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2019 at Contents Fostering the best possible a glance future for young people

Total funding awarded CHF 2019 at a glance 02 Among the key developments for Fondation m Botnar in 2019 were the appointment to 42.29 Editorial 03 the Board of Florian Schweitzer, a wide- ly respected figure in tech finance and a Grants awarded Milestones 2019 04 champion of young tech entrepreneurs, and the establishment of an Expert Advi- Message from the CEO 08 sory Group consisting of members of our 51 Cities fit for young people Board, Management Office, and experts 10 from academia, business, and NGOs with AI and digital for the next 14 expertise in our focus areas. This group, Funding according to grant type which replaces Fondation Botnar’s former generation Scientific Commission, has provided sub- Meaningful youth participation stantial support in examining and advising 16 us on funding applications to ensure we Perspectives: health data 18 make high-impact investments to improve young people’s health. governance Thomas A. Gutzwiller In addition, this past year saw the Man- Governance 20 I am a firm believer in the combined poten- agement Office fully staffed by experi- tial of digital solutions and thriving local enced team players with the networks and One-off grants: 13% Foundation team 21 ecosystems to foster the best possible know-how that Fondation Botnar needs to Implementation grants: 61% Financial statements 2019 22 future for young people around the world. implement its strategy in the areas of city Research grants: 26% It has therefore been an honour to be ap- engagement, AI and digital innovation, and Grants awarded 24 pointed the Chair of the Fondation Botnar meaningful youth participation. Board as of September 2019. On behalf of Fondation Botnar and its partners, I would I look forward to presiding over Fondation like to thank Dr Peter Lenz for his 16 years Botnar’s next phase of development as it Fondation Botnar of Board leadership, which culminated in works to make the world’s growing cities Fondation Botnar is a Swiss foundation the completion of our organisational setup into healthier, more liveable places for based in Basel and established in 2003 at the end of 2019. young people to thrive in. to continue the philanthropic legacy of Marcela and Octav Botnar. The core purpose I have long been motivated by the ways in of the foundation is to improve the health which philanthropy can lead and contribute and wellbeing of children and young peo- to the transformation of local and global ple in fast-growing urban environments systems. In my first few months on the Fon- around the world. Fondation Botnar acts dation Botnar Board and working with the as a catalyst, connecting diverse partners Management Office, I have been energised and investing in scalable artificial intelli- by the vision and dedication of the people Thomas A. Gutzwiller gence (AI) and digital innovations. who have worked to establish our organi- Fondation Botnar sation, bringing external experts on board, Chair of the Board strengthening our governance and trans- parency, and taking a focused, sustainable approach to the investments we make and the partnerships we build.

Marcela and Octav Botnar Milestones 2019 Milestones 2019 04 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 05

Our milestones

HEALTH & Fondation Botnar reached important milestones in 2019, TECHNOLOGY entered into new partnerships, and participated in key events. Dialogue around health data governance

WHAT YOUNG PEOPLE REALLY THINK Fondation Botnar hosts AUGUST 2019 sessions on health data governance at the Intel- Ada Health App in Swahili International Youth Day ligent Health Summit in and Romanian New Board member Partnership with Unisanté 2019 Basel and at the World Ada Health, a free health Florian Schweitzer joins Fondation Botnar an- To learn more about what Health Summit in Berlin. guidance app, launches the Board of Fondation nounces a partnership today’s young people New Board Chair in Swahili, a language Botnar as a business with Unisanté to support think about the intersec- Thomas A. Gutzwiller spoken by more than 100 specialist focused on the implementation of tion of technology with assumes office as Chair of million people across East startups. clinical algorithms to global health, Devex, Fondation Botnar. He suc- Africa. The implementa- improve the health of fe- working with Fondation ceeds Dr Peter Lenz who tion of the app in Swahili brile children and reduce Botnar and others, asks had helped establish and is funded by Fondation unnecessary antibiotic more than 1,500 young definitively shape Fonda- Botnar, along with the prescriptions in Tanzania. people for their views. tion Botnar since 2003. Romanian version.

January February March April May June July August September October November December

Specialists for Expert Commission Partnership with Women Deliver Afya-Tek announced Dialogue on mental health Fondation Botnar appoints five Fondation Botnar announces a Fondation Botnar, Fondation Botnar, Vitol Foundation, external specialists to its Expert partnership with Women Deliver, a Apotheker Consultancy, and the Belgian Embassy host a Commission: Ramesh Raskar (AI & global advocacy organisation that D-tree International, and dialogue event in London, bringing Digital Health), Max Price (Global champions the health and rights of partners set up “Afya- global innovators together to share Research and Solutions), Kelechi girls and women, to promote mean- Tek”, a proof of concept experiences of digital solutions to Vera Olawoyin (Changemakers & ingful youth participation. At the for the integration of improve adolescent mental health. Capacity Building), Alice Gugelev Women Deliver Conference 2019 digital technologies (Entrepreneurship & Innovative in Vancouver, Fondation Botnar into a new responsive, Healthy Cities for Financing), and Michele Acuto organises sessions and workshops people-centred health Adolescents program (Cities). on youth leadership to harness dig- initiative in the Kibaha Fondation Botnar an- Dialogue on AI in low- and middle- ital innovation for universal health district in Tanzania. Briefing during UNGA nounces its “Healthy income countries coverage by 2030. Fondation Botnar organ- Cities for Adolescents” Together with partners, Fondation ises a high-level briefing program, an initiative to Botnar cohosts a dialogue event during UNGA, New York, foster multi-stakeholder, on Next-generation public health: on the upcoming joint The community-led consortia AI and big data. More than 80 prac- Lancet & Financial Times to address the health titioners, academics, and policy- Commission “Governing and wellbeing of young makers contribute to the insightful Health Futures 2030”. The people in cities around discussion in London. briefing is cohosted with the world. the permanent missions to the United Nations of Ramesh Raskar Switzerland, Germany, Alice Gugelev and India. Max Price Michele Acuto Kelechi Vera Olawoyin (left to right and top- down) Lorem ipsum Lorem ipsum A Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 B

