S P R I N G 2 0 1 1 Messenger Exciting things are happening in !

Upcoming events Hospitalization and Parkinson’s Disease: MAR 29 -31: Celebrate Essential Tremor and Parkinson’s One Family’s Story Awareness month at West Bloomfield Over the years, one of the major concerns we at the APR 7: Living with Parkinson’s six Michigan Parkinson Foundation continue to hear is the week series begins – Bay City, MI fear people with Parkinson’s have regarding hospital- APR 11: Orientation to Parkinson’s ization. A traumatic experience in itself, the inability of MAY 6: Living with Parkinson’s those hospitalized to receive Parkinson medications as 6-week series begins – Fraser, MI prescribed makes this experience even more difficult. May 14: MPF Walk-a-thon and We have read articles in other newsletters about dif- 5K (certified) Run – South Lake ficulties encountered and even the need to avoid emer- Schools, St. Clair Shores gency rooms. Others, on a more positive note, focus on May 15: MPF Walk-a-thon and how to handle the hospital situation. 5K (certified) Run – Dr. Kelvin Chou Northville High School Dr. Kelvin Chou (University of Michigan), and his col- Associate Clinical leagues wrote an article which was featured in NPF’s Professor of Neurol- JUN 2: 26th Annual Grand Traverse ogy, Director, Deep Parkinson’s Summer Forum Parkinson’s Report as well as the Messenger, (Fall 2008, Brain Stimulation pp. 6-8), answering 5 frequent questions about hospi- Clinic and Co-Direc- talization. Since then, the Michigan Parkinson Founda- tor, Movement Disor- Table of Contents der Clinic, University tion’s Professional Advisory Board sanctioned a 4- page of Michigan Medical Hospitalization & form created by the Parkinson’s Resources of Oregon Center; and Mem- Parkinson’s...... 1, 4-5 and Oregon Health & Sciences University (“Critical In- ber, MPF Professional Advisory Board. New Board Members.....2-3 formation for Caring for the Parkinson’s Patient”) which we are encouraging people to complete prior to their hospitalization so they From the Chairman...... 6 can explain to hospital staff what their needs are. Yet, the problem continues. May Walkathon-Runs...... 6 The National Parkinson Foundation commissioned neurologists at their Centers of Excellence to review articles and studies relating to the effect of Parkinson Research...... 7 hospitalization on people with PD. Dr. Chou was part of this effort and the Respite Care...... 8-9 results were published in the journal, Parkinsonism and Related Disorders (Aminoff, et. al, Management of the hospitalized patient with Parkinson’s Educational Programs...... 9 disease: Current state of the field and need for guidelines. 2011, pp. 139-145). Fundraising A White Paper was written, focusing on the need for education of hospital for Parkinson’s...... 10-11 staff about the care of the person with PD while hospitalized. Support Group In this article, we report the success of one family in working with hospital News...... 12-15 staff to care for the hospitalized person with PD. As the story unfolds, Dr. Chou comments on each aspect, from preparation for the emergency room to what happens during the hospitalization. It is the intent of the Michigan Parkinson Foundation to work towards furthering the knowledge base of health professionals to enable the person with Parkinson’s to receive optimal 30400 Telegraph Rd. Suite 150 Bingham Farms, MI 48025 care, regardless of the setting. (800) 852-9781 • (248) 433-1011 Fax: (248) 433-1150 (cont. on page 4) www.parkinsonsmi.org New Board Members

New Board Members Elected The following individuals were elected to Officer and New Member positions at the Annual Meeting of the MPF Board of Directors: Founding President, In Memoriam Chairman: Edwin B. George, M.D., Ph.D. Raymond B. Bauer, MD Board Of Directors Dr. George is well-known to the Michigan Parkinson Foundation Edwin B. George, MD, PhD, community. He has been active for many years, as a Board Member, Chairman Professional Advisory Board Member and past Chairman, and as a Peter A. LeWitt, MD, President William Suminski, Vice Chairman frequent speaker for programs and support groups. Dr. George is Lawrence Millman, Treasurer Assistant Professor of Neurology, School of Nanette Michaels, Secretary Jeffrey Appel, Esq Medicine, Harper University Hospital and the John D. Dingell Veterans Tyrone Baharozian, Esq Administration Hospital in and is Director of the Movement David J. Bartczak Robert Berlow, Esq Disorders Center at Wayne State University and the John D. Dingell Paul A. Cullis, MD Veterans Administration Hospital. Robyn Gorell, APR Linda Grap Anne Hansen, LMSW Brenda Harris President: Peter A. LeWitt, M.D. Peter Hasbrook Dr. LeWitt has been an active participant in all of MPF’s activities Suzanne Holguin, RN Amy Jackson since he came to Detroit in the mid-1980s. He is Director of Parkinson’s Blake Johnson Disease and Movement Disorders Program, Henry Ford Hospital; Vince Marino Maxine Meach Movement Disorder Specialist at Henry Ford Hospital West Bloomfield, Richard Merson, PhD and Professor of Neurology, Wayne State University School of Medicine. Hon. Gail McKnight Richard McKnight, Esq Dr. LeWitt is active in patient care, research and education. Ronald Slyter Ronald Sollish, Esq Carolyn Weaver Vice Chairman: William Suminski Professional Mr. Suminski, who is the Vice President of Procurement for Comerica Advisory Board Richard Merson, PhD Bank, has demonstrated significant talent and drive in co-chairing and Chairman being a member of the Walk-a-thon and A Night of A Thousand Stars Glen Ackerman, MD committees, and was a volunteer at our events prior to being on the Richard Berchou, PharmD Stuart Blatt, PhD, RPT Board. His expertise, contacts and commitment to volunteerism have Ruth Butler, RN, NEd greatly helped MPF advance in many quarters. Kelvin Chou, MD Brian Cooper, OTR Paul A. Cullis, MD Mark Ensberg, MD Treasurer: Lawrence Millman, CPA Doree-Ann V. Espiritu, MD Bradley Evans, MD This is Mr. Millman’s eighth term as Treasurer of MPF. He is a partner Edwin B. George, MD, PhD in the CPA firm of Grant, Millman and Johnson, PC, located in Novi. John L. Goudreau, DO, PhD He quietly moves mountains in the background for MPF and has lent Frederick Junn, MD Shana Krstevska, MD significant business acumen to the management of our organization. Peter A. LeWitt, MD Richard Trosch, MD Denise Van Etten, Rn Secretary: Nanette Michaels Laura Zeitlin, LMSW Staff Ms. Michaels is the Chief Operating Officer, Henry Ford OptimEyes. Deborah M. Orloff, MPH, BSN, RN She has been a Board member since 2003, having held positions as Chief Executive Officer [email protected] past Chair of the PR/Marketing Committee, Chair of the Nominat- ing Committee and Strategic Planning Committee and Member of the Kelly Jiacobone, Office Manager [email protected] Revenue Generations Committee. She became very interested in MPF Thanks to: Editor, Robyn Gorell when close friends, Patty and Dennis McCarthy, were Board members and she has taken an active role in making sure the general community MPF programs are supported by your gifts and by grants from knows about Parkinson’s. the following sponsor: Community Health Charities

