American Psychological Association 5Th Edition
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The TEACCH Program in the Era of Evidence-Based Practice
J Autism Dev Disord DOI 10.1007/s10803-009-0901-6 ORIGINAL PAPER The TEACCH Program in the Era of Evidence-Based Practice Gary B. Mesibov • Victoria Shea Ó Springer Science+Business Media, LLC 2009 Abstract ‘Evidence-based practice’ as initially defined in children with autism (e.g., Rogers 1998; Rogers and Vis- medicine and adult psychotherapy had limited applicability mara 2008). to autism interventions, but recent elaborations of the The initial definitions for EST in psychology were quite concept by the American Psychological Association (Am rigid (e.g., requiring evidence from at least two group Psychol 61: 271–285, 2006) and Kazdin (Am Psychol studies using randomized controlled trials or nine single- 63(1):146–159, 2008) have increased its relevance to our case studies, using a treatment manual, and employing a field. This article discusses the TEACCH program (of research design that demonstrated that the intervention which the first author is director) as an example of an being studied was better than another treatment [not just evidence-based practice in light of recent formulations of ‘no treatment’ or a ‘waiting list control group’]). These that concept. criteria, designed to evaluate adult psychotherapy, were not a particularly good fit for evaluating autism interventions Keywords TEACCH Á Evidence-based because of the relatively limited research base and the extremely heterogeneous population of people with autism, among other factors (Mesibov and Shea 2009) (The term Brief History of Evidence-Based Practice autism will be used from this point forward to mean all autism spectrum disorders.). The concept of evidence-based interventions began in the Actually, many psychologists chafed under the early field of medicine in the 1970’s and in recent years has been EST criteria, leading the American Psychological Associ- employed in many other disciplines. -
The Effectiveness of Snoezelen in Reducing
234 The effectiveness of Snoezelen in reducing stereotyping in ARTICLE ORIGINAL adults with intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da intervenção da terapia ocupacional em salas de estimulação multissensorial* Ana Sofia Pinto Lopes1, Janine Vanessa Martins Araújo1, Marco Paulo Vieira Ferreira1, Jaime Emanuel Moreira Ribeiro2 http://dx.doi.org/10.11606/issn.2238-6149.v26i2p234-243 Lopes ASP, Araújo JVM,Ferreira MPV, Ribeiro JEM. The KEYWORDS: Stereotyped behavior; Intellectual disability; effectiveness of Snoezelen in reducing stereotyping in adults with Occupational Therapy. intellectual disabilities: a case study of Occupational Therapy intervention in multisensory stimulation rooms. Rev Ter Ocup Lopes ASP, Araújo JVM, Ferreira MPV, Ribeiro JEM. Univ São Paulo. 2015 May-Aug.;26(2):234-43. A eficácia do Snoezelen na redução das estereotipias em adultos com deficiência intelectual: um estudo de caso da ABSTRACT: There is little evidence of the effectiveness of intervenção da terapia ocupacional em salas de estimulação intervention in Snoezelen rooms in stereotyping reduction multissensorial. Rev Ter Ocup Univ São Paulo. 2015 in adults with intellectual disabilities. In this direction, the maio-ago.;26(2):234-43. present study sought to evaluate the relationship between this multisensory stimulation and stereotyping reduction RESUMO: Existem escassas evidências sobre a eficácia da in adults with intellectual disabilities. Through the case intervenção em salas de Snoezelen na redução de estereotipias em study methodology, the behavior of a subject was analyzed adultos com deficiência intelectual. Neste sentido, o presente estudo before, during and after the multisensory stimulation in pretendeu avaliar a relação entre esta estimulação multissensorial e Snoezelen rooms for ten biweekly sessions, lasting an hour a redução de estereotipias em adultos com deficiência intelectual. -
VA CEC 2013 Conference Program
