April / May June 2016

T H E A S S O C I A T I O N for SP I N A L C O N C E R N S NEWS & VIEWS FOR PEOPLE WITH A SPINAL INJURY BY PEOPLE WITH A SPINAL INJURY Nga Panui me Nga Whakaaro mo Tangata i Mate Tuaiwi Na Tangata i Mate Tuaiwi Peer Support for People with Spinal Injuries

www.tasc.org.nz April / May

June 2016

In this issue: • Individualised funding • Life as a Mum with a SCI • A parent with a son with a SCI • Living on the streets of San Francisco with a SCI • TASC New webpage is up and running • Farewell Sheila • Parafed news Plus more

Robert McIsaac Charitable Trust 1887175 President’s Report From the office

Hi to all President’s Report Hi All. From the office

I hope everyone is enjoying and making the most of the periodic warm spellsHi to allwe seem to be going through at the moment. The generally fine WellHi All. winter is definitely here—cold and wet. daysI hope have everyone been great is enjoying for getting and outdoors making to the experience most of thethe periodicautumn envi-warm I’m lucky enough to be heading away for a ronmentspells we and seem meet to with be others.going throughIn preparation at the formoment. the winter The monthsgenerally I had fine monthWell winter to the is European definitely summerhere—cold including and wet. a adays heat havepump been installed great in for my getting bedroom, outdoors and amto experience pleased to thesay autumnthat I have- envi- weekI’m lucky in Dublin enough with to Sheila be heading—the Senioraway forOT a n’t yet noticed any dramatic increase in power charges, although this may ronment and meet with others. In preparation for the winter months I had month to the European summer including a soon be changing as the cooler weather sets in. The pleasant increase in who is leaving. Heather and a trusty band of a heat pump installed in my bedroom, and am pleased to say that I have- week in Dublin with Sheila—the Senior OT roomn’t yet temperature noticed any has dramatic certainly increase made inthe power installation charges, a worthwhile although this invest- may volunteers will be manning the office in my ment. who is leaving. Heather and a trusty band of soon be changing as the cooler weather sets in. The pleasant increase in absence. Heather has gone from being our I roomhave temperaturebeen fortunate has to certainly attend threemade of the the installation recent TASC a worthwhile gatherings invest- - in wonderfulvolunteers volunteer will be manning to being the our office part intime my Gisborne,ment. Whangarei and West Auckland where Anita and I met with our paidabsence. staff member. Heather has gone from being our membersI have been and fortunatesupporters to andattend enjoyed three sharing of the recentlunch together.TASC gatherings It was good - in wonderful volunteer to being our part time toGisborne, get into discussionWhangarei circlesand West with Auckland everyone where and to Anita talk aboutand I metissues with that our We have held some good gatherings the were current for members, such as information on travelling with a disabil- paid staff member. members and supporters and enjoyed sharing lunch together. It was good last few months—including a large turn out ity,to driverget into assessments discussion circlesand vehicle with everyone modifications. and to At talk Swanson, about issues Brendan that onWe the have wettestday held some ever good in Hamilton.gatherings We the (Tourelle)were current gave for us members, a fascinating such insight as information into the activitieson travelling offered with by a disabil-Saila- bility,ity, driver and invited assessments any interested and vehicle members modifications. to join one At of Swanson, the sailing Brendan cours- havelast fewbeen months trying— toincluding have a aguest large speaker turn out es on offer. Please contact Brendan for further details. on the wettestday ever in Hamilton. We (Tourelle) gave us a fascinating insight into the activities offered by Saila- before the lunch at each gathering and this Ability, recent and request invited hasany interestedbeen made members by ACC to for join Registrations one of the sailing of Interest cours- hashave been been proving trying popular. to have We a guestwill be speaker hope- (ROI)es on for offer. the Pleaseprovision contact of a nationalBrendan Peer for further Support details. Service for people with fullybefore visiting the lunchthe regions at each we gathering haven’t covered and this a Spinal Cord Impairment (SCI). This is a one year pilot program, which A recent request has been made by ACC for Registrations of Interest yethas later been in theproving year. popular. We will be hope- will(ROI) also for offer the supportprovision to ofassociated a national family/whanau Peer Support members.Service for TASC people have with submitted a Registration of Interest for provision of the service in the fully visiting the regions we haven’t covered a Spinal Cord Impairment (SCI). This is a one year pilot program, which The ASRU has been full to capacity over the Aucklandwill also offerSpinal support Rehabilitation to associated Unit family/whanau(ASRU) catchment members. area. TASC We have have yet later in the year. referredsubmitted to oura Registration on-going collaboration of Interest withfor provisionNZ Spinal of Trust the asservice the means in the last few months. So we have been busy to provide a consistent nation-wide peer support service. meetingThe ASRU and has supporting been full lotsto capacity of new overpeople the Auckland Spinal Rehabilitation Unit (ASRU) catchment area. We have Thereferred new TASCto our Website,on-going collaborationdeveloped by withDean NZ Brennan Spinal Trustand basedas the on means the withlast afew SCI months. So we have been busy WordPressto provide acontent consistent management nation-wide system, peer support has now service. been launched and is meeting and supporting lots of new people upThe and new running TASC smoothly.Website, developedThe new layout by Dean is certainlyBrennan worthand based an explore on the Don’twith asee SCI everyone’s flaws. Don’t listen to andWordPress you will contentfind it at management www.tasc.org.nz system, We has welcome now been any launched comments and or is everything you’re told. Don’t speak if its not feedbackup and runningthat you smoothly. may have The about new thelayout website, is certainly so please worth feel an freeexplore to kind.Don’t Always see everyone’s look for goodflaws. in Don’t people. listen Not to passand theseyou will on findto Dean, it at orwww.tasc.org.nz contact Anita at theWe TASCwelcome office. any comments or everythingeverything isyou’re truth. told. Only Don’t speak speak words if its notof feedback that you may have about the website, so please feel free to The Spinal Consumer Advisory group met in April at the ASRU and re- kindness.kind. Always look for good in people. Not ceivedpass these an interesting on to Dean, presentation or contact fromAnita Dana at the on TASC the currentoffice. state of play everything is truth. Only speak words of regardingThe Spinal the Consumer Indicative AdvisoryBusiness group Case met for ina newApril Spinalat the RehabilitationASRU and re- All the best from Anita and Heather in the Unit at the Manukau Super Clinic site. kindness. ceived an interesting presentation from Dana on the current state of play TASC office Weregarding also discussed the Indicative the currentBusiness level Case of forpsychological a new Spinal services Rehabilitation at the ASRU, and future plans for this important service. The group will meet All the best from Anita and Heather in the Unit at the Manukau Super Clinic site. againWe also in July. discussed the current level of psychological services at the TASC office UntilASRU, next and time, future warm plans regards for tothis everyone, important service.Gavin The group will meet again in July. Until next time, warm regards to everyone, Gavin Your help required please A Big Thank You to our supporters CouldYour you help please required help us in improving please the way that you receive this newslet- terCould and youlet the please office help know us thein improving following the way that you receive this newslet- I terwould and like let theto receive office know the newsletter the following by paper copy or I would like to receive Robert McIsaac Charitable Trust theI would newsletter like to byreceive email. the newsletter 1887175 by paper copy or I would like to receive Couldthe newsletter you also pleaseby email. drop us an email into the TASC office with your currentCould youemail also address please as drop so usmany an peopleemail intochange the TASCthem andoffice forget with toyour passcurrent them email on toaddress us and aswe so are many unable topeople contact change you. them and forget to pass them on to us and we are unable Also to all the staff at the to contact you. 2 Auckland Spinal Unit where TASC is based for their 2 continued support 2 Individualised Funding—the Basics

