Revue Développement Humain, Handicap Et Changement Social Journal of Human Development, Disability, and Social Change

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Revue Développement Humain, Handicap Et Changement Social Journal of Human Development, Disability, and Social Change Revue Développement humain, handicap et changement social Journal of Human Development, Disability, and Social Change Volume 24, no 1 = avril 2018 = April 2018 Représentations sociales et handicap : regards croisés sur le sens commun du handicap Social Representations and Disability: Perspectives on the Common Sense Notions of Disability ____________________________________________________________________________________________ RÉDACTEUR EN CHEF = EDITOR IN CHIEF : COMITÉ DE PAIRS = PEER-REVIEW COMMITTEE : Charles Gaucher CATHERINE BARRAL, Centre Technique National d'Études et de Recherches sur les COMITÉ D’ÉDITION = PUBLICATION COMMITTEE : Handicaps et les Inadaptations FRANCE BEAUREGARD, Université de Sherbrooke Chantal Cloutier Lucie Moffet LINE BEAUREGARD, Centre interdisciplinaire de recherche en réadaptation et Carl Ouellet intégration sociale Méric Sauvé PIERRE CASTELEIN, GRAVIR CLAIRE CROTEAU, Université de Montréal COMITÉ DE RÉDACTION = EDITORIAL BOARD : LOUISE DUCHESNE, Institut de réadaptation en déficience physique de Québec / Normand Boucher Université du Québec à Trois-Rivières Patrick Fougeyrollas Charles Gaucher ISABELLE ÉMOND, Office des personnes handicapées du Québec LINDA GARCIA, Université d’Ottawa PAGE COUVERTURE = COVER PAGE : SYLVIE JUTRAS, Université du Québec à Montréal Mise en page : Chantal Cloutier JEAN-CLAUDE KALUBI, Université de Sherbrooke Image : iStock LUCYNA LACH, McGill University https://www.istockphoto.com/ca/vector/perfect- YVES LACHAPELLE, Université du Québec à Trois-Rivières collaboration-gm156485448-17891363 GUYLAINE LE DORZE, Université de Montréal IMPRESSION = PRINTED BY : HÉLÈNE LEFEBVRE, Université de Montréal Les Copies de la Capitale Inc. KATHERINE LIPPEL, Université d’Ottawa CHARLES PARÉ, Réseau International sur le Processus de production du handicap DÉPÔT LÉGAL = LEGAL DEPOSIT : GHISLAIN PARENT, Université du Québec à Trois-Rivières Bibliothèque nationale du Québec Bibliothèque nationale du Canada ANNE-MARIE PARISOT, Université du Québec à Trois-Rivières ISSN 1499-5549 MICHAEL PRINCE, Université de Victoria RUNE SIMEONSSON, University of North Carolina RIPPH === INDCP MYREILLE ST-ONGE, Université Laval 525, boulevard Wilfrid-Hamel Est, F-117.4 Québec (Québec) Canada, G1M 2S8 STÉPHANE VIBERT, Université d’Ottawa PHILIPPE WEBER, Pro Infirmis Téléphone = Phone : 418-529-9141, poste 6202 Télécopieur = Fax : 418-780-8765 Courrier électronique = Email : [email protected] Site Internet = Website : www.ripph.qc.ca REMERCIEMENTS === ACKNOWLEDGEMENTS Nous tenons à remercier les organismes suivants pour leur soutien technique et financier : We wish to thank the following organizations for their technical and financial support : ° L’Institut de réadaptation en déficience physique de Québec (IRDPQ) ° L’Office des personnes handicapées du Québec (OPHQ) TABLE DES MATIÈRES ● CONTENTS ÉDITORIAL • EDITORIAL Charles Gaucher, Ann M. Beaton et Jérémie B. Dupuis, rédacteurs(trice) invités(ée) ● Guest Editors .................................................................................................................................. 3 ARTICLES ORIGINAUX ● ORIGINAL ARTICLES Personal and Collective Disability Identity Development Rebecca S. Curtis, Angie Hall, Sharon Weaver and Jill Meyer .......................................................... 7 Le rôle des représentations sociales (surdité, parentalité, services professionnels) dans l’engagement des parents auprès de leurs enfants vivant avec une surdité au Québec Jessica Breau, Lilian Negura et Charles Gaucher ........................................................................... 21 Qu’entend-on par sourd? La perception sociale à l’égard des personnes sourdes Mélanie Hamm ................................................................................................................................ 35 Social Representations of Persons with Learning Disability or Autism Spectrum Disorder Among Rehabilitation Professionals in Sweden Per Germundsson ........................................................................................................................... 53 Le paternalisme organisationnel et l’employabilité des personnes ayant des incapacités : les retombées paradoxales de l’autorité et de la bienveillance déplacées Ann M. Beaton, John Kabano, Charles Gaucher, Monica Lavoie et Josée Lanteigne-Dupuis ......... 63 Impact of Contextual Factors on the Social Representation of Disability Among Students in Inclusive Junior High Schools Kahina Harma, Frédérique Vernay, Thierry Marrone, Anne Gombert and Jean-Yves Roussey ....... 