Surrogacy Law and Policy in the U.S.: a National Conversation Informed by Global Lawmaking
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Euro-Nmd Patient Representatives Booklet
EURO-NMD PATIENT REPRESENTATIVES BOOKLET JUNE 2020 EURO-NMD Patient Representatives – 11/06/2020 1 EURO-NMD Meeting, Freiburg, 29-30 November 2017 INTRODUCTION The Patient Advisory Board (PAB) aims to ensure true and equitable representation of the voice of patients within the EURO-NMD network so that EURO-NMD services can answer to the needs and expectations of rare neuromuscular disease patients and improve access to high quality diagnosis, care and treatment. The PAB creates a bridGe between the ERN and the rare neuromuscular patient community, by coordinatinG the participation of all patient representatives in the Network, and liaisinG with its affiliated patient orGanisations. The Patient Advisory Board also endorses additional patient representatives to join Specialist Groups based on their expertise. The PAB has established its own Constitution and Rules of Procedure. Membership: Members of the PAB include those elected via EURORDIS who constitute the European Patient Advocacy Group for EURO-NMD. Members from umbrella orGanisations (e.g. Spierziekten Nederland) have also been invited to join the Patients Advisory Board to ensure a proper representation of the neuromuscular patient community amonG the PAB. ePAG representatives: ‹ François Lamy (AFM-Téléthon, France), ‹ Dimitrios Athanasiou (MDA-Hellas), ‹ Massimo Marra and Patrizia Garzena (alternate) (CIDP Italia ONLUS), ‹ Marisol Montolio (Duchenne Parent Project Spain), ‹ Michela Onali (Gli Equilibristi HIBM, Italy) ‹ Jean-Philippe Plançon (French Association against Peripheral Neuropathies, France - European Patient OrGanisation for Dysimmune and Inflammatory Neuropathies, EU), ‹ Evy Reviers (ALS LiGa Belgium), ‹ Judit Varadine Csapo (Angyalszarnyak HunGarian Muscle Dystrophy Association). Other NMD patient representatives: ‹ Madelon Kroneman (Spierziekten Nederland, Dutch Patient Society of Neuromuscular Diseases), The members of the PAB will commit to assist in the following: ‹ Governance of the ERN: The ERN Board will include the patient representatives that are part of the Patient Advisory Board. -
FINDING the RIGHT SURROGATE: a Guide for Intended Parents Table of Contents Chapter 1: Understanding Surrogacy
FINDING THE RIGHT SURROGATE: A Guide for Intended Parents Table of Contents Chapter 1: Understanding Surrogacy.................................................... 3 Why Surrogacy? ......................................................................................... 4 An Ancient Practice ................................................................................... 4 From Artificial Insemination to IVF .......................................................... 5 Types of Surrogacy..................................................................................... 6 Chapter 2: Finding a Surrogate ............................................................. 7 Who Needs a Surrogate? .......................................................................... 8 How to Find a Surrogate ........................................................................... 9 What Makes a Good Surrogate? .............................................................. 9 Should You Use Surrogate Agencies? ................................................... 11 Chapter 3: Changing Lives, One Cycle at a Time ............................... 13 Why They Do It ........................................................................................ 14 Why We Do It ........................................................................................... 15 What You Can Do Next ........................................................................... 15 Finding the Right Surrogate: A Guide for Intended Parents 2 CHAPTER ONE UNDERSTANDING SURROGACY Finding -
Placement of Children with Relatives
