City University of New York (CUNY) CUNY Academic Works All Dissertations, Theses, and Capstone Projects Dissertations, Theses, and Capstone Projects 6-2014 Assembling Autism Kate Suzanne Jenkins Graduate Center, City University of New York How does access to this work benefit ou?y Let us know! More information about this work at: https://academicworks.cuny.edu/gc_etds/231 Discover additional works at: https://academicworks.cuny.edu This work is made publicly available by the City University of New York (CUNY). Contact:
[email protected] i ASSEMBLING AUTISM by KATE SUZANNE JENKINS A dissertation submitted to the Graduate Faculty in Sociology in partial fulfillment of the requirements for the degree of Doctor of Philosophy, The City University of New York 2014 ii @ 2014 KATE JENKINS All Rights Reserved iii This manuscript has been read and accepted for the Graduate Faculty in Sociology in satisfaction of the dissertation requirement for the degree of Doctor of Philosophy. NAME Date Chair of Examining Committee NAME Date Executive Officer NAME NAME NAME NAME Supervisory Committee THE CITY UNIVERSITY OF NEW YORK iv Abstract ASSEMBLING AUTISM by KATE SUZANNE JENKINS Adviser: PATRICIA CLOUGH Autism is a growing social concern because of the epidemic-like growth in diagnoses among children. The lives and experiences of adults who have an autism diagnosis, however, are not as well documented. This dissertation project seeks to resolve that dearth of research. I conducted a year of participant observation at four locations of social, self-advocacy, and peer to peer support groups. I also conducted interviews with leaders and participants. I also participated (as a researcher) in an experiment in social skills acquisition led by participants from my ethnographic field work, fulfilling the planned participatory action research component of my original proposal.