2 Michigan Parkinson Foundation • Messenger Spring 2011 Jeff Appel, Esq. We wish to thank Ronald Sollish, Esq., and Robert Mr. Appel is an attorney in private practice, specializing Berlow, Esq. for their exceptional and dedicated services as in the field of federal administrative law, representing Chairman and Secretary, and Carol Sewell, Esq. who has individuals seeking social security disability benefits. served on the Board for the past two years. He is the chair of the Federal Bar Association Social Se- curity Law Committee and a frequent lecturer to medi- Professional Advisory Board cal and legal groups on disability issues. He is a gradu- Chairman: Richard Merson, ate of the University of Michigan and Emory University Ph.D., CCC-SLP School of Law. Mr. Appel is well aware of the effects of Parkinson’s disease, with a relative who is diagnosed Dr. Merson, who is Coordinator of Research with it. and Special Projects at William Beaumont Hospital in Royal Oak, was re-elected to a Linda Grap second term as Chairman. He also holds a Ms. Grap is the director of Senior Health seat on the Michigan Parkinson Foundation Partners, a nationally recognized com- Board of Directors as Chairman of the Pro- munity collaboration in Battle Creek. fessional Advisory Board. Dr. Merson’s interest in Parkin- She has been a strong advocate for son’s disease started while he was in school, doing his Ph.D. the Parkinson community in this city dissertation on PD and speech therapy. He continues to be through her numerous contacts and affili- an active proponent of the need for rehabilitation services ations. She was the Battle Creek project for the Parkinson’s population. coordinator for the National Aging in Place Initiative Brian Cooper, OTR and conducted with Partners for Livable Communities to develop blueprints creating “aging friendly” communi- Mr. Cooper is an Occupational Therapist ties. She has received numerous awards from local and with Residential Home Health and is certi- national associations for her services. She is a graduate fied in BIG LSVT Therapy. Formerly with of Central Michigan University and holds a language St. John Hospital, he has actively partici- certificate from the Alliance Francaise in Paris. pated in MPF’s Michigan Parkinson Initia- tive Multidisciplinary Clinics and has given Amy Jackson presentations at MPI symposia. He also has been co-director Mrs. Jackson lived with Parkinson’s of the 5K at the Eastside I Gave My Sole for Parkinson’s for more than 19 years. Her husband, Walk-a-thon and 5K Run. Thomas Jr., recently passed away, and Denise Van Etten, RN she lovingly cared for him at home. They Ms. Van Etten is the Nurse Clinician for became active in the Detroit PD Sup- Movement Disorders and General Neurol- port Group in 1995 and were facilitators ogy, Michigan State University, Department from 1998 until 2009. They received MPF’s Ellen Otto of Neurology. She is a graduate of Lansing Service Award in 2003. Mrs. Jackson has participated Community College and Michigan State Uni- consistently in all of MPF’s programs and events and is versity and is certified in DBS programming. well aware of the needs of those affected by PD. Since She has conducted numerous educational programs and has the beginning of MPF’s “Cabarets” in 2004, she has been participated in MPI clinics and symposia. one of its sought-after stars. Her background is varied and includes being in the entertainment industry, a Laura Zeitlin, LMSW storyteller and a teacher. Ms. Zeitlin is the Clinical Social Worker for the Movement Disorders Surgery Program Blake Johnson at the University of Michigan Health System Mr. Johnson is the Chief Operating and the coordinator for outreach education. Officer and Director of Business Devel- She holds degrees from Antioch College and opment for GTJ Consulting, LLC in St. University of Michigan and has worked for Clair Shores and is a Founding Member many years in the HIV/AIDS area. She has been an active and Board Member of GTJ Foundation, a lecturer on a variety of topics both on a local and national charitable organization that has assisted level. local and national non-profit charities and established college scholarships. He graduated from Wayne State We wish to thank outgoing members for their dedication and University, with a four-year athletic scholarship and committed service to the Professional Advisory Board: John held leadership roles in academics as well as athletics. Buday, MD; Rochelle Anixt Gold, MA, MSW, CSW, ACSW; He has been very active in the community. and Linda Mondoux, RN, MS.

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 3 Hospitalization and Parkinson’s Disease: One Family’s Story (cont. from page 1)

Mr. and Mrs. X were very satisfied with their care dur- Commentary: The preparation of Mrs. X is to be com- ing a brief hospital stay at a local hospital. It could have mended. Such preparation is important not only for the turned into a discouraging situation had they not been emergency room, but for clinic visits as well. Being or- able to work out a compromise with health professionals ganized helps the physician focus on the patient and the with whom they dealt. patient’s complaints, rather than spending time figuring Mrs. X has had PD for over 20 years and is, as she puts out which medications the patient takes. Knowing your it, very meticulous about her medication schedule. She medications or having a current list also decreases the needs to maintain a very strict every 3-hour schedule likelihood of mistakes. while awake, or else she goes into an “off period” (be- Once at the ER, her husband explained to the staff that comes very slow and rigid) and consequently she has she needed to take her medications on time, showing carefully constructed a comprehensive method of insur- them her medication system. The staff allowed him to ing that she takes her medication on time. help administer the pills to her. Mrs. X had various tests During the summer, she was treated on an outpatient and it was determined that she needed to be hospitalized basis for a bladder infection. Despite treatment, symp- for IV therapy treatment. toms persisted and were severe enough to result in Commentary: Based on the review of the medical her having to go to the emergency room. Her husband literature, it is clear that patients with PD are admitted accompanied her. What is very striking is their prepa- more often to and frequently have longer hos- ration to go to the ER. The system she has developed pital stays than the general population. However, what helps her to feel a measure of control over managing her is most interesting is that PD symptoms by themselves condition which at times can be overwhelming. are not common reasons for hospitalization. In fact, the 1. Mrs. X has a form on most common reasons for hospital admission among her computer where she PD patients are pneumonia or other infections (such as enters all of the perti- urinary tract infections), elective procedures (such as a nent information about knee replacement or hip replacement), cardiac problems her medications and (such as heart attacks), gastrointestinal disorders (such conditions that are im- as nausea, vomiting and diarrhea), and lightheaded- portant. She carries a ness with standing causing fainting spells, strokes, and copy of this in her wal- changes in thinking and memory. PD is often treated let and also places it in a small “cosmetic bag.” At by a neurologist in the clinic, so hospital staff are often right (next page) is what her record looks like. Note unfamiliar with PD symptoms and PD medications. You that there are additional instructions at the bottom. will be surprised how much more you know about your disease than the people you interact with in the hospi- 2. In this cosmetic bag, she also has a 2-day supply of tal. Be prepared to re-educate the staff as you are trans- all of her medications, plus one extra dose. Because ferred from the emergency room to your hospital room. she needs to take her medications frequently, she uses a pill container that is actually intended to Once admitted to her hospital room, accompanied by hold a week’s supply, but she places one dose in each her husband, Mrs. X was interviewed by a nurse. The compartment for the entire day. There is an extra couple explained that she had a strict schedule of several compartment where she places a back-up dose – just medications which had to be taken at specific times, and in case. Her pill containers are filled every other described the timing of the medications. They found out week, allowing her to have a 2-week supply. Mrs. X that one of the medications was not on the formulary, carries a 2 day supply with her at all times. and the hospital couldn’t provide it. Additionally, the nurse informed them that, because of staffing, it would 3. In order for her to ensure she takes her medication on be difficult to maintain such a strict administration time, she uses a watch with an alarm which she sets schedule. to go off every 3 hours. Just in case, she sets it 10 minutes early to allow for a window. In her cosmetic Commentary: These are common problems encoun- bag, she also has a form that she checks off each tered in the hospital. Often, PD medication schedules time she takes her medications. may be changed to match that of other required medica- tions (such as antibiotics) or to better accommodate a

