Annual Report 2014-2015

SUPPORT THROUGH COLLABORATION AND RESPONSE TO IDENTIFIED NEEDS

SUPPORTING SERVICE PROVIDERS IN THE FIELD OF INTELLECTUAL DISABILITY P. O. Box 142, Maitland, 7404. Telephone: 021 510 4686. Fax: 021 510 4687. E-mail: [email protected]. Website: www.wcfid.co.za. Reg. no: 000 888 NPO PBO 18/11/13/2392 THE CHAIRPERSON’S REPORT This last year has seen the WCFID, through our relationships and meaningful engagement with various stakeholders, significantly contribute towards social change and transformation. We continue to encourage our members to let their voices be heard, so that the WCFID can shape and influence our service objectives and keep us accountable in supporting and enriching the lives of people with intellectual disability in the Western Cape. The WCFID underwent an extensive capacity building process and strategic review where strategic objectives were identified, and which provided the WCFID with the opportunity to review our internal processes, strategically plan ahead, align and shift our thinking in ways that enabled the Forum to become more efficient and effective. Among our priorities has been maintaining commitment to the implementation of the court case judgment across the levels of the different government departments. We most certainly value the working relationships we have with certain government departments. We continued to build core competencies in each of our functional areas which developed the capacity of our members, organisations, community practitioners and people with intellectual disabilities themselves. Many of our training courses include CPD (continuing professional development) points. Guiding all our initiatives and projects remains a heightened awareness that we need to work differently, continue to reflect, and develop our own learning processes. The ability of any organisation to achieve its outcomes is really dependant on the people that work within and for the organisation. The WCFID is fortunate to have a committed and dedicated group of staff members and Board of Management that share a wealth of skills and experience that they bring to their roles. We are highly appreciative of our member organisations and other role players who continue to confirm their confidence in the Forum as a strategic partner. Fatima Shaboodien, Chairperson, WCFID

Through collaboration, networking, and ongoing needs assessments, the WCFID aims to remain relevant in responding to the needs within the intellectual disability sector. Quarterly Forum Meeting, 20 May 2014 – Launch of the ‘The Right to Protection – identifying and reporting sexual abuse of children & adults with intellectual disability’ (booklet) & ‘REPORT IT! Sexual abuse of children and adults with intellectual disability’ (pamphlet/poster). “I would like to thank the WCFID for taking the initiative to develop this resource. It will not only contribute to the protection of children and adults with intellectual disability, but will also get those affected by sexual abuse to the relevant services and support.” Mr. Denzil Cowley: Funding for the development of the booklet and poster/ pamphlet was provided by the Dept. of Social Development. Available in English, Afrikaans & isiXhosa. Mr. Duma Mningiswa, Directorate: Special Programmes, Services to Persons with Disability, Dept. of Social Development, Western Cape Government, congratulates the author Ms. Rebecca Johns

Workshop in partnership with One-to-One Day: Awareness-raising with Principals’ Meeting of Special Care Autism Western Cape held in loads of fun – thank you Cape Town Educational Centres for learning and support Vredenburg and Cape Town SUPPORTERS: FINANCIAL AND IN KIND Anne Kreitzer Will Trust InVision Services, USA ApexHi Charitable Trust JET Lee Will Trust Community Chest, Western Cape Legal Resources Centre, Cape Town Co-Workers of Mother Theresa MacQuarie Group Foundation Ltd. (Australia) Dell South Africa Development Foundation MacQuarie Securities South Africa Ltd. Dept. of Health, Western Cape Government DG Murray Trust Dept. of Social Development, Western Cape Government MGI Bass Gordon GHF, Chartered Accountants (SA) Spotted Zebra Promotions GE Global Operations The National Lottery Distribution Trust Fund + 3 900 Volunteers at One-to-One Day, including the The Syringa Trust service providers (clubs, schools, religious bodies) ‘Audited Financial Statements for 2014/2015 are available on request’ VISION A SOUTH AFRICA WHERE ALL PEOPLE WITH INTELLECTUAL DISABILITY ARE ENABLED TO LIVE WITH INHERENT DIGNITY AFFORDED UNDER THE CONSTITUTION PROGRAMMES WCFID Strategic Objective 1: To strengthen the sector for people with intellectual disability, and increase peer to peer learning and collaboration Training and Support Supporting staff working in the sector through relevant training and supporting peer to peer learning remains a significant focus area of the Forum. Having identified a training gap, a Social Work Journal Club was established to support the social workers working at our member centres. All target groups enable staff to do the following: • Take responsibility for their own learning • Discuss issues that impact staff Peer Support: Workshop for staff of Special Care Educational Centres at facilities • Be supported by and network with colleagues • Keep abreast of current trends and developments in the field • Provide services that are relevant and appropriate • Improve service rendering in the field of intellectual disability • Obtain CPD points (if appropriate) • Learn from each other. “Introduction to Intellectual Disability” Peer support and learning

