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Annual Report ANNUAL REPORT 2012 - 2013 COVER PHOTO: CT scans and MRI can show in detail the progression of prostate cancer, and have contributed greatly to advances in prostate cancer research. EXECUTIVE SUMMARY Our Vision, Mission & Values 4 Accountability 4 Highlights 5 Chairman’s Report 6 CEO’s Report 8 PROGRAMS Research 14 Awareness 24 Support 33 COMMUNITY PARTNERSHIPS Big Aussie Barbie 40 The Male Bag Ride 42 The Long Ride 43 The Murray Meander 44 Biggest Ever Blokes Lunch 45 Community Fundraising Highlights 46 OUR PEOPLE Boards & Committees 56 Staff 58 GOVERNANCE & FINANCE Financial Highlights 62 Financial Statements 64 THANK YOU Rotary 98 Corporate 98 Trusts 99 Clubs 99 Estates 99 In Memoriam 99 Individuals 100 Community Fundraisers 101 Pro Bono Support 101 Honorary Life Members 101 PCFA Award Recipients 101 Members 101 Research Partners 102 OUR VISION, MISSION & VALUES Prostate Cancer Foundation of Australia (PCFA) is a broad-based community organisation and the peak national body for prostate cancer in Australia. We are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community. We do this by: • Promoting and funding world leading, innovative research into prostate cancer • Implementing awareness campaigns and education programs for the Australian Community, health professionals and Government • Supporting men and their families affected by prostate cancer through evidence-based information and resources, support groups and Prostate Cancer Specialist Nurses PCFA receives Government funding for specific projects and relies on the generosity of individuals, the community and partnerships, such as those with the Movember Foundation and Commonwealth Bank, to carry out our essential work. PCFA’s five values are: • Integrity • Optimism • Compassion • Respect • Commitment Accountability PCFA operates under the charitable fundraising legislation, as prescribed by each individual State in Australia and associated regulations, including Corporations Law. PCFA has been granted endorsement as a tax-deductible gift recipient under Subdivision 30-BA of the Income Tax Act 1997 by the Australian Commissioner of taxation. 4 HIGHLIGHTS PCFA’S RESEARCH PROGRAM STRATEGY $7M FundinG FroM 2013-2017 FederAl GovernMent PCFA would like to recognise the Movember Foundation as the key funder of its National supporting 13 additional prostate cancer specialist Research Program. nurses, including nurses in community settings Launch of PCFA’s neW GroWth in 5 yeAr 150 reseArCh the support suPPort GrouP netWork grouPs strAteGy 150 support groups located in every state and territory over 200 delegAtes suPPort Attended the first GrouPs nAtionAl support estAblished estAblishment of grouP leAder trAining in tWo MoveMber conference adelaide BrisBane revolutionAry melBourne team Awards AbirAterone (ZytigA) listed on PhArmAceuticAl perth through generous funding sydney from the movember benefits scheme foundAtion from 1 August For GAy & bisexuAl Men 5 yeArs of the AMbAssAdor PCFA reseArch ProGram ProgrAm – relAunChed over $35M And 136 reseArCh ProjeCts in $4.2 Million allocated to ProstAte canCer Funded 20 new research projects ANNUAL REPORT 2012-2013 5 CHAIRMAN’S REPORT it is a tremendous privilege to be the national chairman of prostate cancer Foundation of australia at a time of such change and innovation. since i was diagnosed with prostate cancer in 1996, awareness of prostate cancer and support for patients have improved beyond recognition. researchers are now making real advances that are seeing improved survival rates and better long term outcomes. more men are aware of the need to have a conversation with their doctor about testing. and a network of support groups and specialised health professionals around the country is helping more and more men to navigate their cancer journey. as the peak body for prostate cancer in australia, PCFa is ensuring that these gains are maintained into the future. we are successfully advocating at Federal and state level to increase funding and support for men with prostate cancer. we are channelling research funding and obtaining the evidence we needed to make positive changes that will impact the lives of men and their families. we are working at community level to provide support for men, their partners and families and raise awareness of prostate cancer around the country. “As well as being the peak body for prostate cancer But we are more than a peak in Australia, we are a broad-based community body. we are also a broad-based community organisation served by a organisation. Our roots are firmly within the vast team of people around australia community we serve – no matter what their role, who contribute to our support, a vast team around Australia are making a valuable awareness raising and research activities. i thank each and every one contribution to our work.” of them, no matter how large or small their role, for the valuable contribution they have made in the last year. it has been a wonderful team effort. the 2012-13 financial year has been challenging