Related Social Movements Through an Analysis of #Blacklivesmatter
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ABSTRACT Title of Dissertation: AN EXPLORATION OF PUBLIC HEALTH WORKER ENGAGEMENT WITH HEALTH- RELATED SOCIAL MOVEMENTS THROUGH AN ANALYSIS OF #BLACKLIVESMATTER Abigail Runa Bickford, Doctor of Philosophy, 2019 Dissertation directed by: Professor Robert S. Gold, Department of Behavioral and Community Health Social movements fight for social justice by protesting systemic social inequities. The field of public health aims to eliminate these same disparities as they relate to health. Many social movements are not currently viewed as health social movements despite these movements addressing health disparities by challenging existing inequities related to social determinants of health. One example is the Black Lives Matter movement which has gained considerable attention in its efforts to address systemic racism, a known determinant of health. While the Black Lives Matter movement has evoked many academic and popular responses, there has been a lack of focus on this movement by the public health workforce. Therefore this work uses the Black Lives Matter movement as an example of a health-related social movement warranting engagement from the public health workforce. This study utilizes a novel approach to the use of social media data in the public health field. The first part of this work examines tweets containing #BlackLivesMatter and compares the online discourse to the stated mission and principles outlined by the leaders of the Black Lives Matter organization. An analysis of the Twitter data was then presented in a Delphi study conducted with a panel of experts in public health. Delphi participants were tasked with developing ideas on how the public health workforce could best apply the information collected from #BlackLivesMatter Twitter data to aid in addressing the health-related issues highlighted by the Black Lives Matter movement. More broadly, participants also generated ideas about what can be done to encourage the public health workforce to systematically engage with health-related social movements. Finally, one-on-one interviews were conducted with self-identified social activists. These activists were asked about their participation in social movements, their use of social media regarding their advocacy work, and for ideas about how the public health workforce could engage with their causes. Findings from each study are discussed along with recommendations for future work aimed at developing relationships between public health workers and social movements. AN EXPLORATION OF PUBLIC HEALTH WORKER ENGAGEMENT WITH HEALTH-RELATED SOCIAL MOVEMENTS THROUGH AN ANALYSIS OF #BLACKLIVESMATTER by Abigail Runa Bickford Dissertation submitted to the Faculty of the Graduate School of the University of Maryland, College Park, in partial fulfillment of the requirements for the degree of Doctor of Philosophy 2019 Advisory Committee: Professor Robert S. Gold, Chair Associate Professor Sharon M. Desmond Associate Professor Craig S. Fryer Associate Professor Jennifer Golbeck Associate Professor Donna E. Howard Associate Professor Sacoby Wilson © Copyright by Abigail Runa Bickford 2019 Dedication I dedicate this work to my former middle school students at Baltimore IT Academy. You opened my eyes to the impact of systemic racism on your lives and instilled in me a drive to fight for social justice. I would also like to thank my family for supporting me throughout my time in graduate school. To the strong women in my family: you paved the way for me to get here. Thank you for making this long road easier to travel. ii Acknowledgements Dr. Robert Gold, for introducing me to the field of health informatics and inspiring and encouraging me to take the path less traveled Dr. Jennifer Golbeck, for enlightening me on the potential of social media data analytics Dr. Sharon Desmond, for showing me the value of community engagement while providing unending support and editing expertise Dr. Craig Fryer, for supplying me with skills to develop my researcher reflexivity Dr. Donna Howard, for pushing me to continually improve my work Dr. Sacoby Wilson, for leading as an example by working for social justice Dr. Robert Feldman, for providing mentorship and advice The Maryland Center for Health Equity, for allowing me to attend the “Building Trust in Minority Communities” workshop in summer 2018 Cody Buntain, Sean Mussenden, Pal Doshi, Shiyun Chen, Tracy Zeeger, Sydney Vaile, Rebecca L Annis, Pushkar Deshpande, Jency Francis, Ruchira Kapoor, Gwen Hambright, Himanshu Sawant, Etienne Nadeau, Shivam Saith, Naveen Krishnamurthi, Xinyun Zhang, Kevin Carolina, and Laudan Kalantary for assisting with Twitter data coding iii Table of Contents Dedication ..................................................................................................................... ii Acknowledgements ...................................................................................................... iii Table of Contents ......................................................................................................... iv List of Tables ............................................................................................................. viii List of Figures .............................................................................................................. ix List of Appendices ........................................................................................................ x Chapter 1: Purpose of Study ......................................................................................... 1 Background ............................................................................................................... 1 Statement of the Problem .......................................................................................... 5 Research Questions ................................................................................................... 8 Significance............................................................................................................... 8 Purpose .................................................................................................................... 10 Definition of Terms................................................................................................. 12 Chapter 2: Review of the Literature ............................................................................ 14 Introduction ............................................................................................................. 14 The Black Lives Matter Movement ........................................................................ 15 Black Lives Matter as a Health-Related Social Movement .................................... 17 Other Health-related Social Movements ................................................................. 22 Social Movements and Social Media ...................................................................... 27 Social Media Data and Public Health ..................................................................... 30 Twitter Data Analytics and Available Tools .......................................................... 33 The Delphi Technique............................................................................................. 36 Individual Interviews .............................................................................................. 38 Guiding Theoretical Frameworks ........................................................................... 40 Critical Race Theory and Public Health Critical Race Praxis ............................ 40 Social Ecological Model ..................................................................................... 44 New Social Movement Theory ........................................................................... 46 Community-Based Participatory Research (CBPR) ........................................... 48 iv Chapter 3: STUDY 1: An Exploratory Study of #BlackLivesMatter Twitter Data: Determining Support for the Movement and Content Alignment with Black Lives Matter Organization Principles ................................................................................... 50 Abstract ................................................................................................................... 50 Introduction ............................................................................................................. 51 Social Media and Social Movements .................................................................. 51 Social Media Data and Public Health ................................................................. 54 Twitter Data Analytics and Available Tools ...................................................... 56 Methods................................................................................................................... 56 Data Collection: #BlackLivesMatter Tweet Sample .......................................... 57 Tweet Measures and Analysis Procedures .......................................................... 58 Inter-rater Reliability .......................................................................................... 61 Additional Analyses ............................................................................................ 62 Results ..................................................................................................................... 64 Descriptive Analysis ........................................................................................... 64 Human-coded Content