Alzheimer Scotland Annual Review 2012–13 Making sure no one goes through dementia on their own. Alzheimer Scotland believes that no one should go through dementia on their own. Our aims are: • to be the national and local voice of people with dementia and their carers in Scotland • to improve public policies for the benefit of people with dementia and their carers • to provide high quality services for people with dementia • to provide high quality services for the carers of people with dementia We are supported in these aims by over 5,000 members and many more supporters who campaign for us, volunteer, raise funds and donate their time. From the first time we entered the building to get It has helped me information about the services to join the dots to the present day I have been so impressed by the in a fragmented welcome we have been given. world out there. Carer Carer I enjoy the patter Some responses and reminiscing. to our annual Person with dementia customer satisfaction survey, carried out between April 2012 The advice I have received has and March 2013. helped me to understand my condition and will hopefully help me to continue to enjoy a good quality of life. I like it that carers stay Person with dementia and don’t dash off. Person with dementia Contents Our Council and Executive . .2 Convener’s introduction . .3 Working in partnership . .5 Our people . .6 How we’ve made a difference . .8 Policy and campaigning . .10 Delivering quality services . .12 Making self-directed support a reality . .17 Information and outreach . .18 Providing advice and support . .20 Raising awareness . .22 Fundraising . .23 Some facts and fi gures . .26 Thank you . .28 Looking forward . .30 Our fi nances . .33 It’s great. I can do things I like doing. Person with dementia Our Council and Executive John Laurie Arlene Chalmers Ian Bell Findlay McQuarrie (Convener) (Secretary) (Treasurer) (Vice Convener) Neill Anderson Barbara Barnes Gillian Boardman Rose Mary Bowes (resigned April 2013) Caroline Brown Noni Cobban Jim Fry Sheila Hardie Lynda Hogg Agnes Houston Dianne Howieson Alan Jacques Patricia Laughlin David McClements Christine McGregor Barbara Mitchelmore Patricia Payne Douglas Philips Christine Ross John Starr Kenneth Valentine Henry Simmons, Kate Fearnley, Kevin Craik, Chief Executive Deputy Chief Executive Director of Finance & Corporate Resources 2 Convener’s introduction Over the last year Alzheimer provided funding for a Dementia Scotland has contributed Nurse Consultant or Specialist to a wide range of policy in every NHS Board. We are achievements that are bringing continuing to work with the tangible benefits to people with University of the West of Scotland dementia, their families and to train Dementia Champions, carers. We have seen significant with over 300 champions now John Laurie, progress in the implementation working within the NHS. 200 Convener of the National Dementia Strategy, Dementia Ambassadors have National Dementia Standards also been trained, and an and the Promoting Excellence independent review of their framework. We are very proud impact is currently underway. of our contribution to these We’ve also established a achievements. Centre for Policy and Practice in partnership with the University of At a national level, Scotland the West of Scotland. has made good progress in delivering the aims of its first Dementia Awareness Week is National Dementia Strategy. The an important annual focus for introduction of the post-diagnostic us, and the awareness-raising support guarantee from April work we did around this was a 2013 is another major landmark great success. We continue to in the Strategy’s progress. be committed to providing more Alzheimer Scotland’s 5 Pillar personalised care for people model of support will be integral with dementia, and made plans to delivering the new guarantee, for our second conference as will the network of newly on self-directed support, in appointed Link Workers. September 2013. The Second National Dementia Our initiative to draw together the Strategy will focus on providing dementia research community in “Over 300 Dementia Champions are now working within the NHS.” ongoing support for people with Scotland continues to progress dementia and their families. Our well. The aim is to encourage 8 Pillars model of support has collaboration and capacity, and to been developed with this in mind, attract major funding. The Scottish and is currently being piloted. We Dementia Research Consortium hope to see it rolled out across will be launched later this year Scotland. and has the potential to greatly enhance social and medical In partnership with the Scottish research in Scotland. Government, we have now 3 Convener’s introduction .......................................................................... Although the economic climate contributions we could not fund has remained challenging, we’ve our objectives. As in previous continued to work successfully years the events organised by with our public sector partners. our fundraising team have been Despite budgetary constraints, outstanding and their success in several of our services have raising much-needed funds for continued to grow. I would like our work has been remarkable. to thank our staff and volunteers who provide such high quality Alzheimer Scotland is a significant services and help us deliver organisation in terms of its size excellent value for money. and complexity. We prepare regular three-year strategic Our Dementia Resource plans to make sure we meet our Centres bring dementia out of objectives. I’m happy to report that the shadows and on to local the vast majority of the objectives high streets, helping to raise included in the 2010–2013 awareness and dispel stigma. strategic plan have been met, and We now have 12 Resource later this year we will publish a Centres in operation and we new plan covering 2013–2016. have invested in a further four During the year we also drew up “I’d like to thank our staff and volunteers who provide such high quality services.” centres (in Motherwell, Clydebank, carefully considered changes to Kilmarnock and Stranraer) that our governance arrangements. will come into operation early I wish to thank all of my next year. Our long-term goal is colleagues on our Council for their to have a centre in every large commitment and assistance, as town in Scotland. well as the senior staff. It’s been said before, but This has been a very good fundraising is an essential part of year for Alzheimer Scotland any charity’s work. Our fundraising and I look forward to next year efforts have been many, varied with confidence. I believe that and highly innovative at times. I’d with the continued support of like to thank all those who have our members, partners and supported this: the organisers, supporters we will continue to volunteers and most of all the improve the experience of people participants, without whose with dementia and their carers. 4 finding, testing & sharing domestic products to help people with dementia living at home finding, testing & sharing domestic products to help people with dementia living at home finding, testing & sharingWe believe that domestic by identifying simple products that make real differences to peoples products to help peopleindependence and sharing these products within with dementiathe dementia living community, at home we can make real differences to the day to day lives of carers and people with dementia. (particularly in theWe early believe stages) that by identifying simple products that make real differences to peoples We independencework with people and with sharing Dementia these andproducts their carerswithin to identify the dementiaand community,develop products we can that make make real a differences real difference to the to daily tasks. day to day lives of carers and people with dementia. (particularly Products are tested by families over a three month period and in theWe early believe stages) that by identifying simple products feedback is shared on our website to help others make better that make real differences to peoples buying decisions. Working in partnership We workindependence with people and with sharing Dementia these and products their carers within to identify the dementiaand developcommunity, products we can that make make real a differencesreal difference to the to daily tasks. We deliver feedback to manufacturers to help them improve their day to day lives of carers and people with dementia. (particularly product, packaging and instructions for those with Dementia We support the Scottish Dementia Wein the work early closelyProducts stages) with a rangeare tested of by families over a three month period and Working Group and National academic institutionsfeedback and is partners,shared on our website to help others make better Dementia Carers Action Network, ensuring that the next generationThe project is working towards a dementia friendly kite mark, We work buyingwith people decisions. with Dementia and their carers to identify enabling their members to speak of health and social carewhich staff have can be used to highlight products that are found to deliver and develop products that make a real difference to daily tasks. out on behalf of others living with the skills needed to carereal for people benefit for our testers. dementia. We’ve also built strong with dementia.We Thesedeliver include feedback the to manufacturers to help them improve their relationships with a wide range of UniversitiesProducts product,ofare Edinburgh, tested packaging by Stirling families and over instructions a three month for those period with and Dementia We also aim to display samples of the effective products, in other organisations and partners. andfeedback the West is of shared Scotland on (UWS). our website to help others make better Our Centre forThe policy project andresource practice is working is centres towards around a dementia the country. friendly These kite centres mark, will allow We work with Alzheimer Europe buying decisions.