ccaquarterly newsletter of the children’snetwork craniofacial association Cher — honorary chairperson spring 2011 inside cca kid camryn berry...... 2 cca adult beth wenger...... 3 cca supersib caleb berry...... 4 rick’s raffle...... 5 calendar of events. . . . . 6 craniofacial acceptance message month ...... 6 from the financial assistance...... 6 henry’s march...... 7 chairman

fresh start...... 8 t is an honor to write this testimonial...... 12 ias the newly elected chair of the Children’s Craniofacial donors in the spotlight. . . .12 a mother’s Association Board of good news...... 13 perspective Directors . If you’re reading a cca mugshot...... 13 CCA newsletter for the first By Lisa Moore links of love ...... 13 time, my hope is that you will e moved to Tampa when I was 8 months pregnant want to seek a relationship fundraising news . . . 5,7 & 13 wwith Katie . I was polyhydric (extra amniotic fluid), with CCA and become a part prosthetic devices. . . . 14-15 and they were concerned that her head was measuring of our wonderful family . If charitable ira rollover . . . .16 larger than her age . At the follow-up ultrasound they you’re a regular reader and also took note of her feet and toes . I knew in my heart already a part of the CCA donor lists...... 16-19 something was wrong . Without knowing what we would family, thank you for your 3 cheers for volunteers. . . .20 be facing at her birth, Tom and I were blessed with an 8 lb continued involvement and 9oz baby girl with Pfeiffer’s syndrome . support . I hope your needs We thought we were very fortunate there was a doctor are being met and that you coming out of the OR who noticed Katie immediately and are motivated to remain a told my husband that she had a craniofacial syndrome . (We vital part of the organization, would later read that some families experience a long period where our vision is a without identifying their child’s syndrome or condition ). He world where all people are said that surgery would correct her head, she would be accepted for who they are, not how they look . see perspective, page 10 empowering and giving hope to individuals and families affected by facial differences see chairman, page 8 in the fall (I Alternative the best . Some turned 15 a few days ago, didn’t get to of my favorite bands are which makes him about this past season TobyMac, Switchfoot, and three and a half years older because of Joel and Janna . Joel and than me . Caleb and I like to surgery) and Janna is the name of my play music together . I sing basketball in cousin’s band . My father and he plays piano . My the winter . I’m plays the guitar for the brother and I also like to looking forward band . It’s great because play outside and ride bikes . to trying track every summer they play at We like to make videos for the first time a Christian music festival of us together having this summer . called Soulfest, and I get a comedic newscast or Any hobbies? to go to see my favorite making silly commercials . I like to write, bands . It’s a lot of fun! paint, draw and I also love to sing and Have you been to a CCA Q&A with read . My favorite am on the worship team retreat? books right at my church . One time I I have been to one camryn berry now are the even sang for a crowd of CCA retreat . It was this Hunger Games hundreds at my school for past summer in Boston, Tell me a little bit about series, the Percy Jackson a concert last year . I sang Massachusetts . All my school. series, the Sisterhood of the song “Castle on a medical care is in Boston, I am in the sixth grade the Traveling Pants series, Cloud” from the Broadway which means it’s normally at Livermore Falls Middle and the Peter and the classic Les Miserables . pretty stressful to be there . School in Livermore Starcatchers series . I love all What are your favorite TV But this time it was so great Falls, Maine . Something these books and read them shows? to go there just to have fun . interesting about my school over and over . I like the shows Victorious It brought a new way of is we are preparing for I love to write and am and iCarly . I also like how I viewed Boston . We consolidation between my currently writing a book repeats of older shows got to go to an aquarium school and the school from called The Falls . It is about like Full House, The Brady and stayed in a humungous the next town over . Next a girl who locks eyes with Bunch and Bewitched . hotel that was beautiful . year, I’ll be going to a new the new boy, but he is school and will meet a lot Any favorite movies? Do you have any advice for trying to avoid her as much kids going through similar of new kids . I am also on I love ALL Disney movies, as possible . Little does she situations? the Student Council, so I old or new . My favorites know that he is part of a Stay positive. Whether get to help organize things . being Mulan, Tangled, secret society along with Pirates of the Caribbean (I it’s staying positive What are your favorite her brother trying to fend can’t wait for the new one about how you see subjects? off evil in the world . to come out), The Princess yourself or about long I like language arts, I also like to paint and the Frog, and the Toy trips, stressful hospital gym, math and art . But I landscapes more than Story series . visits or surgeries, life is probably like gym the most anything else and love so much more enjoyable because I get to let out all Do you have any brothers to draw my own anime when you have a smile my energy! or sisters? characters . Yes, I have one brother on your face! Do you have any after- named Caleb . He just school activities? What kind of music do you like to listen to? I am a member of the I enjoy all types of school newspaper, which music — it’s just a matter meets after school . I also of what’s playing on participate in youth group the radio! But above all, at my church . I play soccer I think I like Christian ccakid 2 strength and courage By Beth Wenger, N. Bethesda, MD

ong after the corrective Enduring facial before I entered sixth grade the effort and outcome . lportion of my life was differences and massive I became so determined And some days, even still, behind me, and right in reconstructive surgeries to not be the girl with the I have to remind myself of the middle of trying to from the age of 6 weeks birth defect, regardless of the strength and courage figure out the woman to 22 years gave me how well doctors could I possess—and where it I am supposed to be, I strength and courage . make me look “normal .” I comes from—before I can had a great need to find Through stories written in worked like crazy from that take those big bold steps to someone I could really CCA newsletters, I have time forward to become go after whatever I desire . relate to . I needed to find since found this strength the girl and later the Through all my pursuits, someone who had endured to be quite common woman who “did all this I have learned that having craniofacial defects and among young people and had all that going on .” craniosynostosis will always reconstructive surgeries like who endured the same or The birth defect and the be a part of me . But it I had . So, as any modern similar procedures (and in facial differences would just is, just as I had long ago girl would do, I turned to many cases significantly be a fact of life, a side note hoped, not at all who I am . the Internet . more) . These children— for those who really had to Beth Wenger is Program In my search, I stumbled and probably all children know . Manager for KEEN upon the CCA website . who have craniofacial From that point, defining Greater DC, a nonprofit CCA didn’t exist when differences—have myself as I saw fit became organization providing free I was growing up and incredible grit . my life’s goal . In fact, it recreational opportunities going through most of The grit I developed so has been my only true, to children and young my surgeries (and neither early in life through my deep-in-my-core goal . It adults with disabilities. Beth did the Internet) . Before medical hurdles overflowed has been a goal that has is also a professional writer I discovered this vast into all aspects of my life . It pushed me forward to have and editor with a B.S. in resource, I knew of no has propelled me forward many, many remarkable Psychology and Marketing/ one who had experienced through many challenges and fun adventures and Business Administration anything like I had . For and into many great experiences . from Albright College the first time, I found experiences and rewarding With a no-limits attitude, in Reading, PA, and a that the lonely part of me opportunities . At the same most days it has been easy Publication Specialist so inherently tied to the time, I have always loathed to get up and try and do, Certificate from George medical issues of my past that I was “different,” that win or lose, succeed or fail, Washington University. was no longer alone . In the I had a defect and that I or just be satisfied with faces and stories posted had all that stuff to on ccakids.org, I not only deal with as a result of found good company, I it . (And, boy, there is a found a common bond as lot of stuff!) well . In spite of all that stuff, the summer ccaadult 3 ccasupersib meet caleb berry Caleb excels in school Boston is where his sister and his passion is math . gets her medical care, the Last year, he won a trophy family is used to going for the highest scoring there, but never to just freshman in the Mountain have fun . The four-hour Valley Conference meet trip to Boston always for the High School Math meant anxiety and stress . team . But going there for the Also, Caleb took high retreat meant fun! He even school Algebra I when he got to tour MIT since it was was only in the 6th grade! just walking distance from He skipped the 8th grade the hotel where he and and started high school his family stayed for the at age 13 . He is now in retreat . honors pre-calculus and Caleb is very close to aleb is a 14 year- with his sister, Camryn . absolutely loves it! He’ll his sister, Camryn . He cold sophomore at She played a sassy orphan often remark, “Math is enjoys showing her how Livermore Falls High School named Duffy . Caleb the reason I get up in the to use technology . They in Livermore Falls, Maine . played four different morning .” make video projects, He is quite humble and roles: a dogcatcher, a Caleb also loves acting out scenes from the not one to brag about his lawyer, a judge and Henry photography, computers news or made-up funny accomplishments . However, Morgenthau, Jr . (a member and technology, and he is commercials . Caleb states, he is very outgoing and of FDR’s cabinet) . Other the family resource for any “Camryn has been through personable . He enjoys extracurricular activities computer-related question . a lot and has met each many things and is involved include the student senate He hopes to attend MIT challenge with bravery . She in several extracurricular and the Envirothon team . for a degree in Aerospace has kept a positive attitude activities . He plays soccer Music is a very important Engineering . through all of it . She is also in the fall and runs track in part of Caleb’s life . He Caleb volunteers at the most generous person I the spring . His track events started at a young age, Rumford Hospital, where know .” include the 800 and 1,600 playing piano before his mom works as a meter run, the long jump grade school . He plays cardiac and pulmonary and the triple jump . the drums (the “quints”) rehabilitation nurse . He is Over the winter, he in the marching band, employed at his dad’s store, participates in “One xylophone and bells in the Mt . Blue Agway, as a clerk . Acts,” which is a theater concert band, and piano He attends youth group competition . He gets to in the jazz band . He also and Sunday school at his hang out with kids that plays the drums for the church . love theater and have worship team at Emmanuel Last summer, Caleb and fun . In December, Caleb Assembly of God Church . his family attended their was in the musical Annie first CCA retreat . Since 4 Kevin Monaghan from a rick’s raffle neighboring suite stopped in at the CCA office to draw This inaugural raffle the winning ticket for us. brought in $2,330 and, in accordance with Rick’s grandparents’ wishes, Randy, Julia, Luke and I funds from the raffle thank you all as well. It will be used for patient means so much to us that financial assistance . so many people love Rick We are extremely grateful and honor his memory. We to Ann & Doug Burgin and We would like to take remember his sweet smile, to Rick’s family for making this opportunity to thank his heart-warming laugh, this gift of Rick’s spirit to all CA supporters, Ann all of you who were able his beautiful blue eye, his CCA kids and their families cand Doug Burgin, to participate this year. It tight hugs and soft kisses, in his memory . His life have established a raffle in means more to us than we his outgoing personality, truly did make an impact memory of their beloved are fully able to express his zest for life and most and now, because of their grandson, Rick Dornier . since we began Rick’s of all… the love he shared selflessness and caring for Rick died from meningitis Raffle in hopes of easing with us and many others. others’ kids, his memory will on Christmas Eve 2009 our grief by helping other We remember all the happy make a difference for other at the age of 3 and a half CCA children and by giving times we shared with Rick, children like him . years . They honor Rick’s another child a happy as the grief and pain of And, to all the participants memory while helping surprise on Rick’s birthday. missing him still breaks our who helped make this effort other CCA kids . Rick’s Raffle will become hearts. a success, thank YOU! Since Thomas the Train an annual event with the ~Jessica Dornier was one of Rick’s favorites, raffle of a Thomas the Train the Burgins plan to donate toy each year on his a “Thomas” toy each birthday – April 25. year for an annual “Rick’s Rick loved Thomas Raffle .” the Train and he This year’s table included loved other children a 100-piece track and so it seems fitting to accessory set and two honor his memory by engines, a talking Thomas raising money to help children’s and a talking Percy, to go children by raffling a craniofacial with the set . CCA held Thomas toy. We hope the drawing on Rick’s you will consider association birthday, April 25th . The participating in Rick’s lucky winners were Dr. and 2012 Raffle next · Free pick-up Mrs. John B. Burgin of spring. · Tax receipt given Crowley, Louisiana, who · Easy & convenient supported the effort by Thanks again, buying 45 chances to win, Ann and Doug Burgin for some pretty good odds! They plan to surprise their four-year old grandson who, they say, will cherish 877.570.4222 the prize in Rick’s memory . 