Making cities more liveable

In 2050 nearly 70 per cent of the world’s population will be urban dwellers. Amongst young people the share will be even higher. For them especially, Fondation Botnar aims to make cities more liveable and lovable places to grow and flourish in. We promote the wellbeing of young people by championing the use of artificial intelligence and digital technologies. Message from the CEO Message from the CEO 08 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 09

Expanding partnerships and programs

2019 saw Fondation Botnar step up its support of inter- disciplinary collaboration and youth-centred design.

easing access to health education, diagnosis, and treatment, as well as for the worse, by contributing to such ills as cyberbullying, social isolation, and erosion of privacy. Fondation Botnar brings together diverse partners to leverage collective efforts. From left to right during the joint Lancet As digital natives, these young people are and FT Commission Governing Health Futures 2030: Prof. Ilona Kickbusch, Co-Chair of the commission (left), and Dr Stefan ideally suited to cocreating solutions that Germann (third from left) meeting Swiss delegates. will effectively tap into the opportunities and address the risks that such technologies joint The Lancet & Financial Times Com- technologies that improve global public

present. Their readiness to do so was on mission to discover ways in which digital health, and to formulate Fondation Botnar’s impressive display at several youth-centred health, AI, and other frontier technologies position on data governance with a focus on

events we supported in 2019, including can benefit the health of young people. young people’s interests. workshops at the Africa Health Agenda Inter- The other – the Botnar Research Centre for national Conference Youth Pre-conference Child Health (BRCCH) – aspires to be the Another key milestone was the further devel- in Rwanda and the Women Deliver Confer- ” leading institution in research on digital opment of activities in our first two selected ence in Vancouver, where their input and and next-generation solutions that show cities – Tanga, Tanzania, and Cluj-Napoca, perspectives guided our youth engagement potential to improve the health and wellbe- Romania – to cocreate the Fondation Botnar efforts on the role of digital technologies to ing of children and adolescents worldwide. “OurCity” initiative, in which selected cities Dr Stefan German advance universal health coverage (UHC). Its four inaugural research projects were around the world implement coordinated, selected in 2019, with implementation to technology-supported city-wide programs Fondation Botnar promotes the wellbeing Organisational setup complete start in 2020. that improve young people’s lives. This gave of young people by championing the use of By the yearend, our organisational setup us a prime opportunity to apply AI technol- artificial intelligence (AI) and digital tech- was complete, and our investments and ogy in the conceptualisation and planning nologies to make cities more liveable, lova- partnerships were aligned with the new of our own projects. Our team used an ble places for them to grow up and flourish strategic direction that Fondation Botnar I am proud of our progress AI-enabled tool created by The Stakeholder in. Of the nearly 70 per cent of the world’s embarked upon after the establishment of Company to conduct stakeholder mapping people – and the even larger share of our Management Office in 2017. Highlights so far and excited about the and management in Cluj-Napoca. We also young people – whom the United Nations included the welcoming of the new Chair of continued to digitise Fondation Botnar’s of- predicts will be urban dwellers in 2050, the Board, the inauguration of a new Expert opportunities ahead. fice processes, for instance, by adopting tools most will live in so-called “secondary”, Commission of external leading experts to manage all contracting electronically, and intermediate cities. We aim to maximise our in our five core areas of interest – AI & began exploring the possibility of using AI to impact by targeting these cities, which, by Digital Health, Global Research & Solu- increase the efficiency and effectiveness of virtue of their smaller size, faster growth, tions, Changemaker & Capacity Building, Fondation Botnar sees multilateral institu- some core activities as well. leaner structures, and fewer stakeholders, Entrepreneurship & Innovative Financing, tions such as the UN and WHO as best placed are more amenable than metropolises to and Cities – and the completion of our staff and equipped both to facilitate the ”scaleup Key elements now in place systemic, transformative change. hiring, which has strengthened our policy of promising approaches that emerge from Fondation Botnar’s day-to-day operations expertise in data governance. such work and to lead the development of began with my appointment as CEO in early Emphasis on young people a global framework for health data govern- 2017. Three years on, we have grown into a In 2019 we strengthened our focus on We have increased our commitment to ance that takes account of ethical and human 17-strong team of professionals committed adolescents and young adults, who often fall international, interdisciplinary joint action rights concerns. For this reason, in 2019 we to building partnerships and programs that between the cracks of existing programs. on topics that impact on young people’s began to support the WHO’s new Depart- put frontier technologies like AI to work for We believe that AI and digital technologies wellbeing. In this vein I would highlight ment of Digital Health and Innovation, the young people at the heart of our mission. have tremendous potential to transform Fondation Botnar’s support of two ventures which aims to help countries accelerate the I am proud of our progress so far and excited their wellbeing for the better, for instance by that began operations in 2019. One is a expansion of health coverage by leveraging about the opportunities ahead. Cities fit for young people Cities fit for young people 10 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 11

Transforming cities from within

In 2019 Fondation Botnar began putting its ideas to the test with the launch of five “Healthy Cities for Adolescents” projects and by selecting the first two cities to be part of the “OurCity” initiative.

