as much as I can do, so much I Central and Relay For Life dare to do). I feel enormously privileged Southern Sydney to have a vision, work with an amazing committee and see it come to fruition. I also love the constant evolution of the event. If we think we know all the answers on Relay, we’ll be wrong, so I work hard to harness and unite the passion of staff, volunteers, committee members and the community.”

Rod believes that part of his ability to be a successful Relay Chair stems from Cancer Council’s attitude to volunteers. “Cancer Council has taken volunteerism past tokenism and into genuine partnership. This approach is a credit to the organisation’s leaders, including Andrew Penman and Julie Callaghan, because it empowers people to contribute so much more,” he said.

Julie Callaghan, Regional Manager for Central and Southern Sydney, works in close partnership with Rod and reinforces the critical role he plays. “Rod is a perfect example of the contribution volunteers make to our cause. His commitment, vision and drive are inspirational. There are no limits for Rod, and this vision and engagement drive us to achieve greater things each year, always challenging us with, ‘What more can we make of Relay?’ For Rod, the event isn’t just about raising money, but engaging the community and uniting people for cancer,” she said.

Under Rod’s leadership, Sutherland Shire’s Relay For Life has become the most successful Relay in NSW – and one of the biggest in Australia – attracting more than 6,000 participants every year and evolving into a prominent event in the local community calendar. “This year we Cancer Council NSW Annual Report 2009/10 16

Our people

Our fundamental strength Our staff contributions was introduced in 2009/10 and Human Resources staff have run workshops In a financial year that was marked as an organisation lies across the organisation to manage the by economic uncertainty, our 320 implementation of these changes. Overall in our people – staff employees (excluding casuals) rose to annual staff retention is 80 percent, which and volunteers – and the challenge. The fact that we had a is on par with expectation given our strong performance and maintained most their commitment to demographic profile. income streams is testament to their excellence and our vision commitment and drive. Also impressive We recognise the support of our are the many ways staff engage the of cancer defeated. We staff through career secondment and community, delivering innovative work to foster a highly advancement, skill development, a programs and services and always commitment to work-life balance and engaged, forward-thinking focusing on the needs of cancer patients flexible working practices. Due to our and carers. culture, aligned with our charity status, we are able to offer eligible strategy and based on staff at all levels of the organisation the Our staff are employed under a variety opportunity to maximise the take-home open communication, of state and federal industrial legislation, value of their remuneration through including the Fair Work Act, Anti- collaboration and salary packaging. Discrimination Act and the Occupational accountability. Health and Safety Act. The Fair Work Act

Some of our staff (left to right): Sofia Potente, Amelia Beaumont, Greg Soulos, Jessica Darlington Brown, John Davies, Lorna Allan, John Dennis, Julie Roberts, Kelly Williams, Rory Alcock, Margaret Skagias. 17

The essential contribution of and interns, members of our corporate our efforts to effectively harness their our volunteers employee volunteer programs, thousands experience and skills in programs, events of event supporters and community and campaigns. Volunteers are critical if we want to work fundraisers, advocates and pro bono with the broader community, and they professionals. There are also many provide a vital extension to the capacity Cancer Council recognises the committees, taskforces and community- and scope of our paid staff. In many National Standards for Best Practice based groups made up of dedicated cases, specially trained volunteers make in Volunteering, working to ensure people who volunteer their time and skills programs possible – cancer support systematic and continuous improvements to local and regional issues. programs such as Cancer Connect and not just to the process, but to the Living Well After Cancer are examples. experience of volunteering. Without volunteers, we would not reach In 2009/10, more than 250,000 thousands of people with cancer across volunteer hours were contributed to NSW each year. our organisation. The value of this contribution is estimated at more than $6.5 million (based on commercial In addition to our regular active market rates for the work performed). volunteers, we are also supported This impressive figure is testament to our by many other people who work in a volunteers’ commitment and illustrates volunteer capacity, including students

Some of our volunteers (left to right): Michelle Xaio, Anuradha Thilakarathne, Carol Rhodes, Bronwyn Carroll, Shant Avakian, Robyn Ward, Otto Zeckendorf. Cancer Council NSW Annual Report 2009/10 Our people

18

Learning and development of will receive program-specific training The Occupational Health and Safety our workforce based on their role with Cancer Council, (OHS) Committee takes an active role Learning and development at Cancer as required. Training in areas such as in reviewing OHS issues raised by staff. Council includes management Connect, Relay For Life or patient This committee met on four scheduled development programs for existing and transport services are examples of this. occasions in the last financial year, and in emerging leaders, middle management, addition called one extraordinary meeting frontline managers and staff. We also Volunteer recognition is an important to address an issue which required active offer IT literacy skills and operational, part of the way we show appreciation consultation to resolve satisfactorily. interpersonal and management for their contribution. We run extensive development modules for staff and recognition opportunities through We commenced an ongoing review of volunteers. Many of our specialised National Volunteer Week, and hold annual potential hazards at our Relay For Life training modules are developed and thank-you parties in regional offices. All events, including the development of a delivered in-house to ensure that we volunteers receive our Volunteer Voice manual handling program specific to the continue to develop and share our newsletter, which acknowledges and activities involved. We have also made knowledge with staff and volunteers. celebrates their contribution. improvements to our safety processes for our merchandise-driven events such Careful budget management during the The wellbeing of our people as Daffodil Day and Pink Ribbon Day, including revised cash-handling economic downturn meant our 2009/10 We review our Workers Compensation processes and improved manual handling learning and development expenditure data on a quarterly basis and we continue and pre-event safety briefings. was less than the previous year, including to have a very low rate of claims. We decreased spending for conference and also have a system for reporting on and workshop attendance. A pilot of online analysing incidents and injuries to ensure learning was run, with limited success. we initiate changes to prevent potential injuries. Ergonomic Assessment workshops Each volunteer will follow a different for staff are run regularly, and we engage training pathway but all volunteers injury management specialists to conduct will attend orientation or be sent an work-related assessments as required. orientation workbook and CD. They

Courage Our values We will do what it takes to beat cancer. We value the determination and drive of our volunteers and staff to make a difference

Forward thinking Independence We are contemporary We are accountable in outlook, innovative only to the cancer in approach and cause and the solution focused community

Collaboration Through fundraising, partnerships and volunteering, we will focus and amplify the efforts of the wider community 19

The volunteer contribution graph value of the contribution made (below), reflects the outcomes of an (including one-off volunteering for organisational-wide survey of staff who fundraising events). We have converted worked with volunteers during 2009/10. estimated volunteer hours into full-time The survey sought insights into the equivalent staff (based on a 35-hour nature of volunteering activity, the hours working week). contributed and the estimated dollar

Our people’s contribution – paid staff and volunteer staff paid staff volunteer staff

Full-time equivalent staff (FTE) 0 255075100 125 150 175 200 225 250

Research 153 FTE Information 307 and support FTE

Health advocacy and prevention

Regional program delivery

Media, communications and marketing

Retail

Fundraising

Infrastructure and investment

Cancer Council NSW Annual Report 2009/10 20

• Centralisation of our event • All fittings, appliances and reconciliation process, which ensures IT hardware are chosen and Our higher accuracy and more efficient programmed for highest efficiency processing. The fact that this is • We are also investigating and primarily resourced pro bono is yet organisation, developing a business model another efficiency to capture solar energy at the systems and • Introduction of a new corporate Woolloomooloo head office in order to purchasing card for staff, which create solar electricity and hot water. provides efficient processes and In addition to the risk management careful controls, and can often help infrastructure principles outlined on page 45, our secure significant cost savings online commitment to managing risk includes: Stability to enable an impact • Almost complete elimination of cheque • Implementation of a risk payments in favour of electronic funds Our organisation’s infrastructure management framework transfer (EFT), to ensure a cheaper – information systems, finance, and more streamlined process for administration, property and risk • A review of the Risk Register that supplier payments. management – provide the strong records and assesses all risks building blocks that enable our Effectively supporting our supporters (from high to low) organisation to grow and make an and fundraisers • Running workshops to identify impact. Investing in our infrastructure, With so many thousands of event strategic and operational risks including IT and web-related capabilities, supporters fundraising for us every year, ensures we can increase our efficiencies • Preparation and implementation it’s absolutely critical that we respond and therefore make our vital funds go of risk mitigation and testing plans to their needs promptly and efficiently. further to beat cancer. for risks rated as high In 2009/10, we received 15,700 calls Investment returns strengthen from supporters (on par with 2008/09) • Monitoring and enhancing control our position and banked 543,000 regular donations. systems to manage high risks. We have also introduced BPAY for These include review of major There was a strong recovery in our appeals, and supporters can now pay by revenue streams; new income investment portfolio in 2009/10 after paperless direct debit over the phone. opportunities; and ongoing two years of losses due to the impact implementation of constituent of the global financial crisis on equity We strive to provide excellence in relationship management system. markets. On advice from our investment customer service and ensure that calls advisors, we restructured our managed to our Events Administration hotline In February 2010, two floors of the funds portfolio during the year to reduce are answered and handled promptly. Woolloomooloo head office suffered exposure to equity markets. One year on, A number of improvements saw a drop stormwater damage. In response, our managed funds have performed well, in supporter queries to the hotline (from we relocated affected staff within the returning 14 percent per annum versus 18,754 calls in 2008/09 to 14,514 calls building with minimal loss of productivity. 9 percent per annum (ASX 200 return). in 2009/10). However, this has now Information technology back-up and Please refer to our investment policy provided us with the capacity to make retrieval ensured there was no loss online at www.cancercouncil.com.au more outbound supporter calls, with of data and minimal interruption to for more information. 77,292 supporter calls (up from work processes. Creating efficiencies from within 56,427 in previous year) made for retention and acquisition. Our Corporate Services team has a strong Maximising environmental focus on cost efficiencies and finding performance and minimising risk better ways to tackle existing processes. Achievements in 2009/10 include: Here are just some of our achievements to minimise our environmental footprint: • Integration of financial supporter data to allow a full history of over one • All lighting and air conditioning across million supporters across events, our offices are timed for consumption donations, pledges and bequests during business hours only, with after- hours consumption limited only to the • Significant improvements in the area in use quality of our supporter information 543,000 by removing over 100,000 duplicate • A range of waste streams has been records. This will assist in addressing created to capture, recycle or re-use regular donations banked supporter concerns over duplication office waste – i.e. paper, metal in mailing and plastics • Consolidation and virtualisation of servers to reduce operating costs 21

Some of our key performance indicators

Measure (SP = Strategic Priority) 2006 2007 2008 2009 2010

SP1 - To drive major advances in research, ensuring no cancer is ignored New research grants awarded 23 19 22 28 10 Total research grants funded 52 60 75 76 65 Epidemiological studies in progress 27 34 35 58 52 Total research expenditure ($M) 10.504 10.712 12.921 14.401 14.269 Number of specimens in biobank # # # # 95,004 SP2 - To ensure the NSW community acts to prevent cancer and/or detect it at a curable stage Community grants awarded 18 75 146 123 117 Newly accredited SunSmart centres (childcare + primary) 45 287 314 1,015 850 % of Local Governments that have adopted * 18% 30% 38% 50% a smoke-free outdoor area policy Community Cancer Networks * * * * 30 SP3 - To give the NSW community a voice on issues and entitlements around cancer New Cancer Council advocates trained in NSW 55 89 80 78 72 Total Cancer Council advocates trained in NSW 215 294 374 381 493 Registered advocacy supporters for Cancer Council * * * * 2,133 SP4 - To ensure no one faces a cancer diagnosis alone Calls to the CCNSW Helpline 20,972 21,228 19,538 19,004 16,536 Patients and carers using the CCNSW Helpline 8,758 8,655 8,258 9,308 8,131 Understanding Cancer publications distributed 172,710 189,263 224,866 218,454 232,914 Understanding Cancer publications viewed online - unique page views * * * 436,849 431,411 Financial assistance grants to cancer patients and carers # 897 1,809 1,893 1,774 Financial assistance grants $ # 239,684 533,083 472,000 490,102 Patient transport kilometres funded * 167,000 303,130 834,464 706,221 Telephone Support Group sessions held 62 142 213 249 229 Patient accommodation room nights supported by CCNSW * * * 20,185 20,440 SP5 - To expand the opportunities available for people to contribute to our work by giving money or fundraising Fundraising cost: income ratio 34% 32% 29% 33% 29% Total fundraising income ($M) 41.5 42.2 51.0 48.3 53.8 Fundraising $ income / direct fundraising staff FTE 693,000 714,000 829,000 804,000 813,000 Relay income ($M) 3.6 4.7 5.2 5.0 6.1 Avge $ per Relay 87,829 88,679 88,136 72,464 90,970 Bequests - number of new estates notified during the year 68 98 98 83 104 Our people Volunteer contributions (hours captured) * * * * 258,246 Number of volunteers * * * * 32,933 Number of staff (excluding casuals) 247 270 313 317 320 Learning and development spend as % of staff costs 0.90% 1.20% 0.90% 1.20% 0.90% Our organisation Infrastructure and investment costs as a % of total expenditure 9% 11% 9% 9% 9% Total investment return p.a. 20% 24% -11% -13% 14% Months of operations which could be funded by our investment portfolio 10.0 12.6 10.4 8.5 10.9

