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Atlas of Palliative Care in Europe

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Atlas of Palliative Care in Europe EAPC Atlas of Palliative Care in Europe AUTHORS: Carlos Centeno • David Clark • Thomas Lynch • Javier Rocafort • Luis Alberto Flores • Anthony Greenwood • Simon Brasch • David Praill • Amelia Giordano • Liliana de Lima EAPC ATLAS OF PALLIATIVE CARE IN EUROPE Authors: Carlos Centeno David Clark Thomas Lynch Javier Rocafort Anthony Greenwood Luis Alberto Flores Liliana De Lima Amelia Giordano Simon Brasch David Praill Editorial Direction Carlos Centeno, Palliative Medicine and Symptom Control Unit Clínica Universitaria, University of Navarra, Pamplona (Spain) Editorial Coordination: Gonzalo Blanco Cartography: Juan José Pons & Luis Erneta Department of Geography, University of Navarra, Pamplona (Spain) Tables and Production: BN Comunicación Address reprint requests to: European Association for Palliative Care, EAPC EAPC Head Office National Cancer Institute, Via Venezian 1, 20133 Milano (Italy) Direct Phone: +39-02-23903391, Mobile phone: +39-333-6059424, Fax: +39-02-23903393 E-mail: [email protected], EAPC Web Site: http://www.eapcnet.org/ © IAHPCPress, 2007 The European Association for Palliative Care (EAPC) has exclusive permission to use, copy, distribute, sell and use the publication freely. There are two version available of the Atlas: book (336 printed pages) and CD-book (45 printed pages & CD) ISBN: 0-9758525-5-8 Legal Dep. VA-571/2007 EAPC Atlas of Palliative Care in Europe KEY MAP N 0 500 1.000 1.500 2.000 Km. University of Navarra, Department of Geography ••••••••••••••••••••••••••••• CONTENTS •••••••• AUTHORS .................................................................. 9 PRESENTATION, EAPC PRESIDENT .................................... 11 AUTHORS PREFACE ...................................................... 13 COLLABORATORS ........................................................ 15 ABOUT EAPC .............................................................. 17 GLOSSARY ................................................................. 21 SECTION 1: WESTERN EUROPE ........................................ 25 THEMATIC MAPS ......................................................... 27 AUSTRIA .................................................................. 31 BELGIUM ................................................................. 37 CYPRUS ................................................................... 45 DENMARK ................................................................ 51 FINLAND .................................................................. 57 FRANCE ................................................................... 63 GERMANY ................................................................ 69 GREECE ................................................................... 77 ICELAND .................................................................. 85 IRELAND .................................................................. 91 ISRAEL ................................................................... 97 ITALY ..................................................................... 103 LUXEMBOURG ........................................................... 109 MALTA .................................................................... 115 NETHERLANDS .......................................................... 121 NORWAY .................................................................. 127 PORTUGAL ............................................................... 135 SPAIN ..................................................................... 141 SWEDEN .................................................................. 147 SWITZERLAND ............................................................ 153 TURKEY ................................................................... 159 UNITED KINGDOM ....................................................... 165 EAPC Atlas of Palliative Care in Europe 7 SECTION 2: CENTRAL AND EASTERN EUROPE ..................... 173 THEMATIC MAPS ....................................................... 175 ALBANIA ................................................................. 179 BOSNIA AND HERZEGOVINA ............................................ 185 BULGARIA ................................................................ 191 CROATIA .................................................................. 197 CZECH REPUBLIC ........................................................ 203 ESTONIA .................................................................. 209 HUNGARY ................................................................ 215 LATVIA ................................................................... 221 LITHUANIA ............................................................... 227 POLAND .................................................................. 233 REPUBLIC OF MACEDONIA .............................................. 239 ROMANIA ................................................................. 245 SERBIA AND MONTENEGRO .............................................. 251 SLOVENIA ................................................................ 259 SECTION 3: COMMONWEALTH OF INDEPENDENT STATES ........ 265 THEMATIC MAPS ......................................................... 267 ARMENIA ................................................................. 271 BELARUS ................................................................. 277 GEORGIA ................................................................. 283 KAZAKHSTAN ............................................................ 289 REPUBLIC OF MOLDOVA ................................................. 295 RUSSIAN FEDERATION ................................................... 303 UKRAINE ................................................................. 309 ANNEXED ................................................................... 315 ANNEX I: EUROBAROMETER QUESTIONNAIRE ......................... 317 ANNEX II: FACT QUESTIONNAIRE ....................................... 323 8 EAPC Atlas of Palliative Care in Europe ••••••••••••••••••••••••••••• AUTHORS •••••••• Carlos Centeno Anthony Greenwood Unidad de Medicina Paliativa y International Observatory on Control de Síntomas End of Life Care. Clínica Universitaria, University Lancaster University of Navarra. Pamplona (Spain) Lancaster (United Kingdom) EAPC Board Member Chair of the Task Force Luis Alberto Flores Centro de Salud Medina del Campo David Clark Valladolid (Spain) International Observatory on Spanish Directory of Palliative End of Life Care. Care Services SECPAL, Director Lancaster University Lancaster (United Kingdom) Liliana De Lima EAPC Board Member International Association for Hospice. and Palliative Care. Thomas Lynch Houston (USA). International Observatory on End of Life Care. Amelia Giordano Lancaster University European Association for Palliative Care, Head Office Lancaster (United Kingdom) Milan (Italy) Javier Rocafort Simon Brasch Programa Regional de Cuidados Paliativos, Servicio Extremeño Help the Hospices de Salud London (United Kingdom) Mérida (Spain) David Praill Sociedad Española de Cuidados Paliativos Website Help the Hospices www.secpal.com, Editor London (United Kingdom) EAPC Atlas of Palliative Care in Europe 9 ••••••••••••••••••••••••••• PRESENTATION •••••••• I am delighted to have the honour, as EAPC President, to present the EAPC Atlas of Palliative Care in Europe. This huge work is one of the outcomes of the EAPC Task Force on the Development of Palliative Care in Europe, started in 2003 by Dr Carlos Centeno, chair of this group. This task force was developed with a core group of mem- bers, and has succeeded in compiling country reports for 43/52 participating countries, describing the quantitative and qualitative situation of palliative care development across Europe. The members are representative of the organisations collaborating with the EAPC as Help the Hospices, the International Observatory on End of Life Care (IOELC), the International Association of Hospice and Palliative Care (IAHPC) and the University of Navarra. These institutions have combined their efforts to achieve the several outcomes. In addition to this book, the diffusion and the communication of the results are being in websites, scientific journals and palliative care congresses. The presentation of the results in an Atlas with 43 country reports is a very attractive way to show the situation of palliative care development. It will be an important tool for professional, care givers, policy makers and health providers. They will find in the Atlas the report country by country with an overview of the delivery of hospice and palliative care in different settings provided by the National Associations and also people identified as key persons in their countries. The milestones of develop- ment, health policy, accreditation of professionals and a selected bibliography are included in sections of each country report. The clear presentation with tables and maps is very easy to use, and show in a very attractive way the hundred of teams, unit and services, hundred of papers and thou- sands of heath care professionals and volunteers. This apparent simplicity of the pre- sentation masks the real difficulty in harmonizing the data of the diverse situations across the countries. The members of the Task Force spent a lot of energy in collecting and verifying the data, and hope that the key collaborators and expert informants will remain a link between the task force and the countries, building a network of key informants. The work is still in progress, and the
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