5 calendar of events date event contact Jun 23-26 21st Annual Cher’s [email protected] Family Retreat 214.570.9099 Galt House (galthouse.com) 800.535.3643 Louisville, KY Jul 10-15, 2011 Camp About Face 317.274.2489 Bradford Woods craniofacial acceptance Martinsville, IN Aug 27 Jaci’s Country Dance Bash [email protected] month Morrisville, PA Sep 2011 7th Annual Craniofacial [email protected] his year marks the seventh year CCA will observe Acceptance Month 214.570.9099 September as Craniofacial Acceptance Month across 800.535.3643 t the nation . CCA families, friends, volunteers and related Sep 2011 Lily’s 2nd Annual Craniofacial [email protected] Awareness Benefit Dinner support groups will be widening the circle of acceptance Lindon, UT for individuals with facial differences . The goal is to create Sep 2011 Trevor’s Trip to Triumph [email protected] Poker Run for CCA awareness of craniofacial differences and to get people to Morganville, NJ see that “beyond the face is a heart .” Sep 3 Raegan’s Rally/Walk for CCA Ashley Daugherty As part of the 7th Annual Craniofacial Acceptance Deerasic Park, 3 PM [email protected] Cambridge, OH Month, CCA will hold its 4th Annual National Picnic Sep 10 4th Annual Craniofacial [email protected] Day on September 10th (or other date in September of Acceptance National Picnic Day 214.570.9099 Sandy Lake Amusement Park 800.535.3643 your choice) . CCA families across the nation will hold Carrollton, TX picnics giving them a chance to get together with other Sep 17 5th Annual Seth’s Stride [email protected] families in their areas, while promoting awareness in the for CCA Stacy Swihart Canton, OH www.firstgiving.com/sethsstride communities . Sep 24 7th Annual Friends of Jeremy [email protected] It’s not too late; if you would like to hold a picnic contact Golf Tournament www.friendsofjeremy.com Corning Golf Club CCA Program Director Annie Reeves . CCA will invite all of Corning, NY the families in your area and help you organize your picnic . Sep 30 Links of Love [email protected] In addition to raising awareness and acceptance, CCA is Golf Tournament for CCA Woodbridge Golf Club raising funds to support programs and services available Wylie, TX to all individuals with facial differences and their families . Oct 8 Texas Moms’ 5K for CCA [email protected] Lee College, 200 Lee Drive Contact CCA Development Director, Jill Patterson for Baytown, TX materials about this year’s fundraising events . Oct 9 4th Annual Chocolate Festival [email protected] We hope you will join this important effort! Please call for CCA Aventura Mall 800 .535 .3643 . Aventura, FL Oct 24 6th Annual Wendelyn’s Course [email protected] of Dreams Golf Tournament Pleasant Valley Country Club Little Rock, AR Jun 27-Jul1 22nd Annual Cher’s [email protected] financial assistance Family Retreat 214.570.9099 Tempe, AZ 800.535.3643 o you travel to receive quality medical care? If you do, and need financial help, CCA has a 2012 annual cher’s d ­financial assistance program that will help with food, family retreat announced travel and/or lodging . Call CCA for an application at June 27-July 1 in Tempe, AZ 800.535.3643 . All we ask is that you apply at least For more information, please contact Annie Reeves, four to six weeks prior to your next appointment . [email protected] We hope to see you there! 6 free 2012 hotel stay!

ny family raising a$5,000 or more for Children’s Craniofacial Association through December 31st of each year will be awarded one free hotel room for their stay at the following henry’s march year’s retreat (i .e . 2011 By TJ and Rachel Johnson, Turlock, CA fundraising counts toward the 2012 retreat) . ur fourth annual pizza for a year for each with a time of 19:31 and This invitation is extended oHenry’s March was a of our two Pizza Chase Mellissa Minjarez with a to all CCA families, great success! The runner winners, Mike Boyer and time of 20:50 . Amazing! including those already holding annual events response was incredible . By Trent Hulbert! Both were Because of the weather, throughout the year and it race day we had more than first to catch the pizza we decided to turn the includes any type of effort . 400 runners preregistered, delivery person in the one- Mascot Race into a Mascot All families who wish to the most that we have mile race . Dance-Off, which was participate are asked to ever had . We had some Even in the light rain the really entertaining . The Kids sign a confirmation form in order that we may track incredible race sponsors event was a lot of fun, and Dash was so adorable and your success and budget including, Foster Farms, the participants seemed exciting; it’s such a blessing for your room . Please Turlock Pediatric Medical to revel in cool conditions . to see the joy on the kids’ contact the CCA office at Group, Gallo Winery, and We heard over and over faces as they were going 214 .570 .9099, toll-free at the Modesto Bee . again that the rain made for the gold . Overall, the 800 .353 .3643 or email Jill Our very special sponsor, the race more fun! Our event was very rewarding at [email protected] for more information . Little Caesars, helped with one-mile winners were for all involved . We raised donating pizzas, including Mike Boyer with a time of more than $21,000 for Try creating your own firstgiving page 5:44 and Destiny CCA! We would like to A free, CCA-customized Silva with a give a big thank you to “firstgiving” site is available time of 6:30! all of our volunteers and for anyone who wants Our 5K winners committee members . to help raise funds for were Shawn CCA . Log onto firstgiving. Darmousseh com/ccakids and tell your personal story about why you support CCA or post an event you’re having . Then, email your link to everyone you know and ask them to support your cause! This is an especially easy way to “ask” for donations if you’re uncomfortable with the face-to-face approach . 7 chairman, from page 1 Retreat during one of our First, let me share a little many clinic visits . bit of my story: During my While we were intrigued 7th month of pregnancy, with the prospect of almost 28 years ago, Bob spending a few days with and I were told that we other families who also had would be giving birth to a a family member with a child with hydrocephalus unique face, life happened who probably would and we forgot about the not live, and if the baby information . The patient lived, there would be an liaison phoned us with a unknown quality of life . gentle nudge a couple of There was no such thing weeks before the event . She as the Internet or search explained that she thought engines . We felt very alone . we would get a lot out of I was working as a the Family Retreat and that professional medical we had much to offer CCA . Little did we know when representative for a Photo by Angie Eve Photography • Louisville, KY we made arrangements pharmaceutical company, The Guzzos of Evansville, IN, at Little Fire, Big Heart in Louisville, KY and Bob worked in to attend that first retreat Standing, left to right: Paula, Bob and Aaron Guzzo marketing and sales support where it would take us in Seated: Scott Guzzo for a nutritional company . the future . We will attend So, we spent countless hours our 13th Family Retreat My family — Scott, Bob caring attitude is the anchor in medical libraries and on in Louisville in June, have and Aaron — and many of the organization’s way of the phone both before and written a few newsletter other families look forward providing services to the tens after Scott’s birth . When articles, referred countless to those four days in June of thousands of contacts Scott was born, we were families to CCA, spent when we all watch with awe each year . told that he had multiple many hours talking with as CCA kids and siblings, CCA is proud to be the congenital anomalies . other families in similar including our own Scott premiere organization When he was almost 11, situations, served on and Aaron, grow into CCA addressing a broad range he was finally diagnosed focus groups, helped with adults . of medical, financial, with the oh-so-rare Crane- fundraisers and, well… here It takes a lot of resources emotional, psychosocial and Heise syndrome . By then, I am writing this article . and effort to maintain and educational issues related we were involved with To paraphrase an old grow our CCA family . While to craniofacial conditions . CCA and the Internet was saying, “You get out of the retreat is our marquee CCA services and resources available (sort of; it was still CCA what you put into event, CCA, through its are intended to help pretty new) . My family’s CCA ”. So yes, we’ve wonderful staff, is there smooth bumps and prepare journey with CCA began gotten a lot: support, serving families all year long . families to make the best 17 years ago when my empowerment, hope and CCA is blessed to have possible informed decisions son’s craniofacial team at lifelong friends . Gee, that one of the most dedicated for the family member Riley Children’s Hospital in sounds much like the CCA staffs you’ll ever find in with facial differences . Indianapolis was the local mission: “Empowering and a nonprofit organization. In this effort, CCA has host to the Annual Cher’s giving hope to individuals I’ve often said that one can’t published 14 booklets in Family Retreat . The patient and families affected by legislate or buy a person’s A Guide to Understanding liaison for the team gave my facial differences ”. It’s very attitude . Thank goodness series for parents . husband, Bob, and me the safe to say that many of us we don’t have to because These booklets explain information about the Family measure our involvement Char, Annie, Jill and Jana craniofacial conditions/ with CCA on the Annual “get it ”. Their insightful, syndromes, their treatment 8 Cher’s Family Retreat . and craniofacial-related differences, their siblings during American Idol last the dollar and maximize issues . They are written in and their friends . Monthly March . The impact was services to families? How do easy-to-understand text activities encourage the significant . Within just a few we remain financially solvent in a question-and-answer expression of thoughts and days, CCA received many while depending heavily format . feelings while at the same phone calls, numerous visits on donations during a time Another successful effort time providing the sense of to the website and even when there is not as much to inform families has belonging that comes from some donations . This speaks to be given?” These are been the Craniofacial being in a club . to the direct impact the tough questions . Our CCA Symposium . This is held in The Care pages offer an media has on the awareness family is blessed through conjunction with the Annual easy way for families to let of our cause . the generosity of monetary Family Retreat and gives everyone know how a child CCA is a national donations from individuals, families more information on is progressing while they are organization based in Dallas, corporations, foundations, craniofacial-related topics . in the hospital, thus allowing serving families throughout as well as in-kind giving . The third annual Craniofacial more time for parents to the United States . The We are truly grateful to all Symposium will be at the focus on the child’s recovery . Honorary Medical Board who have provided dollars, Galt House in Louisville on Moving forward, it is is comprised of physicians materials, ideas, or time June 23, 2011 . the board’s desire to bring from across the country, to Children’s Craniofacial Since I earlier mentioned greater awareness to and the Medical Advisory Association so that we may feeling so alone when craniofacial-related issues Committee is made up of go about our good work . Scott was born, it’s been in an effort to foster the members of the craniofacial Without any one of these, rewarding to watch CCA acceptance of children and teams . We hope to further we would be unable to do utilize the Internet to provide adults with facial differences . utilize the talents of regional what we do . various opportunities for September 2011 will be the volunteers, which would The board of directors is social networking for 7th Annual Craniofacial give CCA a greater presence blessed to be a part of the CCA kids and adults . After Acceptance Month . Our at regional and local levels . CCA family . I’m blessed to last year’s Family Retreat in theme, “Beyond the Face This, in turn, will help us be the chair . We get far Boston, CCA’s Facebook is a Heart,” paints a very reach even more families . more out of it than we could page, Children’s Craniofacial profound picture of the All of these efforts take ever give . Thanks to all of (CCA Kids), was busy with importance of looking past talent, time and money . We you for the opportunity to much “friending ”. the exterior into the real at CCA, just like any other serve . Together, we make CCA’s Yahoo Group is a person . The truth is, though, family, have been forced to a difference, one beautiful good place on the Internet the general public still puts take a careful look at how face/one beautiful family at for families to support the emphasis on the outside we provide services while a time . each other 24/7 . The CCA package . Fox TV Network very our nation is still in a state of Kids Klub is for kids of all graciously ran a CCA public economic unrest . We’ve had Paula Guzzo ages . It’s for kids with facial service announcement to ask, “How can we stretch CCA Board Chairman

