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Bone Marrow Transplants 3 7 Simple test can Community save your sight comes first Manukau Courier Thursday, July 14, 2016 YOUR PLACE, YOUR PAPER Little Ryan needs donor Family searches the world for help for their toddler SAMANTHA SMITH Ryan Arora’s parents have been looking for a bone marrow donor since their son was three months old. Papatoetoe couple Aman and Shivani Arora have gone to extreme lengths to find a donor match for their 2-year-old who has a condition know as beta Little Ryan Arora enjoys the sun thalassemia. and sand at the beach. It’s a blood disorder described as a severe type of anaemia that reduces the production of hemoglobin, the iron-containing Bone protein in red blood cells that carry oxygen to cells throughout the body. marrow The only treatment that will give Ryan any quality of life is a transplants bone marrow transplant but there has been no match for him despite searches in every donor registry ❚ About 13,000 donors on New around the world. Zealand’s bone marrow register His mum Shivani says they ❚ Bone marrow donation does even travelled to Bangkok last not involve donating bone - it’s year for genetic IVF treatment in the collection of blood stem cells the hopes that they could find an that grow inside the bone, embryo for a matched sibling for through a process similar to Ryan. donating blood. ‘‘Our happiness had no bound- ❚ Each year, many patients are aries but unfortunately all our diagnosed with leukaemia or hopes dreams were shattered as other serious blood disorders. we later found out that our preg- Those diseases prevent the blood nancy did not carry through and cells from maturing and had a negative result.’’ functioning properly. For many a The failed treatment cost the bone marrow transplant is the couple almost $45,000 and they only hope for a cure. could not afford a second cycle. ❚ Go to bonemarrow.org.nz for ‘‘We then planned our second more information and details on child naturally but later in the how to register. pregnancy we found that the baby Ryan Arora urgently needs a bone marrow transplant to have the quality of life he deserves. SAMANTHA SMITH [due this month] also is not a suit- able match for Ryan,’’ she says. ‘‘"Life will be much overload of iron in his liver which anyone who isn’t on the bone mar- The couple is confident they The toddler’s current treat- can be very dangerous.’’ row donor registry to register. will find a donor for their son. ment includes providing his body simpler for him Since April Ryan has been ‘‘One easy step taken by you ‘‘Life will be much simpler for with more red blood cells through without any undergoing therapy to remove can save a life and give someone him without any boundaries ... for blood transfusions. excess iron from his body through like Ryan a gift forever that no a little boy as intelligent and ‘‘Ryan needs them every three boundaries ’’ a needle injected in his stomach. amount of money could ever brave as Ryan it would be easier to four weeks but now he has an Shivani Arora The family is now appealing to buy.’’ to look forward to his future.’’ AU-7266066AB 2 MANUKAU COURIER, YOUR PAPER,JULY YOUR 14, 2016 PLACE FROM THE 1. GLOWING DISPLAY EDITOR See one of Auckland’s best kept secrets, take a guided tour to see the glowworms that call Totara Park home on July 21 from South Auckland communities are 8-9.30pm. Email blessed by some terrific people [email protected]. who work on their behalf -- even if those communities don’t know it. 2. BALLET SHOW stuff.co.nz Take the Randwick Park group The Royal New Zealand Ballet that appears in our story on P7. performs excerpts from Francesco Peter Diaz, Dave Tims and Maree Ventriglia’s Beaven lead groups that are ASB Theatre, AoteaThe Wizard Square of onOz July working magic in transforming 23. Free. the area into a place people truly at the This newspaper is want to live. 3. PETER RABBIT subject to NZ Press Council procedures. The story makes the Celebrate 150 years of Beatrix A complaint must irst transformation sound easy -- it Potter at Howick Historical Village, publication, to the editor’sbe directed email in address. writing, hasn’t been that and these three Bell Rd, Pakuranga on July 17, 10am- 1 If not satisied with thewithin response, one month the of have devoted couuntless hours to 4pm. General admission applies. complaint may be referred to the making it happen. Press Council. to do4. LEILANI list The Terrace, Wellington 6143. Their work will help inspire Or use the onlinePO complaint Box 10-879, form at others to continue the job of Kiwi archetypes combine with www.presscouncil.org.nz making their communities better traditional Commedia Dell’Arte in include copies of the article and all places. Mahuika Theatre Company’s debut: correspondence with the publication. People like Diaz, Tims and Leilani Please Beaven are rarely recognised for from August. On at 4-13. the Q Tickets Theatre at Loft their true worth but they should qtheatre.co.nz. CONTENTS be. 2 1-15 5. TE KORAKORA News Perhaps some of those who 6 Conversations have benefited from their work Federal Street in Auckland City is 8 should consider nominating them transforming into a street carnival Look Who’s Talking 3 10 Rob Stock in the New Zealander of the Year with kai, art, fashion and the 13 awards which seek to do just that. flavours of Te Ao Maori. July 15, What’s On 14 Out and About Nominations can still be made. 5pm to 10pm. 18-27 Go to nzawards.co.nz for all the Contact us Sport details - Judith OFFICE: 4 [email protected] 7017. 525 2100 or [email protected]: SALES MANAGER: 12mths to 31 Dec 15). 33 Birmingham Rd, East Tamaki. PO Box 76-400, Manukau. Park, Mangere Bridge, Mangere Central, Mangere East, Manukau Central, Manukau Heights,5 Manurewa, Manurewa East, Middlemore, Otahuhu, Otara, Papatoetoe,Delivered PeninsulaDELIVERIES: Tues Park, & ThursKevin Puhinui, to:Breen Randwick 272 5889 Park, or [email protected]. The Gardens, Totara Heights, Wattle Downs, Weymouth, Wiri. 525 2022, [email protected] or www.snadelivery.co.nz. MASSIVEMASSIVE Clendon, Clover Park, Favona, Flat Bush, Goodwood Heights, Hill Park, Homai, Mahia EDITOR: mmanufacturers Judith Tucker 272 5863 or anu ADVERTISING: fac 73,901 Audited Circulation tur 272 7017. ers’ CLASSIFIEDS: clearance (ABC for only at Mount Wellington Clearance Centre got to go Brand new up to $19.99 tomorrowstarts Alcatel 10.42 - Grey 1.8” colour display y $ ends 1100 OONLYN # VGA camera 9 supplier Brand new up to $149 Tuesday Expadable memory seconds LLIMITIMIT 1 PPERER CCUSTOMER 9 Model: ALCATEL 10.42 Nokia Lumia 635 Smartphone # $ Locked to the Vodafone network 2200 OONLYN 4.5” screen ne brand 669 got LLIMITIMIT 1 PPERER CCUSTOMERU ER 9 Brand new up to $159 new 1.2GHz quad core processor to go stock 5MP camera Motorola Moto E 1010 OONLYNLY # Model: PH-N-635 # Smartphone - Black LLIMITIMIT 1 PPERER CCUSTOMERUSTOMER 1010 ONLYO $ 4.3” screen $ 2 LIMITLIMIT 1 PPERE CUSTOMER brand 9999 9 1.2GHz dual- core processor new stock # Brand new 5MP camera 5 ONLYONLY w LLIMITIMIT 1 PPERER CCUSTOMERUSTOMER up to $449 Model: MOTO E BLACK 9 Sony 2.1 $ 3 Panasonic Channel Sound Ba 33494 got Brand new up to $1747 120W 2-Way Speakers •Powerful300Wattsoutputfrom9 Model: CJ-A1323U • Multi-device connectivityr (3 HDMI inputs/ to go Top brands, seconds, new & ex-display1 H models. 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