Overview and Vision Aids for
BlueBlue ConeCone MonochromacyMonochromacy andand AchromatopsiaAchromatopsia
DeanDean MontheiMonthei AprilApril 20182018 WhatWhat WeWe WillWill CoverCover
● MyMy historyhistory ● BlueBlue ConeCone MonochromacyMonochromacy (BCM)(BCM) andand AchromatopsiaAchromatopsia (A)(A) ● GeneticGenetic inheritanceinheritance andand therapiestherapies ● VisionVision aidsaids ● FutureFuture ● SupplementalSupplemental InfoInfo “Click here” indicates active links MyMy HistoryHistory
● PoorPoor visionvision andand colorblindcolorblind sincesince birthbirth ● AcuityAcuity 20/20020/200 ● EngineerEngineer forfor 3434 yearsyears ● TraveledTraveled toto 1212 countriescountries forfor workwork ● DiagnosedDiagnosed asas BCMBCM inin 20172017 BCMBCM andand AA
● NormalNormal VisionVision –Rods,Rods, blue,blue, green,green, redred conescones ● BCMBCM –Rods,Rods, blueblue conescones ● AA –RodsRods onlyonly GeneticGenetic InheritanceInheritance
● BCMBCM X-LinkedX-Linked -- MotherMother toto sonson DominantDominant onlyonly inin malesmales ● AA BothBoth parentsparents areare carrierscarriers DominantDominant inin malesmales andand femalesfemales GeneticGenetic MutationsMutations ● BCMBCM -- Xq28Xq28 genegene ● AA -- CNGA3,CNGA3, CNGB3,CNGB3, GNAT2,GNAT2, PDE6CPDE6C ● AGTCAGTC workingworking onon geneticgenetic treatmentstreatments
Click here for AGTC Corp Video Casey Eye Institute tests for BCM and A $500/$1000 Click here for details
Click for free genetic test info at http://www.blueconemonochromacy.org/ Click here for more details about the genetic defects of BCM and A BirthBirth RatesRates BCMBCM –– 11 inin 100,000100,000 birthsbirths AA –– 11 inin 30,00030,000 birthsbirths
Geographic Blue Cone Region Monochromacy Achromatopsia
Portland Metro 25 75
USA 3,250 11,000
World 76,000 250,000 SymptomsSymptoms CommonCommon toto BothBoth BCMBCM andand AA
● PoorPoor acuityacuity 20/6020/60 toto 20/20020/200 ● SeverelySeverely colorblindcolorblind ● PhotophobiaPhotophobia ● HighHigh MyopiaMyopia (BCM),(BCM), HyperopiaHyperopia (A)(A) ● NystagmusNystagmus mainlymainly asas infantsinfants
BCM and A are generally stable conditions Note: Severity of symptoms varies ColorColor BCM VisionVision Red Blind
NORMAL
Rods and Blue cones
ACHROMATOPSIA
CIE Chromaticity Diagram Printing, Photography, Monitors, TV Rods only Click Here for Details Horrible:Horrible: Red/BlackRed/Black MixMix TreadmillTreadmill Displays,Displays, SignsSigns etc.etc.