9 perspective, from page 1 and said she was special and Katie before we found she then she looked at me and had Pfeiffer’s syndrome . fine and suggested she said “I’m not special, I am Tom would not let me hide wear a hat until it could be just ordinary ”. My heart sank out with Katie as an infant . corrected . because she did understand He encouraged me to keep It was not the truth, but that Katie had a craniofacial my same routine because we it did make us feel better . syndrome . We told her she also had Anne to care for . Thinking he was an angel was special too—because Many people had never seen sent from God, it was she is . Being a sibling of a a child like Katie and stared unfortunate that we placed child with medical issues can at us . I made a point to our trust in a doctor not another monobloc to repair be very difficult . We have hug and kiss her when I felt experienced enough to the falling back of the had to spend a lot of time in people where staring and deal with the severity of our facial bones, and a another doctors’ offices, in hospitals I learned that they would daughter’s syndrome . forehead contouring along and at therapy centers . Anne then respond to her with Katie only had two sutures with expansion of her has been very strong and love as well . that were not fused in her upper pallet . supportive; she stays calm I also learned the best skull . After she lost her Katie wears glasses to in tense situations and is response to children asking forehead, at age 1 and a half correct vision issues and a very helpful in emergency why her eyes were like to a failed monobloc and bone-conduction hearing situations . that was, “So she can bone infection, we went to aide because her ear canals Two important events see .” Most children were Dr . Salyer in Dallas, Texas . are fused . She has been helped shape our approach only curious . To the few Currently, her doctor is Dr . hospitalized several times for to raising Katie and Anne . that were beyond curious I Barcelo in Dallas, Texas . strider because of a stove The first was a lovely nurse would simply say she was Katie is now a standout pipe, caliginous trachea . who told my husband “…a little girl and that God 13-year-old and proof She attended physical, “Special babies are born makes us all different but that good things come in occupational and feeding to special parents.” The loves us the same .” small packages . She has therapy through the early second, was when I saw the I have been blessed to see an amazing voice that can intervention program until nurses whispering, knowing the best in my older child as make people cry when age 3 . She also attended something was wrong she deals with her sibling, she sings . She is an artist, an auditory verbal therapy with the baby, and feeling and I have become a better actor, poet and writer with center until age 5, where she like it was my fault, my person by being Anne’s and a wonderful spirit that can learned to listen and speak husband came in and said, Katie’s mother . I worry for change the world . with hearing aids . She was “Something is wrong with Katie every day . Yet, I have On her journey so far, recently asked to speak as the baby; she looks a little seen her change people’s Katie has experienced an alumnus at an annual different . We are not sure perceptions with her spirited the following surgeries: event, where she sang an what we are facing, but it personality . I have never felt an occipital craniotomy, impromptu theme song for does not matter because we such sorrow as my fears for a monobloc surgery with the organization . have each other, and she has the life she would face, and osteogenic distracter, an Katie is blessed to have an me, you and Anne ”. I have never felt such joy at osteomyelitis infection of older sister, Anne, who is These were magic words the accomplishments she her forehead, eight weeks very supportive and loving . because instead of focusing has achieved . I learned that of IV antibiotics, loss of her Anne never asked if anything on myself, I became poor vision and hearing is a forehead, removal of the was wrong with Katie . She focused on Katie and her good thing when everyone occipital bone, replacement just accepted her as her development . We did all the stares at you as you walk with demineralized bone sister . I remember we told things we had done with her past them in a crowded and a rebuilt forehead Anne that Katie was special . sister, and all the things we public area . However, once with the occipital bones, a When Anne was saying her had planned out to do with people get to know Katie, VP shunt, a Chiari repair, prayers, she prayed for Katie 10 they rally around her to Last year she was LaFou in people the opportunity to think she is dying . Never protect her . Beauty and the Beast . be kind . Whereas those with say “I’m sorry” because she When Katie attended I also learned there were issues on the inside have to will think it is my fault and pre-school, she had to wear three types of responses sometimes face them alone . it will cause her conflict a helmet on the playground . that children had to Katie . Additionally, some people because she looks to me Other children in the class The first would not notice may strive their whole life to for comfort . Instead say, asked their parents if they until they had been playing be noticed and remembered . “I wish you did not have could have a helmet like awhile . Then they would We want Katie to try to use to go through this,” and Katie’s . Katie felt very special stop and stare at her at her uniqueness as a strength . give her a mirror to see the in her one-of-a-kind helmet . her curiously, maybe even People who meet Katie do implanted devices . Allow At our local elementary ask a question, then shrug not forget her . her to participate in her school, teachers and and then keep playing as We started coming to care . This was excellent if everything were normal the CCA family retreats in advice and really helped with the world . The second 2009 because Katie asked because we thought we were the fewest, the ones me if there were other kids were protecting her by that were overly curious to that looked like her . I was keeping her in the dark . the point of being rude . I afraid to come to the family As our family goes forward have only encountered three retreat because I did not from here, we look to of these . Lastly were the know what it would be like . the future with hope and children that would know I was so surprised at the promise, knowing that that something was not wonderful sharing of every family faces issues, right and wanted to mother positive spirits and the sometimes wishing it was and care for Katie . joining of families with as easy as when she was We taught her to respond common issues. 3 . I think the biggest issue to simple questions about It has been a blessing to facing Katie in the future, herself . When she was in our family to make these aside from more surgery and kindergarten she told me connections with others whether it will be covered by she thought she should tell and a relief to be with other insurance, is discrimination kids about herself . I agreed, families with similar issues . and exclusion . I know she and I was so nervous about It is a blessing to meet will face both with courage students loved Katie and what she would say . She people with Pfeiffer’s that and personality . And, I know stood up for her . She was stood up and said, “I’m are older than my daughter that we will be there to help on the morning show, won different because I wear a because it brings me hope; her along her way . third place in the fourth- hearing aid and glasses,” and it is wonderful to grade speech competition and then she sat down . meet younger children and won awards for her We taught the girls they with Pfeiffer’s because writing and art . cannot control others, they it makes us feel good to This year we have chosen can only control themselves; share hope with others . to home school Katie, and if other people have During her last because we feel that a problem with Katie, it is monobloc surgery when one-on-one education is their problem, not Katie’s . she was 3, Katie had a benefit to a person with We have tried to teach them emotional difficulties . I hearing and vision hurdles . that all people have issues, was able to speak with She will be appearing mostly on the inside where a therapist who gave in our local community no one can see . me some great advice . theater as Herald in the Unfortunately, Katie’s are She said to treat her production of Cinderella . on the outside for everyone with the same level of to see . But sometimes it gives discipline, or she will 11 testimonial ur son Jaydon was born on January 28, 2008, in San donors in the spotlight oAngelo, Texas, with a unilateral cleft lip and cleft palate . “During a routine ultrasound at 30 weeks, we learned about his issue we shine the spotlight on Bobbie and Bob his cleft and immediately sought out the best surgeon for tSchini, grandparents of Sammi Wayne . him . Unfortunately, the town we live in has limited medical “When Samantha Lynne Wayne was born, none specialists, and we knew we would have to seek help of us had any idea what a large part Children’s elsewhere . Craniofacial Association would play in our lives. After thorough research, we located an excellent surgeon in When Sammi was 15 months old she was diagnosed Dallas . We knew Jaydon had to have the best care we could with Crouzon syndrome. Her team of doctors is at Children’s Hospital of Philadelphia (CHOP) and possibly provide for him, but we were faced with the heavy Diana Sweeney, Patient Liaison there, introduced our financial burden of medical expenses and the costs associated daughter and son-in-law and us to CCA and urged with traveling . the family to attend the annual family retreats. At three months, Jaydon had his first surgery to insert Friendships made there have endured ever since! tubes and repair his cleft lip . We traveled to Dallas numerous Bobbie and I contribute what we can to Children’s times before and after his surgery . It was a very stressful time Craniofacial Association because of their wonderful for us because we were so concerned about our son’s well- work. CCA’s encouragement has helped all of us work through the challenges of Sammi’s condition. being, but we also had financial worries . Soon after his first We owe an immeasurable debt to the doctors at procedure, we learned from a friend about CCA and their CHOP and the fine folks at CCA.” financial assistance program . We contacted Annie Reeves Thanks to the Schinis, regular CCA donors and our spring and requested help for the costs associated with travel for 2011 Donors in the Spotlight! Jaydon’s care . CCA has been wonderful from the beginning . The application process for financial assistance was simple during GO PAPERLESS and view the newsletter online a not-so-simple time, and the staff was very helpful . From the in FULL COLOR! Email [email protected] and let first day we contacted Annie for help she has been incredibly her know you want to save the environment and save kind to our family . CCA is an amazing organization that has money for CCA . tremendously helped and blessed our family!