STATE STATUTES Current Through January 2018 WHAT’S INSIDE Placement of Children With Giving preference to relatives for out-of-home Relatives placements When a child is removed from the home and placed Approving relative in out-of-home care, relatives are the preferred placements resource because this placement type maintains the child’s connections with his or her family. In fact, in Placement of siblings order for states to receive federal payments for foster care and adoption assistance, federal law under title Adoption by relatives IV-E of the Social Security Act requires that they Summaries of state laws “consider giving preference to an adult relative over a nonrelated caregiver when determining a placement for a child, provided that the relative caregiver meets all relevant state child protection standards.”1 Title To find statute information for a IV-E further requires all states2 operating a title particular state, IV-E program to exercise due diligence to identify go to and provide notice to all grandparents, all parents of a sibling of the child, where such parent has legal https://www.childwelfare. gov/topics/systemwide/ custody of the sibling, and other adult relatives of the laws-policies/state/. child (including any other adult relatives suggested by the parents) that (1) the child has been or is being removed from the custody of his or her parents, (2) the options the relative has to participate in the care and placement of the child, and (3) the requirements to become a foster parent to the child.3 1 42 U.S.C. -
Reproductive Labor Or Trafficking: the Effect of Disparate Power on Consent in Transnational Surrogacy Agreements
REPRODUCTIVE LABOR OR TRAFFICKING: THE EFFECT OF DISPARATE POWER ON CONSENT IN TRANSNATIONAL SURROGACY AGREEMENTS AMY PARKER* I. INTRODUCTION .................................................................. 155 II. REGULATION OF SURROGACY AGREEMENTS ...................... 157 III. REGULATION OF HUMAN TRAFFICKING ............................. 161 IV. CURRENT LAW ON DISPARITY OF POWER ........................... 164 V. DISPARATE POWER IN INDIAN SURROGACY AGREEMENTS ..................................................................... 167 VI. CONCLUSION ...................................................................... 172 I. INTRODUCTION Ajala spends most of her days walking around her clinic’s dormitory, although her steps are becoming slightly more labored each day. The dormitory is filled to capacity with pregnant women like Ajala, and they often talk with each other about their lives, both before and after the babies they are carrying are born. Ajala misses her husband and two young daughters, and daily assures herself— and anyone else who will listen—that she is doing this for them. After all, what other way does a thirty-year-old woman who quit school at ten years of age have to provide this kind of money for her family? When a young, pretty, Indian woman came to Ajala’s impoverished neighborhood and told each of the families how they could earn $3,000 (roughly five years income for Ajala’s family) by providing the loving and compassionate service of carrying a baby for another couple, Ajala’s husband was quite intrigued. As a Hindu family, they are very familiar with the mythological tale of Lord Krishna, and his childhood spent with Yashoda, his devoted surrogate mother. The young recruiter reminded them of the joy Yashoda took in providing this service for the young Lord and told Ajala that she could have the same happy experience. -
Indian Surrogacy: Ending Cheap Labor
Santa Clara Journal of International Law Volume 18 Issue 1 Article 1 1-12-2020 Indian Surrogacy: Ending Cheap Labor Jaya Reddy Follow this and additional works at: https://digitalcommons.law.scu.edu/scujil Part of the International Law Commons Recommended Citation Jaya Reddy, Comment, Indian Surrogacy: Ending Cheap Labor, 18 SANTA CLARA J. INT'L L. 92 (2020). Available at: https://digitalcommons.law.scu.edu/scujil/vol18/iss1/1 This Comment is brought to you for free and open access by the Journals at Santa Clara Law Digital Commons. It has been accepted for inclusion in Santa Clara Journal of International Law by an authorized editor of Santa Clara Law Digital Commons. For more information, please contact [email protected], [email protected]. 18 SANTA CLARA JOURNAL OF INTERNATIONAL LAW 92 (2020) Indian Surrogacy: Ending Cheap Labor Jaya Reddy !92 Indian Surrogacy: Ending Cheap Labor Table of Contents I. Introduction ..............................................................................................................................94 II. Background ..............................................................................................................................94 A. 2002: Legalization of Commercial Surrogacy Caused Exploitation but Allowed Impoverished Women to Escape Poverty ............................................................................................................94 B. 2005: Indian Council for Medical Research Issued Extremely Narrow Guidelines Regulating “ART” ............................................................................................................................................98 -