What is IF? is suitable for you. Contact CCS Disability Action Individualised Funding (IF) is a way of for more info: paying for disability support that gives How can I access IF? Phone 0800 227 2255 you greater choice and control. It ena- Talk to your local Needs Assessment bles you to create your own plan, and Service Coordination (NASC). Here are some tips for choose who provides your support and They’ll do a needs assessment, which employ and manage your own staff. takes into account essential need and navigating IF from natural supports available to you. Auckland Disability Law: What can I use IF for? If you can access home and community support services, and wish to use IF, IF can be used to: they can make a referral to an IF Host of • IF is a great option for people as it • Purchase support services provided by gives them greater ability to control their support workers (employees, contracted your choice. support, but it comes with a lot of re- personnel or organisations) and pay sponsibility. You need to ensure you are costs relating to the employment of sup- Can I get support with doing all the right processes with your port workers. managing IF? staff otherwise there are legal ramifica- • Employ support workers as long as There are IF Host organisations that are tions. Make sure you have all that they are not the spouse/partner or par- contracted by the Ministry of Health to knowledge in place of what you need to ents of the person with the disability, support people using IF. do before you start employing people – and as long as they do not live in the IF Hosts will: your IF host can help you with that. same house as the person with the disa- • Help you understand IF. bility. • Help you learn how to organise, setup • Shop around for host providers – dif- and manage your supports. ferent organisations offer different levels IF doesn’t cover costs related to medical • Administer payments for the support of support. Find the one that best works supplies, equipment, home renovations, services. for you. leisure, recreation and personal or fami- • Help you manage your responsibilities ly costs. – this includes reporting back to them on • Find an IF coach who can answer all the support hours used, so that they can your questions – you should feel com- How do I know if I am eligi- be paid for. fortable with that person as they are ble for IF? there to guide you through the process. CCS Disability Action is one of these Write down your questions if it helps so You need to be: host organisations that can help assist that you don’t forget anything. If your IF • Eligible for Ministry-funded services. you to manage your funding, be it one- coach isn’t able to appropriately support • Have been allocated Home and Com- off assistance or ongoing support. Our you, consider looking elsewhere. You munity Support Services. level of involvement depends on your have a right to have your questions an- • Have talked to a Needs Assessment needs and wishes. swered. Service Coordination organisation (NASC) to see if Individualised Funding