77 Active Involvement of People with Disabilities in Education: A Literature Review Élise Milot, Anne-Sophie Ruest-Paquette, Gabrielle Fortin, Sylvain Letscher and Maman Joyce Dogba ............................................................................................................................................. 95 Toward a More Balanced Representation of Disability? A Content Analysis of Disability Coverage in the Flemish Print Media Tina Goethals, Dimitri Mortelmans and Geert Van Hove ............................................................... 109 Friday Night Disability: The Portrayal of Parent-Child Interactions on Television’s Friday Night Lights Ewa McGrail, J. Patrick McGrail, Alicja Rieger and Amy Fraser .................................................... 121 1 Le handicap brouille-t-il le genre? La mise en « Portrait » du handicap dans le journal Libération Laurence Joselin et Cristina Popescu ............................................................................................ 141 The Formidable Double D: Analysis of Desire and Disability Emese Ilyes ................................................................................................................................... 157 SITE INTERNET DU RIPPH • INDCP WEBSITE www.ripph.qc.ca 2 Revue Développement humain, handicap et changement social, 2018, (24), 1, p. 3-6. Journal of Human Development, Disability, and Social Change Éditorial loppement de questionnements théoriques concernant les rapports sociaux qui s’expri- epuis les années 1980, beaucoup ment ou se taisent à travers les représenta- d’encre a coulé concernant les fa- tions sociales du handicap (Fougeyrollas, çons de montrer, de dire et d’ima- 2010; Murphy, 1987), mais aussi sur les ori- giner le handicap. Des écrits con- gines sociopolitiques de ces représentations cernant l’évolution historique des re- (Barnes, 2012). Enfin, on peut dire que le prin- D cipal extrant de ces différentes interrogations présentations du handicap (Doriguzzi, 1994; Stiker, 1991) à celles portant sur sa mise en est d’avoir donné lieu à de nombreux travaux icône (Fougeyrollas & Saillant, 2007), de nom- sur la nécessité et la possibilité de transformer breuses réflexions ont été faites afin de décryp- les représentations du handicap. ter ce qui est dit de la différence des personnes ayant des incapacités. D’ailleurs, c’est à tra- Le présent numéro, dédié à l’exploration des vers un clivage entre les représentations du représentations sociales du handicap, a donc modèle social et du modèle médical du handi- tenté de remettre au goût du jour ces diffé- cap que naîtront les Disability Studies. Ce rentes interrogations en sollicitant différentes champ d’études mettra en place une grille de contributions provenant d’études empiriques lecture analytique des représentations du han- afin de voir comment l’environnement, pris au dicap très critique des perspectives centrées sens du Processus de production du handicap sur le manque ou le pathologique qui accom- (PPH), constitue un lieu de productions d’ima- pagne souvent le processus de stigmatisation ges, de perceptions, de préjugés et de stéréo- des personnes ayant des incapacités. types qui influent sur la participation sociale des personnes ayant des incapacités. Deux Différents points d’entrée ont alimenté cette axes se dégagent des contributions recueillies : critique des représentations prises au sens de les représentations provenant du vécu des ac- Jodelet, c’est-à-dire comme des « phénomè- teurs, concernés directement ou non par le nes cognitifs engageant l’appartenance sociale handicap, et les représentations issues du des individus par l’intériorisation de pratiques monde des médias. Dans un rapport dialec- et d’expériences, de modèles de conduites et tique, ces deux grands types de représenta- de pensée » et qui régissent « notre relation au tions s’alimentent et se confondent quelque- monde et aux autres, orientent et organisent fois. les conduites et les communications sociales » (1989, p. 36). Plusieurs auteurs ont ainsi tenté D’une part, les articles abordant le point de vue de démontrer comment tel type de différence, des acteurs sur le handicap, que ce soit à partir physique, psychique ou cognitive, était caracté- de la définition identitaire des personnes elles- risé socialement par des représentations parti- mêmes concernées par la notion de handicap culières influant à la fois l’expérience subjective (Curtis et al.), des perceptions des personnes de certaines différences, tels que la surdité reliées de près ou de loin à celles-ci (Breau et (Gaucher, 2010; Lane, 1984), ou encore les al.; Hamm; Germundsson) ou de manière plus cadres globaux de traitement du handicap générale par des individus à qui on a demandé dans certains contextes sociaux ou culturels de nous livrer leurs façons de voir le handicap (Gardou, 2010; Ingstad & Whyte, 1995). D’au- (Beaton et al.; Kahina et al.), soulignent bien la tres se sont penchés
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