The Virginia Federation of the Council for Exceptional Children Fall Conference Seeing the World Through the Spectrum Friday, November 18, 2016 Richmond, VA Presenting Dr. Temple Grandin Endorsed by the Virginia Department of Education Keynote Speaker: Dr. Temple Grandin Temple Grandin, Ph.D., is one of the most accomplished and well-known adults with autism in the world. Her life, with all its challenges and successes, was brought to the screen with the HBO full-length film Temple Grandin, starring Claire Danes. Dr. Grandin has been featured on NPR, and she has a 2010 TED Lecture titled "The World Needs ALL Kinds of Minds." She has also been featured on the BBC special “The Woman Who Thinks Like a Cow”, ABC's “Primetime Live”, “The Today Show” and more. Grandin developed her talents into a successful career as a livestock-handling equipment designer, one of very few in the world. She also speaks on both autism and cattle handling. Dr. Grandin's current bestselling book on autism is The Way I See It: A Personal Look at Autism and Asperger's. She also authored Unwritten Rules of Social Relationships; Animals Make Us Human; Animals in Translation; Thinking in Pictures; and Emergence: Labeled Autistic. Grandin is considered a philosophical leader of both the animal welfare and autism advocacy movements. Honored Guest: Dr. Patricia Abrams Director, Office of Special Education Instructional Services Division of Special Education and Student Services Virginia Department of Education Dr. Abrams serves as the Director of the Office of Special Education Instructional Services at the Virginia Department of Education. -
Collaborative and Inclusive Process with the Autism Community: a Case Study in Colombia About Social Robot Design
View metadata, citation and similar papers at core.ac.uk brought to you by CORE provided by Ghent University Academic Bibliography International Journal of Social Robotics https://doi.org/10.1007/s12369-020-00627-y Collaborative and Inclusive Process with the Autism Community: A Case Study in Colombia About Social Robot Design Andrés A. Ramírez-Duque1,6 · Luis F. Aycardi2 · Adriana Villa3 · Marcela Munera2 · Teodiano Bastos1 · Tony Belpaeme4,5 · Anselmo Frizera-Neto1 · Carlos A. Cifuentes2 Accepted: 18 January 2020 © Springer Nature B.V. 2020 Abstract One of the most promising areas in which social assistive robotics has been introduced is therapeutic intervention for children with autism spectrum disorders (CwASD). Even though there are promising results in therapeutic contexts, there is a lack of guidelines on how to select the appropriate robot and how to design and implement the child–robot interaction. The use of participatory design (PD) methods in the design of technology-based processes for CwASD is a recognition of the stakeholders as “experts” in their fields. This work explores the benefits brought by the use of PD methods in the design of a social robot, with a specific focus on their use in autism spectrum disorders therapies on the Colombian autism community. Based on what proved to be effective in our previous research, we implemented participatory methods for both the CwASD and the stakeholders. The process leverages the active role of participants using a focus group approach with parents and specialists, and scene cards, narrative and handmade generative methods with the children. To overcome some challenges of traditional PD processes, where not all community actors are considered, we included a Colombian community consisting of therapists, nurses, caregivers and parents. -
Autism Speaks 2021 Speaker Bios
Autism Awareness Interagency Roundtable April 2, 2021 SPEAKER BIOS Autism Speaks Pamela Dixon, PhD Director, Clinical Services and Inclusion [email protected] Dr. Pamela Dixon’s Autism Speaks portfolio includes serving as the technical lead for the Caregiver Skills Training Program (CST), the Autism Speaks/WHO collaboration that provides training to caregivers of children with developmental delay/disorders. Dr. Dixon also participates in the design and implementation of training materials for Global Autism Public Health (GAPH) initiatives and manages a global advocate network. As a clinical psychologist, Dr. Dixon’s previous work focused on leading clinics in the development of autism diagnostic services. Her research and clinical interests are in building capacity for the improved identification and treatment of children with neurodevelopmental disorders in low-resource settings. Arun Karpur, MD, MPH Director, Data Science and Evaluation Research [email protected] Dr. Arun Karpur is a medical doctor and