NEWSLETTER February 2015
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NEWSLETTER February 2015 In AE publications news, the latest Highlights in this issue Editorial edition of our Dementia in Europe magazine came out this month and 11 February: G7 Dementia 9 Welcome! our practical guidelines for people Legacy event held in US This month, we with dementia on continence care 11 February: Austria launches 10 have been became available on our website. dementia strategy process working hard 19 February: Glasgow 2 on the launch There has been a lot of emphasis on Declaration campaign is online of our online trying to achieve concrete global and EU action on dementia this 27 February: New issue of DIE 3 sign-up month, with the final G7 Dementia magazine is published campaign for 27 February: Young Leaders Legacy event taking place in the US 11 the Glasgow Declaration. Individual event held in London online signatures have come in to and a final Young Leaders event in 28 February: Eight MEPs sign the tune of just over 900 since 19 the UK at the end of the month. 5 Glasgow Declaration February, which means we remain Questions arising from these optimistic about reaching our events are: What, concretely, can target of 5,000 by 1 December, be taken from these initiatives? when we will present our results at How can the momentum be the European Parliament, calling maintained? and what happens for the creation of a European next? Dementia Strategy and national At national level, in Austria the strategies in every country in process of developing a strategy for Europe, as well as more global dementia was launched, while in action on dementia. Despite the the UK, the Prime Minister campaign being in its infancy, I am announced his new Challenge on delighted to say that we have been Dementia 2020, including a number attracting a good number of of new research initiatives and a signatures from policy makers, huge increase in funding for these. having received eight signatures from MEPs this month alone. As for our member organisations, Alzheimer Portugal has produced a In the latter part of the month, we new Portuguese edition of our care Table of contents held a successful series of meetings manual, for which we are most in Luxembourg: an AE Board grateful. Alzheimer Scotland has Editorial ....................................... 1 meeting, a meeting of the Board of launched a national campaign Alzheimer Europe .......................... 2 the AE Foundation, a Company called “Let’s Talk about Dementia” Round Table with some of our and the Alzheimer’s Society’s EU Projects .................................. 4 sponsors and members and a Dementia Friends programme has Public Affairs meeting to exchange Alzheimer Europe Networking .......... 4 passed the 1 million mark. ideas with our national member EU Developments .......................... 5 organisations. Following these Last but not least, it is great to see meetings, we are delighted to be dementia getting an airing on the Members’ News ............................. 7 able to count on the support of our world stage, via the Oscar-winning movie, Still Alice, starring Julianne Policy Watch................................. 9 members in our Glasgow Declaration campaign and to have Moore. Ms Moore was exemplary Science Watch ............................ 11 the approval of the Board of the AE in her acceptance speech, Foundation to support people with highlighting the importance of Dementia in society ...................... 14 dementia at the AE Conference in raising awareness and New Publications & Resources ....... 15 Ljubljana. On the conference front, understanding of dementia. I would like to remind you all that On that high note, I wish you all a Job opportunities ........................ 16 the call for abstracts is open until successful start to the spring! the end of March and the early bird AE Calendar 2015 ........................ 16 fee for registrations is available Jean Georges Future Conferences 2015 ............... 17 until the end of May, after which Executive Director the full fees will apply. Page 1 of 18 Newsletter: February 2015 The declaration originated at AE’s 24th annual conference Alzheimer Europe in Glasgow on 20 October 2014, the same day it was 1 February: Neuropenews interviews Alzheimer adopted unanimously by delegates from 26 AE member organisations. Europe’s director At the time of writing, the online campaign had already achieved 871 individual signatures, 32 organisations and 16 policymakers, making a grand total of 919 supporters. AE is using the Twitter hashtags #GlasgowDeclaration and #dementiamatters for this campaign. On 1 February, Neuropenews, the news blog of the The deadline for signatures is 30 November 2015 and European Academy of Neurology (EAN), published an anyone, anywhere in the world is welcome to sign to show interview with Alzheimer Europe’s (AE) Executive Director, their support. Jean Georges. Please sign the declaration and share it with your network. Mr Georges answered questions about the work AE is doing to make sure dementia is recognised as a European priority, about the development of national dementia strategies and greater collaboration between EU countries. On this subject, he appealed to the readers of Neuropenews to sign the Glasgow Declaration. 