S P R I N G 2 0 1 1 MeSSengeR Exciting things are happening in Michigan! UPComing evenTs Hospitalization and Parkinson’s Disease: maR 29 -31: Celebrate essential Tremor and Parkinson’s one family’s story Awareness month at Henry Ford Hospital West Bloomfield Over the years, one of the major concerns we at the aPR 7: Living with Parkinson’s six Michigan Parkinson Foundation continue to hear is the week series begins – Bay City, MI fear people with Parkinson’s have regarding hospital- aPR 11: Orientation to Parkinson’s ization. A traumatic experience in itself, the inability of maY 6: Living with Parkinson’s those hospitalized to receive Parkinson medications as 6-week series begins – Fraser, MI prescribed makes this experience even more difficult. maY 14: MPF Walk-a-thon and We have read articles in other newsletters about dif- 5K (certified) Run – South Lake ficulties encountered and even the need to avoid emer- Schools, St. Clair Shores gency rooms. Others, on a more positive note, focus on maY 15: MPF Walk-a-thon and how to handle the hospital situation. 5K (certified) Run – Dr. Kelvin Chou northville High School Dr. Kelvin Chou (University of Michigan), and his col- Associate Clinical leagues wrote an article which was featured in NPF’s Professor of Neurol- JUn 2: 26th Annual grand Traverse ogy, Director, Deep Parkinson’s Summer Forum Parkinson’s Report as well as the Messenger, (Fall 2008, Brain Stimulation pp. 6-8), answering 5 frequent questions about hospi- Clinic and Co-Direc- talization. Since then, the Michigan Parkinson Founda- tor, Movement Disor- Table of ConTenTs der Clinic, University tion’s Professional Advisory Board sanctioned a 4- page of Michigan Medical Hospitalization & form created by the Parkinson’s Resources of Oregon Center; and Mem- Parkinson’s .................. 1, 4-5 and Oregon Health & Sciences University (“Critical In- ber, MPF Professional Advisory Board. New Board Members ....2-3 formation for Caring for the Parkinson’s Patient”) which we are encouraging people to complete prior to their hospitalization so they From the Chairman ..........6 can explain to hospital staff what their needs are. Yet, the problem continues. May Walkathon-Runs ........6 The National Parkinson Foundation commissioned neurologists at their Centers of Excellence to review articles and studies relating to the effect of Parkinson Research ..........7 hospitalization on people with PD. Dr. Chou was part of this effort and the Respite Care ...................8-9 results were published in the journal, Parkinsonism and Related Disorders (Aminoff, et. al, Management of the hospitalized patient with Parkinson’s Educational Programs .....9 disease: Current state of the field and need for guidelines. 2011, pp. 139-145). Fundraising A White Paper was written, focusing on the need for education of hospital for Parkinson’s .............10-11 staff about the care of the person with PD while hospitalized. Support Group In this article, we report the success of one family in working with hospital News ............................12-15 staff to care for the hospitalized person with PD. As the story unfolds, Dr. Chou comments on each aspect, from preparation for the emergency room to what happens during the hospitalization. It is the intent of the Michigan Parkinson Foundation to work towards furthering the knowledge base of health professionals to enable the person with Parkinson’s to receive optimal 30400 Telegraph Rd. Suite 150 Bingham Farms, MI 48025 care, regardless of the setting. (800) 852-9781 • (248) 433-1011 Fax: (248) 433-1150 (cont. on page 4) www.parkinsonsmi.org new board members new board members elected The following individuals were elected to Officer and New Member positions at the Annual Meeting of the MPF Board of Directors: Founding President, In Memoriam CHAIRMAN: Edwin B. GEoRGE, M.D., PH.D. Raymond B. Bauer, MD Board Of Directors Dr. George is well-known to the Michigan Parkinson Foundation Edwin B. George, MD, PhD, community. He has been active for many years, as a Board Member, Chairman Professional Advisory Board Member and past Chairman, and as a Peter A. LeWitt, MD, President William Suminski, Vice Chairman frequent speaker for programs and support groups. Dr. George is Lawrence Millman, Treasurer Assistant Professor of Neurology, Wayne State University School of Nanette Michaels, Secretary Jeffrey Appel, Esq Medicine, Harper University Hospital and the John D. Dingell Veterans Tyrone Baharozian, Esq Administration Hospital in Detroit and is Director of the Movement David J. Bartczak Robert Berlow, Esq Disorders Center at Wayne State University and the John D. Dingell Paul A. Cullis, MD Veterans Administration Hospital. Robyn Gorell, APR Linda Grap Anne Hansen, LMSW Brenda Harris PRESIDENt: PEtER A. LEWItt, M.D. Peter Hasbrook Dr. LeWitt has been an active participant in all of MPF’s activities Suzanne Holguin, RN Amy Jackson since he came to Detroit in the mid-1980s. He is Director of