‘Adaptive Devices’, with the “Le khosi support of Western Cape APD ithetha lukhulu kum, indifundisile, kwakhona “Beste en mees leersame ndazuza ulwazi olukhulu werkswinkel wat ek nog oluzakunceda nabanye in my 6 jaar van onderwys “Think we should endisebenza nabo kwiziko bygewoon het! do this type “Thank you lwabakhubazekileyo” Baie, baie dankie!” of workshop more” for your effort to serve the rural areas” (This course meant a lot to me, I learnt (parent) (WCED) and gained a lot of experience that will (The best and most valuable workshop help even the caregivers I’m working that I have attended in the last six years with. – special care centre staff member) as a teacher. Thank you very much!) Capacity building of staff is presented through numerous target groups, focusing on the different interest groups in the sector. Where appropriate, the relevant professional bodies (SACSSP and HPCSA) are approached for Continuing Professional Development (CPD) points, thereby supporting professionals working in the sector. A total of 60 workshops were run, reaching 1561 people.

Quarterly Forum Meeting: Government grants as they apply to the disability sector. Andre Brink, Senior Manager, Operations Management, SASSA.

The Vera Grover Scholarship and Sponsorship Trust: The facilities of 14 individuals with intellectual disability were awarded sponsorships by the WCFID Allocations Committee, as well as scholarship awards, including a doctoral student. WCFID Strategic Objective 2: To increase awareness of the needs and rights of people with intellectual disability (PWID) that informs government responses Research & Resource Development

• Updated the “Learning by Doing Manual – A practical Guide to Facilitating the Physical, Intellectual and Social Development of the Special Care Child.”

Written in 2004, “this manual is an activity based training manual addressing the development of children with intellectual and physical disability and how they learn. It also focuses on guidelines and principles to consider when setting goals and doing activities with learners, as well as practical step-by-step specific classroom-based activities developed to achieve improvement of the quality of life of all learners in special care centres.” Ms. Aletta Pearce, Retired Deputy Chief Education Specialist for Special Schools (Intellectually Challenged, Autism and Hospital Schools), WCED. The updated manual addresses implementation in the centres to cater for the emotional, physical and social needs of the child. A tool kit for learners accompanies the updated manual.