4 Michigan Parkinson Foundation • Messenger Spring 2011 MEDICATION SCHEDULE FOR ______

Time Sinemet Comtan Requip med med Med Dose Dose Dose Dose Dose Dose The nurse called in her supervisor, who said 6 am 2 tab 1 tab 1 tab 1 tab ______she understood what they were saying, “but the 9 am 2 tab 1 tab ______12 noon 2 tab 1 tab ______rules won’t allow for us to deliver your medica- 3 pm 2 tab 1 tab ______tions as precisely as you want.” However, she 6 pm 2 tab 1 tab ______did call in the Pharmacy supervisor. Again, Mr. Evening ½ tab 1 tab 1 tab & Mrs. X discussed the dilemma. If at any time I am scheduled to take a dose of sinemet w/comtan and my blood pressure (BP) reading is below 110/70, delay taking After some discussion, the staff nurse made a the meds until BO begins to rise. suggestion that solved the problem. Mrs. X’s

AM starting time may differ from day-to-day. However, maintain 3 medications would be brought in and stored by hour interval between doses. If needed, additional sinemet may be the staff. The nursing staff brought Mrs. X each taken during the night at 3 hour intervals dose one hour before the medications were due. OTC medications: ______Mrs. X could see the medications and this al- ______layed any anxiety she had. She took her medi- cations at the precise time she needed them, Doctor Information: (Name, specialty, phone, fax) with help from her husband if necessary, and ______informed nurse when she had taken the pills. ______Emergency Contacts: (Name, relationship, phone, cell) This strategy gave both the X’s and the hospital ______staff a zone of comfort. Mr. X concluded that ______any person with PD admitted to a hospital needs another person to advocate for him/her Special notes: and who understands the fear of being without Sinemet and Comtan to be taken together every 3 hours. EXCEPTION: no Comtan w/9:00 pm dose. timely medications. ______needs to be taken ½ hour before a meal Commentary: Although the hospital would (on an empty stomach) not let Mrs. X keep her own medications at the bedside, she did not give up and continued to try and find a solution that would work for her and the hospital staff. The lesson here is nursing schedule. This is often because nurses have to take Hard work now = Less work later. The person care of many patients, and making medication times similar with PD knows when medications wear out and between patients allows for more efficient administration. often becomes compulsive about taking medica- There is also often a one hour window before and after a tion. Hospital staff, on the other hand, do not scheduled timing of medication that is allowed in hospitals. realize that many people with PD fear that This flexibility is there just in case there is an emergency they will never get out of the “off” time. Putting that the nurse or hospital staff has to address. Finally, in the effort initially to educate staff and get hospitals may not stock your brand of medications. All of what you want (Hard work now) will result these changes may result in greater risk for wearing off for in a less anxious stay with little off time the PD patient. If you need a strict administration schedule (Less work later). Convince nurses that or if you need your own brand of medication, some hospitals giving medications to you on a strict schedule may allow you to keep your own medications at the bedside (Hard work now for them) will result in fewer as long as it is drawn exactly from what was written on the calls for assistance because of immobility or bottle. anxiety later (Less work later for them). Anxious about the whole process, Mr. and Mrs. X asked if it Persevere and find a compromise. This allows would be allowable for her to keep her own medications at everyone to win. Try to apply the Hard work the bedside. This was not allowed. Again, they stressed that now = Less work later. principle the next time Mrs. X had to take her medications precisely, explaining the you need to be hospitalized and hopefully you anxiety this caused and the consequences of on-off symptoms. too will have a successful outcome.

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 5 The Michigan Parkinson Foundation, in cooperation with Northville High School and South Lake Public Message from the Chairman Schools, presents… This is my first opportunity to I Gave My Sole For Parkinson’s address the Michigan Parkinson Walk-A-Thon And 5K Run community as the new Board Chair of the Michigan Parkinson presented by Foundation (MPF). I want to say and Taco Bell how honored I am to have been elected to this office. I have been Sat. May 14 – 10:30 am associated with the MPF since South Lake Schools 1996, first as a member of the Professional Advisory Board and Sun. May 15 – 10:30 am more recently as a member of the Edwin B. George, M.D. Northville High School Board of Trustees, and I have always been impressed with and proud of the work the GET INVOLVED MPF does to support persons with Parkinson’s disease • INVOLVE children and grandchildren and their families. Few organizations can boast of of- fering such broad support to their chosen community, • INVITE someone new from your own communities – or have demonstrated such innovation. Not only does neighbors, colleagues, family members, friends the MPF help in organizing and providing assistance • COLLECT DONATIONS from others to advance the cause. to support groups throughout the state, it provides a Awards will be presented to the individual and wide variety of educational programs, medication and recognition to the team who raises the most money referral services, support for research, and advocacy • Take brochures in many political spheres. The educational programs to WORK. See if are not only for persons with Parkinson’s disease and Current Sponsors your company their caregivers, but also have included programs for Taco Bell provides Match- Henry Ford Health System students, for professionals and for others who impact ing Gift funds Mollie McKnight Feliks the lives of those with Parkinson’s, and have included • Put together KBC Tools & Machinery not just lecture programs and publications, but also Michigan Neurology Institute video and web productions, and hands-on tutorials. The a TEAM GTJ Foundation St. John Providence Health System Bauer Research award is directed not just at advanc- • STUDENTS – Oakwood ing research on Parkinson’s disease and potential this is a great Sheila Bass therapies, but includes an emphasis on attracting new community Timothy D. Roney, DDS Standard Register researchers into working on issues related to Parkin- service project Fergie’s Rental son’s disease. Advocacy is directed at national, state • If you are Accenture U of M Movement Disorders and local government, to be sure, but also at public unable to walk – Surgery Program awareness, and at non-government organizations which SUPPORT another regulate and influence services, professionals and HONORARY Chairs: walker or team. institutions. The extent and diversity of the activities Eastside - St. Clair Shores • Ask us how you Dr. Paul A. Cullis of the MPF to support persons with Parkinson’s is truly can become a Mayor Robert Hison, St. Clair Shores beyond compare. SPONSOR. Mayor Suzanne Pixley, Eastpointe Matt Dishman, South Lake Schools, Chair All this is accomplished through the efforts of the Mich- • Send out Vince Marino, Chair igan Parkinson community, whose members enthusi- notices to others Westside - Northville astically contribute time, money and energy to make via FACEBOOK Marvin Gans, Northville Township the programs of the MPF a reality. Your generosity has Board of Trustees kept the MPF financially afloat in these difficult -eco Hon. Marla Parker, 47th District Court Hon. James A. Plakas, 35th District Court nomic times, and your tremendous willingness to give Kathleen Russell, Person with PD your own effort has allowed the MPF to have a con- Emcee: Alisa Zee, WWJ 950 AM tinued impact on the lives of those affected by Parkin- son’s disease. I want to take this opportunity to thank everyone who has helped the MPF accomplish so much. HELP TO SUPPORT THE WALK – I look forward to working with all of you and pledge my NO MATTER WHERE YOU LIVE commitment to seeing the MPF continue to lead the way in providing support and innovation to improve the Get Official Walk-a-thon donation forms at lives of those affected with Parkinson’s disease. www.parkinsonsmi.org, or by calling the Ted George MPF office at (248)433-1011.

