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2014 Annual Report Rankings

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2014 Annual Report Rankings SUPPORT IS THE FOUNDATION 2014 ANNUAL REPORT RANKINGS GREG GERSTNER, M.D. TONDA THOMPSON TOP 3 BOARD PRESIDENT EXECUTIVE DIRECTOR DEAR FRIENDS IN THE FIGHT AGAINST CANCER, IN THE It is with a true sense of humility and The hope and compassion we’re able to even cures, for many types of cancers—as NATION appreciation that we share with you our share with those we serve wouldn’t be well as education and assistance programs Academic and Community Cancer Research 2014 annual report. This year’s theme, possible without the philanthropic support so vital to supporting patients and their loved United ranks Illinois CancerCare as one of Support Is the Foundation, is at the core of so many caring friends. ones during this difficult journey. On behalf the top three enrolling community sites for of why the Illinois CancerCare Foundation of our Board of Directors, Advisors, Young The stories outlined on the following pages clinical research. exists. Support IS the foundation for our demonstrate the important role family Leaders and Volunteers, thank you for giving patients as they journey through a cancer and friend support networks play in every so generously! diagnosis, treatment and recovery. patient’s fight against cancer. Through these With sincere appreciation, The physicians and staff at Illinois stories of strength and triumph, you’ll learn Greg Gerstner, M.D. Tonda Thompson CancerCare are committed to supporting how our patients are blanketed with love and patients and their families every step of the support by those closest to them—and how Board President Executive Director way—by offering outstanding patient care Foundation grants play a key role in making and nationally recognized clinical research. a difference in their lives. We also want to thank Janet Varnes, This commitment is strengthened by IN CLINICAL TRIAL We thank you for your generosity. You our former Executive Director, for her Foundation-supported grants and programs provide the philanthropic support so greatly leadership, passion and commitment that provide additional opportunities for needed in the fight against cancer. Your to the Illinois CancerCare Foundation ENROLLMENT cutting-edge treatments. gifts help fund cancer research necessary and its mission of service and research #2 in seeking promising new treatments, and to cancer patients and their families. As a member of the Heartland Cancer Research NCORP (see page 7), Illinois CancerCare ranks second in overall accrual of patients into clinical studies, according to the Alliance for Clinical Trials in Oncology—ahead of such noted BOARD OF DIRECTORS BOARD OF ADVISORS YOUNG LEADERS BOARD STAFF names in cancer research as Dana-Farber, Ohio State, University of Chicago, Gregory J. Gerstner, M.D., President Terri Baldi – Chair Tara Metully – Chair Brent Cox Tonda Thompson Mayo Clinic and Southeast Cancer Consortium. Terry L. Baum, Vice President Dan Aspell Trista Westhafer – Vice Chair Courtney Dean Executive Director Paul A.S. Fishkin, M.D., Geri Bastian Shawna Martin – Shauna Myers Treasurer Secretary Lauren Obalil Nguyet A. Le-Lindqwister, M.D., Secretary Florence Doye Emily Weeks – Treasurer TJ Peterson Foundation Coordinator Holly Geier Emily Shields – Past President Kirsten Schmidt Ann Best Scott Howard Emily West – Social Lindsay Schuh Rebecca Bonfoey Diane Cullinan Oberhelman Teresa Kitson Devon Schwindenhammer Andrew Bell Foundation Accountant Craig Sinclair, DDS Ryan Koener Greg Smith Tessa Bonello Leslie Schenkel Robert Swank, J.D. Gina Kouri Kacie Tilker Kristin Buckholz Timothy Williams Scot Kunkel Alli Turner Foundation Assistant Chip Nellinger Dan Christensen Linda Scott Molly Wilson 2 3 FAMILY IS EVERYONE WHO RESEARCH CARES ABOUT ME At 75, Roger Nuhn of Glasford is a relative newlywed. When he and Bonnie married five years ago, he joined a close-knit family—two daughters, five granddaughters and two great-grandsons (and another great-grandchild on the way). They all rallied around him when he started treatment for chronic lymphocytic leukemia in the winter of 2014. So did his Illinois CancerCare family. Presented with the opportunity to participate in a clinical trial, Roger debated it, then decided, “What have I got to lose?” The answer: Nothing. He’s not only responding well to treatment—which he’s not sure he could have afforded on his own—but he’s also recovered the energy to do the things he loves. “I wouldn’t have been able to do anything without this treatment. Now, I feel like doing stuff again.” That includes plans to head to Florida with Bonnie to escape the coming winter. ROGER NUHN YOUR DOLLARS SUPPORT : Cutting-edge cancer treatments offered in our patients’ hometowns. Through the NCI Community Oncology Research Program (NCORP), Illinois CancerCare shares in $2.5 million of annual funding for National Cancer Institute clinical trials. Patient