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Wednesday, September 20Th Thursday, September 21St Wednesday, September 20th The-omics and personalized medicine Conference opening 14:00 - 14:20 Bruno Dallapiccola (Bambino Gesù Children’s Hospital, Rome, Italy) Undiagnosed diseases and disease gene discovery 14:20 - 15:10 Nicholas Katsanis (Center for Human Disease Modelling, Duke University, Durham, USA) Gene therapy for inherited disorders 15:10 - 16:00 Alessandro Aiuti (Pathogenesis and therapy of primary immunodeficiencies, Milan, Italy) Personalized cancer therapy 16:00 - 16:50 Franco Locatelli (Bambino Gesù Children’s Hospital, Rome, Italy) Microbiota for Health: Using Metagenomics in Pediatrics 16:50 - 17:40 Joel Dorè (INRA, Paris, France) Precision or personalization? Integrating –omics in Pediatrics Alfonso Valencia (Centro National de Investigaciones Oncologicas, 17:40 - 18:30 Madrid, Spain); Charles Auffrey (European Institute for System Biology and Medicine, Lyon, France); Anna Alisi (Bambino Gesù Children’s Hospital, Rome, Italy); Stefano Gustincich (SISSA, Trieste, Italy) WELCOME COCKTAIL Thursday, September 21st Big data and digital integration 08:30 - 08:50 Introduction Big data in practice: a how to guide Marisa de Rosa (CINECA, Bologna, Italy);Mark Peters (Great Ormond 08:50 - 09:40 Street Hospital, London, UK); Cesare Furlanello (Bruno Kessler Foundation, Trento, Italy); Spyro Mousses (Sharon Disney Lund Medical Intelligence and Innovation Institute, Orange County, USA) Images, words and data: the promises of radiomics 09:40 - 10:30 Emanuele Neri (Diagnostic Imaging, University of Pisa, Italy) Modelling and printing in 3D for a better surgery in pediatric 10:30 - 11:20 heart diseases Andrew Taylor (Great Ormond Street Hospital, London, UK) Big data or smart data? How to get advantage of remote monitoring in chronic patients 11:20 - 12:10 Tadej Battelino (University of Ljubljana, Ljubljana, Slovenia); Moshe Phillip (Jesse and Sara Lea Shafer Institute of Endocrinology and Diabetes, Tel Aviv, Israel); Olle Soder (Karolinska Institutet, Stockholm, Sweden); Fabrizio Drago (Bambino Gesù Children’s Hospital, Rome, Italy) Application of artificial intelligence in pediatrics 12:10 - 13:00 Anthony C. Chang (CHOC Children’s Hospital, Orange County, USA) LUNCH The patients and participatory medicine Introduction 14:00 - 14:20 Alberto Villani (Bambino Gesù Children’s Hospital, Rome, Italy) The role of patient communities in accelerating research and improving care 14:20 - 15:10 Filippo Buccella (EUPATI, Rome, Italy); Stefano Mazzariol (EUPATI, Rome, Italy);David Cole (Thinkingofoscar, UK); Alastair Kent (Genetic Alliance, UK; other participants TBC); Denis Costello (EURORDIS, Barcelona, Spain); Digital communication tools and strategies for patients and patient organizations 15:10 - 16:00 Lisa Gualtieri (Tufts University, Boston, USA); Sheila Khawaja (Patient advocate; Trieste, Italy); Roberto Ascione (Healthware International, Salerno, Italy); Guerino Delfino (Ogilvy & Mather, Milan, Italy) Monitoring chronic diseases through data platforms managed by patients 16:00 - 16:50 Julian Isla (Dravet Syndrome Foundation, Madrid, Spain);Ivana Schnur (Sense.ly, USA); Lori Marshall (Los Angeles Children’s Hospital, Los Angeles, USA); Linnea Passaler (ADEC, Milan, Italy) Tailoring health information to public needs: what about vaccines? 16:50 - 17:40 Alberto E Tozzi (Bambino Gesù Children’s Hospital, Rome, Italy); Walter Quattrociocchi (IMT School for Advanced Studies, Lucca, Italy); Walter Ricciardi (Istituto Superiore di Sanità, Rome, Italy); Patrick Zuber (WHO Vaccine Safety, Geneva, Switzerland); Who owns the data? Ethics and challenges in the era of big data 17:40 - 18:30 Effy Vayena (University of Zurich, Zurich, Switzerland) Friday, September 22nd The innovation cycle in pediatrics Introduction 08:30 - 08:50 TBC From research to innovation: innovation center or innovation network? 08:50 - 09:40 Andrea Maggioni (Nicklaus Children’s Hospital, Miami, USA); Jorge Juan Fernandez Garcia (Hospital San Juan de Dèu, Barcelona, Spain); Sherry N. Farrugia (Georgia Tech, Atlanta, USA) Cultivating pediatric innovation ecosystems 09:40 - 10:30 Narendra Kini (Nicklaus Children’s Hospital, Miami, USA) Stories of routine social innovations 10:30 - 11:20 Tanya Accone (UNICEF’s Global Innovation Centre, Bangkok, Thailand) The global perspective of pediatric innovation 11:20 - 12:10 Anthony C. Chang (CHOC Children’s Hospital, Orange County, USA) 12:10 - 12:40 Results from the innovation pitch 12:40 - 13:00 Closing and farewell .
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