DOCUMENT RESUME ED 333 635 EC 300 388 TITLE Respite Care: A Listing of Resources. A Report of the Select Committee on Children, Youth, and Families, One Hundred First Congress, Second Session. INSTITUTION Congress of the U.S., Washington, DC. House Select Committee on Children, Youth, and Families. REPORT NO House-R-101-1001 PUB DATE 21 Dec 90 NOTE 201p.; The appendix will not reproduce well due to broken print. AVAILABLE FROMSuperintendent of Documents, Congressional Sales Office, U.S. Government Printing Office, Washington, DC 20402. PUB TYPE Legal/Legislative/Regulatory Materials (090)-- Reference Materials - Directories/Catalogs (132) EDRS PRICE MF01 Plus Postage. PC Not Available from EDRS. DESCRIPTORS Children; Delivery Systems; *Disabilities; Family Programs; Federal Aid; Federal Legislation; Federal Programs; Infants; *Resources; *Respite Care IDENTIFIERS *Temporary Child Care ABSTRACT This directory offers a list of providers, planners, and researchers involved in respite care services for familieswith children who are mentally retarded, ly:!haviorally disturbed,or physically disabled. The directory, based on information availableas of October 1989, lists over 1,800 respitecare providers and their addresses and telephone numbers. The entriesare arranged alphabetically by state. An appendix, revised in December 1990, lists respite care and crisis nursery service providers whoare grantees of funding under the Temporary Child Care for Children with Disabilities and Crisis Nurseries Act. (JDD) *********************************************************************** Reproductions supplied by EDRS are the best thatcan be made from the original document. *********************************************************************^* Ora P""l REPORT HOUSE OF REPRFSENTATIVES 101-1001 RESPITE CARE: A LISTING OF RESOURCES A REPORT OF THE SELECT COMMITTEE ON CHILDREN, YOUTH, AND FAMILIES ONE HUNDRED FIRST CONGRESS SECOND SESSION U.S. DEPARTMENT OF EDUCATION Once of Edu..ational Research and Improvement EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) 9/his document hes been reproduced as feceived from the person or organization originating it 0 Minor changes have been made to improve reproduction quality Pomts of view or opinions slated in this (Saw ment do not necessarily represent official OERI CloSition or poliCy DECEMBER 21, 1990.Pursuant to House Resolution 84, referred jointly to the Committees on Energy and Commerce, and Education and Labor and ordered to be printed c-3 cNi) U.S. GOVERNMENT PRINTING OFFICE 37-201 WASHINGTON : 1990 2BEST COPY AVAILABLE Ar db. SELECT COMMITTEE ON CHILDREN, YOUTH, AND FAMILIES GEORGE MILLER, California, Chairman WILLIAM LEHMAN, Florida THOMAS J. BLILEY, JR., Virginia PATRICIA SCHROEDER, Colorado FRANK R. WOLF, Virginia LINDY (MRS. HALE) BOGGS, Louisiana BARBARA F. VUCANOVICH, Nevada MATTHEW F. McHUGH, New York RON PACKARD, California 'TED WEISS, New York J. DENNIS HASTERT, Illinois BERYL ANTHONY, JR., Arkansas CLYDE C. HOLLOWAY, Louieiana BARBARA 30XER, California CURT WELDON, Pennsylvania SANDER M. LEVIN, Michigan LAMAR S. SMITH, Texas BRUCE A. MORRISON, Connecticut PETER SMITH, Vermont J. ROY ROWLAND, Georgia JAMES T. WALSH, New York GERRY SIKORSKI, Minnesota RONALD K. MACHTLEY, Rhode Island ALAN WHEAT, Missouri TOMMY F. ROBINSON, Arkansas MATTHEW G. MARTINEZ, California LANE EVANS, Illinois RICHARD J. DURBIN, Illinoim DAVID E. SKAGGS, Colorado BILL SARPALIUS, Texas COMMITTEE STAFF KARABELLE PIZZIGATI, Staff Director Jim. KAGAN, Deputy Staff Director DENNIS G. SMITH, Minority Staff Director CAROL M. &Arum Minority Deputy Staff Director LETTER OF TRANSMITTAL SELECT COMMITTEE ON CHILDREN, YOUTH, AND FAMILIES, Washington, DC, December 21, 1990. Hon. DONNALD K. ANDERSON, Clerk, House of Representatives, Washington, DC. DEAR MR. ANDERSON: We are pleased to transmit theenclosed four reports entitled "Report on the Activities for theYear 1989 of the Select Committee on Children, Youth, and Families,101st Con- gress, First Session." "FederalPrograms Affecting Children and Their Families, 1990," "Opportunities for Success:Cost-Effective Programs for Children, Update, 1990," and "Respite Care:A List- ing of Resources." These documents are transmitted in accordancewith Title II, Section 206(a) of H. Res. 84, and, in addition to reportsentitled "U.S. Children and Their Families: Current Conditionsand Recent Trends, 1989," "No Place to Call Home: Discarded Childrenill America," and "Children's Well-Being: An InternationalCompari- son" which were submitted earlier, summarize some of themajor findings of the Committee during the First and Second Sessionsof the 101st Congress. A fmal document, "Activities Report for the Year1990 of the Select Committee on Children, Youth, and Families, 101stCon- gress, Second