* Accurate data not available for this year # Program did not exist in this year

Cancer Council NSW Annual Report 2009/10 22

Reaching out 2,133 advocates, including and beating nearly 500 who have received special cancer right Cancer Council advocacy training 8 across NSW Cancerncer CouncilCouncil IInformationnforma n Centrest staffed t ff d by b 152 Growing our reputation and trained volunteers relationships We continue to be a leader in the cancer charity space, and do this through developing relationships 266 with stakeholders, enhancing our independent community reputation, and extending the reach support groups assisted by of our communications. Cancer Council NSW In the media, we once again sustained 310 our position as the leader in objective groups helping people all information on cancer-related issues, over NSW, from Telephone 10 with more than 12,000 media articles in Support Groups and our Regional NSW, the equivalent of $33.6 million worth face-to-face Cancer Support Advisory of coverage. Groups, through to community Committees education programs like We have extended our scope beyond Understanding Cancer, traditional media, supporting Cancer Council as a social-change movement Working Beyond Cancer and by connecting audiences across multiple Living Well After Cancer communications channels. In 2009/10, this included social media such as Twitter, Facebook, YouTube, e-zines and thought leadership blogs, plus mainstream and vertical channels. We expect to see at least a 40 percent spike in online views 2,151 of our content and a surge in the uptake SunSmart childcare services of friends to our Facebook page, Twitter and 360 primary schools feeds and YouTube uploads linked to committed to providing a safe our brand. and healthy environment that reduces the risk of skin cancer Our website www.cancercouncil.com. We rely on the generosity and au attracted almost half a million contribution of the people of unique visitors throughout the year NSW, and we join with them (50,000 more than in 2008/09) and the to create a social movement to most popular subjects were SunSmart material, our Understanding Cancer beat cancer. We believe that booklets and information on skin cancer the scope and impact of cancer and lung cancer. and its effects require us to unite Every day, thousands of ordinary with like-minded communities, people are doing extraordinary This year, our website will also feature organisations and volunteers. things – contributing in so many additional annual report resources, We also support the needs of different ways, big or small, to including interviews with our Divisional Directors and expanded financial diverse communities through beating cancer. These people, statements. Visit www.cancercouncil. partnerships and collaborations places and ideas make us who com.au/annualreport2010 to view spanning various languages and we are – connected by our these resources. cultural groups. common cause. 23

4 Community Hubs,s, where people 10 meet, connect regional offices, focusing and contribute too on the needs of local local initiatives communities

1,500 people (patients, carers, survivors, family and friends) using Cancer Connections, 32,000 our online peer-support forum Over 32,000 volunteers contributing to our work, all providing their diverse skills, 8 knowledge and commitment retail outlets providingiding high-quality sun- protection productscts

120 formal partnerships with local governments, symbolising their commitment to working 706,200 patient transport with us to reduce the kilometres funded impact of cancer in the community

30 Community Cancer Networks

Cancer Council NSW Annual Report 2009/10 24 Our Board

Mr Bob Sendt Ms Melanie Ms Jill Boehm Dr Patrick Cregan Trethowan OAM, Deputy Chair Assoc Professor Graham Mann 25

Mr Paul Lahiff Dr Stephen Mr Bruce Ackland Hogkinson Ms Mary SC, Chair Chiew Mr Stephen Roberts

Cancer Council NSW Annual Report 2009/10 26

Ms Mary Chiew a barrister, he has provided advice to Our Board First appointed to the CCNSW Board corporations and their boards in many in April 2007, re-appointed April legal and governance fields, including Dr Stephen Ackland MBBS, FRACP 2010. Member of Audit and Finance corporations law, trade practices law, First elected to the CCNSW Board Committee until February 2010. statutory compliance and employment in August 2006, re-elected law. Mr Hodgkinson has been a member Managing Director, Giorgio Armani December 2008. of the POSH Committee for a number Australia Pty Ltd of years, through which he has actively Conjoint Professor, Faculty of Health, Ms Chiew’s expertise includes marketing, engaged in raising money for CCNSW. University of Newcastle communications, administration and He has also been a member of the Board Staff Specialist, Medical Oncology, management. Her experience also of Cancer Council Australia since 2008. Calvary Mater Newcastle Hospital includes four years as trustee of the National Breast Cancer Foundation and Mr Paul Lahiff BSc (Agr), FAIM Dr Ackland is also former president of the she currently serves on the Board of the Chair of the Investment Committee, Clinical Oncological Society of Australia Salvation Army Employment Plus. As Chair of the Remuneration Committee (COSA) and former chair and secretary of a cancer survivor, Ms Chiew brings her the Medical Oncology Group of Australia, First appointed to the CCNSW Board personal experience to CCNSW and and he has been a member of various in February 2007, re-appointed helps to maintain a focus on the interests other state, national and international February 2010. of cancer patients in Board discussions. oncology committees and working Mr Lahiff has over 30 years experience groups. Dr Ackland has had extensive Dr Patrick Cregan MBBS, FRACS in the financial services industry. This has involvement in cancer clinical trials, Member of the Remuneration Committee included roles as Managing Director of clinical pharmacokinetics of anticancer Permanent Trustee, Heritage Building drugs and pre-clinical pharmacology of Nominated to the CCNSW Board by the Society, Mortgage Choice and WD anticancer drugs and combinations. He Cancer Institute NSW in August 2008. Scott, as well as senior executive roles has been principal investigator on two with Westpac Banking Corporation (in Australian multi-institutional randomised Nepean Hospital Specialist Cancer Surgeon Sydney and London) and the credit union controlled trials and a number of phase I sector. Mr Lahiff currently runs his own and II trials. Dr Cregan is a specialist surgeon consulting/advisory business, and serves with a major interest in endocrine on a number of boards. Ms Jill Boehm OAM, RN, DC, and endoscopic surgery, based at MMgt, FAICD Nepean Hospital. He has a particular A/Prof Graham Mann PhD, FRACP Deputy Chair of the Board, Member interest in surgical robotics, having Member of the Governance Committee of the Audit and Finance Committee, performed Australia’s first – and the Member of the Governance Committee world’s sixth – telesurgical procedure. First elected to the CCNSW Board Other interests include research into in August 2006, re-elected First elected to the CCNSW Board mathematical modelling of cancer, patient December 2008. in August 2006, re-elected communication and the application of December 2008. Associate Professor of Medicine, advanced technologies. Dr Cregan has University of Sydney at Westmead Ms Boehm is a registered nurse served on a number of committees and Millennium Institute and Melanoma and midwife, a representative of the boards, including those of the Royal Institute Australia. NSW Nurses and Midwives Board on Australian College of Surgeons, the professional and tribunal matters, and a Wentworth Area Health Service, the With funding support from CCNSW, member of the Gene Technology Ethics NSW Health Clinical Council and the A/Prof Mann’s team has recruited and and Community Consultation Committee Australasian Medical Simulation Society. worked with one of the world’s largest for the Federal Government. She was He chairs the NSW Dept of Health Surgical cohorts of people with a strong family a founding member of the Board of the Services Committee and is also a director history of melanoma, to help locate genes Cancer Institute NSW until March 2010. on the Cancer Institute NSW Board. that cause high melanoma risk and to She was awarded the Medal of the Order establish their effects. This work has been of Australia in 2007 for service to the Mr Bruce Hogkinson SC complemented by large-scale studies into community through advocacy and support Chair of the Board, Chair of the the genetic and environmental causes of for people with cancer, their families and Governance Committee, Member of melanoma in the population, as well as carers, was nominated for NSW Women’s the Remuneration Committee focused psychosocial research into the Honour Role in 2005 and is also a member effects of melanoma risk. Through a multi- of Women On Boards (WOB). First elected to the CCNSW Board in centre collaborative program supported by July 2007, re-elected October 2009. the National Health and Medical Research Mr Hodgkinson has been a practising Council (NHMRC) and the Cancer Institute barrister at the Sydney Bar since the early NSW, he helps direct translational research 1980s. He was appointed Senior Counsel into the molecular abnormalities of in 2001 and continues to practise melanomas that can now be targeted to extensively in the occupational health improve its diagnosis and treatment. and safety field. Through his practice as 27

Mr Stephen Roberts BB, MBA, MAICD Mr Sendt is a company director and Kanandah Retirement Ltd and the Member of the Investment Committee runs his own management consultancy Foundation for Australian Agricultural until resignation from committee in practice. He serves on a number of Women. She has completed the May 2010 boards including as chairman of Job Australian Rural Leadership Program and Futures Ltd, a director of National Health is a Vincent Fairfax Fellow. Since 1996, First elected to the CCNSW Board in Call Centre Network Ltd and a director of she has operated a marketing and project Oct 2007, re-elected November 2009. the Accounting Professional and Ethical consultancy business based in Mudgee. Mr Roberts is a member of the boards Standards Board. He was Auditor- of Cancer Council Australia and Social General of NSW from 1999 to 2006 and Company Secretary Ventures Australia Capital Fund. has a strong interest in governance, Ms Angela Aston. Professionally, he is Senior Partner and accountability and strategic management. Regional Business Leader of Asia Pacific for Mercer Investments, and brings Ms Melanie Trethowan MB (Marketing) extensive business and management experience to the board. Mr Roberts is Elected to the CCNSW Board in trained as a chartered accountant, and December 2008. is also Chair of the POSH Committee, Ms Trethowan has been actively which engages in fundraising activities involved in cancer issues since 2004. for CCNSW. To date her roles with CCNSW include Regional Advocacy Network Facilitator, Mr Bob Sendt BA (Econ), Grad member of the Mudgee Relay For Life Diploma Environ Studies, FCPA, Committee, acting Chair of the Western FPNA, GAICD Regional Advisory Committee, member Chair of the Audit and Finance of the Medical and Scientific Advisory Committee, Member of the Committee and Daffodil Day Town Remuneration Committee Manager. In June 2009, she was elected First appointed to the CCNSW Board Chair of the Members Assembly. Her in February 2007, re-appointed previous board experience includes February 2010. the Central West Community College,

Meetings of Directors/ Committees:

Full meetings of Audit & Finance Investment Governance Remuneration Directors Committee Committee Committee Committee ABABABABAB S Ackland 56******** J Boehm 5655* *66* * M Chiew 4613****** P Cregan 56******12 B Hodgkinson 66****6622 P Lahiff 56* *55* *22 G Mann 46****56** S Roberts 66**44**** R Sendt 6655****22 M Trethowan 66********

A = Number of meetings attended B = Number of meetings held during the time the Director held office or was a member of the Committee during the year. * = Not a member of the relevant committee

In attendance: Dr Andrew Penman AM Mr Ted Starc Ms Angela Aston CEO, Cancer Council NSW Director, Corporate Services and CFO, Company Secretary, CCNSW CCNSW

Cancer Council NSW Annual Report 2009/10 28 Our management

Dr Andrew Penman AM ChiefChief Executive Officer Bruce Hodgkinson SC Chair 29

Ted Starc Manisha Amin Chief Financial Officercer Divisional Director, and Divisional Director,tor, Corporate Servicess Marketing and Gillian Batt Communications Assoc Prof Freddy Sitas Divisional Director, Jenny Beach Divisional Director, Cancer Information Kathy Chapmanan Divisional Director, Cancer Research aand Support Services Divisional Director,or, Statewide Services Health Strategieses Catherine Cahill Divisional Director, Human Resourcessources

Visit our online annual report resources at www.cancercouncil.com.au/annualreport2010 to watch brief interviews with our Divisional Directors.