Webpage Update by Dean Brennan—TASC Publicity Officer

We have a new website! A long awaited change to the face of TASC. It comes with 2 menus covering all the services that we provide people with spinal concerns. The TASC Net Newsletter has its own page accessed through the main menu , the posts are accessed through the news and information thumbnail under the slider. You can subscribe to the newsletter or update your details in a widget on the right. There is a regional gatherings page where each region has their own page populating on the left, regions can share experience and photos. The events calendar is available - click an event find tabs at the bottom you can download to your PC email software or the Google tab to update your Google Calendar. The bottom of each page you get access to SCI.me and the Care Cure Community forums and our Facebook page, below that rolls the carousel for our sponsors. There is a fair bit more to do but a step in the right direction, all the work is done by volunteers through www.itsaccessible.net.nz. We will keep you updated with any changes in the TASC blog and future newsletters. Keep warm and dry. Dean Bren- nan TASC Publicly Officer.

3 3

Motherhood—A Mum with a SCI

Jackie Chadwick - C5/C6 in- lenges in a hospital environment such bles and nappy pants, a wheelchair complete SCI as the height of the hospital bassinet carrier which enabled baby to be sup- making it difficult to get baby in and out ported whilst your arms are free to push Wife and mother of 3 beautiful of, difficulties manoeuvring in a small your wheelchair, baby slings, Tri pillows children aged 19, 13 and 8 room and staff struggled to adapt that I are fantastic on your lap to support ba- years. would hold and bathe baby in a differ- by when breast feeding, and a gate on ent way. Once home things were set fully fenced property to ensure when at Following my spinal cord injury 25 up to ensure I regained my independ- home my toddlers were able to run years ago I never questioned the possi- ence and there was no doubt about my freely and play safely.. bility of one day becoming a mother. ability to cope. I had amazing support from my family and friends and adapted As the years go by I feel health profes- Since the young age of five I had al- the way I cared, held and bathed my sionals and people’s perceptions are ways loved children and wanted to be- baby to my abilities. changing where they are more accept- come a primary school teacher. I love ing of people’s uniqueness and different the way children view life; not a care in My Aunty gave me the book “High abilities and the stigma’s attached are the world, their innocence, ability to chairs and children” by Sandie's dropping away. There are also more freely speak their mind and the way Waddell who she had known personally support networks available for SCI par- they perceive life as such an adventure. which I found to be a valuable resource ents and more and more gadgets avail- throughout my pregnancies able in general to make parenting easi- Like motherhood for any mother, it er. came with its fair share of challenges Baby number 2 was a whole lot differ- however due to having all 3 children ent than my first pregnancy and birth. I From my experience as a mother; focus post injury I couldn't compare before was living in Whangarei at the time so on “what you can do as a parent rather and after and embraced these challeng- in the usual Northland style my preg- than what you can't.” At the end of the es like any first time mother. nancy and birth experience was chilled, day I feel it's not just the physical input relaxed and the quickest of my 3 chil- you put into your children’s lives but the News of my first pregnancy at the age dren. Again my support network were emotional input that matters most as of 24 was unexpected as I had just amazing especially as I was a single being present with your children is just started my first job and using crutches mother of now 2 beautiful boys and as important and something that they at work to access my office on the first knew how much they needed and relied will treasure.. floor. Managing extreme morning sick- on me so I did my best to fulfil their ness and getting to the bathroom quick needs. Being a Mum and having a family has enough was difficult along with the oth- added more purpose, fun, laughter and er demands the job entailed which re- Baby number 3 arrived on Anzac Day unconditional love to my life in which I sulted in my early resignation. As I was 2008 following my marriage in 2005 feel truly blessed. There is never a dull no longer entitled to ACC weekly com- and whilst working as a Social Worker moment being a parent as it is an pensation I had to be financially sup- at the Auckland Spinal Rehabilitation. I amazing journey watching my children ported by a benefit which involved was fortunate to have the same midwife grow into