—Ashley, Justin, Haley and Jaydon Meyer Click on “Donate” at ccakids.org 12 ” cca valentine good news

basket upport Children’s Craniofacial Association without shaving to open your wallet! Our new partnership with he winner of our L’oreal Opinions4Good (Op4G) provides you the opportunity tValentine Gift Basket was to earn cash for CCA and yourself by participating in Joe Broderick of Alpharetta, research activities such as surveys and focus groups! Georgia, who had us deliver Don’t wait another minute! We need your help today! it to his good friend, Tina How to Register: Seamon, also of Alpharetta . • Visit op4g.com/membership/join/ccakids1234 Congratulations both and thanks • Click “Become a Member” to all who participated! The gift • It will say “Children’s Craniofacial Association invited basket raffle brought in$402 you”; click “continue .” for CCA . • Complete the short demographic questionnaire (your cca mugshots information will always be kept private and secure by Op4G) … For anyone who thinks Send us your you can’t do something mugshots! … Chances are, you can. I just graduated with my Alan, Stacy Associate of Science and Kathryn McAllister “degree in Biotechnology. of St. Paul Oh yeah, I have Apert’s Park, MN syndrome, Asperger’s syndrome, and I graduated with a 3.2 GPA! —Casey Deakins, Gainesville, FL save the date ”Links of Love more fundraising news Friday, September 30, 2011 Woodbridge Golf Club, Wylie, TX n April, IL CLUB ITALIANO of Westchester Community iCollege in Valhalla, NY, held a bake sale benefitting the n Friday, September 30, 2011, CCA will hold its cause nearest and dearest to member Lindsay Bordonaro’s ofourth annual benefit golf tournament this year at heart: CCA . Lindsay would like to give a shout out to all her Woodbridge Golf Club in Wylie, Texas . retreat “peeps” and hopes they keep on rockin’! This year the tournament, “Links of Love,” will include (Those who attended the Boston retreat may recall the many more CCA kids featured on each tee, along with impressive performance by Lindsay’s big brother, now- Jylian, our regular CCA kid representative . The event is a grown-up original “CCA Kid” Zach Bordonaro and his scramble that will begin with lunch at registration, and will ballroom partner, Vicki Gilbert.) end with dinner, awards and auctions . The club sent a check to Children’s Craniofacial Go to www.linksofloveforcca.com for registration and Association for $350! Thank you Lindsay and Friends!!! sponsorship details . 13 dramatically increasing the quality of life with prosthetic devices obert R. Barron specializes in facial prosthetic devices . “Mr. Barron is an extraordinary artist and master rHis purpose in life is to make a difference in the lives of of the highly specialized craft of personal disguise. others . He believes his ability to change people’s lives is a Mr. Barron’s competency and artistic skills were gift from God . “ He is going thru me to improve a person’s unmatched. He was the impetus of the advanced quality of life ”. disguise system and the ideal by which all other A prosthetic device restores a malformed or absent part disguise officers were judged in the area of advanced of the human body through artificial means . Disfiguring disguise fabrication. His creativity and initiative diseases put people in hiding, and Mr . Barron strives to were extremely instrumental in the research and bring them out of hiding . His priority is always the patient’s development of what the silicone mask is today.” expectation . The patient’s main objective is to be able to interact with the public and to no longer be embarrassed After retiring from the CIA in 1993, he started his second by the stares and unwanted attention produced by their career by creating his own prosthetic business and named differences . Each prosthetic device is unique and demands it Custom Prosthetic Designs, Inc. He has combined his inspiration and creativity . They serve as great psychological talents to help people in need of facial prosthetics whose benefits in restoring the faith and quality of life . conditions result from trauma, disease and congenital On average, the process requires two to three office visits defects. He also specializes in digital prosthesis resulting and is completed within a two- to three-month period . from amputation. The procedure is painless and is conducted in a relaxed Auricular (Ear) Prosthesis office environment . Prosthetic devices are made of a soft, An ear prosthesis artificially restores the ear which has durable silicone designed for prolonged use under normal been lost because of radical cancer surgery, amputation, conditions . The cost of a prosthetic varies according to the burns and/or congenital defects . The delicate structures complexity of the product . While the patient is responsible remaining after surgery are covered by thin, highly sensitive for payment, medical insurance often helps cover cost skin . This soft tissue, being very fragile, must be kept because prosthetic devices are considered medical free from irritation and debris from the environment . The necessities in various ways . protective position of the helix helps to cleanse the air of Mr . Barron has been working with prosthetics for three small particles, which might injure and damage the delicate decades . His cumulative experience includes some 24 auricular structure . years of altering identities as Senior Disguise Specialist The function of the prosthetic ear shape is to direct with The Central Intelligence Agency . Blending this unique sound waves into the auditory canal and to maintain background with extensive education and research in the a proper environment for the inner ear membranes . It private sector, his design, development and creation of normally improves hearing by about 20 percent . The state-of-the-art prosthetic devices consistently challenge prosthetic ear will retain eyeglasses and retain a hearing aid the status quo . if needed . It also serves as a great psychological benefit in His career has centered on sophisticated laboratory the rehabilitation of the patient . procedures together with improvement and Ear Reconstructive Surgery implementation of reconstructive design . Working closely Ear Reconstructive Surgery does not give you a normal, with physicians and their patients while focusing on the realistic-looking ear . The final composition will fall short patient’s hopes and expectations, his goal is to provide an of giving you a pleasing, convincing and reasonable exquisitely personalized, realistic and functional prosthesis . appearance of a normal ear . It is advised that you carefully The basis for his reputation for creative reality can clearly look at your options before making a final decision . be seen in his finished products . Orbital with Ocular Prostheses (Eye) Mr. Barron was awarded The Career Intelligence Medal An orbital with ocular prostheses artificially restores in recognition of his exceptional achievements with The the eye, eyelids and the adjacent hard and soft tissues Central Intelligence Agency for more than 24 years. The which have been lost as a result of radical cancer surgery . last 15 years were devoted to the disguise branch. In July They protect the exposed orbital, nasal and sinus tissues 1993, former CIA Director, James Woolsey, stated: from the elements and restores normal speech patterns 14 BEFORE AFTER when the nasal and sinus areas are involved . The orbital prosthesis device maintains normal humidity and moisture for the maxillary sinus, oral and nasal cavities . It also houses the ocular piece (artificial eye) and restores the normal appearance of the face . It also serves as a great psychological benefit in the rehabilitation of the patient . Nasal Prosthesis (Nose) A nose prosthesis artificially restores all or part of the nose which has been lost because of radical cancer surgery, traumatic amputation and serious burns . The delicate remaining structures and mucous membranes lining the nasal passages must be kept moist and free from irritation . The prosthesis duplicates the function of the nose by directing air flow to the nasopharynx . It also helps to maintain proper humidity for the sinuses and respiratory mucosa . Normal speech resonance is also restored . It provides support for eyeglasses . It also serves as a great psychological benefit in the rehabilitation of the patient . Digital Prosthesis (Finger) A custom-designed finger prosthesis replaces a portion or all of an absent finger . If the patient has movement in the remaining portion of the finger, the prosthesis will restore the function of the finger . This type of prosthesis is attached by suction or adhesive . The prosthesis will protect the sensitive tip of the finger from trauma and extreme temperatures . It will allow the patient to type or use a computer keyboard correctly and without discomfort . It also serves as a great psychological benefit in the rehabilitation of the patient . ______

