2014 Brain Aneurysm Foundation Annual Report
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CELEBRATING 20 YEARS The Brain Aneurysm Foundation is fortunate to have a Medical Boards and Staff Advisory Board composed of neurologists, neurosurgeons, Medical Advisory Board Executive Director - Founder Medical Advisory Board of Directors Neil A. Martin, MD and interventional neurologists Christopher S. Ogilvy, MD Bernard R. Bendok, MD Geffen School of Medicine at UCLA, from around the world working Beth Israel Deaconess Medical Center, Boston, MA Northwestern University, Chicago, IL Los Angeles, CA President Gavin W. Britz, MB BCh, MPH Thomas Masaryk, MD at many of the world’s most The Cleveland Clinic, Cleveland, OH Robert H. Rosenwasser, MD, FACS Duke University Medical Center, Durham, NC prestigious medical facilities. Thomas Jefferson University Hospital, Philadelphia, PA Aaron A. Cohen-Gadol, MD, MSc Eric Nussbaum, MD, FACS These doctors provide continued Methodist Hospital, Indiana University, Indianapolis, IN National Brain Aneurysm Center, Vice President St. Joseph’s Hospital, St. Paul, MN E. Sander Connolly Jr., MD, FACS expertise and support to the Robert D. Brown, MD Aman Patel, MD Mayo Clinic, Rochester, MN Columbia University Medical Center and foundation in a variety of ways New York-Presbyterian Hospital, New York, NY Massachusetts General Hospital, Boston, MA Regional Directors and we are grateful for the time Aaron S. Dumont, MD Christopher Putman, MD Northeast Tulane University School of Medicine, New Orleans, LA Inova Fairfax Hospital, Fall Church, VA David J. Chalif, MD, FACS contributed and the dedication Robert M. Friedlander, MD Andrew J. Ringer, MD North Shore University Hospital, Manhasset, NY of our medical experts. In 2014, UPMC, Pittsburgh, PA Mayfield Clinic for Brain & Spine, Carlos David, MD Cincinnati, OH David M. Greer, MD, MA, FCCM, FAHA we continued to strengthen Lahey Clinic, Burlington, MA Yale University School of Medicine, New Haven, CT Joshua Seinfeld, MD Southeast University of Colorado Hospital, Aurora, CO our visibility through the Murat Günel, MD, FACS Daniel Barrow, MD Yale University Medical School, New Haven, CT Adnan H. Siddiqui, MD, PhD engagement of our Medical The Emory Clinic, Atlanta, GA University at Buffalo Neurosurgery, Buffalo, NY Brian L. Hoh, MD, FACS, FAHA, FAANS Advisory Board partnering Jacques J. Morcos, MD, FRCS (Eng), FRCS(Ed) University of Florida, McKnight Brain Institute, Robert J. Singer, MD with the foundation to impact University Of Miami Health System, Miami, FL Gainesville, FL Dartmouth-Hitchcock Medical Center, Lebanon, NH Midwest Avi Setton, MD awareness, education, support Sucheta A. Kamath, MA, BC-NCD, CCC Sepideh Amin-Hanjani, MD, FACS Cerebral Matters, Atlanta, GA North Shore University Hospital, Manhasset, NY University of Illinois at Chicago, Chicago, IL and research locally, nationally Robert Kooken, PhD Gary K. Steinberg, MD, PhD Paul J. Camarata, MD, FACS Neuropsychological Services, New Zealand Stanford University School of Medicine, Stanford, CA and internationally. University of Kansas Medical Center, Kansas City, KS Michael Lawton, MD Rafael Jesus Tamargo, MD The Brain Aneurysm Foundation West UCSF Medical Center, San Francisco, CA The Johns Hopkins Hospital, Baltimore, MD Bob S. Carter, MD, PhD Stephen Lewis, MD, FRACS John A. Wilson, MD is grateful for the service of UCSD Medical Center, San Diego, CA Perth, Australia Wake Forest Baptist Health, Winston-Salem, NC David Newell, MD the Board Members who give R. Loch Macdonald, MD, PhD Gregory J. Zipfel, MD Seattle Neuroscience Institute - St. Michael’s Hospital, University of Toronto, Toronto, ON Washington University, St. Louis, MO very generously of their time, Swedish Hospital, Seattle, WA Professor Mario Zuccarello, MD talent and individual perspective University of Cincinnati, Cincinnati, OH providing inspired direction to fulfill the mission of the Board of Directors / Staff Directory organization. Staff Directory Executive Committee Board Members Christine Buckley Deidre Buckley, NP Scott Campbell Executive Director President Rep. Paul Donato Debra Coulter Bill Demmer Frank Eeckman, MD, PhD Director of Information Technology and Administration Vice President Joy Fischer Kristin Barrett Paul Games Alec Karys Director of Marketing and Communications Treasurer Joe Rooney Karen Hendrix Kathy Redelman, RN, BSN, CNRN Elaine Schaller Accounting Secretary Tom Susco Martha DiLorenzo Joshua Truitt Executive Assistant Past President 2 The Brain Aneurysm Foundation A Word from The Executive Director A great big thank you to our many supporters in 2014! It is incredible that the foundation celebrated its 20th year in 2014. We have come so far. The journey however would not have been possible without all of your donations, your time given as volunteers, and your tireless awareness efforts. It is because ofYOU , the Brain Aneurysm Foundation continues to flourish and be a world leader in the fight against brain aneurysms. 