Numbering 1.8 billion today, young people How can urban planning and development aged from 10 to 24 account for about one- support the needs of the young people quarter of the world’s population and a who will shape the future of their cities? growing share of city inhabitants. More- How can these young city dwellers con- over, nearly all the projected growth in tribute to creating environments where urban populations – set to reach 6.4 billion they will thrive? What tools do we need The “Healthy Cities for Adolescents” program strives to transform cities into healthy, liveable, and sustainable places people by 2050 – will occur in cities in low- to get there faster – and with a scalable where adolescents are empowered to contribute as thriving citizens. Initial projects include interventions in Cali, Colom- and middle-income countries. While cities impact? bia. present young people with tremendous economic, social, and educational oppor- Cities where young people matter In 2019 we were pleased to announce the The three “Healthy Cities for Adolescents” tunities, rapid urbanisation often brings For Fondation Botnar, the place to look kickoff of five of these projects: one each in projects in Colombia are also diverse. with it unsafe infrastructure, inadequate for answers to these questions is where Ghana and Senegal, and three in Colombia. Impact Hub’s “Gambetiando” initiative services, and a higher risk of violence and innovation, collaboration, and digital Since then, the teams have begun adapting engages young people in disadvantaged injury, threatening their wellbeing and technology meet. To provide healthy, safe, their activities in light of on-the-ground neighbourhoods of Medellín in football even their survival. and dynamic environments for future gen- realities, as well as feedback from their activities whilst also fostering their so- erations, we unite key players with young partners and communities – including cioemotional skills development, values people, working collaboratively with them adolescents themselves. In some cases, formation, and entrepreneurialism through on policies and initiatives that transform this has led them to expand partnerships activities at the Impact Hub. The local fast-growing cities, and investing in the to strengthen core areas. In others, it has organisation Coschool in Cali, in contrast, skills development of urban youth. spurred them to sharpen their focus to launched the “Comvos” project to improve increase impact. adolescents’ wellbeing by creating, exe- Our “Healthy Cities for Adolescents” pro- cuting, and scaling up a model that equips gram, a multi-year initiative developed with Prioritising the risks adolescents face them to tell the story of their own experi- the International Society for Urban Health, Managed by Nutrition International, “Fort ences of living in the city, for instance by takes just such a multipronged approach. pour le futur” is a multistakeholder model making a short film about how they get to In 2019 we chose five projects that aim to for supporting adolescent nutrition, and school. Coschool will scale the initiative work hands-on alongside local partners sexual and reproductive health empow- by training city officials and school leaders to identify obstacles to the health, safety, erment in Thiès, Senegal. It plans to build to replicate the methodology through an and overall wellbeing of adolescents in the capacity of local civil society actors e-learning platform and local networks. the respective cities and to devise ways to advocate and participate in the de- to address them. The projects employ dif- sign of interventions and policies and to Finally, Fundacion Despacio’s “Vivo Mi ferent designs and tackle different issues hold people of influence accountable for Calle” project sees the roadways in Cali – from sexual and reproductive health to results. Taking a more targeted approach, not only as a potential threat to young road safety – but they all provide space “Innovative Adolescent Health Interven- people’s safety due to the risk of traffic -ac for young people to participate, integrate tions” is identifying gaps and collaborat- cidents, but also as an opportunity to pro- technology where appropriate, leverage ing in the provision of sexual reproductive mote healthy behaviours such as walking formal and informal partnerships, and health services for adolescents and young and biking. It plans to design safe intersec- have committed to monitoring and evalu- people in Tamale, Ghana. Led by the Re- tions, increase road safety, and strengthen ating results. gional Institute of Population Studies at municipal mobility initiatives, as well as Numbering 1.8 billion today, young people aged from 10 to 24 account the University of Ghana, the project aims increasing knowledge and data collection for about one-quarter of the world’s population. to influence municipal health planning. around safe, sustainable mobility in Cali. Cities fit for young people 12 Fondation Botnar | Annual Report 2019

In 2020 all five projects will continue with their imple- mentation and be joined by two more in India and Viet- nam, respectively. Consistent with Fondation Botnar’s commitment to enabling and promoting collaborative learning, a knowledge management platform will be es- tablished to deepen learning and best-practice sharing among all the partners as the consortium develops.

As part of our global city engagement strategy, Fon- dation Botnar plans to establish several cities under the “OurCity” initiative to help cities around the world implement coordinated programs and leverage AI and digital technologies to transform themselves into places where young people’s voices and needs are heard and prioritised. A defining characteristic is the involvement of multiple stakeholders, including young people, local authorities, businesses, and civil society organisations.

After selecting Tanga in Tanzania as the first “OurCity” city, in 2019 we continued to work together with the local authorities to create the enabling environment for imple- mentation in 2020. In 2019 we also selected our second city, Cluj-Napoca (Romania), where implementation will begin in 2020, with hands-on involvement from the Fondation Botnar team in designing a city-wide systemic approach. Over the next 10 years we plan to support the establishment of around six to seven cities around the world as part of the “OurCity” initiative.

Jhoiner Andrés Quiñones, age 10, participant in “Healthy Cities for Adolescents” initiative “Vivo Mi Calle” in Cali, Colombia

“What I like most about Cali is the green areas, like the parks and the football field. I feel unsafe when cars go too fast or when motorcycles use the pavements and could run us over.”

Fondation Botnar’s “Healthy Cities for Adolescents” initiative started supporting projects in Ghana, Senegal, and Colombia in 2019. One of the projects in Colombia is based in Medellín (pictured to the right). AI and digital for the next generation AI and Digital for the Next Generation 14 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 13

Making AI and digital work for the public good

Aligning healthcare capacity with need requires dramatic, scalable change that Fondation Botnar believes can be achieved only by integrating artificial intelligence and digital technology into health and wellbeing at every level.

Human-centred, integrated technology services that are both sustainable and scalable can benefit young people world- wide.