6 Michigan Parkinson Foundation • Messenger Spring 2011 Update on Research Freezing of Gait Peter A. LeWitt, MD One of the more puzzling features of Par- obstacles. Other tricks to keep the feet mov- kinson’s disease (PD) is freezing of gait ing include counting out each step (“left, (FOG), a phenomenon of episodic immo- right, left right…”), or taking exaggerated bility. Using analogies to an automobile, marching steps to get going. Breaking up there are several varieties of FOG: “stuck the semi-automatic nature of walking seems at a green light,” “the engine has stopped” to be useful. A different example - starting and so on. For many patients affected to walk by stepping over another person’s with FOG, “my feet are glued to the floor” foot or an inverted cane’s handle can over- Peter A. LeWitt, MD describes the problem, which can last from come temporary immobility. seconds to minutes. It can occur at the start Dr. LeWitt is the Direc- FOG is not the same thing as running out of tor, Parkinson’s Disease of movement, mid-way during a walk, or medication. People experiencing it generally and Movement Disor- even in other circumstances with the up- have the full effect of levodopa or other anti- ders Clinic, Henry Ford per extremities involved, such as during Hospital West Bloomfield; Parkinsonian medication in their systems Professor of Neurology, handwriting. FOG has long been a part of at just the moment when FOG bothers Wayne State Univer- PD and, although not everyone experiences them. However, in some instances, FOG can sity School of Medicine; it, it can be one of the most troublesome be lessened by an adjustment of medica- President, Michigan features of this disorder. FOG can cause Parkinson Foundation tion, particularly the addition of drugs like and Member of MPF’s unexpected falls. Even when it is not inter- ropinirole or pramipexole. Physical thera- Professional Advisory fering with mobility, just worrying about it pists have developed techniques that can Board. can be a daily burden. Concerns by patients be useful for improving FOG. Deep brain about getting stuck in embarrassing or stimulation of the subthalamic nucleus also unsafe circumstances can indirectly be a has helped in some instances. source of disability. FOG remains a challenging, unmet aspect Often, FOG is predictable. Approaching a of Parkinson’s disease. Fortunately, there doorway, walking in a small space (like a has been considerable international inter- closet), turning, hurrying, holding a conver- est, with dozens of recent medical research sation, carrying objects – these are all situ- publications from studies looking at why ations in which walking or other aspects it happens and how to control it. Myster- of movement momentarily can be halted. ies remain about such questions as why In 1817, Dr. James Parkinson of- only certain individuals experience FOG, fered the first medical descriptions or why it can be so situation-specific. Some The Messenger is now available of the disorder bearing his name via the Internet. We are able to insight into localized brain involvement has and provided an apt concept for send you a link by email. Please resulted from studies in which a technique capturing the experience of freez- provide us with your email ad- called “functional magnetic resonance imag- dress, so you can receive your ing, commenting that “…the hand ing” took pictures of the brain while sub- newsletter and other announce- fails to answer to the dictates of the jects imagined themselves freezing during ments easily. You also will be will.” Why the “will” cannot get the walking. These studies, when compared to helping us reduce mailing costs. hands or feet to move is one of the patients who never experience FOG, per- Contact the MPF offices at 800- mysteries of Parkinson’s disease. mitted localization to circuits that, one day, 852-9781, or email info@parkinson- His phrase captures one of the might result in the development of a medi- smi.org. great unknowns of FOG, namely, cation or other therapeutic approach. At the that there seems to be a discon- Henry Ford Hospital Parkinson’s Disease nection between the usual process and Movement Disorders Clinic, a clinical of initiating movement and what study begins soon using an experimen- actually happens. Patients can sometimes tal medication to be tested against FOG. get around a FOG experience by using their Taking the brakes off FOG is a challenge imagination, or altering their thinking by requiring some good ideas and a little bit of using “tricks.” For example, one trick for luck to master. Let’s hope that there will be overcoming FOG at a doorway is to avert some progress for this annoying and some- the gaze and imagine that the doorway times disabling problem of chronic Parkin- ahead is actually a wide-open space with no son’s disease. (800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 7 Respite Care Excerpts: Adapted with permission from the Link, St. Louis APDA, May 2010: Vol. 24, Issue 2 By David Lanson, Always There Home Care

For many, the challenges of caring for a loved one are • Try free videoconferencing services to hold family part of daily life. Caregiving is a demanding, difficult meetings at times that work for everyone. Create a job and no one is equipped to do it alone. Getting help web-based community to share updates and explore is essential for your own health, and your resilience is options. Sites like carepages.com keep family and critical for your loved one. Respite care provides short friends online and in touch. term breaks that relieve stress, restore energy, and • Participate in support groups. Learning how other promote balance in your life...There are many respite families cope can suggest new options and provide care options and strategies. reassurance. When siblings are unable or unwilling Respite care basics to share the load, peer support can be invaluable. Seeking support and maintaining one’s own health are In-home respite care key to managing the caregiving years. Using respite be- In home services can be provided by a trained caregiver fore you become exhausted, isolated, or overwhelmed is occasionally, or on a regular basis. Services … may be ideal…Respite can take many forms, but boils down to arranged directly or through an agency. This respite two basic ideas: sharing the responsibility for caregiving choice enables individuals to remain in their own and getting support for you. Finding the right balance environments, and can be invaluable for caregivers. requires persistence, patience and preparation. Services may include: Planning your relief • Cognitive stimulation, recreation, and companionship As a caregiver, is support what you need most? Some by home-care businesses providing trained staff to free time? Help with transportation? ...Identifying your cover short in-home intervals. loved one’s needs, abilities and preferences will also • Personal care providers assisting with daily living help you find the right match. Social activities? skills such as bathing, dressing, feeding or toileting. Assistance with walking, eating or medications? Mental stimulation? Exercise? … • Homemaker services supporting meal preparation, shopping and housekeeping. Engaging family members in respite care Selecting respite care services Family members and friends may be able to help out while you run an errand, take a break or even go on and providers vacation. However …it can also be a tough process for Whether you engage a provider directly or work families to share. Even the healthiest families can be through an agency, you can allay your fears by conduct- severely stressed by ongoing care, and the division of ing some basic research. Always include the potential labor is frequently lopsided. The following tips can en- care recipient in the screening process if he or she is courage support and participation: able to participate, to ensure that both parties are com- fortable and that your loved one’s needs are respected. • Talk openly and regularly. Keep everyone up to date For a detailed guide, you can contact your local Area on your loved one’s needs and condition. Family Agency on Aging, or go to MI Seniors website: www. members who don’t share the day-to-day caretaking michigan.gov/documents/miseniors/CaregiverHiring- experience may not fully appreciate the situation. Guide_176399_7.pdf. • Encourage family members to evaluate what they can reasonably and honestly do... Welcome different Working with agencies viewpoints, accept limitations, and be willing to try Although independent providers are generally the least alternate strategies. Share your list of needs and take expensive, home care agencies and referral services advantage of all offers to help. are often easier to use … An agency finds and places providers, handles payroll, and usually provides sub- • Recognize your own feelings and discuss dispropor- stitutes for sick or absent personnel. If problems occur, tionate tasks. Harboring resentment when you need you also have specific avenues of recourse… that are more help can lead to your burnout and impaired not available when working with individuals. health. Ask directly for concrete support and specific time commitments…