PARK JIN HYOK, Also Known As ("Aka") "Jin Hyok Park," Aka "Pak Jin Hek," Case Fl·J 18 - 1 4 79
AO 91 (Rev. 11/11) Criminal Complaint UNITED STATES DISTRICT COURT for the RLED Central District of California CLERK U.S. DIS RICT United States ofAmerica JUN - 8 ?018 [ --- .. ~- ·~".... ~-~,..,. v. CENT\:y'\ l i\:,: ffl1G1 OF__ CAUFORN! BY .·-. ....-~- - ____D=E--..... PARK JIN HYOK, also known as ("aka") "Jin Hyok Park," aka "Pak Jin Hek," Case fl·J 18 - 1 4 79 Defendant. CRIMINAL COMPLAINT I, the complainant in this case, state that the following is true to the best ofmy knowledge and belief. Beginning no later than September 2, 2014 and continuing through at least August 3, 2017, in the county ofLos Angeles in the Central District of California, the defendant violated: Code Section Offense Description 18 U.S.C. § 371 Conspiracy 18 u.s.c. § 1349 Conspiracy to Commit Wire Fraud This criminal complaint is based on these facts: Please see attached affidavit. IBJ Continued on the attached sheet. Isl Complainant's signature Nathan P. Shields, Special Agent, FBI Printed name and title Sworn to before ~e and signed in my presence. Date: ROZELLA A OLIVER Judge's signature City and state: Los Angeles, California Hon. Rozella A. Oliver, U.S. Magistrate Judge Printed name and title -:"'~~ ,4G'L--- A-SA AUSAs: Stephanie S. Christensen, x3756; Anthony J. Lewis, x1786; & Anil J. Antony, x6579 REC: Detention Contents I. INTRODUCTION .....................................................................................1 II. PURPOSE OF AFFIDAVIT ......................................................................1 III. SUMMARY................................................................................................3 -
Compensated Gestational Surrogacy in the United States: Baseline Guiding Principles for Proactive Policy
Compensated Gestational Surrogacy in the United States: Baseline Guiding Principles for Proactive Policy As the incidence of compensated gestational surrogacy in the United States increases, states are reconsidering their legal and policy approaches to the issue. Compensated gestational surrogacy implicates core human rights of multiple stakeholders, including persons acting as gestational surrogates, children born of such arrangements, and intended parents. In the United States, legislation authorizing and regulating compensated gestational surrogacy has the potential to ensure legal certainty and the respect, protection, and fulfilment of the human rights of all stakeholders. Such legislation also has the potential to recognize and address power dynamics in compensated gestational surrogacy arrangements that may be rooted in gender, economic, and structural inequalities. The Center for Reproductive Rights’ work on compensated gestational surrogacy in the U.S. is part of an effort to What is compensated gestational surrogacy? advance the full spectrum of reproductive rights rooted in the human rights framework. This document posits a set A practice that involves an intended parent(s) of considerations critical to ensuring that laws and policies contracting with a person to act as a gestational on compensated gestational surrogacy in the United States surrogate and attempt to become pregnant, carry to respect, protect, and fulfill the rights of all stakeholders term, and deliver a child(-ren) using an embryo(s) to a surrogacy arrangement. We urge lawmakers to take created via IVF and to receive payment beyond the following considerations into account when developing reimbursement for “reasonable” medical expenses. legislation authorizing compensated gestational surrogacy: The person who acts as a gestational surrogate neither contributes their own gametes to the creation of the Every person has the right to make decisions about embryo(s) with which they are implanted nor intends their reproductive life. -
International Post Adoption Services | Korea Service Descriptions