an epidemiologist specializing in education, healthcare and workforce programs, and policies for people with disabilities and Autism Spectrum Disorders (ASD). Leveraging his extensive expertise in quantitative methods, Dr. Karpur is establishing data science approach in identifying effective practices and programs improving health, well-being, community living, and participation. He is directing evaluation of various Autism Speaks initiatives in public health and supports and services teams. Prior to joining Autism Speaks, Dr. Karpur was a research faculty at Cornell University’s School of Industrial and Labor Relations in the Yang-Tan Institute on Employment and Disability, where he was a co-investigator for a large-scale randomized clinical trial program aimed to improve employment, education, and economic outcomes for youth with disabilities who receive supplemental security insurance. -
Autism Terminology Guidelines
The language we use to talk about autism is important. A paper published in our journal (Kenny, Hattersley, Molins, Buckley, Povey & Pellicano, 2016) reported the results of a survey of UK stakeholders connected to autism, to enquire about preferences regarding the use of language. Based on the survey results, we have created guidelines on terms which are most acceptable to stakeholders in writing about autism. Whilst these guidelines are flexible, we would like researchers to be sensitive to the preferences expressed to us by the UK autism community. Preferred language The survey highlighted that there is no one preferred way to talk about autism, and researchers must be sensitive to the differing perspectives on this issue. Amongst autistic adults, the term ‘autistic person/people’ was the most commonly preferred term. The most preferred term amongst all stakeholders, on average, was ‘people on the autism spectrum’. Non-preferred language: 1. Suffers from OR is a victim of autism. Consider using the following terms instead: o is autistic o is on the autism spectrum o has autism / an autism spectrum disorder (ASD) / an autism spectrum condition (ASC) (Note: The term ASD is used by many people but some prefer the term 'autism spectrum condition' or 'on the autism spectrum' because it avoids the negative connotations of 'disability' or 'disorder'.) 2. Kanner’s autism 3. Referring to autism as a disease / illness. Consider using the following instead: o autism is a disability o autism is a condition 4. Retarded / mentally handicapped / backward. These terms are considered derogatory and offensive by members of the autism community and we would advise that they not be used. -
Why We Oppose Autism Speaks
Why We Oppose Autism Speaks Autism Speaks, despite its name, does not speak for autistic people. When polled, 98% of autistic adults oppose Autism Speaks –and there is a massive global movement by autistic people and allies to stop Autism Speaks. In fact, regardless of the many differences among autistic advocates about politics and advocacy, there is one view we pretty much ALL agree on: that Autism Speaks is a hate group. Some reasons: Autism Speaks has allocated hundreds of millions of dollars towards “eugenics” projects that may seek to prevent autistic people from being born. • Autism Speaks is a co-founder of the MSSNG project, a massive, far-reaching project to make a global database of 10,000+ autistic children’s DNA available for use by researchers throughout the world who can fill out a pop-up menu on their website to access it. • The DNA is extracted without the children’s permission. • It is done with the purpose of identifying “autism genes” that will then be used in prenatal testing. • If common genes are identified through this research, people will do prenatal testing and terminate pregnancies if they think there are “signs of autism”. • This project is active in Canada. Autism Speaks Canada has earmarked hundreds of thousands of dollars to its own arm of the project. A group of geneticists in Toronto has also been involved in collecting data for the database. • One of the project’s co-founders, Dr. James Watson, was fired from Cold Spring Harbour Laboratory for his racist remarks about African Americans, intelligence and using eugenics to find “a cure for stupid”. -
Before You Donate to Autism Speaks, Consider the Facts