For further information visit his website at prosthesis.com or email the office [email protected]

Top to bottom: Freddie Seitz, Poland, OH; Jeremy Dale, Corning, NY; Meaghan Palmer, Littleton, MA

cca sweatshirt blanket

igh quality, jersey blend material is screen printed with heco-friendly, high color ink . These blankets are great for snuggling up on the couch, taking on road trips, and for showing your CCA pride at chilly football games . The blankets make great gifts and shipping is free First Run is the Classic Sweatshirt Gray with a Red CCA Logo and sells for $35 Order via our secure checkout for you and for all of your family members . Go to www.promotes.me/cca to order! 15 donors, january 1 – march 31, 2011* Melanie Benedict, in memory of Rick Dornier Marie Rourke, in memory of Rick Dornier CCA Corporate/Foundation Gifts from Michael Bock Family, in memory of Rick J.C. Rogillio, in memory of Odella Arboneaux Individuals Dornier Nancy Rumore, in memory of Rick Dornier Partners Wendy Brinkmann, in memory of Rick Dornier Gladys Runnels, in memory of Rick Dornier $5,000-$10,000 CCA Supporters Joe Broderick, in memory of Rick Dornier Phyllis Saucier, in memory of Rick Dornier Foster Poultry Farms for Henry’s March (up to $100) Karla Browning, in memory of Rick Dornier Pat & Jeff Sharpe, in memory of Rick Dornier Stemmons Foundation Helene Burgin, in memory of Rick Dornier Kimberly Shepard, in honor of Juliana Wetmore Anonymous Torey’s Distraction Fund of The Dallas Dr. & Mrs. John B. Burgin, DDS, in memory of Charlene & John Smith, in memory of Rick Larry Carpenter Foundation Rick Dornier Dornier Robin Chapurtinov Larry Carpenter, in honor of Cher Rachel Smith, in memory of Rick Dornier Madeleine Cherry CCA Corporate/Foundation Charlotte Castille, in memory of Rick Dornier Tracey Smith, in memory of Rick Dornier George Dale, Sr. Timothy Cox, in memory of Rick Dornier Katherine Snyder, in memory of Odella Patrons Alan & Jennifer Farmer $10,000 or more Harvey & Venita Crowson, in honor of Megan Arboneaux Fred & Judi Freeman Cronin Kirk Stansbury, in memory of Rick Dornier Sarah Hall Lisa Daigle, in memory of Rick Dornier Jasmine Tangcay, in honor of Cher for Christmas Linda Hanes Tony Davis, DMD, in memory of Rick Dornier Lisa M. Thomas, in memory of Rick Dornier Fundraising Events Rosemary Hanrahan Chad & Shannon Dgerolamo, in memory of Anne Tibbals, in honor of Amy and Evan Beale Clayton & Kathy Huck & Other Efforts Rick Dornier Lori Timm-McNeese, in memory of Rick Dornier Holly M. Jenkins Diana Feuer, in honor of Lynn Keiner Neva Tomlinson, in memory Harry Surratt Roger & Carolyn Lamb Up to $1,000 Keith Flowers, in memory of Rick Dornier Llisa Uken, in honor of Sophia Weaver S.F. Luhrs Cash can / placed by Freeman Insurance, Dawn Garrity, in memory of Rick Dornier Marty & Mike Willson, in honor of Avery Lytle Deborah Mecklenburg Tucson, AZ Jodi Golden, in memory of Rick Dornier Rose Wilson, in memory of Rick Dornier Ron Micetic Chocolate Festival / Chef Rick Chiavari Susan & James Goudeau, in memory of Rick Susan Wilson, in honor of Josie Knight E. J. Morrissey Be Brody’s Angel / Brody Lucas’ Family Dornier Melissa Winter, in memory of Rick Dornier Robert Muller Fundraising Effort Mary Lib Burgin Guercio, in memory of Rick Thompson, Coe, Cousins & Irons, LLP, in Paul R. Pokladnik Friends of Freddie / Frederick Seitz Fundraising Dornier memory of Stephen John Krasusky Ann Ranfranz Effort T.J. Jr. & Mary Lib Burgin Guercio, in memory XCD Management Services Management & Barry Scurran Lewis Plez IV CCA Wristband Sales of Rick Dornier & Mrs. Odella Arboneaux Staff, in memory of Katherina Seitz Llisa Uken Fundraising Effort /Tyeisha Jefferies Rosemary Hanrahan, in honor of Kathleen Dwight Vaughn Hanrahan Eva & Steven Willms $1,000-$5,000 Sheryl Harrison, in memory of Rick Dornier Corporate/ Rick’s Raffle / Raffle Ticket Sales / Established CCA Friends Gretchen Huckabay, in memory of Rick Foundation Gifts by Ann & Doug Burgin ($100 +) Dornier Wendelyn’s Course of Dreams, 2011 Alfred Harf, in honor of Chase Ingram CCA Corporate/Foundation Anonymous Hargrove Oil Company, LLC, in memory of $5,000 or more Jill Autiello Odella Arboneaux Friends Nick Wiese fundraising effort Paul & Mary-Jo Batchelor Hargrove Oil Company, LLC, in memory of up to $1,000 Cathryn & Scott Bauer Rick Dornier Bank of America (United Way Campaign $10,000 or more Erik Bauman IMCO Carbide Tool, Inc., in honor of Matthew employee giving) Mary & Donald Zimmerman Osburn Hargrove Oil Company, LLC $20,000 or more Daniel Ingram, in honor of Chase Ingram IBM Employee Services Center (employee Henry’s March for CCA / Johnson Family; CCA Extended Family Jennifer Jaffe, in honor of Jennifer & Adam giving) Rachel, TJ, Lauren, Henry ($500 +) Kellogg IMCO Carbide Tool, Inc. Jenny Jett, in honor of Elaine Gumbiner Northrup Grumman Employee Giving CCA Sponsor Mary Kenelly, in memory of Rick Dornier Pfizer (United Way Campaign employee giving) ($1,000 +) Kelly Kent, in memory of Rick Dornier Prudential Foundation (matched gift of Diana 2011 FAMILY FUNDRAISER Joan Kossek, in memory of Rick Dornier Critchlaw) Krishan K. Goel, MD, Inc. for Henry’s March GOAL THERMOMETER Karen Condino, for Basebowl, 2011 Paul Kyle, in memory of Rick Dornier Safeway, Inc. (purchases percentage incentives) John & Sheryl Paul George & Dana Lang, in memory of Rick Sarah Hall Productions Marty & Mike Willson Dornier Thompson, Coe, Cousins & Irons, LLP Mika Lawson, in memory of Rick Dornier Truist for Qwest (employee giving) 100% $154,000 CCA Benefactor Donna Leggett, in memory of Rick Dornier United Way of Southeastern Pennsylvania ($5,000 +) Veronica Logan, in memory of Rick Dornier United Way of Tarrent County (Bell Helicopter 90% Matthew Medici, in memory of Rick Dornier Employee Giving) Penny McKee, in memory of Rick Dornier United Way of Tucson & Southern Arizona 80% CCA Guardian Jean Merchant, in memory of Rick Dornier ($10,000 +) (donor-directed donations) Jennifer Miller, in memory of Odella XCD Management Services 70% Arboneaux Peter Mirehouse, in memory of Rick Dornier CCA Corporate/Foundation 60% Memorials / Cynthia Morris, in memory of Rick Dornier Sponsors In-Honor Gifts Robert Muller, in memory of Stephen John $1,000-$5,000 50% Krasusky Dr. & Mrs. Chester Amedia, in memory of Honda Financial Services Katherina Seitz Paula Naquin, in memory of Rick Dornier 40% Jeffrey Nicholson, in memory of Rick Dornier KLS Martin L.P. (Dallas holiday party Anonymous, in memory of Rick Dornier sponsorship) Anonymous, in honor of Josie Knight & Flynn Jill & Greg Patterson, in memory of Rick 30% Dornier T.A. Robinson Asphalt Paving (Nick Wiese Family fundraising effort) Glenda Ballard, in memory of Rick Dornier Joan Poston, in memory of Odella Arboneaux 20% Annie & Tommy Reeves, in memory of Rick The Rosewood Foundation Carol Barbeck, in memory of Rick Dornier Vivo Brothers Dornier 10%

Listed are monetary donations of $100 or more through 1st quarter, 2011. We are extremely grateful for these and all other fees, purchases, fundraisers and in-kind donations not individually recorded here. (Note: For space consideration, 2011 donations under $100, CCA “Supporters” will only be published in our year-end list. Cumulative $100+ donations and all In honor or In Memory dedications will continue to be published in each quarterly issue.) We do our best to accurately recognize donors. If you notice an error, please let us know. Extraordinary Fundraiser Sponsorships of $1,000 or more are also listed. CFC (Combined Federal Campaign, federal-employee giving) 16 donors, january 1 – december 31, 2010* Mike Evans Kevin McNulty Chris Tosches Scott Fligel Gifts from Renee Fauria Ellen McPadden Karen Trailov John & Carrie Follett Individuals Elizabeth & Lawrence Forte Frank McPadden Tegan Treadaway Burke Forrest Robert Foster Donald Melcolm Michael & Mary Tuerck Roland & Dottie Freeman CCA Supporters Rick Fowler Barbara Mellendorf Tammy VanNess Ken & Susan Godwin (up to $100) Apollonia & Lawrence Frein Carol Melton Peter & Patricia Vantil Lori Gordon Mary & Harry Froelich Charles & Susan Michlik Leona Vitolo Reynold Gravina Beth & Jeffrey Abel Mike Fuhrman Dolores Middleton Susie Vizvary Yandy & Roanna Green Ronald Ady William & Gail Fuller, MD Ronald Miller Christine Wagner Martin Grupp Mike & Susan Akin Charles & Irene Giblin Dana Mollohan Louis & Francelle Ward Mary Lib Guercio Carolyn Alloway Nellagene & Leigh Gilbert Jane Monell Karen Waring Kathy Guy Anonymous Frank & Maryann Gilson David Monett James & Ivy Weigold Kevin Haugh & Ellen Kolkhorst Ilda Arcari Harold Glaser Leanne Monroe Barbara Wiedenman J. James & Arleen Heirty Monica Arcement Max & Pamela Goldstein James & MaryJo Montalbano Joanie Wiinblad