1605 Eustis Street 80 0 -952-9302 Saint Paul, MN 55108 651-646-7771 chlss.org/post-adoption International Post Adoption Services | Korea Service Descriptions Important: CH/LSS and our Korean partnership agencies receive heightened service requests over the summer months, and you may experience a longer wait time for your case to be assigned. Thank you for your understanding. A $35 Registration Fee is due at time of service request Additional forms specific to your Korean agency will be required. Your post adoption worker will provide them to you. Birth Family Search - Korean and U.S. File Review are included *See age restrictions below If you are unsure about proceeding with a search, consider starting with a file review. An adopted adult, age 19+ or parents of adopted minors (13+) can initiate a search for birth parents. Prior to starting your search, your post adoption worker will speak with you in detail about your motivations to search, the range of possible outcomes, and access to support systems during the search and outreach journey. Correspondence (through email) will be exchanged at no extra cost up to 1 year from the time of first contact with birth mother or father (translation available through volunteer translators). Correspondence fees (page 2) apply after 1st year of letter exchange. ..............................................................................................................................................................................................................................................................………..$350 Use “Domestic” Search Service Request when all parties live in US and Korean agency is not involved..….…..….Domestic Service fees apply US and/or Korean file review and other special requests *See age restrictions below An adopted adult, age 19+ or parents of adopted minors (age 13+) can request that their US and/or Korean agency adoption file be checked for updates. -
Identity Under Japanese Occupation
1 “BECOMING JAPANESE:” IDENTITY UNDER JAPANESE OCCUPATION GRADES: 9-12 AUTHOR: Katherine Murphy TOPIC/THEME: Japanese Occupation, World War II, Korean Culture, Identity TIME REQUIRED: Two 60-minute periods BACKGROUND: The lesson is based on the impact of the Japanese occupation of Korea during World War II on Korean culture and identity. In particular, the lesson focuses on the Japanese campaign in 1940 to encourage Koreans to abandon their Korean names and adopt Japanese names. This campaign was known as “sōshi-kaimei." The purpose of this campaign, along with campaigns requiring Koreans to recite an oath to the Japanese Emperor and bow at Shinto shrines, were to make the Korean people “Japanese” and hopefully, loyal subjects of the Japanese Empire by abandoning their Korean identity and loyalties. These cultural policies and campaigns were key to the Japanese war effort during World War II. The lesson draws from the students’ lives as well as two books: Lost Names: Scenes from a Korean Boyhood by Richard E. Kim and Under the Black Umbrella: Voices from Colonial Korea 1910-1945 by Hildi Kang. CURRICULUM CONNECTION: The lesson is intended to use the major themes from the summer reading book Lost Names: Scenes from a Korean Boyhood to introduce students to one of the five essential questions of the World History II course: How is identity constructed? How does identity impact human experience? In first investigating the origin of their own names and the meaning of Korean names, students can begin to explore the question “How is identity constructed?’ In examining how and why the Japanese sought to change the Korean people’s names, religion, etc during World War II, students will understand how global events such as World War II can impact an individual. -
Proposal for a Korean Script Root Zone LGR 1 General Information
(internal doc. #: klgp220_101f_proposal_korean_lgr-25jan18-en_v103.doc) Proposal for a Korean Script Root Zone LGR LGR Version 1.0 Date: 2018-01-25 Document version: 1.03 Authors: Korean Script Generation Panel 1 General Information/ Overview/ Abstract The purpose of this document is to give an overview of the proposed Korean Script LGR in the XML format and the rationale behind the design decisions taken. It includes a discussion of relevant features of the script, the communities or languages using it, the process and methodology used and information on the contributors. The formal specification of the LGR can be found in the accompanying XML document below: • proposal-korean-lgr-25jan18-en.xml Labels for testing can be found in the accompanying text document below: • korean-test-labels-25jan18-en.txt In Section 3, we will see the background on Korean script (Hangul + Hanja) and principal language using it, i.e., Korean language. The overall development process and methodology will be reviewed in Section 4. The repertoire and variant groups in K-LGR will be discussed in Sections 5 and 6, respectively. In Section 7, Whole Label Evaluation Rules (WLE) will be described and then contributors for K-LGR are shown in Section 8. Several appendices are included with separate files. proposal-korean-lgr-25jan18-en 1 / 73 1/17 2 Script for which the LGR is proposed ISO 15924 Code: Kore ISO 15924 Key Number: 287 (= 286 + 500) ISO 15924 English Name: Korean (alias for Hangul + Han) Native name of the script: 한글 + 한자 Maximal Starting Repertoire (MSR) version: MSR-2 [241] Note. -