independent, unique individu- some great budgeting skills due to the as I had with my second child which als. reduction in income. was reassuring to have such a positive person be involved in my antenatal care I look forward to the future, in particular My first pregnancy post SCI was ex- again and my husband was a fantastic the enjoyment of one day becoming a tremely well managed by a team of ex- support fully embracing his role as a grandmother! perienced health professionals hands on father which meant I was able (Physician, Obstetrician and midwife) to return to work after 7 months mater- involved in my care at National Wom- nity leave. en's Hospital. Carrying my baby meant that I mobilised more in my wheelchair Throughout all my pregnancies there for safety towards the end of my preg- were gadgets, resources and adapted nancy and the natural birth of my son ways which assisted with making life was described as text book with no easier such as the use of bath aids that complications. Upon discharge from assists with holding/supporting baby in National Women’s hospital after two the bath that frees up hands to wash, days the staff questioned whether I was bathing baby at the table so I could ready or could cope due to the chal- wheel underneath, pin free nappy tech- niques and now easy to use disposa- 4 4 A Son with a SCI Helen Parmentier is a Mum with a going to be taken to Middlemore by chopper. that he would still live a beautiful and full life. son who suffered a SCI in 2014 . I got there before he did of course and had I was able to be strong for him and put my to wait an agonizingly long time in a small They say you always remember where you own grieving aside. The last thing Marcel room to the side of the nurses station in the were at the time you heard significant news! wanted was a pity party. His attitude to only emergency department. I could actually hear focus on the possibilities of what he could do Like I remember I was driving with my sister the communication between the desk and now rather than what he could no longer do , in law on English country roads on a Sunday the helicopter and could hear Marcel was morning when news of Lady Diana's death and that cheeky smile he is famous for , car- conscious and answering questions. The came on the radio and we couldn't quite be- ried us all through a difficult time of transition relief that he was conscious was wonderful lieve what we were hearing! to life with a person with disability ( hate that but the not knowing what else to expect was word ). Well, I was standing at the top of the stairs really hard. with arms full of laundry, it was the last Sun- Now 18 months later Marcel and Becky are And that's how it has been ever since real- day of the school holidays October 12 2014 in their own home , he's as fiercely inde- ly ... Marcel had survived a life threatening and we were doing the usual clean and pack pendent as he always was , they are happy incident on Ruapehu that would change his ( which is all I could want )! Marcel has up of the beach house. I just happened to life forever. And the emotional roller coaster glance at my phone which was on the kitch- learned so many new skills and is now work- ride had begun. On one hand eternally grate- en counter at the top of the stairs and was ing with an architect 4 days a week. And he ful he was alive and had no brain injury , but shocked to see 6 missed calls and several still has that cheeky smile that makes every- grieving the expectations of all the dreams one around him feel good about life. frantic texts from my son's girlfriend "CALL we had shared for his life. Two spinal surger- ME!!!!!" ies, 6 weeks in Otara's spinal unit and a In a shaky voice I heard Becky say those crash course in self cares later Marcel came words you really don't want to hear.. 'There's home in a wheelchair to a home that was been an accident on the mountain , Marcel now challenging for him to get around. isn't the only one hurt but at this stage he's As a parent of course it's not what you want the worst off, he can't feel or move his legs , for your child. He was on track , great ca- they think he's broken his back ... ' reer , hard working , loving action packed Surprisingly I received the news quite calmly time with his mates, a new cute girlfriend .. and set about trying to comfort Becky and He was on track! Then this stopped us all in offer optimistic words.. But my heart was our tracks but temporarily! pounding. I got off the phone and said 'I've From day one Marcel’s optimism and hu- got to go!' Then of course realized I had no mour with his determination helped us all to idea where I needed to be so had to sit tight believe it was just a temporary set back and and wait for another call telling me he was Marcel with his Physio—Jonathan Kwan

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5 5 The Unknown by Rodney Bell - continued

