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Download This PDF File Disability Studies Quarterly Spring 2003, Volume 23, No. 2 pages 223-38 <www.cds.hawaii.edu/dsq> Copyright 2003 by the Society for Disability Studies A Partially Annotated Bibliography of Publications in the Field of Disability Studies for the Year 2001 Compiled by David Pfeiffer Center on Disability Studies University of Hawaii This bibliography is only partially annotated because the volume of disability studies literature is becoming overwhelming. The increasingly larger number of publications each year is an indication of the progress of the field which is growing in breadth and depth as well as in number. These entries represent only a small part of the literature and are only a place to start. I am very indebted to my colleagues in the field who gladly share publications in their areas of expertise. Without such sharing this bibliography and others would not be possible. A similar bibliography, but for the year 2000, appeared in the Winter 2003 issue of Disability Studies Quarterly. Yet another similar one, but for the year 2002, will appear in the Summer 2003 issue. Aasland, O.G. (2001) The physician role in transition: is Hippocrates sick? Social Science and Medicine, 52(2): 171-73. Adams, Rachel. (2001) Sideshow U.S.A.: Freaks and the American Cultural Imagination. Chicago: University of Chicago Press. Discusses various media (film, photography, literature, and other things) showing the significance of freak shows and its continual reinvention. Albrecht, G.L. (2001) Rationing Health Care to Disabled People. Sociology of Health and Illness, 23(5): 654-77. Albrecht, Gary L.; Seelman, Katherine D.; Bury, Michael (editors). (2001) Handbook of Disability Studies. Thousand Oaks, CA: Sage Publications. Ali, Zoebia; Fazil, Qulsom; Bywaters, Paul; Wallace, Louise; Singh, Gurnam. (2001) Disability, Ethnicity and Childhood: a critical review of research. Disability and Society, 16(7): 949-68. A literature review of the good and bad experiences which non-white children with disabilities encounter. Almon, P.A. (2001) Mass transportation operators' beliefs about visual impairments. Journal of Visual Impairment and Blindness, 95(1): 5-13. Using the Beliefs About Blindness Score and some driver characteristics, the study examines the drivers' irrational beliefs about blindness. Altman, Barbara M. (2001) Definitions of Disability and Their Operationalization and Measurement in Survey Data: An Update. Research in Social Science and Disability, Volume 2, Exploring Theories and Expanding Methodologies edited by Sharon N. Barnartt and Barbara M. Altman. New York: Elsevier Science Ltd., 77-100. Takes five definitions of disability - (1) chronic conditions and impairments, (2) functional limitations, (3) role limitations, (4) bed disability days, and (5) receiving disability benefits - and using the Household Survey Component of the 1987 National Medical Expenditure Survey shows that in the population 18-64 there are 43.7% of the population who meet at least one of these five definitions, i.e., is a person with a disability. The population 65 and over have (in some estimates) a 67% figure and in less that 18 (in some estimates) a 33% figure. In other words one can conclude that at least 40% of the US population is disabled. Andrews, Lori B. (2001) Future Perfect: Confronting Decisions About Genetics. New York: Columbia University Press. Looks at the ethical, legal, and social implications of genetic technology including people with disabilities. Angst, J.; Marneros, A. (2001) Bipolarity from Ancient to Modern Times: Conception, Birth, and Rebirth. Journal of Affective Disorders, 67(1): 3-19. Arad, D.D.; Wozner, Y. (2001) The Use of the Shye's Systemic Quality Life Model in the Examination of Child Protection Officers Decision. Social Indicators Research, 56(1): 1-20. Arnetz, B.B. (2001) Psychosocial challenges facing physicians of today. Social Science and Medicine, 52(2): 203-213. Ashford, Jose B.; Sales, Bruce D.; Reid, William H. (editors). (2001) Treating Adult and Juvenile Offenders with Special Needs. Chicago: American Psychological Association. Baker, Kristan; Donelly, Michelle. (2001) The Social Experiences of Children with Disability and the Influence of Environment: a framework for intervention. Disability and Society, 16(1): 71-86. The entire context or environment of a child with a disability must be considered before any intervention. Bakker, N. (2001) A Harmless Disease: Children and Neurasthenia in the Netherlands. Clio Medica, 63: 309-28. Banks, Pauline; Cogan, Nicola; Deeley, Susan; Hill, Malcolm; Riddell, Sheila; Tisdall, Kay. (2001) Seeing the Invisible Children and Young People Affected by Disability. Disability and Society, 16(6): 797-814. A literature review and a discussion of alternative conceptual