20 February: AE’s practical continence care Mr Georges also expressed AE’s interest in collaborating guidelines are online with other organisations with an interest in dementia, such As of 20 February, our practical guidelines for people with as EAN. dementia on continence care at home are available on our You can read the full interview, here: website. http://www.alzheimer-europe.org/Living-with-dementia/Guidelines-for- http://www.neuropenews.org/?p=8242 people-with-dementia-on-continence-care-at-home th 10-11 February: AE and Spomincica work on 25 23 February: Board of AE Foundation approves annual conference support for people with dementia at AE Conference On 10 and 11 February, in Ljubljana Gwladys Guillory, Event The Board of the Alzheimer and Conference Europe Foundation met in Coordinator for Luxembourg on 23 Alzheimer Europe (AE) February to approve the travelled to Ljubljana, financial report for 2014. The Board was particularly Slovenia to meet with grtateful for the additional support of EUR 29,421.98 Alzheimer Slovenija (SPOMINČICA) concerning the provided by Alzheimer Europe at the end of the financial organisation of our 25th Annual Conference from 2 to 4 year which will bring the financial reserves of the September this year. association to EUR 115,215.63. With plans afoot and moving along nicely, we would like to At its meeting, the Board also adopted a memorandum of remind people to send their abstracts in by end of March understanding outlining its collaboration with Alzheimer and to register. Europe and discussed a collaboration agreement with the We would also urge people registering to book hotels and Luxembourg-based Fondation Alzheimer. flights as there is another major event happening in the city The Board also approved to create five bursaries of EUR at the same time, which may limit options quite swiftly. 1,000 to support people with dementia who wish to attend You can submit your abstract here: http://alzheimer- the Alzheimer Europe Conference and to provide four europe.org/Conferences/2015-Ljubljana/Abstract-submission awards of EUR 500 for best poster presented at the AE Conference in Ljubljana. 23 February: Alzheimer Europe Board meets in Luxembourg 19 February: AE launches Glasgow Declaration The Alzheimer Europe Board members held campaign sign-up online a meeting on 23-24 On 19 February, Alzheimer Europe (AE) launched the online February in sign-up campaign for the Glasgow Declaration, which calls Luxembourg. The for the creation of a European Dementia Strategy and Board discussed national strategies in every country in Europe. The various financial and signatories also call upon world leaders to recognise operational matters, dementia as a public health priority and to develop a global including action plan on dementia. preparations for the 25th Alzheimer Europe Conference Page 2 of 18 Newsletter: February 2015 that will take place in Ljubljana, Slovenia on 2-4 September to work on the further development of the Dementia 2015. The next meeting of the Board will take place on 29 Monitor project and there was a lively discussion on the June in Brussels. topics that member organisations would like to see addressed during the Alzheimer’s Association Academy. 24 February: AE hosts Company Round Table The Academy, a brand new AE project, will be held during meeting in Luxembourg the upcoming AE Conference in Ljubljana, Slovenia. On 24 February, Annette Dumas (Public Affairs Advisor for AE), Alex Alzheimer Europe Teligadas (AE Director for Communication) and Kate Boor (AE) hosted a Ellis (AE Communications Officer) followed Jean with Company Round presentations on the work with the new European Table meeting in Parliament and the further development of the Glasgow Luxembourg. Seven Declaration campaign and the European Alzheimer’s representatives Alliance (EAA). The group agreed on the structure of the from six sponsor companies, ten representatives from AE communication stream to be used for the Glasgow member organisations, nine AE Board members and five AE Declaration campaign and on how to further involve the staff members attended. members of the EAA at a national level. Annette, Alex and Kate also presented Alzheimer Europe’s Communication AE Vice-Chair, Iva Holmerová welcomed participants and and Public Affairs strategies,