Cancer Council NSW Annual Report 2009/10 30

Immediately before joining CCNSW, she Jenny Beach Our management was the Marketing and Communications Divisional Director, Statewide Services Manager for Guide Dogs NSW. Manisha’s Jenny Beach has worked for CCNSW experience spans a range of disciplines since 1997, starting as a Regional Andrew Penman AM across the marketing spectrum, including Programs Coordinator in Orange. Chief Executive Officer fundraising, communications, digital Since that time, she has worked as the media, social marketing and advocacy. Dr Andrew Penman has degrees in Regional Manager in the Western Region Biochemistry and Medicine from the and the Health Strategies Manager, Gillian Batt University of Queensland. He completed Regional Network. She took on the role of Divisional Director, Cancer Information an internship with the Auckland Hospital Director of Statewide Services Division in and Support Services Board and trained in internal medicine in 2006. She is a registered nurse, and prior the United States, taking the membership Gillian Batt graduated from University to working with Cancer Council worked exams for the American College of College, London, with a BA (Honours) throughout rural and regional NSW as a Physicians, prior to commencing degree and has a background in nurse, as well as in regional media and a training in public health. Andrew worked performance management and health variety of small businesses. in emergency medicine and primary policy and planning. She spent over 20 health care training before returning to years working in the National Health Jenny was born in Western NSW and Australia in 1983. He spent 13 years Service (NHS) and the Department of has lived there most of her life. She is with the Health Department of Western Health in England, including positions at a passionate advocate for services in Australia, including roles as the Medical local, regional and national level. Before rural and regional NSW, and believes Officer in Halls Creek, Director of Public moving to Sydney in 2002, Gillian had that community connections and local Health in the Pilbara region and Assistant been working closely with the NHS leadership hold the key to creating social Commissioner for Public Health and Chief National Cancer Director in developing networks and change. Her divisional Health Officer. In 1996, Andrew moved and implementing the NHS Cancer Plan. strategy is guided by the belief that the to NSW to work as Director of Disease greatest difference can be made by Prevention and Health Promotion for As the Director of Cancer Information and treating cancer as a social issue, where the NSW Health Department, before his Support Services, Gillian is responsible every one of us can make a contribution appointment as CEO of CCNSW in 1998. for ensuring that cancer patients, families to this change. and carers are able to access appropriate Andrew has a broad interest in public information and support at the right time. Catherine Cahill health, in particular in the development In looking to improve support available Divisional Director, Human Resources of programs for the control of non- for patients and their families, Gillian has Catherine Cahill has over 25 years communicable and chronic diseases, had a particular interest in developing experience in human resources and in the early and effective application research into the financial impact of management. She joined CCNSW in of research into practice. cancer and the supportive and practical 2009, after working in government needs of patients, carers and their agencies, private partnerships and publicly In 2010, Andrew was appointed families. The practical support offered to listed and privately owned companies. Member of the Order of Australia (AM) cancer patients and their families in NSW Catherine has completed undergraduate for his contribution to public health as has broadened under Gillian’s leadership studies in Social Science and Statistics at Chief Executive Officer at Cancer over the past five years. Council NSW. Macquarie University and has a Diploma in Human Resources Management from Gillian has been part of the investigation the Sydney Institute of Technology. She Manisha Amin team in partnership with the University of is a certified professional member of the Divisional Director, Marketing Western Sydney and a number of other Australian Human Resources Institute, and Communications organisations in undertaking Australian and has previously served on the National Research Council-funded studies into Manisha Amin has worked in both Committee of the Australian Association of the effectiveness of support groups, the Australia and the United Kingdom in a Career Counsellors. number of sectors, including the arts, needs of carers and the impact of cancer on intimacy and sexuality for patients environment, technology and education. Catherine has established a significant and carers. She is currently the Director of Marketing track record developing and delivering and Communications at CCNSW, where both strategic and operational human Gillian has also successfully applied for a she has responsibilities for retail, direct resources initiatives in a diverse range of number of grants from Cancer Australia marketing, events, marketing services industries, including sales, manufacturing, to develop interactive models of support and corporate communication. Her role professional services, health, government for people affected by pancreatic cancer, involves bringing in $54 million annually in and event management. Her experience brain tumours and cancer of unknown fundraising from around 180,000 donors and expertise includes generalist human primary (CUP). These are all unsupported and events participants. resources management, employment law cancers with poor survival rates. and organisational development. 31

Early in her career, Catherine developed Freddy Sitas Ted Starc skills in occupational health and safety Divisional Director, Cancer Research Chief Financial Officer and Divisional and injury management, and was one Director, Corporate Services Freddy Sitas is the Director of Cancer of the first Return to Work Counsellors Research Division at CCNSW, comprising Ted Starc has a Bachelor of Economics when the revised WorkCover system was the Cancer Epidemiology Research Unit from the University of Sydney, a Graduate launched in 1991. in Sydney and the Centre for Health Diploma in Business Computing from Research and Psycho-oncology in the University of Western Sydney, and a Kathy Chapman Newcastle. Research programs include Graduate Diploma in Applied Finance and Divisional Director, Health Strategies cancer causes, health service research, Investment from the Financial Services mathematical modelling, analytical Institute of Australia. He is a member of Kathy Chapman has a Bachelor of epidemiology, behavioural science and the Institute of Chartered Accountants, is Science degree and a Masters degree in psycho-oncology. a registered tax agent, a senior member Nutrition and Dietetics. She is currently of the Australian Computer Society, a a PhD candidate at the University of He obtained a BSc in 1981, an MSc (Med) registered Justice of the Peace and a Sydney. Kathy is an accredited practising in 1987 from the University of the Fellow of the Financial Services Institute dietitian and has 18 years experience Witwatersrand (South Africa), an MSc in of Australia. Ted has auditing experience working in both public health and clinical Epidemiology from the London School gained across primary, secondary settings. Prior to working at CCNSW, of Hygiene and Tropical Medicine in and tertiary industries – ranging from Kathy worked at Bankstown and Gosford 1987 and a DPhil in Epidemiology from small family-operated businesses to hospitals and in medical education at the the University of Oxford in 1990. Part of multinationals – in the technical areas of Postgraduate Medical Council. Kathy has his work showed for the first time that audit, taxation and accounting services. worked at Cancer Council since 2002, Helicobacter pylori is a cause of stomach and was previously our Nutrition Program cancer. He returned to South Africa Ted moved from auditing to the Manager. Kathy was the first nutritionist in 1990 to head the National Cancer commercial arena, working in varied employed at CCNSW and has enhanced Registry and in 1999 was awarded a environments including manufacturing, the organisation’s focus on nutrition and Directorship of the South African MRC wholesaling, retailing, importing, cancer prevention, both in NSW and Cancer Epidemiology Research Group. exporting, direct selling and service nationally. Kathy is the chair of Cancer In 2000, he was awarded a Readership provision. He joined CCNSW in 1998 as Council Australia’s Nutrition and Physical in Epidemiology by the University of the Chief Financial Officer and the additional Activity Committee and chair of the Witwatersrand. He joined CCNSW as appointment to Divisional Director, Coalition on Food Advertising to Children. Director, Cancer Research and Registries Corporate Services, was made in 2008. in 2003. He is an Associate Professor As Director of the Health Strategies at the Schools of Public Health at the Division, Kathy is responsible for leading University of Sydney and the University of the cancer prevention work of Cancer New South Wales. Council in tobacco control, nutrition and skin cancer, as well as advancing policy Freddy has published 94 papers in peer- and advocacy initiatives in these areas. reviewed journals, 3 theses, 15 books/ Kathy’s experience includes developing reports, 11 chapters in books and 14 strategic partnerships, developing and other publications, with a total of 3,599 disseminating policy positions relating citations. Freddy’s interests include to cancer control, strategic research to cancer and mortality surveillance, underpin both advocacy and community- viruses and cancer, and tobacco- based programs, and the development, attributed disease. implementation and evaluation of programs to change health-related behaviours.

Cancer Council NSW Annual Report 2009/10 32

Bijoux Collection Man Investments Thank you Bloomfield Foundation Manly–Warringah Sea Eagles Blooms The Chemist Medicare BlueScope Steel Minter Ellison Lawyers Bonville Golf Resort We thank the following Mortgage Choice Brown and Hurley Trucks Nerada Tea individuals and Tim Cahill Nettleton Tribe organisations who have Canterbury-Bankstown Bulldogs Newsagents Association NSW supported us in 2009/10. Mirella Carbone Colleen Newton Through their extensive Cargill Next Capital and generous financial or C Burk Design NIDA in-kind support, they have Angela Cho NRMA had a significant impact Christ the King Primary School NSW Rugby on our mission. There CHU Parramatta Eels are others who elected CityRail Pearsons Florist not to have their names Cleaver’s PMA Solutions published, and to whom Count Charitable Foundation QBE we are also grateful. Cronulla Sharks Quadrant Private Equity CSC Relais & Chateaux Curves Rix Creek Social Golf Club Aqua Dining and Ripples Daikin Stephen Roberts Group of Restaurants Deutsche Bank Rugby League’s One Community Coles Eden Gardens Russell Investments Andrew Cox Fastway Couriers Maxwell Schroder FCB Workplace Lawyers & Consultants Servcorp Smart Office Franklins Flowers Financial Group Shangri-La Hotels and Resorts The Dianne Kemp Football NSW Kay Sidman Foundation Foxtel Nancy Sherry NAB Barbara Galvin Skipper Jacobs Charitable Trust Julie Giovenco Sorbent Prime TV Catherine Giunta SOS Print + Media Keith and Alison Ross Gordon and Gotch South Sea Horizon Star Track Express Harris Farm Markets Sportscraft HCF St George Illawarra Dragons Tour de Cure Bill Hicks STI Lilyfield Hills Shire Times Sydney Water Active Air Rentals Bruce Hodgkinson SC Tenix AFL NSW/ACT IGA The Patronax Foundation AMP Illawarra Honeybees The Westin Sydney ANZ Trustees Integral Energy Turner Freeman Lawyers Apparel Group James Tuite & Associates UnderCoverWear Australian Army Jonah’s Veolia Transport Avoca Beach Girls Night In Committee Kmart Westpac Bankwest Liberty International Underwriters Wests Tigers Baulderstone Lumley Insurance Winning Appliances Bayview Boulevard Macquarie Group Foundation Leanne Wood Big W Magic Millions Woolworths 33

Eva Dundas George Alroy Scheuner Thank Shirley Elford Mary Vimala Selvam Alfred James Emmerson Josephine Shank you for Neville Charles Finch Dorothy May Hamilton Sharp James Walter Fox Ronald Grenfell Shearwin bequests Shirley Gerlic John Oswald Shepherd Bruce Allan Gibson William Clarence Sneddon John Anthony Gilbert Mary Frances Stephens Mary Gran-Faugstadmo Mary Betty Stokes Bequests reflect the Evelyn Mildred Harris Joyce Sugars foresight of generous Jaime Marie Harrison Sheila Mary Suters people such as these, Avice Winifred Harwood Brunhilde Auefemii Sztajgman who believed in defeating Roy Edward Heath David Sztajgman cancer for future Jessie Jocelyn Holder Lewis John Taylor generations. Their final James Brian Hopkins Dorothy Reavley Tinsley kindness will enable us Grace Louise House Ermione Tonna to fund more life-saving Ernest Kenneth Isherwood Evelyn Rose Turrell research and provide vital Brian William Jackson Leornard Arthur Tyler services and programs. Marjorie Wilba Jeffery Kenneth James Unwin Patrick Vaughan Jeffery Ivy Viant

Mary Jean Allen Dorothea Mary Jezzard Frederick Robinson Vines Kevin Edward Alridge Gladwys Madge Leach Alan James Walker Keith Victor Armstrong Ruth Mary MacCarthy John Harold Wallington Olga Essie Patience Armstrong Allan John McClenaghan Pauline Hilda Walsh Charles L Bartholomew Shirley Love McGrane Rita Waterman Marie Josphe Bayliss Ruth Isabelle Mackey Joan Muriel Whitfield May Morison Bennett Doris May Maskey Clive Raymond Wilshire Robert Francis Biddle Stanley Morley Mather Marion Woods Aileen Dorothy Blackie Theodoros Ilias Mavromattes Edith May Bohr Winifred Isobel Mitchell Rosine Ernestine Bourne Lexie Eunice Morell Helen Ann Bowles Hazel Doreen Nagle Vera Ellen Brack Marion Nelson Barry Raymond Bristow Mona Frances Nesbitt Nola June Brown Bruce Anthony O’Callaghan Jean McIver Caldwell Agnes Argyle Pank Una Jean Cameron Raymond Kemp Perrott Lorna Patricia Cavanagh Joyce Ethel Perry Elizabeth McCheyne McKim Clark Elizabeth Anne Petersen Catherine Gaskin Cornberg Wilhelmina Theodora Pieck Kathleen Blackwell Cribb George Edward Portors Douglas Gordon Bruce Cumming Bernard John Pusch Irene Marjorie Daly Edith Margaret Richardson Antje Renske De Munck Gay Lucille Roberts Vera Florence Dudgeon Kalju Saks John Alfred Scattergood

Cancer Council NSW Annual Report 2009/10 Together we can beat cancer 35

Volunteer with us Call our Helpline Visit us online Our volunteers are exceptional people, For information about any aspect of Our website has had a major giving time, giving skills and giving hope. cancer, our Cancer Council Helpline redevelopment, and we invite you to visit You may have specialist skills or expertise, 13 11 20 is an excellent starting point. www.cancercouncil.com.au to get you may want to provide peer support for The Helpline is a free and confidential informed, get support, get involved or patients or carers, or perhaps you’d like telephone information and support make a change. to help with administration or fundraising service (local call cost applies). It is efforts. There are so many ways to staffed by oncology-experienced health Take action volunteer your time and energy. If you’d like professionals, who provide an exceptional to find out more about opportunities for you level of cancer information and support to Speak out, tell your story and get involved or your organisation to volunteer with us, the people of NSW. – visit www.canceraction.com.au to email [email protected] learn more or take action about cancer or call (02) 9334 1813. issues. Actions speak louder than words, Join a which is why this website provides you Join a Relay For Life fundraising event with various ways to take action based Hosting or joining a fundraising event is on your passion, time commitments or Relay For Life is a unique, overnight a fantastic way to raise funds to defeat preferences for involvement. fundraising event that brings communities cancer and have a great time with your together in the fight against cancer. friends, family or workmates. More than Remember us Whether you are a cancer survivor, a carer, 31,00 people hosted or organised a in your will someone supporting friends or loved ones, fundraising event or activity for us last or simply wanting to make a difference, year. Our events are some of the most You can help us beat cancer by Relay For Life empowers everyone who popular and well-recognised in Australia – including a gift in your will to Cancer participates. You can register your own Daffodil Day, Australia’s Biggest Morning Council. It is a simple process that will team, or join an existing event. Visit Tea, Girls Night In and Pink Ribbon Day make a real difference to the lives of www.relay.cancercouncil.com.au for to name a few. Visit our website at www. people affected by cancer and to the more information. cancercouncil.com.au to see when and health of future generations. If you do how you can get involved. decide to include a gift in your will, Join a research study please use the following wording:

From time to time, we conduct research Give regularly ‘I bequeath to The Cancer Council NSW studies on people drawn from the NSW (ABN 51 116 463 846) for (its general Through our Breakthrough regular population. Studies range in type from purposes) or (its research purposes) giving program, you can give an questionnaire-based surveys, focus (the residue of my estate) or (a specified amount each month or each quarter, groups and interviews to other types of sum) or (specified items) free of all duties, which can be deducted from your bank research. You can register online at and the receipt of the Secretary or other account or credit card. www.cancercouncil.com.au/ authorised officer for the time being shall joinastudy by providing a few relevant Your regular gift will help to fund be a complete and sufficient discharge details, or call the special Join a Research support services and current research for the executor(s).’ Study number on (02) 9334 1398. Please studies into defeating cancer, as well note that study participants will not as future projects. For more information, contact necessarily be cancer patients. Mella Moore by email at Visit our website or phone 1300 780 113 [email protected] or phone (toll free) to sign up as a regular giver. (02) 9334 1900.

