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Palliative and Supportive Care (2012), 10, 71–73. # Cambridge University Press, 2012 1478-9515/12 $20.00 doi:10.1017/S1478951511000678

EDITORIAL Between solitude and : A meditation

Who knows what true loneliness is — not the con- ness may also be existential, intellectual, political, ventional word but the naked terror? To the lonely and moral. themselves it wears a mask. The most miserable When the terror of life-death presses irreducibly outcast hugs some memory or some illusion. upon ones shoulders an existential or spiritual crisis Joseph Conrad 1857–1924 may express itself as loneliness. Spiritual healers rec- Under Western Eyes (1911), Part I, Ch. 2 ommend retreats, solitude, and withdrawal in order to develop resilience to existential loneliness. Aldous Death is the extreme of loneliness that is what is so Huxley in Brave New World summed up the depth of important. Loneliness is absolute. It is an illusion the existential dilemma: “If one’s different, one’s to imagine anything else. bound to be lonely.” This aspect of loneliness is the gi- Cries & Whispers, Ingmar Bergman, 1973 ven of Yalom’s existential (Yalom, 1980) and Ettema’s existential loneliness (Ettema, 2010). Surrealist artists such as the American Edward The experience of death, although universal is each Hopper in “Nighthawks” (1942) and the Australian time unique. Some look forward to it, others it, Jeffrey Smart in “Cahill Expressway” (1962) describe some try to escape. In the literature there are many painstakingly in their pictures the intense words that are approximations to death-awareness of loneliness expressed as isolation, emptiness, pur- or death-. Words include: distress, de- poselessness, and even absurdity. There is an un- moralization, terror, dignity, meaning, spiritual, paved path that connects loneliness and absurdity, peace, , and isolation. A word that has and both of them undermine our existential security. found little mileage in the palliative care and psy- So how does Bergman connect death to loneliness? cho-oncology literature is loneliness. The epigrams Emphatically he is not talking about a little and transi- however would suggest that loneliness is an integral ent loneliness. He is describing unrequited loneliness part of death. taken to its emotional conclusion. Bergman suggests Loneliness by its nature is a private and hidden loneliness is the fear of utter aloneness in the universe, and may be difficult to distinguish clinically and it its extreme, life ceases to be liveable. from , , and . Loneliness Conrad also commented on the significance of is similar to, although distinct from, Yalom’s concept “true loneliness.” He noted that the most intense of isolation (Yalom, 1980). loneliness — of “naked terror” (and of what, if not Tools have been validated to measure depression, death?) — may need to be ameliorated by a comfort- dignity, and demoralization, but none reliably for ing recollection, even of self-, even if it is a lie. loneliness. The problem may be in finding the precise An extreme viewpoint is that we are always alone. It words to translate the feeling of loneliness. Loneli- is only through crude although remarkably effective ness is not a symptom we typically look for in psy- symbols (words, images, music) that one conscious- cho-oncology or palliative care. It is not in DSM-X ness isolated within a skull can communicate with nor ICDN-Y. It is however found in bars, Facebook, another consciousness equally isolated in a different Twitter, shopping malls, holiday resorts, and crowds skull. In death it is my consciousness and mine alone at sporting events. It is common. that will vanish. In this sense I am utterly alone Loneliness has been described as a gap between when I die. There are celebrated examples of people desired and actual social connectedness, and is choosing to die together in suicide pacts, for example, caused by low self-esteem, , fear of negative Stephan Zweig and his wife Charlotte. There are also evaluation, and poor social skills. Lack of human many stories of murder-suicide finales. One could company is not the sole cause of loneliness. Loneli- argue the toss, whether they died together or alone.