The third Sustainable Development Goal Opening doors with digital the team’s DYNAMIC platform presents an opportunity ownership and privacy limit the potential of innovative (SDG) for 2030 is to ensure healthy lives Artificial intelligence (AI) and digital technol- to validate new diagnostics from other initiatives, which technologies to support progress towards achieving the and to promote wellbeing for people of ogy can help fill that void and make health- could strengthen the uptake and integration of future SDGs, particularly quality healthcare for all by 2030. We all ages. Fondation Botnar wants to help care more predictive of, and responsive to, digital tools in Africa and beyond. also aim to ensure that digital technologies aid rather realise this goal by supporting efforts to young people’s specific needs by harnessing than hinder health equity, accelerating access to health hold the global community to its prom- big data and clearing barriers to equitable Integrating digital technologies into a new health promotion and democratising care and coverage. ise of bringing quality healthcare to the access. Data-informed insights can guide initiative billions who still lack it. With the global the efforts of governments, local authori- In another Tanzania-focused initiative, we and our In response to these challenges, Fondation Botnar population set to reach 8.5 billion by 2030, ties, and healthcare providers to adapt to partners began setting up “Afya-Tek”, a demonstration is supporting a joint The Lancet & Financial Times tackling the shortage of health workers who changing demographics and health needs, project that aims to integrate digital technologies into Commission called “Governing Health Futures 2030: can provide that care – a gap expected to from predicting diseases and outbreaks to a new health initiative in Kibaha, capital of the Pwani Growing up in a digital world”, which will examine the grow to 18 million, with the proportionally improving overall quality of life. For the region. “Afya-Tek” works to link community health convergence of digital health, AI, and other frontier largest shortfalls in Africa and Asia – will be good of individuals as well as societies, data workers, health facilities, and private drug dispensaries technologies with a focus on how they can benefit the especially daunting. collection and use must be approached with to improve decision-making and quality of care along the health of children and young people. caution and sensitivity to the concerns of continuum of care, helping to ensure prompt access and digital natives and older generations alike. reduce unnecessary referrals. The initiative is the first of Recognising the urgency of catalysing cross-sector its kind to use emerging digital tools to better connect action around the shared goal of leveraging digital Research activities in Tanzania and health system actors, including predictive analytics and technology, in 2019 we also convened a new “Digital Switzerland biometric identification. It will also assess the feasibility Transformation for Universal Health Coverage 2030” co- Digital technology harbours great poten- of integrating AI-enabled health tools. alition, with partners including Partnership for Maternal, tial too as a means of democratising access Newborn & Child Health (PMNCH), PATH, and Women to health-related knowledge and advice. With Fondation Botnar’s support, in 2019 Ada Health – Deliver, that will cocreate a series of campaigns and In 2019 Fondation Botnar began support- an AI-based app that gives users health information and advocacy initiatives for implementation by 2030. ing researchers from Unisanté, the newly advice based on an assessment of their symptoms – was created Swiss-based University Centre made available in Swahili, and adapted to the linguistic, for Primary Care and Public Health, along cultural, and medical context in the East Africa region. with the Swiss Tropical and Public Health The app is now thus accessible to about 100 million Institute, and two research institutes in Swahili speakers, helping to significantly improve ac- Dialogue event on adolescent mental health Tanzania: Ifakara Health Institute (IHI) and cess to quality health information and advice, particu- the National Institute for Medical Research larly for young people and families. Fondation Botnar In October 2019, Fondation Botnar hosted an event in Lon- Prof. Ilona Kickbusch, Co-Chair of The Lancet & FT (NIMR), who have developed mobile-based also funded the app’s adaptation to Romania and is don that brought together leading figures who run digital Commission: Governing Health Futures 2030 algorithms that connect to dynamic clinical supporting its validation. health programs addressing the relationship between and point-of-care tests to guide and train digital technologies and adolescent mental health. Many of “When creating innovative solutions health workers in the management of sick Tapping into opportunities with a close eye on risks the 10 to 20 per cent of young people experiencing mental to health problems, we must make sure children and adolescents. The project could While digital technologies are already changing how health conditions today remain untreated, a gap that is avoid millions of clinical failures and tens of we approach health promotion and the design of health particularly large in low- and middle-income countries. The the benefits can be experienced by millions of unnecessary prescriptions of an- systems, governance models have not kept pace with everyone. Meaningful youth engage- diverse panellists shared insights into the potential for dig- tibiotics every year. To be deployed over five this stream of innovation. Fondation Botnar is con- ital innovation to achieve equitable progress, from peer- ment must therefore be integrated into years in 70 health facilities across Tanzania, cerned that the lack of clarity and guidance around data and community-led support forums to digitised cognitive long-term strategies.” behavioural therapy, as well as the challenges it presents. Meaningful youth participation Meaningful youth participation 16 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 17

Engaging young people for positive change

In 2019, Fondation Botnar started teaming up with experienced changemakers not only to create spaces in which young people can express their needs and ideas but also to get the world to listen.