8 Michigan Parkinson Foundation • Messenger Spring 2011 Upcoming Educational Programs Celebrate Essential Tremor and Parkinson’s Awareness month at Henry Ford March 29-31, 2011 Henry Ford Hospital, 6777 W. Maple, W. Blfld MI March 29 – March 31 10:00 am – 4:00 pm Referral services…match your needs with local Presentations on Parkinson’s will be held program options. Use online registries, check Thursday, March 31. Displays on all days. For further information, call 248-325-2452 or email: newspaper ads or the yellow pages to find spe- [email protected] cialists who know local programs and can help you navigate their systems. (Note: MPF often refers callers to local Area Agencies on Aging Living with Parkinson’s six-week series for lists of recommended local agencies). An educational series for people with PD and their families to learn the basics about Parkinson’s disease, its management Paying for respite care and coping. Each session features an aspect of PD, including: In today’s challenging economy, you may think what is PD, medications, occupational and physical therapy, respite services are unattainable. However, communications and coping. Meets once a week for 6 weeks, thinking creatively can uncover valuable re- 2-1/2 hour sessions. sources: Bay City: April 7 through May 12 • Traditional funding sources for respite care. Six Thursdays 5:30 – 7:30 pm • Personal Assets/Insurance: Although medical Bay Medical Training Center, 820 S. Lincoln, Bay City insurance generally does not include respite Donation $10. Contact Joani Szczepanski (989) 893-1503 coverage, unless licensed medical profession- Opening session features Dr. John Buday, Neurologist. als are involved, long-term care policies usu- Fraser: May 6 through June 10 ally fund services up to specific time or dollar Six Fridays 1:00 – 3:00 pm limits. Sanctuary at Fraser Villas, 33300 Utica Rd, Fraser, MI • Veterans’ Benefits: The VA provides inpatient Fee: $50 per family; $40 individual; scholarships respite coverage for up to 30 days per year for available Contact MPF at (248)433-1011 qualified veterans. In addition, when war- Opening session features Dr. Shana Krstevska, time vets care for their spouses, funding for Movement Disorder Specialist, Henry Ford Hospital: in-home services are available on a state-by- Free and Open to All state basis. Strategies for successful respite care Orientation to Parkinson’s • Relief and revitalization is not important for Monday, April 11 or July 11 - 1:00 – 3:00 pm you alone: it benefits all touched by the care- A free two-hour session for people who are newly diagnosed giving process. with Parkinson’s disease and their family members. This • Evaluate often. Observe your care recipient session provides an overview of PD and discusses resources before and after respite sessions. Ask for brief for starting your journey. updates and more detailed reports regularly. Presented by: Debby Orloff, CEO, and Ron Smith, person • Expect changes. Respite care is a process that with PD. MPF offices, 30400 Telegraph. Suite 150 Bingham often requires fine-tuning. Anticipating and Farms, MI. To preregister, call MPF offices at (248)433-1011 accepting changes in personnel or programs can keep you from becoming discouraged. 26th Annual Parkinson’s Summer Forum • Attend your support group regularly... You June 2 – Hagerty Center, 715 East Front Street, can talk, vent, laugh, and exchange tips with Traverse City, MI 49684 people who understand. Keynote speaker: Daniel Weintraub, M.D. A note from MPF: For additional Associate Professor, Center, University of PA information on respite care, download “Psychiatric and Cognitive Symptoms in Parkinson’s www.michigan.gov/documents/miseniors/ Disease: Assessment and Management” RespiteCareFact_225584_7.pdf Contact Maxine Meach at (231)947-1946, or email [email protected].

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 9 Fundraising for Parkinsons

Honorary Chairs Mayor David Hollister Greater Lansing Area Representative Mark Meadows

Emcee I Gave My Sole for Parkinson’s Lauren Zakalik, WILX Channel 10

Sponsors Walk-A-Thon And 5K Run Greater Lansing Area Parkinson’s Support Group Held at Okemos High School, Okemos, Michigan Okemos High School October 9, 2010 Gold Fraternal Order of Eagles, October 9, 2010 proved to be a beautiful fall day for the very first Aerie 1039 - Lansing I Gave My Sole for Parkinson’s Walk-a-thon and 5K Run in the Greater Lansing Area. Silver Okemos High School’s stadium and cross country field were perfect for more than 400 Joyce & Jerry Wagner participants representing 11 support groups and volunteers who shared in the excite- Bronze Michigan State University Dept. of ment of this exceptional day. The amount raised for programs for people affected by Neurology & Ophthalmology PD is in excess of $21,000! These funds will certainly assist in providing programs and Movement Disorders Clinic Barnes Aerospace services to directly benefit people with PD and their families throughout the state. Courtland Consulting Congratulations to all. Media Sponsors HOM TV and CAM TV The second Walk and 5K is scheduled for October 1, 2011 at Okemos High School. WILX TV Channel 10 Lansing State Journal Mark your calendars. We would like to recognize and thank individuals and organiza- tions listed to the left, and to especially thank the Greater Lansing Area Parkinsons With many thanks to Blue Baron Band Support Group and Okemos High School. Courtland Consulting Curtis’ Hot Dog Stand Donald Ross, Bagpiper Jerry Robert’s Golf Buddies Mary & Scott Maschke and family Michelle’s Dance Studio Michigan State University School of Music Therapy Okemos High School Students and Track Team Residential Home Health Rose Andre and her Cookbooks Russ Verrell, Assistant Principal, Okemos High School SOMEKO Singers Uncle John’s Cider Mill

Committee members Ray Buch Joyce & Jerry Davis Don Hitko Barbara and Peter Hasbrook Alice and Gene Kenyon LeeAnn and Arlie Kinnee Denise Van Etten, RN Joyce Wagner

Top Fundraisers Roland Hubbert – Individual Boyce Team

Special Thanks MPF received a much-appreciated, major bequest from the estate of Phyllis Canfield. She had attended meetings at the Dearborn Parkinson Support Group. During 2010, significant bequests also have been received fromEarl (Elsie) Mayer, Marie (Gerald) Steube, and an Anonymous Donor. We are grateful for their outstanding generosity, which will as- sist the Michigan Parkinson Foundation in contributing to the current and emerging programs that touch people affected by Parkinson’s directly, as well as maintaining a strong financial base in the future. Thank you to the Marlene and John Boll Foundation for their magnanimous annual gift. Mr. Boll was our second Chair- man of the Board (1987-1989). This philanthropic family continues to keep in touch and we are grateful for its ongoing support. Also, our gratitude goes out to the many individuals and companies who have assisted us with donations throughout the past year for memorials and tributes, contributions at events and benefits, membership in the Club 500, and responses to our Annual Appeal. For a listing of those who have contributed and additional information on giving opportunities, please visit our website: http://www.parkinsonsmi.org/donors.php, or call (248)433-1011.