Before you donate to Autism Speaks, Consider the facts Autism Speaks’ Budget Very little money donated to Autism source: Autism Speaks 990 Non-Profit Tax Exemption Form, 2018* Speaks goes toward helping autistic Research “Awareness” & people and families. Lobbying Only 1% of Autism Speaks’ budget goes towards the “Family Service” grants that are the organization’s means of funding services. Autism Speaks spends 20x as much—20%—on fundraising. Although Autism Speaks has not 27% 48% prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: some salaries exceed $600,000 a year. 20% 4% Autism Speaks talks about us 1% without us. Fundraising Misc. Family Services Autism Speaks has only 1 autistic person out of a total of 28 individuals on its Board of Directors. Instead, donate to organizations By contrast, 23 out of 28 board members represent that help autistic people: major corporations, including current and former Autistic Self Advocacy Network (ASAN) CEOs and senior executives of PayPal, Goldman provides support, community, and public policy Sachs, White Castle, FX Networks, Virgin Mobile, advocacy, by and for people on the autism spectrum. eBay, AMC Networks, L’Oreal, CBS, SiriusXM, autisticadvocacy.org American Express, S.C. Johnson, and Royal Bank Autistic Women & Nonbinary Network (AWN) of Scotland. seeks to share information which works to build acceptance and understanding of disability, while dispelling stereotypes and misinformation which Autism Speaks’ fundraising strategies perpetuate unnecessary fears surrounding an promote fear, stigma, and prejudice autism diagnosis. against autistic people. -
Monthly Meeting President Armando Sandoval Vice President Our Next Monthly Meeting Will Be Tuesday, February 10,2015 Rebekah Sandoval at 6:30 P.M
The only nationally affiliated group in El Paso. February 2015 OFFICERS Bonnie Perez Monthly Meeting President Armando Sandoval Vice President Our next monthly meeting will be Tuesday, February 10,2015 Rebekah Sandoval at 6:30 p.m. at Region 19 Education Service Center, 6611 Boeing. Secretary Monique Armendariz Join us to discuss issues important to families and to network with Treasurer Karla Ronquillo others who understand. Childcare and refreshments will be available. Executive Administrative If you would like to see some of our books, please call the Assistant BOARD office to schedule an appointment. Messages are checked daily. Feel Adriana Araiza free to call us for any information at 772-9100 or send us an email to Michelle Lopez Ainée Robles [email protected] Joe Villalobos HONORARY BOARD Join us on Facebook! NATIONAL www.facebook.com/autismsocietyep AUTISM SOCIETY Sandra Smith Advanced Placement Specialist INDEX General Information 1 MONTHLY Upcoming Events 2 MEETINGS General What’s Going On 3 Membership A Letter from the President 4 Meetings are held the Submit Your Family’s Stories 5 second Tuesday of every month at Re- gion 19 ESC at 6611 Boeing beginning at 6:30 p.m. Board Meetings are held on the last Monday of every month at 6:30 p.m. All members are welcome to attend, and your input is always 1 AUTISM SOCIETY OF EL PASO AUTISM SOCIETY OF EL PASO UPCOMING EVENTS 2014: February 10, 2015 Monthly Support Group Meeting 6:30 p.m. Region 19 Education Service Center 6611 Boeing Dr. February 23, 2015 Monthly Board Meeting 6:30 p.m. -
Unravelling Autism
Unravelling Autism • Preston Wiles M.D. • Professor, UTSWMC • Senior Attending, Autism Center Learning Objectives • Describe essential features of autism spectrum disorders • Overview of genetic factors in the disorder • Understand brain function related to core features of autism • Review features of epidemiology-is there an epidemic or not • Role of science/education vs. Myth/meme Autism Spectrum Disorders • Autistic Disorder • Pervasive Developmental Disorder NOS • Asperger’s Syndrome • Rett’s Disorder • Child Disintegrative Disorder • ALL become ASDs in DSM-V Historical Perspective • Feral children • Kanner-1943 Infantile Autism • Asperger-1944 Autistic Psychopathy • Rank-1949 Atypical Personality Autism Defined The Great Autism Researcher--Dr Seuss Thing One: Social Disability-intuitive understanding of others, feeling their feelings, social understanding, intersubjectivity Thing Two: Early Onset of neuro-developmental disorder (Stolen from Ami Klin) Core Features ASDs • Social impairment • Communication Deficits • Restricted interest/Repetitive Behaviors • Deficit/Deviance beyond IQ/developmental • Core Feature is SOCIAL Areas of Concern Social Impairment Restricted and Communication Repetitive M-CHAT screening • Pediatrics- all 18 and 24 month olds • Does your child take interest in other children? • Does your child ever use his/her body to point, to indicate interest? • Does your child smile in response to your smile? • Does your child respond to his/her name when called? • Does your child imitate you? • Does your child ever pretend, -