By 2030 there will be 2 billion young peo- to try harmful substances, to be exposed ple in the world, making up an increasingly to violence, to be involved in road traffic Fondation Botnar, PATH, Women Deliver, and the Partnership for Maternal and Child Health, brought together young people large proportion of the global population. accidents, to experience anxiety, eating dis- at the 2019 Women Deliver Conference to discuss the opportunities and challenges of technology for health. With only 1.9 per cent of legislators aged orders and addictions, or to develop sexual below 30 and less than 2 per cent of global and reproductive health issues. Their degree health funding allocated to their specific of vulnerability depends strongly on where support will fund the expansion of the Women Deliver health issues however, young people con- they grow up. Those in sub-Saharan Africa, Young Leaders Program, which equips outstanding young tinue to lack a voice and representation in for example, account for about 37 per cent of changemakers with the knowledge, skills, and resources policymaking and programs. all new global HIV infections, and 23 million to amplify their influence on a global scale. Women teenage girls in emerging economies lack Deliver boasts 700 Young Leaders and alumni from 138 Adolescents are vulnerable access to modern contraception. countries who are advancing gender equality in their Though usually seen as a healthy period of communities, in their countries, and around the globe. life, adolescence sets the stage for health Without proper support, these issues are risks in the long term. Relative to young likely to lead to lasting health problems and New opportunities to be heard children, adolescents are more likely disadvantages in life. Engaging with today’s Together with several partners from the “Digital Trans- young people to address them is critical, as formation for Universal Health Coverage 2030” coali- they are well placed not only to understand tion (see page 15), Fondation Botnar conducted a global their own needs but, as digital natives, also to survey in 2019 that gives a snapshot of young people’s use AI and digital technologies to take health perspectives on the role of technology in accelerating improvement efforts into their own hands. progress on their health. When it comes to integrating Tanisha Chadha, Manager, at CREA and Women Technology can and does empower them – technology into health practices, respondents’ key Deliver Young Leader whether it be to educate themselves about concerns included the high costs of care as a barrier to sexual health, to increase their physical access, anxieties around personal data security, and a “Without technology, we cannot acceler- fitness, or to access mental health support. desire to be involved in key decision-making. ate progress for the key health challenges Although there are challenges that warrant young people face today, from sexual attention, such as inclusion and data privacy To address the lack of opportunities for young people to concerns, we must recognise the benefits of provide their insights on how we can ensure everyone health issues to mental wellbeing. It has investing in such innovations and platforms. has access to quality healthcare, we and our coalition never been more important to find cre- partners are also setting up a youth council called ative and dynamic ways to reach them. Encouraging youth participation “Young Experts: Tech 4 Health” to give young people a Meaningful youth engagement must Encouraging youth participation requires platform to shape the agenda around digital innovation also recognise and integrate vulnerable the right listening and feedback tools. At for greater healthcare access. To be appointed from Fondation Botnar we are strongly committed January 2020 until September 2021, the council will be young people, including those living in to tackling the prevailing underinvestment comprised of twelve members representing each of the poverty, with a disability, as well as gen- in youth participation through our partner- WHO’s six regions and will be hosted by Plan Interna- der and sexual minorities, among others ships. One effort to promote meaningful tional Canada. – to ensure that no young people are left youth engagement in gender equality efforts out of long-term strategies.” and initiatives that we launched in 2019 is In 2020 and beyond, Fondation Botnar looks forward a partnership with Women Deliver, a global to engaging young people more extensively in our dis- advocacy organisation that champions the cussions and the development of initiatives to promote Youth consultation on technology for health at Women Deliver 2019. health and rights of girls and women. Our their health and wellbeing across our areas of work. Perspectives: health data governance Perspectives: health data governance 18 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 19

Harnessing benefits, heeding risks

Digitalisation offers enormous opportunities to improve the wellbeing of young people worldwide. However, at the same time, technologies like AI carry the risk of the misuse of personal data. Health data governance is therefore a key issue, says Ulla Jasper, Policy Officer at Fondation Botnar.

and machine learning are based on representative, fair, As innovations move from pilot to scale, Fondation and non-biased data sets and that the benefits brought Botnar believes that digital health stakeholders must about by the new technologies are shared fairly. The vast work to reduce the fragmentation of data, collaborate Fondation Botnar believes that data-driven Yet a lack of comprehensive political, legal, divide in internet connectivity that still prevails in many more to avoid the unnecessary duplication of tech- digitalisation will be integral to transform- and regulatory frameworks is leaving resource-poor settings must also be closed. nological capabilities, and improve the sharing of valu- ing healthcare systems, health services, digital health research and development to able, anonymised data that might benefit the public and medical practices for the good of young unfold in a largely autonomous landscape Health data to serve the global public good good. Here, as throughout our work, we urge giving a people everywhere. At the same time, we where health data is almost continuously Fondation Botnar advocates the establishment of prominent role to the young people who, as the next are keenly aware that artificial intelligence extracted and appropriated from individ- national and global governance mechanisms to balance generation of digital natives, have an unprecedented (AI) and other frontier technologies harbour uals and even societies. The most vulner- ethical concerns and rights with the opportunities opportunity to participate in shaping a more equitable potential to undermine privacy and autono- able in society are increasingly subject to offered by big data in health. For example, as CEO Ste- digital future. my and to introduce new forms of health- demands and forms of intrusion without fan Germann explained on the Power Stage at Women care inequality and bias. In 2019 we began accountability, with citizens’ information Deliver 2019, we want to see health data used to serve defining our views on how to ensure that becoming ever more accessible to private the global public good. This means that everyone can, digital health technologies evolve within companies and governments, while the and should, benefit from the promises of digitalisation a global governance framework guided by benefits are rarely shared. and AI, without any infringement of human rights. We International Digital Health & AI ethics and human rights – a prerequisite for are also convinced that organisations such as the WHO, Research Collaborative (I-DAIR) AI and digital solutions to live up to their Preventing discrimination and bias the UN with its High-level Panel on Digital Coopera- promise in every area of our work. People may not know how their data is being tion, and national governments must lead the devel- The International Digital Health & Artificial collected, processed, or repurposed, or that opment of policy and initiatives that help to balance Intelligence Research Collaborative (I-DAIR) Not only have new possibilities for diagnos- the results could potentially discriminate healthcare digitalisation with key requirements such seeks to advance the UN’s High-level Panel on tic, preventative treatment, and rehabili- against the individuals and communities as accountability, quality, security, and access. Through Digital Cooperation’s recommendations related tation improved healthcare systems and concerned. A lack of transparency in the our partnership with the International Digital Health & to digital health, as well as targets set at the services, but as internet-connected devices creation and deployment of algorithms can Artificial Intelligence Research Collaborative (I-DAIR), WHO on universal and quality health coverage. continue to surge and develop exponen- result in inbuilt discrimination and bias on we are already supporting research to identify gaps in Its proposed pathway for effecting change is to tially along with “big data”, they are the basis of characteristics such as gender, existing policy and to gather evidence that can inform cocreate with diverse stakeholders a neutral becoming key drivers of innovation, health, or economic status. In fact, bias may the necessary adaptations and reforms (see box). international platform that promotes responsi- research, and development. This be introduced by the sheer fact that much ble, inclusive AI research and digital technology revolution is well underway in data is generated in high-income settings, Reflecting our commitment to enable and promote col- development for health, for instance by moving high-income countries and is creating skewed or inadequate datasets. laborative learning about issues that impact young peo- towards health data as a global public good, having a growing influence People also may not understand that tech- ple’s lives, Fondation Botnar facilitates and contributes addressing key governance, benchmarking, on healthcare provision nologies they rely on, even outside the med- to discussions about the guidelines, regulations, and promoting responsible ecosystems, bridging in low- and middle-in- ical realm, may be used to predict, detect, or laws that may be needed to manage the risks of digi- different research and practice communities, come countries, bright- influence health-relevant behaviours. talisation and to ensure that the right stakeholders are building capacity, and addressing collaboration ening the prospects at the table. In 2019, for example, we set up the youth challenges such as data interoperability. The for universal health While digital technology and big data are council “Young Experts: Tech 4 Health” (see page 17), a incubation effort based at the Graduate Institute coverage as well. central to Fondation Botnar’s mission and ac- platform where young people can contribute to public of International and Development Studies, was tivities, we realise that many of these prob- dialogue about topics including health data governance. initially convened by Fondation Botnar and is lems are at their root socio-political. To keep We also advocate scaled-up, systemic approaches that now also supported by Geneva Science & Diplo- health inequalities from growing even larger, are tailored to existing infrastructure and to the needs macy Anticipator Foundation (GESDA). technology developers need to guarantee of local populations and healthcare workers, rather than that the algorithms embodying the core of AI more vertical, top-down projects and pilots. Governance Foundation team 20 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 21