for the not-for-profit sector in general. i am very pleased to report that we have obtained a 6 CHAIRMAN’S REPORT EXECUTIVE SUMMARY good set of financials and are well set been overhauled, with new material it would be remiss of me not to to embark on the exciting projects and training given to presenters and mention the professionalism that ahead. this is in no small part due to 60 new ambassadors employed. associate professor anthony lowe the healthy state of our governance PCFa has the broadest membership brings to the CEO role. his impact structures and the individual and base of any member of the union on our evidence-based strategies, collective efforts of our dedicated for international cancer control new resources, media profile and national directors. (UICC), and this year we have been government relations in particular i would like to sincerely thank working hard to nurture partnerships have been very significant. likewise, associate professor philip stricker, and collaborations. we have had the support i have received from our desmond grogan and david gregory, a strong representation at national deputy chairman jim hughes AM who departed the Board this year, conferences, enabling us to forge has been second to none. his tireless and extend a warm welcome to important links with our medical efforts have been truly outstanding distinguished professor judith professional colleagues, researchers in every respect, and are very clements, who joined the Board and others who work on the front much appreciated. in august and peter gebert who line of prostate cancer care. we are none of our work would be possible joined the board in october. also continuing to develop relations without the incredible generosity of i would also like to acknowledge with like organisations internationally, our sponsors and supporters. i thank the invaluable contribution of our including the prostate net and ustoo you all for your help during this last state/territory boards, whose local in the united states, and prostate year and i look forward to working knowledge and influence mean cancer Foundation of new Zealand. together to continue to provide the PCFa’s national strength can truly we are expanding our support group best outcomes possible for men with be translated into real outcomes for network and aim to grow the number prostate cancer, together with their people at a local community level. from 150 to 200 by june, 2014. we partners and families. one of the most significant have developed new resources for it has been a great team effort and, contributions PCFa is making is to support group leaders and held a with such a highly committed and bring experts together from around very successful training conference dedicated group of people across the country to agree on a set of in melbourne in may. we are also australia, augurs well for another evidence-based national guidelines establishing australia’s first prostate very successful year. around PSA testing. men continue to cancer support groups for gay and be faced with conflicting information, bisexual men, which will provide and we have worked hard to bring information and support targeted at together all stakeholders in a world- the unique needs of this demographic. first collaboration to bring clarity and groups in Brisbane, sydney, consistency to the message we are melbourne, adelaide and perth are in various stages of establishment with david sandoe oAM giving them. when the guidelines are national chairman published late next year, clinicians darwin and hobart in the pipeline. will for the first time be able to give this year we awarded three a consistent message and men will prestigious max gardner awards to have clear facts on which to base acknowledge the work of support their decisions. group network leaders in spreading a significant part of our work is raising the awareness message, promoting community awareness about prostate research and supporting men and cancer. our ambassadors take our their families affected by prostate message to communities around cancer. warm congratulations to the country, both raising our profile terry wheeler, former chairman and imparting important information NSW/ACT chapter council, david about early detection and prevention, gregory, former chairman of the treatment options and caring for national support group committee someone with prostate cancer. this and les payne of townsville prostate year, the ambassador program has cancer support group. ANNUAL REPORT 2012-2013 7 CEO’S REPORT research prostate cancer research in australia is set to reach new heights with PCFa’s new research program strategy which was launched on 7 july at our annual research update in melbourne. thanks to the generosity of the movember Foundation, over the past five years PCFa has invested over $35 million into prostate cancer research projects right across the country. these projects cover the full spectrum from basic science through to survivorship issues such as psychological interventions and exercise programs.
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