Cancer Council NSW Annual Report 2009/10 36

Our summarised financial report

The full financial report and auditor’s report is available online at www. This summarised financial report is an cancercouncil.com.au/ extract from the full financial report for the annualreport2010 year ended 30 June 2010. The financial statements and disclosures in the summarised financial report have been derived from the Full Financial Report for the year ended 30 June 2010. This following summarised financial report reflects our commitment to business transparency and environmental awareness. A commentary is provided from page 41 to assist members in understanding the summarised An extract from the full financial report. financial report is printed on the following pages. For a full understanding of the financial performance, financial position and financing and investing activities of Cancer Council NSW (CCNSW), please see the full financial report and auditor’s report on our website at www.cancercouncil.com.au/ annualreport2010

This reflects our commitment to environmental awareness and business transparency. 37

Statement of comprehensive income For the year ended 30 June 2010 20102010 2009 $’000$’000 $’000

Revenue Fundraising income 5353,750,750 48,290 Retail income 77,523,523 7,953 Interest and investment income 2,22,27878 2,249 Grant income 22,827,827 1,808 Other revenue 1,111,1133 1,147 Total revenue 667,4917,491 61,447 Increase in fair value of investment property 30 – Gain on sale of managed funds 55,407,407 – Total income 772,9282,928 61,447

Expenses Fundraising expenditure 15,415,40505 15,872 Retail expenditure 66,081,081 6,567 Research 14,14,269269 14,401 Regional program delivery 44,962,962 5,078 Health advocacy and prevention 3,3,719719 4,140 Information and support 66,725,725 6,798 Media, communication and marketing expenditure 22,272,272 2,856 Infrastructure and investment 55,263,263 5,269 Decrease in fair value of managed funds – 5,809 Total expenses 558,6968,696 66,790 Surplus/(deficit) before income tax 14,14,232232 (5,343)

Income tax expense –––

Surplus/(deficit) for the year 14,232 (5,343)

Other comprehensive income Decrease in fair value of available-for-sale financial assets ((2,303)2,303) – Decrease on revaluation of land and buildings– (2,863) Total comprehensive income for the year 1111,929,929 (8,206)

Cancer Council NSW Annual Report 2009/10 Our summarised financial report

38

Statement of financial position As at 30 June 2010 20102010 2009 $’000 $’000

Assets Current assets Cash and cash equivalents 99,065,065 11,695 Trade and other receivables 11,698,698 1,417 Inventories 1,11,13636 978 Financial assets 5,5,000000 – Total current assets 1616,899,899 14,090

Non-current assets Investment properties 300 270 Financial assets 3939,162,162 31,575 Property, plant and equipment 118,4568,456 19,295 Total non-current assets 57,918 51,140 Total assets 74,74,817817 65,230

Liabilities Current liabilities Trade and other payables 22,254,254 4,451 Provisions – employee benefits 11,374,374 1,367 Total current liabilities 3,628 5,818

Non-current liabilities Provisions – employee benefits 449449 601 Total non-current liabilities 444499 601 Total liabilities 4,0774,077 6,419 Net assets 70,74070,740 58,811

Funds General funds 61,280 48,614 Restricted funds reserve 8,839 7,273 Available-for-sale financial assets reserve (2,303)(2,303) – Asset revaluation reserve 2,924 2,924 Total funds 70,74070,740 58,811 39

Statement of changes in funds For the year ended 30 June 2010 General Restricted Available-for- Asset Total funds funds sale financial revaluation funds reserve assets reserve reserve $’000 $’000 $’000 $’000 $’000

Opening balance as at 1 July 2008 54,463 6,767 – 5,787 67,017 Transfer to/(from) reserves (506) 506 – – – Total comprehensive income for the year (5,343) – – (2,863) (8,206) Closing balance as at 30 June 2009 48,614 7,273 – 2,924 58,811

Opening balance as at 1 July 2009 48,614 7,273 – 2,924 58,811 Transfer to/(from) reserves (1,566) 1,566 – – Total comprehensive income for the year 14,232 – (2,303) – 11,929 Closing balance as at 30 June 2010 61,280 8,839 (2,303) 2,924 70,740

Nature and purpose of reserves

Restricted funds reserve The restricted funds reserve relates to bequests and donations received by CCNSW with a purpose specified in the bequest or by the donors. These funds are held in the restricted funds reserve until spent appropriately.

Available-for-sale financial assets reserve The available-for-sale financial assets reserve is used to record changes in the fair value of financial assets classified as available-for- sale. Amounts are reclassified to surplus or deficit when the associated assets are sold or impaired.

Asset revaluation reserve The asset revaluation reserve is used to record increments and decrements on the revaluation of CCNSW land and buildings.

Cancer Council NSW Annual Report 2009/10 Our summarised financial report

40

Statement of cash flows For the year ended 30 June 2010 20102010 2009 $’000 $’000

Cash flows from operating activities

Receipts Receipts from supporters and funding sources (inclusive of GST) 6262,055,055 58,116 Receipts from grant funding 22,827,827 1,808 Dividends, franking credits and interest received 930 1,016 6565,812,812 60,940

Payments Payments to suppliers and employees (inclusive of GST) 559,4689,468 58,698 5959,468,468 58,698 Net cash inflow from operating activities 6,344 2,242

Cash flows from investing activities Proceeds from sale of financial assets at fair value through profit and loss 3737,167,167 – Proceeds from sale of property, plant and equipment 326 243 Proceeds from sale of available-for-sale financial assets 23 – Payments for purchase of available-for-sale financial assets ((40,326)40,326) – Payments for purchase of held to maturity investments ((5,000)5,000) – Payments for purchase of property, plant and equipment (1,164)(1,164) (2,379) Net cash outflow from investing activities (8,974)(8,974) (2,136)

Net increase/(decrease) in cash and cash equivalents ((2,630)2,630) 106 Cash and cash equivalents at beginning of year 11,69511,695 11,589 Cash and cash equivalents at end of year 99,065,065 11,695 41

investigate reasons for these declines investments have been designated Commentary in order to improve their performance in as available-for-sale. This will mean future years. future gains and losses due to market fluctuations will be booked to reserves on statement of Investment income increased by $5.5M in our accumulated funds and will not or 250% from last year ($2.2M to $7.7M). impact directly on future income or comprehensive This growth was achieved thanks to the expenditure. This change in policy is recovery in the global financial markets consistent with the Board’s long-term income during the year, and recoups the losses view of our investments. posted last financial year as a result of the global financial crisis. Our investment Fundraising expenditure decreased by $0.5M or 3% from last year ($15.9M The result for the financial year ended policy is closely monitored by our Board to $15.4M). This decrease is mostly 30 June 2010 was a surplus of $14.2M and the Investment Committee, which attributed to lower than expected compared with a deficit of $5.3M in the take a long-term view of our investments. recruitment levels and associated previous year. This result was achieved During the year our investment portfolio costs for our Breakthrough regular through strong income growth and was restructured within this policy, under giving program. constrained expenditure in a year that the guidance of our investment advisors, began with great uncertainty regarding the Mercer, to provide greater diversity in our impact and extent of the global financial investments and reduced volatility in Retail expenditure decreased by $0.5M crisis on our supporters and their ongoing the portfolio. or 7% from last year ($6.6M to $6.1M). capacity to support CCNSW. This result is due to the closure of our Retail income decreased by $0.4M Sydney CBD store as well as improved Income or 5% from last year ($7.9M to $7.5M). supplier relationships delivering savings in This is a strong result given the closure cost of goods sold. Total income increased by $11.5M or of our Sydney CBD store in January 19% from last year ($61.4M to $72.9M), 2009 due to the Westfield Centrepoint Research expenditure decreased by an excellent result in an uncertain redevelopment. $0.1M or 1% from last year ($14.4M to economic climate. $14.3M). This is due to some significant Grant income increased by $1.0M or long-running research projects being Fundraising income increased by 56% from last year ($1.8M to $2.8M). completed during the year and a reduced $5.5M or 11% from last year ($48.3M This result is primarily due to funding number of new projects being approved. to $53.8M). Bequest income was a being received for a new skin cancer This plateau in our research expenditure standout, up on last year by $2.4M study from the National Health and is in line with other expenditure areas and or 23%. Our Breakthrough regular Medical Research Council ($0.7M) and is considered temporary, given a research giving program posted another year of two new Smoking Care projects from expenditure budget of $17M is planned growth, up on last year by $1.1M or NSW Health ($0.4M). A full list of grant for the 2010/11 year. 9%. However, not all areas experienced income is published in Note 3 of our full growth, with our direct mail result financial statements. Media, communication and decreasing by $0.5M or 16% from marketing expenditure decreased by last year. Expenditure $0.5M or 20% from last year ($2.9M to $2.3M). This result is primarily due to Total expenditure decreased by Of our fundraising events, Relay For Life the discontinuing of our Cancer Council $8.1M or 12% from last year ($66.8M income was the standout performer, up Outreach Service in 2009. on last year by $1.1M or 22%, firmly to $58.7M). This result is due to the inclusion of investment losses last year establishing itself as Cancer Council’s Other areas of expenditure decreased biggest event in both income and and also reflects a year of cautious spending, with few new projects marginally from last year with no material participation levels. Pink Ribbon Day changes in activity to note. and Pink Ribbon Events also posted approved due to uncertainty in funding. significant growth with their combined With greater certainty and confidence heading into the new financial year, Overall, CCNSW’s strong financial result up on last year by $0.7M or 36%, result provides a solid foundation for whilst Daffodil Day posted modest the Board has approved an increased expenditure budget of $68M for 2010/11. continued growth and, most importantly, growth in income of $0.2M or 5%. the ability to continue delivering cancer Investment losses of $5.8M were research, support and prevention Other mass participation events, programs into the future. Australia’s Biggest Morning Tea (ABMT) recognised in expenditure last year, with and Girls Night In (GNI), both experienced no losses being posted to expenditure decreases in registrations and income this financial year. This is the primary from last year, with ABMT down on last contributor to the decrease in total year’s income by $0.4M or 8% and GNI expenditure from last year. With the also down on last year by $0.4M or 14%. restructure of our investment portfolio Post-event analysis was conducted to during the year, our new managed fund

Cancer Council NSW Annual Report 2009/10 Our summarised financial report

42

Property, plant and equipment Commentary decreased by $0.8M or 4% from last year ($19.3M to $18.5M). There were no major additions during the year, therefore on statement this movement represents normal asset turnover and depreciation charges during of financial the year. position Liabilities Total liabilities decreased by $2.3M or 36% from last year ($6.4M to $4.1M). This is due to a decrease in trade and Assets other payables, and a net decrease in Total assets increased by $9.6M or employee benefits from last year. 15% from last year ($65.2M to $74.8M). This increase is as a result of a top-up of Trade and other payables decreased our managed fund portfolio, net growth by $2.2M or 49% from last year ($4.5M in our managed funds and increases in to $2.3M). This is primarily due to cash levels (incorporating term deposits), payment of the final instalments for all of which were funded from higher than research grants earlier this year than expected income. last year.

Cash and cash equivalents decreased Provisions – employee benefits by $2.6M or 22% from last year ($11.7M decreased by $0.2M or 10% from last to $9.1M). This is primarily due to $5M year ($2.0M to $1.8M). This is primarily in unbudgeted income being invested due to compulsory annual leave for staff for terms greater than 3 months to during the extended Christmas shutdown maximise interest returns. These funds in January 2010. are classified as financial assets rather than cash and cash equivalents. Funds Total funds increased by $11.9M or Trade and other receivables increased 20% from last year ($58.8M to $70.7M). by $0.3M or 20% from last year ($1.4M This increase is mainly due to the surplus to $1.7M). This is primarily due to an for the financial year. income distribution from Cancer Council Australia for the year ended 30 June Our restricted funds reserve, which forms 2010 being recognised in June but not part of this total fund balance, increased received until early July 2010. by $1.6m or 22% from last year ($7.3M to $8.8M) and represents growth in the Inventories increased marginally by net fundraising proceeds received with $0.1M or 10% from last year ($1.0M to a restricted use attached. These funds $1.1M). This is primarily due to stock are held in reserve until spent on an required for our new Rouse Hill retail appropriate project in accordance with store which opened in May 2010. our donors’ requests.