Governance Foundation team

Fondation Botnar is a foundation estab- Foundation Board Board Management Office lished in Basel in 2003 to carry on the The Board of Fondation Botnar comprises Otto Bruderer, finance expert (since 2004) Heike Albrecht, Risk & Compliance Manager philanthropic work of the Botnar family. It is at least five members. Board members are Flavia Bustreo, children’s health and rights expert Aline Cossy-Gantner, Chief Learning Officer a member of SwissFoundations, an umbrella elected for three-year terms and can be (since 2018) Stefan Germann, Chief Executive Officer organisation of charitable foundations in reelected (as of 2015) for a maximum of Thomas A. Gutzwiller, Chair (since 20 September 2019) Susanna Hausmann-Muela, Chief Program Officer Switzerland, and applies the guidelines and nine years’ service on the Foundation Martin Lenz, legal expert (since 2004) Thuy Anh Huynh-Le, Grants Administrator recommendations of the Swiss Foundation Board. Peter Lenz, Chair (until 19 September 2019). Honorary Ursula Jasper, Policy Officer Code (2015). The Swiss Foundation Code Founding President (since 19 September 2019) Siddhartha Jha, AI/Digital Program Manager originated from the foundation sector as a Accounting Amalie Molhant Proost, Botnar family representative Kiara Marvuglio, Engagement & Communications self-regulatory and application-oriented Accounting is based on the Swiss GAAP FER (since 2018) Manager tool to provide a framework for good foun- 21 standard for charitable social non-profit Elsbeth Müller, child development expert (since 2015) Szandra McCrory, Executive Assistant dation governance. It defines the norma- organisations in accordance with the pro- Florian Schweitzer, business and startup expert (since Eva Moldovanyi, Grant Manager tive orientation for all foundation activity visions of Swiss law, in particular Articles 22 February 2019) Zur Oren, Learning Hub & Partnerships Program Manager according to three principles. 957 to 962 of the Swiss Code of Obligations Marcel Tanner, research expert (since 2018) Beatrice Schibler, Research Project Manager on commercial bookkeeping and account- Karin Schumacher, Chief Operating Officer ing. The annual financial statements of the Sushant Sharma, Chief Investment Officer The foundation shall implement its purpose in foundation present a true and fair view of External Experts on Expert Commission David Suhr, Strategic Learning & Evaluation Manager the most efficient, effective, and timely manner. the foundation’s assets, as well as its finan- Michele Acuto, cities expert Antoine Veyrassat, Senior Portfolio Manager cial and earnings position. Alice Gugelev, entrepreneurship & innovative Bea Weibel, Office Administrator financing expert

Through appropriate organisational measures, Funds are recognised when the Foundation Kelechi Vera Olawoyin, changemakers & capacity the foundation shall ensure a balance between Board decides on the expenditure. In each building expert leadership and control for all important deci- case, the entire amount is recognised as an Max Price, global research & solutions expert sions and processes. expense. Future payment obligations are Ramesh Raskar, AI & digital health expert recognised as current or non-current liabil- ities. Payments to funding recipients are

The foundation shall maintain the greatest recognised as a reduction in liabilities. Investment Commission possible transparency in terms of its principles, Otto Bruderer, Chair goals, structures, and activities. Audit and supervision Urs Ernst Wirtschafts-Treuhand AG, Arnold Böck- Susanne Haury von Siebenthal, Deputy Chair lin-Strasse 25, 4051 Basel, Switzerland, is appointed as Fondation Botnar’s statu- tory auditor. It conducted the audit of the foundation’s 2019 annual financial state- ments and recommends their approval. The supervisory authority of Fondation Botnar is the Federal Department of Home Affairs, Foundation Supervision, Bern, Switzerland.