Red on Black What I See Grayscale Display Helps VisionVision AidsAids MyMy MostMost UsedUsed VisionVision AidsAids Reading Distance and Short Closeup Text
Detail Work ne Hobbies ho P t & ex l T al m S
PC
Reading From Magazines, TV, Signs, Books Distance Phone For Computer Use - Windows Full Screen Magnifier BauschBausch andand LombLomb MagnifierMagnifier (part#(part# 813133)813133)
Stack 2 for higher power
Walmart $8 - Click here My most important vision aid Amazon $11 – Click here (monocular is #2) GenericGeneric ReadingReading GlassesGlasses OptionsOptions NoNo BatteriesBatteries // Hands-FreeHands-Free
~$60 ~$60
COIL Readers up to +14 diopter – Click here for details
$140-$600 ~$8
Click here glasses to 12X / +48 Diopter magnifyingaids.com
Source 2 Click Here - Low Cost - Click here to search Mattingly Low Vision for jeweler's clip-on loupes HighHigh PowerPower Non-PrismaticNon-Prismatic BifocalBifocal
+2 Diopter
+15 Diopter Can be made with a different power in each eye (may not be available as safety glasses) OcutechOcutech BiopticBioptic NotNot JustJust forfor DrivingDriving 4K TV Looks Great 5X5X (6 Feet from 65” TV)
~$2000~$2000
Read smallest print on iPhone at arm’s-length Read magazines/books Hands-free No Batteries LowLow CostCost TVTV GlassesGlasses ~2X
$17
COIL version $90 Click here
Click here
High contrast sharp image Good for subtitles Better quality image than electronic mag Can’t use with glasses ADLENSADLENS GlassesGlasses forfor CataractCataract PatientsPatients (Patient(Patient cancan adjustadjust fromfrom +3+3 toto –6–6 dioptersdiopters eacheach eyeeye separately)separately)
~$20~$20
AdjusterAdjuster
Alvarez Dual Lens Technology
Click here for ADLENS on Amazon CloseClose FocusFocus MonocularsMonoculars (no(no batteries)batteries) Walters brand monoculars - click here
Carson 7X Close-Focus $15 ~$70-$200 Small size – click here
High eye point
Carson 7X Close-Focus ~$55 wide field of view - good with glasses on - Click here CompactCompact 15X-55X15X-55X ZoomingZooming MonocularMonocular ~$15~$15
Click here
Focus to 6 ft. Hold steady by bracing hand against head while holding scope ElectronicElectronic GlassesGlasses ForFor “Low“Low Vision”Vision”
SeeBOOST ~$3,500 Sam at "The Blind Life" You 1.4-7.0X digital zoom Tube Channel Click Here eSight ~$10,000 24X digital zoom
Jordy Glasses ~$3,600 ~20-30X optical zoom All have Field of View (FOV) ~30-40 degrees NuEyesNuEyes
● UsesUses ODGODG ARAR glassesglasses ● 12X12X ZoomZoom ● VoiceVoice ControlControl Computer Camera ● ~$6000~$6000
6060 degreedegree FOVFOV IrisVisionIrisVision CustomCustom GalaxyGalaxy S7S7 smartphonesmartphone andand GearVRGearVR headhead setset ~$2500~$2500
ClickClick forfor IrisVisionIrisVision videovideo ClickClick herehere forfor IrisVisionIrisVision websitewebsite
70 Degree Bubble Mag Line Mag Field of View View View ““SuperVisionSuperVision forfor Cardboard”Cardboard” AppApp LowLow CostCost AlternativeAlternative toto IrisVisionIrisVision
Click here for website ● SoftwareSoftware isis freefree ● NotNot allall VRVR headsetsheadsets workwork Zoom, Color, UtopiaUtopia 360360 -- ClickClick herehere etc. Switch ● iOSiOS andand AndroidAndroid ● NotNot allall phonesphones workwork Cover slides open to expose camera Controller – MustMust havehave gyroscopegyroscope ClickClick herehere forfor videovideo MinimalistMinimalist OpenOpen VRVR HeadsetsHeadsets
$15 $10 $10
Looks weird / Works great Click here Click here Click here Use with eye glasses Use separate magnet to trigger “SuperVision for Cardboard” controls or press In the top center of the screen to “select” No Google Cardboard magnetic switch but usable with “Nearsighted”, “Claro MagVR”, “SuperVision+ for Goggles” where you can zoom by touching the screen ElectronicElectronic MagnifiersMagnifiers “Max” $200
AV out Click here for details to TV or monitor
~$130 $180($200)
ZoomText Webcam Click here for similar products Click here CamcordersCamcorders AsAs LowLow CostCost ElectronicElectronic MagnifiersMagnifiers