• Developed the manual “Look Ahead - Sexuality and your son or daughter with intellectual disability. A guide for parent and caregivers.” Parents, family members, caregivers and teachers can play an invaluable role in teaching their sons and daughters about sexuality and sexual development. This book provides useful guidelines and techniques in talking about sexuality with children and adolescents with mild to moderate intellectual disability. “Drawing upon the lived experiences of teachers and parents of children with intellectual disability, ‘Look Ahead’ provides practical steps surrounding issues such as when to start sexuality education through to talking about dating and relationships. Based within a South African context, ‘Look Ahead’ also outlines how to deal with sensitive topics such as masturbation, sexual body parts, same-sex relationships and sexual abuse. “As a sexuality educator and researcher with a disability, I would highly recommend ‘Look Ahead’ to all parents of children and adolescents with intellectual disabilities. Not only will this book help develop parents’ confidence in providing sexuality education; it will also help develop positive sexual self-identities amongst children with intellectual disability as they continue their journey towards adulthood.” Dr. Paul Chappell, Postdoctoral Research Fellow, Department of Anthropology and Development Studies, University of Johannesburg. • Revised & updated the manual “How to start and run a group home for the non-profit sector.” The manual provides guidance for all levels of staff involved in starting and running the group home, from the board, management, support staff and clinical staff. All staff including the managing board, should attempt to engage with the entire manual, but each group will find particular chapters more useful to support their needs. Community Awareness and Information Programme • Thirty five years on, One-to-One Day continues to raise awareness about intellectual disability, as well as bring much fun and enjoyment to thousands of people from the Western Cape. Attendees from the WCFID’s member organisations are invited to spend a morning or afternoon with a volunteer from the community as they participate in games and activities. Some 2 850 people with intellectual disability are treated to gifts and activities by the more than 75 service clubs, religious organisations and schools. The WCFID continues to provide administrative support, including transport arrangements to attendees, both prior to and on the day. Thank you to the many service providers (clubs, schools, religious bodies), and the ± 3 900 volunteers for their extreme generosity, patience and support • Quarterly newsletters to more than 240 recipients (members and interested parties) • Telephonic and e-mail enquiry service to parents, professionals and colleagues in the sector on services, resources and guidelines: more than 430 enquiries. WCFID Strategic Objective 3: To provide people / organisations with skills, knowledge and resources to address the needs and rights of PWID. Advocacy The Forum participates in a number of initiatives: RIGHT TO EDUCATION OF CHILDREN WITH SEVERE TO PROFOUND INTELLECTUAL DISABILITY: The 18 year struggle has impacted significantly on the sector, with constructive post judgment relationships and collaboration in the Western Cape assisting the above mentioned children to live with inherent dignity afforded under the Constitution. The judgment was delivered in the High Court of South Africa (Western Cape High Court, Cape Town) in favour of the applicant, the Western Cape Forum for Intellectual Disability. Case no: 18678/2007 on 11 November 2010. The judgment stated that: “...... every child in the Western Cape who is severely and profoundly intellectually disabled has affordable access to a basic education of an adequate quality....” Ongoing negotiation has been continuous to ensure implementation. Monthly meetings, chaired by the Chief Director of Social Development, have been held between the Western Cape Government and WCFID RTE Task Team. The past year has valued the input of a senior official as the chairperson of the Inter-Governmental Forum (IGF) from the Office of the Premier, who together with the Chief Director of DSD were tasked to drive the strategic implementation process of the judgment. On 25 February 2015 Cabinet adopted the report: “Right to Education: proposed institutional arrangements for successful implementation of the court order”. Responsibilities that underpin the judgment: good educational programmes and good governance. One of the systems put in place by the WCFID has been the Principals/ Supervisors/ Managers Quarterly Meetings, to allow for questions and to provide support, and a Programme Implementer Course. Impact: Subsidisation of centres/learners has increased dramatically from 27 centres (1 109 learners), Feb. 2011, to 52 centres (1 698 learners), Sept. Principals/Supervisors Meeting of Special Care Educational Centres - group meets quarterly to share information, support 2014. Government spend has increased from R34 to R60 million over the and problem solve together same period; 22 centres (975 learners) remain unfunded. While not possible to name individuals, we need to commend the extreme commitment shown by many of these officials, to whom the WCFID will always feel indebted.

GROUP HOMES FOR PEOPLE WITH INTELLECTUAL DISABILITY: During 2013, the Forum extended its umbrella to SIDI (Southern Intellectual Disability Initiative), and appointed a Group Homes Co-ordinator to assist with the project. With the intention of supporting networking initiatives and information sharing of residential facilities for people with intellectual disability, the project provided input from group support for house parents to information gathering and relevant administrative input. The process was well documented, culminating in the updating of the manual “How to start and run a group homes for the non-profit sector”. THE SELF-ADVOCATE GROUP: Comprising of consumers (people with intellectual disability), the group meets quarterly at the WCFID offices. This group of adults generally come from group homes; attend protective workshops; or are individuals in the community, from around the Western Cape. The group has recently begun a journey of focusing on human rights with specific reference to the UN Convention on the Rights of People with Disabilities (CRPD). With a strong social component, the group has become a place of friendship and support. “I enjoy going to the Self-Advocates Group at the Western Cape Forum. I have been learning a lot in this group. We are a big group that comes together and talks about Human Rights (be treated equally by the law, assistance in emergencies, education, be free and safe – not to be treated cruelly). We also discuss various other subjects. Sometimes our group divides into smaller groups of 3 or 4 people to discuss something for a short time, then we have a short tea-break before we come together again and share what each small group was talking about.” Wim, Camphill West Coast.