Shanna & Steve Hillerich Dana Archambeau Doug Goode Mary Ellen & Gerard Morgan Jeffrey Wild Andrea Horsch Melissa Asevedo Lecerrell Greene Heather Mosely Pamela Wilkerson John & Theresa Hospodka Beth Atkins Barbara Greenfield Jacob & Erica Mossholder Rebecca Williams Clayton & Kathy Huck Daniel & Joanne August Maurice Gutzler John Moulton Eva & Steven Willms Darlene & William Hunter Michael Awad Amy & Jonathan Hadaway Sheri Muha J.B. & Cynthia Wills Charles Ingrum Paul Baker Linda Harte Mina Mulvey Frank Wilson Deborah Jett Donnie & Bobby Balentine Jennifer & Michael Hastings Fredrick Muncy Stephanie & Jerry Wootrick Lori & Kenneth Jones Mary Ann & Robert Beck Kimberly Haycraft Julie Nau Chris & Nancy Wyant Andrew Kern Agnes Beckett Tom Head Janell Nelson Melanie & Andrew Yarbrough Melanie Koscick Linda & Robert Bellis Antoinette Heier Jeffrey Nicholson Jean Zabady Esther Krieger Amy Berry Andrea Herbert Jessica Nielsen Joseph & Betrice Zabloudil Adam Lamar Tammy & Andrew Berry Donald & Marlene Hibbard Ronald Nierman Gina Zanussi Roger & Carolyn Lamb Kathleen Best Christie Hickman Dallin & Marleen Oaks Cindy Zontek Mary Lazin Constance Betts Cornelius A. Hofman Jecksan & Yolanda Ojeda Madeline Zuckerbrow Jess Leyva Christian Billman Jeffrey & Jamie Hopkins R. Regis & Loretta Opferman Dan Zukowski Ellen Lomonoco Donna Blair Mr. & Mrs. Walter Humann Trudia Pauley Cynthia Zumstein Duane Long Edward & Patricia Blair Stephanie Huston Deeanne & Steven Paulson Jonathan Lovett Charles William Bluman Frederic & Debra Irving Cynthia Perkins John Lukowski Lisa & Michael Bock Wilma Jabbal Deborah Pfautz Jane Martin Darin & Sarah Bolthouse CCA Friends William & Kathleen Jahn Thomas & Carol Porter ($100 +) Kimberly Martin Randy & Carol Bonnecaze Jennifer Jones Candace Powell Gerald Massimei Mildred Bonneau Anonymous Mary Jones Elizabeth Prince Lisa McBride David, Yvonne & Alida Boon Jill Autiello Jessetta & David Joswick William & Sandra Proctor David Glenn McCarter Mike Bosko Paul & Mary-Jo Batchelor Sharleen & Ray Juneau Joseph Propri Wanda McDonald Lewis Boyton Cathryn & Scott Bauer John Kapp Caryl Rabedeaux Virginia McFarland Thomas & Sharon Brockhaus Erik Bauman Barbara Kelly Richard & Freida Ragona Penny McKee Joe Brooks Mark & Mary Baumgartner Brook & Charles Kelly Tammy Raines Ron Micetic Sharon & Thomas Brown Eleanor & Charles Berglund Linda & Rudy Kessman Donna Rea Anne Milneck John Buchanan Norma Biegelsen Michael & Kathryn Kevany Kimberly Reynolds Laurie Monnier Richard Buchholz & Keiko Teranishi Jerry & Shirley Birnez Nanine Kharey Richard & Arlene Richroath Tina Moore Richard & Mary Buchholz Margaret Bordonaro May Klein Randall Riddick James Morris Heather Bull Julia & Robert Boyce Kendall & Susan Klinge J. & B.L. Riese Alison Morrissey Nancy Burson Phyllis & Jerame Breeden Thomas & Barbara Kochendorfer Laura Roark Jon & Anna Mossholder Sarah Byal Mike & MaryAnn Budish Michael Kogut Leslie Robidoux Elizabeth Moulton Michael Cahill Beverly & Jim Butera James & Sandra Kovach Michael Rodell James Muslow, Jr. Gary & Pamela Carter Laurinda Calongne Beverly Lacaillade Patricia & John Rogers Beverly Ogden Fred & Sharon Cast Giana Carpenter Cheryl Landry Marie Rourke Brad & Ann Orcutt Jeffrey Castor Larry Carpenter Chuck & Sue Leader Mark & Laurel Sanborn Steven L. Page Eunice Caswell Judith A. Clonan Harriet Loub & Arthur Levine MD Tricia Sanchez Scott Paynter Barb Chernetz Declan Cook & Paul Tremblay Jess Levya Fayeann Sandstrum William Peck Douglas & Julia Chitwood George Dale, Sr. Emma Lively Thomas Sauer Elizabeth Mitchell & Marvin Pestcoe Shiela Circello Randy Dale John & Mary Livingston Lizzie Sensenig Freda Phifer Max Cobb Felicia Damato Margaret & Wayne Loebsack Mary & Edward Shanahan Ray Poindexter Elvera Colon Yvonne & Milton Davis Joseph Logan Kelli & Samuel Sharpe Paul Pokladnik Arlene Coudare Mark & Lania Deer Duane Long Demona Shipman Rishad Rajabali Robyn & Richard Cowart Louis C. Difabio II John & Roberta Long Ann & Anthony Silano Annie & Tommy Reeves Joe Allen Crabtree Louis Dominguez Tye & Michele Long Dennis Smith Chris Riener Harvey & Venita Crowson Lynn Yetra & Ambrose Donovan Jessica Looney Marilyn Smith Andrea Richard, D.O. Penny Cutler-Serra Joan Dornier Mr. & Mrs. Lawson Lott, Jr. Ronald & Deborah Smith Jere Robertson Dadami Family Trust Rene Dornier Linda Stark Litehiser Suzanne Smith Reid Rosenmayer Ruth & Gerald Dankelson Brigid Duffield Kenneth Luby Nathalie Sousa Robert Rutemiller Martha Dartt Sue Dunn Mary Lugo L. James M. Spizzirri Robert & Roberta Schini, Jr. Joseph Davino Walter & Mary Elff Doris & Norbert Lustine Michael Steele Paula & Angela Schmidt John & Linda Davis Peg Elfers Marcia Mackay Chase Stehr Warren & Donald Schmidt Lisa & Richard Deeming Jess & Alice Evans Joan Maddock Erin Stephens Joanne Schraeder Gary & Grace Deily Regina Farrell Ronald Magee Nancy Stephens David Sharpe Camilla Diaz-Perez Jarret Fino Kristin Manning Ryan & Melanie Stephens Jerry & Susan Sims Suzanne Dolby-Dawson Frances Fisher Debbie Maples Charles Stottlar Charlene Smith Melisse Dornier Anthony & Patricia Marino Erik Swanson Denise Dorsey Marty Mashe Michael & Gina Swihart James & Betty Doyle Listed are monetary donations through 4th quarter, 2010. We are extremely Jeffrey Matthews Beth Szela English Family Trust grateful for these and all other fees, purchases, fundraisers and in-kind donations not Douglas Maxine Beatrice & Eric Tamichi Sarah Erb John & Cecilia Mazzocca Christine & Ronald Telford individually recorded here. Lindy Eriksen Margaret McBride Truman & Mary Terrell III Patricia Ernst We do our best to accurately recognize donors. If you notice an error, please let us know. Darryl & Kathleen McCauley Gail & Arthur Thomson Jennifer Esau Tricia McElveen Aneta Tomdio Extraordinary Fundraiser Sponsorships of $1,000 or more are also listed. Ramona Eutsler CFC (Combined Federal Campaign, federal-employee giving) 17 Cheryl Smith Bill Mecklenburg & Christine Condino Martha Dartt, “in memory of little Rick J.K.Hertz, in honor of Morgan Ronald Miller, in memory of Rick Stephen Smith Mecklenburg Dornier with love” Mecklenburg Dornier Chris Staggs Jean Pond Bequest Joseph Davino, in honor of Trevor Larys Christie Hickman, in memorie of Jackie Jane Monell, in memory of Suzie Chase Stehr Casey Deakins, to commemorate her Lynn Farmer Murray Jane Stickney birthday Andrea Horsch, in memory of John David Monett, in memory of Rick Brianne Strony Memorials / Lisa & Richard Deeming, in honor of Haycraft Dornier Bradley Thompson In-Honor Gifts Brody Lucas Kathy Hubbard, in honor of Char Laurie Monnier, in honor of Jeremy Kevin & Jennifer Trapani Amy Abernathy, in honor of Char’s Henry & Marlene Deily, in honor of Smith’s birthday Dale Irene Tunanidas birthday Jeremy Dale and in memory of Frederic & Debra Irving, in honor of Jan Leanne Monroe, in memory of Rick Gary Uttke Mario Adamo, in honor of Scott Donald Constantine Petredis’ 50th Birthday Dornier James VanDorn Guzzo’s birthday David Diaz and friends, in honor of Deborah Jett, in memory of Rosaleen Tina Moore, in memory of Rick Dornier Janice & Leonard Vega Mario Adamo, in honor of Erica Juliana Wetmore Egan Alison Morrissey, in honor of Jill Leona Vitolo Mossholder’s birthday Joan Dornier, in memory of Rick Dornier Jennifer Jones, in memory of Rick Patterson’s birthday Jonathan Wagner Mario Adamo, in honor of Jill Melisse Dornier, in memory of Rick Dornier Alison Morrissey, in honor of Char Mrs. W.W.Watkins Patterson’s birthday Dornier Mary Jones, in honor of the Gossett Smith’s birthday Andrew & Amy Weinraub Mario Adamo, in honor of Jana Peace’s Rene Dornier, in memory of Rick family Erica Mossholder, in honor of Char Jon Welles birthday Dornier Sharleen & Ray Juneau, in memory of Smith’s birthday Larry Whitler Mario Adamo, in honor of Annie Rene Dornier, in memory of Rick Rick Dornier Jacob & Erica Mossholder, in honor of Nanette Whitson Reeves’ birthday Dornier, from the Dornier’s in Klein, Barbara Kelly, in memory of Rick The Left Hand Soap Company C.M & Leila Wiley Mario Adamo, in honor of Jaci TX Dornier Jacob & Erica Mossholder, in honor of Steven & Mary Wilhelm Samhammer’s birthday Maxine Douglas, in memory of Betsy Andrew Kern, in memory of Rick Jamie & Brian Evans Robin Williamson Mario Adamo, in honor of Rose Seitz’ Moore Dornier Jacob & Erica Mossholder, in honor of Nancy & David Winters birthday James & Betty Doyle, in memory of Nanine Kharey, in memory of Rick Cory & Andrea White Myrna & Ronald Zaccagnino Mario Adamo, in honor of Becky Shelly Doyle Dornier Jacob & Erica Mossholder, in honor of J Mary & Donald Zimmerman White’s birthday Sue Dunn, in memory of Rick Dornier Jackie Kidd, in honor of Annie Reeves’ & Thy Mossholder Mike & Susan Akin, in honor of Walter & Mary Elff, in honor of Trevor birthday Jacob & Erica Mossholder, in honor of CCA Extended Family Larys May