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World Autism Awareness Day) AlyssonEntrevista Muotri Exclusiva AUTISMO Número 1 QR-Code Ano 1 Fotografe com seu celular e Distribuição Gratuita abra a pág. da WEB Movimentos em todo Pela primeira vez o Brasil conseguem que na história do país importantes cartões eventos são realizados postais sejam iluminados para celebrar em Azul, como o o Dia Mundial Cristo Redentor e a da Conscientização Ponte Estaiada sobre o Autismo TUDO AZUL Brasil entra no roteiro dos países que apóiam o WAAD (World Autism Awareness Day) HOMEOPATIA GUIA BRASIL TERAPIAS FAMÍLIA Editorial ................................................................... pág. 3 Protocolos DAN! .................................................. pág. 29 Editorial Tecnologia ............................................................. pág. 4 Reconhecimento olfativo .................................. pág. 30 Tudo azul! Pela primeira vez o Brasil entrou com destaque para o calendário mundial do World Autism Awareness Day (WAAD), o Dia Mundial de Conscientização do Autismo, 2 de abril, decretado pela ONU. O autismo e a Convenção da ONU ..................... pág. 5 Síndrome de Asperger ....................................... pág. 33 Neste ano, há cartões-postais iluminados de azul (cor denida para representar o autismo) e ações para celebrar a data por todo o país, de O impacto do autismo na família ....................... pág. 6 Odontologia ........................................................... pág. 34 norte a sul, juntando-se a inúmeros outros monumentos e prédios do planeta. Relacionamento Social ......................................... pág. 8 PECS ...................................................................... pág. 36 Destaque para a iluminação em azul no Cristo Redentor, no Rio de Janeiro, e na Ponte Estaiada, em São Paulo, que encabeçam esse grande movimento em favor do autismo no país em 2011. Como diria um certo Repensando o Autismo ...................................... pág. 13 Uma imagem ....................................................... pág. 37 ex-presidente da República, “Nunca antes na história deste país...” o 2 de abril foi lembrado e tantas pessoas tiveram informação sobre essa Son-Rise ................................................................ pág. 14 Guia Brasil.............................................................. pág. 38 síndrome. Foi, pela primeira vez, uma campanha nacional no Brasil, que se juntou às campanhas de diversos países ao redor do mundo - vale a Floortime .............................................................. pág. 17 APAEs .................................................................... pág. 43 pena ver essas ações no nosso site - RevistaAutismo.com.br/DiaMundial - e conferir esse grandioso trabalho, em que o Brasil, através desta revista, ganhou destaque inclusive no site ocial do evento da ONU, Homeopatia ......................................................... pág. 18 Livros e Filmes ..................................................... pág. 44 coordenado pela instituição Autism Speaks, dos EUA. Tornamo-nos a página ocial do Brasil no WAAD. Entrevista Alysson Muotri ................................. pág. 20 Nossa História ..................................................... pág. 46 A internet, as listas de discussões de pais e as redes sociais foram um capítulo à parte nesta ação. Muita gente colaborou e propagou a mensagem de mais informação a respeito do autismo. Nosso vídeo, criado por Marie Autismo e Mágica ............................................... pág. 47 Schenk, com a música da talentosa Fantine Thó, foi propagado nos mais longínquos conns do território nacional. Inúmeras pessoas enviaram mensagens dizendo ter feito eventos com a exibição do vídeo e contando do impacto positivo e ao mesmo tempo surpreendente nas pessoas que jamais haviam ouvido falar do transtorno do espectro autista. São imagens bonitas, mas informações preocupantes e fortes. Para se ver e pensar. Mas esse é só o começo de uma luta para que a informação a respeito dessa síndrome chegue a mais lugares. Muito ainda precisa ser feito em relação ao autismo no nosso país, a inclusão nas escolas precisa sair do papel, o preconceito precisa acabar, prossionais de educação e saúde precisam se preparar, a mídia precisa alertar, Índice as leis precisam ser cumpridas, as autoridades precisam conscientizar-se. O Estado precisa tratar essas crianças e, mais que isso, muitos ainda precisam ser diagnosticados. Quando ouvi pessoalmente o psiquiatra Marcos Tomanik Mercadante dizer, numa sessão pública em Brasília, no m de 2010, que o Brasil tem quase 2 milhões de pessoas Expediente com autismo, imediatamente pensei e arrisco dizer aqui: mais de 1 milhão dessas pessoas ainda não têm Ano I - Número 1 diagnóstico, não