Financial assets increased by $12.6M Our available-for-sale financial or 40% from last year ($31.6M to assets reserve has a deficit balance $44.2M). This is due to $5M in cash of $2.3M, representing unrealised losses being deposited for terms greater than in the value of our managed funds at 90 days; a $3.2M top-up of our managed 30 June 2010. funds in December 2009; net growth in our managed funds of $3.1M; and There was no movement in our asset distributions of $1.3M being reinvested. revaluation reserve during the year with the balance remaining at $2.9M. 43

Audit report

,QGHSHQGHQW$XGLWRU V5HSRUW

7RWKHPHPEHUVRI7KH&DQFHU&RXQFLO16:

5HSRUWRQWKH6XPPDULVHG)LQDQFLDO5HSRUW

:H KDYH DXGLWHG WKH DFFRPSDQ\LQJ VXPPDULVHG ILQDQFLDO UHSRUW RI7KH&DQFHU&RXQFLO16: WKH FRPSDQ\ ZKLFKFRPSULVHVWKHVWDWHPHQWRIILQDQFLDOSRVLWLRQDVDW-XQHDQGWKHVWDWHPHQWRI FRPSUHKHQVLYHLQFRPHVWDWHPHQWRIFKDQJHVLQIXQGVDQGVWDWHPHQWRIFDVKIORZVIRUWKH\HDUHQGHGRQ WKDWGDWHDQGUHODWHGQRWHVZKLFKKDYHEHHQGHULYHGIURPWKHILQDQFLDOUHSRUWRIWKHFRPSDQ\IRUWKH \HDU HQGHG  -XQH  :H H[SUHVVHG D TXDOLILHG DXGLWRU V RSLQLRQ RQ WKDW ILQDQFLDO UHSRUW LQ RXU LQGHSHQGHQWDXGLWRU VUHSRUWGDWHG2FWREHU

'LUHFWRUVҋ5HVSRQVLELOLW\IRUWKH6XPPDULVHG)LQDQFLDO5HSRUW

7KHGLUHFWRUVRIWKHFRPSDQ\DUHUHVSRQVLEOHIRUWKHSUHSDUDWLRQDQGIDLUSUHVHQWDWLRQRIWKHVXPPDULVHG ILQDQFLDOUHSRUW

$XGLWRUҋV5HVSRQVLELOLW\

2XUUHVSRQVLELOLW\LVWRH[SUHVVDQRSLQLRQRQWKHVXPPDULVHGILQDQFLDOUHSRUWEDVHGRQRXUSURFHGXUHV ZKLFK ZHUH FRQGXFWHG LQ DFFRUGDQFH ZLWK $XVWUDOLDQ $XGLWLQJ 6WDQGDUGV 7KHVH $XGLWLQJ 6WDQGDUGV UHTXLUHWKDWZHFRPSO\ZLWKUHOHYDQWHWKLFDOUHTXLUHPHQWVUHODWLQJWRDXGLWHQJDJHPHQWV  %DVLVIRU4XDOLILHG$XGLWRUҋV2SLQLRQ

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

4XDOLILHG$XGLWRUҋV2SLQLRQ

,QRXURSLQLRQH[FHSWIRUWKHHIIHFWVRQWKHVXPPDULVHGILQDQFLDOUHSRUWRIWKHPDWWHUUHIHUUHGWRLQWKH TXDOLILFDWLRQSDUDJUDSKWKHLQIRUPDWLRQUHSRUWHG LQWKHVXPPDULVHGILQDQFLDOUHSRUWLVFRQVLVWHQWLQDOO PDWHULDOUHVSHFWVZLWKWKHILQDQFLDOUHSRUWIURPZKLFKLWZDVGHULYHG)RUDEHWWHUXQGHUVWDQGLQJRIWKH VFRSHRIWKHDXGLWWKLVDXGLWRU VUHSRUWVKRXOGEHUHDGLQFRQMXQFWLRQZLWKRXUDXGLWUHSRUWRQWKHILQDQFLDO UHSRUW

3.)

3DXO%XOO6\GQH\ 3DUWQHU2FWREHU

7HO_)D[_ZZZSNIFRPDX 3.)_$%1 /HYHO0DUJDUHW6WUHHW_6\GQH\_1HZ6RXWK:DOHV_$XVWUDOLD ';_6\GQH\6WRFN([FKDQJH_1HZ6RXWK:DOHV

7KH3.)(DVW&RDVW3UDFWLFHLVDPHPEHURIWKH3.),QWHUQDWLRQDO/LPLWHGQHWZRUNRIOHJDOO\LQGHSHQGHQWPHPEHUILUPV7KH3.)(DVW&RDVW3UDFWLFHLVDOVRDPHPEHURIWKH 3.)$XVWUDOLD/LPLWHGQDWLRQDOQHWZRUNRIOHJDOO\LQGHSHQGHQWILUPVHDFKWUDGLQJDV3.)3.)(DVW&RDVW3UDFWLFHKDVRIILFHVLQ16:9LFWRULDDQG%ULVEDQH3.)(DVW&RDVW 3UDFWLFHGRHVQRWDFFHSWUHVSRQVLELOLW\RUOLDELOLW\IRUWKHDFWLRQVRULQDFWLRQVRQWKHSDUWRIDQ\RWKHULQGLYLGXDOPHPEHUILUPRUILUPV

/LDELOLW\OLPLWHGE\DVFKHPHDSSURYHGXQGHU3URIHVVLRQDO6WDQGDUGV/HJLVODWLRQ

Cancer Council NSW Annual Report 2009/10 44

The Remuneration Committee of the Effective December 2008, the Board, Board evaluates the performance of the the Members Assembly and CCNSW Our CEO against the financial and program Members passed a resolution to amend goals of the organisation. CCNSW’s Constitution to change the quorum requirement for a Members governance Individual performance plans are Assembly meeting to 50 percent of the negotiated between the CEO and the members appointed to the Members Governance principles senior executives. The process for an Assembly at the time of a meeting. evaluation for a senior executive is the Principle 1: Lay solid foundations for However, we are still awaiting a response performance plan negotiated in July management and oversight from the office of the Minister Assisting each year, which is reviewed in January/ the Minister for Health (Cancer). The The role of The Cancer Council NSW February, with a final evaluation conducted Minister’s approval is required to render Board is defined by our Board Charter in July of the subsequent year. which is reviewed regularly and is the amendment effective. In February this year, the Board completed available on the Cancer Council website The Board undertakes a formal process to a formal evaluation of CCNSW’s strategic at www.cancercouncil.com.au. In evaluate its own performance and that of plan and laid the foundations for and particular, the purpose and role of the its Committees and individual Directors. Board is to: principles upon which CCNSW’s new strategic plan was developed. The process for electing the Members • Set the directions and strategies Assembly is described in the The Board also considered and endorsed of CCNSW, in accordance with its Constitution, which is available on our the findings of a strategy review by objectives, and ensure resources are website (www.cancercouncil.com.au). aligned accordingly. Cancer Council Australia. The Board has the power to, and does • Review, monitor and provide direction Principle 2: Structure the Board to add value when appropriate, seek independent to management for the strategies professional advice. implemented. The majority (6 of 10) of the Board members are independent Directors. Of This year, the Governance Committee • Ensure a system of corporate the remaining Directors, Ms Jill Boehm has reviewed CCNSW’s Constitution governance that is compliant with OAM (until March 2010) and Dr Patrick and has recommended a number of the Corporations Act 2001, the Cregan had a material contractual amendments to the Constitution for the company’s Constitution and good arrangement through a Memorandum of consideration of the Members Assembly practice. Understanding signed with the Cancer and CCNSW Members in 2010/11. • Protect, promote and preserve Institute NSW, and both Associate Principle 3: Promote ethical and CCNSW’s reputation and standing as Professor Graham Mann and Dr Stephen responsible decision-making a community charity. Ackland are involved as investigators on The organisation has a Code of Conduct research grants funded by CCNSW. • Monitor management’s performance in place for all Board and staff members and the company’s financial results Membership of the Board of Directors to provide an ethical framework for all on a regular basis, and ensure the as determined by CCNSW’s Constitution decisions and actions, and to ensure that preparation of accurate financial comprises six Core Directors elected we demonstrate fairness, integrity and reports and statements. by the Members Assembly, one Core sound professional and ethical practice Director nominated by the Cancer at all times. A Conflict of Interest Policy • Ensure that internal controls Institute NSW and up to three Directors provides clear guidelines to the Board in effectively mitigate risk and maintain who are co-opted by the seven Core relation to dealing with matters that involve, appropriate accountability systems Directors. The Co-opted Directors are or are perceived to involve, personal and ethical standards. selected for their substantial skills and conflicts of interest for Board members. • Report to members and the experience in philanthropy, finance or CCNSW Directors are not paid for community on the performance and marketing, which will, in the opinion of their services; however, they may be state of the company. the Core Directors, enhance the skills mix reimbursed for expenses incurred of the Board. • Review on a regular and continuing (travelling, accommodation etc) as basis executive performance, executive The Chair of the Board is an independent a result of attending meetings of the development activities and executive Director and the CEO is not a member of Directors or otherwise in the execution of succession planning, especially Chief the Board. their duties. Directors may also be paid a Executive Officer (CEO). fee for services where they are asked to The Constitution provides for a perform extra services or undertake other The role of the CEO and senior nomination process for electing members work for CCNSW beyond or outside the management is defined by contract and through the Members Assembly, which in Directors’ ordinary duties. through a schedule of delegations. Under respect to elected members, serves the the schedule of delegations, the Board is role of a Nominations Committee. responsible for evaluating the performance of the CEO, and the CEO is responsible for appointing senior executives and evaluating their performance. 45

Principle 4: Safeguard integrity in Principle 5: Make timely and Principle 8: Remunerate fairly and financial reporting balanced disclosure responsibly The Board has a properly constituted CCNSW is not a listed company; The Board has adopted a company-wide Audit and Finance Committee with the however, it reports to its members and process for determining remuneration. following guiding principles: to regulators through the medium of an While the responsibility for the annual report issued in compliance with remuneration of the CEO lies with the • Report to the Board of CCNSW, the Corporations Act 2001, and through Board, and the responsibility for the with the power to review and make the Annual General Meeting. remuneration for the rest of the staff recommendations to the Board. is with the CEO, a similar process for Principle 6: Respect the rights of • Be aware in its deliberations of its “stakeholders” benchmarking and evaluation is used duty to the community and the by both. The services of an external charitable role of CCNSW. As of May 2010, CCNSW had 87 remuneration consultant are used to (73 Ordinary and 14 Organisational) conduct benchmarking. • Be focused on applying ‘best formal members. It also recognises a practice’ corporate audit standards broader responsibility to its community In April 2010, the Remuneration and accounting standards to its work. of supporters, who include donors, Committee agreed to undertake the broader responsibility of understanding • Maintain free and open consumers and volunteers. CCNSW succession planning for CCNSW and communication between the communicates with these stakeholders therefore developed terms of reference Committee, auditors and the via its website, various newsletters for succession planning for senior management and Board of CCNSW. and face-to-face meetings throughout the year. Stakeholders can address management. • Review the Audit and Finance questions to CCNSW through the Cancer Council NSW Committee Charter annually and medium of the website. In addition to amend as approved by the Board. the publication of the annual report On 1 October 2005, The Cancer Council NSW began operating as a public • Ensure its performance and the and the Annual General Meeting (see principle 5), CCNSW communicates to its company limited by guarantee under the extent to which the Committee has provisions of the Corporations Act 2001. met the requirements of the Charter membership via the Members Assembly, which met once, on 8 December 2009. Cancer Council is registered with the are evaluated by the Board. Australian Taxation Office as a health- • Review the organisational policies Principle 7: Recognise and promotion charity. manage risk that relate to its Charter and report to Privacy at Cancer Council NSW the Board. On behalf of the Board, the Audit and Finance Committee is authorised to CCNSW’s commitment to security and The Audit and Finance Committee is oversee the adequacy and effectiveness confidentiality includes complying with chaired by an independent Director of the accounting and financial controls, the National Privacy Act 1988 (Cwlth), who is not the Chair of the Board, and including CCNSW’s policies and specifically in relation to the amendments comprises three Board members. In procedures to assess, monitor and made by the Privacy Amendment February 2010, the Board approved manage business risk. CCNSW has a (Private Sector) Act 2000 (Cwlth) (Privacy a change to the Audit and Finance three-year internal audit plan to address Act), and, where applicable, the Health Committee Charter that would amend relevant risks. Records and Information Privacy Act the membership of the Committee, 2002. CCNSW’s Privacy Steering reducing Board membership from three Internal auditors conducted reviews on Committee oversees the review/revision to two and appointing an external person Statewide Services Division regional of privacy documentation as needed, with appropriate expertise. Approval offices and hubs; retail operations; training, receives information about changes to has been sought from the Minister to learning and development; the Marketing privacy legislation, discusses privacy amend the Audit and Finance Committee Services Unit; new events development issues arising and endeavours to ensure Charter and Committee membership. process; grants management and members of staff are properly informed Ministerial approval is pending. administration; back-office support for on relevant privacy matters for their units. major events; volunteer engagement within The Board appointed an internal auditor, programs; and risk management and A final data-classification exercise, Oakton, following an open tender process. business continuity roll-out. planned for completion this year, is awaiting the further development of the In May this year, Mr Stephen Roberts The Investment Committee is responsible accepted the position of Senior Partner organisation’s Security Policy, which is for developing and monitoring investment being revised to include the development and Regional Business Leader for Mercer policies and in 2009/10, the Committee Investments, as a consequence of which of a new CRM (Constituent Relationship updated the Investment Policy to include Management) system. he resigned from his role on CCNSW’s a new Spending Policy. In December Investment Committee. He remains a 2009, CCNSW’s Investment Asset Class During 2008/09, no applications were member of the Board of CCNSW. mix was also reviewed and the Board received for internal review under Division agreed to invest surplus funds through 1, section 36 of the National Privacy an Implemented Manager Solution. This Act or Part 6 of the Health Records and enabled the Committee to take advantage Information Privacy Act. of the change in investment opportunities and to optimise investment return. Cancer Council NSW Annual Report 2009/10 46