Klein, in memory of Rick Dornier Kristi M. Wilcox ($500 +) Wendelyn Osborne Jennifer Allen, in honor of Sam Greer English Family Trust, in memory of Jo Koelz, in memory of Rick Dornier Jacob & Erica Mossholder, in honor of Anonymous Anonymous, in honor of the Clay family Rosaleen Egan Adam Lamar, on behalf of the Ben Burrows & Kristie Jo Goerndt Erik Baumann Anonymous, in memory of Rick Dornier Regina Farrell, in memory of Rick employees of Delray Lighting, in Jacob & Erica Mossholder, in honor of Robert Bentley Anonymous, in honor of John Gorman Dornier memory of Jerry Feig Mary Summerlin Martha Brown Anonymous, in memory of Betsy Moore Renee Fauria, in memory of Betsy Adam Lamar, in memory of his Jacob & Erica Mossholder, in honor of Diana Critchlaw Anonymous, in honor of Bob & Julie Moore “beloved father, Roy Nickola Lamar Shannon Donovan Sondra P. Hicks Sanchez Jeffrey Fearon, MD, in honor of his & blessed Patti Welch who went to the Jacob & Erica Mossholder, in honor of Eric Logis Anonymous, in honor of Logan Traeger colleagues Lord at the age of 9” Sally Marquez Martin & Jennifer Grupp Monica Arcement, in memory of Rick Scott Fligel, in honor of Sophia Weaver Cheryl Landry, in memory of Rick Jacob & Erica Mossholder in honor of Bob & Paula Guzzo Dornier Burke Forrest, in memory of Betsy Dornier Megan Bates Elizabeth W. Jones Dana Archambeau, in memory of Rick Moore Mary Lazin, in memory of Betsy Moore John Moulton, in memory of Carol Paul & Fran Leatherwood Dornier Dolores & Patrick Fox, in honor of the Chuck & Sue Leader, in memory of Fredrick Muncy, in memory of Rick Ann & Don Lucas Melissa Asevedo, in memory of Rick wedding of Erica Chambers & Bob Betsy Moore Dornier Mary Lytle Dornier Willson Joseph Logan, in memory of Rick James Muslow, Jr., in honor of Sam Doug & Janis Macut Jill Autiello, in honor of Megan Cronin Fox Rothschild LLP in memory of co- Dornier Greer Jim O’Sullivan Erin Basden, in honor of John Gorman worker, Herb Stevens Ellen Lomonoco, on behalf of K.C. & Jeffrey Nicholson, in memory of Rick Katita Palamar Agnes Beckett, in honor of Casey Susan & Ken Godwin, in honor of John Haycraft Dornier Dan & Denise Paulson Deakins’ Birthday Natalie Wardlaw Duane Long, in honor of Casey Deakins Eldora & Howard Niedermiller, in Jana & Hugh Peace Constance Betts, in memory of Rick Golden Girls, LLC, in honor of Seth Mr. & Mrs. Lawson Lott, Jr., in memory memory of Bill & Marie Lipke Paul R. Pokladnik Dornier Swihart by Michelle Collaner of Rick Dornier Beverly Ogden, in memory of Rick Randolph Schaefer Judith Black, in honor of Max’s Doug Goode, in memory of Rick Mary Lazin, in memory of Betsy Moore Dornier Courtney Vincent recovery Dornier Ann & Don Lucas, to honor their 45th Stephan Orban, Joel Evans, Bob West, Charles Bluman, in honor of Seth Roberta Graham, in honor of Sara wedding anniversary Jake & Joe Henson, in honor of Avery CCA Sponsor Swihart Stephens Ann Lucas, in honor of Don’s birthday Lytle ($1,000 +) Lisa & Michael Bock, in memory of Rick Mary Lib Guercio, in memory of Rick Ann & Don Lucas, in honor of Brody’s Carol Lee O’Shea, in memory of Betsy Dornier birthday Moore Mario Adamo Dornier Randy & Carol Bonnecaze, in memory Bob & Paula Guzzo, in memory of Gail Jon Lukowski, in honor of Sam Greer Katita Palamar, in honor of Bond Anonymous Rook Marcia Mackay, in memory of Rick Palamar Walter Bettinger of Rick Dornier Julia & Robert Boyce, in memory of Bob & Paula Guzzo, in memory of Joan Dornier Greg & Jill Patterson, in honor of Casey William Bikoff for the Chocolate Veazey Ronald Magee, in memory of Rick Deakins’ birthday Festival Rick Dornier Janna Brewer, in honor of Char Smith’s Linda Harte, in memory of Rosaleen Dornier Greg & Jill Patterson, in honor of Erica William Burns for Friends of Jeremy Kane Egan Kristen Manning, in memory of Rick Mossholder’s birthday Michael Carr birthday Richard Buchholz & Keiko Teranishi, in Kimberly Haycraft, on behalf of the Dornier Greg & Jill Patterson, in honor of Jana George & Kristine Dale Greer family Kimberly Martin, in memory of Ellery Peace’s birthday Joseph Davies for Basebowl memory of Rick Dornier Richard & Mary Buchholz, in memory Jim & Arleen Heirty, in memory of Walker Greg & Jill Patterson, in honor of Annie Denise Duby for Friends of Jeremy Jordan Adamowicz Jeffrey Matthews, in memory of Betsy Reeves’ birthday Jeffrey Fearon, MD of Rick Dornier Heather Bull, in memory of Rick Dornier Jim & Arleen Heirty, in memory of Vicki Moore Greg & Jill Patterson, in honor of Jaci Fred and Judi Freeman Andrews Douglas Maxine, in memory of Betsy Samhammer’s birthday J.K. Hertz Forrest Burke, in memory of Betsy Moore Jim & Arleen Heirty, in memory of Dan Moore Greg & Jill Patterson, in honor of Char Jeffrey Loria for the Chocolate Festival Berry John & Cecilia Mazzocca, in honor of Smith’s birthday Kelly Marsh for Friends of Jeremy Laurinda Calongne, in memory of Rick Dornier Jim & Arleen Heirty, in memory of Jaci Samhammer Deeanne & Steven Paulson, in honor of Greg & Jill Patterson Robert Boehmke Lisa McBride, in memory of Betsy Emily Paulson Char & John Smith Larry Carpenter, in honor of Cher’s birthday Jim & Arleen Heirty, in memory of Moore Scott Paynter, in memory of Rick Thomas Soviero George Bouzarelos Darryl & Kathleen McCauley, in Dornier Kyle Sullivan for Jylian’s Links of Love Melissa Caruso, in honor of Christian Jeffrey Castor, in honor of Jeremy Dale Jim & Arleen Heirty, in memory of memory of Dorothy Nester Jana Peace, in honor of her own Joslyn Varona for the Chocolate Festival Barbara Cody Penny McKee, in memory of Rick birthday Lori Wilcox for Friends of Jeremy Eunice Caswell, in honor of Trevor Larys Sheila Circello, in memory of Rick Jim & Arleen Heirty, in memory of Les Dornier Jana Peace, in honor of Annie Reeves’ Martha & Michael Willson Kopecky Ellen McPadden, in honor of Jeremy birthday Kenneth Wilson Dornier Gregory & Lucille Clark, in memory of Jim & Arleen Heirty, in memory of Dale Jana Peace, in honor of Char Smith’s CCA Benefactor Betsy Florita Moore David Marosz Christine Medici, in memory of Rick birthday ($5,000 +) Beverly Cook, in memory of Betsy Jim & Arleen Heirty, in memory of Dolly Dornier Cynthia Perkins, in memory of Rick Moore Peterson Brandy Meierhofer, in honor of John Dornier Greg Luetkemeyer Dadami Family Trust, in memory of Jim & Arleen Heirty, in memory of Jon Gorman Ray Poindexter, in loving memory of E.C.Styberg Rosaleen Egan Potel Dolores Middleton, in memory of Rick Ann Poindexter Felicia Damato, in honor of Trevor Larys Jim & Arleen Heirty, in memory of Ruth Dornier Thomas & Carol Porter, in honor of CCA Guardian & Lorraine Anne Milneck, in memory of Rick granddaughter, Sidney Rose Ford ($10,000 +) Ruth & Jerry Dankelson, in memory of Donna Hirt Cynthia Herr, in memory of Betsy Dornier Elizabeth Prince, in memory of Dan Moore Prince 18 William & Sandra Proctor, in memory of Leona Vitolo, in honor of Zach Morning Star Foundation CCA Corporate/ Rock n’Bowl for CCA with Kayla Jackie Farmer Bordonaro PASCO (Personal Assistance Services of Smith / Michelle & Kayla Smith, CCA Caryl Rabedeaux, in memory of Christine Wagner, in honor of Raegan’s Colorado) Foundation Partners Volunteers Rosaleen Egan Rally Permission, Inc. $5,000-$10,000 Smiling Through The Mask Unevent / Tammy Raines, in memory of Rick Jonathan Wagner, in memory of Rick Pfizer (United Way Campaign Employee Corning Incorporated for Friends of Wendelyn Osborne, CCA Volunteer Dornier Dornier Giving) Jeremy Annie Reeves, in honor of Char Smith’s Louis & Francelle Ward, in honor of Prudential Foundation (Employee/ Max & Victoria Dreyfus Foundation $5,000 or more birthday Brisa Dugan Matching Gifts of Diana Critchlaw) Fox Rothschild LLP, Attorneys At Law, Annual Lily’s Dinner for CCA / Michael Rice, in honor of JoAnn Nanette Whitson, in memory of Safeway, Inc.