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Mesothelioma in Australia 2012

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Mesothelioma in Australia 2012 australian mesothelioma registry 2nd Annual Report Mesothelioma in Australia 2012 The Australian Mesothelioma Registry is funded by Safe Work Australia and Comcare. Creative Commons ISBN 978-1-74361-136-4 (pdf) ISBN 978-1-74361-137-1 (doc) With the exception of the Australian Mesothelioma Registry and Safe Work Australia logos, this report is licensed under a Creative Commons 3.0 Australia Licence. To view a copy of this licence, visit: http://creativecommons.org/licenses/by/3.0/au/deed.en In essence, you are free to copy, communicate and adapt the work, as long as you attribute the work to Safe Work Australia and abide by the other licensing terms. This report should be attributed as the Australian Mesothelioma Registry 2nd Annual Report. Contact information: Address Australian Mesothelioma Registry Cancer Institute NSW Reply Paid 41 Alexandria NSW 1435 Phone Helpline (toll-free) 1800 378 861 Email [email protected] Cover image licensing details This file (Micrograph of malignant mesothelioma) is licensed for use by the author Nephron under the Creative Commons Attribution-Share Alike 3.0 Unported license. Contents List of tables ........................................................................................................................................... 2 List of figures .......................................................................................................................................... 3 Acknowledgements ................................................................................................................................ 4 Abbreviations and acronyms .................................................................................................................. 5 Executive summary ................................................................................................................................ 6 1. Introduction ........................................................................................................................................ 8 2. Incidence .......................................................................................................................................... 13 3. Mortality ........................................................................................................................................... 18 4. Asbestos exposure ............................................................................................................................ 19 Appendix A: Methods ........................................................................................................................... 27 Appendix B: Tables underlying figures ................................................................................................. 31 Glossary ............................................................................................................................................... 33 References ............................................................................................................................................ 34 Australian Mesothelioma Registry 1 Mesothelioma in Australia 2012 List of tables Table 1.1: Differences in AMR reports over time ................................................................................. 13 Table 2.1: People in Australia newly diagnosed with mesothelioma by sex and six-month period, 1 January 2012–31 December 2012 ....................................................................... 13 Table 2.2: New cases of mesothelioma and age-standardised incidence rates by sex and state and territory, 2012 .............................................................................................................. 14 Table 2.3: New cases of mesothelioma by histological type, 2012 ...................................................... 16 Table 2.4: New cases of mesothelioma by location of tumour, 2012 .................................................. 17 Table 2.5: New cases of mesothelioma by laterality (where applicable), 2012 ................................... 17 Table 2.6: New cases of mesothelioma by best basis of diagnosis, 2012 ............................................. 17 Table 3.1: Deaths of people diagnosed with mesothelioma in 2012 by state and territory ................ 18 Table 3.2: Cause of death known for people diagnosed with mesothelioma in 2012 .......................... 18 Table 4.1: Recruitment for asbestos exposure data collection for patients diagnosed in 2010, 2011 and 2012 by state and territory, at 31 May 2013 ...................................................... 19 Table 4.2: Classification of assessments of exposure probability ......................................................... 20 Table 4.3: Job-specific modules (JSMs) assigned to participants by types of jobs ............................... 24 Table 4.4: Job-specific module (JSM) exposure assessment results (probability of exposure only) by JSM types (for JSMs used sufficiently often for meaningful interpretation) ................. 25 Table 4.5: Trades JSM exposure assessment results (probability of exposure only) for five largest categories of job titles ........................................................................................................ 25 Table 4.6: Context of non-occupational exposure among 70 participants without evidence of occupational exposure ........................................................................................................ 26 Table A1: AMR notification fields and per cent of missing records, 2012 ............................................ 28 Table A2: Characteristics of patient recruitment process by state and territory ................................. 29 Table A3: Age-standardised incidence rates (World Standard Population) by sex and state and territory, 2012 ..................................................................................................................... 31 Table A4: New cases of mesothelioma and age-standardised incidence rates by sex and state and territory, 2011 .............................................................................................................. 31 Table A5: New cases of mesothelioma by age-group, 2012 ................................................................ 31 Table A6: New cases of mesothelioma by sex and age-group, 2012 .................................................... 32 Table A7: Age-specific incidence rates of mesothelioma, 2012 ........................................................... 32 Table A8: Deaths of people diagnosed with mesothelioma in 2011 by state and territory ................. 32 Table A9: Cause of death known for people diagnosed with mesothelioma in 2011 .......................... 32 Australian Mesothelioma Registry 2 Mesothelioma in Australia 2012 List of figures Figure 1.1: AMR data flow .................................................................................................................... 10 Figure 1.2: AMR asbestos exposure information collection ................................................................. 12 Figure 2.1: New cases of mesothelioma by age-group and sex, 2012 .................................................. 15 Figure 2.2: Age-specific incidence rates of mesothelioma by sex, 2012 .............................................. 16 Figure 4.1: Occupational exposure assessment process by stage ........................................................ 22 Australian Mesothelioma Registry 3 Mesothelioma in Australia 2012 Acknowledgements This report has been prepared by staff of the Australian Mesothelioma Registry (AMR) and the Monash Centre for Occupational and Environmental Health (MonCOEH), in collaboration with the AMR Management Committee. The Committee includes members from the following organisations: Safe Work Australia Cancer Institute NSW Monash Centre for Occupational and Environmental Health, Monash University Asbestos Diseases Research Institute Cancer Epidemiology and Health Services Research Group, University of Sydney University of Western Australia and the Western Australian Cancer Registry Comcare The authors would like to thank the state and territory cancer registries for the provision of incidence and mortality data, and for undertaking patient recruitment for the asbestos exposure data collection. The Australian Institute of Health and Welfare (AIHW) are also acknowledged for conducting linkage of AMR data to the National Death Index (NDI). Australian Mesothelioma Registry 4 Mesothelioma in Australia 2012 Abbreviations and acronyms ACD Australian Cancer Database ACM Asbestos containing material ACT Australian Capital Territory AIHW Australian Institute of Health and Welfare AMR Australian Mesothelioma Registry ANZSCO Australian and New Zealand Standard Classification of Occupations CINSW Cancer Institute NSW HVRF Hunter Valley Research Foundation JSM Job-specific module MonCOEH Monash Centre for Occupational and Environmental Health NDI National Death Index NOHSC National Occupational Health and Safety Commission NSW New South Wales NT Northern Territory OccIDEAS Occupational Integrated Database Exposure Assessment System Qld Queensland SA South Australia Tas Tasmania Vic Victoria WA Western Australia Australian Mesothelioma Registry 5 Mesothelioma in Australia 2012 Executive summary The Australian Mesothelioma Registry (AMR) became operational in 2011 and contains information about people diagnosed with mesothelioma in Australia from 1 July 2010. The AMR also has a voluntary
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