Our structure Investment Committee Remuneration Committee

Ethics Committee

Board of Directors

Cancer Research Committee

Audit and Finance Committee

NSW community

Members Assembly • Cancer Institute NSW nominees • Cancer Organisation elected representatives • Health Organisation nominees • Research Organisation elected representatives • Heath Minister’s nominees • Cancer Council Australia nominees • Elected Ordinary members

Members 47

Office Marketing & of the CEO Communication Health Strategies

Human Resources Cancer Information & Support Services Executive management team – Divisional Directors

Corporate Services

Statewide Services Cancer Research

Regional Advisory Committees • Western Region • Southern Region • Hunter Region • Greater Western Sydney Region • North West Region • North Sydney and Central Coast Region • Mid North Coast Region • Central and Southern Sydney Region • Far North Coast Region • South West Region

Cancer Council NSW Annual Report 2009/10 Our structure

48

Members Assembly Board of Directors Mr Ted Starc Director, Corporate Services and CFO Cancer Institute NSW nominees Mr Bruce Hodgkinson, SC (Chair) CCNSW Barrister, Denman Chambers Ms Jill Boehm OAM Ms Elaine Beggs Dr Stephen Ackland Dr Patrick Cregan Minute Secretary, CCNSW Staff Specialist, Medical Oncology Ms Liza Carver Calvary Mater Newcastle Hospital Remuneration Committee Mr Paul Lahiff (Chair) Cancer Organisation elected Ms Jill Boehm OAM (Deputy Chair) CCNSW Board Member representatives Dr Patrick Cregan Ms Sally Crossing AM, Breast Cancer Clinical Director Surgery, South West Mr Bob Sendt Action Group (NSW) Incorporated Sydney Area Health Service CCNSW Board Member Mr Graham Wright, Cancer Patients Assoc Professor Graham Mann Mr Bruce Hodgkinson SC Assistance Society of NSW Westmead Institute of Cancer Research CCNSW Board Chair Ms Roberta Higginson, Cancer Ms Melanie Trethowan Dr Patrick Cregan (from April 2010) Voices NSW Consultant CCNSW Board Member Mr Paul Lahiff Investment Committee Health Organisation nominees Consultant Mr Paul Lahiff (Chair) Assoc Professor Michael Back OAM Mr Stephen Roberts CCNSW Board Member Royal Australian and New Zealand Consultant College of Radiologists Mr Stephen Roberts (to May 2010) Mr Bob Sendt CCNSW Board Member Dr Stephen Clarke, Royal Australasian Consultant and former NSW College of Physicians Mr Doug Bartlett Auditor-General Grant Samuel & Associates Ms Beverley Lindley, Royal Australasian Ms Mary Chiew In attendance: College of Surgeons Managing Director, Giorgio Armani Ms Catherine Johnson, Cancer Nurses Australia Dr Andrew Penman AM CEO, CCNSW Society of Australia Audit and Finance Committee Mr Ted Starc Mr Richard Lawrence, Royal Australian Mr Bob Sendt (Chair) Director, Corporate Services and CFO College of General Practitioners CCNSW Board Member CCNSW Ms Jill Boehm OAM Research Organisation elected Ms Elaine Beggs CCNSW Board Deputy Chair representatives Minute Secretary, CCNSW Ms Mary Chiew (to Feb 2010) Dr Anna deFazio, Westmead Institute for Ms Stephanie Weston CCNSW Board Member Cancer Research Mercer Investment Mr Mark Abood (from February 2010) Minister’s nominees Ms Jillian Reid Former Director of Financial Audit, Mercer Investment Ms Michelle Sparkes Audit Office NSW Mr Craig Hughes In attendance: Cancer Council Australia nominees Mercer Investment Mr Paul Marsh Mr Keith Cox Ethics Committee Oakton Professor William McCarthy AM Assoc Professor Bettina Meiser (Chair) Mr Todd Dewey Non-Medical Graduate with Oakton Elected Ordinary members Research Experience Mr Paul Bull Dept of Medical Oncology Ms Sally Carveth PKF Prince of Wales Hospital Ms Kathy Chapman Mr Adam Beale Ms Vivienne Gregg (to January 2010) Ms Natalie Flemming PKF Consumer Advocate Ms Vivienne Gregg Dr Andrew Penman AM Ms Laura Jakob (to October 2009) Mr Bruce Hodgkinson CEO, CCNSW Allied Health category Ms Rosanna Martinello Oncology Nurse and Special Dr Kendra Sundquist Projects Coordinator Ms Melanie Trethowan Communio Pty Ltd Mrs Poh Woodland Ms Liz Yeo 49

Ms Meghan Carruthers Cancer Research Committee In attendance: Lawyer, Ebsworth & Ebsworth In the past 12 months, the Cancer Mr Ron Gale (to July 2009) Mr Bill McCarthy AM Research Committee has recommended Minute Secretary Medical Graduate with funding for 10 Research Project Ms Catherine Holliday Research Experience Grants, one Program Grant in Manager, Research Strategy Unit Emeritus Professor of Surgery Cancer Pharmacogenomics and six CCNSW (Melanoma and Skin Oncology) Innovator Grants. The Committee has University of Sydney recommended continuation of funding Ms Nysha Thomas (to March 2010) for 77 research projects and programs Project Officer, Research Strategy Unit Ms Joanne Muller and endorsed policies in calling for new CCNSW Lawyer applications for Program Grants and Ms Louise Woods (from March 2010) Ms Alice Oppen Strategic Research Partnership Grants. Grant Administrator and Research Laywoman Officer, Scientific Development, CCNSW Professor Bruce Armstrong (Chair) Rev David Pettett Professor of Public Health, Medical Governance Committee Minister of Religion Foundation Fellow, University of Sydney Metropolitan Reception Mr Bruce Hodgkinson SC (Chair) and Remand Centre Dr Stephen Ackland CCNSW Board Chair CCNSW Board Member Mr John Tong (to December 2009) Assoc Professor Graham Mann Layman Ms Jane Bennett CCNSW Board Member Consumer Representative Dr Marianne Weber (maternity leave) Ms Jill Boehm OAM CCNSW Staff Member Assoc Professor Andrew Biankin CCNSW Board Deputy Chair Research Coordinator Garvan Institute of Medical Research In attendance: Mr Leonardo Simonella Professor Andrew Grulich CCNSW Staff Member National Centre in HIV Epidemiology Dr Andrew Penman AM Project Coordinator and Clinical Research, UNSW CEO, CCNSW (maternity leave replacement from Professor Don Iverson Ms Angela Aston December 2009) Faculty of Health and Behavioural Company Secretary, CCNSW Ms Amanda Adrian (from August 2009) Sciences Laywoman Wollongong University Chris Dawson Turner Freeman Dr John Sanders (from February 2010) Assoc Professor Graham Mann Layman CCNSW Board Member Sister Therese Carroll (from April 2010) Professor Bettina Meiser Religious Representative Dept of Medical Oncology Sisters of St Joseph Prince of Wales Hospital Mr John Friedsam (from April 2010) Mr John Newsom (to March 2010) Allied Health category Consumer Representative CCNSW Staff Member Professor Murray Norris Project Coordinator Deputy Director, Children’s Cancer In attendance: Institute Australia Ms Angela Aston Dr Andrew Penman AM Ethics Executive Officer, CCNSW CEO, CCNSW Ms Stephanie Deuchar Professor Roger Reddel Ethics Secretary, CCNSW Head, Cancer Research Unit Children’s Medical Research Institute Dr Monica Robotin Director, Research Strategy Development Unit, CCNSW Professor Kate White Director, Research Development and Support Unit, University of Sydney

Cancer Council NSW Annual Report 2009/10 Our structure

50

Ethics Committee Topics included: • Cervical Cancer And Prevention Utilities Study (CCAPUS) – estimating Changes to the Cancer Council Ethics • Deciding the ethical issues involved a set of QALY weights for 10 Committee membership this year brought in offering a financial incentive hypothetical health states associated new skills and expertise, ensuring a (donation to CCNSW) to encourage with human papillomavirus (HPV) broader membership base and a greater more men with a family history of disease, prevention and treatment assurance of achieving attendance at prostate cancer to complete an online meetings for each category as required questionnaire • The use of routinely collected data to under the guidelines in the NHMRC’s examine patterns of cancer care and • Identifying the research competences National Statement on Ethical Conduct in outcomes – examining patterns of required and developing an Human Research. hospital care for persons with cancer appropriate training package for in NSW. volunteers to assist in oncology CCNSW is fortunate to have leading research Following review by a minimum of professionals in their field as members two external reviewers per proposal, of the Ethics Committee, and the • Evaluating the success of a training the above proposals were approved committee has over 20 years experience program for volunteers to assist in to proceed. in reviewing a high volume of public undertaking health research health and cancer research proposals. • Determining the current views, A Standing Committee on Scientific The Committee has been denied policies and practices regarding Assessment established by the Cancer recognition as a Lead Health Research smoking within community sector Research Committee to service all the Ethics Committee (HREC) within the organisations in NSW via a telephone scientific peer-review requirements of the NSW Health System, because its survey organisation was formed and is available workload was reduced when both the to provide advice and support to the Central Cancer Registry and the NSW • Appraising the ethics of recruiting Research Review Committee. Pap Test Register were relocated to the potential research participants via the Cancer Institute NSW. The Committee’s CCNSW website Regional Advisory Committees performance received a positive review • Examining the usefulness/outcomes in July 2010 as part of the NHMRC Central and Southern Sydney of Mindfulness-Based Cognitive Harmonisation of Multi-centre Ethical Therapy for persons with cancer Jan Hatch Review (HoMER) accreditation process undertaken for the purpose • Estimating the quality-adjusted life Carolyn Grenville of national accreditation. year (QALY) weights for health states Gary Moore associated with cervical cancer The Committee also provides advice to Myna Hua • Investigating the uptake of smoking- research staff and researchers navigating care training by community service Dr Bernard Stewart the difficulties of preparing research organisations, and evaluating the protocols. The Committee operates Judith Jeffery resulting changes noted in staff within the parameters provided by working in these organisations Angela Cotroneo the NHMRC National Statement and in client smoking behaviours guidelines and CCNSW’s own Privacy Rod Coy subsequent to the training. Management Plan. Research Review Committee Carolyn Loton Three committee members attended The Research Review Committee, Peter Brown NSW Health training workshops during chaired by Professor Louisa Jorm, Katya Issa the year to keep the Committee informed Director of Research, Sax Institute, of current issues in the ethics and provides a research review service Polly Cameron research arena. for internal researchers and for those Jenny Beach researchers submitting proposals During the reporting period, July 2009 for ethics approval who have not yet Julie Callaghan to June 2010, six new proposals were obtained a scientific peer review of their reviewed, of which five were approved study. This past year, the Committee Far North Coast and one awaits a new submission. Four has overseen the scientific review of four of the new proposals requested access Uta Dietrich – Chair research proposals: to CCNSW-held records or contacts. Jenny Dowell In addition, there were 11 requests for • Trends in cervical cancer incidence amendments, variations and/or additional Doug Stinson and mortality in NSW migrant women material relating to proposals previously 1972–2006 Carole Sherringham given ethics approval or requiring ethical advice and/or approval. • Research Extension Program (REP) – Beth Trevan evaluating a program using volunteers Jim Mayze to aid health research delivery 51

Professor Iain Graham Northern Sydney and Central Coast South West Region Jenny Beach Dr Chris Arthur Professor Ted Wolfe Ray Araullo Dr Janelle Wheat Greater Western Sydney Sylvia Chao Mr Noel Hicks Kathie Collins Margaret Durham John Harding Professor Paul Harnett David Harris Mr Keith McDonald Christine Newman Dr Geraldine Lake Ms Pauline Heath James Butler Dr Gavin Marx Dr Peter Vine Alison Pryor Peter Whitecross Jenny Beach Gunjan Tripathi Graham Ball Annemaree Binger Jenny Beach Jenny Beach Dr Louella McCarthy Western Region Angela van Dyke North West The Hon Ian Armstrong OBE Professor Geoff Delany Jo Byrnes Stuart Porges Fiona Strang Melanie Trethowan Hunter Jennifer Lang Peta Gurdon-O’Meara Barbara Gaudry Carmel Raymond Melissa Cumming Luke Wolfenden Loretta Weatherall Nancy Gordon Jill Lack Pamela Morgan Maxine Stainforth Laraine Cross Jennifer Ingall Nevin Hughes Bruce Peterson Jenny Beach Sonia Muir Assoc Professor Peter O’Mara Christine Roach Jackie Wright Alison Crocker Tim Horan Heather Greenwood Southern Jenny Beach Crystal Bergermann Judi O’Brien Nella Powell Todd Heard Narelle Shinfield Jenny Beach Professor Phil Clingian Christine Roach Shelley Hancock Cnr Jim Mclaughlin Mid North Coast Bill Jansens Lesley Schoer Paul Stocker Kerrie Fraser Erica Gray Sue Carsons Mark Green Grant Richmond Ray McMurrich Kerry Child Liz Pearce Ros Tokley Dr Michael Barbato Ken Raison Merewyn Partland Jenny Zirkler Jenny Beach Jenny Beach Chris Packer Patty Delaney Cherie Puckett