frameworks. Barasch, Moshe. (2001) Blindness: The History of a Mental Image in Western Thought. New York: Routledge. A history of the image of blindness up to the Renaissance. Barnartt, Sharon; Scotch, Richard. (2001) Disability Protests: Contentious Politics, 1970-1999. Washington, D.C.: Gallaudet University Press. Studies 30 years of rights protests by deaf persons and people with disabilities. Bartlett, Peter. (2001) Legal Madness in the Nineteenth Century. Social History of Medicine, 14(1): 107-31. Batavia, Andrew I. (2001) The Ethics of PAS: Morally Relevant Relationships Between Personal Assistance Services and Physician-Assisted Suicide. Archives of Physical Medicine and Rehabilitation, 82(Supplement 2): S25-S31. The author cogently presents the argument that personal assistance services under the direction of the person receiving that assistance enhances the quality of life of that person and that they will be less likely to want to end their life. He then analyzes the position that poor access to PAS is a reason for denying a person physician assisted suicide. He goes on to discuss the use of severe functional limitations as a reason to provide physician assisted suicide. These last two arguments, he points out, are less accepted than the first one within the disability population. Physician assisted suicide is not only a contentious topic in the general population, but it is a specially pugnacious one within the disabled population and clearly a debate happening among the scholars in the field. For presenting this discussion in a clear light this article is important. Batavia, Andrew I. (2001) A Right to Personal Assistance Services: `Most Integrated Setting Appropriate' Requirements and the Independent Living Model of Long-Term Care. American Journal of Law & Medicine, 27(1): 17-43. This article deals in a competent manner with the various ways of providing personal assistance for persons needing long-term care discussing the legal, the administrative, and the budgetary aspects of each. A major thrust of the article is the requirements of the Americans with Disabilities Act and related court decisions. The author lays out quite well the requirements and the possible results of these requirements in terms of long-term care. Batavia, Andrew I.; Schriner, Kay. (2001) The Americans with Disabilities Act as Engine of Social Change: Models of Disability and the Potential of a Civil Rights Approach. Policy Studies Journal, 29(4): 690-702. An extremely important topic among policy analysts who work on disability issues is whether the Americans with Disabilities Act is useful in bringing about social transformation. The authors discuss this issue and conclude that although all civil rights laws are necessary to prevent past and current discrimination, they alone will not produce the fundamental reform in society needed in order for persons with disabilities to reach their full potential. Now there must be mutual accommodation and a mutual responsibility and disability must been seen as one of many different human variations. Birenbaum, A.; Cohen, H.J. (2001) University Affiliated Programs as Specialty Medical Providers and the Emerging Managed Care System. Mental Retardation, 39(3): 218-20. Black Monsen, Rita. (2001) Children and Lead - A 20th Century Success Story? Journal of Pediatric Nursing, 16(6): 441-42. Bond, G.R.; Resnick, S.G.; Drake, R.E.; Xie, H.; McHugo, G.J.; Rebout, R.R. (2001) Does competitive employment improve nonvocational outcomes for people with severe mental illness? Journal of Consulting and Clinical Psychology, 69(3): 489-501. Book, Constance Ledoux; Ezell, David. (2001) Freedom of Speech and Institutional Control: Patient Publications at Central State Hospital 1934-1978. Georgia Historical Quarterly, 85(1): 106-26. Boyce, William et al. (2001). A Seat at the Table: Persons with Disabilities and Policy Making. Toronto: McGill- Queen's University Press. Discusses Canadian politics and the activities of disability rights advocates and organizations. Brady, S.M. (2001) Sterilization of Girls and Women With Intellectual Disabilities: Past and Present Justifications. Violence Against Women, 7(4): 432-61. Bragg, Lois (editor). (2001) Deaf World: A Historical Reader and Primary Sourcebook. New York: New York University Press. Brown, Bob. (2001) The Greens on Disability Issues. Access: The National Issues Journal for People with a Disability, 3(3, June, July): 3-6. A good exposition of what the Green Party in Australia says, but not too much on what it has and plans to do. Brueggemann, Brenda Jo; White, Linda Feldmeier; Dunn, Patricia A.; Heifferon, Barbara A.; Cheu, Johnson. (2001) Becoming Visible: Lessons in Disability. CCC, 52(3): 368-98. Bryan, Willie V. (2001) Sociopolitical Aspects of Disabilities.
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