costs for trials exceed that amount, however, resulting in a significant budget shortfall. The Foundation fills that gap—committing up to $400,000 per year for the next four years to help ensure local patients receive the quality care they deserve, close to home. 4 DAN JACOBS RESEARCH LAUGHTER IS MY BEST MEDICINE How would you expect a retired fighter pilot to battle lung cancer? Probably not by donning tie-dyed T-shirts and knitting stocking caps for his care team—but that’s the approach Dan Jacobs of Galesburg took. “People are going to look when you lose your hair, so I might as well make them laugh.” It hasn’t all been laughter for Dan, his wife Jean and their son Cory, but after undergoing several rounds of chemotherapy, Dan’s tumor has shrunk and he’s entered a maintenance program as part of a clinical trial. “It’s the best way to learn—to give back and help the greater good. I know someone else did it for me, and my dad didn’t have this opportunity when he faced cancer 30 years ago.” ADVANCING TREATMENT Program (CCOP). Under this new arrangement, IN CENTRAL ILLINOIS patients can continue taking part in NCI-funded clinical trials at all 12 Illinois CancerCare locations. Despite funding challenges, Illinois CancerCare At select clinics, they also can participate in continues to increase both the amount of clinical industry-sponsored trials, which allow access to trials available and the number of patients enrolled. drugs before FDA approval. “It’s entirely because of the support from the Another cutting-edge option is targeted therapy. Foundation and our donors that we can make this After eligible patients submit a tumor sample to happen,” says Dr. Madhuri Bajaj, Physician Director, be analyzed for genetic markers, treatment can be Research (photo, right). targeted for specific genetic mutations. “Our patients In 2014, Illinois CancerCare joined the NCI can have top-notch genomic testing conducted and Community Oncology Research Program (NCORP), interpreted locally without traveling,” says Dr. Jane which replaced the Community Clinical Oncology Liu, NCORP Principal Investigator (photo, left). 7 THEY WALK A MILE IN RESEARCH MY SHOES When he hit 237 pounds and found himself out of breath after climbing the stairs, Calvin Pettitt of Peoria decided it was time to take action. He bought some LEAVING NO workout clothes and shoes, then started walking regularly on the track next to STONE UNTURNED Bradley University’s Shea Stadium. The weight started dropping fast—too fast. It “A second set of eyes looking at your treatment.” was kidney cancer. “My grandfather and my mom both died of cancer. I thought That’s how Kacie Tilker describes her role as it was a death sentence.” a patient navigator, a position funded through Foundation support of NCORP. She regularly With God, his extended family and the team at Illinois CancerCare by his side, screens both new and existing patients to see if Calvin proved it’s not. He had his kidney removed, joined a clinical trial and now they qualify for clinical trials, then reviews those feels good enough to start taking laps around the track once more. “I prayed a lot. opportunities with the patients’ physicians. When I told God I just wanted to see my children and grandchildren progress a bit more there is a match, Kacie walks patients through the trial’s requirements, answers questions and before I leave this earth.” manages enrollment. “Our patients get more attention because we’re always looking for a good clinical trial fit.” CALVIN PETTITT 8 YOUR DOLLARS SUPPORT : Studies and therapies that help patients deal with the side effects of cancer treatment. Balance problems caused by chemo-induced neuropathy can lead to falls, injuries and reduced quality of life. In 2014, the Foundation awarded a grant of $37,982 to the Institute of Physical Medicine and Rehabilitation (IPMR) to study the effects of taxane chemotherapy on balance in breast cancer patients. We also committed $20,000 for lymphedema treatment and compression therapy, which help patients deal with tissue swelling and fluid retention caused when lymph nodes are removed. THE HEALING STARTED IN MY GRANTS GARAGE Like a lot of patients undergoing chemotherapy, Vickie Brewer of Morton worried about losing her hair. So her friends at work threw her a hat party, and her daughter bought her a beautiful wig. Then, her extended family—husband, daughters, parents, brothers and sisters-in-law—threw one of their spur-of-the-moment “garage parties” to shave Vickie’s head. “It lightened things up, and that really helped. I made up my mind I’m not going to give in to breast cancer.” After her diagnosis in 2014, Vickie had a lumpectomy and then began chemotherapy. That resulted in a side effect called neuropathy, a type of nerve damage that can cause numbness, tingling, pain and muscle weakness. When her physician asked if she wanted to participate in a clinical trial for a new neuropathy drug, Vickie didn’t hesitate.
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