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WHAT DOES THE LITERATURE SAYABOUT death and . This may be the result of a lifetime LONELINESS? of arduous mental effort, a recently acquired under- standing, or a trait established early in life. Another There are few validated questionnaires on loneliness type of solitude may be the expression of social pho- and none specific to palliative care or psycho- bia or other psycho-pathology. oncology. Russel in 1978 developed the UCLA Loneli- Silence is often a part of solitude. In people with ad- ness Scale with 20 questions (Russell, 1978). Rokach vanced disease silence can be a diagnostic between so- developed a Loneliness Questionnaire consisting of litude and loneliness. To be in solitude and bear the 86 yes-no questions (Rokach, 1998), which has been silence, even to enjoy it; to hear ones thoughts, follow used in studying the coping mechanisms of the them, smile ironically to self at some , elderly and in end-of-life research (Rokach, 2007). Nei- but always to sit quietly and know ones own mind. Or ther of these questionnaires has been widely used. does the silence drive one to anxious distraction, and Hawkley showed a high association between lone- one feels forced to rush off to the disco, a movie, or liness and pre-disease pathways, and subsequent the pub, to fill in the fearful silence that lies between morbidity and mortality of chronic diseases such as the ears and the heart? This is the terror of loneliness. cancer, cardiovascular disease, and drug and alcohol Schiller in the song “Solitude” put it well: “When ev- abuse (Hawkley, 2003). erything has left you, you are alone; when you have Cacioppo postulated that loneliness evolved as a left everything behind, there is solitude.” protective psychological mechanism to encourage in- Acceptance of death is learning to be alone, in dividuals to “build social connections” to increase the preparation for the ultimate aloneness, hence loneli- likelihood of survival (Cacioppo, 2006). ness is a symptom of death. Loneliness has a sad and Ettema used a philosophical background to cat- poignant ring to it. A person who never married — or egorize loneliness into social, emotional, and existen- desperately wanted to have children but could not, tial types. Existential loneliness is characterized by a goes home alone and lonely. feeling of isolation, death awareness, difficulty in ex- pressing loneliness, the opportunity to create a posi- tive experience, and acknowledging man’s lonely HAVING DESCRIBED LONELINESS, ARE nature (Ettema, 2010). THERE THERAPIES? Yalom divided isolation into three: interpersonal (loneliness, isolation from other individuals, person- Rather than going directly for the jugular and dis- ality style: schizoid, narcissistic); intrapersonal cussing death, dying and the life hereafter with (stifles ones own or , and accepts oth- patients, it may be better to shoo away loneliness ers’ “shoulds” and “oughts”), and existential that is with companionship, and presence. Is not “an unbridgeable gulf between oneself and any other this what Yalom meant when he said: “it is the re- being; a separation between the individual and the lationship that heals”? (Yalom, 1980; p. 401) And in world” (Yalom, 1980, p. 355), in which each enters those moments and for a period after the interaction, alone and departs alone. if the loneliness is kept at bay with, memory or illu- Yalom’s and Ettema’s taxonomies of isolation and sion, then this is a successful therapy. loneliness are clumsy in the clinical setting. Artifi- A patient who is alone, should he be left alone? He cially dividing up loneliness (given the overlap be- might be in denial, in ignorance, in or tween the subgroups) will not help the clinician at lonely. We should ask the patient whether they want the bedside. Loneliness is the final common pathway to be alone or not; and if so, why so; and if alone, from of many enmeshed causes and factors. whom. If they elect to be alone, we must diagnose whe- I prefer the word loneliness over isolation, for two ther it is pathological withdrawal or peaceful solitude. reasons. Loneliness is a word of the street, a common Finally, loneliness can serve as a nidus for self-ex- human experience, and easier to identify with at the ploration. The distress of loneliness may provide a bedside. Second, loneliness has a more subjective, stimulus for emotional and spiritual . Feel- stronger emotional content, mainly ; whereas ing lonely is a chance to reflect on what it means to be isolation is an objective description, the fact of being by yourself, and indeed, to be yourself. alone. What distinguishes between someone who profits by the intimacy of solitude, and someone who is dis- REFERENCES tressed by the loneliness of isolation? Cacioppo, J.T., Hawkley, L.C., Ernst, J.M., et al. (2006). Solitude in a person near the end of life conjures Loneliness within a nomological net: An evolutionary images of comfort with oneself, dignity, self- perspective. Journal of Research in Personality, 40, knowledge, and , an acceptance of loss, 1054–1085.

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