Annual Report 2013
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ANNUAL REPORT 2013 www.kidney.org 2 Annual Report 2013 Annual Report 2013 3 MESSAGE FROM OUR LEADERS: 2013 WAS A PRODUCTIVE YEAR FOR THE NATIONAL KIDNEY FOUNDATION AND, MOST IMPORTANTLY, FOR THOSE WE SERVE. At the close of the fiscal year, we emerged with a stronger financial position, which allowed us to put our new strategic plan into action. During the last 12 months, we focused our ef- forts on the Awareness, Prevention, and Treatment of kidney disease for those at risk and those living with kidney disease. We strengthened our existing programming and began to roll out new initiatives aimed at community-based education and system-wide change. And, importantly, we restarted our research program that has funded $100 million in research grants since its inception. Thanks to the exceptional generosity of our supporters and volunteers, we are reaching more people than ever before. The simple message that 1 in 3 adults — 73 million Americans — is at risk for kidney disease because of high blood pressure, diabetes, or a family history of kidney failure, is reaching people nationwide. We continued promoting the importance of screen- ing, serving as a voice for patients and practitioners in Washington, DC, offering free support through our patient helpline, and educating healthcare professionals around the country with the latest information to better treat their patients. As you will see in this report, our programmatic impact has never been stronger, and we have our partners, volunteers, and supporters to thank. We are inspired by the dedication ABOUT of all those who give back to the kidney community and will continue to fight kidney disease on behalf of all of our constituents. the National Kidney Foundation From all of us at the National Kidney Foundation, thank you for your commitment and support. The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease for hundreds of thousands of Sincerely, healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk. Greg Scott Beth Piraino Bruce Skyer Chairman President CEO 4 Annual Report 2013 Annual Report 2013 5 AWARENESS YOUR KIDNEYS & YOU PUBLIC EDUCATION KIDNEY WALK PREVENTION PROGRAM HIGHLIGHTS NKF CARES KEEP HEALTHY CHRONIC KIDNEY DISEASE PRIMARY CARE INITIATIVE AWARENESS Your Kidneys and You In this new community-based initiative launched in 2013, develop kidney disease in their lifetime. The NKF used trained volunteers deliver presentations to members of this study to drive awareness and issue recommenda- the general public, highlighting the role of the kidneys tions for annual screening with a simple urine test for in the body, educating about healthy lifestyle and risk those over 60 as well as others at risk. The release of this reduction, and encouraging individuals to take action by study generated over 100 million media impressions. TREATMENT talking to their doctor about testing for kidney disease. Kidney Walk ADVOCACY Public Education Kidney Walk, the signature event of the NKF, is the nation’s EDUCATION FOR KIDNEY HEALTH PROFESSIONALS The National Kidney Foundation remains the leader in largest walk to fight kidney disease. Held in 81 communi- RESEARCH educating the public about kidney disease and its risk ties around the country, the event raises awareness and factors. In 2013, kidney.org was the highest-ranked funds lifesaving programs that educate and support pa- website in searches for “kidney disease,” accessed by tients and their families. Last year, Kidney Walks attracted more than four million constituents. In addition, research 80,000 walkers, 5,000 teams, and over 200,000 donors published in the NKF’s journal, American Journal who got the word out about kidney disease and risk fac- of Kidney Diseases, found that 59% of Americans will tors while raising $8 million. 6 Annual Report 2013 Annual Report 2013 7 PREVENTION Chronic Kidney Disease Education for Kidney Health Primary Care Outreach Professionals NKF Cares NKF launched a national initiative More than 59,000 healthcare pro- NKF Cares offers support to more to reach primary care practitio- fessionals received continuing edu- than 10,000 people affected by kid- ners with important information cation from the NKF in 2013 through ney disease, organ donation, and about screening at-risk patients to the Spring Clinical Meetings, online transplantation each year. Through achieve early detection and pre- educational programs, and regional a toll-free hotline and dedicated vention of kidney disease. On the symposia. Throughout the year, 39 email, NKF Cares directly addresses local level, our outreach initiatives new continuing medical educa- questions from kidney patients and included a conference for