That night was long and cold. I got no leave me be and his words changed to wards the end of this article). So these sleep as I didn’t trust anything at that “are you ok ? ”. In the morning on Pier both bought in enough funds to get time. My instincts were on hyper sensi- 7 I would be awoken by sounds of dif- things I needed but I remember they tive mode; actually all my senses were ferent languages from fishermen com- both took a lot of energy. heightened. I remember not being ing to fish off the Pier. Dance would still follow me on the scared but more focused on where and Seagulls would fall from the fog to Streets. I ended up dancing for Dande- when I could get some rest. spend a day on the Wharf and I would lion Dance Theatre Company who I There were many homeless out and befriend one of them which I named toured extensively with to Hawaii, New York, Hollywood…to name a few http:// about, just roaming and some with their Moana (ocean). Moana had one leg www.dandeliondancetheater.org/, made heads down looking to see what they and very witty survivor. The seagulls a short dance film about Tango with could find on the Streets. Most would raid the fishermen’s bait bags Chelsea Eng and reknown Teacher and seemed friendly but I chose to be alone while they weren’t looking and I use to Dancer of Tango in San Francisco and that night and just roamed up and down have a laugh, as Moana was fairly good Argentina, which is due for release in the main Street- Market Street, all night at it and I suppose In order to keep the near future, danced at many Home- yearning for the morning Sun. When healthy and sustain energy, nutrition less Support Group events/functions and my favourite, at many parks and the Sun finally awoke I had ended up was the key. We created a strong rap- public spaces for Dance Sake. I was with one back pack as it was too much port me and Moana. grateful to be able to express a lot of carrying 5. I gave most of my what I was expe- stuff away and just left stuff by riencing through garbage bins. dance as it definitely was Soul During the morning the city food as well. got pretty busy pretty quick so I noticed the back streets and Months would the parks was where the pass and I would Homeless would hangout. I become a Mas- ended up lying on the grass at ter of the Streets. the Yerba Buena Gardens Knowing where right outside the Yerba Buena all the Shelters Centre for the Arts, where I were and how had performed at a few times. the Shelter sys- I was to become a night walk- tems work. Ob- er. taining clothing vouchers for free The first week I spent analys- second hand- ing the Streets and Parks of clothing which San Francisco, discovering always came in spots where it wasn’t so clus- So devising ways to obtain Food and handy and always could resort to the tered with Homeless People and which Water took up most of my days. There free eating centres for Kai if needed. felt safe and had some sort of connec- were free eating centres for Homeless Made some great friends with the tion with Spiritually. The Ocean be- and people in need, which were quite Homeless Community and very hum- came one of these spots. popular and didn’t cater much for vege- bled by all the experiences. There Pier 1 and Pier 7 on the Embarcadero tarians. I noticed I was losing weight were times I had to fight for my life and were safe places for me to rest and fairly quickly and needed to focus on there were many mind battles. I had hang out at during the day and also the obtaining funds so I could keep a sus- earned my place in the Homeless night. The cold kept people away at tainable diet. Busking seemed to be Realm and my eyes would see differ- night but surprisingly it didn’t faze me. the best as I refused to pan handle. ently from those days forward. On the bench seats I would sleep and There were two ways I would Busk and Eventually I got involved with a non- wrap clothing around my Head and put one of them was playing the Blues on profit organisation named HandUp- my roho under my butt and hip. I had Harmonica and the other a game I https://handup.org/ which was estab- great sleeps cloaked with whispering called Para-Dice, Paraplegic- Dice of lished by an amazing lady, Rose sounds of Tangaroa (Maori Deity of the Life, which eventually became my Broome. HandUp connects the abun- Ocean). The Wharf Security Guard Street name. (You will have to come dance of resources and support in the would remind me that I was not allowed see my solo Show in Auckland later this US society with the capabilities of exist- to sleep at Pier 1 after 7pm as it’s a Year to see how Para-Dice was played ing social service nonprofit and govern- tourist spot but in time he would just and I’ll share more about the Show to- ment organizations. HandUp believes 6 6 that everyone deserves the opportunity Whirlwind Wheelchairs Stand. It was Its feels Harmonious to be back in Ao- to reach their full potential. I first met great way to give back to other Disabled tearoa and there is always something to Rose at a Project Homeless Connect Brothers and Sisters on the Street using be grateful for, even in our toughest Event that was held in San Francisco mobility devices. Once a relationship times. quarterly. The Mission of Homeless was established with HandUp, I was See You all Soon, Kia Kaha!!! Project Connect is to connect San Fran- able to collect enough funds to return ciscans experiencing homelessness back to Aotearoa, May 2015. Rodney Bell with the care they need to move for- Ngati Maniapoto I would like to Thank those from Ao- ward. At their one Stop Shop events tearoa who donated to my HandUp AkaParaDice and in their office every day, they link account and will also Thank You in participants to difficult-to-obtain services “He toa taumatarua” A warrior has many person when we share the air again including medical, dental and vision resting places. soon. care, and employment services assistance by mobilizing San Francisco city In the near future I will be performing a and community agencies, as well as Solo named Meremere which will prem- “Aue,aue,kau ana au ki te kopa thousands of volunteers, they are able ier in the Auckland Tempo Festival, Q rangatira, ki te tira o te kakahi” to ensure that the participants receive Theater, October 2016. The Solo is holistic care in a dignified setting. I end- layered with different experiences of I grieve alone for the ranks of ed up volunteering at these events fixing San Francisco and is well supported by leaders, the company of chiefs Wheelchairs with Bob who is at the a great team of professional Artists. Farewell and Good Luck Sheila