Asset management The assets of Fondation Botnar are invested in accordance with the guidelines of sus- tainable institutional asset management. These are published on our website in the form of investment beliefs and principles. Fondation Botnar’s asset management strategy was reviewed in 2018 by external specialists, who confirmed that the in- vestment structure and risk profile of the investments were suitable for the goals of the foundation. Financial statements 2019 Financial statements 2019 22 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 23

Financial statements 2019

31.12.19 31.12.18 1.1. - 31.12.19 1.1. - 31.12.18 Balance Sheet mCHF mCHF INCOME STATEMENT mCHF mCHF

ASSETS Financial income Securities income incl. fees 498.89 -168.65 Current assets Other income - -0.18 Cash 92.65 139.77 Other current receivables 15.08 16.62 NET INCOME 498.89 -168.83

Non-current assets Securities 3,678.62 3,179.97 Direct project costs according to the foundation’s deed Furniture, office equipment 0.37 0.46 Grant contributions -42.29 -157.48 Property 5.28 5.20 GROSS PROFIT 456.60 -326.31 TOTAL ASSETS 3,792.00 3,342.02

Operational expenses LIABILITIES Personnel expenses incl. remuneration -4.06 -2.83 Other operational expenses -4.74 -4.59 Current liabilities from grants 47.95 32.91 Other current liabilities 2.49 2.01 Depreciation and amortisation -0.21 -0.26 Non-current liabilities from grants 113.10 126.23 Foundation capital 3,628.47 3,180.87 NET PROFIT/LOSS 447.59 -333.98

TOTAL LIABILITIES 3,792.00 3,342.02 Grants awarded Grants awarded 24 Fondation Botnar | Annual Report 2019 Fondation Botnar | Annual Report 2019 25

Grants awarded

In 2019, the Foundation Board approved the following projects Research grants Organisation Countries Amount Timeline and programs with a total funding amount of CHF 42.29m. Addressing the wellbeing and security Danish Institute against Indonesia CHF 2,000,000 2019 - 2024 needs of urban children and adolescents in Torture (DIGNITY) Indonesia in the digital era Empowering adolescents to lead change World Health Organizati- Ghana, India, Morocco, USD 1,730,000 2019 - 2024 using health data on (WHO) Jamaica Delivering an integrated decision analysis, Computer Simulation & Colombia CHF 1,404,564 2019 - 2022 monitoring & evaluation infrastructure Advanced Research Implementation grants Organisation Countries Amount Timeline to support more effective and responsive Technologies (CSART) child and youth mental systems Botnar Child Road Safety Challenge Global Road Safety Part- India, Romania, Tanza- CHF 6,010,000 2019 - 2022 (BCRSC) – Phase 2 nership (GRSP) nia, Vietnam, Mexico, Nudging for good: real-time AI-driven International Food Policy Ghana, Vietnam USD 1,125,950 2019 - 2021 South Africa, Tunisia diagnostics and behaviour change to Research Institute (IFPRI) improve adolescents’ diets and nutrition Community Health Academy (Health Last Mile Health Global / Liberia, Unit- USD 4,000,000 2019 - 2022 System Leaders Development) ed States of America Using technology to facilitate international Universitäre Psychiat- Tanzania, Chile, CHF 748,751 2019 - 2022 research on diagnosis and treatment of rischen Kliniken (UPK) Kosovo, Switzerland Strategic partnership with WHO New World Health Organiza- Global, Switzerland USD 3,949,536 2019 - 2021 borderline personality disorder in adoles- Basel Digital Health and Innovation & Data tion (WHO) cence including low- and middle-income Analytics units countries Supporting innovative and meaningful Women Deliver Inc. Global USD 2,500,000 2019 - 2022 Interfacing technology & adolescent wom- The New York Academy of Colombia, Morocco, USD 715,785 2019 - 2021 global youth leadership with the Women en nutrition: occupational determinants Sciences United States of Deliver Young Leaders program and local solutions America The Lancet & FT Commission: Governing Graduate Institute of Global CHF 2,001,880 2019 - 2021 Stopping AIDS and HIV transmission University Hospital Basel Tanzania, Lesotho, CHF 700,000 2019 - 2022 Health Futures 2030: growing up in a International and in children and adolescents on ART in Switzerland, Tanzania digital world Development Studies sub-Saharan Africa: a randomised trial Developing innovation and entrepreneur- Ifakara Health Institute Tanzania USD 1,997,696 2019 - 2012 using molecular diagnostics and eHealth ship ecosystems in Tanzania (IHI) (the GIVE – MOVE project) Career development fellowships EDCTP – European & Developing Sub-Saharan Africa EUR 1,615,000 2019 - 2024 Effect of the natural sweeteners erythritol St. Claraspital Research Switzerland, Russia, CHF 527,065 2019 - 2022 Fondation Botnar Countries Clinical Trials and xylitol on gut microbiota, glucose Me- Ltd (at St. Claraspital Norway Partnership (EDCTP) tabolism and gastrointestinal symptoms Basel) Business for health solutions Global Development Kenya, Tanzania USD 1,500,000 2019 - 2022 PASSION Project: paediatrics in Africa – University of Basel Sierra Leone, Tanzania CHF 523,000 2019 - 2022 Incubator, Inc. enabling wireless diagnosis for common skin diseases Strategic partnership with UNICEF – United Nations Children’s Pan-Africa USD 907,200 2019 - 2021 RESoRT: Reliable Epileptic Seizure Monitor- École Polytechnique Switzerland, Iran CHF 473,852 2019 - 2023 designing an African youth digital Fund (UNICEF) ing in Real Time Fédérale de Lausanne innovation platform (EPFL) Strategic partnership with WHO New World Health Organiza- Global, Switzerland USD 300,000 2019 - 2020 International Digital Health & AI Research Graduate Institute of In- Switzerland CHF 335,000 2019 - 2020 Digital Health & Data Analytics Units tion (WHO) Collaborative (I-DAIR) ternational and Develop- (initial funding) ment Studies Enabling environment for ECD investment Interteam Namibia USD 300,000 2019 Adolescent Violence and Injury Detection Johns Hopkins Bloomberg India, Vietnam USD 300,000 2019 - 2021 MagicHELP: the Cluj-Napoca helping MagiCAMP Association Romania CHF 299,000 2019 - 2021 System (AVID) School of Public Health network. Bringing communities together Reaching adolescents with health World Health Organizati- Ghana, Tanzania, USD 299,770 2019 - 2020 around children with serious conditions services: a multi-country study of on (WHO) Zimbabwe EduAlert – preventing school dropout Romanian Health EUR 208,800 2019 - 2021 adolescent health checkups in low- and with artificial intelligence Observatory Romania middle-income countries Wello.AI – School of Health for Cluj-Napoca Wello Association Romania EUR 194,630 2019 - 2021 Smartphone-based keratoconus screening University of Zurich Switzerland CHF 238,200 2019 - 2024 Grants awarded 26 Fondation Botnar | Annual Report 2019