● CanonCanon CamcorderCamcorder VIXIAVIXIA HF800HF800 $220$220 Click here – 57X57X zoomzoom (optical(optical 32X)32X) – HDMIHDMI andand AVAV outout – UseUse closeclose focusfocus glassesglasses toto viewview fromfrom 3”3” – SharperSharper atat highhigh magmag thanthan phone/tabletphone/tablet – FocusFocus 20”20” toto infinityinfinity NikonNikon COOLPIXCOOLPIX B700B700 WithWith ViewfinderViewfinder MagnifierMagnifier
B700 60X $450 B500 40X $275 Photo taken with 3.4X Lens this camera
60X Optical Zoom $$23
Viewfinder - Click here
Disable eye sensor or large display shuts off
HDMI Out only for recordings Great as a high power electronic monocular Does not focus close for reading iPhone’siPhone’s iOSiOS 1111 VisionVision AidsAids
● FiltersFilters –– GrayscaleGrayscale (for(for Red)Red) ● MagnifierMagnifier ● SmartSmart InvertInvert ● VoiceOverVoiceOver –– ReadsReads aloudaloud (Android(Android TalkBack)TalkBack) ● CameraCamera ZoomZoom ++ ScreenScreen ZoomZoom ● LargerLarger TextText Triple click “Home” button for menu iPhoneiPhone andand AndroidAndroid MagMag AppsApps ● SuperVision+SuperVision+ (Click(Click forfor Video)Video) ● "Brighter"Brighter andand Bigger"Bigger" (Click(Click forfor Info)Info) – Zoom,Zoom, Contrast,Contrast, andand BrightnessBrightness ● iPhoneiPhone built-inbuilt-in MagnifierMagnifier
Magnify signs from a distance and change colors
Airport Arrival/Departure signs AvoidAvoid MagMag AppsApps WithWith “Tap“Tap toto Zoom”Zoom” EspeciallyEspecially AndroidAndroid
● SlideSlide toto zoomzoom preferredpreferred ● SystemSystem screenscreen zoomzoom isis tripletriple taptap ● TappingTapping willwill accidentallyaccidentally zoomzoom thethe screenscreen makingmaking controlscontrols disappeardisappear offoff screenscreen edgeedge OtherOther VisionVision AppsApps (click(click itemsitems forfor info)info) “KNFB Reader” $99 Text to speech “Seeing AI” Free “EasyReader”
Object I.D. Cost varies Color I.D. Search for “low vision”, “blind”, and “colorblind” on app store or Google play store LargeLarge ScientificScientific CalculatorCalculator onon FireHDFireHD
Large dedicated scientific calculator $300-$600
FireHD is ~$80 calculator program is free CellCell PhonePhone andand TabletTablet 9090°° AngleAngle ViewerViewer andand StandStand
Click Here for Link ~$10 Click Here for Link to Stand ~$15 Could use together in classroom to see the board BigBig Tip!Tip! Prepaid phones work as dedicated magnifiers Never activate = no monthly charges
$65 (13MP) to $130 (16MP)
Samsung Galaxy S5 has gyroscope sensor for “Supervision for Cardboard” (Click here) FreeFree ComputerComputer SoftwareSoftware ● UseUse “Dark“Dark Themes”Themes” (YouTube,(YouTube, etc.)etc.) FreeFree
Standard Dark Theme Theme
● WindowsWindows MagnifierMagnifier fullfull screenscreen (Click(Click here)here) – IncludesIncludes invertinvert colorscolors ● InIn manymany WindowsWindows programsprograms cntrl+mousecntrl+mouse scrollscroll willwill zoomzoom withinwithin thethe windowwindow
Click here for YouTube videos on Dark Themes for phones and PCs FastCap Red $7 SG-AF-R510 ColorColor FiltersFilters Safety Glasses
Click here ● ColorColor balancebalance forfor BCMBCM ReduceReduce blueblue andand greengreen toto matchmatch redred Red Contacts from United Contact Lens, Inc. United 55, Ocufilcon C
$2 ● RedRed oror magentamagenta glassesglasses
andand contactscontacts forfor AA My TV Glasses Click here ● RoscoRosco filterfilter swatchswatch kitskits $2 Click here Enchroma glasses useless for BCM and A FutureFuture HopesHopes
● UltimateUltimate goal:goal: geneticgenetic treatmenttreatment ● ImprovedImproved VRVR andand ARAR gogglesgoggles – 4K/8K4K/8K camerascameras –– moremore digitaldigital zoomzoom – LessLess obtrusiveobtrusive designsdesigns (blend(blend in)in)
ADVANCED WAVEGUIDE OPTICS. VUZIX BLADE ™ AR SMART GLASSES Click here for Info SupplementalSupplemental InformationInformation andand LinksLinks ClickClick HereHere forfor http://www.achromatopsia.info/http://www.achromatopsia.info/ InternationallyInternationally RecognizedRecognized BCMBCM ExpertExpert OptometristsOptometrists