2014 was the foundation’s strongest year financially! But equally as important we continued to add support groups, increase events and awareness initiatives, and award the most number of research grants and the highest level of funding at $230,000. Our monthly webinars remained a wonderful venue for physician presentations on relevant and cutting edge subjects to large audiences tuning in from various continents. Our third Lobby Day in May had a great crowd who brought the message of awareness, the importance of early detection, and the need for greater research funding to their Congressional representatives. I also had the distinct pleasure of meeting Vice President Biden to discuss these issues and ask for his support. With 20 years behind us, we have a solid base to continue to work together to make the lives of all those affected in some way by a brain aneurysm a better life; whether it be a survivor, a caregiver, or those that have lost someone. So again, a big thank you to YOU for supporting the mission of the Brain Aneurysm Foundation. YOU are with us every step of the way as we continue to Raise Awareness and End Fear. I look forward to the achievements WE will make together in 2015. Thank you again for your dedication to the Brain Aneurysm Foundation! Best wishes – Christine Buckley, Executive Director The Medical Advisory Board Executive Director I am thrilled to see the many successes of the Brain Aneurysm Foundation after 20 years! I am humbled to have been a part of this organization since its inception. Never in my wildest dreams did I imagine the tremendous worldwide outreach the BAF would have or the research funding levels to date. The foundation has distributed over $1,000,0000 in research funding since 2007. In 2014 the largest amount of funding to date, $230,000, was distributed to 11 different research projects selected through a very competitive process. This funding is crucial to help continued efforts to identify and treat unruptured aneurysms as well as aneurysmal subarachnoid hemorrhage and its associated complications, such as vasospasm and stroke. On behalf of the Medical Advisory Board, I congratulate you for all your efforts in 2014. I thank you for your continued support of the Brain Aneurysm Foundation and your commitment to pursuing research, education, and awareness and support for patients and families of this often devastating disease. I am hopeful 2015 will be as rewarding and that through our research, lives will be saved. Christopher S. Ogilvy, MD, Executive Director, Medical Advisory Board, The Brain Aneurysm Foundation 3 The Brain Aneurysm Foundation 2014 Financial Summary* Since 1994, when the Brain Aneurysm Foundation was established 2014 Revenues - $1,246,817 in Boston on August 19, 1994, as a public charity, our funding has 7% been targeted to providing critical awareness, education, support and Events $666,981 Donations by Individuals research funding to reduce the incidence of brain aneurysm ruptures. 40% 53% $494,276 Corporate Donations $85,560 The foundation has no endowment; every dollar we raise is deployed to advance research to reduce the incidence of brain aneurysm ruptures, to create wider awareness of brain aneurysms, to provide support 2014 Expenses - $1,081,220 for those affected by brain aneurysms, and to educate patients, their families, and the medical community about brain aneurysms. 8% % 12 27% Research The Brain Aneurysm Foundation keeps a sharp eye on expenses $295,808 Education/Support/Awareness $574,084 and strives to maintain a low overhead. Management and General $128,789 53% Fundraising * Audited financial results for 2014 not currently available. $82,539 4 The Brain Aneurysm Foundation Research Grants In 2014, the Brain Aneurysm Foundation awarded eleven grants totaling $230,000 supporting our commitment to invest in brain aneurysm research. The Brain Aneurysm Foundation awards research grants for basic scientific research Pina C. Sanelli, MD, MPH, FACR, North Shore - Long Island Jewish Health System. directed at early detection, improved treatment modalities, and technological Cynthia Lynn Sherwin Chair of Research, a $25,000 grant awarded for: Evaluating Microvascular Dysfunction as a Predictor of Delayed Cerebral Ischemia and Poor Outcomes after Aneurysmal advances that will ultimately improve outcomes for patients with brain aneurysms. The Subarachnoid Hemorrhage. foundation’s Research Grant Committee is headed by Robert Rosenwasser, MD, FACS, Waleed Brinjikji, MD, Mayo Clinic. Step for Hope Chair of Research, a $25,000 grant awarded for: Professor of Radiology and Neurosurgery at Thomas Jefferson