primary tion courses, both online and live, family members from around the care professionals in the Midwest delivered the most current informa- United States on a wide variety of that ultimately benefitted 5,000 pa- tion to physicians, nurses, dialysis topics, including risk reduction, tients. In the Greater New York area, technicians, dietitians, advanced financial impact of kidney disease, an annual conference highlighting practitioners, and other profession- nutrition, and treatment options. the Cardiac-Kidney-Diabetes con- als involved in kidney care. Local nection and additional programs professional education programs KEEP Healthy on obesity and diabetes drew over helped kidney specialists improve A new, community-based initiative, 300 doctors, ultimately impacting the care provided to their patients. KEEP Healthy offers free kidney the health of thousands of patients. As an example, the impact of Kidney health checkups to help people as- Care Education Day in Sioux Falls sess their own kidney disease risk. will be felt by 2,500 patients per After taking a brief health survey TREATMENT week throughout South Dakota, and having blood pressure and Iowa, Minnesota, and Nebraska. Body Mass Index (BMI) measured, Advocacy participants are offered educa- The NKF continues to be a powerful Research tional information and consulta- voice for kidney patients, represent- In 2013, the NKF funded original tion with a medical professional. ing the interests of the kidney com- studies that will evaluate the effect Follow-up recommendations are munity in Washington D.C. every day. of phosphorus on early-stage kidney offered, including healthy lifestyle This year, NKF met with key members patients, identify genetic markers that tips and specific tests to take at of the federal government to ensure put people at risk for kidney disease, the doctor’s office. that the Affordable Care Act meets and test new treatment options to the needs of people with kidney improve long-term transplant survival. disease, continued to advocate for expanded immunosuppressive drug coverage for transplant recipients, and stood firm against proposed cuts to dialysis care. 8 Annual Report 2013 Annual Report 2013 9 LEADERSHIP board of directors GEORGE L. BAKRIS, MD BRIAN DILSHEIMER STEPHEN PASTAN, MD, FNKF Professor of Medicine Brian Dilsheimer Associates Medical Director University of Chicago Gladwyne, PA Kidney and Pancreas Transplant Pritzker School of Medicine Program Chicago, IL JIM ELKIN Emory University Minnetrista, MN Atlanta, GA BRYAN N. BECKER, MD, FNKF Senior Associate Dean P. BRENNAN HART, III FRED T. PODOLSKY for Clinical Affairs Partner Executive Vice President University of Illinois-Chicago Pietragallo Gordon Alfano Bosick & Alliant Insurance Services, Inc. Chicago, IL Raspanti, LLP New York, NY Pittsburgh, PA JAMES G. CARLSON MICHAEL W. SEXTON Virginia Beach, VA TOM HOUGH President Executive Vice President and Piedmont Bushings & Insulators, LLC PAUL CRAWFORD, MD Chief Financial Officer Spartanburg, SC Nephrology/Internal Medicine Specialist Lucchese Inc Evergreen Park, IL Plano, TX MICHAEL J. STEVENSON, CPA Partner JANE S. DAVIS, CRNP, DNP KEVIN LONGINO Clarus Partners Department of Medicine Greenwich, CT Columbus, OH Division of Nephrology University of Alabama ARTHUR PASQUARELLA, CRE MICHAEL WATTS Birmingham, AL Executive Vice President and Chief Operating Officer Chief Operating Officer Wasserman Media Group Equus Capital Partners, Ltd. Los Angeles, CA Philadelphia, PA officers national staff BRUCE SKYER JOANN VECCHIONE PETROS GREGORIOU, CPA GREGORY W. SCOTT BETH PIRAINO, MD, FNKF LYNDA A. SZCZECH, Chief Executive Officer Senior Vice President for Vice President for Finance NKF Chairman NKF President MD, MSCE, FNKF Organizational Resources President Professor of Medicine NKF Immediate Past President JOSEPH VASSALOTTI, MD, FNKF JACOB LANE Winfield Management Associate Dean of Admissions Durham Nephrology Associates Chief Medical Officer KERRY WILLIS, PHD Vice President for Newport Beach, CA & Financial Aid Durham, NC Senior Vice President for Information Technology ANTHONY GUCCIARDO University of Pittsburgh Scientific Activities Senior Vice President for Program JENNIFER MARTIN W. EDWARD WALTER School of Medicine WILLIAM G. DESSOFFY, CFA Development & Innovation ERIC ALBRECHT Vice President for Immediate Past Chairman Pittsburgh, PA NKF Secretary Vice President for Events Constituent Services President and CEO Regional Managing Director PAUL IRWIN-DUDEK Development & Sports Marketing Host Hotels & Resorts JEFFREY S. BERNS, MD, FNKF First Republic Bank Senior Vice President for ELLIE SCHLAM Bethesda, MD NKF President Elect New York, NY Field Development DONNA GIANNONE Vice President for Communications