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NOTHING to HIDE: Tools for Talking (And Listening) About Data Privacy for Integrated Data Systems

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NOTHING to HIDE: Tools for Talking (And Listening) About Data Privacy for Integrated Data Systems NOTHING TO HIDE: Tools for Talking (and Listening) About Data Privacy for Integrated Data Systems OCTOBER 2018 Acknowledgements: We extend our thanks to the AISP Network and Learning Community, whose members provided their support and input throughout the development of this toolkit. Special thanks to Whitney Leboeuf, Sue Gallagher, and Tiffany Davenport for sharing their experiences and insights about IDS privacy and engagement, and to FPF Policy Analyst Amy Oliver and FPF Policy Intern Robert Martin for their contributions to this report. We would also like to thank our partners at Third Sector Capital Partners and the Annie E. Casey Foundation for their support. This material is based upon work supported by the Corporation for National and Community Service (CNCS). Opinions or points of view expressed in this document are those of the authors and do not necessarily reflect the official position of, or a position that is endorsed by, CNCS or the Social Innovation Fund. TABLE OF CONTENTS Introduction ............................................................................................................................................................................................................................. 2 Why engage and communicate about privacy? ................................................................................................................................................. 2 Using this toolkit to establish social license to integrate data ...................................................................................................................... 2 Communicating about Integrated Data .......................................................................................................................................................................4 Sharing a clear and confident public message about integrated data and privacy .............................................................................4 Step 1) Set your communication goals ...................................................................................................................................................................4 Step 2) Develop your communications strategy .................................................................................................................................................4 Step 3) Develop specific messages that speak to your audience ................................................................................................................5 Step 4) Identify your communications channels and tools ............................................................................................................................6 Step 5) Mobilize your allies .......................................................................................................................................................................................... 7 Engaging Stakeholders around Integrated Data ......................................................................................................................................................8 Building strong and sustainable relationships with those who care about data and privacy ...........................................................8 Step 1) Establish your engagement strategy and resources ..........................................................................................................................8 Step 2) Identify and map your stakeholders ........................................................................................................................................................9 Step 3) Prepare for your engagement activities .................................................................................................................................................9 Step 4) Convene and engage your stakeholders .............................................................................................................................................. 10 Step 5) Follow through and follow up .................................................................................................................................................................. 10 Conclusion ...............................................................................................................................................................................................................................11 Appendix A – Understanding Data Privacy ...............................................................................................................................................................12 A.1: Privacy basics ...........................................................................................................................................................................................................12 A.2: Integrated data privacy .......................................................................................................................................................................................13 A.3: Privacy Fair Information Practice Principles (FIPPs) .............................................................................................................................. 14 A.4: Privacy tools and resources ..............................................................................................................................................................................15 Appendix B – Communications Talking Points and Exercises ............................................................................................................................17 B.1: Talking Points – Describing and distinguishing your IDS ........................................................................................................................17 B.2: Talking Points – Setting reasonable privacy expectations ....................................................................................................................18 B.3: Talking Points – Responding to others’ privacy expectations............................................................................................................. 19 B.4: Talking Points – Tips on language and privacy lingo ...............................................................................................................................21 B5: Exercise – Elevator Pitch .....................................................................................................................................................................................23 B6: Exercise – Advanced Elevator Pitch .............................................................................................................................................................. 24 B7: Exercise – Data Benefit Analysis ......................................................................................................................................................................25 Appendix C – Engagement Worksheets, Checklists and Sample Materials ................................................................................................ 26 C.1: Worksheet – Strategic Engagement Planning ........................................................................................................................................... 26 1. What are our objectives for this engagement? ....................................................................................................................................... 26 2. What is the environment for this engagement? .................................................................................................................................... 26 3. What are our resources for engagement? ................................................................................................................................................27 C.2: Worksheet – Stakeholder Mapping ............................................................................................................................................................... 29 1. Identify your potential stakeholders ............................................................................................................................................................ 29 2. Assess your potential stakeholders’ interests ......................................................................................................................................... 30 3. Prioritize your key stakeholders ................................................................................................................................................................... 30 C.3: Worksheet – Pre-Engagement Planning .......................................................................................................................................................31 1. Prepare answers to basic questions on process and substance .........................................................................................................31 2. Identify what informational or discussion materials you will need ..................................................................................................32 C.4: Worksheet – Convening Stakeholders .........................................................................................................................................................33 1. Deciding when to engage .................................................................................................................................................................................33
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