Georgian Country and Culture Guide
Georgian Country and Culture Guide მშვიდობის კორპუსი საქართველოში Peace Corps Georgia 2017 Forward What you have in your hands right now is the collaborate effort of numerous Peace Corps Volunteers and staff, who researched, wrote and edited the entire book. The process began in the fall of 2011, when the Language and Cross-Culture component of Peace Corps Georgia launched a Georgian Country and Culture Guide project and PCVs from different regions volunteered to do research and gather information on their specific areas. After the initial information was gathered, the arduous process of merging the researched information began. Extensive editing followed and this is the end result. The book is accompanied by a CD with Georgian music and dance audio and video files. We hope that this book is both informative and useful for you during your service. Sincerely, The Culture Book Team Initial Researchers/Writers Culture Sara Bushman (Director Programming and Training, PC Staff, 2010-11) History Jack Brands (G11), Samantha Oliver (G10) Adjara Jen Geerlings (G10), Emily New (G10) Guria Michelle Anderl (G11), Goodloe Harman (G11), Conor Hartnett (G11), Kaitlin Schaefer (G10) Imereti Caitlin Lowery (G11) Kakheti Jack Brands (G11), Jana Price (G11), Danielle Roe (G10) Kvemo Kartli Anastasia Skoybedo (G11), Chase Johnson (G11) Samstkhe-Javakheti Sam Harris (G10) Tbilisi Keti Chikovani (Language and Cross-Culture Coordinator, PC Staff) Workplace Culture Kimberly Tramel (G11), Shannon Knudsen (G11), Tami Timmer (G11), Connie Ross (G11) Compilers/Final Editors Jack Brands (G11) Caitlin Lowery (G11) Conor Hartnett (G11) Emily New (G10) Keti Chikovani (Language and Cross-Culture Coordinator, PC Staff) Compilers of Audio and Video Files Keti Chikovani (Language and Cross-Culture Coordinator, PC Staff) Irakli Elizbarashvili (IT Specialist, PC Staff) Revised and updated by Tea Sakvarelidze (Language and Cross-Culture Coordinator) and Kakha Gordadze (Training Manager). -
Infant Safe Haven Laws a Safe Haven
STATE STATUTES Current Through December 2016 WHAT’S INSIDE Who may leave a baby at Infant Safe Haven Laws a safe haven Many State legislatures have enacted legislation to Safe haven providers address infant abandonment and endangerment in Responsibilities of safe response to a reported increase in the abandonment haven providers of infants in unsafe locations, such as public restrooms or trash receptacles. Beginning in Texas Immunity for providers in 1999, “Baby Moses laws” or infant safe haven laws have been enacted as an incentive for mothers in Protections for parents crisis to safely relinquish their babies to designated Consequences of locations where the babies are protected and relinquishment provided with medical care until a permanent home is found. Safe haven laws generally allow the parent, Summaries of State laws or an agent of the parent, to remain anonymous and to be shielded from criminal liability and prosecution for child endangerment, abandonment, or neglect in To find statute exchange for surrendering the baby to a safe haven. information for a particular State, go to https://www.childwelfare. gov/topics/systemwide/ laws-policies/state/. Children’s Bureau/ACYF/ACF/HHS 800.394.3366 | Email: [email protected] | https://www.childwelfare.gov Infant Safe Haven Laws https://www.childwelfare.gov To date, all 50 States, the District of Columbia, and Puerto Safe Haven Providers Rico have enacted safe haven legislation.1 The focus of these laws is protecting newborns from endangerment by The purpose of safe haven laws is to ensure that providing parents an alternative to criminal abandonment, relinquished infants are left with persons who can provide and therefore the laws are generally limited to very the immediate care needed for their safety and well- young children.