Health Data Governance Summit: Governing Data for Better Health World Health Organization

Health Data Governance Summit: Governing data for better health World Health Organization

Wednesday, 30 June 2021 14.00-17.00 CET

https://www.who.int/data/events/health-data-governance-summit/introduction

Summit agenda

14:00-14:15 Introduction, objectives and a warm welcome Welcome and Summit Objectives Shaida Badiee, Managing Director, Open Data Watch Opening remarks from WHO Zsuzsanna Jakab, WHO Deputy Director-General Keynote address: Health Data Governance John Pullinger, President, International Association for Official Statistics; Chair of UK Electoral Commission and Board member Global Partnership for Sustainable Data; Previous UK National Statistician, President of the Royal Statistical Society and Chair of the United Nations Statistical Commission, United Kingdom 14:15-14:25 Rationale for good data governance The urgent need to support countries Samira Asma, Assistant Director-General for Data, Analytics and Delivery for Impact, WHO 14:25-15:00 Panel 1: Health Data: A Global Public Good Biobanks and research collaborations: Data a global public good Sara Lewington, Professor of Epidemiology and Medical Statistics, Nuffield Department of Population Health, Oxford University

Sustainable Development Goals: UNSG Data Strategy Mila Romanoff, Data governance lead and privacy specialist, UN Global Pulse, Executive Office of the UN Secretary General

Better health outcomes through partnerships (PARIS21): Focus on Low and Middle-Income Setting Johannes Jütting, Executive Head at OECD, Partnership in Statistics for Development- PARIS21

Big data governance and conventions: Review of health SDGs in light of the pandemic Steve MacFeely, Chief Statistician at UNCTAD; Co-chair of the Committee of Chief Statisticians of the UN System

Prioritizing equity: data digital and public private collaboration Njide Ndili, Commissioner of the Lancet and Financial Times Global Commission (Governing Health Futures 2030); Country Director, PharmAccess, Nigeria

Data for better lives: focus on multisector data and digital partnerships Dean Mitchell Jolliffe, Lead Economist, World Bank. Development Data Group and Production team for the 2021 World Development Report 1

From the frontlines: data governance challenges (3 min video break) 15:05-15:40 Panel 2: Country Perspectives South Africa- Governing research: getting data into policy, programmes and budgets Glenda Gray, Non-Executive Director, Perinatal HIV Research Unit, Johannesburg; President and CEO South Africa Medical Research Council

Zambia- Data to influence public policy Mulenga Musepa, Interim Statistician General, Zambia Statistics Agency

Thailand- Trust as the foundation for good data governance: from data collection to delivering impact for populations Suwit Wibulpolprasert, Ministry of Health, Thailand; Vice Chair, International Health Policy Program Foundation; Vice Chair, Health Intervention and Technology Assessment Foundation, International Health Policy Program

Kenya- Law, ethics and rights-based approaches to data governance Allan Maleche, Executive Director Kenya Legal and Ethical Issues Network on HIV and AIDS; Former Board Member Developing Country NGOs and co-chair of the UNAIDS Humans Rights Reference Group

Malawi- Data driving better health outcomes Mercy Kanyuka, Commissioner of Statistics, Malawi National Statistical Office

India- Research data governance for equitable health outcomes Balram Bhargava, Director General, Indian Council of Medical Research Listening to the leaders on data governance (10 min video break) 15:50-16:35 Panel 3: Good practices in health data governance from the leading institutions A model for data governance and collaboration in research Archana Sharma, Senior Advisor for Relations with International Organizations and Principal Scientist, Physics Department, CERN

Open data policies: Lessons from COVID-19 Kostas Glinos, Head of Unit, Open Science, European Commission

Ethical and legal frameworks for data sharing and private sector engagement Anne Josephine Flanagan, Data Policy and Governance Lead, World Economic Forum

Data and digital interoperability: Legal and ethical frameworks Petra Wilson, Managing Director, Health Connect Partners and a member of the WHO Digital Health Technical Advisory Group

Data and research for improving and scaling Primary Health Care: Lessons from Costa Rica and its applications internationally Rocio Saenz, Former Minister of Health; Professor, Health Promotion, University of Costa Rica; Executive President of the Costa Rican Social Security Fund and Coordinator of the Social Council, Costa Rica

GISAID partnership model: Data storage and sharing Sebastian Maurer-Stroh, GISAID, Human Infectious Diseases Bioinformatics Institute at the Agency for Science, Technology and Research, Singapore

Good practices for Geospatial Information Systems (GIS) data storage and access Einar Bjorgo, Director, Satellite Analysis and Applied Research at United Nations Institute for Training and Research (UNITAR) 16:35-17:00 Future directions and closing statements WHO’s World Health Data Hub: The home of health data - opportunities for partnership (6 min video) Looking forward to the UN World Data Forum, October 2021 Georges-Simon Ulrich, Director of the Swiss Federal Office of Statistics; Host of UN World Data Forum, October 2021

Summarizing Summit’s main messages and outlining next steps Craig Burgess, Lead and Unit Head for Coordination, Governance and Partnerships, Data, Analytics and Delivery for Impact, WHO

Statement on Health Data Governance: A call for public comment and thank you Soumya Swaminathan, WHO’s Chief Scientist

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