10 Michigan Parkinson Foundation • Messenger Spring 2011 Community Fundraisers On Our Behalf A Night Of A Thousand Stars Many thanks to the many organizations and individuals Hosted By The November 13, 2010 – who have sponsored events to benefit Steinway Piano Gallery Of Detroit the Michigan Parkinson Foundation ANight of a Thousand Stars was exceptional this during the last six months: year. Held on November 13, CLOSET NV, of West Bloomfield, 2010 at the Steinway Piano hosted a women’s night out shopping Gallery of Detroit in Com- and cocktails event in November. merce MI, more than 225 attendees enjoyed the Kelly Rau and Family continue excellent cuisine (appetiz- to hold their annual Golf Outing in ers and desserts), enter- West Branch. tainment and silent auction, raising in excess of $25,000 for the Michigan Parkinson Foundation. As we experienced last year, the Gallery Tom and Bridget Hurley, conveyed a sense of elegance, warmth and style, as participants mingled and listened to Carrie Hall Photography the phenomenal sounds of: Ami, Ami Sugar and Tom and Bridget Hurley, Spice; the Cliff Monear Quartet; duo pianists family and friends, held a Joanne (Skip) Bonds and Carol Sipsock; and sold-out Shakedown for the pianist and cello duo of the husband and wife Parkinson’s’ gourmet dinner, team, Drs. Ann Chen and Nicholas Tobin. dancing, silent auction and Alisa Zee, whom we entertainment on February 11, 2011 for more than have adopted as our 400 guests at St. Bellarmine emcee extraordinaire, Activities Center in Redford. welcomed guests and introduced Tim Hoy, owner of the Stein- way Piano Gallery who also worked with us to find such tal- ented people to play Carol and Mike Cummins during the evening. A hearty thanks to our inimitable volunteers who created another extraordinary benefit this year: Co-Chairs, Carol Cummins & Bill Suminski Volunteer Chair: Deborah Hardison-Hill Silent Auction Co-Chairs Carol & Glen Kramarich Macy’s Premier Salon (Oakland Mall in Troy) sponsored a Entertainment Co-Chairs, special $10 per haircut, entertainment and food event with Paula and Larry Foy, with Tim Hoy all proceeds going to MPF. And a special thanks to all who attended and donated to this event. Robyn Gorell is cherished for her Silver Sponsorship and many thanks to our Anonymous Sponsor and to our Friend, Beaumont Hospital, Troy. One hundred unique items were donated to the silent auction, including several articles created by artists and crafts-persons with Parkinson’s disease and by Board members, and two comforters made by Junior Girl Scout Troup 3504 in Alpena! As you view the pictures on our website, www.parkinsonsmi.org/aboutGala.php, you can attest to the wonderful feelings of those who came. Hope you can join us this year.

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 11 Support Groups

Alpena Dearborn Gladwin 3rd Monday 1 pm 2nd Tuesday, 6:00 pm. 2nd Thursday, 5:00 pm Mark Beegle (989) 595-6463 Emily Buzas (313) 982-5604 Mary Griffore, RN (989) 246-6291 1st United Methodist Church Oakwood Learning Center, Room B Mary Lou Batzer (989) 435-4191 161 S. Ripley Blvd., Alpena 49707 18501 Rotunda Drive, Dearborn, MI 48124 Mid-Michigan Gladwin Pines Nursing Home, Conference Room Ann Arbor Detroit 449 Quarter Street , Gladwin MI 48624 2nd Sunday, 1:30 pm 3rd Tuesday, 1:00 pm John Waller (734) 662-9784 Joan Blount (313) 568-1827 Gratiot County St. Joseph Hospital, Ellen Thompson Dr. Robert Preuss (313) 573-0061 4th Wednesday, 2:00 pm Women’s Health Center, Class 1, 2nd Fl. Hannon House Jen Cook, SW (989) 875-5246 (Look for parking lot S, then parking lot M) 4750 Woodward, Detroit MI 48201 Masonic Pathways 5320 Elliott Drive, Ypsilanti MI 48197 1200 Wright Avenue, Alma MI 48801 Parkinson’s Adventure Dining Dickinson County Care Partners 3rd Sunday, various locations Call for dates and location Farms Contact Linda Ehrstine (734)429-8397 Joyce Peterson (906) 774-3694 Last Friday, 9:30 am Iron Mountain, MI 49801 Karen Leigh (313) 884-6686 Adaptive Exercise Class Betty Durkin (313) 884-6131 Thursdays, 3:00 pm Downriver Grosse Pointe United Methodist Church Jim Wheaton (723) 665-4088 4th Tuesday, 7:00 pm 211 Moross, GP Farms, MI 48236 1st Presbyterian Church Emily Buzas (313)982-5604 Hillsdale 1432 Washtenaw, Ann Arbor. MI 48104 Westfield Activities Center 1st Thursday, 3:30 pm 2700 Westfield, Trenton 48183 Helen Bordner (517) 849-9164 Battle Creek 3rd Tuesday, 10:00 am Hillsdale Co. Senior Center, Lower level Eastside 320 W. Bacon, Hillsdale, MI 49424 Jane Chappell, RN (269) 441-0957 Last Thursday, 1:30 pm Burnham Brook Center Betty Rusnack (313) 884-5778 Howell 200 W. Michigan, Battle Creek MI 49016 Jane Farrelly (313)886-4356 Meets every other month, St. Michael’s Church Last Tuesday at 4:00 pm Battle Creek Young Onset 20475 Sunningdale, Call for information: 2nd Thursday, 5:00 pm Grosse Pointe Woods MI 48236 Jane Chappell, RN (269) 441-0957 Julie Serra (517) 548-5390 Burnham Brook Center St. Joseph Mercy – Livingston Escanaba Meeting Room #1, 620 Byron Road 200 W. Michigan, Battle Creek MI 49016 2nd Tuesday, 3:00 pm (Blue canopy door entrance) Mike & Diane Oxford (906) 428-2549 Howell MI 48843 Berrien County (St. Joseph) MTec Center, Room 2020 2nd Thursday, 3:00 pm Bay de Noc Community College Ionia Barbara Ford (269) 429-3675 2001 N. Lincoln, Escanaba MI 49829 Lakeland Medical Center, Upton Center, 3rd Thursday, 10:30 am Conference Room #5&6 Becky Flint, SW (616) 527-1790 Flint Ionia County Community Mental Health 1234 Napier Road, St. Joseph MI 49085 3rd Thursday, 2:00 pm White Bridge Room Jim Bence (810) 629-6593 375 Apple Tree Drive, Ionia MI 49946 Cadillac Christine Bishop (810) 653-4037 3rd Thursday, 11:00 am Genesys Home Health Jackson Diane Patterson (231) 779-9420 5445 Ali Drive, Grand Blanc, MI 48439 2nd Tuesday, 7:00 pm Senior Citizens Center 601 Chestnut Street, Cadillac MI 49601 Carol Briggs, RN (517) 783-6527 Frankenmuth disAbility Connection 3rd Wednesday, 1:00 pm 409 Linden Ave Calumet Marilyn Bernthal (989) 652-2515 (between Prospect and 4th Street) 2nd Monday, 1:00 pm Independence Village Harmony Hall Jackson MI 49203 Sarah Baratono, SW (906) 337-5700 255 Mayer Road, Frankenmuth MI 48734 Aspirus-Keweenaw Home Nursing 311 Sixth Street, Calumet MI 49913 Kalamazoo Frankfort Entire Group: 3rd Friday, 11:00 am 3rd Thursday, 2:00 pm Care Partners: 2nd Thursday, 1:30 pm Cass County/Cassopolis Fred Hough (231) 882-4865 People with Parkinsons: 2nd Tuesday, 1:00 pm Trinity Lutheran Church 2nd Thursday, 1:30 pm Brenda Harris (800) 323-0390 ext 248 955 James Street, Frankfort MI 49635 Cass County Council on Aging Morgan Douglass (269) 488-5889 60525 Decatur Rd, Cassopolis MI 49031 Heritage Community of Kalamazoo. Gaylord (OCCOA-Gaylord) 2300 Portage, Kalamazoo 49001 4th Thursday, 2:30 pm Clare (Mid-Michigan) Pam Carlson, RN, John Panci Lakes Area (Commerce) 3rd Thursday, 2:00 pm Dona Wishart (989) 732-1122 3rd Monday, 7:00 pm Jane Iutzi, LBSW (989) 539-2018 University Center at Gaylord, James & Amanda Clouse (248) 464-1324 MidMichigan Medical Center – Clare 85 Livingston Boulevard, Huron Valley-Sinai Hospital 703 N. McEwan St., Room C1 Basement Gaylord MI 49735 Clare MI 48617 1 William Carls Drive, Commerce MI 48382