We say farewell to the ASRU Senior OT—Sheila O’Connor. Sheila has been employed at ASRU since January 2012 and proved to be a hugely popular member of the team—both with patients and staff alike. One of the ideas she opened us up to was the possibilities and use of adapted yoga as a rehab tool. She ran classes for both patients and staff. Sheila put 110 % into everything she undertook, both for her patients or yoga. She will be very much missed—We were only just starting to understand her strong Irish accent— but wish her all the best as she heads back to Ireland and lots of new opportunities that lay ahead for her

7 7 TA iQ sets the New Standard The new TA iQ power chairs are designed to improve your outdoor drive comfort and access, while providing you with superior functionality indoors.

So why is the TA iQ unique?

Indoors: The TA iQ has the lowest floor to seat height of only 38cm/15”, lower than any other power chair. This allows you to easily sit at a desk or table, and improves your visibility and floor to ceiling height in a vehicle. Every TA iQ has the standard specification lift/elevation function of 30 cm (38-68 cm), allowing you to reach higher cupboards, benches, and basins. With a very small turning radius of only 45 cm, the TA iQ MWD can spin easily in tight spaces.

Outdoors: The suspension on front and rear is very soft, providing a smoother ride when travelling over bumps and kerbs. The unique suspension design allows the TA iQ to climb over larger obstacles.

Performance: The TA iQ is one of the fastest powerchairs with a top speed of 12.5km/h which it will reach in 3 seconds. With larger batteries as standard it also has an optimum range of 40km, so you will travel further, faster. Designed and manufactured in Denmark with quality European motors, actuators and controllers. Crash safety tested and approved in Denmark in accordance with international standards ISO 10542-5 and 7176-19 (2008). Available in mid wheel drive (MWD), rear wheel drive (RWD) and front wheel drive (FWD) configurations. So if you are evaluating a new power chair you have to try the TA iQ for yourself. You can ask for a demonstration to purchase direct, or ask your therapist to arrange a MOH or ACC trial, then you decide.

Seat height: Suspension: Safer: Higher: Faster and Further: Only 38cm/15” More comfortable Crash test approved 30 cm elevation 12.5 km/h, 40km

0800 238 423 www.mortonperry.co.nz [email protected] 30 Bairds Road, Otara, Auckland Postal address: PO Box 23533, 30Hunters Bairds Corner,Road, Otara, Auckland Auckland 2155 Postal address: PO Box 23533,

HuntersPhone: Corner, 09 270 Auckland2503 Fax: 2155 09 270 2505 Phone:[email protected] 09 270 2503 Fax: 09 270 2505 [email protected] www.parafedauckland.co.nz