se sabe que são autistas e, grande parte, nem sabe o que é autismo. Infelizmente. Abril de 2011 Portanto, pais, iniciativa privada, sociedade e governos têm muito a fazer para que haja um mínimo de condições para tratar essas pessoas e ter os ganhos em qualidade de vida que são possíveis para cada caso. A Revista Autismo é uma publicação semestral, com distribuição gratuita, Revista Autismo está aqui para fazer sua parte, informar e gerar ação, como “manda” nosso slogan. E você, que nos AUTISMO de circulação nacional, com o objetivo de levar informação séria e imparcial lê, pode contribuir com isso multiplicando esta ação, passando esta revista a outros, reproduzindo-a, compartil- sobre autismo, sendo a primeira sobre o assunto em toda a América Latina, hando, enm, sendo um agente multiplicador da informação sobre autismo e mudar esta realidade. Juntos, assim como a primeira em língua portuguesa no mundo. podemos mais! Outro destaque desta edição é a entrevista com o neurocientista brasileiro Alysson Muotri, que desen- Editores Colaboradores desta edição: volve um trabalho em busca da cura do autismo, na Universidade da Califórnia, nos EUA. Você poderá ler uma Martim Fanucchi e Paiva Junior Adilson F. Machado, Adriana Zink, Alysson Muotri, Ana Muniz, Carolina Ramos, conversa de uma hora e dez minutos, sem cortes, e entender um pouco do que é esse trabalho do nosso compatri- Francisco Assumpção Junior, Geórgia Fonseca, Gilberto Sebrão Filho, Inês S. Dias, ota, que demonstrou ser uma pessoa muito determinada e gentil, com anseio por fazer um grande bem para a Editor-chefe Juliana Santiago, Letícia Amorim, Márcia L. Machado, Maria Elisa Fonseca, sociedade, em especial às famílias afetadas pelo autismo. É um trabalho brasileiro a ser prestigiado e parabenizado. Mariana Madalozzo, Mariana Tolezani, Marie Schenk, Murilo Queiroz, Paiva Junior A cura não é para agora, nem é uma realidade, apenas uma possibilidade. Mas para qualquer caminhada, seja ela de Patrícia Piacentini, Patrícia Trigo, Sabrina Ribeiro e Simone Pires. Editor de Arte dez metros para buscar um copo d’água ou de dez mil quilômetros para cruzar um continente, começa-se pelo Martim Fanucchi Imagem da Capa primeiro passo. The Image Bank Finalizo lembrando que este é o segundo número da Revista Autismo, a edição um -- o lançamento foi na Revisão edição zero. E como a anterior, a revista continua gratuita, mas ainda sem um patrocínio e sustentada apenas por Impressão Márcia Lombo Machado, Adilson Fernandes Machado doações de instituições e pessoas (a maioria pais de autistas, como eu) que apostam neste projeto. A todos eles, e Mario Fanucchi Gráca Gera nosso muito obrigado, pois esse é o único motivo que fez esta edição chegar até você, leitor. Jornalista responsável Tiragem desta edição Paiva Junior 2.500 exemplares MTb: 33.245/SP Paiva Junior, Editor-chefe da Revista Autismo, Jornalista, pós-graduado em Jornalismo e Publicidade Segmentação Editorial. Pai do Giovani, de 3 anos, que está no espectro autista Projeto Gráco, Diagramação, Tratamento de Imagem [email protected] Martim Fanucchi e da Samanta, de 1 ano, com desenvolvimento típico. Redação email- [email protected] Produção Gráca [email protected] Martim Fanucchi e Paulo Tasca Twitter: @PaivaJunior Prepress Site: RevistaAutismo.com.br - Twitter: @RevistaAutismo Martim Fanucchi e Paulo Tasca Facebook: facebook.com/RevistaAutismo Tecnologia e autismo O autismo e a convenção da ONU por Murilo Queiroz sobre os direitos das pessoas com Como pai do Max, um menino autista de 4 anos de idade, e cientista da computação, é natural que um dos de ciência meus principais interesses seja o uso de novas tecnologias voltadas para auxiliar a educação formal e informal, a comunicação e o convívio social dos autistas. A cada dois anos o renomado Massachusetts Institute of Technology (MIT) oferece uma disciplina chamada por “Autism Theory and Technology”, cujo principal objetivo é justamente explorar as possibilidades do uso de tecnolo- Mariana gia, especialmente programas de computador (software) e dispositivos (hardware) para melhorar a qualidade de vida dos autistas e nossa compreensão do autismo propriamente dito. Também há iniciativas acadêmicas nessa Madalozzo direção no Brasil, mas ainda são muito raras, e dificilmente as soluções propostas pelo mundo acadêmico se transfor- mam em produtos acessíveis ao usuário final (pais, professores, cuidadores e, é claro, os próprios autistas). Felizmente isso vem mudando, e a cada dia vemos mais softwares específicos para autismo sendo disponibilizados. O lançamento do iPad, da Apple, um computador em formato de “tablet” (ou prancheta) operado exclusiva- Em um primeiro momento, gostaria de destacar que não escrevo, hoje, como Bacharel em Direito, mas mente com
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