12 Michigan Parkinson Foundation • Messenger Spring 2011 Michigan Parkinson Foundation, Affiliated Support Groups - September 2010 1-800-852-9781 or 248-433-1011 or www.parkinsonsmi.org

Lansing/East Lansing Northeast Macomb Thumb Area (Bad Axe) 3rd Tuesday, 6:00 pm 1st Thursday, 3:00 pm 3rd Tuesday, 1:30 pm Don Hitko (517) 333-1844 Catherine Schulz (586) 716-7164 Kim Wasik, SW, Valley Court Park Community Center Village of East Harbor Human Development Commission 201 Hillside Court, E. Lansing MI 48823 33875 Kiely Drive, (800) 843-6394; (989) 673-4121 Chesterfield MI 48047 Annette Johnson (989) 864-3779 Lansing Care Partners’ Group Holiday Inn Express 1st Wednesday, 1:00 pm Novi/Fox Run 55 Rapson Lane West, Jeanne Brown (517) 339-8901 1st Tuesday, 3:00 pm Bad Axe MI 48413 All Saints Episcopal Church Risa Blau, SW, (248) 668-8633 800 Abbott Road, E. Lansing, MI 48823 Fox Run Ascot Music Room Traverse City 4100 Fox Run Road, Novi MI 48375 (Grand Traverse Area) Lenawee County (Adrian) 4th Wednesday, 10:00 am 1st Thursday, 1:00 pm Owosso Hettie Molvang (231) 947-7389 Dianna Oates, PTA (517) 266-3643 2nd Wednesday, 7:00 pm Office (231) 933-6255 Dominican Life Center Karen Prussner, RN (989) 723-6901 Traverse City Senior Center 1277 E. Siena Heights Drive, Medical Arts Building 801 E. Front St, Traverse City 49684 Adrian MI 49221 721 South Shiawassee, Owosso Mi 48867 Traverse City Young Onset Livonia (Western Wayne) Parkinson’s Daisies: A Social 1st Thursday, 6:00 pm 2nd Thursday, 7:00 pm Support Group for Women with Ted & Sharon Stark (231) 862-3234 Ruth Butler RN (734) 421-4208 PD or are Care Partners Munson Community Health Center Livonia Senior Citizen Center Meets in the area at a 550 Munson, Traverse City MI 49686 15218 Farmington Road, Livonia MI 48154 restaurant or other locale. Call for information on future outings. Tri-City/Saginaw Manistee Patty Meehan (248) 420-6342 2nd Tuesday, 3:00 pm 3rd Thursday, 11:00 am Julia Schmidt SW (989) 797-7564 Jeannie Lewis (231) 723-8684 Petoskey Saginaw Commission on Aging 4th Wednesday 2:00 pm West Shore Hospital West Side Senior Center Suzanne Holguin, RN (989) 347-3211 Education Center, Room 1, 2112 W. Genesee, Saginaw MI 48602 Friendship Center 1465 E. Parkdale, Manistee MI 49660 1322 Anderson, Petoskey MI 49770 Warren Mason County (Scottville) 1st Thursday, 2:30 – 4:00 pm 3rd Wednesday, 10:00 am Port Huron Exercise Classes: every Thurs. 4:00 pm 1st Wednesday, 2:00 pm Harv Buter (231) 757-0221 Belinda Fields, PTA (586) 573-5123 Kelly DiNardo, RN (810) 987-5000 x2344 Senior Center St. John Macomb Hospital, Port Huron Hospital 55 Plus 140 S. Main, Scottville MI 49454 Medical Education Center 1221 Pine Grove, Port Huron MI 48060 11800 E. 12 Mile Rd, Warren Mi 48093 Mid Michigan Young Onset Rochester 3rd Tuesday, 7:00 pm West Bloomfield 1st Wednesday, 7:00 pm Joan Szczepanski (989) 893-1503 1st Wednesday, 7:00 pm Pat Yarnold (248) 652-4630 Call for location Shari-Beth Goldman (248) 592-9466 Nancy Knitter (248) 852-8464 Jewish Family Service Crittenton Hospital – North Addition, 2C Monroe/Frenchtown 6555 W. Maple, W. Bloomfield MI 48322 1101 W. University, Rochester MI 48307 3rd Tuesday, 1:00 pm Becky Brittenham (734) 770-5112 Care Partner Support Group West Branch Frenchtown Senior Citizens Meets last Wednesday 1:30 pm. 2nd Thursday, 12:30 pm 2786 Vivian Road, Monroe, MI 48162 Contact Nancy Knitter: (248)852-8464 Carol Gillman (989) 345-5300 West Branch Regional Medical Facility, Montcalm County - NEW! Royal Oak Exec. Mtg Room 2nd Thursday, 12:30 pm 2nd Monday, 7:00 pm West Branch, MI 48661 Becki Hansen (616) 652-2515 David Bartczak (248) 755-8034 Greenville Senior Center William Beaumont Hospital Young Onset of 715 S. Baldwin Street, Greenville 48838 Rose Cancer Center Southeast Michigan 3601 W. 13 Mile Road, 2nd Monday, 6:30 pm Mt. Pleasant (Isabella County) Royal Oak MI 48073 Patty Meehan (248) 420-6342 2nd Monday, 6:00 pm - Call to confirm South Lake Schools Maggie Brunette (989) 773-4833 Administrative Building Isabella County Commission on Aging 23101 Stadium, 200 S. Lincoln Rd, Mt. Pleasant MI 48858 St. Clair Shores MI 48080

NEW: View MPF’s Web site (www.parkinsonsmi.org) for a calendar which lists not only special programs, but each of the support group meeting times. An objective is to include topics being presented in each support group each month, so individuals in all parts of the state can identify programs they would like to attend.