KiaKia ora ora Parafed Parafed Whanau, Whanau, around the wider AAuckland huge congratulations region Philippines, to the Auckland and Tianjin, Wheelbreakers China. and we hope to includeon their more Guinness hand World Record 30 hour game of AfterAs anotheran elongated year comes summer, to a winterclose we’reis continuing to He has 40 years lived experience of crank cyclists and Wheelchairpush rim wheel-Basketball – my partner and I were privi- herestay in busy full forcehere at– thankfullythe Parafed the Auckland vast office. Our fan- disability. Evan values living an active chair users on tracksleged that to accommo- be part of the event and enjoyed it very much, majoritytastic board of our has sports made are the indoors call to this“clear the decks” and life, and is passionate in seeing disa- date a wide variety ofwe abilities. look forward to confirmation of the record and al- timeget ofeverything year, but straightened please do awayspare so a we can move into bled people involved in sports and ready plans are afoot for similar events in the future! thoughta Paralympic for our year Sailability ready to takecrew advantage – Evan Cluleeof all of joinsthe the team; recreation opportunities of their Also congratulations to Paralympic shooter Michael manyopportunities of whom thatare laystill in putting front of in us. sig- choice. He wants to see disabled Johnson, Michael claimed the “sport performer of the nificant time on the water! Evan Clulee has joined the team at people in New Zealand living the We’re only eight months away from theParafed Rio games, Auckland, with year”working award in a at dual the recent Attitude awards, it was a real many Auckland athletes still working to lock down their lives they want, and achieving their Paralympic Team; role for Parafed andthrill Achilles for those Interna- with linkslife goals. to Parafed Auckland in the au- selection for the event. It’s exciting buttional. nerve racking to dience when Michael won against some very high pro- Withsee the culminationParalympics of years,team allmonths, but weeks, days and file opposition. WellEvan done &Mike! May and their son, (plus two confirmed,hours of preparation we would likecome to downtake theto specific Evan isevents a proud mainlander, growing cats and a dog) live in Kaukapakapa, opportunitywhere athletes to congratulate have to perform all of to our qualify. up in Given the small the town of Waikouaiti, on Rodney. Aucklandnature of based Paralympics athletes; NZ qualificationOtago’s guidelines East only Coast. Starting his ca-

the best will get their shot – but we hopereer to in do the our disability best sector for over 20 Michael Johnson – Shooting to keep you all up to date in the lead upyears, and duringin a broad the range of capacities Liam Malone – Athletics (Sprinting) Noho Ora Mai, games. The best way to do this is via fromour Parafed grass roots volunteer, to man- Byron Raubenheimer – Cycling Auckland Facebook page – if you haven’tagement already level as CEO of an Auck- Hamish, Tina & Evan @ the Parafed Cameron Leslie – Swimming “liked” us – please do so. land residential provider for people Auckland Disability Sport Office Rebecca Dubber – Swimming with an intellectual disability. His in-

BryallIt’s not McPhersononly the athletes – thatSwimming have opportunities troduction into the the sports and recrea-

Richardcoming year,Dodson as an organisation– Sailing we havetion somearea wasexciting as part of the recrea- Andrewthings on theMay horizon; – Sailing th tion team at CCS Disability Action in 50 Anniversary Dinner; Chris Sharp – Sailing Dunedin. He is well qualified in this Paralympics New Zealand has been kind enough to The venue and date has been field holding a BachelorAnd of Parks, th finally, There areinclude possibly Parafeds one or in two their more “Spirit of Gold” cham- set for the 50 Anniversary din- Recreation, and Tourismthe black Manage-and blue “lockwood” design has come selectionsber to ofcome, commerce but please events, follow which will give us the ner for Parafed Auckland. ment, from Lincoln University.through as Hethe ma- alternative flag that will go against the us on facebookopportunity to keep to tell up the with Parafed the storey and hope- jored in Communitycurrent Recreation flag inprovi- the 2016This referendum. special event Sitting will just include behind a results offully the attract team some at the corporate games. support for what we sion for people with mea disability. in my office is whatfull we dinner, believe a tocash be thebar, flag entertain- from do. the 1992 Paralympic games,ment and proudly special carried presentations. into the Auckland Council has come on boardEvan as is a majorNew Zealand Paralympian, The date is set for the evening of Achilles International Partnership; stadium by Dave McCalman. Lots of people haveth their partner, supporting a new projectnumber to launch 76, having a represented New Saturday November 12 , at the opinion on the flag debate,Ellerslie but Conventionas an organisation Centre we Parafed Aucklandnumber of Disabilityyouth specific Sport initiatives & Zealand over in the short next track wheelchair rac- have dozens of membersGuineas who haveRoom. proudly represent- Achilles year.International NZ have en- ing events at the ed1992 New Paralympic Zealand, all wearing the Silver Fern. My ances- tered Thanksinto a to partnershipsome effective with lobbying an from Parafeds, All members & associates, past Games in Barcelona,try is English,Spain. butHis I feel no connection to the Union Jack agreementSport to workNZ has together agreed to to growconduct claim a review to fame of the is going under the and present are encouraged to and am one of many who thinks it’s time to “cut the participationdisability in recreational sport sector running, in 2016. WorldAs a sector Record we in the 400m T53 Semi- attend this special event. purse strings” to the U.K. and embrace our own strong walking receiveand associated a significant activities. government final, investment, the problem was so did four oth- identity as a nation. It’s The no disrespectindicative priceto the at old this flag, stage Achilles Internationalbut very little aimsof this at funding getting makes er people it to the in front of him, and he which we plan to proudlyis $32.50/person, display in the gym or $240 in the for fu- a every persongrassroots with disability level. Hopefully participat- thismissed review the will final not by one place! table of eight. ture. ing in mainstreamonly effect thesporting funding events model, but lead to a co- Evan and his wife May are well trav- To register your interest call or alongsideherent their nationalable bodied strategy, peers. something sorely lack- Noho Ora Mai, elled, exploring our world and cul- email Tina on (09)270 2503 They encourageing in the equity sector throughat present. ac- tures. He has seen 14 countries, [email protected] cess Theby working23rd annual closely Carbine with Club event Charity Golf Classic mostly from sports trips as a New organisersis comingand their up members.on the 29th Cur-of February, where Zealand representative. May hails rently themany Auckland of the chapter biggest trains names on in New Zealand from Singapore, with regular trips the Northsport Shore, come at the together AUT millenni- to raise funds for Parafed back home, both have been involved um centre,Auckland every andsecond Paralympics Sunday. NZ. However more events will be held in development work alongside disabled people in the Bulacan region of 9 99 Jokes and Bits and Pieces