Cancer Council NSW Annual Report 2009/10 52

Boyes A, Girgis A, Lecathelinais C. Brief Castagna F, Potente S, Garofano R. assessment of adult cancer patients’ Empowering students: exploring multimedia Publications perceived needs: development and literacy through youth culture using a skin validation of the 34-item Supportive Care cancer prevention curriculum resource. Needs Survey (SCNS-SF34). J Eval Clin Metaphor. 2009 December. Alam N, Robotin MC, Baker D. Pract. 2009;15:602-6. Epidemiology of primary liver cancer in Chapman K, James EL, Read J. The Australia. Cancer Forum. 2009;33(2):88-92. Boyes AW, Girgis A, Zucca AC, benefits of nutrition and physical activity Lecathelinais C. Anxiety and depression for cancer survivors. In: Robotin M, Olver Arya F, Egger S, Colquhoun D, Sullivan D, among long-term survivors of cancer I, Girgis A, editors. When cancer crosses Pal S, Egger G. Differences in postprandial in Australia: results of a population- disciplines: a physician’s handbook. inflammatory responses to a ‘modern’ v. based survey. Comment. Med J Aust. London: Imperial College Press; 2009. traditional meat meal: a preliminary study. Br 2009;191:294-5. J Nutr. 2010;104(5):724-8. Chapman K, Kelly B, King L. Using a Boyes A, Hall A, Zucca A, Girgis A. research framework to identify knowledge Banks E, Canfell K. Invited commentary: Supportive Care Needs Survey: Supplement gaps in research on food marketing to hormone therapy risks and benefits – 2: Reference data for cancer survivors 5-9 children in Australia. Aust N Z J Public The Women’s Health Initiative findings months post-diagnosis. Newcastle: Centre Health. 2009;33:253-7. and the postmenopausal estrogen timing for Health Research and Psycho-onology; hypothesis. Am J Epidemiol. 2009; 2010. Chen FC, Jackson P, Kippen S., James E. 170:24-8. Media reporting of the suicide phenomenon Boyes A, Hodgkinson K, Aldridge L, Turner in Taiwan: a content analysis. Environmental Banks E, Canfell K. Recent declines in J. Issues for cancer survivors in Australia. Health. 2009;9:44-53. breast cancer incidence: mounting evidence Cancer Forum. 2009;33:164-7. that reduced use of menopausal hormones Gallagher TH, Girgis A. Discussing adverse is largely responsible. Breast Cancer Res. Boyes A, Zucca A. Evaluation of Cancer outcomes with patients. In: Kissane DW, 2010;12:103. Council NSW Telephone Support Groups: Bultz BD, Butow PM, Finlay IG, editors. satisfaction and impact. Report prepared Handbook of communication in oncology Banks E, Reeves GK, Beral V, Balkwill A, for Cancer Council NSW. Newcastle: and palliative care. United Kingdom: Oxford Liu B, Roddam A. Hip fracture incidence in Centre for Health Research and University Press; 2010. relation to age, menopausal status and age Psycho-oncology; 2009. at menopause: prospective analysis. PLoS George J, Robotin M. Invited editors, Med. 2009;6(11):e1000181. Epub 2009 Butow PN, Sze M, Dugal-Beri P, Mikhail Cancer Forum, 2009,33(2). Nov 10. M, Eisenbruch M, Jefford M, Schofield P, Girgis A, King M, Goldstein D. From George J, Robotin M. Overview: Bauer J, Read J, Chapman K. Addressing inside the bubble: migrants’ perceptions hepatocellular carcinoma – the future starts the nutritional needs of patients undergoing of communication with the cancer team. now. Cancer Forum. 2009,33(2):83-7. treatment for cancer: a dietitian’s view. In: Support Care Cancer. 2010. doi: 10.1007/ Robotin M, Olver I, Girgis A, editors. s00520-010.0817. Epub 2010 Feb 19. Girgis A, Breen S, Stacey F, Lecathelinais C. When cancer crosses disciplines: a Impact of two supportive care interventions physician’s handbook. London: Imperial Cancer Council NSW. Roadblocks to on anxiety, depression, quality of life, and College Press; 2009. radiotherapy in NSW: stories behind unmet needs in patients with non-localised the statistics. Sydney: Cancer Council breast and colorectal cancers. J Clin Oncol. Benson VS, Green J, Pirie K, Beral V for NSW; 2009. 2009;27:6180-90. the Million Women Study Collaborators (incl Canfell K). Cigarette smoking and risk of Cancer Council NSW. Saving life: why Girgis A, Butow P. Cancer survivorship: acoustic neuromas and pituitary tumours wouldn’t you? An agenda for cancer research priorities at the national and in the Million Women Study. Br J Cancer. control – 2011 and beyond. Sydney: Cancer international levels. Cancer Forum. 2010;102:1654-6. Council NSW; 2010. 2009;33(3):194-7. Bonevski B, Campbell E, Sanson-Fisher Canfell K. Monitoring HPV vaccination Girgis A, Cockburn J, Butow P, Bowman RW. The validity and reliability of an programmes. Invited editorial. BMJ. 2010 D, Schofield P, Stojanovski E, D’Este interactive computer tobacco and alcohol March 24; 340:c1666. C, Tattersall MH, Doran C, Turner J. use survey in general practice. Addict Improving patient emotional functioning Behav. 2010;35:492-8. Canfell K, Banks E, Clements M, Kang YJ, and psychological morbidity: evaluation Moa A, Armstrong B, Beral V. Sustained of a consultation skills training program lower rates of HRT prescribing and breast for oncologists. Patient Educ Couns. cancer incidence in Australia since 2003. 2009;77:456-62. Breast Cancer Res Treat. 2009;117:671-3. 53

Girgis A, Lambert S. Caregivers of cancer Jiang J, Liu B, Sitas F, Zeng X, Chen J, Han Kypri K, Walsh RA, Sanson-Fisher R. survivors: the state of the field. Cancer W, Zou X, Wu Y, Zhao P, Li J. Case-spouse Australian universities’ open door policies Forum. 2009;33(3):168-71. control design in practice: an experience on alcohol industry research funding (letter). in estimating smoking and chronic Addiction. 2009;104:324-9. Glasson C, Chapman K, James E. Fruit and obstructive pulmonary disease deaths in vegetables should be targeted separately in Chinese adults. J Formos Med Assoc. Lei WK, Yu XQ. Survival analysis on health promotion programmes: differences 2010;109:369-77. Population-based Cancer Registry of in consumption levels, barriers, knowledge Macao SAR, 2003–2005. Sydney, Australia: and stages of readiness for change. Public Jiwa M, Mitchell G, Sibbrit D, Girgis A, Cancer Council NSW; WPRO, World Health Health Nutr. 2010;1-8. Epub 2010 June 25. Burridge L. Addressing the needs of Organisation; 2009. caregivers of cancer patients in general Hardy LL, Kelly B, Chapman K, King L, practice: a complex intervention. Qual Prim Ma RW, Chapman K. A systematic review Farrell L. Parental perceptions of barriers Care. 2010;18:9-16. of the effect of diet on prostate cancer to children’s participation in organised prevention and treatment. J Hum Nutr Diet. sport in Australia. J Paediatr Child Health. Jiwa M, O’Shea C, McKinley RK, Mitchell 2009;22(3):187-99. 2010;46(4):197-203. G, Girgis A, Sibbritt D, Burridge L, Marthe Smith, Chan She Ping Delfos W, Halkett Mayosi BM, Flisher AJ, Lalloo UG, Sitas Hawkins Y, Ussher J M, Gilbert E, Perz G. Developing and evaluating interventions F, Tollman SM, Bradshaw D. The burden J, Sandoval M, Sundquist K. Changes for primary care: a focus on consultations of non-communicable diseases in South in sexuality and intimacy following the in general practice. Australasian Medical Africa. Lancet. 2009;374:934-47. diagnosis and treatment of cancer: the Journal. 2009;1:3-7. experience of informal cancer carers. Medical Services Advisory Committee (incl Cancer Nursing: An International Journal for Johnson C, Girgis A, Paul C, Currow DC, Canfell K SMLJCPKY). Automation-assisted Cancer Care. 2009;32(4):271-80. Adams J, Aranda S. Australian palliative and liquid-based cytology for cervical care providers’ perceptions and experiences cancer screening. Assessment Report Holliday C, Robotin M. The Delphi process: of the barriers and facilitators to palliative 1122. Canberra: Department of Health and a solution for reviewing novel grant care provision. Support Care Cancer. 2010. Ageing; 2009. applications. Int J Gen Med. 2010;3:1-6. Epub 2010 Feb 16. Available from: http://www.dovepress.com/ Medical Services Advisory Committee articles.php?article_id=4963 Johnson K, Jones S, Iverson D. Guidelines (incl Canfell K SMLJCPKY). Human for the development of social marketing papillomavirus triage test for women with James E, Ward BW, Dickson-Swift VA, programmes for sun protection among possible or definite low-grade squamous Kippen SA, Snow PC. Best practice adolescents and young adults, Public intra-epithelial lesions. Assessment Report in research methods assessment: Health. 2009;123 suppl 1:e6-10. Epub 39. Canberra: Department of Health and opportunities to enhance student learning. 2009 Sept 13. Ageing; 2009. In: Garner M, Wagner C, Kawulich B, editors. Teaching research methods in Kelly B, Chapman K, Hardy L, King L, Paul C, Girgis A, Anniwell L, Paras L, the social sciences. Surrey, UK: Ashgate Farrell L. Parental awareness and attitudes Lecathelinais C. Outcomes of solarium Publishing Group; 2009. of food marketing to children: a community industry efforts to improve compliance attitudes survey of parents in New South with recommended practices: a James EL, Flood V, Armstrong B, Stacey Wales, Australia. J Paediatr Child Health. clear case for formal regulation. F. Diet, physical activity and cancer – the 2009,45(9):493-7. Photodermatol Photoimmunol evidence. In: Robotin M, Olver I, Girgis A, Photomed. 2009;25(4):185-90. editors. When cancer crosses disciplines: Kelly B, Hughes C, Chapman K, Chun- a physician’s handbook. London: Imperial Yu Louie J, Dixon H, Crawford J, King Paul CL, Mee KJ, Judd TM, Walsh RA, College Press; 2009. L, Daube M, Slevin T. Consumer testing Tang A, Penman A, Girgis A . Anywhere, of the acceptability and effectiveness of anytime: retail access to tobacco in New James EL, Stacey F, Chapman K. The front-of-pack food labelling systems for the South Wales and its potential impact on etiology of cancer – diet and physical Australian grocery market. Health Promot consumption and quitting. Soc Sci Med. activity. Cancer Report of Asian-Pacific Int. 2009;24(2):120-9. 2010 Aug;71(4):799-806. Epub 2010 Region. 2010. May 25. Kralikova E, Bonevski B, Stepankova L, Jiang J, Liu B, Sitas F, Li J, Zeng X, Han W, Pohlova L, Mladkova N. Postgraduate Paul CL, Ross S, Bryant J, Hill W, Bonevski Zou X, Wu Y, Zhao P. Smoking-attributable medical education on tobacco and smoking B, Keevy N. The social context of smoking: deaths and potential years of life lost from cessation in Europe. Drug Alcohol Rev. a qualitative study comparing smokers of a large, representative study in China. Tob 2009;28:474-83. high versus low socioeconomic position. Control. 2010;9:7-12. BMC Public Health. 2010;10:211.