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 13 Support Group News

Eastside Support Group Xmas party at Lochmoor Country Club

NEW SUPPORT GROUP MEETS IN MONTCALM COUNTY Thursday, January 13, 2011, was the opening meeting of a new support group in Montcalm County. It will continue to meet the second Thursday of each month from 12:30 – 2:30 pm at: Al Alford – still entertaining others with his Greenville Area Senior Citizen Center piano playing 715 South Baldwin Street Greenville MI 48838 Becki Hansen, who lives in Greenville, has PD and so too has her father. She has volunteered to facilitate this group. Please contact her at (616)548-5428 for further information.

FLINT SUPPORT GROUP MOVES The Flint Support Group, which meets at 2:00 pm on the 3rd Thursday, has moved to the following location: Genesys Home Health 5445 Ali Drive (near Hill Road and I-475) Grand Blanc, MI Betty Rusnack Facilitator Marion Engelhart – one For further information, contact Jim and Ethel Bence at of the first people with (810)629-6593. her husband to attend a Living with pd series in NORTHEAST MICHIGAN (AUBURN) SUPPORT GROUP DISBANDS 1983 – continues to be Pat Meyer, Facilitator, and cohort, Judy Scharich, are retir- a part of the Eastside ing and the Northeast Michi- Group today. gan Auburn Support Group will be disbanded. Ms. Meyer, a physical therapist, has been a staunch supporter of educa- Jane Farrelly Co-Facilitator tion for people with PD in this area since 1999 when she took Dave & Carolyn over the position of Facilitator. Thomas We will miss them both. In the meantime, members are encouraged to attend the Saginaw or Mid Michigan Young Onset (Bay City) support groups.

14 Michigan Parkinson Foundation • Messenger Spring 2011 Leadership Changes Northeast Macomb Alpena Catherine In October, Mark Beegle attended the I Gave My Schulz is on Sole for Parkinson’s Walk-a-thon & 5K Run in Okemos maternity – with numerous family members from all over the leave. We are region – and declared his intention to become more so thrilled for involved in his community. As a result, he volunteered her growing Michael and Janet Sinke and Roy and Alice to take the leadership role of the Alpena Support family. Thank Erickson at the Lansing Group after present- Group. Donna Precord, Georgene Anderson and you to Sheri ing a discussion on their DBS experiences Joan Carr will continue to be there, too. Watch this Stover for group grow! stepping in to help with planning meetings for the next few months.

Port Huron Luann Klettner Black, MSW, who has facilitated the group since 2001, will be taking on more responsibilities at Port Huron Hospital. Kelly DiNardo, RN, who works with 55 Plus, has accepted the leadership position of the group. Ann Arbor/Washtenaw County Tri-City/Saginaw Spearheaded by a dynamic group of people with Judy and John Waller at the head, the Ann Arbor Support Thank you to Joan Jackson for your many years of Group is extending its programming in so many differ- leadership and welcome to Julia Schmidt, social worker, ent ways. On a regular basis, they have a newsletter, of Saginaw County Council on Aging. The group is adventure dining, weekly adaptive exercise and music resuming its meetings at the same location in February. therapy classes, and social activities schedule. Contact West Bloomfield the Wallers for information at (734) 662-9784. The West Bloomfield Group wishes to thankErella Berrien County (St. Joseph) Reichman, MSW, for helping to start a firm foundation. Sally Bailey stepped up to the plate a few years ago to Leadership is expanding, with Shari-Beth Goldman help start the Berrien County Support group and now of Jewish Family Services as backup, Joe Prahler and has handed the leadership over to Barbara Ford with Tom Wright as Facilitators, and many others taking on Young Onset PD. Ms. Ford has taken up, as her first new roles. challenge, obtaining funds to continue to supply local libraries with books and tapes on Parkinson’s disease, in addition to scheduling monthly meetings. JOIN YOUR SUPPORT GROUP IN APRIL PARKINSON’S AWARENESS MONTH Greater Lansing Area Contact your local support groups to find out what Don Hitko, “mighty leader” of the GLPSG, has an- is planned for their meetings in April to celebrate nounced that Roland Hubbert has accepted the posi- Parkinson’s Awareness Month. tion of Associate Facilitator. The Planning Committee meets regularly and Ray Buch is very creative with the Some of the groups have special presentations, monthly newsletter. The Carepartner Support Group displays and community outreach to increase continues to be a wonderful resource. awareness of what Parkinson’s disease is and what resources are available. Many groups obtain Howell proclamations from their cities and towns. Jane Haessly’s last meeting as Facilitator after seven If you are interested in doing something special years was in January. She and husband, Jim, will for this month, contact MPF at (248)433-1011 or continue to attend meetings, while Julie Serra takes [email protected]. over as Support Group Facilitator.

(800) 852-9781 • (248) 433-1011 • www.parkinsonsmi.org 15 Nonprofit Org. US Postage PAID The Technicom Group Messenger

30400 Telegraph Road, Suite 150 Bingham Farms, MI 48025 (248) 433-1011 (800) 852-9781 Web site: www.parkinsonsmi.org

MPF provides the following services to those with Parkinson’s and their families:

More than 50 Affiliated Support Groups • Medication Assistance • Informational Literature Adult Day Care Funding • Neurologist & Community Referral • Educational Programs • Advocacy Consult your medical providers before acting on information in newsletter articles. MPF publications offer information intended to be useful to people with Parkinson’s, their caregivers and families, and the professionals who assist them, but they are not a substitute for qualified medical advice.

YOUR GENEROSITY IS GREATLY APPRECIATED PLEASE HELP US NOW! No matter how large or how small. Return to MPF, 30400 Telegraph Road, Suite 150, Bingham Farms, MI 48025, or donate on-line at www.parkinsonsmi.org

Michigan Parkinson Foundation

Please send information on: PLEASE CONTACT ME ABOUT: ___ How I can become an exclusive member of the ___ How I can make a Recurring Donation (weekly, monthly, etc.) Michigan Parkinson Foundation’s CLUB 500 ___ How I might make a gift to MPF in my will, life, insurance or ___ Parkinson’s Disease other special means which may have tax advantages.

Enclosed is my gift of $______My Name______Visa ___Mastercard ___ Discover ___ Amex Address______Account #______exp.______City______State______Zip______Card Security Code: ______County ______Last 3 digits on back of card (4-digits on front of AMEX) Phone: ______In Memory of ______I want to receive further mailings: ___ In Honor of ______By e-mail at______Special Occasion of ______

Please notify the following person of my gift: ___ By regular mail

Name:______DO NOT SEND further mailings

Address______DO NOT INCLUDE my name in publications

City______State______Zip______Your kind donation will be used wherever needed. Please make checks payable to: Michigan Parkinson Foundation. All gifts are tax deductible as provided by law. Michigan Solicitation License #8287