Laura K. Windsor, O.D., F.A.A.O. Richard L. Windsor, O.D., F.A.A.O., D.P.N.A.P. Craig A. Ford, O.D., F.A.A.O. LowLow VisionVision SoftwareSoftware (Click(Click eacheach forfor info)info)
● WindowsWindows MagnifierMagnifier (free)(free) ● iZOOMiZOOM ($300-$400)($300-$400) ● ZoomTextZoomText MagnifierMagnifier $400$400 (w/Reader(w/Reader $600)$600) ● ZoomTextZoomText FusionFusion (JAWS)(JAWS) $1200$1200 ● SuperNovaSuperNova (~$475-$1200)(~$475-$1200) ProblemsProblems ZoomTextZoomText HelpsHelps Media is Too Small & Too Bright ● SmallSmall TextText ● BrightBright BackgroundsBackgrounds (colors)(colors) ● LostLost MouseMouse ● InvisibleInvisible OutlinesOutlines SupportSupport NetworksNetworks
● http://www.blueconemonochromacy.org/http://www.blueconemonochromacy.org/ ● FacebookFacebook groupgroup forfor BCMFamiliesBCMFamilies ● FacebookFacebook groupgroup AchromatopsiaAchromatopsia ● FacebookFacebook groupgroup BiopticBioptic DrivingDriving
Grants & Assistive Programs – Click here LowLow VisionVision VendorsVendors
MaxiAids New England Low Vision www.maxiaids.com http://www.nelowvision.com/
LS&S Low Vision Market www.lssproducts.com https://www.lowvisionmarket.com
Magnifying Aids Freedom Scientific www.magnifyingaids.com/ http://www.freedomscientific.com
Enhanced Vision eSight Electronic glasses www.enhancedvision.com https://www.esighteyewear.com/ independent living aids, LLC NuEyes Electronic glasses www.independentliving.com www.nueyes.com
Nanopac seeBOOST Electronic glasses http://www.nanopac.com www.seeboost.com
Blind Organizations and Services
World Blind Union (190 countries) www.worldblindunion.org Member List by Country/Region www.worldblindunion.org/English/resources/Pages/Grouped-Member-links.aspx
Low Vision Info www.allaboutvision.com/lowvision/
Library of Congress - Talking books (free service) www.loc.gov/programs/national-library-service-for-the-blind-and-physically-handicapped/about-this-service/ List of low vision resources by state (USA) www.enhancedvision.com/low-vision-resources.html
National Federation of the Blind https://nfb.org/
American Foundation for the Blind www.afb.org
UsefulUseful VisionVision AidAid SearchesSearches ● PreviousPrevious linkslinks maymay bebe outdatedoutdated ● UsefulUseful searchessearches forfor currentcurrent infoinfo belowbelow (Active(Active linkslinks -- clickclick toto search)search) “Low“Low Vision”Vision” “Visual“Visual Aids”Aids” “Low“Low Vision”Vision” onon AmazonAmazon “Low“Low Vision”Vision” “Electronic“Electronic Magnifier”Magnifier” AmazonAmazon “Low“Low Vision”Vision” "Accessibility"Accessibility Software"Software" “Low“Low Vision”Vision” PortlandPortland OregonOregon “Close“Close Focus”Focus” MonocularMonocular Use quotes around “Low Vision” in Google searches LowLow VisionVision YouTubeYouTube ChannelsChannels (Click(Click toto LaunchLaunch VideosVideos PagePage ofof YouTubeYouTube Channel)Channel)
● ChicagoChicago LighthouseLighthouse ● SkySky DD ● TheThe BlindBlind LifeLife
These youtube channels have advice for people with low vision including lots of product reviews and coping skills. CrossedCrossed PolarizerPolarizer AdjustableAdjustable DarknessDarkness SunglassesSunglasses
Gear teeth
Gear on nose bridge rotates rear polarizer Found on eBay search for “Adjustable Sunglasses” $6 WatchWatch RepairRepair GlassesGlasses
$10 $17
Glasses have very narrow These are similar but also field of view. However, have plastic cases for the using lenses off the lenses that fit in a pocket. glasses and turned around works great with a Click here huge field of view when These are both a good held close to the eye. No value just to get several lens case. powers of nice magnifiers Click here (10X 15X 20X 25X) – 2 sets ConesCones andand RodsRods SpectralSpectral SensitivitySensitivity EveryEvery HumanHuman isis ColorblindColorblind
Click here for details on Mantis Shrimp Color Vision