The Self-Advocates Group: End of year social and certificate presentation WCFID STAFF Director Tessa Wood Community Liaison Officer Desiree Douglas Training Co-ordinator Aimee Jansen Life Skills Trainer & Resource Developer Rebecca Johns Western Cape Forum Group Homes Co-ordinator Feroza Cassim for Intellectual Disability Administrator Felicity Dreyer WESKAAP FORUM VIR INTELLEKTUELE GESTREMDHEID Project Administrator Sandy Butler IQUMRHU LE NTSHONA KOLONI LOKHUBAZEKO NGENGOQONDO General Office Assistant Nompiwo Primrose Rhojie Bookkeepers MGI Bass Gordon GHF Chartered Accountants (SA) THE FORUM WISHES TO THANK THE Volunteers Ruth Alfreds, Ann Myles, and the approximately FOLLOWING MEMBERS OF 3 900 volunteers of One-to-One Day THE BOARD OF MANAGEMENT FOR THEIR DEDICATED SERVICE: Caring & Sharing, Worcester Vine Community, Constantia Cenida, Somerset West Zandvliet, Macassar Fatima Shaboodien, Principal, De Heide De Heide Day Care Centre, Lansdowne Special Day Care Centre (Chairperson) Die Eiland Huis, St Helena Bay CARE & REHABILITATION CENTRES John Williams, Businessman (Treasurer) Elundini Special Care, Dunoon Alexandra Hospital, Maitland Prof. Colleen Adnams, Vera Grover Professor Emmanuel Day Care, Atlantis Lentegeur Hospital, Mitchells Plain Erika Special Care, Mitchells Plain of Intellectual Disability, Dept. Psychiatry Friends Day Centre, Maitland PROTECTIVE WORKSHOPS and Mental Health,U.C.T., and Head of Gabriella Residential & Day Care Centre, Somerset West Academy for Adults with Autism, Lakeside Clinical Unit, AlexandraHospital, Heideveld Care Centre, Heideveld Alta du Toit Nasorg, Bellville Dept. Health, WCG Imizamo Yethu, Khayelitsha Astra Centre, Gardens Iqhayiya Care & Support, Khayelitsha Care Career Connection, Stellenbosch Ruth Alfreds, Retired Matron, Lentegeur Jo Dolphin Centre, Swartland Eljada Kairos, Oudtshoorn Hospital Khuti’s Day Care, Khayelitsha Emmaus Protective Workshop & Residential, George Kay Cikizwa, Social Worker, Alexandra Lonwabo Special Care, Mfuleni Ncedeluntu Skills Training Centre, Lonwabo Hospital Malifa Foundation, Mbekweni Oasis Protective Workshop, Claremont Masixole, Beaufort West Oasis Protective Workshop, Elsies River Rosemary De Waal, Social Worker Nomaxabiso, Phillipi Ocean View Work Group, Ocean View Zuki Diniso, Head of Dept, Bel Porto Oasis Day Centre, Ravensmead TWU, Athlone LSEN School Oasis Day Centre, Delft TWU, Mitchells Plain Lindelwa Madikane, Principal, Vukani Special Ons Huis Gemeenskap Sterretjies, Citrusdal TWU Nonceba, Khayelitsha Paarl Stimulation Centre, Paarl TWU, Retreat Care Centre Play on Wheels, Langa The Village Work Centre, Claremont Aletta Pearce, Retired Deputy Chief Education Pikanini (Siyabonga Care Village), Vredenburg Work4You, Salt River Specialist for Special Schools Sherwood Park Day Care Centre, Sherwood Park Tessa Wood, Director, WCFID Sibongile, Khayelitsha ASSOCIATIONS AND ORGANISATIONS Simanyene, Somerset West Autism Western Cape Board Members until September 2014 AGM Sinethemba, Masipumelele Beaufort West A.P.D. elections: Ntathu Mfiki, Senior Social Worker, Siyazama, Gugulethu Breede Valley A.P.D. Alexandra Hospital; Nobuhle Mfengu, Sunrise Special Care Centre, Heathfield Cape Mental Health, Observatory Nomaxabiso Special Care Centre Unakho Day Care Centre, Khayamandi Camphill Village, West Coast Vukani, Khayelitsha Community Mental Health & Psychiatry Wilge Special Care, Atlantis CSPID, Riebeeck West FORUM MEMBERS 2014/2015 Yomelelani Centre, Phillipi Down