Cancer Council NSW Annual Report 2009/10 Publications and submissions

54

Potente S, Coppa K, Williams A, Engels R. Sitas F, O’Connell D. The ABC Women’s Turner J, Hodgkinson K, Boyes A. Cancer Legally brown: using ethnographic methods Health Study. Sydney: Cancer Council and the psycho-oncologist. Psychosocial to understand sun protection attitudes NSW; 2009. well-being of cancer survivors. In: Robotin and behaviours among young Australians. M, Olver I, Girgis A, editors. When cancer Health Education Research. In press 2010. Sitas F, O’Connell DL, Jamrozik K, crosses disciplines: a physician’s handbook. Lopez AD. Smoking questions on the London: Imperial College Press; 2009. Ringland CL, Arkenau HT, O’Connell Australian death notification form: adopting DL, Ward RL. Second primary colorectal international best practice? Med J Aust. Tzelepis F, Paul CL, Walsh RA, Wiggers cancers (SPCRCs): experiences from a 2009;191:166-8. J, Duncan SL, Knight J. Active telephone large Australian Cancer Registry. Ann Oncol. recruitment to quitline services: are 2010;21:92-7. Sitas F, O’Connell D, van Kemenade CH, nonvolunteer smokers receptive to Short MW, Zhao K. Breast cancer risk cessation support? Nicotine Tob Res. Robotin M, Jones S, Biankin A, Waters among female employees of the Australian 2009;11:1205-15. L, Iverson D, Gooden H, et al. Defining Broadcasting Corporation in Australia. Med research priorities for pancreatic cancer J Aust. 2010;192(11):651-4. Tzelepis F, Paul CL, Walsh RA, Wiggers in Australia: results of a consensus J, Knight J, Lecathelinais C, Daly J, Neil development process. Cancer Causes Smith DP, Banks E, Clements MS, Gardiner A, Girgis A. Telephone recruitment into Control. 2010;21(5):729-36. Available from: RA, Armstrong BK. Evidence-based a randomised controlled trial of quitline http://www.mdlinx.com/hemeonclinx/news- uncertainty: recent trial results on prostate- support. Am J Prev Med. 2009;37:324-9. article.cfm/3019534 specific antigen testing and prostate cancer mortality. Med J Aust. 2009;191:199-200. Vinod SK, Simonella L, Goldsbury D, Robotin M, Kansil M, Howard K, George J, Delaney GP, Armstrong B, O’Connell DL. Tipper S, Dore GJ, et al. Using a population- Smith DP, Clements MS, Wakefield MA, Underutilisation of radiotherapy for lung based approach to prevent hepatocellular Chapman S. Impact of Australian celebrity cancer in New South Wales, Australia. cancer in New South Wales, Australia: diagnoses on prostate cancer screening. Cancer. 2009;116:686-94. effects on health services utilisation. BMC Med J Aust. 2009;191:574-5. Health Serv Res. 2010:10:215. Available Waller A, Girgis A, Currow D, Lecathelinais from: http://www.biomedcentral.com/1472- Smith DP, King MT, Egger S, Berry MP, C, Sibbritt D. Evaluation of a palliative care 6963/10/215 Stricker PD, Cozzi P, Ward J, O’Connell DL, needs assessment intervention. Support Armstrong BK. Quality of life three years Care Cancer. 2009;17:975. Robotin M, Olver I, Girgis A, editors. after diagnosis of localised prostate cancer: When cancer crosses disciplines: a population-based cohort study. BMJ. Waller A, Girgis A, Johnson C, Mitchell physician’s handbook. London: Imperial 2009;339:b4817. G, Yates P, Kristjanson L, Tattersall M, College Press; 2009. Lecathelinais C, Sibbritt D, Kelly B, Gorton Sundquist K, Robotin M. What matters E, Currow D. Facilitating needs-based Rotter T, Kinsman L, James E, Machotta to patients and to carers. In: Robotin M, cancer care for people with a chronic A, Gothe H, Willis J, Snow P, Kugler J. Olver I, Girgis A, editors. When cancer disease: evaluation of an intervention using Clinical pathways: effects on professional crosses disciplines: a physician’s handbook. a multi-centre interrupted time series design. practice, patient outcomes, length London: Imperial College Press; 2009. BMC Palliat Care. 2010;9:2. of stay and hospital costs. Cochrane Database Syst Rev. 2010;3:CD006632. Sweetland S, Green J, Liu B, Berrington Walsh RA, Tzelepis F, Stojanovski E. doi:10.1002/14651858.CD006632.pub2. de GA, Canonico M, Reeves G, Australian superannuation funds and Beral V. Duration and magnitude tobacco investments: issues for DAR Saunders C, Gooden H, Robotin M, of the postoperative risk of venous readers. Drug Alcohol Rev. 2009;28:445-6. Mumford J. As the bell tolls: a foundation thromboembolism in middle aged study on pancreatic cancer consumers’ women: prospective cohort study. BMJ. Yu XQ. Socioeconomic disparities in research priorities. BMC Res Notes. 2009;339:b4583. breast cancer survival: relation to stage 2009,2:179. doi:101186/1756-0500-2-179. at diagnosis, treatment and race. BMC Available from: http://www.biomedcentral. Tipper S, Penman AG. The NSW HBV Cancer. 2009;9:364. com/1756-0500/2/179 and liver cancer pilot program: an update on the ‘B Positive’ Project. Cancer Forum. Yu XQ, Chen WH, O’Connell DL. Improved Simonella L, O’Connell DL, Vinod SK, 2009;33(2):129-33. Available from: http:// survival for non-Hodgkin lymphoma patients Delaney GP, Boyer M, Esmaili N, Hensley www.cancerforum.org.au/Issues/2009/July/ in New South Wales, Australia. BMC M, Goldsbury D, Supramaniam R, Hui Forum/NSW_HBV_and_liver_cancer_pilot_ Cancer. 2010;10:231. A, Armstrong B. No improvement in lung program.htm cancer care: the management of lung Zucca AC, Boyes AW, Lecathelinais C, cancer in 1996 and 2002 in New South Girgis A. Life is precious and I’m making Wales. Intern Med J. 2009;39:453-8. the best of it: coping strategies of long-term cancer survivors. Psychooncology. 2010. doi: 10.1002/pon.1686. Epub 2010 Feb 11. 55

Regional campaign submissions North West Submissions Central and Southern Sydney • One face-to-face meeting with Peter Draper MP to discuss the MP Liaison • One submission to Leichhardt Program (Lorna Dunstan) Council regarding promotion of • Preliminary Submission to Council of smoke-free policy and enforcement. • One face-to-face meeting with Australian Governments (COAG) and Richard Torbay MP to discuss the MP the Australia and New Zealand Food Mid North Coast Liaison Program (Jo Porter) Regulation Ministerial Council Review • 39 community letters sent from of Food Labelling Law and Policy – • One face-to-face meeting with Kevin people in the Manning Valley to the November 2009 Humphries MP to discuss the MP Minister for Health, Nicola Roxon, Liaison Program (Anne Weekes) • Submission to Council of Australian about the need for an onsite medical Governments (COAG) and the oncologist in Taree. • One face-to-face meeting and media Australia and New Zealand Food story in Northern Daily Leader with Hunter Regulation Ministerial Council Review Tony Windsor MP to discuss the Get of Food Labelling Law and Policy – • Three face-to-face meetings with Behind Bowel Screening campaign May 2010 the Minister McKay regarding Get (Narelle Langfield, Regional Advocacy Behind Bowel Screening, Saving life: Network) • Submission on behalf of the why wouldn’t you? and young adult Coalition on Food Advertising to • One face-to-face meeting with Peter treatment centres Children (CFAC) to the review of the Draper MP to discuss Saving life: Commercial Television Industry Code • One face-to-face meeting with why wouldn’t you? campaign (Lorna of Practice – September 2009 Sharon Grierson MP regarding Get Dunstan) Behind Bowel Screening • Cancer Council NSW submission re: • One face-to-face meeting with NSW Public Health Bill consultation – • One face-to-face meeting with Craig Richard Torbay MP to discuss Saving April 2010 Baumann MP regarding Saving life: life: why wouldn’t you? campaign why wouldn’t you? campaign (Jo Porter) • Cancer Council NSW submission re: NSW Rural and Remote Health Plan • One face-to-face meeting with • One face-to-face meeting with – September 2009 George Souris MP regarding Saving Kevin Humphries MP to discuss life: why wouldn’t you? campaign Saving life: why wouldn’t you? • Cancer Council NSW submission campaign (Anne Weekes). re: NSW State Plan 2009 Review – • One face-to-face meeting with August 2009 Matthew Morris MP regarding access to radiotherapy • Cancer Council NSW submission to the Commonwealth Health • One submission to the Program and Hospitals Fund Advisory of Appliances for Disabled People Board on behalf of Hospital-Allied (PADP) review for lymphoedema Accommodation Australia on subsidies (our submission was the Draft Guiding Principles and quoted in the final report) Evaluation Criteria for Regional • One submission to the State Cancer Centres – Patient and Carer Government regarding the Accommodation – October 2009. Muswellbrook Oncology Service • Submission to the Mid-Western • One submission and face-to face- Regional Council re: Smoke-free meetings with Hunter New England Outdoor Areas Policy – February 2010 Area Health Service regarding the • Submission to Warringah Council re: haematology service cut backs. Smoke-free Outdoor Areas Policy – April 2010 • Submission to Willoughby City Council re: Smoke-free Outdoor Areas Policy – April 2010 • Submission to Greater Taree City Council re: Smoke-free Outdoor Areas Policy – February 2010.

Cancer Council NSW Annual Report 2009/10 Contact details Cancer Council NSW Rouse Hill Hub North West (Tamworth) Head Office 2/29 Main Street (PO Box 6112) Shop 2 153 Dowling Street Rouse Hill NSW 2155 218 Peel Street (PO Box 1616) Woolloomooloo Sydney Ph (02) 9354 2070 Tamworth NSW 2340 NSW 2011 Australia Fax (02) 9672 6915 Ph (02) 6763 0900 PO Box 572 Central and Southern Sydney Fax (02) 6766 7053 Kings Cross NSW 1340 153 Dowling Street [email protected] Ph (02) 9334 1900 Woolloomooloo NSW 2011 www.cancercouncil.com.au/ [email protected] (PO Box 572 northwest www.cancercouncil.com.au Kings Cross NSW 1340) Far North Coast (Alstonville) Centre for Health Research & Ph (02) 9334 1754 101-103 Main Street (PO Box 531) Psycho-oncology (CHeRP) Fax (02) 8302 3570 Alstonville NSW 2477 The University of Newcastle [email protected] Ph (02) 6627 0300 Room 230A, Level 2 www.cancercouncil.com.au Fax (02) 6628 8659 David Maddison Building Northern Sydney and Central Coast [email protected] Cnr King & Watt Streets The Hive – Erina Fair www.cancercouncil.com.au/ Newcastle NSW 2300 Erina NSW 2250 farnorthcoast Ph (02) 4913 8604 (PO Box 5102 Erina NSW 2250) Mid North Coast (Coffs Harbour) Fax (02) 4913 8601 Ph (02) 4336 4500 21 High Street [email protected] Fax (02) 4367 5895 Coffs Harbour NSW 2450 www.cancercouncil.com.au/cherp [email protected] Ph (02) 6659 8400 Greater Western Sydney Region www.cancercouncil.com.au/ Fax (02) 6652 1530 Rotary House centralcoast [email protected] 43 Hunter Street (PO Box 3426) Southern Office (Woollongong) www.cancercouncil.com.au/ Parramatta NSW 2150 1 Lowden Square midnorthcoast Ph (02) 9354 2000 Wollongong NSW 2500 South West Region (Wagga Wagga) Fax (02) 9687 1118 Ph (02) 4223 0200 1/37 Thompson Street (PO Box 1164) [email protected] Fax (02) 4225 1700 Wagga Wagga NSW 2650 www.cancercouncil.com.au/ [email protected] Ph (02) 6937 2600 westernsydney www.cancercouncil.com.au/southern Fax (02) 6921 3680 Community Hubs Hunter (Newcastle) [email protected] Casula Hub 22 Lambton Road www.cancercouncil.com.au/ 39 Ingham Drive (PO Box 287) Broadmeadow NSW 2292 southwest Casula NSW 2170 Ph (02) 4923 0700 Western (Orange) Ph (02) 9354 2050 Fax (02) 4961 0955 75 Kite Street (PO Box 1977) Fax (02) 9734 0917 [email protected] Orange NSW 2800 Penrith Hub www.cancercouncil.com.au/hunter Ph (02) 6392 0800 Suite 105 Fax (02) 6361 7425 114–116 Henry Street (PO Box 4379) [email protected] Penrith NSW 2750 www.cancercouncil.com.au/western Ph (02) 9354 2060 Fax (02) 4732 5932 Cancer Council NSW Shops

Cancer Council Cancer Council Cancer Council Penrith Hornsby Miranda Shop 116, Westfield Penrith Shop 3010, Westfield Shoppingtown Shop 3076, Upper Level Henry Street Pacific Hwy Westfield Shoppingtown Penrith NSW 2750 Hornsby NSW 2077 The Kingsway Ph (02) 4722 6560 Ph (02) 9987 0662 Miranda NSW 2228 Fax (02) 4722 6530 Fax (02) 9987 1778 Ph (02) 9525 9209 Cancer Council Cancer Council Fax (02) 9525 9593 Kotara Chatswood Cancer Council Shop 106, Westfield Shoppingtown Shop 442, Level 4 Rouse Hill Cnr Park Ave and Northcott Drive Westfield Shoppingtown Shop GR102 PO Box 388 Victoria Avenue Rouse Hill Town Centre Kotara NSW 2289 Chatswood NSW 2057 Windsor Rd, Rouse Hill, NSW 2155 Ph (02) 4965 5171 Ph (02) 9413 2046 Ph (02) 8814 7031 Fax (02) 4952 2604 Fax (02) 9410 2804 Fax (02) 8883 2734 Cancer Council Cancer Council Online Store Warringah Mall Bondi http://shop.cancercouncil.com.au Shop 349, Level 1 Warringah Mall Shop 5042, Westfield Bondi Junction Cnr Condamine Street and 500 Oxford Street Old Pittwater Road Bondi Junction NSW 2022 Brookvale NSW 2100 Ph (02) 9369 4199 Ph (02) 9939 2668 Fax (02) 9369 3199 Fax (02) 9939 2208 © Cancer Council NSW 2010 Designed by Cobe Design ABN 51 116 463 846 Printed by SOS Print + Media CAN062 11/10 153 Dowling Street Woolloomooloo NSW 2011

Donations Hotline 1300 780 113 [email protected] www.cancercouncil.com.au www.cancercouncil.com.au