Whoever thinks money doesn’t buy happiness can deposit it in my bank account

The Old Golfer Many years ago during my married days, I accidentally overturned my golf cart. Elizabeth, a very attractive and keen golfer, who lived in a villa on the golf course, heard the noise and called out: "Are you okay? What’s your name?” “It's John, and I'm okay, thanks," I replied as I pulled myself out of the twisted cart. "John," she said, (her luscious firm loose breasts undu- lating beneath her white silky robe) "forget your troubles. Come to my villa, rest a while and I’ll help you get the cart up later."

“That’s mighty nice of you," I answered, "but I don't think my wife would like it."

“Oh, come on now," Elizabeth insisted.

She was so very pretty, very very sexy and very persua- sive ... I was weak. “Well okay," I finally agreed but thought to myself, "my wife won't like it."

After a couple of restorative Scotch and waters, I thanked Elizabeth. "I feel a lot better now, but I know my wife is going to be really upset. So I’d best go now."

"Don't be silly!" Elizabeth said with a smile, once more letting her robe fall open slightly. "She won't know anything. By the way, where is she?”

"Still under the cart, I guess."

When I was little, I didn’t care about things like what to wear, my parents dressed me. Looking back at some of the old pictures, it’s ob- vious that my parents didn't care either.

10 10 Together we’ll realise possibilities

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TASC Ofﬁce Location Phone: 09-270 3526 and CONTACT DETAILS Auckland Spinal Unit 09-270 3548 30 Bairds Road, Otara Email: [email protected] Website: www.tasc.org.nz

Office Manager Anita O’Connor Mailing Address TASC PO Box 236 35 Hours President Gavin Parish Hunters Corner Mon-Friday 9.00am - 4.00pm Vice President Brendan Tourelle Manukau 2155 RULES OF THE ASSOCIATION FOR SPINAL CONCERNS INCORPORATED Name The name of the Society shall be benefit from the research and resources (g) To explore avenues where necessary “The Association for Spinal Concerns available from them recognizing to provide emotional, psychological (Incorporated)” or TASC when abbreviated. rehabilitation as an on-going process. and spiritual support for those persons who suffer from the traumas of such a Registered Office (c) To be an independent body specifically horrific injury as spinal injury. The registered office of the Society shall be representing spinal cord injured. (h) To undertake any work which at such place as the Executive Committee (d) To ensure that before any changes in may appear to the Society to be in may from time to time appoint. legislation are made the necessary accordance with the above objects Objects standards of care and the specific needs and do such things as are incidental The objects for which the Society is of spinal injured are catered for due to or conclusive to the attainment of the established are: the degree of their incapacity. above objects. All funds of the Society (a) To be a voluntary non-profit (e) To make sure that an optimum quality shall be applied exclusively towards organization formed to advocate the of life exists for spinal injured living in the charitable objects, aims and requirements of spinal injured in all the community. purposes. areas of consequence to them in their (f) To assist new spinal injured persons (i) It is to be clearly understood by the lives as spinal injured. in their transition from hospital to members and officers of TASC, that (b) To correspond with national and community living by ensuring that they all its funds must be used to promote international bodies to keep the Society are well-informed of their rights and the above listed objects of the Society informed of up-coming services and to the services available to them. within NEW ZEALAND.

For your queries and requirements - Call TASC TODAY!! Your one stop info shop and support centre. TASC is a Registered Charitable Trust CC23064