Syndrome Association Western Cape Down Syndrome Support Western Cape SCHOOLS LICENSED HOMES/24 HR CARE FACILITIES Fish Hoek, Kommetjie & Noordhoek Alta du Toit School, Kuils River ASD Sean Kelly, Worcester Welfare Association Alpha School, Woodstock Bambo, Phillipi East Inclusive Education Western Cape Athlone School for the Blind, Athlone Die Eiland Huis, St Helena Bay Iris House, Stikland Beacon School for LSEN, Mitchells Plain Elim Home, Elim Oasis Association Bel Porto School, Lansdowne Gabriella Residential & Day Care Centre, Somerset West Olifantsrivier A.P.D., Vredendal Blouvlei Special School & Resource Centre, Retreat Glendale Home, Heathfield Orion Organisation, Atlantis Camphill School, Hermanus Iqhayiya Care & Support, Khayelitsha Paarl A.P.D., Paarl Chere Botha Centre, Bellville Khuti’s, Khayelitsha Prader Willie Syndrome SA, Brooklyn Del la Bat School, Worcester Ncedeluntu Sanctuary Trust, Lwandle S A Federation for Mental Health Dorothea School, Stellenbosch Sibongile Special Care,1,2,3, Khayelitsha SIDI, Constantia Eden School, Worcester Sivuyile, Stikland Siyabonga, Vredenburg Filia School, Goodwood St Josephs Childrens Home, Montana Senecio, Somerset West Glenbridge Special School & Resource Centre, Woodside Sanctuary, Rondebosch East The Association for the Sensory Disabled Bergvliet Western Cape Cerebral Palsy Association Khayelitsha Special School, Khayelitsha RESIDENTIAL HOMES / GROUP HOMES Western Cape A.P.D. Lentegeur School, Mitchell’s Plain Adams Farm Home, Plumstead West Coast A.P.D. Ligstraal Skool, Paarl - Oos Anchors Away Village, Simonstown W Cape Network on Disability Mary Harding School, Athlone Bienne Donne House, Pinelands Molenbeek School, Maitland Camphill Farm, Hermanus INDIVIDUALS Nompumelelo School, Gugulethu Camphill Village, West Coast Toni Abrahams, Prof. Colleen Adnams, Nuwe Hoop Sentrum, Worcester Garden Cottage, Heideveld Ruth Alfreds, Joan Appolis,Norman Armstrong, Oasis School, Belhar CARE Group Home, Somerset West Janice Behr, Dr. Judy Bentley, Catherine Blow, Janine Ocean View School, Ocean View Elizabeth Roos Home ACVV, Cape Town Bocking, Phillipa Boyes, Antoinette Burger, Judy Perpetua House, Monte Vista Glendale Home, Heathfield Cooke, Frikkie and Sannie Crous, Sandra Damons, Rusthof School, Strand Home of Hope, Tableview Mathias Gerisch, Tanya Fourie, C Frankl, Andrea SEAL College, Tableview Humberstone House, Plumstead Hart, Dr. Linda Hering, William Holland, Corlia St Josephs Marist College, Rondebosch Huis Horison, Stellenbosch Jordan, Callista Kahonde, Susan Landman, Fiona Vera School for Autistic Children, Crawford Hurdy Gurdy Homes Trust, Penhill Latzel, Marianne Lawrence, Rene Leonard, Includid, Maitland C le Roux, Tessa Mauerberger, Pauletta Medell, PRE-SCHOOL CENTRES Oasis House, Claremont Ann Myles, Alletta Pearce, Sally Singh, Adelle Peter Pan, Maitland Oasis House, Kenwyn Styger, Andy Schwabb, Nicky Smit, Toni Tickton, Nceduluntu Sanctuary Trust, Lwandle Oasis House, Ruyterwacht Nuscha Van der Vijver, Yvonne van der Westhuizen, Open Circle, Maitland Tracey Willemse, John Williams SPECIAL CARE EDUCATIONAL CENTRES Orion Group Homes, Atlantis ASD Sean Kelly, Worcester Rosedon House, Lansdowne HONORARY MEMBERS ACVV Trippeltoontjies, Robertson Sunfield Home, Wellington Albert Glass, Prof. Chris Molteno, Rosemary de Balula, Fisantekraal Trevelyn Lodge, Vredenburg Waal, Vivienne van der Merwe Bizweni, Somerset West The WCFID subscribes to the Independent Code of Governance for NPO’s