Session," will follow. Respectfully submitted. Sincerely, GEORGE MILLER, Chairman. Enclosures. RESPITE CARE: A LISTING OF RESOURCES CONTENTS Page LETTER FROM U.S. GENERAL ACCOUNTING OFFICE.. vii FOREWORD ix RESPITE CARE RESOURCE LISTING Alabama 1 Alaska 5 Arizona 9 Arkansas 11 California 15 Colorado 21 Connecticut 25 Delaware 27 Florida 29 Georgia 35 Hawaii 37 Idaho 39 Illinois 41 Indiana 47 Iowa 51 Kansas 53 Kentucky 55 Louisiana 61 Maine 65 Maryland 67 Massachusetts 71 Michigan 73 Minnesota 77 Mississippi 81 Missouri 83 Montana 85 Nebraska 87 Nevada 89 New Hampshire 91 New Jersey 93 New Mexico 97 New York 99 North Carolina 105 North Dakota 111 Ohio 113 Oklahoma 121 0r- VI Oregon 127 Pennsylvania 131 Rhode Island 137 South Carolina 139 South Dakota 141 Tennessee 143 Texas 145 Utah 159 Vermont 161 163 Washington 167 West Virginia 171 Wisconsin 173 Wyoming 181 District of Columbia and Territories District of Columbia 183 Guam 185 Puerto Rico 187 Virgin Islands 189 GPAMINK Mislay Goosed Aeasemdag Mos Detroit Ilefoshal Office Rom NS Pavia V. liter4aanars Federal *daisy August 28, 1990 471 Mleidom Dena, NHam The Honorable George Miller Chairman, Select Committee on (hildren, Youth, and Families Nous ,f Representatives Dear Mr. Chairman: Early in our review of respie care for your office, we became aware of various public and private agencies' graairoots efforts to develop a network of people intolved in respite care services. In Marcn 1990, we discussed tnese efforts witn your staff, wno asked us to compile .... listIng of providers, planners, and researchers Involved in respite care services for families with cnildren who are mentally retarded, behaviorally disturbed, or physically disaoled. Tne enclosed listing is oased on information avarlaole as of Octoet 1989. Although tne Its.ng identifies over 1,800 respite care providers and klncies, iris not a complete listing and represents onl! the directories and listings that were voluntarily provided to us. Further, we did not verify tne names, addresses, and telephone numbers Gt the people and agencies listed. Notwithstanding these factors, however, Lhe listing should be useful to people involved in respite care. Because your office indicated rt may need a computerized data set that could be uenttc, the states and used to print a committee report, we are also providing a computer disk containfng the data included in the listing. The disk is in a format usable witM WordPerfect 4.2 software, We are pleased to puovide you with this listing obtained as a by-product of our revew of respite care, We are also sending a copy of this listing to the Honorable Ma)or VIII Owens, Chairman of the Suheommittee oh Select Education, House Committee on Edlicitirn and Labor, whojointly requested our review. If you have any questtons, please call me on(313)256-8000. Sincnrely, $2.k John H. Luke Regional Manager Enclosures - 2 RESPITE CARE: A LISTING OF RESOURCES FOREWORD The Select Committee on Children, Youth, and Families has shown that respite care holds promise in alleviating family stress, and promoting family stability.Families who use respite care report that they are satisfied with the service and that they derive numerous benefits. Became respite care originated at the grassroots level, little information has been gathered on a national basis regarding the availability or usefulnass of this service. A recent report by the United States General Accounting Office (GAO), RESPITE CARE: An Overview of Federal, Selected State, and PrivatePrograms,[GAO/HRD-90-125]providescritical new information on: the availability and nature of respite care programs in the United States and characteristics of families eligible to receive such services; how families use respite care services, what difference these services make in their lives, and how families cope without such services; and views of program officials,serviceproviders, and users on enhancing the federal government's role in respite care and how existing services could be improved. During the course of this 25-state review, the GAO compiled a list of providers, planners and researchers involved in respite care services for families with disabled children. Although the list identifies over 1,800 resources, itis not exhaustive.It includes only listings voluntarily provided to the GAO. The list also does not address the adequacy or sufficiency of available respite care programs. The GAO found that despite the satisfaction and benefits families report fr6m respite care use, study participants believe that the demand for respite care exceeds the supply.Forty state-funded programs identified by the GAO reported 3,700 families on waiting lists in FY 1988.In addition, 77 programs had referred families to other socia; programs for respite