One-off grants Organisation Countries Amount Timeline Child social & financial education – Aflatoun International Global EUR 266,800 2019 - 2021 innovative sustainable scaling RehabilITation 2.0 - digital technologies Humanity & Inclusion / Vietnam USD 300,031 2019 - 2022 serving quality, transition, and continuum Handicap International of rehabilitation care, health, participation, and wellbeing of children with disabilities Child-Adolescent Health PhD Fellowship Swiss School of Public Nigeria, Peru, Sierra CHF 300,000 2019 - 2023 program (CAH) Health (SSPH+) Leone, Somalia, Switzerland, Uganda Let's recycle together (reciclamos juntos) Julius Baer Foundation Colombia CHF 300,000 2019 - 2023 Makers and coders: public schools coding Tanzania Bora Initiative Tanzania CHF 300,000 2019 - 2020 and making communities Digitising the Research Fairness Initiative COHRED Brazil, South Africa, CHF 300,000 2019 - 2020 (RFI) Switzerland Samasource digital literacy and online Samasource Tanzania USD 297,545 2019 - 2020 work hubs – phase I Analysing, mapping and engaging Swiss foraus – Swiss Forum on Switzerland CHF 299,096 2019 - 2020 stakeholders of digital components in the Foreign Policy Swiss Health Foreign Policy (GAP) Cocreation of learning hub Cluj-Napoca SDG CoLab Romania CHF 298,200 2019 - 2021 to Improve wellbeing of young people and build local capabilities Smartphone-based anthropometry Wadhwani Institute for India USD 292,215 2019 - 2021 technology Artificial Intelligence DayOne acceleration program 2019/2020 BaselArea.swiss Switzerland CHF 290,000 2019 - 2020 Birth and health registration initiative Plan International Senegal CHF 280,000 2019 - 2022 Switzerland Tanzanian-Swiss innovation and entrepre- EssentialMed Foundation Tanzania CHF 280,000 2019 - 2020 neurship initiative

Focus group on artificial intelligence for International Telecommu- Global CHF 274,125 2019 - 2021 health nication Union (ITU) Science Technology Engineering and ProjeKt Inspire Tanzania CHF 257,455 2019 - 2021 Mathematics Park – STEM Park Tanga City

Development of a snake bite app for the Swiss Tropical and Public India CHF 218,000 2019 - 2021 Indian subcontinent Health Institute (Swiss TPH) Developmental science of adolescent Murdoch Children's Global EUR 187,000 2019 - 2021 growth and nutrition: a Lancet series Research Institute (MCRI) Interdisciplinary study on young people’s Babes-Bolyai University Romania CHF 189,332 2019 - 2020 needs and opportunities assessment in Cluj-Napoca, Romania Protecting our future: promoting the Pan American Health Caribbean USD 165,000 2019 - 2020 health and wellbeing of adolescents in the Organization (PAHO) Caribbean Lecturers without borders: distributed Centre de Recherches India, Indonesia, CHF 140,000 2019 - 2023 network of travelling scientists for free Interdisciplinaires – CRI Senegal, Tanzania, Imprint outreach lectures in low- and middle- Paris France, Germany, income countries Nepal © Fondation Botnar, Basel, Switzerland. Photographer credits: CAS global social entrepreneurship Center for Philanthropy Switzerland CHF 60,000 2019 - 2021 Editorial office: FMKomm – Shape History 2020/2021 – pioneer stipends Studies (CEPS) Design: iPixel – Cornelia Biotti Extension – research project "Mechanistic University Hospital Basel Switzerland CHF 57,865 2019 Print: buysite – Makmende Media insight into the pathophysiological Texts: Valerie Chase – Regina Nicolardi mechanisms of congenital myopathies" – Women Deliver Cycling for children Committee for UNICEF Switzerland CHF 16,000 2019 Please email [email protected] if you – Roland Váczi Switzerland & Liechten- would like to provide feedback on this Annual – World Health Summit stein Report. – Unisanté Fondation Botnar St. Alban-Vorstadt 56 4052 Basel Switzerland Follow us! +41 61 201 04 74 @FondationBotnar [email protected] LinkedIn.com/company/fondationbotnar www.fondationbotnar.org Facebook.com/fondationbotnar