(purchases percentage 15 Offices Nationwide, Memorial Firstgiving Page /Tosha Walker, CCA Kopshinsky Rosaleen Brigid Kane Egan incentives) Donations Volunteer Randall Riddick, in memory of Rick Barbara Wiedenman, in memory of Tektronix Foundation Fresh Start Surgical Gifts (newsletter Annual Seth’s Stride for CCA / Stacy Dornier Jennifer Walker Truist (Employee Giving Management sponsorship) Swihart, CCA Volunteer Laura Roark, in memory of Rick Dornier Jeffrey Wild, in memory of Rick Dornier Fund) Inshallah Trust Raegan’s Rally / Ashley Daugherty, CCA Jere Robertson, in honor of Jane Steven & Mary Wilhelm, in memory of United Way of California,Capital E.C.Styberg Foundation, Inc. Volunteer Monell’s Birthday Rick Dornier Region (Donor-Directed Donations) United Way of the Greater Triangle Annual Wendelyn’s Course of Dreams Leslie Robidoux, in memory of Rick Pamela Wilkerson, in memory of Betsy United Way, Cedar Valley (Donor- (Directed Donations) Golf Tournament / Wendelyn Dornier Moore Directed Donations) Osborne, CCA Volunteer Marie Rourke, in memory of Rick J.B. & Cynthia Wills, in honor of Reed United Way of Central Maryland CCA Corporate/ Dornier Wills (Donor-Directed Donations) Foundation Patrons $10,000 or more Robert Rutemiller, in honor of Elia’s Martha & Michael Willson, in honor of United Way of Greater Milwaukee $10,000 or more Chocolate Festival for CCA Kids / Chef birthday Avery Lytle (Donor-Directed Donations) Rick Chiavari, CCA Volunteer Robert Rutemiller, in honor of wife, Frank Wilson, in memory of Rick United Way of Long Island (Donor- Grant(s) from the Jorge Posada Jylian’s Links of Love Golf Tournament Maura’s birthday Dornier Directed Donations) Foundation for CCA / CCA & Bilbow Family, John, Tricia Sanchez, in memory of Rick David & Nancy Winters, in honor of United Way Mile High (Donor-Directed Kendall, Jylian, Mikey, Ivy, Patrick Dornier Peter Dankelson Donations) Warren & Donald Schmidt, in honor of James & Monica Wixtead, in memory United Way New York City (Donor- Fundraising $20,000 or more Jeremy Dale of Betsy Moore Directed Donations) Events & Other Henry’s March for CCA / Johnson Joanne Schraeder, in honor of Rosaleen Jean Zabady, in honor of Jeremy Dale United Way of Southeaster PA (Donor- Family; Rachel, TJ, Lauren, Henry Egan Cynthia Zumstein, in memory of Rick Directed Donations) Efforts David Sharpe, in memory of Richard Dornier United Way of Southern Tier (Donor- $30,000 or more ‘Rick’ Dornier Directed Donations) Up to $1,000 Annual Friends of Jeremy Golf Patricia Sharpe, in memory of Rick United Way of Tucson & Southern Alida Boon Fundraising Effort Tournament / Dale Family: Kris, Dornier Corporate/ Arizona (Donor-Directed Donations) Cash Can / Kim Rogers, CCA Volunteer George, Jeremy, Tommy, Cody Demona Shipman, in honor of Luke Foundation Gifts United Way of Wyoming Valley (Donor- Connor Carlisle Birthday Donation / in Basebowl / Jorge Posada Foundation & Bowen Directed Donations) lieu of gifts CCA Donors and Attendees Amanda Smith, in honor of Char CCA Corporate/ Wellpoint Foundation Funds Janis Cazare’s Firstgiving Page Little Fire, Big Heart Dinner Auction for Smith’s birthday Management (Employee Giving) Friends of Freddie / Frederick Seitz, CCA / Taryn Skees, CCA Volunteer Charlene Smith, in honor of Casey Foundation Friends Wells Fargo (Employee Giving) CCA Volunteer Deakins’ birthday up to $1,000 Girl Scout Troop 38 Cookie Sale Charlene Smith, in honor of Kathy AT&T (United Way Employee Giving) CCA Corporate/ Proceeds / Julia Dornier & friends Hubbard’s birthday America’s Charities (Employee Giving Foundation Sponsors Jean Day & Bake Sale for CCA / BASICS Charlene Smith, in honor of Jill Management Fund) $1,000-$5,000 Community Service Club, Cambridge, 2010 FAMILY FUNDRAISER Patterson’s birthday American Express (Employee Giving) OH GOAL THERMOMETER Charlene Smith, in honor of Jana American Express Charitable Fund Andrews Distributing for Jylian’s Links Justin Graham’s Fundraising / Peace’s birthday (Matched gifts of Janell Nelson) of Love Firstgiving Page & Bracelet Sales / Charlene Smith, in honor of Annie Andrews Distributing A grant from the Brotman Foundation Graham Family $185,000 Reeves’ birthday Bank of America (United Way Charity Motors (CARS-Charitable Auto Joshua Helton Bracelet Sales 100% Charlene Smith, in honor of Jaci Campaign Employee Giving) ResourceS, auto donation proceeds) Honda Financial Services Fundraising Samhammer’s birthday Bristol-Myers Squibb Foundation The Chatlos Foundation Ink / Cell Recycle for CCA / CCA 90% Gracen Smith, in honor of CCA kids for (Matched gift of Bob & Paula Guzzo) Children’s Surgical Associates for Families & Friends her own birthday Children’s Medical Charities (CFC) Friends of Jeremy Jewelry Sale / Peggy McDannel 80% Suzanne Smith, in memory of Rick Coach (Matched gift of Penelope Clear Lake 8 Ball Jaci’s Jewelry Sales / Jaci Samhammer, Dornier Gray-Mele) Corning Beagle Club for Friends of CCA Volunteer Tracey Smith, in honor of Char Smith’s Community Foundation of N. Colorado Jeremy Kappa Theta Collection / Judith Kemler, 70% birthday by Brinkman Partners Fund Fidelity Charitable Gift Fund for Friends CCA Volunteer Nathalie Sousa, in memory of Rick Creative Growth Counseling & of Jeremy Larys Family Fundraising / Kim 60% Dornier Coaching Florence Foundation Trzanowski, CCA Volunteer Brianne Strony, in lieu of wedding Delray Lighting Employees by Adam Foster Poultry Farms for Henry’s March Miles for Kids Poker Run / Frank Leach, 50% favors & in honor of Jeremy Dale Lamar Fuzzy’s Taco Holdings, LLC for Jylian’s Lewis Boykin, CCA Volunteers William & Nancy Suwalski, in memory Direct Strategies for Jylian’s Links of Links of Love PSA Denim Day for CCA / Yandy Green 40% of Jerry Mandel Love Great Coasters International, Inc. for & friends Erik Swanson, in memory of Rick Law Offices of Brigid Duffield Little Fire, Big Heart Rocky River High School Homecoming Dornier Emerson Climate Technologies Guy Carpenter & Co., LLC for Basebowl Fundraiser / Emerald Demor & RRHS 30% June Sweeney, in memory of Antoine (recommended by Stephen Orban) Honda Financial Services Student Council Aparicio Express Income Tax Italian Club of Dallas Tamale Sale for CCA /Booz Allen 20% Beatrice & Eric Tamichi, in memory of Fine Design, LLC Michael Kline Foundation for Chocolate Hamilton CRT & Aldine Church Ladies Rosaleen Egan Five Star Quality Care, Inc. Festival Group, Houston area 10% Richard Thomas, in honor of Char recommended by Robert Sharrett Metal Parts & Equipment Company Conner Woods Fundraising Effort Smith’s birthday Funding Factory (Ink/cell recycle Partner Reinsurance Company for Arthur & Gail Thomson, in memory of rebates) Basebowl $1,000-$5,000 Rick Dornier Golden Girls, LLC The Redwoods Group (Matched Gift of Annual Family Retreat “Chance Raffle” Neva Tomlinson, in memory of Jack Heart of Illinois United Way, Inc. Bill Mecklenburg) proceeds / CCA Retreat Attendee Greeson (Donor-Directed Donations) Simmons Rockwell for Friends of Families Karen Trailov, in memory of Betsy JackTheDonkey.com by David Katz Jeremy Be Brody’s Angel / Friends & Family of Moore Jay C. Service, Inc. Triangle Foundation (Donor Advised Brody Lucas Tegan Treadaway, in memory of Rick K&L Trucking Fund) Clear Lake 8 Ball / Raffle & Donation Dornier Lee Law Offices United Way of Greater Triangle Collection for CCA in honor of Michael & Mary Tuerck, in memory of H&R Block (purchases incentives) (directed donation) Natalie Wardlaw Rick Dornier Honda Financial Services for Jylian’s A grant from the Robert Tucker Hayes Jammin’ Jeans Week in honor of Luke Tammy VanNess, in honor of Jill Links of Love Foundation Bowen for CCA / Judith Kemler, CCA Patterson’s birthday Metal Parts & Equipment Co. SunTrust Bank Volunteer Janice & Leonard Vega, in memory of Mission Fish (charity sales on ebay) Vivo Brothers, Inc. Nitro for Charity / Terry Stewart, CCA Jackie Farmer Morgan Stanley Cybergrants, Inc. Volunteer Lynda Vince, in memory of Rick Dornier (Employee Giving) 19 NONPROFIT ORG children’s craniofacial association U.S. POSTAGE PAID 13140 Coit Road, Suite 517 • Dallas, TX 75240 RICHARDSON, TX PERMIT NO. 128

Honorary Chairperson: Cher Board of Directors: Paula Guzzo, Chair, Evansville, IN George Dale, Corning, NY Tony Davis, DMD, Tuscaloosa, AL Dede Dankelson, Highland, MI Tate Gorman, Dallas, TX Donna Gossett, Cullman, AL Janis Macut, Harrisburg, PA Bill Mecklenburg, Mission Viejo, CA Erica Mossholder, Tuscaloosa, AL Robin Williamson, Carrollton, TX Stephen Wright, San Francisco, CA CCA Network Editor: Kelly Liszt CCA Network Design and Production: Robin Williamson, Williamson Creative Services, Inc. Executive Director: Charlene Smith Program Director: Annie Reeves Development Director: Jill Patterson Administrative Coordinator: Jana Peace

cheers voice 214.570.9099 for volunteers! fax 214.570.8811 3 toll-free 800.535.3643 url CCAkids.org CA is so fortunate to have cLou Anderson as one of our volunteers . Over the years, Lou The views and opinions expressed has made quilts, blankets, pillows in this newsletter are not necessarily and much more for our families . those of CCA . Her latest way of helping families If you no longer wish to receive this ® (Above) Ashley Bock of is by sending Build-A-Bears to newsletter, please send an email to Houston, TX, snuggling us . These are given to our kids in up with her Build-A-Bear®, AReeves@ccakids com. or mail the label hospitals nationwide, and provide before surgery to the CCA office and ask that it be removed from the mailing list . much comfort to them during (Left) Lou Anderson of New If you know of someone who their stay . London, WI, CCA Volunteer would like to be placed on the Lou’s warm, giving spirit has ­mailing list please ­forward to us touched so many lives . She’s our their name and address . angel! Thank you for all you do for CCA and our families! 20