Model Reveals New Links Between Autism and Fragile X
Spectrum | Autism Research News https://www.spectrumnews.org NEWS Model reveals new links between autism and fragile X BY EMILY SINGER 17 SEPTEMBER 2012 Strange synapses: Mice lacking NLGN3 develop abnormal neuronal connections (yellow) at one end of certain cells (blue) in the cerebellum. Strange synapses: Mice lacking NLGN3 develop abnormal neuronal connections (yellow) at one end of certain cells (blue) in the cerebellum. Mice that lack the autism-linked gene neuroligin-3 (NLGN3) show similar deficits in neurons to those seen in fragile X syndrome, according to research published 13 September in Science1. Specifically, the mice have defects in neuronal plasticity, a brain cell’s ability to alter the strength of synapses, the connections between neurons. Restoring the gene in adolescent mice reverses the problem, suggesting a potential pathway for treatment. The findings add to growing evidence that some aspects of autism may be treatable into adulthood. “A key question with neurodevelopmental disorders like autism is to what extent can dysfunctional circuits formed during development be repaired?” says Peter Scheiffele, professor of cell biology 1 / 4 Spectrum | Autism Research News https://www.spectrumnews.org and biological development at the University of Basel in Switzerland, and the study’s lead investigator. “We see that a substantial amount of inappropriate synapses can be rescued in the adult.” The research also supports the idea that studying so-called syndromic forms of autism, such as fragile X, which are further along in drug development than are more common forms of autism, will shed light on the molecular underpinnings of the disorder. “I was quite excited about this paper because it links what may be very different genetic causes of autism to perhaps similar mechanistic and therapeutic targets,” says Kimberly Huber, associate professor of neuroscience at the University of Texas Southwestern Medical Center in Dallas. -
REVIEW ARTICLE the Genetics of Autism
REVIEW ARTICLE The Genetics of Autism Rebecca Muhle, BA*; Stephanie V. Trentacoste, BA*; and Isabelle Rapin, MD‡ ABSTRACT. Autism is a complex, behaviorally de- tribution of a few well characterized X-linked disorders, fined, static disorder of the immature brain that is of male-to-male transmission in a number of families rules great concern to the practicing pediatrician because of an out X-linkage as the prevailing mode of inheritance. The astonishing 556% reported increase in pediatric preva- recurrence rate in siblings of affected children is ϳ2% to lence between 1991 and 1997, to a prevalence higher than 8%, much higher than the prevalence rate in the general that of spina bifida, cancer, or Down syndrome. This population but much lower than in single-gene diseases. jump is probably attributable to heightened awareness Twin studies reported 60% concordance for classic au- and changing diagnostic criteria rather than to new en- tism in monozygotic (MZ) twins versus 0 in dizygotic vironmental influences. Autism is not a disease but a (DZ) twins, the higher MZ concordance attesting to ge- syndrome with multiple nongenetic and genetic causes. netic inheritance as the predominant causative agent. By autism (the autistic spectrum disorders [ASDs]), we Reevaluation for a broader autistic phenotype that in- mean the wide spectrum of developmental disorders cluded communication and social disorders increased characterized by impairments in 3 behavioral domains: 1) concordance remarkably from 60% to 92% in MZ twins social interaction; 2) language, communication, and and from 0% to 10% in DZ pairs. This suggests that imaginative play; and 3) range of interests and activities.