Parkinson’s Blake Johnson Disease and Movement Disorders Program, Henry Ford Hospital; Vince Marino Maxine Meach Movement Disorder Specialist at Henry Ford Hospital West Bloomfield, Richard Merson, PhD and Professor of Neurology, Wayne State University School of Medicine. Hon. Gail McKnight Richard McKnight, Esq Dr. LeWitt is active in patient care, research and education. Ronald Slyter Ronald Sollish, Esq Carolyn Weaver VICE CHAIRMAN: WILLIAM SUMINSkI Professional Mr. Suminski, who is the Vice President of Procurement for Comerica Advisory Board Richard Merson, PhD Bank, has demonstrated significant talent and drive in co-chairing and Chairman being a member of the Walk-a-thon and A Night of A Thousand Stars Glen Ackerman, MD committees, and was a volunteer at our events prior to being on the Richard Berchou, PharmD Stuart Blatt, PhD, RPT Board. His expertise, contacts and commitment to volunteerism have Ruth Butler, RN, NEd greatly helped MPF advance in many quarters. Kelvin Chou, MD Brian Cooper, OTR Paul A. Cullis, MD Mark Ensberg, MD tREASURER: Lawrence MILLMAN, CPA Doree-Ann V. Espiritu, MD Bradley Evans, MD This is Mr. Millman’s eighth term as Treasurer of MPF. He is a partner Edwin B. George, MD, PhD in the CPA firm of Grant, Millman and Johnson, PC, located in Novi. John L. Goudreau, DO, PhD He quietly moves mountains in the background for MPF and has lent Frederick Junn, MD Shana Krstevska, MD significant business acumen to the management of our organization. Peter A. LeWitt, MD Richard Trosch, MD Denise Van Etten, RN SECREtARy: NANEttE MICHAELS Laura Zeitlin, LMSW Staff Ms. Michaels is the Chief Operating Officer, Henry Ford OptimEyes. Deborah M. Orloff, MPH, BSN, RN She has been a Board member since 2003, having held positions as Chief Executive Officer [email protected] past Chair of the PR/Marketing Committee, Chair of the Nominat- ing Committee and Strategic Planning Committee and Member of the Kelly Jiacobone, Office Manager [email protected] Revenue Generations Committee. She became very interested in MPF Thanks to: Editor, Robyn Gorell when close friends, Patty and Dennis McCarthy, were Board members and she has taken an active role in making sure the general community MPF programs are supported by your gifts and by grants from knows about Parkinson’s. the following sponsor: Community Health Charities 2 Michigan Parkinson Foundation • Messenger Spring 2011 JEFF APPEL, ESq. We wish to thank Ronald Sollish, Esq., and Robert Mr. Appel is an attorney in private practice, specializing Berlow, Esq. for their exceptional and dedicated services as in the field of federal administrative law, representing Chairman and Secretary, and Carol Sewell, Esq. who has individuals seeking social security disability benefits. served on the Board for the past two years. He is the chair of the Federal Bar Association Social Se- curity Law Committee and a frequent lecturer to medi- Professional advisory board cal and legal groups on disability issues. He is a gradu- CHAIRMAN: RICHARD MERSoN, ate of the University of Michigan and Emory University PH.D., CCC-SLP School of Law. Mr. Appel is well aware of the effects of Parkinson’s disease, with a relative who is diagnosed Dr. Merson, who is Coordinator of Research with it. and Special Projects at William Beaumont Hospital in Royal Oak, was re-elected to a Linda GRAP second term as Chairman. He also holds a Ms. Grap is the director of Senior Health seat on the Michigan Parkinson Foundation Partners, a nationally recognized com- Board of Directors as Chairman of the Pro- munity collaboration in Battle Creek. fessional Advisory Board. Dr. Merson’s interest in Parkin- She has been a strong advocate for son’s disease started while he was in school, doing his Ph.D. the Parkinson community in this city dissertation on PD and speech therapy. He continues to be through her numerous contacts and affili- an active proponent of the need for rehabilitation services ations. She was the Battle Creek project for the Parkinson’s population. coordinator for the National Aging in Place Initiative BRIAN CooPER, OTR and conducted with Partners for Livable Communities to develop blueprints creating “aging friendly” communi- Mr. Cooper is an Occupational Therapist ties. She has received numerous awards from local and with Residential Home Health and is certi- national associations for her services. She is a graduate fied in BIG LSVT Therapy. Formerly with of Central Michigan University and holds a language St. John Hospital, he has actively partici- certificate from the Alliance Francaise in Paris. pated in MPF’s Michigan Parkinson Initia- tive Multidisciplinary Clinics and has given AMy JackSoN presentations at MPI symposia. He also has been co-director Mrs. Jackson lived with Parkinson’s of the 5K at the Eastside I Gave My Sole for Parkinson’s for more than 19 years. Her husband, Walk-a-thon and 5K Run. Thomas Jr., recently passed away, and DENISE VAN EttEN, RN she lovingly cared for him at home.